Chronic Illness | Hank Green & Kati Morton

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  • čas přidán 19. 06. 2024
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Komentáře • 265

  • @AnnikaVictoria24
    @AnnikaVictoria24 Před 8 lety +210

    Hank is one of the people who have inspired me to talk openly about my own chronic illness (a rare vasculitis called Takayasu's arteritis) without feeling ashamed or embarrassed about it. It's so important to know that you're not alone when you have a chronic illness and I just have to say THANK GOD for the Internet for existing. Without this community of fellow "spoonies" (what we call ourselves) I would feel completely isolated and trapped in my own body.

    • @Maranwe
      @Maranwe Před 7 lety +9

      Agreed sister! With modern technology we spoonies are super blessed... I can't imagine how isolated I'd be otherwise. Just sitting at home not being able to do shit... Stay strong!

    • @kerouwhackjack6717
      @kerouwhackjack6717 Před 6 lety +1

      hi. im chronically ill and i hear alot about the spoony community but cant seem to find anywhere online to meet others. can you recommend some places?

    • @sofearb9065
      @sofearb9065 Před 6 lety +1

      Kerouwhack Jack i don't know how'd you feel about this but ik there's a pretty active spoony community on tumblr?

    • @thehungrycatherpilla6427
      @thehungrycatherpilla6427 Před 5 lety +1

      @@kerouwhackjack6717 hey! facebook has heapssss of support groups, just do a search. Just in case you haven't found any yet :)

  • @kiya12309
    @kiya12309 Před 7 lety +122

    If even someone as successful and hard-working as Hank Green couldn't afford health insurance, then we have a serious problem.

  • @c8Lorraine1
    @c8Lorraine1 Před 8 lety +101

    A friend said to me " you grieve for the loss of the expectation of normal, and then 'reset' and set a NEW normal." It has helped me cope with the depression which comes from living with chronic pain

  • @anothernicoleborninthe80s7
    @anothernicoleborninthe80s7 Před 8 lety +84

    The part about his wife and guilt is spot on

    • @luxsarrazine1141
      @luxsarrazine1141 Před 4 lety +2

      I have POTS and it’s almost like we feel guilty for someone helping us when we need help. I’ve felt guilty after going up the stairs at school I’d have to sit down and I’d be late to my next class and my friends would be late aswell because they’d either wait with me or go to my next classroom to inform my teacher I’d be late. Thank god we have understanding teachers that don’t mark us late for my medical issues

  • @Chouetterargentee
    @Chouetterargentee Před 8 lety +101

    Sometimes it feels like I can never have a meaningful life or a relationship or contribute to society in any valuable way, and on those days the thing that helps me the most is to remember that Hank Green does it. I'm so, so glad that he has been open about his illness. It makes a world of difference to me to know that someone I admire-and someone other people admire-has a condition similar to mine.

  • @sayswice5621
    @sayswice5621 Před 8 lety +118

    One of my main issues with chronic illness is that doctors don't really know exactly what is wrong with me. So if you can't get a diagnosis, you can't get treatment. So as the illness gets worse, you have to accept some things as your new normal and fight some things, etc. the grieving process is never fully played out and I'm constantly kind of between acceptance and depression.

    • @runningwild985
      @runningwild985 Před 8 lety +4

      +Sarah Swicegood Hey Sarah! Sadly, the fluctuation between acceptance and depression is something that you'll probably always deal with. I've had degenerative disc disease for almost ten years, but was only recently diagnosed. I deal with pretty severe back pain on a daily basis. Although the pain is never gone, I have quite a few good days. But when I have bad days (or bad weeks), my depression comes back with a vengeance. The best thing I can recommend is to be honest with the people around you about how you're feeling emotionally. Sometimes I call my friend and say, "I'm angry today and I just want to rant about how crappy my illness is" and she listens without comment. Other days I genuinely want advice or support. In order to let other people help you, you have to tell them how to help. Make your friends and family partners in your health. Hopefully this helps. Good luck!

    • @whateverXmatters
      @whateverXmatters Před 8 lety +2

      +Colleen Walton I have degenerative disc disease as well. I was diagnosed the second half of my junior year in high school. I was in marching band at the time, and it was a huge part of my life. I had to give that up which was extremely difficult for me. I used to be a very athletic person who played sports all the time. In my senior year it got to the point where I couldn't go to school anymore and was stuck in a wheelchair. Soon I got a couple treatments and was able to walk and function more, which was such a miracle. Four years later I am still in a lot of pain, I take medications to help the inflammation. It has been getting worse, but I fight through it. When I get to the point where I am in so much pain I can't get out of bed I get so frustrated and angry. I hate feeling helpless and it's hard for me to accept help from others. I also suffer from depression, which tends to make it even more difficult. But I have my good days and I try and fight through it.

