Understanding Autoimmune Thyroid Disease
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- čas přidán 13. 03. 2018
- According to the American Thyroid Association, women are five to eight times more likely than men to be diagnosed with thyroid disease. Since two of the most common Thyroid conditions, Graves' Disease and Hashimoto's are autoimmune in nature, their symptoms may often be confused with other health problems, which can make reaching a diagnosis for some, a long and puzzling process.
We are joined by Dr. Mark Lupo, Medical Director of the Thyroid & Endocrine Center of Florida, to discuss the diagnostic journey, the symptoms, the risks and how, due to advances in testing, one result just might provide the missing piece you’ve been looking for.
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It took me 28 years to be diagnosed with hashimotos disease. It wasn’t until I paid to have a series of ultrasounds done at a health fair in Florida that they turned up nodules on my thyroid. My doctor ignored the first report and three years later I had another set of tests in Florida and my nodule had increased in size. My doctor then ordered the whole battery of tests that showed I had an autoimmune disorder. Three years later I had my thyroid and parathyroid glands removed. I had previously talked to my doctor about my heart palpitations and she put me on blood pressure pills. I have found that doctors have little to no knowledge of autoimmune disorders. You must be your own advocate and do your own research.
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I agree. I caught mine early and it still took me almost 4 years to get under 2tsh
@@katieadams4953 #drokouromi
@@mockingwilson thanks I might check some out. I do keep up with my gut health . I think it needs to be a huge focus with hypothyroidism
Just found out I’m having issues after 5 years of being told everything from lupus to depression
Anxiety and depression, chronic exhaustion, palpitations, panic attacks, profuse sweating, fuzzy brain, lack of sleep and muscle weakness were my first symptoms,
Yes, the muscle weakness!
I had forgotten about that.
That was scary. I had always been strong, not weak.
I thought I had diabetes.
For hypo or híper ?
@@terimorris6394 usually hyper symptoms - sometimes hypo.
I am so sorry. You are telling my story. I have all of that, and it is so debilitating. I know what you are going through. I have Hashimoto's with all the symptoms like you of both Graves and Hashimoto's. May I ask your age? I am 59. I sweat all the time and then freeze with the chills. Anxiety and depression as well. UGH. I will pray for you and ALL who suffer. In Jesus name. Amen.
@@stefanydower1350 I tell people my mind and body are playing the tag game,Your It!!
The sluggishness and low motivation is so hard to live with.
You're not alone. My depression has increased since I was diagnosed with Graves Disease.
@@millasboo every day is a challenge for the healthiest of people. Lifes even more of a challenge when u have no energy. Mine is hashimotos thyroiditis.
I hear you:(
@@AndreinaJ people become aggravated at me because it takes me longer to complete tasks due to sluggishness and brain fog.
@@caramelfrappuccino234 I been Diagnosed with GAD( Generalize anxiety disorder ) and clinical depression after a stroke a had in the middle of the night at 41 years old ,for the Grace of God my daughter in that time 6 years old wanted to sleep with me ,she got so close to me ,that I told her half sleep ( move over) than I realized in that moment my words couldn't get out of my mouth. Long story short , I developed hypothyroidism and now at 51 have osteoarthritis in both of my knees. My family and friends thinks, I make excuses, and the worse part is that the smallest task are so hard to do. So believe me I do understand you. OH never mind brain fog, its unbelievable for me to realize how bad it gets some days, oh and I'm in menopause and Inmsonia its my best friendat the moment 😏....but I always say ,some people are worse than me.Sending you love and light ❤
The Endocrinology Association should make antibody testing mandatory as part of standard thyroid panel testing; TSH, T3 and T4 for both Hashimoto's and Graves. I think they will be surprised at how many actually have both.
.
100% agree. it's such a simple and cheap test yet doctors are reluctant to offer it to patients and only focus on individual symptoms trying to cure them. the amount of money i gave wasted for various anti hair loss shampoos, tablets, creams, oils, massages etc to save my hair was ridiculous, while it was enough to do the test and learn that I have a Hashimoto disease.
Are you saying that a person could have both Hashimoto and Grave’s - or hypo and hyper active thyroid?
Especially after pregnancy
Amen!!!
@@jillianadevenuto2035 yes...we can switch back and forth...I've gone through both many times...anxious losing weight...then back to fatiqued gaining weight...cold...dry skin... losing hair...blah
I am almost 65 & only recently discovered that illnesses such as thyroid disease are often caused by narcissistic abuse. This very well could have been the case, & cause, for my condition. I was born into a family of complete narcissistic vampires & suffered the garbage they threw at me for some 60 years, (as they started early on the "baby"). I am in process of researching this presently. I've dealt with copious amounts of anxiety coming from a "battle royal" home life. Always physically healthy, it all hit in my later years & I'm far from being healthy now. The medical doctors are useless, for the most part. I have quite distanced my self from the narcissistic vampire relatives as well as so called friends. I live alone; much better than having to be in a constant battle with abusers. I also suffer IBS, acid reflux, & other disorders. If any of you have abusive relatives, get rid of them NOW & never be with them again. Your heart, mind, body, & even your inner spirit will thank you for it, although you have to continue to fight the disease within. And, yes, I have PTSD, too. But, this is possibly the beginning of a healing journey.🙏
Thank you for sharing your story.
This happened when I was in such relationship
I and my two surviving brothers have hyPERthyroidism, which IS NOT associated with any disease. One brother had his thyroid removed, my other brother and myself are on an older medicine but still have our thyroids. I begged the doctors, in our area, to do a full thyroid panel but they never would. Just T-3 and T-4. I was diagnosed, in the Emergency Room, by a physician ( from a larger city doing a rotation at our small hospital ) as being in a “ thyroid storm “. I had VERY LOW TSH and Vitamin D. God kept me from dying. Thank you, Jesus.
Some doctors only test TSH.
@@those_eyes, wish my doctors had tested my TSH. Live in a small town with small hospital and very few physicians. Oh well, I thank God for the one rotating physician from a large city for being in the E.R., the night I came in to be seen. 🙏☺️🙏
Graves Disease
Amen and amen! Thank you, Jesus! I have Hashimoto's and it likes to go hyper and hypo on me. I have had very low TSH and high. It's a balancing act. "thyroid storm" is perfectly said. I pray you are doing better. God Bless.
Omg... I have so many of those symptoms. I just found out I have a thyroid issue.
I did the same... I blamed myself. I would always think "Ohhhh I should just workout harder, eat less, I'm emotional because I'm a Cancer.... etc." My throat has felt like someone was holding it for YEARS!
Thank-you for sharing this information. I wished I had found it sooner.
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@@joe-ib1wn right? Haha
A Emily Clarke. Glad to hear that you found it. I've had it my whole life, actually. But was only 11 years old when then 1st diagnosed me with it. I remember how my whole body would change like a yo-yo. I was say, 118lbs today, & the week or 2 after that, i was already 180lbs. Then I'd drop to 145lbs say, & go back up to 175, & up & down. I never stayed the same weight for long. When I was heaftier, I barely had an appetite, was way more depressed, felt exhausted & had no energy what so ever to do things. It took me forever to do things, because I felt like I hadn't slept in weeks or months even. I was out of breath quickly, & had no grip to my hands off & on a lot too. Depending on my level of fatigue, etc... I was always an extremely shy person, & I'd get nervous easily, & dealing with this internal yo-yo state 24-7-365 for years, just added to my nervousness. You have many who think that you eat to much this, or that, etc... & that's why you're the size that you are. Yet, I was a kid who was everywhere when I was young. All over the place where we lived. It was such a small town, you were lucky if there were 25 houses on the 1 side of our town alone. That's how small this town is. I was everywhere, & yet, I'd still gain weight, without changing anything, then lose the same way. Without changing anything. It's been a real headache my whole life. Not being able to keep a normal weight. My Mom's favorite way of describing this problem of mine is, I just look at food & gain 50lbs, & eat all that I want & lose that much or more. I've been 118lbs at 18 years old or even 120lbs at 20 years old, & while doctors told me that I was a good weight for my height (5'3); I honestly felt sick. I felt dangerously thin. I felt like an anorexic girl. As much as it may thin out my largest areas between my waist & knees where I bulge the most, it also took more from my ribs where they were all bones & just sticking out more. Nothing covering them. Not healthy looking at all. I'm a very big boned person, & therefore, doctors think 120 is great when in fact, my body says otherwise. It says, I can weigh between 140 to 160 & I'm fine. With 150 being my ideal weight. But anything below or above those numbers feels like death to my body. That's why I stick to whatever I know about myself, & have always said that I know myself way too well to have a doctor that doesn't take what I say seriously. I already know what my do's & don'ts are weight wise, food wise, etc... I just can't treat myself as they can. If they don't want to co-operate. Nothing I can do about that. Thyroid problems can cause any disease in existence. Don't let anyone tell you any different. My Grandma's battle with it going undetected until the last 2 years of her nearly 73 years of life, said it all. Hope this helps you some. Take care & all the best. :)
yep my throat has been like that for about i dont even want to tell u how many years and im a water sign too a scorpio so im real emotional and sensitive and caring
I hate when you can tell your doctor somethings wrong, and they don't look into it, they're jst like oh its nothing and send you home.
