I don't understand why disabled organisations are not taking the government to court for disability discrimination. These organisations have the money to do it. Disabled people are being forced to live on next to nothing and being treated like crap by DWP, this is discrimination
We cant, they changed the laws so yes we can complain about laws brought in and make them back off in some respects but the only way this ends is when the election happens
Some of them are trying to challenge things but the real problem is a lack of public support. They won’t get far without that. Public opinion is incredibly powerful but unfortunately most people seem to want to believe negative things about disability. Things will only change if we have a civil rights movement and I can see that coming in the future.
@@elleskye3521 Reality is we wont see any change unless there is an election. Tories are addicted to beating down on the sick and disabled and wont stop now. The report that stated how the long term sick and disabled will be doing the low pay migrants jobs shows how bare faced these Tories are about the respect they have fir the sick and disabled
They've played dirty with me for 20+ years. With very little support. Full medical history from specialists totally ignored. The kangaroo tribunal has been no different. I can't say any more here as yt will remove my comment, as they do every time?
This is not the first time they have done this. They did this to me during the first lockdown. 2 weeks before the tribunal date I got a call that someone had re-read my case and I was getting my award again. The stress was horrendous.
@@drtydawg73get on to GMAP local money advice or C.A bud get Them to fill your forms they're more aware than us and word things differently bud then you have an org. Behind you for appeal purposes don't throw in the towel it makes it easy for them 🎉😢
I Was on higher rate mobility and had the privilege of being able to get a car through motability... That was until the 2 years was up and despite my condition worsening and medications doubling I was seen as no longer eligible. Appealed it, gave more evidence and had a lengthy phone call only to still be told no and I too am certain they never looked at anything or took any of the newer information into consideration. As a result I've lost the higher rate, lost the car my household relied on and I have left the house maybe a dozen times since March as walking causes just too much physical pain. My next step is to try and go the change of circumstances route and see what I need to do after that... Wish me luck 🤞🤞
I hate to say this, but you done the wrong thing in the first place. You should have saved money and then brought a car, and paid for it yourself. I could have got a car on mobility, I could have got a mobility scooter. However, I saved up and got a mobility scooter. No matter what happens, that mobility scooter is mine and no one can take it from me. I have seen a lot of cases like yours, where they do remove mobility and people have lost their transport. However, good luck fighting them.
@@kittybell4604 the DWP-TURDS....💩-dont care...its orders from above..... its all about getting more money too foot the hotel-bill so the migrants can live like kings....... its no coincidence.....the hotels .. now this is happening since that 💩...sunak got in the driving-seat.... wake up britain.
The DWP relish in destroying lives, I have 2 relatives reliant on PIP and ESA and the system has systematically destroyed them over the years with back-to-back ESA and PIP assessments, every single time has been a mandatory reconsideration and two occasions have been tribunals, they have won each time but every time the cycle starts it damages them even more, I'm so done with it and I'm not the claimant.
It terrifies me when I imagine how so many more people are going to be living in such poverty in this country. How are we going to cope? How are we going to pay our bills? When you are so poorly, then the possibility of getting a job and being able to do a job is impossible. Please everybody, don't vote for this government. it's our only chance to survive in the future.
@SuperMarion61 I think the point the person is making is that there are many who rely on PIP as their only or main income. That's not what it's designed to be and it never was meant to be, but for some people it is.
Is costing the British tax 8 million a week to keep people in hotel's ect and we can't even look after our own disabled or homeless if the British tax payers where paying 8 million a week for our own disabled there would be a out cry
It is against the British people human rights to reduce or change to voucher without it going to the vote of the British people and the government know this The benefits systems are OUR national businesses not their personal property
Can confirm. I filed mandatory reconsideration in January (I had no new assessment!), with new evidence, I clearly stated my symptoms, even a letter from a cardiologist who confirms my symptoms, did tests, has prescribed medication and has diagnosed me but dwp won't increase my points (standard daily living, no mobility). So I've filed for tribunal and after I got all the paperwork from dwp that they hold about me, there's no sign of any of this (symptoms, diagnosis, medication) in anything they've written. Funnily enough, they've used word for word statements from that cardiology letter that supports their narrative that I'm not sick (seriouslyword for word!), yet they haven't taken my diagnosis, prescribed heart medication and symptoms from that very same letter! The fact of the matter is we're not be treated fairly. When I was awarded PIP in 2020 I was awarded standard daily living only based on fibro and chronic fatigue. Now I have postural tachycardia, use crutches and a wheelchair outsidemy home, I have trips and falls and blackout every single day but my points have not changed and no mobility. Its insane Charlie! I asked citizens advice what evidence I can provide if a cardiologist diagnosis and letter isn't enough and she could not believe they didn't take it! She said "that's it, that IS your evidence!" So off we go to tribunal. I'm terrified but I know I deserve it, my life has been flipped upside down since getting these new symptoms.
Go to your local civic centre and ask to see a PIP welfare advocate person before the tribunal explain truthfully your probs do what they tell you to do
@@jobby750what is a civic center? And what does a pip welfare advocate do? I rarely leave my house due to being in a wheelchair, I've been out 6 times in the last 6 months as I rely on my husband taking me as I cannot use the wheelchair independently. My local civic center is 40 miles away, I can't travel that far unfortunately.
@@alexandrasmith7682 the diagnosis is proof I have the symptoms to begin with as the dwp are denying I have symptoms at all. If I've been diagnosed by a medical professional in that particular field, it validates all my symptoms. You've no idea the gaslighting that happened to me by medical professionals before I got the diagnosis, so of course the dwp with deny all of it if it gives them an opportunity to refuse people to meet their targets. Also in the dwps own documentation they sent me as part of the tribunal, under the section detailing my histiry of illnesses, this new illness is missing so they are denying it even exists for me.
@@alexandrasmith7682 diagnosis is proof that symptoms exist. For example you can have leg pain without a broken leg but if your leg is shown to be broken (diagnosed) then that proves your pain. Also, on the information the dwp hold about me, under the section detailing my illnesses and conditions, this diagnosed condition is missing so they're denying it exists for me.
The whole process is not fact based normal people call it lying. My so called Nurse lied to her back teeth and my claim was denied despite having received it for 5 years. Thankfully I reclaimed as I'm in Scotland which no longer goes to Belfast but to Dundee and I was given my PIPS back.
I have had had 3 mandatory reconsiderations and now it's going to a tribunal and the whole process is humiliating to say the least they make you out to be lying but they don't have what you have
I’ve had my MR declined too Charlie….it’s like they don’t even read anything properly on the forms. But I’m going through tribunal and hope I get a better outcome.
Thanks for this update Charlie. You're an absolute star doing this. The cloud of doom is never far away, is it? The familiar feelings of despondency, stress, anxiety & nausea rushed through me as I watched. Living like this is akin to the old cartoons, where there's a one tonne weight, suspended overhead by a fraying rope, ready to drop on you at any second. But oh no, you cant get out of the way, because your body won't let you.
I had a car accident that left me with a damaged spine, severe pain, I was on injections for pain, and suffering from severe migraines daily, including headaches daily, severe pain in my spine daily, and years ago I made an application for DLA, this was before PIP came out, I had to go to a tribunal even though I had medical evidence, but I was in too much pain to go to a tribunal so I did not get any DLA, this was before PIP came out, and even though I was really suffering with severe pain I never did bother again as it was too stressful, as far as I can see the system hasn't really changed since DLA, and the changes over to PIP, we have to fight and some people do not have in them to fight, or are too ill to fight, or don't have the help they need. This is the same for many many people with life-changing illnesses and disabilities who were entitled to DLA, and entitled to PIP, but the system is designed so that the DWP make it hard as possible for sick and disabled to get any extra help on PIP.
exactly we have to fight! The dwp know people won't go to tribunal so they get away with this! I'm fighting, I'm terrified, I'm stressed but I will fight for what's right!
You have very similar condition/circumstances to me but when I applied I got full pip for years and I couldn’t believe how nice and supportive they were. Now they have revoked it for completely bogus reasons and they have even been discriminating on several occasions, and I have to fight at tribunal despite all the evidence I have sent
It’s my understanding that most claims don’t change anyway at MR stage. My husband had no change in December at MR stage and the MR was very good, we appealed and few weeks later had call from DWP decision maker, who was very nice and she awarded enhanced for both ongoing…..she was very knowledgeable in her questions and had definitely read and knew everything about his case. So yes MR often fail people and let’s be honest they hope people just give up at every stage….
