Tube Feeding How-To

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  • čas přidán 5. 09. 2024

Komentáře • 70

  • @LetsTalkIBD
    @LetsTalkIBD  Před 11 lety +3

    No, I have Crohn's disease which gave me terrible stomach aches when I ate so tube feeding gave me semi-digested food at a slow rate, which helped me gain weight.

  • @carter102
    @carter102 Před 10 lety +9

    I had Crohn's real bad, was going through hell too. Fistulas, strictures, I don't know how I didn't off myself. You been through hell too, worse than me.
    I got real desperate, right before I was suppose to get my first resection. Went to an ND. Did a ton of blood tests, found out I had a lot of food sensitivities, switched to a Paleo type diet. Pretty much no grains, sugar, milk.
    Been 8 years now, fistula is gone, no more Crohn's. No meds either!
    Seriously consider doing a lil bit of reading, saved me from the knife. I went from 120lbs to 180lbs. I started reading Wheat Belly, the book, super info in there. Look up Robb Wolf too, he had Crohn's-Colitis too, seems grains/sugar/dairy is a real problem for us Crohn's people. He beat it too!
    Took me like 10 years to finally figure out what was making me sick. Hope you become inquisitive and take charge of your health!

  • @ponymanr
    @ponymanr Před 8 lety +1

    I had one put in while in the hospital 10 years ago following surgery, and you are correct about not noticing it much while it is in. It was not even that bad having it put in. However, for a young lady like yourself to "throw one down", when it was not a have to situation, just to show your subscribers and others how to do it, is pretty guttsy. If I had to use one, I could do it, but just for a show and tell, I'm not sure......Great video. Wish I could give you 2 thumbs up.

  • @kellyscott7184
    @kellyscott7184 Před 7 lety +1

    I think you are such an amazing role model for anyone especially having to deal with the same medical procedures, medical issues that you show in your videos! 💛 much love!

  • @trappedinside1
    @trappedinside1 Před 10 lety +8

    The double ended tubes (y port) is to be able to administer medication at the same time while feeding.

  • @kalilee18
    @kalilee18 Před 10 lety +1

    For the one with two ends is just so you can administer two different types of liquids. I have seizures and sometimes can't keep down food or medicines for periods of time so I have to tube feed often. One end you can put medicines in and the other can be formula

  • @LetsTalkIBD
    @LetsTalkIBD  Před 11 lety +4

    I did it a few years ago because I was super under weight and this helped me gain weight. Luckily I don't have to do this anymore!

    • @tylerbird1359
      @tylerbird1359 Před rokem

      I have severe Crohn's several surgeries now cause significant adhesions which can't be operated im 6' tall 95 lbs 35 yrs old fearing for my life I am switching back to tpn now but I've had it all the Crohn's has lead to gastroparesis you are an angel my dear thank you for your positive spin on a horrific disease you are a light sent by heaven to help so many I'm praying I can finally gain weight again, but I am around 90 days if I keep losing I won't make it please pray 😭

  • @arisontay2741
    @arisontay2741 Před 10 lety +3

    You are very beautiful 😊💖 I am getting an NG feeding tube soon and watching this made me feel less nervous even though I am getting the tube from the hospital 😷 but I am going to try to be as brave as I can for my own benefit. Thanks for making this video

  • @maggiepaflas5576
    @maggiepaflas5576 Před 8 lety +1

    Omg my name is Maggie and I also have Crohn's! I'm about to start enteral feeding either through a tube or just drinking stuff. Thank you so much for this video! Very helpful!