Hope you're getting treatment now. These things have to be properly managed to stay well.
Right like why did I come see u & u be having the same problem & go some where else like I did diagnosis Raynaud's & artery disease
Elyse N yup that’s why I don’t trust doctors most of the time
@@surayyoholdarova4515 rightttt!!! The last time I went to my primary , I cussed his ass Bec I had to go to the emergency room after I've told him numbers of times & the hospital gave me a referral , the hospital diagnosed me & the drs I went back them up with what I was diagnosed with.....I should sue his ass 😭🤣🤣
@Jay Boh seems like u have to be or else Bec these days I think it's about a check
In 1983 I had my first baby, three years later by chance by a GP who had also had it as a medical student, I was diagnosed with Graves’ disease and admitted to hospital for three weeks it was chronic and took a long time to stabilise and bring my heart rate down. I then also suffered with one eye enlargement my weight dropped significantly my anxiety, panic attacks and hands shook, my heart rate and muscle strength was extreme. In 1994 I had my fourth baby and had post natal depression. By 1995 graves returned each time after each three more babies. After my fourth baby the doctor thought I should stop breast feeding and take anti depressants and thyroid disease medication. That made me feel even worse.
By 1998 my thyroid symptoms were recurring. Then by 2008 after a lot of stress, anxiety and depression my hyperthyroidism turned into Hashimoto hypothyroidism.At 58 I was diagnosed with fibromyalgia another under diagnosed condition I’d lived with symptoms since I was a child.
All in all I have lived with autoimmune disease both hyper and hypo for 38 years. At 63 I still suffer with symptoms trying to regulate and adjust my medication is tricky. Taking thyroxine doesn’t cure the disease it treats the disease and controls it but is volatile, hormone changes, viruses, menopause, periods all affect dose and the impact and changes can take time to show up in a blood test or not show up. It is a fickle and insidious disease.
To live a life with your body under constant attack is hard. I took up qigong, practice yoga and Pilates, lift weights, walk, meditate practice mindfulness and went vegetarian then vegan three years ago, I eat very low gluten, grains or high glycemic carbs, low sugar and fast. It’s a lifestyle change and a constant battle.
My experience’s with the medical profession has been a struggle, ignorance, tunnel vision and stupid comments.
My advice is do as much research for yourself and try, try and try again. Stress is a killer so be aware of how to combat it. Lifestyle past, present and future all need to be factored into your personal journey. Wellness is mind and body listen to what both are telling you. Look in the mirror and love yourself 💜
This is so upsetting. When one like myself goes through this I feel such sadness. I am so sorry. You like me have both hyper and hypo. I exercise daily. I hike and bike as well. There are good days and not so good. My body is in constant sweats, anxiety and fatigue as well as muscle aches. I had a positive ANA and my titers were very high 1:1280. You are so right in all you say about little being known and understood. I listen to my body and try to live stress free very hard these days. God Bless all.
I’ve had Graves for first 40 years and my endocrinologist did a heap of blood test I’ve never had before. He came up with hashimoto’s disease as well. My immune system is attacking my thyroid and pancreas. Instead of type 2 diabetes, he said I have T1. Very different meds now. Would recommend seeing an endocrinologist rather than staying with limited knowledge of GP
Lorraine, yes I shall ask my gp today, if I can see endocrinologist. I have been hypo for well over 30 years. I was on 175mcg levothyroxin. By diet and supplements, I reduced this to 100mcg in 2019. Now trying again from January. So have turmeric tea with black pepper and a teaspoon if coconut oil (recommended by utube ayurvedic) . This actually raised my cholesterol to 5.7. I was under 5 before. Now out of gours gp told me that I should ask my gp to recommend endocrinologist if I would like to heal my hypothyroid. So this is what I shall do today. My thyroid may have shrunk, so maybtake a while. I am not allowed coconut oil by my dietician. Will continue with turmeric tea without coconut oil.
Strictly speaking, they should have send me to endocrinologist over 30 years ago. We should not have to aak to be healed completely. It needs to be the first protocil.
@ Lorrane. I can relate to what you & many others are saying here. My maternal Grandmother had many health issues, which made her a hard patient to both diagnose & treat. Her thyroid played like a yo-yo: going from too high, to too low, & up & down like that for many years. Her weight fluctuated like that, as well as her appetite, etc... By the time they diagnosed her with it, she was a year or 2 away from the end of her life (about 70 years old). She had had this issue since she was in her 40s if not younger, & it was too late in her life to be able to treat her problem. By then, it caused many other health problems: kidney disease, Types 1 & 2 Diabetes, Gangrene, Arthritis, Lactose Intolerance, Heart Problems (her heart would skip a beat so they put in a pacer), Celiac Disease, Food Allergies & Sensitivities, etc.... She couldn't eat cruciferous vegetables because they would cause seizures in her. She also had severe Calcium Deficiency & had Osteoporosis, she had extremely low Vitamin B Levels too. She was low in all of her B Vitamins. Not just B12. When her sugar levels played, it would cause seizures in her. And her blood pressure also played, & would get so low, it would put her in a coma. So, yes. It's possible to be like my Grandma & suffer from both TYPES 1 & 2 Diabetes at the same time. One part of the day she'd start out high, then it would drop. They skyrocket, then drop again. And up & down it would go. It was very frustrating for her & hard to get the proper treatment for it. They weren't as familiar with what to do for her then. Especially, someone like her with too many problems at once. What was good for her thyroid problems, really threw off her diabetes, & vice versa. It was a never ending challenge. Hopefully, tell everyone this will help out some. Take care & all the best. :)
Yes, it's so very complex, people need a specific expert. I know!
Often thyroid is a primary,so it really is essential you see an endocrinologist.
Doctors in general practice simply can't be expected to understand the complexity of these issues.
Best wishes all x
I am 13 and was diagnosed with hashimotos disease about 5 months ago, but the weird thing is I never noticed any symptoms, except fatigue. I was always tired, I slept in class and slept about 15 to 17 hours a day. I never thought it was weird, I was just tired, but then my mom noticed how swollen my neck looked, then my moms friend thought it was a goiter. I was so confused I had no clue what they were talking about, so of course I asked and they told me all about it. I remember my friend and I joking about how it made since I had hyperthyroidism because of how thin I was, but little did I know it was not that. One day I began feeling sick and missed a couple days of school, so my mom made me go to the doctor. So, I went and they checked me out, but then my mom pointed out my throat and my doctor confirmed it could be a goiter. So, they took my blood (I cried) to test the hormone levels and then I left. A couple days later my mom got a call, saying I had hashimotos and I wanted graves because I would lose weight, but looking back now I know that was foolish. I’ve actually had a cancer scare, they had to do a ultrasound of my thyroid to see if it was cancerous and I was terrified. Luckily, it was not cancer and I’ve been doing much better. I’m take my medicine (synthyroid) and I’ve been doing much better in school. Also, now that I’ve been through this I’ve decided when I grow up I want to be a pediatric endocrinologist because I can relate to the kids and really help them. I’m just happy I caught it early. P.S. this is not a beg of attention, I just wanted to share my story and thank you for taking the time to read it.😘
I am very close to being 20, I was diagnosed at 10. While us having to deal with it so young can be so frustrating sometimes, with all of the appointments and stuff; we are very fortunate to catch it so early and can work to help it early on. I also had no idea, and I don't even think anyone in my life thought so (even though my mom has always had it too), we had just gone to the doctors because I was having sharp pains on the side of my neck, under my jaw. It was so random, and they drew my blood to see what was up and sure enough, I had hashimoto's. I had an ultrasound on my thyroid when I was like 15 (I don't quite remember why) but I just kept calling it my little neck baby 😂
While I still struggle with fatigue the most, everything really has been okay. Hashimoto's doesn't rule my life. You'll be alright, I bet you'll be more than alright, I bet that you'll thrive in life. Just always remember that it is perfectly okay to take time for yourself if you're fatigued or something and it's a bit much; it can happen sometimes, even with the medication and sometimes it is hard to deal with but regardless, things will work out 😊💚 I wish you nothing but happiness and success in life.
