Living with Spina Bifida: Shakti Krishnan
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- čas přidán 23. 08. 2024
- Shakti Krishnan sleeps in, his mum does his washing and he's slowly learning to cook. He jokes about it now, but how will this eighteen year old survive in the big wide world? Especially with the challenges that come with spina bifida.
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Shakti and his family have beautiful, fabulous hair lol
....hair, skin, eyes, teeth....everything!!!
+💝+
My mother has this condition. She is 50 and is just now getting confident. My mother had a painful childhood because of this but she is the strongest woman I know.
Thanks for sharing! we hope you enjoyed the episode!
"It's so scary like...I am gonna be an adult. Like, what do adults do?" 😍😍😍 cutest thing ever hahaha
Thanks for watching Alexandra Forte
He is sooo darling and charismatic! He will go far in life. I wish him and his family the very best. What a lovely bond his mother and him share💖 Thx for sharing!
Thanks for watching Ma Hu
damn he's handsome
Hope you enjoyed the episode Charlie!
Attitude of course I did. I just found out about this channel two days ago and I've already been watching 6 videos. Can you please make an episode about Tourettes or tic disorders in general. that would be so interesting
Thanks for the feedback - I will pass it on to the story team! And if you haven't watched it, check out this one: czcams.com/video/huUHipUnv5I/video.html
Wow, it would be great, too, to see something on adult women w/Asberger's--it's such a small %, but we are so diff. from the men who have it.
+19irving I am a girl and I have aspergers syndrom!!!!
Hey guys I just had a baby he is born with SB too. I cry night and day. This video has given me hope that my baby might have a chance at a happy life. Any encouragement or advice will be taken with joy
nyoka johnson I’m a paraplegic and in my early 50s. I went to college, grad school, have a great professional career, am married, have twins, own my home, drive myself everywhere, ride my adapted mountain bike, care for my daughter’s horse, and have been to every continent except Antarctica and Australia. Having a physical disability by no means implies you cannot have a full and happy life.
God bless you and your family n all the best 🙏🏽😘
Hope all is well with you and your baby. Put God First! Your baby will be ok.
You probably won't see this, but hello! Im carson I'm 19 and I have Spina Bifida. There will be hardships, there will be difficulties, but we truly learn to overcome and live with everyday struggles. A happy life with spina bifida is possible, and likely. As long as you're there, talk to them and as they get older, understand what they go through, especially through puberty and social life.
@@pinkmonkeybird2644 😇😇😇😇😇👊👊👊👊👊👊👊👊👊👊👊
My grandma has spina bifida and because of that she is paralyzed from the waist down her life has been a big struggle but she has been able to have two kids when the doctor said she was able to pass so many milestones even though she has spina bifida so who ever sees this or sees this comment know that you can do anything god puts in front of you
Does she has control over bladder and bowel?
Man, I really appreciate this episode. You think it is hard going through high school with such a serious disability, imagine how college will be?! It is really hard and almost everyone is indifferent to the struggles that a disabled individual goes through. It is something else... I'm glad he says it aloud, speaks his mind, and is honest. He plays the guitar beautifully too btw!!
I am 50 with SB and I am so glad you are out there sharing your story and helping so many others,,,, And your sister has excellent taste in tv shows!!!!! Love Vampire diaries too!!
Thanks for watching Gale!Hope you enjoyed our channel!
Anyone else been binge watching Attitude's videos? ❤️
Yes indeed...ME *ME *ME, & seriously, I'm enjoying every awe inspiring episode! :-)
Thanks guys! Hope you both keep watching :)
totally me! Especially when the videos pops out at my recommendations
Yes. I watch them for motivation.
Me, too. It makes me feel good to be deaf, knowing that I can enjoy my life to the fullest. So do the others in the videos.
So glad I watched this! I have spina bifida (myelomeningocele) like him but I'm walking and my learning disabilities are a little worse than his. I have a harder time being independent. Like he said, spina bifida is different for everyone that has it. Different degrees of it. But this was super encouraging!! Congrats to this guy for staying positive and not giving up!
