This Has Been Challenging...

Sdílet
Vložit
  • čas přidán 28. 05. 2023
  • [Vlog 5.9.23] - Vlogging while Elijah has been sick has been a bit difficult.
    Visit our Online Store → thefreylife.com/store
    Watch Yesterday's Vlog → • Our Summer Bucket List!
    Welcome to The Frey Life daily vlogs! We are Peter & Mary, a married couple in our early 30's, showing the ups and downs of everyday life with #CysticFibrosis, a genetic lung disease that Mary was born with. In August 2019, Mary started a new CF medication that changed the trajectory of our future, and life has changed dramatically - including our son, Elijah, joining our family in December 2021. We also have an adorable standard poodle, Oliver, and a hairless sphynx cat, Harry. It's our hope that these videos can be an encouragement to to celebrate the little things in life and find joy amidst a world full of hard realities!
    Check out our weekly podcast on Peter's Channel about faith and living with hope in Jesus in the midst of a broken world! → / livingwithhopepodcast
    Want a personalized video message from Mary & Peter?!? You can request a Cameo here! → www.cameo.com/freyliving
    Our vlogging camera (affiliate link) ↓↓↓
    Canon G7X Mark ii → amzn.to/3jnv7mq
    Other affiliate deals for things we love! ↓↓↓
    Ibotta ($10 signup bonus) → ibotta.com/r/nfwkgca
    Rakuten ($20 signup bonus) → www.rakuten.com/r/PETER378?ee...
    Shop our Amazon Favorites → www.amazon.com/shop/influence...
    ↓↓↓ Follow us on social media! ↓↓↓
    Mary's Instagram → / freyliving
    Peter's Instagram → / peterfreylife
    Our Store Instagram → / thefreylife
    Twitter → / thefreylife
    Google+ → google.com/+thefreylife
    Facebook → / thefreylife

Komentáře • 120

  • @bryangustafson2748
    @bryangustafson2748 Před rokem +3

    No Joke, but I Seriously love how much people love the boat! Sometimes I love watching the boat trips so much that I joke to myself "6th family member! Mary, Peter, Elijah, Oliver, Harry, & Boat!"

    • @ivark56ofPA
      @ivark56ofPA Před rokem +1

      I know when they sold the renkin boat I knew they were going to miss
      That adventure only to have 2nd thoughts for the next purchasing this current one.. Furthermore Oliver James loves the water and playing fetch
      With the fenders..

  • @betsyoman7173
    @betsyoman7173 Před rokem +5

    That debate about the different Nutella imitations--so crazy because I could just eat them all straight through.

  • @mustwereallydothis
    @mustwereallydothis Před rokem +2

    You probably would have enjoyed Nuttella before they altered the recipe to make it cheaper. It used to have a whole lot more hazelnuts and about 1/4 of the sugar it has today. It was more like a chocolate flavored nut butter and it was the best thing ever.

  • @katrinabbaeumel1297
    @katrinabbaeumel1297 Před rokem +5

    We all know kids and germs,very school year my kids would catch every cold or stomach bug.....less exposure is best.

  • @openlybookish
    @openlybookish Před rokem +12

    Are there words Elijah can say? Hope he feels better soon.

  • @alexisrivas307
    @alexisrivas307 Před 11 měsíci

    I’m binging on the blogs playing catch up. Ending the blog with Ollie was a nice touch. Just like old times.

  • @marilyndekker1541
    @marilyndekker1541 Před rokem +11

    You catch what you can on video. We know it's just a little glimpse into your lives.

  • @BelieverInChristJesus4ever

    I'm eating Carrot cake in honor of my beautiful daughter whom passed away in June 1999 from a terminal brain tumor DIPG she was only 19½ years old. 💜
    Also happy I'm eating something right now cause y'all make me hangry 🙂

  • @misspepe7416
    @misspepe7416 Před rokem +9

    We love all the things you share. Chocolate tasting and storytime is amazing! Thank you for sharing!

  • @beckyklepper315
    @beckyklepper315 Před rokem +3

    I totally encourage you to continue to foster ASL and verbal speech. Even if his hearing is great, he will have such a great advantage to be able to have at least a second language. Babies pick up on languages so easy!! Hope he's feeling better!
    How's your new pastoral role going, Peter?
    Praying for your family often. May God continue to bless you three!

