Living with an INVISIBLE ILLNESS like CHRONIC FATIGUE? How do strangers treat me? Imposter syndrome?
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- čas přidán 30. 07. 2024
- In this video I discuss what a invisible illness is, how strangers treat me, how I perceive Strangers to think about me and my own insecurities and imposter syndrome about identifying as disabled.
My name is Elinor, I am a 21-year-old sociology student who has been living with ME/CFS for 5 years and has recently started making CZcams Videos about my experience!
This video does not necessarily reflect everyone's experience and illness story with ME/CFS, Anxiety, Depression, or any other Invisible Illness because we are all different and have different experiences.
Talk Space Referenced in Video www.talkspace.com/blog/what-i....
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Follow me on Instagram / ellellell_brown
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I’m 44 now but have been battling with (unexplained/not yet diagnosed/‘everything looks good, we don’t know what’s wrong with you’) illnesses and disabilities most of my life. Everything you said, I went/go through, and I thought I was the only one - yes even at my age! The impostor thing is so real - and very painful, mentally and physically. Also this mask we put on so not to ‘bother others’ but once we are alone, the boom… floods of pain, depressive thoughts, hopelessness. Thanks for sharing your story, I’m 100% it will help many many others, like it helped me. ❤️
So much of this I can relate to especially earlier on when I became ill with M.E and my other illnesses which at that point I didn’t use a wheelchair like I do now. Like you things like standing in a queue was such a challenge on my pain and fatigue levels or parking in a disabled parking spot even though I was deemed ill enough to be given a blue badge based on the points of my PIP. Internally I could see people looking at why I was parking there and walking into the store or using a disabled toilet. But now I’m more aware of the wide variety of invisibility when it comes to chronic illness/disability. And like your experience at the theatre for all those women in the toilet queue you could be fine wearing heels but have needed the disabled loo facility because you needed those facilities to deal with your catheter or a ileostomy bag which neither affect walking but still warrant needing to extra space a disabled toilet gives you. Unfortunately society is still so uneducated about the wide variety of invisibles illnesses/disabilities but hopefully channels like yours will help towards educating people.
I understand this 100% thank you for being strong enough to talk about it
Thankyou
I was crossing a crosswalk once and I had to walk slowly due to my disability. One of the cars waiting was a huge S.U.V. and the driver drove up right up to me while literally inching closer in an attempt to intimidate me with their giant metal machine. I stared right into the driver’s face while as I continued to walk at my leisure. Don’t let them grind you down 🥰
I actually feel better going out with a walking cane, I feel less insecure and judged.
Before I got a walking stick I felt so bad for using the disabled toilet too. I feel so judged by other people and it sucks. I wish people wouldn't jump to conclusions because you never know what disability the person has, even if they looked abled body
aids help so much, with making aids visible! 💜
Definitely ❤
Thank you for being so honest and vulnerable about exactly how it is sweetie 💯💚👍
People usually leave me alone after I say im a disabled veteran...which I am...but I feel bad for so many others. People can be BEYOND judgemental.
Heather Hartman Yes, they can be, but most people just don’t understand and I try not to take it personally. (though of course there are people who are just mean for no reason!) it’s good you’ve found a way to get people to leave you alone 💕
Love your hair!💗
Beautiful video. Thank you! I love your hair!! 🤗😍💗🌸Lotsa love and blessings to you and your family 💞
I watched and shared the video again!
Heather Hartman Thankyou so much! I really appreciate it 💕💖
Absolutely love this video!
Thankyou so much !! 💕💕
This video summed up everything I’ve been feeling ! You seem like a really kind and genuine person :) 💖
elinalannahrose I’m so glad !! Thankyou so much, I definitely try to be 💕💕
Thank you! Blessings & love🤗
Your absolutely welcome, and Thank you so much for watching 😊😊
Loved this video. Was so relateable and summed up perfectly what it's like. Thankyou 💕🌸
Thank you so much ! I'm so glad ! 💕💕
I feel this even just finding a seat on the train the whole journey I feel judged as the old person comes on, woman with baby, it's endless and the times have given up the sit I have regretted it. I have paid for it physically unable to make it to work, late, sick for a couple days after. I feel impostors syndrome and I do try and leave really early but at my pace I am still catching the later busy train
Airport was a nightmare, they kept telling me to run to catch the plane. Uber is expensive. There are times where I do also feel that waiting room stare and I feel I need to look sick to be believed even when I feel my worst I can still look fine on the outside.
strangers , usually can't see me, I mean myself ... because the fatigued person isn't me ....... so how they treat me? they treat as if I m someone else ... someone messy not good ... but that isn't me .... I went to garden centre last week ... and I wanted to carry two rose pots .. they r heavy and my hands are often numb.. and I asked for help .. the woman there said it is just two pots u shouldn't have a problem and, then she went away ... these things hit hard, reminds me of my ...
That must be really difficult! sending hugs!
My son has a blue badge for his disability, I use a walking stick ( most but not all of the time) I often feel people are mad at me if we park in a spot and I don't use my stick even though its not my badge. ( incase your not from the UK the information is on the back so you can't tell who the badge belongs to just by seeing it)
I also feel like this when I have to take him to the disabled loos.
His Dad dose not give a f#@%.
It sucks that you feel people are judging you, but you dont need to 'prove' yours or your son's disabledness to anyone else, if people are being judgmental thats their problem, not yours! I know its easier said than done tho 😂
I tend to tell myself that unless the person has specifically said that they have an issue with you etc, then we can’t possibly know what they’re thinking. Having said that, I do have a massive case of imposter syndrome and do things such as trying to avoid using blue badge parking bays in case someone says something to me 😏
Internalised ableism is the worst though :(
Yes! It’s important to try to not care what people think but it’s easier said than done 😂😬💕