That is great that you want to study endocrinologist to help others. Hopeful you'll be able to also help other doctors realize that symptoms such as joint & muscle pain, fatigue & brain fog is not "all in our head."
Curly277 I hope you are taking iodine or kelp. It will prevent what you have. See a naturopath. God luck.
Read up on Vitamin D deficiency. Thyroid treatment does not require an Endocrinologist. It just requires basic research, common sense, Vitamin D, and sunshine.
theinkbrain You are right that treatment of thyroid conditions do not require an endocrinologist, but you obviously have no real medical training, Please do not give false advice to people who are honestly looking for answers.
Me too I thought it was me I stopped exercising and staying on the couch. Anytime I would get up my heart would beat so fast.
My Drs kept saying it was anxiety bc of palpitations. I found another Physician that found the goiter so I'm awaiting my Endocrinologist appointment. I am fatigued out.☹️
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All patients with thyroid problems should see an endocrinologist and be tested for things such as acromegaly which can make exercising even worse.for the body. This is a really complicated field so even if regular MD's give you the same testing as an endocrinologist might, chamces are quite high that the testing can be misinterpreted.
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Just being tested for thyroid Condition, waiting to find out, the waiting game, my doctor suspects it, causing depression, anxiety and hormone imbalance, insomnia, eptopic heartbeat, achy joints, headaches, crept up on me in months, I'm really lucky to have a kind understanding woman doctor x I feel for anyone
with this condition x
From where will you consult doctor
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We feel for you too. God Bless. I will be praying for you.
I have all the symptoms of Hypothyroidism and all my doctors I’ve seen only run the standard tests and say my thyroid is “normal”. So they won’t run anymore tests. I’m almost 100 lbs overweight and my weight continues to climb even though I only eat one small meal a day. They say calories in calories out. In other words they think I’m over eating. It makes me so angry and upset because I know that I’m telling the truth. I’ve even taken my temperature in the morning before getting out of bed and it’s low every morning between 93.9-96.5 which indicates a thyroid condition. I’ve even told them that I literally feel like I’m dying because I have chest pain and heart palpitations, anxiety, muscle pain and stiffness, muscle spasms in my legs, back and sides. I have insomnia, dry hair, skin and nails. My memory has gotten real bad, I can’t exercise because my body is so tired and it causes more pain to even walk. Now they want to send me to a psychiatrist because they think it’s all in my head. In the mean time, I feel like I’m dying. I’m to the point that I don’t trust any doctors with my health because I feel that they’re only in it for the money. Doctors used to listen to their patients and if they run the standard tests and they came back normal, they would run more tests till they found out what was making their patients sick. Not anymore. Now it’s a pat on the head and send you to a psychiatrist. I’m beyond angry because I can’t find a good doctor anywhere! 😡
Corina Stephenson
Sweetie, you need an Endocrinologist. Also, for your losing weight, I’m doing it now because we’re in the same boat, 1 meal a day is the problem. You need to eat a a healthy balance of meals breakfast, lunch, dinner including 3 in between snacks. Eating actually helps you lose weight! Try MyFitnessPal app to track food and any exercise that you can do. Housework is movement and is exercise!! Good luck!
phughesphoto I’ve tried doing 3 balanced meals a day plus healthy snacks in between for 2 weeks and I gained 5 lbs and then went back to eating once a day because I was afraid to see it go up to 20 extra pounds plus. That was a few years ago. Now I’m gaining 5 lbs a month give or take a lb or 2 and my eating habits are the same. I don’t eat junk food, fast food or fried food. I eat one healthy meal for dinner and my weight has gone off the charts and stupid doctors say stupid crap to me; like calories in calories out! I got my blood work done and it says I have metabolic syndrome and that I’m insulin resistant and he says that’s just a suggestion. And my progesterone is real low and my thyroid hormone is on the low side. He says if I eat one meal a day and drink 2 protein shakes a day that I should lose weight. That’s like putting a bandaid on a bad wound and hope it stops the bleeding! In my mind I’m thinking; why don’t you fix the problems so I can lose weight and be healthy. I know if I do the one meal and 2 shakes per day, I’m just going to continue gaining weight until my medical issues are resolved. But the doctors I see just want to keep me sick. I hope your having better luck with your doctors. Thank you for your suggestion on the app, I’ll check it out...👍🏻😌
@@corinastephenson6268 did you have skipping heart beats, flutters, hair loss, back pain like something stuck, dry skin, dry throat, fatigue, feeling sleep all the time, i also eat 2 meals and feel bloated
@@theavenger729 I have all this symptoms and I have hyperthyroid ..the worse of all is lossing my hair
You need an Endocrinologist since your symptoms certainly look like a thyroid problem. What most Primary care doctors fail to understand is that if your TSH is high and the T3 & T4 are low something is wrong even if the actual numbers are in the normal range.
I’m very lucky my doctor handled it so well as I’m having regular blood tests (and dosage changes depending on results). She/he has been so helpful throughout the while thing and I’m so grateful. (Mine all started with fatigue,dizziness,headaches etc and turns out I had an under active thyroid (hypothyroidism)) (at one point they thought I had type one diabetes which I found odd as I wasn’t sure who they were related but at least I know what I have now )
Get ANOTHER DOCTOR .I have suffered from 13years because the Doctors don’t always know what is wrong. This is hard to detest ,but YOU are in charge
I made a CZcams video on this. I was told by one endocrinologist that I had Hashimoto’s. For 4 years I took medication [synthroid) for it. I went to another endocrinologist and he said I did NOT have Hashimoto’s. He said that because my symptoms were sudden, I had gotten a subacute thyroiditis event. He took me off all medication. I am now 1 year off all meds and feeling much better. Can’t believe how two different endocrinologist gave me two diagnosis and two treatments.
I definitely understand your feeling. I was diagnosed with hypothyroidism in 2019 then in 2021 they said I had hyperthyroidism I feel like thyroid issues go up and down. It can be dealing with stress what you eat what you do if you smoke or drink. And I do feel like endocrinology I don't know why they specialize in anything when they suck. They don't even tell the patient what's going on they don't do thyroid panels to see what's going on with your TH level's.
@@lacecocoa6272 if no blood work is being done and routine follow up appointments you may want to consider a different endocrinologist if you have options in your area. That is not the norm. I had to be persistent to originally get tested by my pcp b/c I was young but I knew I had a family history. I was correct & once on medication began feeling better. When seemed additional symptoms were more than what pcp could handle found endocrinologist. Had to switch providers when felt, the first was not a good fit. The symptoms are already uncomfortable the person who should help understand & manage them shouldn't make the process more stressful. Best wishes.
Exceptional video explaining thyroid function and testing. Thank you Erica Petrini and Dr. Mark Lupo. JP
Erica Ventrini
The most important exam that triggered the parathyroid\thyroid disease for me was a calcium test. The parathyroid and thyroid test were a little abnormal and brushed off by physicians but they would not run ALL the testing at once which caused many health problems due to physicians delaying testing.. . Started having kidney stones and a great smart doctor ran the calcium test and it was off the charts because my body was throwing off all the calcium and causing stones. By this time, I had already lost about 30 pounds in 30 days and continuing to lose about a pound a day and my muscle tissue deteriorated so much could not walk at all and now in a wheelchair and cant walk. Then by that stage, over a year later, diagnosed with hyper-parathyroidism and hyper-thyroidism and graves disease. All caused from more than a year of being misdiagnosed and delayed testing.. Insurance dictates what tests are run and since the "affordable" care system was implemented, physicians do not run all the tests they should be running and piece-milling tests over appointments that stretch out over a year which caused more damage due to returning every 3 months for more blood testing. Before the new healthcare system, docs were not afraid to run lots of testing at once. The new healthcare system is the reason for my disability! Because insurance paper pushers dictate our lives!