  • @penelopepolinsneemeyer4757

    I hope Elijah got over his virus quickly xxxxxx

  • @murmelstein6049
    @murmelstein6049 Před rokem +9

    Oh I missed Ollie ending the vlog 😍

    • @ivark56ofPA
      @ivark56ofPA Před rokem +3

      I know I haven't seen much of the animals . there sort of like MIA for most
      Of time.

  • @VMeral
    @VMeral Před rokem +2

    Hope dear Elijah will feel beter soon the little guy is blessed to have you both to care for him

  • @cherylrhone3407
    @cherylrhone3407 Před rokem +4

    Are you guys getting tired of making videos? I know like any job. If you lose your passion for it. Sometimes it's time to move on to something else. I will miss you guys so much if you were to end your channel, but I know if it's no longer fun. It makes it had to do. Can you tell I'm a bit worried that we are coming to an end? 😢 I guess I'm trying to prepare myself. LOL!!

  • @biddiemutter3481
    @biddiemutter3481 Před rokem +6

    I enjoy hearing about your day. I hope Elijah recovered from that particular bug quickly.

  • @helenneemeyer1602
    @helenneemeyer1602 Před rokem +2

    That’s because, although different, the two ingredients actually come from the exact same place: the cacao tree. Typically found in Africa, South America, Asia, and parts of North America, these trees are grown by more than 50 million farmers around the world, according to the American Geographical Society. As they mature and ripen, cacao trees produce seeds called beans, pods, or nuts, which are harvested and processed to varying degrees to create cocoa and cacao.

    • @helenneemeyer1602
      @helenneemeyer1602 Před rokem

      Hope this answers your question on the difference between Cracow and cocoa

    • @ivark56ofPA
      @ivark56ofPA Před rokem

      It helped for me to understand the difference..

  • @tracyzabelle
    @tracyzabelle Před rokem

    Such a smart boy

  • @barbielee7523
    @barbielee7523 Před rokem +2

    ❤️ Memories to treasure forever !🌷

  • @cherylbrunner9404
    @cherylbrunner9404 Před rokem +3

    U all r doing great with Elijah

  • @lindaclark7868
    @lindaclark7868 Před rokem

    You are the best!!! I hope Elijah feels better really soon.

  • @Jen-zz7nv
    @Jen-zz7nv Před rokem +1

    Its so hard when our little ones get sick. Hope he recovered quickly, poor little dude.

  • @carebear802
    @carebear802 Před rokem +4

    Sometimes kids can develop fevers and irritability when teething. Not good times for kids or parents

  • @barbhelle5481
    @barbhelle5481 Před rokem +1

    Praying for Elijah.

  • @annahawk1987
    @annahawk1987 Před rokem +4

    The j is pronounced like an H. My grandfather was from Norway his last name was Sjol. Pronounced Shol.

  • @jessicajarsak7812
    @jessicajarsak7812 Před rokem

    You are such amazing parents! That’s so cool about Elijah signing. Kids are so funny though too lol

  • @christinasabo3617
    @christinasabo3617 Před rokem

    I really enjoy the vlogs like this, that just feel like sitting down at the table with friends. 🙂

  • @beverlystahl1221
    @beverlystahl1221 Před rokem

    We love you!!❤❤❤

  • @dizzycowuk
    @dizzycowuk Před rokem

    I remember those vlogs, it was nice to see a little recap. I hope Elijah feels better soon. I can't believe how much hes grown!

  • @helenneemeyer1602
    @helenneemeyer1602 Před rokem +1

    Sorry Elijah not feeling well, hop he’s well soon! I love the taste test videos wish you would do more! I just love your loving sweet family 💗

  • @christyemmons7279
    @christyemmons7279 Před rokem +5

    The Cacao is a raw unprocessed version of cocoa but a lot better for you. They said it contains more minerals, vitamins, & antioxidants so it's a healthier option than chocolate!! ❤

    • @ivark56ofPA
      @ivark56ofPA Před rokem

      I think your refering to DARK CHOCOLATE which contains the nutrients and antioxidants and is healthier..

    • @drewharris7785
      @drewharris7785 Před rokem

      @@ivark56ofPA actually cacao and dark chocolate both fit what Christy Emmons said

    • @ivark56ofPA
      @ivark56ofPA Před rokem

      @@drewharris7785 ok! I understand..

  • @TheNelsonwx
    @TheNelsonwx Před rokem

    Hey!! More or less a sit a the kitchen table kind of conversation, as my family always does. So relaxing by the way. Eli, hurry up and get better!! ❤

  • @amberledbetter0708
    @amberledbetter0708 Před rokem +2

    I hope little man feels better soon!!!

