I’ve never actually met anyone with the same diagnosis/disease. Just me and my “little” brother, who’s 39 now and I’m 45. We were diagnosed and started IVIG around the time I was 12 and he, 6. The fun part is giving your diagnosis and it’s cool spelling when going into the ER or even a new pcp doctor. 😂 Good times I tell ya! Also, FYI: make sure to have regular abdominal scans performed. One thing I didn’t know and hadn’t been told about good ol’ hypogammaglobulinemia is that it can sometimes cause masses/tumors to develop throughout the body. As if the rest of “it” weren’t enough. 🙄 Good times. Good times I tell ya! Really good times over here! /s❤😭
Hey man I can understand it I have it to but it’s a worser variant called transient hypogammaglobulanmia T.H.I for short only two percent of the world has it
I’ve never actually met anyone with the same diagnosis/disease. Just me and my “little” brother, who’s 39 now and I’m 45. We were diagnosed and started IVIG around the time I was 12 and he, 6.
The fun part is giving your diagnosis and it’s cool spelling when going into the ER or even a new pcp doctor. 😂
Good times I tell ya!
Also, FYI: make sure to have regular abdominal scans performed. One thing I didn’t know and hadn’t been told about good ol’ hypogammaglobulinemia is that it can sometimes cause masses/tumors to develop throughout the body. As if the rest of “it” weren’t enough. 🙄
Good times. Good times I tell ya! Really good times over here!
/s❤😭
Hey man I can understand it I have it to but it’s a worser variant called transient hypogammaglobulanmia T.H.I for short only two percent of the world has it
❤ Stay well.