My wife got diagnosed 4ish months ago. Wish I watched this 4 months ago. Helped me empathize with her and better understand the stress she's going through as she mainly keeps up with getting our 9 year old twins to and from school and planning activities and such. This would make anyone exhausted, all the more difficult for her and I try my best to help out where I can.
My husband has been diagnosed with MS but the doctors in are area are not doing much about it basically have not even put him on an medication to help prolong the ms they just give him pain meds an send him home an it's very bothersome. I am in the process of getting him checked out by a better hospital hours away. I also suffer from chronic pain an autoimmune disorders an have depression ect.. 😔 But I'm also trien to educate myself to help my husband. I've noticed that his symptoms have gotten extremely worse in the last month. He's very irratatable, depressed, wobbly, numbness in his limbs, blurry vision, lack of appetite, very confused with situations an lack of sleep. It's been awful an heartbreaking 💔 😢 We have a 13 year old daughter, we run a rescue ranch an have several livestock an equine an the husband is an OTR truck owner operator an it's all coming to an end in a short time. I'm having to make lots of changes an try an deal with my medical stuff an be acquainted to this new lifestyle with basically hiding my own health issues an seems whatever I do I can not make him happy at all an he's so depressed an it's heartbreaking 💔 😢
Hi Trista, if you or your husband are feeling distressed please reach out to somebody. Beyond Blue (1300 22 46 36) and Lifeline (13 11 14) offer 24/7 services if you need support. Our Plus Connect team can also support you from Monday to Friday between the hours of 8am and 6pm on 1800 042 138. They can also connect you with our Peer Support Program and other services that might help. Many of our clients say that our Peer Support Groups are a great, safe space to discuss MS symptoms and how to manage them. Peer Support could be a good place for you and your husband to discuss your experiences with other people who are living with MS or caring for someone with the condition. The service is completely free, funded by our generous supporters!
What i have noticed about my mom is that she is unbearable. I cannot remember the last time we had a good day. It is very harsh for me to say this but a person should never have to deal with MS. Having it or caring for someone are both life draining.
Hi Jaime. We totally get it and you are not alone. We hear how difficult it is for family members to see their loved ones manage MS with all its challenges and those that care and support them can feel extra drained as you described. It is so important to be able to find ways to ‘fill your cup’ so you have energy for yourself and of course to help support your mum. We have another webinar that you might find useful czcams.com/video/ULgaTWVe8Ww/video.html . We are based in Australia and you can contact us 1800 42 138 or email msconnect@ms.org.au for more information. Thank you for reaching out. It is very brave.
Two of my good friends have MS! And I haven’t seen one ☝️ of them for a long time! And hopefully these advisors can help me out with talking and not saying or doing the wrong things!!!👍🙏
My wife got diagnosed 4ish months ago. Wish I watched this 4 months ago. Helped me empathize with her and better understand the stress she's going through as she mainly keeps up with getting our 9 year old twins to and from school and planning activities and such. This would make anyone exhausted, all the more difficult for her and I try my best to help out where I can.
Thank you for this, I've not long been dating my GF who is living with MS and I'm trying to educate myself; this has really helped 🙌
My husband has been diagnosed with MS but the doctors in are area are not doing much about it basically have not even put him on an medication to help prolong the ms they just give him pain meds an send him home an it's very bothersome. I am in the process of getting him checked out by a better hospital hours away. I also suffer from chronic pain an autoimmune disorders an have depression ect.. 😔 But I'm also trien to educate myself to help my husband. I've noticed that his symptoms have gotten extremely worse in the last month. He's very irratatable, depressed, wobbly, numbness in his limbs, blurry vision, lack of appetite, very confused with situations an lack of sleep. It's been awful an heartbreaking 💔 😢 We have a 13 year old daughter, we run a rescue ranch an have several livestock an equine an the husband is an OTR truck owner operator an it's all coming to an end in a short time. I'm having to make lots of changes an try an deal with my medical stuff an be acquainted to this new lifestyle with basically hiding my own health issues an seems whatever I do I can not make him happy at all an he's so depressed an it's heartbreaking 💔 😢
Hi Trista, if you or your husband are feeling distressed please reach out to somebody. Beyond Blue (1300 22 46 36) and Lifeline (13 11 14) offer 24/7 services if you need support. Our Plus Connect team can also support you from Monday to Friday between the hours of 8am and 6pm on 1800 042 138. They can also connect you with our Peer Support Program and other services that might help. Many of our clients say that our Peer Support Groups are a great, safe space to discuss MS symptoms and how to manage them. Peer Support could be a good place for you and your husband to discuss your experiences with other people who are living with MS or caring for someone with the condition. The service is completely free, funded by our generous supporters!
What i have noticed about my mom is that she is unbearable. I cannot remember the last time we had a good day. It is very harsh for me to say this but a person should never have to deal with MS. Having it or caring for someone are both life draining.
Hi Jaime. We totally get it and you are not alone. We hear how difficult it is for family members to see their loved ones manage MS with all its challenges and those that care and support them can feel extra drained as you described. It is so important to be able to find ways to ‘fill your cup’ so you have energy for yourself and of course to help support your mum. We have another webinar that you might find useful czcams.com/video/ULgaTWVe8Ww/video.html . We are based in Australia and you can contact us 1800 42 138 or email msconnect@ms.org.au for more information. Thank you for reaching out. It is very brave.
Two of my good friends have MS! And I haven’t seen one ☝️ of them for a long time! And hopefully these advisors can help me out with talking and not saying or doing the wrong things!!!👍🙏