  • @tristacortes2071
    @tristacortes2071 Před rokem

    Peter had me thinking back to when you lived in your friend's basement and you'd sit on the mattress on the floor and talk about your day. I watched because I remember the simple times of being married. When our world was smaller and we had less stuff and people to take care of. When we are young we focus on When the house comes and the kids and the cars. We don't stop to cherish those small early moments when the mattress is on the floor. Simple blessings become fond and peaceful memories ✨️

  • @Lyn4817
    @Lyn4817 Před rokem +1

    Time flies, 9 years, wow. I looked at a photo I took of a tiger when we visited Dreamworld where we had a photo session with a real tiger. I looked at it last night and it suddenly hit me that I took that photo 20 years ago, absolutely mind blowing. It had been a milestone birthday which just so happens that this year is also for me.

  • @sandracraig7517
    @sandracraig7517 Před rokem +2

    My cat was sick to

  • @kathymowery148
    @kathymowery148 Před rokem +2

    the word has the same meaning cocoa. It comes from the American Pine tree.

  • @mmmmlllljohn
    @mmmmlllljohn Před rokem

    I’m sure Mary misses Peter at times during the day. I hope Elijah feels better soon and sleeps well during his nap time as that makes it easier on Mary. It is so cute of Eli to sign so much. Well done, guys! I’m sure it is an adjustment for Peter to be going back to work. The first week is the hardest! Love from Ontario, Canada ❤🇨🇦

  • @gthornton3
    @gthornton3 Před rokem +1

    Good morning from San Antonio Tx

  • @ivark56ofPA
    @ivark56ofPA Před rokem +2

    Thats basically NUTELLA Dark spread in a different language..
    I basically have tasted it its pretty good..

  • @cherylrhone3407
    @cherylrhone3407 Před rokem

    Ollie, is so cute!! He heard something and wants to go after it. I hope Elijah, is feeling much better by now. Mary, do you feel lonely throughout the day without Peter around? I know all of this has to feel like a big change. Love you guys.

  • @ann-mariehansen35
    @ann-mariehansen35 Před rokem +2

    Good evening from Norway. That in the jar is norwegian. I love it to

    • @ivark56ofPA
      @ivark56ofPA Před rokem

      It could also there version of nutella from Germany..

  • @kellybuettner5216
    @kellybuettner5216 Před rokem +1

    Ollie boy! ❤

  • @stephaniecuster8025
    @stephaniecuster8025 Před rokem

    Worst craving for Nutella and pretzel sticks now. Thanks guys. Hope Elijah feels better soon.

  • @judithconrad5826
    @judithconrad5826 Před rokem +2

    Both of my kids got fevers and diarrhea and were cranky before they popped out a tooth. The doctor said it had nothing to do with teeth but it happened with every tooth.

    • @deniseweber1339
      @deniseweber1339 Před rokem +1

      Yes trainings will say that is not a thing but day care providers, parents, nannies all know the truth!

  • @ivark56ofPA
    @ivark56ofPA Před rokem +2

    Good afternoon freyfamily and happy memorial day to all of you as this
    Episode is live on the holiday when we honor those who fought
    for this country and the sacrifices.. I think that chocolate spread you guys are eating looks similar to nutella which is dark chocolate spread out of germany .. I hope Elijah feels better to whatever virus he picked up over the weekend. I haven't seen much of your animals Oliver and harry they been like hidding in some of the episodes..

  • @mikegainer8288
    @mikegainer8288 Před rokem +4

    It seems that he should be more verbal?

  • @sherri5917
    @sherri5917 Před rokem

    Cacao (ca-kay-o) is basically cocoa that is less "processed" which usually gives it a better, deeper chocolate flavor. We love cacao more than cocoa!

  • @rivkahmiri513
    @rivkahmiri513 Před rokem +1

    Holy Cacao is so good... just finished some

  • @chiming333
    @chiming333 Před rokem

    I'm glad you're not showing Elijah sick since that's a vulnerable time. Hope he feels better soon and can get back to taking on the world as a baby. Also imagining the broadway production of Lawn Work for a Toddler is entertaining. Maybe someone should write that... LOL

  • @tamabradley6844
    @tamabradley6844 Před rokem +2

    Just a thought.. Wonderful that Elijah can sign, and learning so many things. But not sure about the camera pointed at him lately. Kids can take over the situation, with a camera in hand. Last week I watched Elijah run to the road , while you spoke to the camera. Life is tough, no one shows us much about parenting. Because WE ALL LEARN from our mistakes. And I have made plenty mistakes over the years. I love your channel.. But your family comes first.