I thought Charlie & others would know, barely anyone gets a changed decision at MR stage. That was the reason it was brought in, to stop people going immediately to Appeal. Doesn’t anyone read up on or listen to these things? It’s kind of important 😂
I've been trying for 4 years to get PIP, I rarely leave my house, I'm autistic and have recently had a speech and language assessment, I struggle with forms and the ability to get to appointments, get treatments etc, yet the 3 times I've been declined PIP I've been scored zeros on everything! I struggle to get to my GP so have many undiagnosed conditions and both mental and physical disabilities, no-one will come to my home to help me so I'm stuck! It took 3 years to get a mandatory reassessment for UC as I was on the wrong grading for 3 years that's been sorted out but I struggle to advocate and with the anxiety I have and other medical issues the stress involved is too much for me.
Sorry to bother you but I'm autistic too, I wonder how you accessed speech therapy as an adult. My GP says he can't refer me as an adult. Do you know how you accessed it?
I hope you find someone to represent you in the future and now. It sounds like you have a very difficult time of it all. Communicating this across to the assessors must be an absolute nightmare which no doubt has a detrimental effect on your health. I wish you all the support in the world that you deserve xx
@@sarahgibbons9737@sarahgibbons9737 My ex made a false allegations of harassment against me, the police organised a nurse assessment and from there I got a temporary support worker, it was a Speech and Language Assessment via the criminal system, although thankfully they determined no harassment and no further action needed before I had the assessment. So ironically my ex actually did me a favour by making the false allegations for a change!
Tbh I don't care if they pay me a pittance in pip and ESA, so long as they don't make me be around people when I can't cope with that situation. I'd rather survive off less and they leave me in peace
@@VMM34 I understand. I tried for PIP and had it refused. They do NOT cater for depression/anxiety/depression! I DID get it for a gammy hip. My mental state was also flagged to them. BUT once I got my R Total Hip Replacement it was discontinued!
This very thing happened to me last March, I have a condition which is progressive & permanent. I had never had a problem since I've claimed PiP till last year. I had to go to the tribunal stage but a DWP assessor intervened before the tribunal & corrected the situation. It took 3 months to sort out & it was a terrible experience & made me ill. All I can say is fighting, it's all you can do ❤️ brilliant video thank you.
DWp did a similar thing in 2011/2012 I failed my assesment before I entered the room. As all the people hired by the DWP to carry out the assessments were set a target fail rate. I spent a year and a half going to tribunal which lasted less than 8 mins in my favour. This sounds familiar
@@leonidus336 It's terrible there doing the same thing again DWP employing people not qualified enough. But also set a fail target. There's gonna be tribunals left right and centre
My MS is worsening after 20 years. I now need walking aids, adaptation of my home and cognitive and physical therapy. PIP decided to cut my monthly amount by a third in September 2021. They've now received a demand to reapply. The form didn't arrive and I called PIP to tell them so. By the time I get the form, I'll still be waiting for a reply from my GP and MS clinic to tell them what needs to be reported to PIP. I'm dreading PIP being cut again. I have sleepless nights.
Horrible really, I'm so sorry.🙏 And my ex is in full pip, he's walking, running, partying everything. Because he's a good liar. Horrible system, they support the liars the manipulative people. God help us really
Got plates in my head from a horrific car crash 3 m8s died so you can imagine my injury I lost my hair over the years and the scar goes from one ear over me head to my ear and am loads medication and when I was in my assessment she told lies saying she could not see my scar on my head to back up what I said on the appeal in court I was in the room less than 5 minutes the Dr and judge said you should not be hear were sorry then said I can see the evedence from here meaning he could see my scar and 15 minutes later goes back in and there was my white paper with my turn over and how much back pay but it's ok winning it's how long it takes mine was after COVID had just started 2 year or more thanks on good luck to anyone who has to go through it
When I had my assessment last year they read the medical evidence but the assessor actually put down the opposite of every thing the doctor had written, every question she asked me she wrote down the opposite of what I said, this all came out in the tribunal. There was even another couple waiting to go in as well and after overhearing their conversation I asked what they were there for and they told me the assessor they saw had lied as well which turned out to be the same woman. I bet she still works there to this day
I have been turned down for PIP over and over. I have Ataxia. Ataxia is comparable to MS or MND. Anyway 14 months on, I am unable to post forms etc. BUT now I have a social worker and disability charity who is on the mission to get me PIP.
About posting forms, if you go on the royal mail website you can pay for postage on there and Royal mail will collect it from your house and bring a postage label for free. Its fantastic, I use it all the time. They've usually able to collect the following day.
Years ago I did an assessment by a Dr before computers. The dr sent paperwork to DWP. It was rejected. Someone sat in an office sat and Crossed the Dr's writing on some questions crossed out what Dr wrote and put Disagree. I did get it over turned in the end.
Im sorry to say Charlie, but this has been happening to some of us for years. I have MS, and that is a medical fact. Somehow Iv had three assessments, three mandatory reconsiderations, and two appeals (those I won). The last round over the past 19 months the initial assessment I was given zero, 0, nil pout. I was somehow cured of Multiple Sclerosis of eight years. (If only) I also know that some of those assessment interrogations lie. My baby brother (who has statemented Asperger's and a myriad of other issues, apparently was a polite, talkative and genial chap. According to our Mother his answers were monosyllabic and he turned his chair round and faced the wall after he noticed he wasn't being listened to. (he may have a host of issues that dwarf mine, but he is not blind -.- ) A person I work with mentioned his partner had an epileptic seizure IN the interview, that somehow never got mentioned in the returning paperwork. An aunt for whom complications during spinal surgery have left her partially paralyzed down the left side (they initially thought shed had a stroke) who is still fighting to get the mobility aspect of her PIP. And myself, the last assessment I attended (the one where I was miraculously cured) the assessors laptop crashed about 20 minuets in. Causing the security dongle to fubar an shut down the entire offices' network, I could hear the reception desk complaining that the printer had stopped and her pc was frozen. I never got the requested interview recording as that was corrupted too. Not that having to restart the process doing it all on pen and paper would have been thrilling viewing. So yeh, I have plenty of faith in the actual external appeal as they actually listen and do their jobs (100% success to date personally so far). But everything that precedes that step, no quite the opposite. Then again how is that unexpected when these sub-contracted companies are incentivised to drag the process out as long as possible. apologies for the lengthy rant. tl:dr ATOS/Maximus sucks extra edit: please dont get disheartened, Im sure thats what 'they' want. My aunt (mentioned earlier) loves your channel, I introduced her to it while giving advice from my own experience. So simply put we all need to support one another, and never give up, painful as that can be. Keep up the good fight, and free hugs all round :D
I got my first appointment last Monday, I took a day off, asked my friend to be with me so I had emotional support, I stayed in a hotel the night before so I was close to my friend, so I didn't have the added stress of travelling on the day, met my friend 2 hours before, so I had time to calm myself, and they called but hung up straight away, did the same on the 2nd call attempt. Literally rang a max of 5 seconds. So called them, the call centre couldn't get through to them, but left a message, 3rd call, I managed to answer quick enough, they hung up at 2 seconds! I honestly believe that they did this to try to close peoples claims down. I then called again, and they said we needed to rebook next week. I actually lost the ability to speak, I was thankful my friend was there, because I was a wreck. But that wasted a day off work and my travelling, and worse, risked my friend not to be able to attend with me for the next one, I'm seriously panicked thinking that they might do the same next time.
I've been tribunal for esa once disability once and pip twice last time no money for over a year court took 5 days short of a year nearly killed me, last judge said she was awarding me straight away and couldn't believe I've been to tribunal 3 times for the same thing, just filled out pip update forms and I know they are going to do this shit to me again every time Ive had citizens advice help and still ended up back in court being treated like criminal one time I was taken into a room in the court and strip searched because I'm held together with metal and Covered in scars made me fell like dog shit on their shoes
I’m just seen your video, as I’m going through a mandatory Reconsideration as well and your spot on they are not even reading my notes at all, and this is making a lot of sense and I’m going to have go to a tribunal
My PIP form and UC50 were sent on Saturday. I took pictures of the post office bag to prove posting, Recorded delivery is too expensive , I followed your advice and kept it real tell the truth
Just had my pip review back. They agree with my mobility problems and I scored 10 points. They then said I can plan and follow a journey unaided. I have rheumatoid arthritis in my hands, I also have synovial hypertrophy and no movement in my right thumb at all. They have the hospital letters stating this, their score was zero as apparently I have good pinch and grip. I've asked for a mandatory reconsideration as the results don't make any sense. Some days my feet are so painful and swollen that I can't put any weight on them (pip have seen photographic evidence and x-ray results) but hey apparently that wouldn't be a problem travelling unaided. This whole pip process is so stressful. My doctor has now referred me to mind as I'm struggling to cope with the additional stress it's all causing. I'm now having to repeat the whole process for universal credit. Bloody exhausted but have no choice
I have a third tribunal since I have been on PIP since 2012 in a few days. The last tribunal was in front of the secretary of state at the time and I was successful (2nd time doing this). I suffer with a condition that is permanent and will not improve, it can only get worse, and I also suffer with complex PTSD. My conditions have been assessed and been granted twice through the previous two tribunals, so why am I having to go through the process once again, this is surely discrimination. Something is VERY wrong here.