    • @RoseAuflick
      @RoseAuflick Před 7 lety +4

      I'm in the same boat. After developing the strange symptoms of my chronic illness about a year ago, I saw several different doctors but still don't have a solid answer as to what exactly I have. All I know is that I'm tired all the time, and my anxiety got significantly worse. So you're not alone in wanting answers. How I ended up dealing with mine was getting financial support from family so I wouldn't have to work for a while, experimenting with my diet (generally trying to eat healthier homecooked meals), seeking counseling, and working with my general doctor to change meds I was taking for my depression. I still do not have a normal body and mind, but I learned to acknowledge small positive changes as a way to accept my unknown illness. For example, I noticed that I felt better than before, even if I didn't feel awesome.

    • @ephemera...
      @ephemera... Před 6 lety +2

      Sorry to hear that you are going through this . I am so happy to have a diagnosis. After so many years of not knowing what was wrong and blaming myself. Best wishes ro you. Xx

    • @SparkingLife111
      @SparkingLife111 Před 4 lety

      @@RoseAuflick did u ever get diagnosis...kinda sounds like could be thyroid issue. I know that test comes back normal even when people have issues

  • @katgolightly8816
    @katgolightly8816 Před 8 lety +203

    Hank Green just had his first therapy session- and he doesn't even know it!

    • @anushasingh5216
      @anushasingh5216 Před 8 lety +6

      Omg so true

    • @Kazooga-wi5qn
      @Kazooga-wi5qn Před 8 lety +3

      +K Golight he probably has been in therapy before john green is his brother after all
      (i wish john could read this comment)

    • @SjorsHoukes
      @SjorsHoukes Před 2 lety

      @@Kazooga-wi5qn 8:37 he says he hasn’t

  • @thelonelydirector
    @thelonelydirector Před 8 lety +86

    My boss is the best boss who has ever bossed.

  • @doggie15rat
    @doggie15rat Před 8 lety +57

    Kati I could so tell that you were going into full blown therapist mode when talking to Hank haha! You got that listening face on!

    • @katgolightly8816
      @katgolightly8816 Před 8 lety +3

      +raylo123 yes yes yes!! noticed that too!

    • @75sadiegirl
      @75sadiegirl Před 8 lety +4

      +raylo123 I noticed that too! Definitely the therapist Face..haha But I love it!

  • @ncburton1713
    @ncburton1713 Před 8 lety +21

    What can make it even harder to cope with a chronic illness is when people seem to act like your not trying to get treatment or your just using the chronic illness card to get special treatment. So they start giving you all this unsolicited advice about what you can do to 'fix' your condition. And when you say you've either tried all that or that it wouldn't be effective they act like you're just not trying hard enough, it makes you feel like complete crap. I try not to take what other people think to heart. If growing up dealing with bullies taught me anything it was that, but at the same time no matter how hard you try a little bit of that tends to seep in. And it's worse when you're in a setting like a support group and you have people acting like that. It wasn't a support group for chronic illness, it was a support group for another issue but still when you're in what you consider to be a safe space with people you feel you can trust it really hurts when someone starts treating you like you're just a hypochondriac. Or going to the doctor and being treated like a med seeker. I literally had a doctor tell me that she couldn't give me anymore narcotics when I told her that I was still having issues with pain. I said absolutely NOTHING about wanting more pain medication. I merely said I was having more issues with pain. It wasn't long after that I had to change doctors because it had become very obvious that I couldn't share anything with that doctor. If it wasn't her thinking I had med seeking behavior it was the fact that I couldn't talk to her at all about medical aspects of my gender transition. She knew about it but didn't listen at all if I tried to bring it up. Until a friend of mine told me about a trans friendly doctor that she went to that actually accepted my insurance I was really depressed because it felt as if I'd never have any of my medical needs addressed. So thankfully now I have a doctor who listens and it makes a world of difference. It's just the people who think that they're 'helping' by giving unsolicited advice that can really make you feel frustrated or shameful. And it's stupid to feel the shame but it happens anyway...

  • @mineola_
    @mineola_ Před 8 lety +25

    I can so relate to the guilt about appreciating people being kind to you because your illness. And also the always needing proof that people love you. Amazing collaboration, thanks, Hank for opening up, and thanks Katie for listening and asking the right questions!