  • @drewharris7785
    @drewharris7785 Před rokem +2

    I knew someone whose last name was Sjogren and she pronounced it Sho-grin.

  • @imogenoliver
    @imogenoliver Před rokem

    Aww I miss Ollie ending the vlog. And now I want pretzels and Nutella, maannn. Love you guys ☺️.

  • @barbgregson
    @barbgregson Před rokem +3

    Does Elijah speak any words by signing can that delay his speech.when my son was little he would point at what he wanted instead of verbalized his needs which caused a delay in his speech.

    • @createconsiderconnect3356
      @createconsiderconnect3356 Před rokem +3

      Signing does not cause speech delay. It is a great way to communicate. As a speech language pathologist I always encourage sign language. Signing is it’s own language showing comprehension, requesting needs/wants, etc..He is 16 months & has one word utterances which is right on track. Obviously I don’t know your entire story, but there’s a huge difference between just pointing to things & using sign which is a true all encompassing language. Pointing is a symptom that a child is experiencing difficulties with speech &/or language, but doesn’t cause it. Hopefully your little one is doing great now! I only took the time to reply to educate cause it’s a common misconception.

    • @barbgregson
      @barbgregson Před rokem

      Thank you for taking the time to answer my question.

  • @lenac7655
    @lenac7655 Před rokem

    Having a young toddler, taking on a new job, Mary's health maintenance, being pet parents, managing your online store, your home & more is totally understandable why you barely have time for the camera or yourselves. Hang in there.😊

  • @6Fiona6_P_6
    @6Fiona6_P_6 Před rokem +1

    Just gotta say something about that Thumbnail. The way Mary’s head is angled and the green leaf foliage in the background, kinda makes Mary look like some punk rocker fan….. ⚛️☮️🌏

  • @maddieadams75
    @maddieadams75 Před rokem +3

    Mary Nutella gives me a horrific headaches not right away hours later. No other chocolate does this, I must admit I don’t eat much chocolate. Thought I share as you are susceptible to headaches.

    • @phyllisaleshire4460
      @phyllisaleshire4460 Před rokem

      New study on dark chocolate high in lead and 1 other toxin

    • @calise8783
      @calise8783 Před rokem

      Could it be a nut allergy to hazelnuts?

    • @maddieadams75
      @maddieadams75 Před rokem

      @@calise8783 thanks for the suggestion, but no I don’t have a nut allergy of any kind. I love hazelnuts.

  • @maryreynolds5310
    @maryreynolds5310 Před rokem +7

    Hi you guys, hey it’s been a long time since I’ve dropped by, glad I did. You mentioned pit bull..this is a dog I’ve never had trouble with or judged because of what others have said about them. It’s been 2 1/2 weeks now I was walking my 2 dogs in my neighborhood, where we always walk. Just behind us 2 pit bulls live with a gal who I’ve seen from time to time..anywho, I see 2 boys running I think nothing of it till I see one of the boys literally jumping a fence and behind him jumps a pit bull after him, the other chasing the other boy. When the boy jumped back over the fence running for his life the 2 pit bulls saw myself and my 2 dogs, they ran to us and they ferociously attacked my 2 dogs. I screamed, prayed and screamed my prayers…all the neighbors came out trying to help us. They were both attacking both my dogs at the same time one after the other shaking my Zoey like a rag doll. Never in my life had I been more scared. By the grace of God my babies are alive, myself included! I’ve been afraid to walk my dogs since. When I say God saved my dogs, I mean it..he sent their angels to protect them because they should not be here! Even the police office, the neighbors said it’s crazy they are alive. When I say this it sounds crazy but when it was over, dogs gone there was not a scratch on my babies…So I know God was there with us! My Zoey while she was being attacked was protecting me at the same time, SkyBlue went into shock. Anyway, my reason for sending this message is even though you think the dogs are friendly and safe, keep your baby away! Let me mention, this makes the 3 time in 3 months we have been approached by pits, the second time there was a fight where the other dogs went after me and my dogs. I have a Golden Re, and a Golden/Shepherd mix. I hope I don’t offend you or anyone…I just felt the need to tell you.
    Take care now, hope that beautiful baby boy of yours gets well soon!