Hope you enjoyed the episode Haley! Thanks for watching!😀
Having been born with SB/MMC, I can so relate to this.
Becoming as independent as possible is really important, as is (sadly) educating non-disabled people about what it can be like being disabled.
Devin Lind disabled people can learn anything that you can love my daughter like I said has spina bifida got paralyzed from the waist down was in a wheelchair wash clothes get dishes vacuumed dusted made beds when shopping would get on a bus and go shopping has four children of her own and has raised every one of them she is now 38 years old and she is now sick but I will always be good by her side always will help her as much as possible and now all you can do is love I had a doctor one time teach me you cannot ever wait on the child handicap and then put if they can do some other things yourself my daughter could they told me not to treat her any different than my other child who wasn't handicapped to give her chores to do and to teach her to be independent and she's very independent very I guess I'm very lucky on that she's gotten sick or has she's gotten older need to help a little more and her sister helps her more she has an older sister who
Thanks for watching Devin, hope you enjoyed this episode!
@Gregg Venuti I'd say 80% loss of control.
Whenever I see disabled people, I look at them as a bit different, but only for a short time. Then it's all regular life, I don't focus on their disability because it is no big deal. Wish more people actually did this, I find many who discriminate such people.
Having lived with Spina Bifida all my life,in my opinion,this video was so relatable and motivating.
I have spina bifida and im 18 in six months! Praise be to God i am able to walk, this dude is really blessed to, may he make it far in life!
I was born with Spina Bifida in 1987, in Australia. I became a vlogger about a yr, when I finally decided to show the “world” what it’s like to live with my disability.
It’s great to see others caring enough to get our stories out there!.
Thank you!!!!!!
So was I but Drs here in UK call me a Liar big time
He's so cute! ❤
Thank you for watching, hope you enjoyed this episode Kali!
I did enjoy it alot. I've watched several of your videos and they were all good.
Thanks Kali - we appreciate the support. Hope you stay tuned!
Kali, I was just coming here to comment the same thing!
Attitude Definitely and thanks for uploading great content 😊
I love him! I was cackling at the sound guy holding the mic near his face as he was sleeping, lol.
Hope you enjoyed the episode Anna! Thanks for watching!
What are the financial issues the family faces from having a chronic condition like this? Surgeries, hospitalizations, meds, medical equipment, etc. Something like this in the USA could easily bankrupt a family. God Bless him and his family. 🇺🇸
Health cares free in new Zealand
g g It’s not free. It’s funded through various taxes.
This boy grew into such a fine young man. Well done mom....
His passion for doing meaningful work, his love for his mom, and his smile are contagious. I loved this video and can't wait to hear what Shakti does in the future.
Thanks for watching Michelle, hope you enjoyed!
What a wonderful son. To hear a teen talk so positive about their parent is the best reward, next to the love that your child gives you, respect. Some of us don’t have that capability or opportunity to be an amazing parent, all you can do is try and hope it works out right. Job well done, on both sides.
This young man will definitely go places in life. ☺
Hope you enjoyed the episode Erin and thanks for watching!
I love how he realizes what a great mom he has!!
One of the most confident and hilarious girls i know has SB, my mate Steph. Shes the business and far out shines me in life! Owns a house and got married to a fully able man, shes just a boss! Much love to all the SB peeps out there, your lives can be full and amazing!!!
OMG the dad waking him up with that music and the microphone over his head... I couldn't even, lmao! *tears*
Thanks for watching raerae! 😊
raerae1281 hmm! that's not the "dad" it's the camera for this film
Stupidest comment award goes to👆
handsome....funny...and smart. I'm in love ❤
Seems like a great young man, would be proud to be his mother. Mum and son seem to have a good relationship :)
I was born with Spinal Bifida many many yrs ago I am 49 and have had 94 surgeries, I am shunted and I have ostomy pouches and I love life.