  • @demianhaki7598
    @demianhaki7598 Před 8 lety +19

    a) Awesome collab b) It's so helpful to hear Hank talk about this, especially in terms of dealing with shame related to bodily issues. c) The topic of chronic illness is a great example of avoiding overly positive psychological self-talk. Much more authentic to accept that some situations in life are less ideal than others and to accept that rather than trying to twist it into telling yourself that everything's awesome.

  • @IvyWinter
    @IvyWinter Před 7 lety +14

    This is WONDERFUL. I have IBS-D, for 4 years, and it is frustrating, and depressing, and like he said, makes you feel like you have no control. but i loved what he said about accepting the "new normal" and just grieving the old normal. Something I think I still need to do. But man, I felt every single word to a T.

  • @lanat5947
    @lanat5947 Před 8 lety +14

    You should have John come on! That'd be awesome. OCD representation and the interesting contrasts and similarities between dealing with a chronic physical disability and a chronic mental disability. :) Love the video as usual!

  • @linguaphilly
    @linguaphilly Před 8 lety +42

    Woop woop, two of my favorite youtubers!

  • @AngeliaChanel
    @AngeliaChanel Před 8 lety +29

    my 13 yr old daughter was just diagnosed with Crohn's and is having a rough time.
    Thank you both for this video, it is much appreciated :)

    • @skippygaming9695
      @skippygaming9695 Před 8 lety +3

      +AngeliaChanel I got diagnosed with crohn's when i was around 13 years old i hope you daughter is okay it can be hard at times but it dose get better when it is under control.

    • @tennyson70
      @tennyson70 Před 4 lety

      as someone who's been suffering for like 8 years of the same i genuinely feel how horrible it must be feeling for your daughter, but after a while things definitely will get better trust me (it definitely did for me at least with the crohns, i did get fibromialgia a year later but thats a different issue)

  • @Ikine557
    @Ikine557 Před 8 lety +9

    Oh my goodness, I can so relate to that feeling of thinking that if I do what I do with my illness, I could be doing so much more without it.

  • @chiquitapaulita
    @chiquitapaulita Před 8 lety +10

    Yay! I go back and watch videos of Hank talking about his illness a lot, because it helps me think positively about my condition when I struggle with flare ups and fatigue. I think part of that is knowing he is a productive person, while still dealing with this stuff helps me see that that's possible. So thanks Hank!

  • @silverbroom02
    @silverbroom02 Před 8 lety +14

    Thanks to both of you for doing a video like this! As someone who also deals with some pretty debilitating chronic illnesses (POTS, ME/CFS, endometriosis, etc.) on top of complex PTSD, I would love to see more discussions like this about the ways in which it affects people's lives. Chronic illness can be very isolating, and it's so nice when the public at large gets to become more aware. 💕

    • @sarahcurtain4311
      @sarahcurtain4311 Před 8 lety +6

      +Amy McRae Hey! Just wanted to let you know you're not alone with the multiple chronic illness thing. I have IST, (was originally misdiagnosed as POTS, both such tough conditions!) endometriosis and joint hypermobility syndrome which all contribute to chronic fatigue- so I guess we have some things in common! I think multiple chronic illnesses can encourage such a social stigma - 'you couldn't possibly have all of those, you must be a hypochondriac' etc, but in reality we're just stuck in a complex situation with our health that can be rather difficult for others to understand. Amazing to see conversations like these becoming mainstreamed. Lots of hugs and best health wishes!

    • @1gaia
      @1gaia Před 6 lety +1

      Hey ladies, just want to add my voice to the multi-chronic-illness choir. I have CFS, PCOS, Gut dysbiosis, hypermobility, BED, and Complex PTSD. I also really get the isolation thing. I was in bed for 5 years straight. Lost a lot of friends, even family. It's tough going. I send my love out to you.

  • @trinitytumlinson5485
    @trinitytumlinson5485 Před 8 lety +19

    Thank you both for this video. 7 years of fibromyalgia and as of yet no treatment that works. I don't have control over my life, I would really appreciate being able to have that feeling of control back. I literally don't know day to day what I will be able to do. What Hank said about work and feeling worth, it can be hard not to feel worthless when you cannot hold down a job. Maybe I'll come up with something to do that I can work around flares and doctor's appointments.

    • @oclay2664
      @oclay2664 Před 3 lety

      You’ve gotta look into dr sarno. He saved my life.

  • @linny3012
    @linny3012 Před 8 lety +14

    Hank is everywhere on CZcams....

