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Pulmonary Fibrosis & Double Lung Transplant | Andy's Story

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  • čas přidán 1. 08. 2024
  • When Andy was diagnosed with idiopathic pulmonary fibrosis, he felt like his life was over. This rare condition causes scarring inside the lungs, preventing oxygen from reaching the blood. Andy experienced headaches, mobility impairment and was forced to give up the hobbies he loved, like his riding his motorcycle. He was on oxygen and his Penn pulmonologist, Dr. Vivek Ahya, explained that a lung transplant would be the next step for Andy.
    It was also discovered that Andy had aortic regurgitation, a heart condition that, if left untreated, can cause heart failure and is life threatening. In order to qualify for the lung transplant, Andy would first have surgery to repair his aortic valve. Dr. Joseph Bavaria, a cardiac surgeon at Penn, operated and Andy’s determination to diet and exercise helped him qualify as a lung transplant candidate.
    As he waited for the transplant call to come, Andy managed his lung disease and tried to remain active, despite being on oxygen. When the day came, Andy headed to Penn and straight into surgery with Dr. Edward Cantu. The transplant surgery went well, and as Andy recovered he decided he would make the most of the gift of life his donor and care team had given him. Soon after leaving the hospital he bought a bicycle and slowly began riding on the trails around his home. Every day he felt himself getting stronger: less than a year after his transplant surgery, Andy completed a Home to HUP ride, bicycling nearly 39 miles from his home to the Hospital of the University of Pennsylvania.
    Learn more about the Penn Lung Transplant Program: bit.ly/2hWZlzN
    Request an appointment with a lung transplant specialist: bit.ly/2iUEpYp
    Meet Dr. Ahya: bit.ly/2j8CEpN
    Meet Dr. Bavaria: bit.ly/2bivWj5
    Meet Dr. Cantu: bit.ly/2ifXN1u

Komentáře • 61

  • @sueprelozni1011
    @sueprelozni1011 Před 7 lety +4

    Andy is a good friend and a very inspirational person. Excellent video.

  • @mikemikie8312
    @mikemikie8312 Před rokem +2

    Congratulations Andy , I have PF but here in UK they want give you lung replacement op if your my age which is 73 years old ,pray you have a very long healthy life Andy God Bless you .

  • @paulgrimm7842
    @paulgrimm7842 Před 6 lety +19

    I had the same decease and got a double lung transplant . Thanks to my Donor and St Lukes Houston !

  • @agprice6607
    @agprice6607 Před 3 lety +3

    Thank you for this, it's videos like this, and stories like this, that will help me get through this process. I was diagnosed in january of 21.

  • @georgejgilles.3999
    @georgejgilles.3999 Před 5 lety

    Totally inspirational story.

  • @tiki6296
    @tiki6296 Před 6 lety

    Amazing story.

  • @Codysmom29
    @Codysmom29 Před 6 lety +2

    Your such an inspiration to me. Although I don’t have CF, I’m getting back on the waiting list for my double lung transplant due to a rare lung disease I’ve had since I was 15. I’m now 56 and can’t imagine what’s it’s like to really breathe.

    • @zed9616
      @zed9616 Před rokem

      My bestfriend have lung infection, I want to give one of my lung, but can I donor just one of my lung? ☹️

  • @paulwebb8703
    @paulwebb8703 Před 6 lety +6

    My hat off to you sir, such courage! I have 34% of my lungs operational with my first appointment in 4 weeks with the transplant surgeon, nervous is an understatement!

    • @paulgrimm7842
      @paulgrimm7842 Před 6 lety +1

      Paul Webb You can do it! I had a double lung transplant

    • @akrmodz9901
      @akrmodz9901 Před 4 lety

      How r u doing right now man I rlly hope that you got healthy lungs and a successful surgery

    • @zed9616
      @zed9616 Před rokem

      Is it mean you only have 34 percent operation success and you did it?

  • @Data_Nerd12
    @Data_Nerd12 Před 7 lety +4

    @karen Kelly I glad to hear to hear your story, Now that it is 2017 I would love to know how is your husband doing now? I hope he is getting better day after day. Thank you.

  • @honestinsky
    @honestinsky Před 6 lety

    Thank you, A+. New sub : )

  • @HaiLe-lm6bj
    @HaiLe-lm6bj Před 2 lety

    I wish Andy live 99 years old thanks your video.I’m have lung scar too I looking for the good hospital now

  • @stacyspencer4832
    @stacyspencer4832 Před 7 lety +2

    I love the t-shirt! I'm curious where he got it!