Hi Angitia, hope you enjoyed the episode! Thanks for watching!
What is shunted?
Me also
@@mindfucker8515 She has a shunt to drain excess fluid from her brain. Hydrocephalus is something that is almost always present in SB patients, myself included.
Plz tell me how u manige this.because my daughter is spine bifita
I love his ATTITUDE... and he’s so handsome too...
Shakti, I'll be thinking of you & your loving Mum for a long time to come...With your positive attitude & enthusiastic nature, there's no doubt in my mind that you'll achieve all your goals...You're such a DEAR young man...My cousin became a paraplegic at the age of 19 when the cable that supported him while working high up on a telephone pole, abruptly SNAPPED...He has gone on to live a rich & full life with a very Loving wife...He drives, works fulltime, travels, plays wheelchair basketball, & has many wonderful friends...This is the kind of Life you'll have, too...Love & Hugs to you & your Family from the U.S.A.
We are all about promoting this kind of Attitude! Thanks for the amazing words poppykok5! Glad you enjoyed our video!
Shakti You are an inspiration to all people living with disabilities
God bless this beautiful family,esp.his mother who holds everything together...
Be thankful you live in this country and not in another without any support for the disabled and no financial assistance from the taxpayers, respect and cherish your mom, she sacrificed so much
💕
Beautiful family. Please never change !!!
What a beautiful person.... hope you do everything you want in your life....
What a wonderful young man - and fabulous family.
Looks good in a toga! Didn't know college kids were still doing that--we did it back in the ancient 80's
I think this young man will do just fine on his own he seems like a very smart fella trust me being in a wheelchair don't mean you can't do all the things normal people can do he's got it👍👍👍
Welcome to the world of discrimination, be tough, you have to be. You have what you need to succeed, Shakti.
I had a friend who was in a wheelchair, he was independent and had his own landscaping business he even went and did the work when he was able. He too was in and out of the hospital. He never let it make him give up.
my daughter was born with spina bifida and she had a patch on her back which covered up that's fine they said it was a fatty tumor at first it was spina bifida she started having trouble she walked then they started doing hip surgery sooner I'm sure went through I know 15 surgeries and now she's in a wheelchair and now she is so 38 years old with 4 children when is 6 + 1 is 9 and now he's in renal failure in heart failure but I keep praying and I keep working and I keep praying and I'm getting older but I did my best to take care of my child and I think every parent should just because your children have a handicapped does not mean they're not a human being with feelings and give you great joy and love because of anything that will give you all the love you need and you give them all the love they need my grandmother once told me special people along with special people very true so keep loving and keep caring if you need any to talk to someone just get me I am on Gmail God bless you have a wonderful life
Thank you for watching Vanessa! Hope you enjoyed!
Vanessa Darnell, be blessed.
Can she apply for a donor kidney and heart?
His mom is beautiful and her hair 😍😍😍😍😍😍😍😍😍 omg her brows are perfect
What a mature, beautiful person. He has wonderful family support too.
Man that whole family was awesome!
Loved it!! Good luck to you Shakti! Best wishes to your Mum and sister too!
Thanks Esther!
His hair tho!!
Guys with hair like that have a 100% chance of stealing ur gf
Ayak Angook truth!!
I love ur video
Haha
Oh my God he's so hot and his hair!
Hope you enjoyed the episode ! Thanks for watching!
I love the strength of this guy
Thanks for your kind words! We really appreciate your support Mahon!
I just love these inspiring stories that this channel has.
My son was born with a form of this disorder but his spine didn't leak fluid. He did have to have corrective surgery when he was a young teenager. If he didn't have it he was facing paralysis and other bad things as well.
Today he is thriving well.
Hope you enjoyed the episode! Thanks for watching!
Shakti Krishnan You are Phenomenal. The Legend. Love you Bhai. ❤️❤️❤️ Peace 🕉️❤️
I agree he is adorable. Such an independent spirit.
Thanks for watching brownsugar price!