  • @epicsquidy123
    @epicsquidy123 Před 8 lety +7

    OMG IVE BEEN WAIT FOR THIS COLLAB FOR YEARS

  • @samiamisme
    @samiamisme Před 6 lety +1

    Boy Hank, you hit the nail on the head about grieving for your old life or the new life you wish you could get, but know you never will. My husband is so incredibly tuned in to me and helps me at every turn. It hit me one day that I need to be super careful to not take advantage of him. While I cannot do much in return, I make sure I acknowledge his hard work, his intents, his help, and that his time is also being rerouted away from his personal time. It is the one thing that keeps my marrange strong (25 years!).

  • @ronathebear
    @ronathebear Před 8 lety +21

    Wow, Hank is such a strong and inspirational person! I'm so thankful that he shared his thoughts and experiences with us and I'm sure that it will help a lot of people. Thank you very much and I wish you all the best for your future ☺️🍀

    • @Kazooga-wi5qn
      @Kazooga-wi5qn Před 8 lety +1

      +Veronika Kruk he made a song about ulcerative colitis cardgamesftw has a harder time dealing with his because he had depression first

  • @jeanlikethepants27
    @jeanlikethepants27 Před 7 lety +1

    Hank! It's Jean McCurry! Of all the places to see you again :) I'm sorry you are going through this, I wish you well in the future and pray for your health.

  • @SaraRinger
    @SaraRinger Před 8 lety +10

    Hey Hank! Thanks for chatting about IBD. I have Crohn's disease and my whole CZcams channel is devoted to both Crohn's and colitis and so is my website, Inflamed & Untamed. Anyway! Thanks again for being open.

    • @TamannaDas
      @TamannaDas Před 6 lety

      Sara Ringer Checked out your website! Super informative! You're doing some great work. Keep going!

  • @IdaBrun
    @IdaBrun Před rokem +1

    Theres always so much guilt when you're chronically ill. Im comforted by the fact that even Hank Green feels inadequate from the weight of his illness, but also sad that such a great man suffers

  • @dianabates5860
    @dianabates5860 Před 6 lety +2

    I am crying and laughing and for once in my life I don't feel alone with what is happening to me. Thank you. Just...just thank you.

  • @pinkhornet8737
    @pinkhornet8737 Před 8 lety +6

    Thanks for this.
    I have Crohn's (pretty badly) and most of the time I deal well with the curve balls it has thrown over the last 25 years, since I was diagnosed. I have an awesome family and friends.
    I am not very good at letting people care for me and it has hurt my relationships.
    I am trying to rethink what meaningful work I can do. I miss being able to immerse myself in work. I am depressed which is not helping me think clearly, as well.
    This gave me a lot to think about and I appreciate your honesty, Hank. Thankyou Kati for facillitating this forum.

  • @elenagarciabroock2356
    @elenagarciabroock2356 Před 5 lety +1

    I just love how he talk about how he stoped feeling guilty about being granted help. It's a very hard process and I find him so inspiring. :)

  • @jessicawang6558
    @jessicawang6558 Před 8 lety +2

    Hank and Kati nice to see you guys making a video together!

  • @Lifelyss923
    @Lifelyss923 Před 8 lety +4

    Wow. Can't say how right he is! A chronic illness makes you do anything to gain control. Living with one can be so incredibly isolating 💔 thanks Kati x

  • @alisonDi
    @alisonDi Před 8 lety

    Thank you so much for sharing this

  • @LadyPeters
    @LadyPeters Před 8 lety

    Definitely would LOVE more videos dealing with the mental toll that Chronic Illnesses and Chronic Pain takes on us

  • @dinosaurchickennuggets5138

    Ahhhhh when I saw these two together I was so happy! Im a long time Hank and John Green fan and a recent Kati fan and I had no idea these guys even knew each other existed!!!

  • @Phentie
    @Phentie Před 8 lety +1

    Thank you Hank and Kati! :-)

  • @zeinaelhadidi9686
    @zeinaelhadidi9686 Před 8 lety +5

    Ah, i love Hank Green! And that's a great video! Very informative! Xx

  • @kaylasitler3536
    @kaylasitler3536 Před 6 lety

    Hank is such a genuine, likeable guy.

  • @zaynahjadwiga5545
    @zaynahjadwiga5545 Před 8 lety

    Very interesting!! Thanks Kati. And thanks Hank for being so open!

  • @jaspermartin7444
    @jaspermartin7444 Před 6 lety +1

    I wish I could favorite this a thousand times. :-) Thank you so much Katie for talking about chronic illness and for having someone as young and healthy looking as Hank. Most people have a real difficult understanding that someone who looks healthy, actually isn't and sometimes needs a lot of extra assistance.