It took 2 years for me to get a tribunal date for my first pip assessment when I changed from DLA. Only upside is all that money that should have been paid in that wait is backpayed. The system is scandalous and they couldn't care less!
@@jamesbannister8470 I tend to agree... unfortunately 😔 Edit to add.... this is the 2nd appeal. His last one was from DLA to PIP in 2018. I have been in touch with Disability Direct in my area and the person I spoke to said that the courts don't take kindly to overturned decisions, which has now led me to believe they didn't even read the form or the evidence sent. Suppose we'll see when we get to court.
The same happened to me I had over 50 pages of doctor consultants, and specialists, I have major physical and mental health issues, I have over the year my health has declined drastically, if not fibromyalgia, osteoarthritis of the facet joints. Copd, myasthenia gravis, carpal tunnel syndrome, Bipolar disorder along with borderline personality disorder. High blood pressure, IBS urge incontinence and stress incontinence,lower back pain, double vision, blurred vision and the list continues lol Like you I'm in pain 24/7 fatigue total exhaustion. I was denied so I did MR and got denied so I then went for tribunal but before that came up DWP then changed their minds and awarded me back enhanced on both. I think tribunal told them to revisit my paperwork as I had called them out on all the assessment phone basically calling them liars but using this instead saying this statement was also untrue
The same happened to me, I went to Mr and the same person checked her own work again, completely ignored the evidence, how can it be right for the same person to check their own work? Of course they are going to agree with their first decision, the system is a complete joke, I'm now waiting on my tribunal, even this can take up to a year, I'm 5 months waiting now.
I'm currently on DLA (higher rate for both)but have been dreading the change over to PIP for years. I'm 72 and on DLA for 11 years after struggling to get it for years. My problem is that I'm really not fit to fill in any forms. I have the added issue of being phone phobic and having situational mutism. I really need an advocate. I'm physically disabled with mental health issues, including CPTSD, chronically ill with fibromyalgia, CFS and musculoskeletal issues and other conditions, am diagnosed autistic and waiting for an ADHD diagnosis too. I'm immunosuppressed due to having Non Hodgkin's Lymphoma (I've had chemotherapy and 2 years maintenance immunotherapy too but it's only treatable not curable.) I spend most of my time in bed and only go out for medical appointments or rarely to see friends and family. People tell me that I shouldn't worry because they *can't* refuse my PIP claim but I've heard such horror stories. I don't need this hanging over my head.
I recently sent a change of circumstances form off. My health, physical and mental, has deteriorated in the past two years, but the outcome was that I lost. The reasons they gave me for failing, they were either lying, or they didn't read my form.
Can be anyone from a physiotherapist to a dentist! Until they suffer from the pain and anguish people suffer on a day to day basis, especially if what they have isn't curable as in chronic pain for example or fibromyalgia... How can they assess someone with no experience or training in those areas?
My Father went permanently deaf 5 months ago, he had all sorts of test from the hospital, ear injections, more tests and the consultant ent Dr has confirmed my Father's ears are totally dead and a operation will not work. my Father's solicitor did all the paperwork which he specialises in, which Dr's and consultants have confirmed, yet the DWP says my Father's not eligible for pip and informed him to learn sign language he's 69 years old never missed a day of work and has always payed his way, now he needs help the Government as turned its back on him.
Charlie, in ref to my assessment I told them I would be recording it. I was told that only THEY could record it as appropriately people have recorded before and edited /posted to the internet. They told me the reason they have to record is to ensure they have two copies , one sent to me and the other they retain!
I had requested a recorded assessment, plus I recorded it myself, just in case they 'lost' my recording, but they did send me my cd within 5 days, I did get my pip but only standard rate and there's multiple zero points that's should have points, but the manager only goes off the written assessment, they never hear the recording.
@@NothingByHalves I would the work assessment to be much easier than PIP. I didn’t even need to fill out any forms. They just spoke to my GP, asked me a couple of questions and that was it. But then again, that’s just my personal experience. I’ve heard many horror stories regarding work assessments.
PIP is different to that, you must mean ESA, how many don’t get that?! Though there is talk of further down the line people on UC would need to be getting PIP to qualify somehow. That’s bonkers & DWP will never have the IT systems to handle it😮
I've just sent through for getting to higher rate .. which I should have done over 1 and half years ago when my condition deteriorated.. I hope they read it properly
I always assume that the main bulk of my correspondence with the DWP will be skimmed over. So, one thing I would suggest to anyone writing important letters to the DWP or wherever, the first thing on the first page should always be a concise summary of what is in the rest of the letter and on the other pages, and the very last thing on the last page should mention clearly whatever the most important information you are trying to convey is.
I’m sending a mandatory reconsideration off this week for my son, I can honestly say when I got the decision through they clearly did NOT take into account the information written on the form just based their scoring on the f2f - so stressful.
In December I was denied on my assessment and again on the mandatory reconsideration. I then pushed for tribunal and 2 weeks later out of the blue I received a phone call saying they had revisited my case and were awarding me basic daily living allowance. I still don’t believe that was correct either but given that the application process had already pushed me to the brink of suicide I didn’t have any fight left in me to contest it and have accepted that something is better than nothing. PiP is the most degrading, soul destroying and humiliating experience I have ever been through and for the government to say PiP isn’t working because TOO MANY people are receiving it and that procedures need to be toughened up is simply gaslighting at the highest of levels! I can’t even write to my MP about this because she is the Health Secretary and is part of the problem! I am dreading the reassessment.
I got enhanced Daily, but turned down for mobility - I think I should have received standard, but also failed MR, and was told that if I go to tribunal they would look at my entire award again; losing everything is more frightening than not getting the full award, so I've left it for this time. Considering the wealth of our current PM, this system is truly nasty.
What is happening is that they are hoping most people are too ill and afraid to go to tribunal. I should have received full mobility in 2016 based on my assessment, my MR request was denied back then even though I'm certain I would have won at tribunal. The HCP described me as too breathless at rest to attempt a peak flow, while sitting in my wheelchair because I was too breathless to walk.
Yup they obviously didn't read mine. I'm a veteran nhs professional, I know what to say and where. Your information is spot on I tell people to refer to your logs.....ur brilliant
This happened to my mum. We wrote to them and told them They hadn't read claim and wanted to take it to tribunal. We didn't get to go tribunal, they reconsidered.
Happened to me then I applied for tribunal..have waited 2yrars and another 5months waiting for court date.they rang me to tell me why they originally refused me.when i told them i was waiting for tribunal date and was told by the gentleman my appeal was placed in the wrong file and assured me i would be given priority.still waiting for date.i actually(with help)told them i thought my claim had not been read.im ready to give up but dont want to.thank you for your help Charlie xxxx🙏🙏🙏
Well for some reason I was told I could not have a mandatory reconsideration I was told go straight to an appeal. That was last August and the appeal is still waiting!
Charlie I have been on pip for years, last year they halfed my payments I was fighting to get it back but they were having none of it ,I don't understand why, I have trapped nerve in my neck and the discs in my neck are jellyfide and the spinel surgeon said that they can't do anything for me, I have mental health, I also have long covid which I got pneumonia last year and from that I now have copd on top of that basically my lungs are gubbed ,so I sent all the information to pip, I've had to call them again and again to find out if they had taken all this information into consideration and for months I was getting messed around and the last call they said nothing is changing, they said i could take it to a tribunal I told them that isn't right and they don't care, I give up.
Think this is pretty standard practice from DWP. A year ago I went for an MR and had to take it to tribunal. I think they do it to make people give up. The key is DO NOT give up.
