My RARE, AGGRESSIVE Lymphoma Story - Michael | The Patient Story
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- čas přidán 9. 07. 2024
- Michael started experiencing major exhaustion and terrible night sweats. After seeing his family pediatrician for blood work, he was referred to a specialist for a bone marrow biopsy. At first, they had no idea what kind of cancer Michael had, but the doctors were preparing him for chemotherapy treatment any way. A few weeks later, Michael was diagnosed with Hepatosplenic T-cell lymphoma, a very rare and aggressive type of non-Hodgkin's lymphoma.
He shares how he underwent a life saving bone marrow transplant, how he's still dealing with graft-versus-host disease (GvHD), and the treatment he is still on.
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #rarecancer #bloodcancer #lymsm #exhaustion #nightsweats #nonhodgkinslymphoma #gvhd
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[Video Chapters]
00:00 Introduction
00:52 My first symptoms
02:43 Undergoing a bone marrow biopsy
03:28 Getting the diagnosis
04:40 My treatment plan
05:15 Undergoing a bone marrow transplant
06:40 Doing radiation and chemotherapy - What helped me with side effects
07:56 I developed graft-versus-host disease
08:58 Living with GvHD
09:30 What treatment I'm on for GvHD
10:13 Survivorship
11:40 My biggest advice
12:16 You should never feel alone!
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The interview has only been edited for clarity. The interview has only been edited for clarity.
How I Found Out I had a RARE Cancer - Michael | Hepatosplenic T-cell Lymphoma | The Patient Story
• My RARE, AGGRESSIVE Ly...
I can’t imagine a doctor telling me not to look something up. I’d be on google asap.
Nothing like a MOM to take care of her child! I hope that you stay in remission and get rid of this cancer. You are very brave! TYFS your story with us.
I work in oncology in Miami and I also specialize in leukemia and lymphoma. I’m praying for you!
My friend had the bone marrow transplant 30 years ago for the same illness and she’s been fine ever since. The recovery was tough, but she slept a lot and ate healthy home made food (soups, salads, meat, fish, fruits..) and it got better🤞. So, now that they have even better treatments, you’ll be fine 🙏🎈❤️
Exhaustion, night sweats and fever are all symptoms of lymphoma. Good luck to you, young man and, hopefully, you are in a permanent remission. God bless. 🎉
Michael, what a strong, brave, smart and wonderful guy you are🫶Sending lots of positive vibes to you and your family❤
9:53 Aww kitty helping him heal. Cats are the best when you are going through health problems.
Good for you, I am a survivor too at 67 .
Having a good mom is truly blessing for those who have unfortunate life. Happy for you and your mother. Keep strong 🥰
What a beautiful, powerful soul you are. You have the wisdom of an 85 year old at 20. That’s rare. I’ve battled the beast twice, and I’m 67. At 19, I hadn’t a card in the world. All the best to you and your loved ones. You’re a giant among men. I hope and pray you’ll beat this and love a long, healthy, and fulfilling life. I have a feeling that you will.
A diagnosis of a very rare cancer makes everything more difficult. My husband was diagnosed with a rare cancer (at the time he was diagnosed there were 51 known cases in the world). Finding the right oncologist with a rare cancer is a challenge. I can't imaging how we would have navigated this without the tools available on the internet. Blessings to you and your mom!
Hi! How did he know he had cancer? What were his symptoms?
I hope he's doing well. ❤
@@lillyrocks2011, he noticed a small, painless lump in his neck while shaving two days before we were leaving on vacation. We decided that if it was still here when we returned he'd have it checked. At first they thought it might be lymphoma of some kind but after surgery and pathology he was diagnosed with Follicular Dendritic Cell Sarcoma. Interestingly enough, four years later when he was at a follow up appointment on the FDCS, he was also diagnosed with Chronic Myeloid Leukemia. He's doing well now!
Prayers for you. I am the mother of 2 boys. They are now 23 and 25. We have had our own struggles as well. I can relate to the bond that you and your mother share. Take care.
Gesundheit und Glück wünsche ich ijnen
Sie sind wirklich ein starker junger Mann und haben eine wunderbare Mutter. Beiden wünsche ich von ganzem Herzen alles Gute.
Michael, I was diagnosed with Grade 2 uterine Cancer and I had a hysterectomy with a Bso and did radiotherapy instead of chemo. Now I'm on a mission to help others. God speed 🙏❤️🙏❤️..
What a brave young man you are. Thank you for sharing your cancer journey with us. Especially, with the young fighters as yourself. You give hope and strength to both patients. Drs and parents with your heart and encouragement
I hope your cured or at least in remission at this post date of 4/22/24
My nephew survived a grueling battle withblymphoma too. It's been a long journey but he's still progressing. You are an amazing soul, thank you for sharing your journey and the wisdom you've gained. Sending you healing hugs 💝
You hit on some very important topics that are not discussed a lot in the cancer space, such as the PTSD, and physical changes. I could not imagine how difficult this must be for you at times. Sending big healing vibes your way, keep up the amazing work of spreading awareness.