  • @mayamells3709
    @mayamells3709 Před 8 lety +4

    You are an amazing young lady. God bless you! 😇

  • @michaelknoblock6313
    @michaelknoblock6313 Před 10 lety +1

    Thank you so much for this video. Im starting tube feeding soon and im really uncomfortable and nervous. But this video did help. Thanks

  • @AngelLopez-mx7bl
    @AngelLopez-mx7bl Před 8 lety +1

    Hi Maggie. You're very smart and very brave and your demonstration was very enlightening. Thank you. Maggie, my name is Angel Lopez and I am going through something similar to your problem. I have cancer of the esophagus and it's closing it making difficult to eat solid foods and even liquids if their grainy. Those small bits get stocked in my throat and when coughed them, blood comes out. I already turned in my Advanced Directive and I chose not to get a feeding tube implanted, but I am finding out that going hungry is not very pleasant experience; but I after I saw your presentation I have some doubts about my decision; you did mention that I am the one who is in control and nobody should influence my thoughts about how to die. Maggie, I am certain that you'll regain all faculties and enjoy food with your family as it should be: You're too young!With hope in my heart, I salute you.Angel lopez

  • @irisgutierrez76
    @irisgutierrez76 Před 9 lety

    You're awesome..keep going.. And don't feel bad, there's a lot of people with similar situations... My dad is one of them! And I just admire him soo much.

  • @yingwang9648
    @yingwang9648 Před 3 lety +1

    What a brave angel👍

  • @jaisonappel6590
    @jaisonappel6590 Před 9 lety

    Thank you for making this video!!!I have crohns and i have to get a feeding tube tomorrow. seeing this video made me less scared.

  • @benjaminbobadilla9379
    @benjaminbobadilla9379 Před 5 lety +1

    You are awesome. Your fiance is a lucky man

  • @KL123Moo
    @KL123Moo Před 11 lety

    You are amazing! Thank you for sharing this info with people who need it! Be blessed!

  • @shareenaktar4188
    @shareenaktar4188 Před 8 lety +1

    You are simply the best x

  • @addisonorris4801
    @addisonorris4801 Před 10 lety

    why do you have to have to have a feeding tube you have very good attitude

  • @GeekyChameleon1
    @GeekyChameleon1 Před 9 lety

    My aunt suffered from a burst bowel and had to get a colostomy bag, she was on life support for 6 days :( she's fine now apart from the breast cancer she just got diagnosed with

  • @bananaplease5262
    @bananaplease5262 Před 9 lety +2

    I have a weird question, when you pull a feeding tube out does it leave a stomach acid taste in your mouth or throat?

  • @francineviolette9028
    @francineviolette9028 Před 11 lety

    great video again!!! you are amazing b/c I had feeding tubes and ng tubes and I hate them.... Thanks!!!

  • @Ostomystory
    @Ostomystory Před 11 lety

    You are so brave Maggie! I absolutely HATE NG tubes, which go down like the feeding tube. How many times did it take until you got used to doing this?

  • @auspiciousangles
    @auspiciousangles Před 7 lety +1

    So brave

  • @calichick237
    @calichick237 Před 8 lety +1

    What size tube did you use?

  • @rengelgabriel
    @rengelgabriel Před 9 lety +8

    wow, you're so pretty.

  • @elsakristian5713
    @elsakristian5713 Před 7 lety

    Thank you for a wonderful video

  • @alliemarie5727
    @alliemarie5727 Před 10 lety +3

    I have an extreme fear of vomiting, and my doctor wants me to have an NG tube. I'm seriously freaked.

    • @cianne1488
      @cianne1488 Před 8 lety +1

      Thank you I thought I only felt that way I haven't vomited for at least 3 years it's horrible I'm terrified

    • @ailieanne2617
      @ailieanne2617 Před 3 lety

      my comment is late but when having a ng tube inserted it helps to drink water and swallow the tube down as it is being inserted

  • @Thelifelately
    @Thelifelately Před 10 lety +1

    What would happen if u sneezed while the feeding tube is in?

  • @joahhaldas3558
    @joahhaldas3558 Před 7 lety

    you have inspired me so much I have IBD to an it has only made me stronger. I have an ostomy. I have a question for you, me and my girl friend want to get massages, i want a back massage but can i lay on my stoma

  • @violet101
    @violet101 Před 10 lety

    Is this the same kind of thing they for force feeding someone? Is it pretty much the same except for the fact they hold you down?

  • @MeAndMyStoma
    @MeAndMyStoma Před 11 lety +1

    why do you have to do tube feeding?