Wow he and his mom both have beautiful hair :)
Kyra it’s that Indian hair hehe
he's such a brilliant guy, amazing human being
He sure is coconutx887! Thanks so much for watching, we hope you enjoyed the episode!
Lol his mum behaves like such a typical mum... every thing she says reminds me of my mum
Best attitude video yet!!
Shakti, you’re positive, great attitude and.... handsome guy! My nephew was just diagnosed with SB at his age of 13.
@ Rizman Zahalan oh my, it took that long before he was properly diagnosed.
Aww he's such a handsome young man.
Thanks for your kind words Pria! Thanks for watching ! Hope you enjoyed!
So well filmed. Love this channel
Thanks for your kind words! We really appreciate your support! Thanks for watching, Glad you are enjoying our episodes
Shakti, you are the best. Love your attitude. You do have to stick up for your self and for the next guy too. You could have rallied other wheel chair users and descended on mass on the guy that said you were a healthy and saftey violation. He isn't within the law discriminating against you either.
@ NJSMKMMS He mentioned in th video there were very few wheelchair users at Uni or in the area.
What do adults do? We wish we were kids again so we could restart our lives with all the hindsight that living has given us
Haha At least I do. I wish I could go back and start over. There are no do overs in life though. So make your choices wisely and live to the fullest!
👏👏👏👏 WORDS TO LIVE BY!!!👏👏👏👏💝
I wouldn’t do anything different because even my mistakes got me to where I am today and although it’s not always easy I do love where I am today.
Imagine sleeping with a man and mic over you... A whole recording crew.
He ok'd it being in the video.
Shakti you are SOOO Attractive! You as a person is beautiful and it's obvious that you will achieve everything you set your mind to
He's so funny and attractive! Hope his life goes well💛
Thanks for the kind words! hope you enjoyed the episode!
no hes not
He's cute af
@ grammaton6leric OMG! I can't believe you had the guts to write this! Why on Earth should Shakti be ashamed he is Disabled? YOU! YOU are the one who needs to be ashamed of yourself for writing this about him. There is NEVER any shame in being Disabled. NEVER!
By my March 14th on my birthday I will be out of wheelchair 11 years Spina Bifida was hard live with during my child I fought walk all I wanted was to walk I would walk weeks or few months but end up back on wheelchair. It took lot of surgeries, traveling and doctors to get where I am. I am glad someone like him exist who sees it like I do, Spina Bifida can't stop you from dreaming or picture a future.
Thanks for sharing Briana! he truly is inspiring isn't he and it sound like you are too!
Yeah a little kid going through so much just to walk on their feet it was a lot but in the end it gave me something I fought for to accomplish.
I was born with Spina Bifida as well.
Thanks for sharing Sakura! Hope you enjoyed this episode!
Attitude I did thank you! I was really lucky since I am able to walk:)
Sakura 1009 I was born with spina bifida too I wear leg braces so I could keep my balance but I use my wheelchair when I go to amusement parks and when I have surgery I take medicine for the pain and for my depression and anxiety it's tough dealing with all of that at the same time there are times when I don't want to live sometimes it feels like I'm the only one suffering from all of this
Manda Panda.
Hi! My name is Amanda 😂. I was born with SB too. Do you have a channel?!
My sister was diagnosed with another form of spinal bifida, as an adult she was numb on one side of her body with other symptoms, so eventually she diagnosed with Arnold-Chiari Malformation Type II is also known as "classic" Chiari malformation or Arnold-Chiari malformation which is a form of spinal bifida but its only diagnose in adulthood & most people don't even know they have it b/c most don't have symptoms, only people with symptoms have the problems, my sister has had an operation to remove fluid from her brain but 30 yrs before when my sister was a toddler learning to walk she did have to use special leg braces for a few weeks b/c she was pigeon-toed, which was a sign.