    • @Codysmom29
      @Codysmom29 Před 6 lety

      Stacy Spencer I’d like to also know where he got his shirt. I’d like one so one day I too can wear it.

    • @andyvavra5587
      @andyvavra5587 Před 5 lety +1

      ​@@Codysmom29 - I had it made at Custom Ink 1-800-293-4232
      It is listed under project #AndyFinal

    • @andyvavra5587
      @andyvavra5587 Před 5 lety

      I had it made at Custom Ink 1-800-293-4232
      It is listed under project #AndyFinal

  • @messibetter143
    @messibetter143 Před 3 lety

    Any physician out there? Any chances of detecting pf but gone negative prior to lab tests (i.e. sputum)? Thanks much!

  • @Estill.
    @Estill. Před 4 lety +8

    Lost my mom 02-20-2020 to IPF, I wish she could have had a transplant. She was only 57.

    • @abhinav_yadav001
      @abhinav_yadav001 Před 2 lety +1

      How much yeasrs she live after knowing diagnosis.....my mother is also suffering from ipf pls suggest how can I take care of him I'm very dipressed she is only 36 pls help

    • @dc.pentrumesteri4893
      @dc.pentrumesteri4893 Před 2 lety

      @@abhinav_yadav0015,7Years maybe less if other children don't get worse

    • @zed9616
      @zed9616 Před rokem

      My bestfriend is have lung infection too, I wish I can donor one of my lung but we didnt have much money to do operation

  • @elcompamartinez2647
    @elcompamartinez2647 Před 3 lety +4

    SR.HOW ARE YOU DOING NOW? ( MARCH 2021) WITH ALL MY HEART I WISH YOU THE VERY BEST!! I HAVE ILD AND MY TIME FOR LUNG TRANSPLANT IS COMING

  • @jockeyshortz8315
    @jockeyshortz8315 Před 3 lety +2

    I just got rejected for a transplant for various reasons. One reason is I live alone and don't want to permanently burden my family with my care after recovery. Q. Can you live an independent life eventually (3yrs)after transplant or will you need a caregiver 24/7 for the rest of your life?

    • @jamesrich8463
      @jamesrich8463 Před rokem +2

      Your independent after the transplant. Support from friends and family is always going to be a good thing in life no matter what but its moral support as you will be able to take care of yourself.

  • @Pastorjasoncox
    @Pastorjasoncox Před rokem +1

    I have this problem

  • @ronnelrosel6552
    @ronnelrosel6552 Před 3 lety +4

    Im scared i.ve got faborsis in my left lung and got epeyema in the righte lower lobe... and my bg problema i hve no budget for my medical...

  • @paulgrimm7842
    @paulgrimm7842 Před 6 lety

    You’er Lucky . I was in for six months with a second surgery !

  • @britishuntouchables2883
    @britishuntouchables2883 Před rokem +1

    My husband done a chest xray today. The result is mild fibrotic which l don't understand.

  • @ophysics
    @ophysics Před 3 lety

    I was surprised to see he is riding his bike with short sleeves and shorts, Because of the immune suppressants and susceptibility to cancer, I was advised not to have sun exposure. Please comment.

    • @andyvavra5587
      @andyvavra5587 Před 2 lety +1

      I lather up with SPF 100 every time I ride. I also see a Penn Dermatologist every year for skin cancer screening.

    • @paddyschannel217
      @paddyschannel217 Před rokem

      I guess if you wear a full sunscreen block that maybe ok?

    • @paddyschannel217
      @paddyschannel217 Před rokem

      @@andyvavra5587 Hi Andy - great to hear your story and hope you are doing well.
      I need a double transplant myself here in the uk, just need to lose a further 4kg in weight to hit criteria so that I can go on the list.
      Did you suffer any set backs after the surgery?
      Thanks
      Pat.

  • @imveryhungry112
    @imveryhungry112 Před rokem

    So Noone even knows what causes disease? 😢

  • @billsmith007
    @billsmith007 Před rokem

    How long after surgery were you able to take care of your own bathroom needs yourself like wipe your butt?

  • @Jess-wk5jo
    @Jess-wk5jo Před 4 lety

    Can Idiopathic pulmonary fibrosis damaged both of lungs or only one of the lung

    • @abhinav_yadav001
      @abhinav_yadav001 Před 2 lety +1

      Pls help brother how can I take care of my mon she is also suffering from fibrosis

    • @monicabhagnani9090
      @monicabhagnani9090 Před rokem

      @@abhinav_yadav001 hi, how is your son doing? My mother is also a pulmonary fibrosis patient.