Sounds like they are upto something I was meant to have My PIP review in June and have had a letter saying they have extended My PIP award to June 2025.
Misdiagnosed for 30 years,after going through their pip nonsense i phones for a copy of the GP’s letter confirming my symptoms and hospitalisations,a LOCUM Dr sent the letter. 🤷🏼♂️
My renewal has come through this month and I'm scared sick. If they stop the money we're screwed. We bought our own home before I got sick and never recovered and I'm terrified they'll stop mine. I don't have a life, I exist! And they get my PIP back as it pays for my council tax, food and prescriptions! What more do they want? No one will employ me as I can't do much of anything! I used to work in retail and can't afford to pay to retrain and I can't see anyone hiring someone who can't even come into the office.
If all the MRs get declined the wait for a tribunal will be longer, surely the cost will be more for them. They should not stop paying until you have MR or tribunal. People will lose money they rely on for over a year until they get a court date!
I have just had my Mandator Reconsideration refused and considering the amount of Consultants letters backing my claim, like Charlie, my own benefits advisor is absolutely shocked. From talking to the DWP it seems that if they have tried telephoning you twice - which they did today at 09.00 and again at 09.01 - they go ahead and make their decision without consulting with the claimant. Their best advice is to now wait for the letter and lodge an appeal with the DWP at which point a dedicated appeals manager will look at it yet again and then decide if it can in fact be altered or if it will have to go to an appeals court. You honestly could not make this type of red tape bureaucracy up!
I insisted on my assessment being recorded, because my ms brain fog/cognition is so bad, I'd never remember what was said, not surprisingly I did get my award, though just on standard rate, the pip letter had multiple areas marked as zero points, totally contradicting what the recording says and my full medical records say, with a mandatory appeal do I risk losing what I've been awarded already?
The UK has well and truly screwed those of us with "full blown" Ehlers-Danlos Syndrome. NHS staff has barely heard of our condition. Not much can be done to help us deal with pain by throwing pain med prescriptions at us. They refuse to deal with our symptoms or help us get any diagnosis...No diagnosis, no medical input or treatments = NO PROOF as PIP & Tribunal are concerned.. There are a few hypermobility specialists in private practice in London, but even they cannot guarantee that the tribunal will take their letter of findings into account. Fun and games. 🤨🤮
I’m at the tribunal stage-had one over the phone in January as I couldn’t get to the court due to anxiety & lack of transport/support, we got to the judge who said it would be better in person at a closer court (which I could get to & have support with me), that I wouldn’t hear before March. We’re now nearly June & still heard nothing. Beginning to feel forgotten!
No surprise at all . When I got the decline letter I knew the decision maker hadn't read the report properly. It was obvious. There were references to problems that I hadn't even complained about and a dismissive attitude to those I had. So I wrote them a letter in the form of a report on their report, (cheeky, I know), bullet pointing all the areas where I had a grievance and those where I didn't. They state that you have a month to ask for a reconsideration after receiving the letter unless you can prove a good reason for a delay. Watch this, as I suspect they delay sending out their letter of decline to minimise your time to respond. Anyway, I sent my letter to them weeks ago. No response so far.
I am so worried since the pandemic my pip assessment as been put on hold till about 2026 at least that what they said when that comes around how fucking bad is pip going to get i can hardley walk the pain makes me tired and i cant walk far without being off my feet for weeks and a sit down job wont work as i need constant toilet breaks or i wet myself im so worried that there going to try to force me into work
New statistics FROM the Department for Work and Pensions (DWP) show that (PIP) fraud stood at 0% in the financial year ending 2024 so why are we treated like we're all fraudsters
I am a full time carer with disabled son , they have already started this system with carer asessments , local authority, taking away my right to a cash payment to choose , we have a all pay (pre paid card ) . Soul destroying .
I could do with you right now for my parents claim, ive spoken to four different people, 3 dwp 1 surgery advisor, all tell me something different all the while my parents are getting worse.
They have been doing this for Many years since 2017 my auntie got refused for Brain cancer stage 3 . They never looked at her medical evidence. It was a copy and pasted job the reply . She got a cancer charity to support her they said it happens a lot.
I had a review form which We filled in and returned back in Dec No changes to report, normally get a response within 8 weeks from previous reviews It's now June my pip is due to end in July, tried contacting PIP but all they said is It's in the system, Haven't hay written correspondence since sending back the review I'm obviously now stress as noone can tell me what's happening and I'm scared as my PIP is due to end. Why do they have to treat you like a criminal, It's bad enough feeling I'm a burden on family without now worrying that I will now become a financial burden as well. I'm 60 and worked hard most of my life, I feel like I'm becoming an unwanted burden on those around me,
My first PIP assessment got rejected, and had to go for a reconsideration. The assessor who came to my house basically lied in all the responses to my answers, what she wrote was not what I answered, I have Asperger’s and she would not allow my wife to say or help me at what was an already stressful time that’s even worse for me, I was told I’m not allowed to record (Audio only) which means I had no evidence of what I actually said.
Article on line: inews - guy got rejected cos he was being kept alive on dialysis machine & assessors didn't know what dialysis machine was 🥺 he is challenging decision at tribunal hearing & said its mentally draining trying to get what you deserve & are entitled to, pip whistle blowers said they are under intense pressure to hit daily targets & system is set out to fail 😬
I don't understand why disabled organisations are not taking the government to court for disability discrimination. These organisations have the money to do it. Disabled people are being forced to live on next to nothing and being treated like crap by DWP, this is discrimination
We cant, they changed the laws so yes we can complain about laws brought in and make them back off in some respects but the only way this ends is when the election happens
Some of them are trying to challenge things but the real problem is a lack of public support. They won’t get far without that. Public opinion is incredibly powerful but unfortunately most people seem to want to believe negative things about disability.
Things will only change if we have a civil rights movement and I can see that coming in the future.
@@elleskye3521 Reality is we wont see any change unless there is an election. Tories are addicted to beating down on the sick and disabled and wont stop now. The report that stated how the long term sick and disabled will be doing the low pay migrants jobs shows how bare faced these Tories are about the respect they have fir the sick and disabled
Totally agree but remember this it's the Conservative government's doing
@@riazahmed2803 absolutely
DWP NEEDS TO BE REGULATED BY THE COURTS BEFORE THEY ARE ALLOWED TO TAKE ACTION NOT AFTER
Playing dirty now but they are playing with our lives, where is the humanity!
They've played dirty with me for 20+ years. With very little support. Full medical history from specialists totally ignored. The kangaroo tribunal has been no different. I can't say any more here as yt will remove my comment, as they do every time?
I had a funny feeling my 1st reply would be removed by the powers that be. They really do not want or like the truth. Time will tell?
humanity....from non-humans....
that is what you are asking....
So is charging you for help you can get for free from disability organisations.
This is not the first time they have done this. They did this to me during the first lockdown. 2 weeks before the tribunal date I got a call that someone had re-read my case and I was getting my award again. The stress was horrendous.
That’s the goal hoping people just give up 😢
Totally agree
ive been refused twice, im not going through all that again, its far too stressful. so they are winning. i give up.
@@drtydawg73get on to GMAP local money advice or C.A bud get Them to fill your forms they're more aware than us and word things differently bud then you have an org. Behind you for appeal purposes don't throw in the towel it makes it easy for them 🎉😢
i gave up :(
We are in a war for our humanity and dignity law is do no harm!
Seems to me that Charlie is making a nice little packet out of this war. Go to a disability rights organisation and you will get their help for free.
I Was on higher rate mobility and had the privilege of being able to get a car through motability... That was until the 2 years was up and despite my condition worsening and medications doubling I was seen as no longer eligible. Appealed it, gave more evidence and had a lengthy phone call only to still be told no and I too am certain they never looked at anything or took any of the newer information into consideration. As a result I've lost the higher rate, lost the car my household relied on and I have left the house maybe a dozen times since March as walking causes just too much physical pain.
My next step is to try and go the change of circumstances route and see what I need to do after that...
Wish me luck 🤞🤞
Good luck 🤞
I hate to say this, but you done the wrong thing in the first place. You should have saved money and then brought a car, and paid for it yourself. I could have got a car on mobility, I could have got a mobility scooter. However, I saved up and got a mobility scooter. No matter what happens, that mobility scooter is mine and no one can take it from me. I have seen a lot of cases like yours, where they do remove mobility and people have lost their transport. However, good luck fighting them.