I love this guy, he's brilliant 😊
Hope you enjoyed the episode Shaun! Thanks for watching!😀
I love these videos. How did shakti miss his final exam? Sorry bro, the worst happens to the best of us😅
@Stormrider He read his schedule wrong. I guess he learned to use the calendar in his phone for Uni lol!
I get that mom is trying to toughen him up...but being 17-18 there is a certain number of hours of sleep that age group requires. PLUS he is constantly recovering from surgeries...his body has got to be totally taxed out. Often if you don't recoup it can cause immunity issues and that age group has got to be the worst about cleanliness! I guess I don't get the culture OR I don't get mom's culture. I hope he continues to excel in any of his future endevers. He's a handsome guy and seems to have a great outlook on his future!
I wish Shakti the best!
thankyou for sharing your story
Wow! Amazing video! He's quite an inspiration to youngsters with disability including me who is a paraplegic. I too dream of pursuing my PhD abroad and my fears are same as his were. It gave me quite a glance to what is to come for me; independence, challenges, fun times, new friends, and triumph! God bless you!
Thanks for watching Priyanka, hope you enjoyed!
loved it!!!
He is so damn cute!!! And the hair! He must have so many girls after him. I would be!
God blessé all your efforts and keep it UP. You are really positive and full of energy, I liké it.
Wow, I can see you doing great things in the future. Good luck and God Bless you.
Thank You for your story. I love to be allow into someones world. That miles outside of mine.
Thanks LIGHTOTS, glad you enjoyed the episode!
He needs his own show a real life one not some scrippted one
I completely agree. He is so charasmatic.
Jaii Rela Yes he is
He is very attractive!
@@cbot375 He objectively is lmao. Unless you have a thing against darker skin?
My granddaughter, my oldest one, was born with Spina bifeda, dislocated hips and club feet. She's in her thirties. She's married and has a You Tube channel. She doesn't want me in her life. Her mother and my son divorced. I think she's doing really well. she's married to a man who was in a motorcycle accident; he can't walk, and as far as I know they're happy.
Would she walk plz like to know I have a son with same thing
Shakti...you are such a good looking smart young lad....great future ahead of you!!!!🥰
Yes is very cute
You are amasing just like your mother 😘
So cute
I love his mother, omg
very sweet and cute young man
Gorgeous
beautiful family
Hi I am Laura Dempsey 37 next month I will be 38 I have Spina bifida
And he cute!
Very inspiring and strong personalities - both Shakti and his mother! I wonder where this episode was shot -NZ or AUS? Best wishes from Germany
Thanks for watching Pitan, hope you enjoyed!
Women please don't demonize men, Mothers are so important to us
@ elloitzzxzjjxx and please, don't you group all women together just because you had a bad experience.
Amazing amazing person you my friend are someone I would love to meet you are an inspiring person and its not anything to do w with you disability its your mindset your humility and your kind heart your mum should be so so proud I wish you all the best for your future even though you don't need it you will do great things x
@ Geraldine Owens If it has nothing to do with his Disability, then why did you bring it up? (rhetorical question, no answer required)
brilliant
Thanks for watching Olivia!
He is nice smart he can do enything
he's awesome and i want to be his friend ☺️
Thanks for watching !Hope you enjoyed our channel and keep coming back! 😀
Shakti looks like a true fire bending master
I just came on here because he looks like Floyd " I said STOPPP wait a minute. 😂 lyrics to one of his songs for people that dont know
I am born with lumbo saccral meningomycele...I am 27 now.. really grateful I am almost normal.. married 2 years back and hav a cute baby girl 3 months back and she s completely normal..i still have urinary incontinence but i learnt to manage it.
Thank you for sharing Vaishnavi!
Hey hi , how did you manage your urinary incontinence? It is a big trouble for me .... I have been with my parents all these years so that just makes things a lot easier but I would be moving out in 3-5 months and wonder what would become of me in a new City
Helloo what was ur level of lesion mam?
I have Spina Bifida! and im 17! :D
Thank you for sharing! We hope you enjoyed the episode and got some inspiration!