@ J. I can relate to that. I had multiple health issues growing up. The worst of them was my severe Epilepsy due to a crushed right temporal lobe that the doctor gave me when he delivered me. From 3 months on, I was having seizures. In March 1996, I went to London, Ontario, here in the province & they told me that the Epilepsy was caused by this injury. no doubt about it. They ran tests that proved it. MRIs, & all. They also told me that the main cause of my seizures was definitely my Epilepsy. BUT! It wasn't the ONLY CAUSE of them. They said that anyone who had Magnesium Levels & All my B Vitamin Levels as dangerously low as me, would be taking seizures for sure. Even a non-epileptic person. He said that I'd have to watch my levels of them for life. He also said the same about my thyroid problems & Iodine levels as well. They too, were way off & were causing me many seizures as well. He said that the majority of my seizures were caused by the Epilepsy, yes. But the rest were caused by the other problems he mentioned. I was shocked to hear him say that. Only because for years, I used to tell my Mom the exact same thing. And when I went there to see them about what they could do about the Epilepsy issue, that's exactly what they said. The doctors were treating me all wrong throughout my life. They were too busy giving me anti-convulsant meds for the Epilepsy. Instead of taking me off of them for good once they noticed no change what so ever in the amount of seizures that I was having. He said that they should've been treating my thyroid problems, pituitary problems, parathyroid problems, etc... instead of the Epilepsy. They said I was in dire need of hormone treatment, way more than I was these Anti-Convulsant Meds. I had osteoporosis at 16, was lactose intolerant by age 16 (diagnosed that is), but, had problems with milk products as young as 10 or so years old. I was never diagnosed with Gluten Sensitivity, but, know that I am since the age of 20 or so. Yet, when I think back to when I was as young as 6 or so when I tried my Mom's whole wheat, rye, & pumpernickel breads, which made me very sick afterwards. I now realize that I most likely was gluten sensitive my whole life, actually. I never could eat whole wheat, dark chocolate, etc... due to the fact that they're not refined foods. Anything that's too condensed or too pure like Whole Wheat is vs White Bread, are the kinds of foods that I never could tolerate. I'd get bloating, swelling throughout my ribcage, waist & belly button areas, constipation, diarrhea, vomiting, migraine headaches, extreme itchiness, a rash from tp to bottom of both arms & legs, sore joints, severe nausea, indigestion, & fatigue. I felt & looked like I ate way too much & couldn't even get up or bend down to put your shoes on. It swelled & cause such pain. I'd have so much acid that it felt like it would take the whole month to rid me of it all. So not comfortable for a kid in school at any age, or for any adult at any age, either. So, yes. Don't let anyone tell you that you're wrong about your health, ever. Because, I went the 1st 11 years of my life without ever being diagnosed with thyroid problems. Yet, generations ago, they called thyroid problems an old ladies disease. Yet, I was 11 diagnosed, but, had symptoms as young as 4 or 5 years old. So, their statistics back then were totally off. In my family, both my parents have an older sister with thyroid problems, my Maternal Grandma had it, & I too, have it, amongst a few others in the family. So far, most of us are women with it. But, a cousin of mine was told that he has it too. So, it's something to keep in mind. Not all problems are genetic issues. Multiple things can cause thyroid problems like: trauma, diet, amongst other things other than having a genetic disposition of it. Hope this helps some. Take care & all the best. :)
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I am so sorry. Yes, we live in a different world. We must keep the faith. when I was carrying my fourth baby I lost almost 70 lbs. they still didn't know what was wrong with me. I have Hashimoto's and the symptoms of Graves. I pray every day your will be done LORD, please gives us the strength. Amen.
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I’m getting tested soon. I’ve already had my blood taken for my depression and anxiety condition and my thyroid was one of the things being tested, in which my levels were off. (the doctors played it off like it wasn’t a big deal). So now I’m going back to look deeper specifically for my thyroid. It’s one of the factors that causes my mental conditions (my genetics are a main contribution). But it mostly effects my weight and trouble of losing weight from what my therapist and mom assume.
Hello, were you diagnosed?
Getting a doctor to listen was the real challenge. 2 nodules were discovered in 2017 after a Lifeline Screening. I was also dealing with some physical issues that interfered with work and home. The doctor I had at the time just dismissed it. I was fortunate to get a new GP in 2020 who did the tests, ultrasound and biopsy. It was caught in time, now there are 3 nodules. My numbers were still in the healthy range but it will be addressed. It's a relief to know what is going on with me. Now it can be tackled correctly.
I have five nodules and have to get a biopsy done and I’m scared. But I’m tired all the time my neck is huge, I’m gaining weight and I just feel terrible all the time.
I've had multiple nodules and multiple cysts on my thyroid for many many years now. I just saw the Pa last week and i have to get another thyroid ultrasound done anytime now. Don't worry with the thyroid ultrasound they numb you're neck before taking any samples and they give you an ice pack afterwards. But i always did fine with mine i was nervous the very first time but I've been through it so much it doesn't even bother me now. Yes it did make my neck sore afterwards for a bit but i used the ice pack to help because i have multiple nodules and multiple cysts and i hope you do well it will be okay Aja. H. And my prayers are with you. Hope everything turns out well and God Bless.
My daughter was diagnosed with Graves Disease when she was around 14. She will turn 18 next month and it has still not been resolved but we are lucky to have caring doctors looking after her
What tests are required for graves disease to diagnose
I have hypothyroidism since 2009 but when I got ill in 2016 with severe reflux and not being able to eat, and experiencing severe body pain, tilting to one side and only weighed 40kg going into anaphylaxis all the time and lying in hospital. Scope after scope, no cancer found, my mercury filings was instead removed...After that i could slowly start to eat more so after all the years I still only eat a limited amount of vegetables and I can't even have fruit because of fructose and severe sugar allergy, no gluten and not even a drop of milk then my body will burn inside... So I've learned to eat grilled or cooked low carb vegetables. Herbs, grilled chicken that's antibiotics free and that was free roaming, occasionally eggs and pink salmon... And sometimes gluten free oats...As I got stronger in 2018 I started to do exercises and yoga, Pilate's, meditation, do breathing exercises and walk...eventually today, I've learned to take my pro biotic apart from my thyroid meds each morning... Pray and live with gratitude, take a mindful run . i am getting so strong. I run about 5 km ,6 mornings a week, on Saturday I spend in reflection and meditation and love my veggies, oh and rubbing and scrubbing my body with olive or coconut or almond oils...adding a drop of lavender or eucalyptus sometimes. I have also learned again to love life and stay in the present with a attitude of gratitude, I mean recovering from heavy metal poisoning having hypothyroidism does cost inner strength....
How are you now? I’m suffering like you were.
I have had only one doctor look at my nails. When I described how I felt, he took my hands, looked at my nails, and correctly diagnosed hypothyroidism. He was an internal medicine doctor and was a whiz at diagnostics. He is without doubt the best doctor that I have ever had.
I'm glad to hear you have a good doctor. You will do well. I had Graves and Hashimotos and have been on Eltroxin for over 20yrs. My young daughter has weird, lifted off the bed toenails and I worry for her. What did your doctor notice about your toenails that indicated thyroid disease?
@@dabeezkneez8716 he didn’t look at my toenails-just my fingernails. I am in my late 70s, and since 1988, I have been on thyroid meds.
@@sassygrammy1258 Oops... I meant what did he notice about your fingernails?
The medical professions is guilty of widespread malpractice when it comes to diagnosis and treatment of hypo thyroid conditions and Hashimoto's Thyroiditis. We have to assume the responsibility of finding our own solutions. For me it was natural vs synthetic thyroid supplement, and Vitamin D supplements.
theinkbrain It is hard to find someone that knows what they are doing! I had a wonderful NP that knew so much and did alternative and modern meds together! I moved to TN in 1987 and have not found anyone since!