I too did this bought my own scooter .. nit tying up my pip which I need for food as I cannot cook and am barely mobile at Al now
@@kittybell4604 the DWP-TURDS....💩-dont care...its orders from above..... its all about getting more money too foot the hotel-bill so the migrants can live like kings....... its no coincidence.....the hotels .. now this is happening since that 💩...sunak got in the driving-seat.... wake up britain.
The DWP relish in destroying lives, I have 2 relatives reliant on PIP and ESA and the system has systematically destroyed them over the years with back-to-back ESA and PIP assessments, every single time has been a mandatory reconsideration and two occasions have been tribunals, they have won each time but every time the cycle starts it damages them even more, I'm so done with it and I'm not the claimant.
I fully understand that its so mentally draining it's unbelievable.
Completely drains you from start to finish.
@@VMM34
Don't do anything to yourself please
Your be okay
@@lamby7796 Thankyou. I've deleted my comment in case it triggers someone. The government is causing so much stress.
Plan ..CULL
@@VMM34
Your welcome gotta stick together.
People should also contact their MPs so they can keep account of what is happening.
My MP is the Health Secretary so they are part of the problem!
MPs do not care
Mps dont want to get involved,they do nothing.You are on your own.
You won’t get anything from your MP they side with the DWP and will only waste your time.
It terrifies me when I imagine how so many more people are going to be living in such poverty in this country. How are we going to cope? How are we going to pay our bills? When you are so poorly, then the possibility of getting a job and being able to do a job is impossible. Please everybody, don't vote for this government. it's our only chance to survive in the future.
You do know PIP is not an out of work disability.? You can be working & still get it/need it, don’t get how many people still don’t get this😮
Will Labour be any better?
@SuperMarion61 I think the point the person is making is that there are many who rely on PIP as their only or main income. That's not what it's designed to be and it never was meant to be, but for some people it is.
All while they are importing more heads to fight over what is left..Going to get really bad
@@SuperMarion61 If you work they will start to consider you fit..Just watch
100%. They've made our lives Sh1*. System by design.
Because they want to stop paying out, and go as quick as possible to “grant’s”!!
Is costing the British tax 8 million a week to keep people in hotel's ect and we can't even look after our own disabled or homeless if the British tax payers where paying 8 million a week for our own disabled there would be a out cry
8 million a week is nothing compared with 39 BILLION that is spent per year on disabled benefits.
Your anger is misplaced.
@@johncooper3392 get your facts right...AIRHEAD.
It is against the British people human rights to reduce or change to voucher without it going to the vote of the British people and the government know this The benefits systems are OUR national businesses not their personal property
Can confirm. I filed mandatory reconsideration in January (I had no new assessment!), with new evidence, I clearly stated my symptoms, even a letter from a cardiologist who confirms my symptoms, did tests, has prescribed medication and has diagnosed me but dwp won't increase my points (standard daily living, no mobility). So I've filed for tribunal and after I got all the paperwork from dwp that they hold about me, there's no sign of any of this (symptoms, diagnosis, medication) in anything they've written. Funnily enough, they've used word for word statements from that cardiology letter that supports their narrative that I'm not sick (seriouslyword for word!), yet they haven't taken my diagnosis, prescribed heart medication and symptoms from that very same letter! The fact of the matter is we're not be treated fairly. When I was awarded PIP in 2020 I was awarded standard daily living only based on fibro and chronic fatigue. Now I have postural tachycardia, use crutches and a wheelchair outsidemy home, I have trips and falls and blackout every single day but my points have not changed and no mobility. Its insane Charlie! I asked citizens advice what evidence I can provide if a cardiologist diagnosis and letter isn't enough and she could not believe they didn't take it! She said "that's it, that IS your evidence!" So off we go to tribunal. I'm terrified but I know I deserve it, my life has been flipped upside down since getting these new symptoms.
Go to your local civic centre and ask to see a PIP welfare advocate person before the tribunal explain truthfully your probs do what they tell you to do
@@jobby750what is a civic center? And what does a pip welfare advocate do? I rarely leave my house due to being in a wheelchair, I've been out 6 times in the last 6 months as I rely on my husband taking me as I cannot use the wheelchair independently. My local civic center is 40 miles away, I can't travel that far unfortunately.
The diagnosis isn't proof ..... What they are looking for is how that diagnosis changes your life
@@alexandrasmith7682 the diagnosis is proof I have the symptoms to begin with as the dwp are denying I have symptoms at all. If I've been diagnosed by a medical professional in that particular field, it validates all my symptoms. You've no idea the gaslighting that happened to me by medical professionals before I got the diagnosis, so of course the dwp with deny all of it if it gives them an opportunity to refuse people to meet their targets. Also in the dwps own documentation they sent me as part of the tribunal, under the section detailing my histiry of illnesses, this new illness is missing so they are denying it even exists for me.
@@alexandrasmith7682 diagnosis is proof that symptoms exist. For example you can have leg pain without a broken leg but if your leg is shown to be broken (diagnosed) then that proves your pain. Also, on the information the dwp hold about me, under the section detailing my illnesses and conditions, this diagnosed condition is missing so they're denying it exists for me.
The whole process is not fact based normal people call it lying. My so called Nurse lied to her back teeth and my claim was denied despite having received it for 5 years. Thankfully I reclaimed as I'm in Scotland which no longer goes to Belfast but to Dundee and I was given my PIPS back.
I have had had 3 mandatory reconsiderations and now it's going to a tribunal and the whole process is humiliating to say the least they make you out to be lying but they don't have what you have
I’ve had my MR declined too Charlie….it’s like they don’t even read anything properly on the forms. But I’m going through tribunal and hope I get a better outcome.
Then we need to get together and fight it. We need to all conplsin and start writing and compaigning to our mp
Thanks for this update Charlie. You're an absolute star doing this. The cloud of doom is never far away, is it? The familiar feelings of despondency, stress, anxiety & nausea rushed through me as I watched. Living like this is akin to the old cartoons, where there's a one tonne weight, suspended overhead by a fraying rope, ready to drop on you at any second. But oh no, you cant get out of the way, because your body won't let you.
I had a car accident that left me with a damaged spine, severe pain, I was on injections for pain, and suffering from severe migraines daily, including headaches daily, severe pain in my spine daily, and years ago I made an application for DLA, this was before PIP came out, I had to go to a tribunal even though I had medical evidence, but I was in too much pain to go to a tribunal so I did not get any DLA, this was before PIP came out, and even though I was really suffering with severe pain I never did bother again as it was too stressful, as far as I can see the system hasn't really changed since DLA, and the changes over to PIP, we have to fight and some people do not have in them to fight, or are too ill to fight, or don't have the help they need. This is the same for many many people with life-changing illnesses and disabilities who were entitled to DLA, and entitled to PIP, but the system is designed so that the DWP make it hard as possible for sick and disabled to get any extra help on PIP.
exactly we have to fight! The dwp know people won't go to tribunal so they get away with this! I'm fighting, I'm terrified, I'm stressed but I will fight for what's right!
You have very similar condition/circumstances to me but when I applied I got full pip for years and I couldn’t believe how nice and supportive they were. Now they have revoked it for completely bogus reasons and they have even been discriminating on several occasions, and I have to fight at tribunal despite all the evidence I have sent
It’s my understanding that most claims don’t change anyway at MR stage.
My husband had no change in December at MR stage and the MR was very good, we appealed and few weeks later had call from DWP decision maker, who was very nice and she awarded enhanced for both ongoing…..she was very knowledgeable in her questions and had definitely read and knew everything about his case. So yes MR often fail people and let’s be honest they hope people just give up at every stage….
I thought Charlie & others would know, barely anyone gets a changed decision at MR stage. That was the reason it was brought in, to stop people going immediately to Appeal. Doesn’t anyone read up on or listen to these things?
It’s kind of important 😂
I've been trying for 4 years to get PIP, I rarely leave my house, I'm autistic and have recently had a speech and language assessment, I struggle with forms and the ability to get to appointments, get treatments etc, yet the 3 times I've been declined PIP I've been scored zeros on everything! I struggle to get to my GP so have many undiagnosed conditions and both mental and physical disabilities, no-one will come to my home to help me so I'm stuck! It took 3 years to get a mandatory reassessment for UC as I was on the wrong grading for 3 years that's been sorted out but I struggle to advocate and with the anxiety I have and other medical issues the stress involved is too much for me.
That's truly disgusting.