  • @annafremantle201
    @annafremantle201 Před 8 lety

    Loving all the collabs at the moment! Really helpful and interesting discussion!

  • @elevenbyfive
    @elevenbyfive Před 8 lety

    thanks so much for tackling this topic, Kati. It's so easy to feel like you're the only person who's going through this and feeling these things. I relate SO HARD to what Hank was saying, especially about feeling like you should be able to control it, and about grieving and what he said about feeling weird about getting sympathy and kindness even though it's nice but it makes you feel some type of way at the same time. It's confusing and weird and horrible, but it helps a lot just hearing people talk about feeling the same things. Especially someone who you have so much respect for.

  • @IAmWhatICreate1999
    @IAmWhatICreate1999 Před 8 lety

    Amazing video Kati and Hank! Thank you for sharing this.

  • @hegis3
    @hegis3 Před 8 lety +8

    I love when you collaborate with others, it's so interesting to listen to!

  • @PrincessAngelaUK
    @PrincessAngelaUK Před 8 lety

    thank you sooooo much for my parcel Kati, it was the best thing ever ❤ totally made my year. You have no idea how much it meant to me, I cried so much, your words were just so important, and I can't ever thank you enough. I have never won anything in my life, honestly, so for the first time to be from you couldn't have been more perfect 😊 Hope you are okay. I will always pledge to your amazing work. you are fabulous.
    lots of love from across the pond
    Angela xxxxxx

  • @SteventheThorn
    @SteventheThorn Před 7 lety +2

    This was really encouraging. I've had chronic back pain since 2008, and I only realized recently that chronic pain can (shocker!) contribute to depression and frustration. And it is comforting to know that many people deal with chronic pain/illness and have productive happy lives.

  • @Mindym16
    @Mindym16 Před 8 lety

    Thank you so much for talking about this topic. Hank touched on every feeling I have. It is so frustrating for me, family members, and friends. Having to cancel plans at the last minute; not being able to contribute financially in the way I would like; feeling shitty more than not, etc. Anyway, thank you for talking about it.

  • @xcluelessbeautyx
    @xcluelessbeautyx Před 8 lety +4

    Thanks for sharing Hank and thank you for making this video Kati! I have Crohn's and I know that it's awkward to talk about, but when you have an illness that people can't see it's hard to explain why you can't do certain things or eat certain things or why you're so tired all the time, etc.

  • @AmericanWoman11
    @AmericanWoman11 Před 8 lety +2

    This is such a great video. I have always been a fan of Hank's because he always has the ability to do amazing things with a condition that is tough. I have depression and some days it seems like it is really rough to do much of anything. Although Hank's illness is different it does give me hope. Thanks Kati for doing this interview :D

  • @jennyhughes1281
    @jennyhughes1281 Před 8 lety

    This was really good thank you for sharing

  • @katgish4591
    @katgish4591 Před 8 lety

    thanks for the video! I needed that!

  • @Emsikles
    @Emsikles Před 8 lety +12

    Amazing video! So good to hear honest conversation about such an important topic. I agree lack of control is such a hard thing to wrap your head around.. I know I struggle with it a lot! But it's uplifting to remember that even if you have hardships in some areas of your life it doesn't mean you can't have wonderful things in other areas of your life. Thank you so much for making this both of you. 💛

  • @taktoktek
    @taktoktek Před 6 lety

    This is very helpful to understand the person suffering chronic illness. Thank you both!

  • @purplebones33
    @purplebones33 Před 8 lety +2

    Thanks Kati & Hank. I really really needed this video.

  • @Nada07able
    @Nada07able Před 8 lety +2

    Thank you so much for this video. I have ulcerative colitis also.

  • @lamiscaptan3252
    @lamiscaptan3252 Před 8 lety +1

    Hank Green is the bomb, his CZcams channel gives me so much knowledge I'm so thankful for

  • @NeighborhoodOfBlue
    @NeighborhoodOfBlue Před 5 lety

    I just finished watching this video, and I have to say that hearing Hank share his walk with UC was like hearing someone speak to my heart. I relate so hard with what he' s shared here. Thank you for this video!

  • @JemmaAkers
    @JemmaAkers Před 8 lety

    Thank you for doing a video on chronic illness! chronic illnesses suck

  • @sharkscantroar
    @sharkscantroar Před 8 lety

    That really helped me in restructuring how I think about my Cyclothymia. The grieving a "normal" life especially hit home. Thank you Hank and Kati.

