Prof Julian Gillmore - AL amyloidosis: an introduction for newly diagnosed patients

Filmed at our Patient and Family AL amyloidosis Infoday in November 2017, Prof Julian Gillmore, Professor of Medicine and Honorary Consultant Nephrologist at the National Amyloidosis Centre gives an introduction to AL amyloidosis. For information on future events for AL amyloidosis patients and their families please visit www.myeloma.org.uk/infodays or contact us on 0131 557 3332.

[@aribanoushad6742]

My brother is suffering from AA amyloidosis ,his condition is getting worse day by day ,I hope and pray there will be cure for this fatal disease ,may ALLAH help & bless those who are working on the treatment.

[@stephenspringer2203]

No cure. I have wild type. No cure either

[@Dorvita]

sending love and healing hugs to you your family and brother. Blessings to all x

[@GMHG777]

@@stephenspringer2203 may I ask your early symptoms and the progress of those symptoms, pretty certain I’ve been horribly misdiagnosed and this is what has been the source of my illness for going on 5 years that is now to a point where I cannot even get out of bed most days the fatigue, bragging issues, orthostatic hypotension/tachycardia and eye pain and distortion along with severe digestive problems and peripheral neropathies. Just curious on your early symptoms and the disease progression.