Sorry to bother you but I'm autistic too, I wonder how you accessed speech therapy as an adult. My GP says he can't refer me as an adult. Do you know how you accessed it?
Keep going to a tribunal and have someone represent you like a charity that helps with pip tribunals, it's what I had to do for my audhd
I hope you find someone to represent you in the future and now. It sounds like you have a very difficult time of it all. Communicating this across to the assessors must be an absolute nightmare which no doubt has a detrimental effect on your health. I wish you all the support in the world that you deserve xx
@@sarahgibbons9737@sarahgibbons9737 My ex made a false allegations of harassment against me, the police organised a nurse assessment and from there I got a temporary support worker, it was a Speech and Language Assessment via the criminal system, although thankfully they determined no harassment and no further action needed before I had the assessment. So ironically my ex actually did me a favour by making the false allegations for a change!
I heard somewhere that the Disability Benefits are going to undergo a hard crackdown.
They want to pay out LESS to save +++ money!
Tbh I don't care if they pay me a pittance in pip and ESA, so long as they don't make me be around people when I can't cope with that situation. I'd rather survive off less and they leave me in peace
@@VMM34 I understand. I tried for PIP and had it refused. They do NOT cater for depression/anxiety/depression! I DID get it for a gammy hip. My mental state was also flagged to them. BUT once I got my R Total Hip Replacement it was discontinued!
@@therange4033 That's totally not fair on you. I feel so much despair for other people who are struggling with health conditions 😓
yes.. that saved money will go towards footing the hotel bill for the migrants.....thats the truth.
This very thing happened to me last March, I have a condition which is progressive & permanent. I had never had a problem since I've claimed PiP till last year. I had to go to the tribunal stage but a DWP assessor intervened before the tribunal & corrected the situation. It took 3 months to sort out & it was a terrible experience & made me ill. All I can say is fighting, it's all you can do ❤️ brilliant video thank you.
DWp did a similar thing in 2011/2012
I failed my assesment before I entered the room.
As all the people hired by the DWP to carry out the assessments were set a target fail rate.
I spent a year and a half going to tribunal which lasted less than 8 mins in my favour.
This sounds familiar
Same here mate ,the Doctor was horrible and looked at me with disgust as I had done something to him ,Godbless mate all the best 🙏
@@leonidus336
It's terrible there doing the same thing again DWP employing people not qualified enough. But also set a fail target.
There's gonna be tribunals left right and centre
Sounds very familiar to me
@@leonidus336 They are not doctors? They are paid tax payer bonuses to carry out this murder-process.
@@lamby7796 They have most of them stitched up as well.
My MS is worsening after 20 years. I now need walking aids, adaptation of my home and cognitive and physical therapy. PIP decided to cut my monthly amount by a third in September 2021. They've now received a demand to reapply. The form didn't arrive and I called PIP to tell them so. By the time I get the form, I'll still be waiting for a reply from my GP and MS clinic to tell them what needs to be reported to PIP. I'm dreading PIP being cut again. I have sleepless nights.
Horrible really, I'm so sorry.🙏
And my ex is in full pip, he's walking, running, partying everything. Because he's a good liar. Horrible system, they support the liars the manipulative people. God help us really
You should report him on the anonymous tip line asking for him to be checked out
@@markpocklington-zg6qu I will do. Thanks. I can't believe I hadn't thought about that before.
Got plates in my head from a horrific car crash 3 m8s died so you can imagine my injury I lost my hair over the years and the scar goes from one ear over me head to my ear and am loads medication and when I was in my assessment she told lies saying she could not see my scar on my head to back up what I said on the appeal in court I was in the room less than 5 minutes the Dr and judge said you should not be hear were sorry then said I can see the evedence from here meaning he could see my scar and 15 minutes later goes back in and there was my white paper with my turn over and how much back pay but it's ok winning it's how long it takes mine was after COVID had just started 2 year or more thanks on good luck to anyone who has to go through it
They have to turn down so many claims per month in order to hit their targets! I used to work for DWP 🤫!! 🤬
see they lie... to hit targets.... see... an ex-DWP-💩 has told the truth about it...... they dont care about the truth only targets.
When I had my assessment last year they read the medical evidence but the assessor actually put down the opposite of every thing the doctor had written, every question she asked me she wrote down the opposite of what I said, this all came out in the tribunal. There was even another couple waiting to go in as well and after overhearing their conversation I asked what they were there for and they told me the assessor they saw had lied as well which turned out to be the same woman. I bet she still works there to this day
I have been turned down for PIP over and over. I have Ataxia. Ataxia is comparable to MS or MND. Anyway 14 months on, I am unable to post forms etc. BUT now I have a social worker and disability charity who is on the mission to get me PIP.
About posting forms, if you go on the royal mail website you can pay for postage on there and Royal mail will collect it from your house and bring a postage label for free. Its fantastic, I use it all the time. They've usually able to collect the following day.
@@quiet_shy ty
@@quiet_shy ty
Years ago I did an assessment by a Dr before computers. The dr sent paperwork to DWP. It was rejected. Someone sat in an office sat and Crossed the Dr's writing on some questions crossed out what Dr wrote and put Disagree. I did get it over turned in the end.
Always record your face to face assessment. Tell them you are recording, don't ask for permission, just tell them.
Declined? Doesn't that negate the whole _mandatory_ part of mandatory reconsideration?
See my previous comment, they set up MR’s deliberately to make people give up😮
It's all about saving money. This is only the start.
Im sorry to say Charlie, but this has been happening to some of us for years. I have MS, and that is a medical fact. Somehow Iv had three assessments, three mandatory reconsiderations, and two appeals (those I won). The last round over the past 19 months the initial assessment I was given zero, 0, nil pout. I was somehow cured of Multiple Sclerosis of eight years. (If only) I also know that some of those assessment interrogations lie. My baby brother (who has statemented Asperger's and a myriad of other issues, apparently was a polite, talkative and genial chap. According to our Mother his answers were monosyllabic and he turned his chair round and faced the wall after he noticed he wasn't being listened to. (he may have a host of issues that dwarf mine, but he is not blind -.- ) A person I work with mentioned his partner had an epileptic seizure IN the interview, that somehow never got mentioned in the returning paperwork. An aunt for whom complications during spinal surgery have left her partially paralyzed down the left side (they initially thought shed had a stroke) who is still fighting to get the mobility aspect of her PIP.
And myself, the last assessment I attended (the one where I was miraculously cured) the assessors laptop crashed about 20 minuets in. Causing the security dongle to fubar an shut down the entire offices' network, I could hear the reception desk complaining that the printer had stopped and her pc was frozen. I never got the requested interview recording as that was corrupted too. Not that having to restart the process doing it all on pen and paper would have been thrilling viewing. So yeh, I have plenty of faith in the actual external appeal as they actually listen and do their jobs (100% success to date personally so far). But everything that precedes that step, no quite the opposite. Then again how is that unexpected when these sub-contracted companies are incentivised to drag the process out as long as possible.
apologies for the lengthy rant.
tl:dr ATOS/Maximus sucks
extra edit: please dont get disheartened, Im sure thats what 'they' want. My aunt (mentioned earlier) loves your channel, I introduced her to it while giving advice from my own experience. So simply put we all need to support one another, and never give up, painful as that can be. Keep up the good fight, and free hugs all round :D
I got my first appointment last Monday, I took a day off, asked my friend to be with me so I had emotional support, I stayed in a hotel the night before so I was close to my friend, so I didn't have the added stress of travelling on the day, met my friend 2 hours before, so I had time to calm myself, and they called but hung up straight away, did the same on the 2nd call attempt. Literally rang a max of 5 seconds. So called them, the call centre couldn't get through to them, but left a message, 3rd call, I managed to answer quick enough, they hung up at 2 seconds!
I honestly believe that they did this to try to close peoples claims down. I then called again, and they said we needed to rebook next week. I actually lost the ability to speak, I was thankful my friend was there, because I was a wreck. But that wasted a day off work and my travelling, and worse, risked my friend not to be able to attend with me for the next one, I'm seriously panicked thinking that they might do the same next time.
I agree with you. It's just madness and cruelty in the extreme.