Also if you find alternative here in TN it’s a racket! They charge so much you can’t afford them! It’s all about the money for most alternative practitioners as well so they need to get off their high horses and start helping people,... not sucking the life out of them
@@lmonnette4037 It sounds like you found an exceptional NP. I hope you can get the help you need to stay healthy.
Please watch this video and ask your questions in the comment section
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@Mike My experience has been that doctors have been consistently incompetent.
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This video has gave me immense insight into what is wrong with me for the last 5 years. Thank you
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I was about 6 when I was diagnosed with hashimotos disease I’m 16 turning 17 in a month and I’m just now learning more about my disease.
I have now started listening to my body, and take my medication as necessary. I don't take them all the time. Our bodies change, and these things can correct themselves, so I take every day as it comes now, and have my symptoms under control, with a change in my diet, and reduce meat, so far so good.
Wow this helps me so much I was diagnosed couple weeks ago they still not sure about my abnormal thyroid so I will get further tests but I am truly autoimmune vitamin D deficiency. It really helps to hear someone else's symptoms allow me not to think it was just all in my head I can place myself or I have some kind of reason why I was feeling this way. Just to hearing someone else's symptoms puts me at ease💟
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I have multiple cysts and multiple nodules on my thyroid and i have symptoms of both graves and also hashimoto's but I'm hoping to get into an Endcrindologogist this coming up year i pray. Been through so many thyroid ultrasounds and also several biopsies as well.
Amen. I agree. I'll be praying for you. What were your symptoms for the Vitamin D deficiency? God Bless.
I suffered for YEARS unfortunately because….the symptoms I had at the beginning were chalked up to other things.
I now have Hashimoto’s.
My thyroid right now is swollen about 3x the size it should be. I’m fatigued, depressed, short-tempered (unlike me!), anxiety, weight gain (no reason) choppy night sleep, dry flaky skin, joint stiffness, extra aches&pains, no energy, no motivation, sallow complexion, cold much of the time….too much to write out. I developed Hashimoto’s AFTER cancer treatment. Chemotherapy/Cisplatin and 30 external radiation and 5 brachytherapy. It’s a constant battle to feel like living. Chronic nerve pain on top of all of this. Plus recent big toe amputation from blood clot.
Oh Kelly, I am so sorry. Just when you think you have it bad... I read your comment and feel sadness for you. You've been through so much. Please don't give up. You like us can do this. One day at a time. I feel at times like you not free to live BUT I call on the name of Jesus to help me and I read the bible and it soothes me. It really helps. I am here if you want to reach out. God Bless. I will be praying for you.
Wonderful video! Thank you! I live in Florida and am glad to see Dr. Lupo is here...thank you for this information
Does he take Medicare?
Keep on the great work dr akpamu may god continue to strengthen and enlighten you!
Today I just got a called that my levels are bad .... I go in next week for a scan .. pray for me
Officiallygabby Dawson - Hope u see this message. How’d it go? Pray that ur ok & can treat w/e is going on w/u. 🙏🏾
Camille Nicole I took a scan and a test and another blood test .. update they are running test to see what I need to do next ... just know we all are going to be ok
@@officiallygabbydawson3724 so what happened in the end?
@@nicelady333 I got my my levels good 😌 and now I am doing fine . It’s amazing what time can do
This was an awesome video. So very informative
I have had this condition since I was a very young kid, im now in my 40s and I have been on medication since I was 22 I am STILL DO THIS DAY trying to get this under control 😢
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Hey did you do radioactive treatment?
Me too! I am so sorry. I get it. I will pray for you. In Jesus name.
After months of experiencing all the symptoms discussed in the video I finally visited a local primary doctor. She listened to my story and even though I was adamant I was just depressed, she ordered blood work anyway (I look back and I'm sure she knew what was happening). Turns out I was severe hyperthyroid due to Graves. We were able to manage it for a while but ultimately, the decision came down to remove my thyroid :-(. Graves has also effected my right eye. In a few weeks, I'll start Tepezza injections and I'm hoping that double vision, swelling under the eyes and slight bulging will diminish.
I thought once you get the thyroid removed the symptoms would go away? 😟
@@deniseowens1163 Graves Eye does not go away once the thyroid has been removed. You immune system will still attack the muscles in your eye because the muscles are still there. Four injections so far and I not seen any improvement in my eye. I have four more injections left.
Does anyone experience severe blurriness of the eyes?
I hate being tired an probably with wait when I've work out an regardless of my hard working ways could all way keep going imagine being ADHD and having an under thyroid at the same time it's insane.
I am right there with you !!!!
Same most probably
My daughter was diagnosed with Graves’ disease when she was 13. Three years later she had her thyroid removed, as the medication used to control her thyroxine levels was no longer effective. After surgery, her calcium and vitamin D levels were very hard to control. 4 years later, and she still has chronic fatigue, but her th levels are stable. Her immunization system is severely compromised. She very easily picks up viruses. Also, this year my husband was diagnosed with Graves’ disease. He was having hand tremors, and had always had watering eyes. His grandmother had a ‘lump’ removed from her throat eons ago.....at least we know the family history of it!
Enn Macgee I’m sorry to hear that
How is your daughter doing. That is so young to have her thyroid removed. I had my removed in my 40's and my life went down hill. I regret every day that I had it removed.
Hey I'm having graves too.. Took my first dose of Radioactive iodine.. What should I do further I'm so scared of this journey
I'll be praying for your daughter and husband. The thyroid is NO joke.
I am trying to reach T4 value of 5 and it's a struggle .I had 3.3 TSH in 2018 once upon a time so I went off the Methimazole for 3 month!My TSH crashed !I should of only been off 1 month!I learned my lesson!
very informative information. Thank you Access Health
Thanks for sharing your testimonies. It really help me to understand it much more.
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I have almost all the symptoms of hypothyroidism. I have been diagnosed with fibromyalgia which has the same symptoms. I am always exhausted and I have chronic fatigue syndrome
I'm 23, had thyroid cancer at 13. The pathology revealed I had Hashimoto's disease, but it was never detected in time. If it weren't for the goiter I felt, it probably would had gone unnoticed.
God is your healer.. Ill pray for u..
Amen to that!
did u had nodules? i have hashimoto's disease as well, i underwent biopsy on my thyroid and found that my nodule is suspected cancer. im scared to have syrgery
@@cpdocsflu4760 I did have nodules. But remember not all nodules are malignant. Any surgery can be scary, but we live in a time where technology is so advance that a thyroidectomy is not a huge surgery. Keep me updated! I hope you do well.
I have had hypothyroidism (my antibodies have never been tested for, but it is likely due to Hashimoto’s thyroiditis) for over 15 years. When I first had symptoms like extreme fatigue, mild depression, difficulty sleeping, and cold feet, my doctor completely dismissed the symptoms as due to the fact that I was a working mother w/ two young children. My feet were so cold at night, that I had to wear heavy socks. On my own, I started taking my basal metabolic temperature, which is the temperature that your body is at when you first wake in the morning, before you get out of bed. Normal temperature is 97.7 deg. F. My basal temperatures were 92.5 deg.F. The doctor didn’t know what to make of that-literally. He drew another thyroid test, which I believe was the TSH-a sort of indicator test of the thyroid health. It was 6. He said that to be considered hypothyroid, the TSH should be 12 or above. My symptoms grew worse over time. My thinking was foggy and it was very hard to exercise. I gained weight. Finally, a friend sent me to her endocrinologist who said that he could tell I was hypothyroid coming through the door. He tested the TSH, also, but also the thyroid hormones, T4 and T3. T3 is the active one. Both were so low he said they were in the basement. It took a year to get the medication dose right. What really helped my mood a lot was the addition of T3. There are several brand names for these products: Synthroid is a common brand for T4, or levothyroxine. Cytomel is a common brand name for T3, or liiothyronine.
I have had to have these doses changed every so often, but my TSH remains low at about 1. My thyroid hormones are much higher-truly “within normal limits.”
In modern endocrinology the upper “normal” dose of TSH is 2 not 6, like I was told by my ex-internist.