  • @Purstiltski7
    @Purstiltski7 Před 8 lety +1

    It's always great to hear from other people with chronic illness. I've had type 1 diabetes for 13 years (watched this while changing my pump site haha). What's made a big difference for me is finding other people who share my diagnosis. My brother and one of my friends have type 1 as well, and it's kind of cathartic to be able to talk about our frustrations so they're actually understood, but then to also share solutions and support. My biggest fear is turning 26. Man, do I depend on my insurance. Thank you for another great video, and thanks for having Hank Green on!

  • @maudc4011
    @maudc4011 Před 7 lety +1

    i have ulcerative colitis aswell, i'm glad to see a video like this!! :)

  • @suzer77539
    @suzer77539 Před 10 měsíci

    I sooo appreciate what he said about the bell curves... I have recently gotten stuck focusing on the health bell curve! I needed this whole video... thank you! ❤

  • @danieljgore1
    @danieljgore1 Před 8 lety

    Quick note to say I really appreciated (in addition to the rest of the video) the part where you two started talking about vocation and how important that is -- doing our thang, so to speak, in the midst of challenges. Of course, the two of you are living out your vocations right here on video ;-) thanks for inspiring me to finish my LAST GRAD SCHOOL ASSIGNMENT!

  • @undertowsoul
    @undertowsoul Před 6 lety

    I love Hank so much and I love you in this. I know I'm late to the video but you've got a new subscriber from this collab. I struggle with chronic illness and with mental illnessand it's such a hard balance to find.

  • @cleodello
    @cleodello Před 8 lety

    Yay, I love Hank. This was a great video.

  • @eudoraeliason1243
    @eudoraeliason1243 Před 8 lety +1

    Thank you so much for talking with Hank Green! I have ankylosing spondylitis, and the visibility for chronic (and often invisible) illnesses makes me so happy!!!

  • @suzanneyost6435
    @suzanneyost6435 Před 8 lety

    Hank said so many things that just ring so true with me, someone with Daily Chronic Migraines and POTS (this thing that makes me pass out sometimes). Last year I went through the process of trying to figure out what was wrong and there were a lot of really low moments. Like Hank said, there was embarrassment and frustration and just anger at why my body was acting the way it was and why I couldn't live my life the way I saw as "normal". I still get frustrated when there's a day I can't finish my mile, frustrated at all the pills I have to take, frustrated that a day will go by and I'll have been in my pajamas while the sun is shining outside. But like Kati said, my illnesses have helped discover some of the things that really make me happy and the things that were in my life but weren't really necessary. Thanks for the awesome, inclusive video

  • @madelynnwellons9651
    @madelynnwellons9651 Před 8 lety

    I have fibromyalgia and so much of this video resonated with me, especially when Hank talked about his feelings of guilt when his wife takes care of him (I get that a lot with my mom when I'm having a really bad pain day and I can't move and she has to help me out and I kind of feel good for a bit but then I feel guilty for feeling happy about my illness and it all spirals). Thank you so much for making this

  • @lauraalston4910
    @lauraalston4910 Před 8 lety +1

    Thank you. I just have chronic pain but it's nice to be reminded that it's ok to have bad day and that there are examples of what I would call success

  • @lc1371
    @lc1371 Před 8 lety +4

    I really appreciate all of your videos, Kati. As someone who suffers from mental illness, as well as bowel issues, I get a lot out of them.

  • @hauntedburgerplant
    @hauntedburgerplant Před 8 lety

    I have a chronic illness too and "I can't live the life I wanna live" is a super frustrating part to deal with! Likening it to grieving is really great and actually super helpful. Thanks to both of you for having this conversation!! :)

  • @christinasabella9205
    @christinasabella9205 Před 8 lety

    Thank you so much for this video. It feels so good to hear people openly talk about the struggle between physical and mental health. Chronic illness can create such a mental struggle. Thank you, thank you. My eating disordered thoughts are frequently triggered by my need to limit certain foods due to my physical health (ex: removing gluten/celiac disease). I would love if you made more videos on this topic, especially eating disorders and chronic illness together. Thanks so much Kati and Hank!