Wishing you the very best of luck from England Michael, you're an inspirational young man. Thinking of you and your mum and sending you love.
Your mom is a real cheerleader! Bless her heart. . . and bless yours! This is a trial of trials. I hope and pray that one day all of this will be better.
What a wonderful and well spoken young man and awesome mother!
What a strong, brave, and delightful young man you are Michael. Thank you for sharing your story. Blessings to you and your angel of a mom 🙏
Mosg lmportant quote "Its not easy, going through cancer, its not just going to be over"
Most outsiders (the ones who do not live with a cancer diagnosis) think, they can compare it with a bad cold, which leaves nothing behind unless post viral malaise, if you are unlucky.
A body dealing with cancer and the treatments is no walk in the park, that leaves you with just a memory.
I have seen a lot of videos from doctors here on CZcams explaining how to starve Cancer.I wish you all the best God bless you
My husband was diagnosed in July 2020 with Large B cell lymphoma. It was a rough hall with his chemotherapy 4 days non stop IV’s in and out of the hospital for 4 months lots of hip biopsies, blood transfusion, platelets transfusions because they could never stay up everything that needed replaced was. Lots of trips to the hospital in between to Shadyside hospital in Pittsburgh and the Hillman Cancer research clinic which was supported by Mario Lemieux wing when he had his blood cancer. My husband suffered a relapse after exactly 3 years in remission. Had his appendix removed and are watching his lymph nodes in his lungs. Had 3 months of Chemotherapy again and deemed in remission again in January 2024. You are right exercise is key and lots of prayers. He has bad neuropathy in his hands, feet and legs but he’s alive.
God be with you in your cancer. journey and
Your mum absolutely ADORES you. It's clear for the world to see. You absolutely have to stay well.
Thank you, Michael for sharing your story. Sounds like you really went through some hard times but it looks like you have a good support system. I’m glad you’re cancer free for the past three years and I pray that you will be cancer for the rest of your life. Your still a handsome man and I wish you so much happiness and love in your life! God Bless you always!! 🙏🏻🙏🏻🙏🏻💖💖❤️❤️
Thanks for sharing your story.
You rock 👍🏻😃
Keep fighting brother. You are very lucky because your mom imwas with you in your cancer journey. God is with us always ❤
Thank you so much for this intelligent, informative, caring video that will help so many. I’m so sorry you went through and continue to go through such an ordeal, especially at your age. What you said about how it is once one has had a cancer is so true: physical after-effects of treatments; PTSD; always aware in the back of one’s mind that it can recur or a new primary can develop. I’m a long-time breast cancer survivor much older than your mom, and everything you said here rings true to my experience. I wish you and your mother all the best.
P.S. Seeing how you ate your pizza slice, I knew you aren’t a New Yorker or from New Jersey! We fold. 😂
A handsome, sweet and smart guy.....Stay strong.
Prayer, I lost my mother, and two sisters to cancer. A one older sister is a lung cancer survivor . I'm doing good right now At 67 years old. But Cancer is always in back of my mind. Great mother ❤️ young man. Prayer for strength from our Lord.
Oh bless you and the loss of your mother and sisters to cancer!! ❤️ Prayers you stay healthy!!
And may it stay back there!!❤️
Stay strong
Your honesty about your cancer journey and survivorship is truly inspiring and there are life lessons there for all of us, no matter our situation. You and your mum are a force for good. Thank you for sharing your story Michael.
Thank you Michael for sharing your story, and thank you to this page for featuring Michael’s journey with T cell lymphoma. My father (66 y/o next month) is currently being treated for peripheral T cell lymphoma. Sending prayers & healing energy your way ❤
Your amazing for sharing your story❤❤❤
🙏 ❤️ 🙏
For You
Always & Forever
Congratulations on your successful fight with this cancer. It was a tough road. I wish you health and well-being for your life. Regarding the nausea, a family member started eating only spicy Indian and Chinese foods, which helped during chemotherapy.
Damn you've been through a LOT. Much respect to you and your Mom as you navigate this challenge.
Wow. Youve been through a lot for someone so young. My heart goes out to you ❤❤❤
You are not only brave but full of great character. God bless you with continued good health & cheer.
You can feel and look good and still have cancer. That was my story
My goodness young man. Sending hugs and prayers for healing
That’s such a great story. Thank you for sharing it and spreading hope and strength to others battling cancer. ❤ 🙏 for your continued success and happiness.
Strength and healing to you Michael 😊
Thank you for this post …you are wonderful!
Good on you. Well done. You’re right, it’s never really over. You’ve definitely made me feel better as i sometimes feel bad that i don’t feel more upbeat since my cancer experience. You’re a wise young man. Wish you all the best
We should feel what we feel: upbeat, downbeat - whatever. I, too, am a cancer survivor. As Michael said, cancer leaves a deep mark, physically, emotionally, and mentally. Be well.