If you are getting thyroid tests done, make sure they tell you the results of not only TSH, but the levels of the thyroid hormones themselves, which can vary as to your situation, but should be at least 6.
If your TSH is high and the T3 & T4 are low you need a complete workup. You are testing too low when the stimulating hormone is high normal. As with many things in the body one number is insufficient to tell the story. The ratio is needed for a complete picture.
I was six and they did diagnose me as hypothyroid awaiting a ana. It was caused by hasimotos. It makes me frustrated to see the disparity in treatment from person to person.
Thank you, for sharing. I am sorry you are going through this. I get it. I have Hashimoto's and the symptoms of hyper and hypo. My anxiety is bad, sweats, fatigue, weakness, brain fog yada yada. I had the antibodies test done. My titers were 1:1280 very high, positive ANA. I pray you are doing better. Can you tell me did the Cytomel help with anxiety?? My THS is .44 My Free T3 on the lower side. I can deal with most of the symptoms by anxiety is horrible. God Bless. Thank you.
I have left the Doctors offices in the past and always left confused with more Questions cause I KNOW my body & that something is wrong. But the " Tests" will always come back " Normal".. But I Knew the tests were wrong & they wasn't really trying to help me. Now I know...
Did u get diagnosed ?
Love your video! I have started following a diet for 90 days which will completely cure Hypothyroidism if I follow it the right way. It may take longer than 90 days dependant upon how severe my condition is. I am on thyroid meds for 13 years now and I can't wait to take them off any live my life freely with full of energy and zeal!
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Appreciate this.. Thanks 👍
I think medical specialists need to do more to join up the dots instead of just working in a narrow spectrum of their speciality, after all they have a background of studies to draw this from when they qualified.
Are you tired of being considered simply a collection of statistics?
@@deepattison9329 more than that, I just wish some f them would read the notes and be aware of the game of consequences.
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What i didn't understand is why the specialist didn't tell me it could last a year or 2. The PA told me, I asked are you sure? I wasn't told that. I started to go online and find out as much as I could about hyperthyroidism. I learned many things about the condition. My confidence in doctors is very low.
It really is shameful how few doctors bother trying to help with such a widespread disorder. Why do they bother to go into their fields or even become doctors if they don’t try to help?
Brain fog is what drives me crazy.
Winner of a video, been searching for "how to fix my thyroid" for a while now, and I think this has helped. Have you ever come across - Yannabarn Vanish Thyroid - (do a search on google ) ? Ive heard some pretty good things about it and my brother in law got excellent success with it.
This is just superb, I have been researching "10 signs you have a thyroid problem" for a while now, and I think this has helped. Have you heard people talk about - Yannabarn Vanish Thyroid - (should be on google have a look ) ? Ive heard some interesting things about it and my cousin got amazing success with it.
What do you mean by brain fog?
@@jjaytroche123 it's like a heavy black cloud sitting in and around your head. Your brain basically feels numb and lifeless . Depression
@@doriansrandorianvlogplace2676 oh. See I'm not depressed though, I just be thinking something is really off with me. Like just be feeling out of it alot now
I was diagnosed with Graves disease after my body was literally eating itself. And going to the potty a lot. Had tachycardia., goiters, radiation. Heyyyyy does the list continue but I am finally regulated for a second time. This has been the longest time !
Please, what did you do to get it sorted?
I have hypothyroid too. After taking thyroid supplements, insteadvof my T3 becoming raised, my TSH also declined. I lost 20 lbs within one year not knowing my TSH declined until I took blood test with a doctor. I went to see an Endocrinologist at anither clinic who told me to come back with another tests (incl. tests of antibodies as I was not tested earlier ) after one and half month later. In the meantime, I saw in one of CZcams posts that coriander leaves and ash gourd is good for thyroid so I started taking its juice every day one and half hour before breakfast. I went to the Endocrinologist again with new test results and learnt that my TSH has been raised from 0.018 to 0.24.
I started experiencing symptoms up to ten years before my Tsh test finally became undetectable, and was giving a diagnosis of hyperthyroidism. My symptoms.
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49 years of ‘suffering’ from thyroid disease, I’m just fed-up and totally exhausted from going from so-called professionals to professionals who haven’t helped me in any way! (I’ve had diarrhea for 49 years, since the first day of taking the thyroid medication!!!).
I’m not sure I can handle this much longer, exhaustion to the point I can’t stay away for almost 18+ hours every day, but diarrhea 24/7 is killing me.
What can you do when a medical‘professional’ tells you, ‘I was never taught to test for TSH3!’ Year after year, 10+ years of just that line, how are they allowed to treat anyone medical? WTH? (I’m blessed my hubby is exceptionally understanding, he’s taken over everything but the housekeeping.
Going to yet another g.p. the end of this month, I’m sure nothing will change nor improve for me!
I’m just waiting to die at this time, I am leaving my body for medical research, I hope it will help someone as nothing has helped me! I can’t do this any more.
Hang in there and pray God and Jesus love's you 🙏
Why leave your body to jerks, who have not helped in the 1st place? If they haven't helped you, then why do you think they will help others?
Cathie I am so sorry. I know what you're saying. I get it. I too have issues like yourself and it is hard to travel. I will be praying for you. May I ask what you are on? I take synthroid but know I need something to help my T3. Please don't give up. We all here feel your pain. Cathie, if you want to talk reach out. Again, I am so sorry.
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I did a physical and my doctor suspected thyroid issues and I’m going to get tested soon. The biggest symptom for me is the brain fog and lack of motivation. I felt like I was lazy and being a typical teenager and my school results got really bad.... now I’m upset bc had I been diagnosed sooner, I could have gotten medication and changed that 😢
I hope you feel okay i just got diagnosed 4 days ago :/
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Hang in there I know what it's like,I went
To doctor
All he said is that your
Telling me all these story's😪 we will see, and I have 38 symptoms but look OK sometime think there not Enough support unless
You have The best doctor that specialises in this
I have had to google
Everything,
I have graves disease. What a name. For 18 yrs now. On meds but thyroid test come out so bad. I have anxiety, confusion, depression. So hats to live with. Nothing is helping me. It can be a living hell at times. I just wanna feel better. It sux living with this. Help!!
This the most informative video On diagnosing the Disease
I hate hashimotos:( it’s ruining everything, I can barely function sometimes
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Girl graves disease sucks tooo. My body was literally eating itself at one point. Now I'm a fat cow lmaoo but I'm regulated after radiation and 1 remission.
They are very uplifting and cheerful. I have a similar story of hypothyroidism because I had it at the same age but it wasn't diagnosed until I was 19 years old.
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Same, it says people usually have weight gain with it but because of my other health problems, I’m 40lbs underweight.. I’m 16, a junior in high school and I just weight 85lbs
My family doctor recognised my overactive thyroid immediately and sent me emergency blood test, I thank the NHS U.k, I I'm grateful.
You are very fortunate to have a Dr. Who recognized the symptoms and did not tell u that u needed a shrink!
I had nearly 20 years telling me it was in my head. Just finished 2years on carbimazole. Hope it worked. Sleep still iffy
It took four years to find out what I had I ended up in hospital and then in a depression clinic because I ended up suicidal and I had milk coming out of my breasts ! It took two years to even begin getting better ! Now after 30 years I am now very much getter ! The funny thing is that my sister has it and my one daughter and three of my nieces. All in one family ! They all knew about this so got tested straight away !
I've dealt with this most my life..... got tested( tsh) always comes back normal..... my symptoms fall into the HASHIMOTOS symptoms... it is awful. I've been diagnosed with fibromyalgia, depression, anxiety disorder and chronic fatigue. Oh.... also ..... age! 😳 this has been going on since my late teens early 20s. I am SURE it is my thyroid . I now am uninsured.... on a budget that doesnt allow for Dr Bill's. I have learned to live with it..... good luck to anyone dealing with this. It is horrible!
I had this for 20 years before I finally got help because of my numbers always being good.
Finally got help a couple years ago and I had my thyroid killed.
I was so done. I just wanted to feel good. I am 73 years old. My eyes still take off and drive me crazy. Water ,hurt, burn and blurry.