    • @openlybookish
      @openlybookish Před rokem +3

      Don't worry about offending. You care enough to caution everyone. It seems pit bull attacks are on the rise. 😢

    • @mcrchickenluvr
      @mcrchickenluvr Před rokem +4

      It has very little to do with the dogs themselves and more to do with how they’re raised and if inbreeding is involved.

    • @nleb1993
      @nleb1993 Před rokem +2

      It has nothing to do with the dog itself. It has more to do with genetics, backyard breeding and how they are raised.

    • @maryreynolds5310
      @maryreynolds5310 Před rokem +2

      @@nleb1993 i understand all that, I totally get it. The 2 that attacked us were dogs that had never done this before..they even knew the boys they chased. It took one to make a fuss, the both got involved. I worked in a vet office for many yrs when younger..sometimes it just happens even if you think it never would. We can’t read a dogs mind, and that day they weren’t nice! In the end, a dog is a dog..you can teach them from the beginning of that dogs bloodline, sometimes it matters not.

    • @maryreynolds5310
      @maryreynolds5310 Před rokem +1

      @@nleb1993 But hey, we’re ok! 🙏

  • @ivark56ofPA
    @ivark56ofPA Před rokem

    Maybe that the next challenge for Frey series trying foriegn foods from different countries..

  • @curtisbemis6640
    @curtisbemis6640 Před rokem +1

    The frey life is one of the best CZcams tube channels . What job did Peter start??? I've been absent and must have missed the video

  • @27Eilene
    @27Eilene Před rokem

    Poor Eli… I call those a viral whatnot. 😂❤

  • @Sassygrannyvlogs
    @Sassygrannyvlogs Před rokem

    💙

  • @sally----
    @sally---- Před rokem +4

    Do you ever reply back?

  • @dellaharper2581
    @dellaharper2581 Před rokem +1

    Thank you for the video. 😉🫶

  • @jademccardle9074
    @jademccardle9074 Před rokem +1

    How are yous ❤ x

  • @vic110511
    @vic110511 Před rokem +1

    It sounds like shokanot. If you google and ask it to say it in Norwegian

  • @jeanmorgan5410
    @jeanmorgan5410 Před rokem

    Shokonott is how it sounds

  • @yomama8873
    @yomama8873 Před rokem

    ❤❤❤❤❤❤❤❤

  • @deborahconkle6822
    @deborahconkle6822 Před rokem +4

    This movie was a favorite of myself and my best friend of over 50 years. I lost her in February of 2022. I miss her everyday 💔

    • @SaraNerys
      @SaraNerys Před rokem

      Hang in there Deborah 💛💛💛

  • @carolynlong9148
    @carolynlong9148 Před rokem

    It's great that Elijah can singh and it has a sense of humor to it. That pit bull probably did look like a cow to him. Feel better baby God bless 😘.

  • @MayimHastings
    @MayimHastings Před rokem +1

    Mary, my Dad has been bugging me to ask you if you ever had a speaking engagement at a north Atlanta hospital? He's convinced it was you.
    Mum and i have watched y'all since your basement days and we were just saying that we don't know how on earth you two can vlog at all! We all love you guys so much and understand if you have to move on. Just please don't forget about us forever if you do? Whatever you decide, your family - and sanity - come first! Shalom 💖🙏🕊

  • @jeniferyasmin3283
    @jeniferyasmin3283 Před rokem +1

    Pitbull = Cow …… Yes!!! 😂💚

  • @lucalazzarini6656
    @lucalazzarini6656 Před rokem +1

    hey I have CF just got my G tube taking out a week ago and I still not seeing any changes does anybody have information for me that had there G tube taken out. internet says 2-3 weeks my doctor said in 3 to 5 days it should Close completely.

  • @emilygarnier4207
    @emilygarnier4207 Před rokem +1

    Does Ollie try to work at all anymore? Does he still remember any of his skills/tricks ?

  • @sdegu5885
    @sdegu5885 Před rokem +1

    It's hard to explain how to pronounce sjokonøtt, when english is not my native language. As some have suggested the beginning, sjoko, might sound same as shoco in english. The later part of the word, nøtt, have the ø -letter that the english alphabet doesn't have. If you are familiar with german o-umlaut (ö), the ø in nøtt is pronounced the same way. Right now I can't come up with any english words with this sound. Maybe the o-sound in the word word.