  • @mahastikia9676
    @mahastikia9676 Před 4 lety

    Oh I just stumbled upon this after a couple of John Green videos and a search for chronic pain management. Thank you CZcams's AI 😀
    8 years of Trigeminal Neuralgia has taught me a lot and yet the "grieving" idea here was very new! Thank you 💗 I'm still trying to control stuff and keep thinking I can function like a healthy person, then get frustrated when I can't. I started therapy sessions only this year (at 51!) And I'm glad I did. A lot happens when one gets a chronic disease. Depression can be one of them.
    And now I have yet another tool to ease my suffering: letting in grief. Will tell my therapist about this. He'll like it 😊

  • @twothirdsmore
    @twothirdsmore Před 7 lety

    Ok so, I love and really look up to Hank and John. There's something really special about watching one of them speak on a topic like this (that also happens to relate to me). This is something that is usually pretty private/intimate. I really appreciate the openness. Especially coming from someone I look up to.

  • @sonyawinder7609
    @sonyawinder7609 Před 8 lety

    This is a great video. I can understand so much of what he is saying, and it's nice to hear someone say that you know essentially It's okay not to be okay. You are going to have bad days and its something that you need to accept, and to welcome the help. I have yet to do that.

  • @yoitsblazeable
    @yoitsblazeable Před 3 lety

    Having a rough day today dealing with my symptoms of UC. This video helped me feel so much better. Just knowing I'm not alone and I have someone who understands.

  • @raemouse
    @raemouse Před 8 lety

    Thank you Kati for doing videos on this topic, people forget how chronic illness and physical health can affect your mental health. My illness is a big battle for me too...

  • @GraceEvelyn007
    @GraceEvelyn007 Před 8 lety +1

    I have lupus and hearing this helped me a lot ❤️

  • @quinn2014
    @quinn2014 Před 4 lety

    Ive always been a fan of him. This video gives me more love for him. I have chronic illnesses. Mainly POTS and ehlers danlos syndrome and hearing him talk about this made me feel like i wasnt alone because I never hear about other men talk about chronic illness.

  • @briannacamp8447
    @briannacamp8447 Před 8 lety

    Thank you so much for making this! I have Postural Orthostatic Tachycardia Syndrome and really connected to everything you talked about. :)

  • @acrosstheuniverse8354
    @acrosstheuniverse8354 Před 8 lety +1

    I have degenerative disc disease and, at 17, I'm finding it so hard to cope lately.
    Thank you both ❤️❤️

  • @musiclolli7280
    @musiclolli7280 Před 5 lety

    I am new to your channel and dont know if either of you will get this, but to both Kati and Hank... THANK YOU so much this helped me so much, I am also a musician who struggles with chronic physical illness while dealing with mental health issues relating to trauma.. etcetc just .. THANK YOU!!!! I now have new found confidence that I can openly talk with the people who love me about my illness instead of trying to carry it, feeling like a burden all the time. Thank you! :D

  • @Raachel244
    @Raachel244 Před 6 lety

    I come back to this video all the time.

  • @OnlyCecilia94
    @OnlyCecilia94 Před 8 lety

    I just got diagnosed with my second chronic decease, and that part about the grieving prossess really hit me hard. Up until now I wasn't really aware that that's what I'm going through, I've kinda just thought I'm an asshole who needs to stop feeling bad for herself, which again made me feel even worse. so thank you for this video, for teaching me about myself and giving me hope for my future. I really needed it.

  • @sambeawesome
    @sambeawesome Před 8 lety

    Saw Hank tweet this and I'm glad I watched it :) Fantastic video! I'll definitely be checking out more of your channel :)

  • @turniptravels
    @turniptravels Před 8 lety

    HANK YOURE SO USEFUL AND INSPIRING. You've done so much that you could do nothing for 10 years without having to be useful again. Thank you.

  • @iris__and_rhizomes
    @iris__and_rhizomes Před 8 lety +1

    Thank you, Hank and Kati! I have chronic illness and I am always looking for ways to understand and deal with it and my emotions about it. The best thing I got out of this video was how Hank deals with it, which is to work. I want to publish a book which I think will be helpful to others, and I have been too sick to work on it for the last few months, and I think it's just making me really depressed. So, now that I'm feeling better, I know what I need to do! Pull out the old novel!

  • @VicodinElmo
    @VicodinElmo Před 7 lety +1

    I've lost my large intestine to Crohn's Disease. It was beyond repair and now I don't have it...and that part where you both discussed the grieving process really spoke to me. Letting go and accepting that you can't always be in control is something I've had to learn to do over time. My ileostomy is difficult to deal with but I don't have a choice. It's my life (at least for the foreseeable future) and I need to not beat myself up about it. Instead, I just need to accept that it's how it has to be for now and just "ride the wave". It genuinely has been a grieving process but I am in the latter stages.