Can’t lose weight, am very tired all the time. Pulse goes crazy. But as I have had mine killed by medication they don’t feel it has anything to do with my thyroid
Hi did you take radioactive iodine
@@Aaasssbbb123 I had that at 20 years old. Does it kill the thyroid? Mine is atrophied. It is very small. I am not 59 symptoms galore. I will pray for you and all who are suffering. In Jesus name. Amen.
yes depresion panic i had some time i do have it even i take medication for it
I’m a RN, I have when nurses go to the doctor with health problems they don’t take us seriously.
Reading the first Susanne sommers women’s health book in 2006. I tabbed all the blood tests and told the female doc to get blood tests tabbed. I had chronic attacks and high anxiety and depression. If I hadn’t read that book I would not have found out with the limited t4 blood test that I have hashimotos
The stories are so familiar. This is my story, too Thank you. But the music is very distracting and too loud.
And not necessary
I had radio iodine twice but have been warned if I need a 3rd treatment I'll be taken into Christies England for the operation.
I hope that's not the case as going through Thyroid gland problems were a lot worse than when l had aortic valve replacement.
Oh and I'm a Male.
Daaaang twice?!!! You are a trooper. My body could never. I had it done once.
Erm IV had it once didn't think you could have it 3times😳
@@melmma6938 hey I had mine 5 months back I want to know more about it.. Can you guide me please
I started complaining that something was wrong with mine when I was about 21. (Started suspecting it around 15.) I was 53 before I was finally diagnosed--Hashimoto's. Even after my diagnosis, I had a doctor try to tell me "Just eat less and exercise more".....dude, did you not see that I have thyroid disorder? That means just eating less and exercising more will not make a huge difference in my weight or anything else.
It took me 3 years to get diagnosed the first time. My primary care doctor said he was "Looking for zebras".
I had a large goiter. They said it was nothing to worry about so I didn't worry.
Problem was I had the most intense itching in the soles of my feet and on my palms. I went nowhere without Benedryl and a PedEgg to scratch my feet. It was horrible.
My doctor sent me to an allergist. He told me "You have thyroid cancer." He set me up for an ultrasound. The young man doing the ultrasound lost all the color in his face. He asked me if I would please wait he needed help.
He came back in with a doctor that told me I had thyroid cancer. It was the size of a racquetball.
I had surgery, lost ability to talk for 3 months and was never able to sing again. I had been a vocalist. I had RIA and was so sick everything I touched glowed in the dark. I took the color out of my leather couch when when I was able to come out of my room.
It came back in a new spot in my throat 13 years later. This time I was treated at a fancy clinic out of state. They did the surgery and later RIA. I felt it when I was swallowing. I'd been having the problems with the soles of my feet itching again. I knew this time what it was.
No one ever mention itching but was my only symptom.
I can observe those symptoms💔
my mum has underactive thyroid, and doctor told me that I have it too, I am taking the hormone substitute medication, but to be honest, the only thing I noticed, the only change, before /after I started taking medication is one thing only, and that I was loosing a lots of hair before I was diagnosed and I kept asking people why s that, my hairdresser said probably to do with iron and that I should check iron in the blood. well, doc said it s thyroid. and i must say that hair is fine now. My opinion is that thyroid got confused when I entered perimenopause at the age of 42, but then again...who knows how long it was there.
I started also taking vitamin K2, supposedly good for thyroid function, together with D3 vitamin for immunity (cause of this coronavirus thing too)....in any case, i didnt see much difference, except hair and feeling tired, but then again menopause has the same symptoms.... For some people I heard it does not really make any difference taking or not taking the hormone levotyroxine, and two friends do not even take it even though they have thyroid issue, they said it does not make any difference to them, they feel tired anyway. donno....
Maybe you need to raise your dosage? Research online - making sure you go to a reputable site.
Stop The Thyroid Madness is a reputable site
Iodine, kelp
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Wish I had this doc.
I have highly elevated TPOAb levels but my TSH and T3 and T4 are “normal”. I’ve had severe progressing symptoms of fatigue, inflammation (especially in my face), brain fog, joint pain, etc. my APRN just keeps telling me to lose weight and it’ll help. Turns out I have Hashimoto’s.
My new physicians assistants took me off of my thyroid medicine (synthroid). Synthroid he said, 'it was an infant dose and why am I taking such a dangerous medication' ? I have to go in the blood work ( yes, that's understandable) He has made me wait a couple of weeks before doing it, but I have edema in my legs again, gaining weight, exhausted. I told him going on and off of this medicine affects me mentally and he disagreed with me. I took some thyroid supplements from the health food store an that helped with the mental issues like depression, and thank goodness for that. My blood pressure is high again, and on the medication all these issues were resolved. The hair loss is still frustrating. Thanks, I wanted to write this in case anyone else is going to the same issues.
This is a very serious disease. It can shut you down. I think senility can be contributed to the throid.
Thanks so much Margaret.🌷 Things actually did get worse I developed a really bad edema and the only thing he (physician's assistant) could say was eat less salt. I appreciate someone else understanding and not talking to me like I'm simple minded.
It seems like you need to see a good doctor, an endocrinologist is the doctor you want to handle your thyroid problem
@@pinklady8278 Thanks, it's good to hear that. I reminded him I use to co-lead teaching the chronic pain, disease and diabetes classes at that clinic. I hoping he could hear me then, but no. I agree I should see a specialist. Again, thanks for your comment 🙏
This was true in my case. I had normal TSH but odd symptoms that seemed like I had gallbladder disease. But I didn’t. Thankfully the doctor did a thyroid peroxidase antibody test and it was quite elevated. I had Hashimoto’s and needed daily medication, and within about 48 hours almost all digestive problems stopped. The thyroid controls a lot of things.
It took me two years to be diagnosed. My symptoms
were like im having heart attack. Doctor were thinking it was heart because my family have history with heart problems. My first symptoms were dry itchy skin, panic attacks feeling like someone is sitting on my chest, and pain in chest(something like heart attack). Later with time there were new symptoms like hair loss, weight loss, tiredness… They run some test and I was diagnosed with sub. hypo and hashimoto(my antibodies were veryyyy high).
Doctors were deff thinking i was crazy… Thank God I am not. Listen to your body and gut, guys.
With medication I am now better. Btw buy some vitamin D, suplements for thyroid…
I’m a man and Diagnose with hyperthyroidism. I’m treated now, I feel like I’m getting my life back slowly
I need to find out the doctor Kaylan saw. How do I find out who she got help from?
Hallo any need thyroid remover jelly .
My name is Johan
Call on my thyroid care guru on +91 96252 27659 .
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I have been hypo for 26 years. Taking 100mg synthroid. Went to hosp with what I thought was a heart attack turns out panic attack maybe caused by .27 tsh level. They are saying meds too high. Why all of a sudden? Only thing different in my life was a covid shot!!!! Makes me wonder if I made a mistake getting it. Now I have more hair loss, heart palpitations and pressure in my head all the time. Doc says have my blood re checked in 6-8 weeks. Does this sound weird to you???
My Hashimotos of 4 year's have been cured totally with the help of DR Rorpopor herbal medication, doctor you are the best......😘 🌹🌹 I recommend DR Rorpopor herbal on CZcams to everyone having any health challenge.....??????????
I have mix of both weight gain, heart beating faster and harder, hair thinning, tiredness a lot more, fatigue and few more! I’m only 33 years old from uk, waiting to speak to a specialist on phone and ultrasound
When found out I
Had Hashmoto's disease
I started google
Foods and I found out
Some foods make us you have flare ups,even if we are on Hormone replacement,I am not a professional or
A doctor ,but it is so great read comments
Just to help all
Of us ,
What work for some
Of us does not work
For others ,take
Care everyone, be safe 😇🥰💛
I am diagnosed by Under Active Thyroid. I was experiencing symptoms for years. My TSH was slightly increased but sometime TSH comes normal, i have changed the doctors and one doctor prescribed the tests Anti TG and Anti TPO and many more. My Antibody were normal. Then he put on medicine Throxine 50 mcg.
@Charlotte Lyin Yes but i am living in Pakistan.
Did meds work for u
@@sarahsam7777 I am only taking Thyroxin 50 mcg on daily basis. Yes feeling better, But not fully.
I have also Vit b12 deficiency. Have you also thyroid issue ?