  • @carolinecrowe236
    @carolinecrowe236 Před rokem

    Coco has sugar is it cacao doesnt its the bean of the chocolate its what the chocolate is made from

  • @marylonergan8511
    @marylonergan8511 Před rokem +1

    I see your chocolate lovers, chocolate is good.😍💖💖💖

  • @FirTree-tu9nc
    @FirTree-tu9nc Před rokem +1

    I think ø is pronounced oo as in food

  • @rhondaiivey3384
    @rhondaiivey3384 Před rokem

    Cacao has less caffeine and is healthier than cocoa.

  • @aubrievoss8887
    @aubrievoss8887 Před rokem

    May I ask what you used to help teach him sign language ? Did u have cards or just use your hands and learn on your own ?

  • @jeanmorgan5410
    @jeanmorgan5410 Před rokem

    Sjokonott means Choconut is what that word means

  • @gabigayko1863
    @gabigayko1863 Před rokem +1

    I have no idea how to pronounce it but I think it a hard K.

  • @privatesuzie4071
    @privatesuzie4071 Před rokem +3

    Does he talk much?

  • @marinakiell1069
    @marinakiell1069 Před rokem

    Hope u thought to check Elijah’s blood sugar.
    I know of a CZcamsr who’s daughter was diagnosed with Type 1 Diabetes at the age of 14 months.
    Just thinking proactively

  • @ingridbergami
    @ingridbergami Před 5 měsíci

    Cacao es cocoa en español

  • @miatfitz
    @miatfitz Před rokem

    Nope! I'm a chocolate fusspot. Its either swiss style milk chocolate or its not for me. 😂. I have been called a philistine by experts but hey its a personal thing. I will stick to my savory vegemite.

  • @elizabethsmith5615
    @elizabethsmith5615 Před rokem

    Why is Ollie not loved on since first baby arrived. It's sad

  • @cinhaytas
    @cinhaytas Před rokem +1

    Teething?? ❤

  • @starlamiller7703
    @starlamiller7703 Před rokem

    I thought “bird” was how favorite sign! ❤❤❤ 🦅 🐦 😊

  • @martinemcm8717
    @martinemcm8717 Před rokem +2

    Sous-titres pour vos abonnés étrangers s’il vous plait...😢

  • @mitsim
    @mitsim Před rokem +1

    I think sj in that context an sh sound. In the medical field, Sjogren's disease is pronounced Showgren's disease. Just a thought.

  • @coco-qd3sn
    @coco-qd3sn Před rokem

    I haven’t watched in awhile, is he deaf or hard of hearing?

  • @sophierosen9977
    @sophierosen9977 Před rokem

    Do you have a P.O. box? I would love to send you something that I made and think you'll enjoy it.

  • @anovemberstar
    @anovemberstar Před rokem

    That's cos it's a HUUUGGGEEEE poo 😅

  • @Claudia_Koster
    @Claudia_Koster Před rokem +1

    You make funny 😂sounds pronouncing that. Google phrase below and you wil hear it is as simple as: chokolatt
    "sjokonøtt" norwegian pronounced

  • @donnaloveall1470
    @donnaloveall1470 Před rokem +1

    Just be natural... It says “The Frey life” so show real life so why edit.

  • @Chronicallyillbadass1995

    It’s unfortunate that your channel has gone this route of you always putting him on. So many channels like yours have been able to keep their child off the channel and never even showing their child’s face. They will post family pictures but it’s always a classy picture with the child’s face not shown or in focus on the face. This specific video is a perfect way to share your life as parents but without ever having him on camera. This other channel I’m thinking of is also a chronic illness channel. I’ve almost completely stopped watching this channel I’ve unsubscribed ever since it was clear you planned to show him all the time, and I just watch videos that he isn’t in or barley in. I wish more people realized this is child exploitation, which is very clear since the moment you shared your plans to adopt you’ve profited off him, even down to when asking for donations for the helping in adoption fees.
    It’s also been hard watching how you’ve gone from being careful of illness and Covid too seemingly act like it’s not a risk. I completely understand how Trikafta has improved Mary’s health and lung function but she still has CF and anything can take all this progress away especially if you get a virus like Covid. I don’t have CF but I have severe lung disease with 32% lung function and my health isn’t as stable as it once was. So I’m in a similarly lived experience and it saddens me how the stability has made you guys almost forget what it was like and what it could be like again. I dearly hope Mary stays stable for the rest of her life but we all know the risk of losing all this progress!

  • @Chronicles1611
    @Chronicles1611 Před rokem +3

    Show Ko Nut (Chocolate nut)