Thank you for sharing. You are so wise and helping others is a gift you are giving. ❤❤❤
Prayers for you!!! You are blessed to have a mom like yours!!!
Your team - mom and you - are the one of the most incredible units out there on the internet. I wish you and mom the best of the best. You are amazing.
I'm so happy that you are on remission & you have your wonderful loving mom.
Bless you -- may you thrive.
Your family has been through a lot ❤
God bless you. Love your honesty.
Thanks for sharing your story!!
God bless you. You've been through a tremendous amount of stuff for someone so young. ♥️
this was powerful. thank you for sharing.
I have followed Michael on Instagram since the beginning. You have such a big voice for others going through the same thing.
What a wise young man! God bless your heart! ❤️
Excellent attitude. Prayers and hugs to you and your family.
God Bless you Michael - you’ve been thru so much - - take care
You are a very wise young man. You have acquired more wisdom and grace in your few years than many people have in a lifetime. I can see the love and understanding in the eyes of your mom and you. God bless you and your family as you are a blessing to many. ❤
Wow! I am amazed at your maturity and wisdom at such a young age! Thank you for your openness and candor. Your platform is important, so maybe that is the lesson you have been given. I pray that you continue to get stronger, healthier, and kick cancer's butt!!! And, you've been blessed with an awesome mother!!
You are a strong young man. You have been through so much! It's beautiful to see how strong an advocate your mother is for you. May you have a life of good health from here, my fellow survivor.
Thanks for sharing. You have taken something terrible and handled it with grace. By sharing your struggles you are giving hope to others. Best wishes for future healing!
God Bless you! You are an inspiration!
I am praying for you!!!
What an amazing and inspiring story. Thank you...
You. Are just amazing. But so is your mom. God. Bless you both!!!
♥️♥️♥️♥️♥️
Sending you love and strength .
Wishing you all the best .
And thanking for sharing your experience to help others .
God bless you and your wonderful family❤️
What an inspirational young man you are Michael. I will pray for you and keep watching your content. Bless your mum for being by your side throughout this entire journey - I have 3 adult children whom are my whole world, and would do exactly the same. You are looking very handsome and well especially after everything you’ve been through. Thank you for sharing your story to educate and support other families going through this. I wish you blessings of health & happiness. ❤ Love from Australia.
You are beautiful!🥰 & your mom too! Thank you! 🙏🥰🕊
Michael and mom! That is so cute!
😢. Smart child❤
Keep the positive vibe💕 Wishing you the best , I’m going through my own cancer journey 💕
As a sister cancer survivor, I wish you all the best.
Inspiring story of bravery!!! Good advice, a brisk walk in park can lift depression!!!
May God have you in His grace!
You are a trooper your amazing your strong your brave NOOO YOUR A WARRIOR!!!! May the Lord extend his healing hand on you and draw you unto him self.
God Bless prayers always 🙏🏻❤️
I would not be brave enough to endure gruelling cancer treatment!!!
God bless you 🙏 ❤️
Thank you for sharing your story and detailing your good fortune with finding a donor with stem cells to ensure your future excellent health. Many people will learn from your experience! ❤
If a doctor says don’t Google it or look it up that means you do go look it up lol
You mom seems so nice.
Your strong athletic body is what saved you. Those muscles can come back when your body is totally ready! You are still a handsome, well spoken young man - best wishes that the cutting edge treatment you are receiving gives that wonderful body every bit of help it needs. Thank you for sharing.✌🏾😎🌵Scottsdale, Arizona
This was good.
I'm praying for you Micheal 🙏❤️🙏❤️...
I too was just diagnosed with a very rare aggresive cancer. They say less than 1% of people get it. I think its called primary splenic diffuse large b cell lymphoma non hodgkins w/ bulky disease in all the large tumors that have taken over nearly my entire spleen . Chemo starting next week 😢
Cassandra Callendar, Connecticut, was given chemo against her will. She died tragically!!! Medical treatment should be voluntary!!!
Be careful! A friend of mine was cleared and rang the bell. 3 months later they found cancer in his lungs and he dies two weeks later during the night unexpectedly from a clot.
That’s terrible. But cancer patients don’t need anymore negativity. They know the statistics.
My son got myocardits, and he has PTS and needs therapy. He thinks every little thing on his body is going to give him myocardits again or he has cancer.
🙏🏻🕊
🙏
❤❤❤❤
3:32. Was the diagnosis "Apollo splenic T cell lyphoma" or Hepatosplenic T-cell lymphoma? Never mind. I read the caption.
❤❤
❤ UK ❤
Can someone share his YT channel please?
Did you get the vax? How many ..😰👿. I wish you all the best for your & your mum, you will get through this 🇦🇺🍀🙏🌈
🤍