I went through a few years of problems that were dismissed or vaguely diagnosed as an autoimmune problem. One doctor just said take Vitamin D and call me in the morning. The exhaustion, numbness in my extremities etc. continued for a few years. I completely changed my diet and juiced constantly. I got a bit better, but finally met a doctor in NY who was a chiropractor with Epstein Barr. He suggested a bunch of unknown, to me, supplements, and it changed my life. It took a few years to find help. Sounds so familiar.
There's definitely a reason to why I came across this video on CZcams: czcams.com/users/Jyovis of Jyovis Ayurveda and I was very happy to see the results. I even followed few of the tips explained and it actually worked. Then I finally decided to contact on ...... (+91 7208189103) to cure my Problem from the root cause. The team really helped me a lot. Thank you Jyovis!
What's suplemen that you take?
I will list them for you in a few days. It amazed me how few doctors have any help for people with such a popular problem. So many people are suffering from autoimmune disorders and related things like Epstein Barr. But, yes, they changed my life. With a healthy diet, everything will change. Really tired.
I just moved from out of the country a few days ago and have been going nonstop. But, promise to give you a lead on these supplements. Amazing, one is actually drops that say Epstein Barr, but not one doctor ever said a word or offered any help. I’ll get back to you, and pass it on. I have done so for other people, who have also had good results.
@@cher255 OK. I'll wait. Hope this help other people
When my EB flares up my body gives up. Can you tell me the supplements. Thank you.
Graves disease can wreck your life. But once treated and you become stabilized you can have a normal life again. If you are diagnosed with thyroid disease buy a good book and learn everything about it.
Hey I want to learn more about it
Anyone with hyperthyroidism and tremors? I'm trying to figure out the cause of tremors in my hands . When you have tremors why hyperthyroidism, does it go along with nervousness or high heart rate? Or is it more of a localized tremor, where your hands move but no other symptoms?
I was misdiagnosed for 3 years I thought I was going crazy. It became so bad that I could not count change back to customers as I was shaking so bad. 4 different timing ER from blacking out was told it was stress . Told it was panic attacks . All along it was hyperthyroidism Graves disease. Had to have my thyroid removed then 5 years later developed Graves eye disease. People don't realize that thyroid problems are but one symptom of Graves disease. 15 years after being diagnosed with Graves Now have been diagnosed with RA autoimmune diseases often lead to other autoimmune diseases
Thyroiditis often responds to treating the autoimmune condition by targeting Yersinia allergy which cross-reacts with the thyroid. One study showed that thyroiditis patients have high levels of Yersinia antibodies. Yersinia is a bacteria found in the GI tract. I have seen good results in treating the autoimmunity with LDA.
Stephen Smith, M.D. Hello, could you please explain what this means. Thank you
LDA?
What is LDA?
LDA?? What's that?
Ive heard/read studies that LDN, Low Dose Naltrexone, aids and improves the immune system...
I found this :
www.nihadc.com/health-programs/lda-therapy-low-dose-immunotherapy.html
I am turning 14 years old in 6 days and was diagnosed with hashimotos about 1 week after turning 13. I have been on synthroid since. I recently had an appointment for an ultrasound of my thyroid and my doctor told me that I have nodules that could potentially be cancerous. I have to get a biopsy in April to make sure I don’t have cancer and I’m terrified. I’m terrified of getting the biopsy and I’m terrified that I might have cancer. If anyone who has been in the same situation as me, please give me some advice.
I had the exact same story. Don't panic. More than likely it's hopefully not cancer as goiters on the thyroid are very common. However, please do everything you can to avoid getting your thyroid removed. That's a whole other issue!
How are you guys??
सारगर्भित रोग ज्ञान. धन्यवाद.
I started with hypothyroidism after stopping smoking, I know loads that started with thyroid after stopping smoking
My doctor told me that my thyroid dosage in the past was too high and he believed my a-fib was a result. This was very concerning to me as this diagnosis is serious.
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It is hard to find someone that knows what they are doing! I had a wonderful NP that knew so much and did alternative and modern meds together! I moved to TN in 1987 and have not found anyone since!
Also if you find alternative here in TN it’s a racket! They charge so much you can’t afford them! It’s all about the money for most alternative practitioners as well so they need to get off their high horses and start helping people,... not sucking the life out of them!
Sharon Hearne How to get Rid of thyroid !
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My doctor gave me HRT because i was having hot flushes and night sweats.
I wouldn’t listen when i told him i’d been through the menopause years earlier.
Hadn’t a bloody clue
yeah, me too I had hot flushes and night sweats but that was just when my perimenopause started, and so the symptoms are kind of the same. But it happened that I had a little kidney stone all of a sudden, like an attack, v painful, and had to do some blood tests, that s when they discovered underactive thyroid, HTS was crazy high. I started taking the hormone a year ago.
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I thought I was in menopause 🤣
@@missthunderstormable it turned out i had an over active thyroid
Hi, I have Anti Thyroglobulin ABS 796.4 and also I have almost all symptoms shown in this video. Please please guide me how can i reduce this by medicine, diet or life style.
Research dr sebi. Eat plant based diet.
What is the difference or connection between or to Alopecia Areata and Thyroid Decease?
Just found out I have Hashimoto's Disease. Does anyone else have pain in their legs? And what about a sore throat?
Please watch this video and ask your questions in the comment section
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Unfortunately thyroid care in the UK is very bad and relies totally on the TSH and prescribes only the T4.
I'm from the UK and you're right I've been ill for about 5 years I've been in bed most of that time I lost my husband 5 years ago and I've just lived my life in bed. I would get up make a cup of tea shower then just go back to bed. watch some CZcams sleep get up maybe have a bowl of cereal and back to bed, I have barely cooked in this 5 years I just didn't have the energy. Any thing that was easy to eat sandwiches tins and cereal that's what I've lived on for 5 years. I was a very fit woman I loved the outdoor life I loved gardening, walking, biking, and swimming I haven't done any of that, I've been backwards and forward to the doctors having blood test after blood test anyway finally today I found out that it is my thyroid. I had always thought it was I've got every single symptom so you are right it is very hard to get diagnosed in the UK. I'm not complaining I'm just glad they've found it now and I'm glad that we have our NHS we are very lucky to have our NHS.
Same here in the states 😩 its frustrating.
Kathleen Parrish same here they only ever do a tsh for me .i had a partial thyroidectomy at 21 years old
I thought that it was only bad like that in the U.S. That's frustrating to hear that it's a problem elsewhere too.
Trust it's literally no better in the U.S...SMH
Thank you doc
Please watch this video and ask your questions in the comment section
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Hello Ereka!
Im suffering from this disease and Im afraid to have an operation. But now there are lots of complications like hearing malfunction, my right ear is 60% damaged, I have numbness of my right head, back pain especially on the right side, numbness everywhere but more on my hands and legs. Lately I experience pain in my throat everytime I speak and I feel so drain and much fatigue.
I am sorry to see this. I will pray for you. Can you me what you have? Did you have the surgery? God Bless you.
I have thyroid problems but I don’t seem to gain any weight in fact I’m very slim with really small breast and I am now diagnosed with diabetes type 2... can someone tell me how I should go about this
Make sure you have a great doctor
What about feeling hungry ALL THE TIME? I eat and eat but I loose weight and im hungry after eating
Graves has high metabolism, so that isn't uncommon.
Me too! Sounds like classic hyperthyroidism. Revved up metabolism, weight loss, and anxiety. I need to get checked out bc I’m always starving despite eating a great deal and I’ve lost 16 lbs in the last 9 months. ( the first 3 months I did change my diet, eating much less and healthier, and worked my way back into shape with running/swimming after being pretty sedentary a few years. After that weight came off, Ive started eating a lot more to gain but I’m staying really thin. Also experienced interrupted sleep, periodic muscle tension and occasional heart palpitations. I’m a 50 year old guy btw.
How are you doing Khione? Any changes or did you find anything out?
This is hyperthyroidism. I have hyperthyroid nd so much worried about my health
Khione Brusotti,
You lose weight, NOT loose.
Check you sugar... do the A1C Which is your blood glucose for the past 3 months thats the accurate test.
thanks
What medications can be used to make them to disappear