I've been tribunal for esa once disability once and pip twice last time no money for over a year court took 5 days short of a year nearly killed me, last judge said she was awarding me straight away and couldn't believe I've been to tribunal 3 times for the same thing, just filled out pip update forms and I know they are going to do this shit to me again every time Ive had citizens advice help and still ended up back in court being treated like criminal one time I was taken into a room in the court and strip searched because I'm held together with metal and Covered in scars made me fell like dog shit on their shoes
I’m just seen your video, as I’m going through a mandatory Reconsideration as well and your spot on they are not even reading my notes at all, and this is making a lot of sense and I’m going to have go to a tribunal
My PIP form and UC50 were sent on Saturday. I took pictures of the post office bag to prove posting, Recorded delivery is too expensive , I followed your advice and kept it real tell the truth
Just had my pip review back. They agree with my mobility problems and I scored 10 points. They then said I can plan and follow a journey unaided. I have rheumatoid arthritis in my hands, I also have synovial hypertrophy and no movement in my right thumb at all. They have the hospital letters stating this, their score was zero as apparently I have good pinch and grip. I've asked for a mandatory reconsideration as the results don't make any sense. Some days my feet are so painful and swollen that I can't put any weight on them (pip have seen photographic evidence and x-ray results) but hey apparently that wouldn't be a problem travelling unaided. This whole pip process is so stressful. My doctor has now referred me to mind as I'm struggling to cope with the additional stress it's all causing. I'm now having to repeat the whole process for universal credit. Bloody exhausted but have no choice
I hear you, similar thing is happening to me 🤔
I have a third tribunal since I have been on PIP since 2012 in a few days. The last tribunal was in front of the secretary of state at the time and I was successful (2nd time doing this). I suffer with a condition that is permanent and will not improve, it can only get worse, and I also suffer with complex PTSD. My conditions have been assessed and been granted twice through the previous two tribunals, so why am I having to go through the process once again, this is surely discrimination. Something is VERY wrong here.
My sons PIP was stopped last November 2023..we did the mandatory reconsideration.. that was denied... we are now STILL waiting for a court date..
It took 2 years for me to get a tribunal date for my first pip assessment when I changed from DLA. Only upside is all that money that should have been paid in that wait is backpayed.
The system is scandalous and they couldn't care less!
@@jamesbannister8470 I tend to agree... unfortunately 😔 Edit to add.... this is the 2nd appeal. His last one was from DLA to PIP in 2018. I have been in touch with Disability Direct in my area and the person I spoke to said that the courts don't take kindly to overturned decisions, which has now led me to believe they didn't even read the form or the evidence sent. Suppose we'll see when we get to court.
The same happened to me I had over 50 pages of doctor consultants, and specialists, I have major physical and mental health issues, I have over the year my health has declined drastically, if not fibromyalgia, osteoarthritis of the facet joints. Copd, myasthenia gravis, carpal tunnel syndrome, Bipolar disorder along with borderline personality disorder. High blood pressure, IBS urge incontinence and stress incontinence,lower back pain, double vision, blurred vision and the list continues lol
Like you I'm in pain 24/7 fatigue total exhaustion. I was denied so I did MR and got denied so I then went for tribunal but before that came up DWP then changed their minds and awarded me back enhanced on both. I think tribunal told them to revisit my paperwork as I had called them out on all the assessment phone basically calling them liars but using this instead saying this statement was also untrue
The same happened to me, I went to Mr and the same person checked her own work again, completely ignored the evidence, how can it be right for the same person to check their own work? Of course they are going to agree with their first decision, the system is a complete joke, I'm now waiting on my tribunal, even this can take up to a year, I'm 5 months waiting now.
I always thought that. Sending it back to the same person is ridiculous
You're not wrong. Its happening to me too with an Overpayment it will be a tribunal next. I cant give in because i know they are wrong.
I'm currently on DLA (higher rate for both)but have been dreading the change over to PIP for years. I'm 72 and on DLA for 11 years after struggling to get it for years.
My problem is that I'm really not fit to fill in any forms. I have the added issue of being phone phobic and having situational mutism. I really need an advocate.
I'm physically disabled with mental health issues, including CPTSD, chronically ill with fibromyalgia, CFS and musculoskeletal issues and other conditions, am diagnosed autistic and waiting for an ADHD diagnosis too. I'm immunosuppressed due to having Non Hodgkin's Lymphoma (I've had chemotherapy and 2 years maintenance immunotherapy too but it's only treatable not curable.) I spend most of my time in bed and only go out for medical appointments or rarely to see friends and family.
People tell me that I shouldn't worry because they *can't* refuse my PIP claim but I've heard such horror stories.
I don't need this hanging over my head.
I honestly don't know if my tribunal is going to be successful but I'm going to try
I recently sent a change of circumstances form off.
My health, physical and mental, has deteriorated in the past two years, but the outcome was that I lost.
The reasons they gave me for failing, they were either lying, or they didn't read my form.
I've never had a mandatory reconsideration accepted (when I worked in that field).
Now CLINICAL DISABILITY A CCESSOR vacancies popping up on job sites
Can be anyone from a physiotherapist to a dentist!
Until they suffer from the pain and anguish people suffer on a day to day basis, especially if what they have isn't curable as in chronic pain for example or fibromyalgia...
How can they assess someone with no experience or training in those areas?
@@Anne-jz8oo Exactly .another excuse to employ clueless middle class farts
My Father went permanently deaf 5 months ago, he had all sorts of test from the hospital, ear injections, more tests and the consultant ent Dr has confirmed my Father's ears are totally dead and a operation will not work. my Father's solicitor did all the paperwork which he specialises in, which Dr's and consultants have confirmed, yet the DWP says my Father's not eligible for pip and informed him to learn sign language he's 69 years old never missed a day of work and has always payed his way, now he needs help the Government as turned its back on him.
Charlie, in ref to my assessment I told them I would be recording it. I was told that only THEY could record it as appropriately people have recorded before and edited /posted to the internet. They told me the reason they have to record is to ensure they have two copies , one sent to me and the other they retain!
I had requested a recorded assessment, plus I recorded it myself, just in case they 'lost' my recording, but they did send me my cd within 5 days, I did get my pip but only standard rate and there's multiple zero points that's should have points, but the manager only goes off the written assessment, they never hear the recording.
There is definitely something going on. I think they are trying to fail everyone and hope that they dont appeal
It's about getting everyone on u,c,
UC doesn't have a disability section though?
@@ajh8156 It has the work capability assessment, which is just as corrupt if not more so.
@@NothingByHalves I would the work assessment to be much easier than PIP. I didn’t even need to fill out any forms. They just spoke to my GP, asked me a couple of questions and that was it. But then again, that’s just my personal experience. I’ve heard many horror stories regarding work assessments.
Pip is separate from UC
PIP is different to that, you must mean ESA, how many don’t get that?! Though there is talk of further down the line people on UC would need to be getting PIP to qualify somehow.
That’s bonkers & DWP will never have the IT systems to handle it😮
I've just sent through for getting to higher rate .. which I should have done over 1 and half years ago when my condition deteriorated..
I hope they read it properly
I always assume that the main bulk of my correspondence with the DWP will be skimmed over. So, one thing I would suggest to anyone writing important letters to the DWP or wherever, the first thing on the first page should always be a concise summary of what is in the rest of the letter and on the other pages, and the very last thing on the last page should mention clearly whatever the most important information you are trying to convey is.
I’m sending a mandatory reconsideration off this week for my son, I can honestly say when I got the decision through they clearly did NOT take into account the information written on the form just based their scoring on the f2f - so stressful.
In December I was denied on my assessment and again on the mandatory reconsideration.
I then pushed for tribunal and 2 weeks later out of the blue I received a phone call saying they had revisited my case and were awarding me basic daily living allowance. I still don’t believe that was correct either but given that the application process had already pushed me to the brink of suicide I didn’t have any fight left in me to contest it and have accepted that something is better than nothing.
PiP is the most degrading, soul destroying and humiliating experience I have ever been through and for the government to say PiP isn’t working because TOO MANY people are receiving it and that procedures need to be toughened up is simply gaslighting at the highest of levels!
I can’t even write to my MP about this because she is the Health Secretary and is part of the problem! I am dreading the reassessment.
It's the same with the change on ehcps. The LA employed people to specifically refuse 20% of ehcp applications.
I got enhanced Daily, but turned down for mobility - I think I should have received standard, but also failed MR, and was told that if I go to tribunal they would look at my entire award again; losing everything is more frightening than not getting the full award, so I've left it for this time.
Considering the wealth of our current PM, this system is truly nasty.
Quite concerning
Good luck always x
What is happening is that they are hoping most people are too ill and afraid to go to tribunal. I should have received full mobility in 2016 based on my assessment, my MR request was denied back then even though I'm certain I would have won at tribunal. The HCP described me as too breathless at rest to attempt a peak flow, while sitting in my wheelchair because I was too breathless to walk.