  • @MrJherime
    @MrJherime Před 8 lety

    I have Uc too and it's true that there are grieving periods for ones own body. Chronic illness is not easy to accept, but is not the end of the world either. There is a a lot of personal growth that comes from acceptance. Your an Inspiration Hank and Katie.

  • @jesseishere9959
    @jesseishere9959 Před 6 lety +1

    A great team.

  • @babi3104
    @babi3104 Před 8 lety

    thanks for uploading this, im about to turn 15 and i have ulcerative colitis (since 2012) ive had it really severe practically missed my whole shool year due to hospitalizations, i also have depression, anxiety.. and i dont know if my disease is the cause of my depression idk the cause for sure really, but knowing that hank has this and coming onto ur channel thanks

  • @kiddicarus
    @kiddicarus Před 5 lety

    This has been "inspirationally vulnerable...."... Does that make sense?
    This interview/video has been highly rewarding. You are both very much appreciated. Thank you.

  • @theamp1986
    @theamp1986 Před 4 lety

    I’m so glad I came across this. I was diagnosed with lupus SLE at 16. It’s been rough as I was in a long time of denial. I wish I had agreed to treatment while I was young. I wanted to be “normal” kid. I felt quite alone in this for years and I am 32. I hid from my love ones to save them from my own suffering. But it’s been too overwhelming to sustain. Health insurance...oh thanks Obama for supporting the pre-existing condition! And with work, it’s a bummer as employers make me feel I’m using my health conditions as a consistent excuse. Physical appearance I’m okay. But internally I feel like crap. Thank you!!!

  • @marieso2293
    @marieso2293 Před 8 lety

    HANK GREEN!!! OMG OMG OMG. Two of my fave youtubers TOGETHER IN ONE VIDEO. I LUV U GUYS!!!

  • @fabsinsanitysderanged8625

    this was awsome kati . nice meeting somone you know . this was intresting my cousin has chrones disease he can't eat be gets fed through a tube . this was so intresting loves this kati . your awsome . I love all your do you are an amazing person thanks for helping people like me with our mental health issues and how to deal and when and how to seek help and being so nice and so understanding about it thanks kati your mint and awsome .

  • @yannieangerer8558
    @yannieangerer8558 Před 5 lety

    It's nice to see someone finally talk about chronic illnesses from a mental health perspective. To be honest they often don't get adressed for some reason. It's like because they can't be healed a big part of society seems to think like "welp, can't be helped, you just gotta deal with it" and that's all. It sucks a huge lot. I've tried finding a therapist who specializes in that and found pretty much noone. Most chronic illnesses don't even have a support group. And if there's one, well, most of the time I already know what they say and I don't think it's only me who doesn't gain anything from talking to people with the same diseases. Cause it simply isn't therapy. In these support groups you just whine and moan about it all or maybe share informations, but it doesn't adress what the illness does to your mental health, like, at all.
    Which is very sad because when you have a chronic illness, the symptoms often multiply over time and you have to constantly grieve what freedom you used to have but now have lost due the worsening of your condition. It's also extremely hard to push through your day when you have to deal with side-effects of your medication and the symptoms on top, which means you have these extra stressors in your life you constantly have to deal with. And it thins your nerves, so you're more easily annoyed/you're simply having less (emotional) energy to deal with the challenges of every day life. Then there's the isolation that often comes with the illnesses. Most people can't understand what you're going through very often, sometimes blame your for things you can not help even. And of course some people are so ill, they even are house-bound, which makes taking care of normal friendships actually impossible. And I've experienced not enough therapists having any adivce on how to deal with these and all the other emotional problems that comes out of these challenging situations. There's a huge void there and I wish it'd be more filled. Maybe it's better in other countries, idk.

  • @Shy__wolf
    @Shy__wolf Před 8 lety

    i have fibermialga and intestinal cystitis. its impacting on my life alot. these are both auto immune diseases. Im now losing my eyebrows. some days i just cant get up out of bed. Being in physical and emotional pain is not fun!!!
    he is so right about grieving then moving on and adapting to what is now. thanks for this video. love you kati 💙

  • @Krissienjr06
    @Krissienjr06 Před 7 lety

    Thank you! I have 5 chronic diseases, anxiety & depression. Work defines me since only 50% of IC & PFD sufferer are able to work. exactly what I needed.

  • @Kazooga-wi5qn
    @Kazooga-wi5qn Před 8 lety

    yayers hank green is on this i am so glad you got to talk to hank i love him so much
    thx for this awesomely ha bisky vid and i love his song about ulcerative colitis

  • @lauragadille3384
    @lauragadille3384 Před 6 lety

    I love his crash course videos