My claim over the phone was completely manipulated and twisted to what I actually said. Im actually waiting now for my reconsideration decision 🤞🏻
Labour quiet on whether they will implement tory policy on pip
Far too quiet in my opinion,I hope Starmer doesn’t sell these people out.
100%
Lib Dems are pro-fairness- especially towards those who need care. I wish Ed Dave’s could be in power.
Can't help thinking about your last video. Folk have very short memories 🤔. Be careful where you place your trust !
I my case was same as this i went to appeal and was accepted before I even sat down at court. My Mr was in feb 23. My appeal was March 24
Yup they obviously didn't read mine. I'm a veteran nhs professional, I know what to say and where. Your information is spot on I tell people to refer to your logs.....ur brilliant
Sadly this is nothing new 😞
This happened to my mum. We wrote to them and told them They hadn't read claim and wanted to take it to tribunal. We didn't get to go tribunal, they reconsidered.
What an eye opener!!..I'm going to put my diagnosis in BIG writing on the front page ,but my pip assessment isn't due till August 2026.
Happened to me then I applied for tribunal..have waited 2yrars and another 5months waiting for court date.they rang me to tell me why they originally refused me.when i told them i was waiting for tribunal date and was told by the gentleman my appeal was placed in the wrong file and assured me i would be given priority.still waiting for date.i actually(with help)told them i thought my claim had not been read.im ready to give up but dont want to.thank you for your help Charlie xxxx🙏🙏🙏
Well for some reason I was told I could not have a mandatory reconsideration I was told go straight to an appeal. That was last August and the appeal is still waiting!
Did they say why u couldn’t have a mandatory reconsideration?
I'd just like to say thank you for helping us with your videos. 😊
Charlie I have been on pip for years, last year they halfed my payments I was fighting to get it back but they were having none of it ,I don't understand why, I have trapped nerve in my neck and the discs in my neck are jellyfide and the spinel surgeon said that they can't do anything for me, I have mental health, I also have long covid which I got pneumonia last year and from that I now have copd on top of that basically my lungs are gubbed ,so I sent all the information to pip, I've had to call them again and again to find out if they had taken all this information into consideration and for months I was getting messed around and the last call they said nothing is changing, they said i could take it to a tribunal I told them that isn't right and they don't care, I give up.
Think this is pretty standard practice from DWP. A year ago I went for an MR and had to take it to tribunal. I think they do it to make people give up. The key is DO NOT give up.
Sounds like they are upto something I was meant to have My PIP review in June and have had a letter saying they have extended My PIP award to June 2025.
Misdiagnosed for 30 years,after going through their pip nonsense i phones for a copy of the GP’s letter confirming my symptoms and hospitalisations,a LOCUM Dr sent the letter. 🤷🏼♂️
My renewal has come through this month and I'm scared sick. If they stop the money we're screwed. We bought our own home before I got sick and never recovered and I'm terrified they'll stop mine. I don't have a life, I exist! And they get my PIP back as it pays for my council tax, food and prescriptions! What more do they want? No one will employ me as I can't do much of anything! I used to work in retail and can't afford to pay to retrain and I can't see anyone hiring someone who can't even come into the office.
If all the MRs get declined the wait for a tribunal will be longer, surely the cost will be more for them. They should not stop paying until you have MR or tribunal. People will lose money they rely on for over a year until they get a court date!
Its why I won't claim despite how sick I am. There is no point.
I have just had my Mandator Reconsideration refused and considering the amount of Consultants letters backing my claim, like Charlie, my own benefits advisor is absolutely shocked. From talking to the DWP it seems that if they have tried telephoning you twice - which they did today at 09.00 and again at 09.01 - they go ahead and make their decision without consulting with the claimant. Their best advice is to now wait for the letter and lodge an appeal with the DWP at which point a dedicated appeals manager will look at it yet again and then decide if it can in fact be altered or if it will have to go to an appeals court. You honestly could not make this type of red tape bureaucracy up!
I’m dreading going through my renewal in Nov 2026 I think
Same, mine is up around that time too. The bigger worry is that our money gets stopped before that time.
I am waiting for the answer to a Mandetory Reconsideration, and TBH its causing me more stress and issues.
I insisted on my assessment being recorded, because my ms brain fog/cognition is so bad, I'd never remember what was said, not surprisingly I did get my award, though just on standard rate, the pip letter had multiple areas marked as zero points, totally contradicting what the recording says and my full medical records say, with a mandatory appeal do I risk losing what I've been awarded already?
The UK has well and truly screwed those of us with "full blown" Ehlers-Danlos Syndrome. NHS staff has barely heard of our condition. Not much can be done to help us deal with pain by throwing pain med prescriptions at us. They refuse to deal with our symptoms or help us get any diagnosis...No diagnosis, no medical input or treatments = NO PROOF as PIP & Tribunal are concerned.. There are a few hypermobility specialists in private practice in London, but even they cannot guarantee that the tribunal will take their letter of findings into account. Fun and games. 🤨🤮
I’m at the tribunal stage-had one over the phone in January as I couldn’t get to the court due to anxiety & lack of transport/support, we got to the judge who said it would be better in person at a closer court (which I could get to & have support with me), that I wouldn’t hear before March. We’re now nearly June & still heard nothing. Beginning to feel forgotten!
I have this situation myself right now, tribunal ahead, mental health shot..
Waiting for mine to be assessed, terrified. I will literally be in poverty.
No surprise at all . When I got the decline letter I knew the decision maker hadn't read the report properly. It was obvious. There were references to problems that I hadn't even complained about and a dismissive attitude to those I had. So I wrote them a letter in the form of a report on their report, (cheeky, I know), bullet pointing all the areas where I had a grievance and those where I didn't. They state that you have a month to ask for a reconsideration after receiving the letter unless you can prove a good reason for a delay. Watch this, as I suspect they delay sending out their letter of decline to minimise your time to respond. Anyway, I sent my letter to them weeks ago. No response so far.
I am so worried since the pandemic my pip assessment as been put on hold till about 2026 at least that what they said when that comes around how fucking bad is pip going to get i can hardley walk the pain makes me tired and i cant walk far without being off my feet for weeks and a sit down job wont work as i need constant toilet breaks or i wet myself im so worried that there going to try to force me into work
I say it again, PIP is not about you being able to work or not 😮That’s ESA or UC
New statistics FROM the Department for Work and Pensions (DWP) show that (PIP) fraud stood at 0% in the financial year ending 2024 so why are we treated like we're all fraudsters
I am a full time carer with disabled son , they have already started this system with carer asessments , local authority, taking away my right to a cash payment to choose , we have a all pay (pre paid card ) . Soul destroying .
I could do with you right now for my parents claim, ive spoken to four different people, 3 dwp 1 surgery advisor, all tell me something different all the while my parents are getting worse.
They have been doing this for Many years since 2017 my auntie got refused for Brain cancer stage 3 . They never looked at her medical evidence. It was a copy and pasted job the reply . She got a cancer charity to support her they said it happens a lot.
I had a review form which We filled in and returned back in Dec
No changes to report, normally get a response within 8 weeks from previous reviews
It's now June my pip is due to end in July, tried contacting PIP but all they said is It's in the system,
Haven't hay written correspondence since sending back the review
I'm obviously now stress as noone can tell me what's happening and I'm scared as my PIP is due to end.
Why do they have to treat you like a criminal,
It's bad enough feeling I'm a burden on family without now worrying that I will now become a financial burden as well.
I'm 60 and worked hard most of my life, I feel like I'm becoming an unwanted burden on those around me,
My first PIP assessment got rejected, and had to go for a reconsideration. The assessor who came to my house basically lied in all the responses to my answers, what she wrote was not what I answered, I have Asperger’s and she would not allow my wife to say or help me at what was an already stressful time that’s even worse for me,
I was told I’m not allowed to record (Audio only) which means I had no evidence of what I actually said.
It amazes me the number of people (nearly all) who spend nothing of the payment they receive, on the disability they are claiming for.
Article on line: inews - guy got rejected cos he was being kept alive on dialysis machine & assessors didn't know what dialysis machine was 🥺 he is challenging decision at tribunal hearing & said its mentally draining trying to get what you deserve & are entitled to, pip whistle blowers said they are under intense pressure to hit daily targets & system is set out to fail 😬