  • @dorate100
    @dorate100 Před 5 lety

    I have a g tube have a hard time changing that

  • @juliaworme6397
    @juliaworme6397 Před 9 lety

    hi im leelyn i got one i hate those but i had it since april and i have it gone now

  • @b1lackfeather
    @b1lackfeather Před 11 lety

    Sorry I just deleted my last two comments as for some reason I put them up before watching? But yeah I had the ng tube, instead of overnight tube feeding, which was terrible as I couldn't takd it out at all and I had problems with it. I am very scarred from the whole experience and im sure this video will really help everyone :) xx

  • @joannarichards7981
    @joannarichards7981 Před 7 lety

    do you have to be underweight with crohns to be placed on feeding tubes?

  • @cupcakesndolls6725
    @cupcakesndolls6725 Před 9 lety

    my name is maggie and i have crohnes ddecise. in my asophocus i have to get a feeding tube soon d u have any advice? im elleven and im afraid of gagging on ir.

  • @ashleyl.1981
    @ashleyl.1981 Před 11 lety

    I was going to need to do tube feeding, but then I started gaining weight just in time!!

  • @rev.micheleflythemjenterpr7095

    The sound is very low compare to standard videos.

  • @anneliseives7649
    @anneliseives7649 Před 7 lety

    I keep finding it hard to put my tube in

  • @kimtomlinson2
    @kimtomlinson2 Před 11 lety

    Did you do this to gain weight from an eating disorder?

  • @richardrecupero2960
    @richardrecupero2960 Před 9 lety

    do you normally whistle when you talk or is it your mic?

  • @user-xq9tb9dg6m
    @user-xq9tb9dg6m Před 8 lety +1

    Ok I know what tube feeding is because I am a handicap paralyzed paraplegic from a real bad car wreck in 2002. They had to tube feed me why I was in a 2 month coma mine was into my stomach and I still have the mark it kind of looks like another belly button.
    But with your tube feeding since it was that you need certain stuff couldn't you just drink or eat what you would need wouldn't that be easier for you?

  • @kenziemiller9523
    @kenziemiller9523 Před 8 lety

    do you have a g tube now or no tube at all

  • @jessicapartly48
    @jessicapartly48 Před 9 lety +1

    why do u have a feeding tube

    • @emily5648
      @emily5648 Před 9 lety

      Watch the beginning of the video

  • @MeAndMyStoma
    @MeAndMyStoma Před 11 lety

    Oh! :p hopefully you're doing better!:)

  • @DebbieFBI
    @DebbieFBI Před 8 lety

    you are too adorable!! great vid :)

  • @MissARae899
    @MissARae899 Před 11 lety

    OMG YAY i was waiting for this

  • @rebeccacharlebois5003
    @rebeccacharlebois5003 Před 9 lety

    Omg I have Chrohn's to😳

  • @JustLaraYoutube
    @JustLaraYoutube Před 9 lety

    So u can't eat with your mouth?

    • @maireadbutt7632
      @maireadbutt7632 Před 9 lety

      U can i have one in my stomach i used to have the tube u can still eat

  • @markenyajames4010
    @markenyajames4010 Před 8 lety +1

    i dont see how yall do this its creeping me out just talking bout it

  • @xs4allbeenz
    @xs4allbeenz Před 8 lety +1

    ur cute...but the sound is very distant...any sub-titles with this...

  • @lisakoene
    @lisakoene Před 11 lety

    hey maggie do you atill need a tube now?? xo

  • @Skyrilla
    @Skyrilla Před 11 lety

    Compare to Mos Def's overly dramatic BS. This girl's just boss!

  • @dainamiku
    @dainamiku Před 10 lety

    your really cute thanks for the information

  • @Ma_Beatriz
    @Ma_Beatriz Před 6 lety

    where can I buy the tubes?

    • @pentiummmx2479
      @pentiummmx2479 Před 3 lety

      ebay, or from some medical sites, but some may need a prescription.

  • @mylesgoldsmith6649
    @mylesgoldsmith6649 Před 9 lety

    I have food tube because i have chrones

  • @markenyajames4010
    @markenyajames4010 Před 8 lety

    does it help yu gain weight that way

  • @awnaur0no919
    @awnaur0no919 Před 7 lety +1

    #jpouchswag

  • @Das_baby
    @Das_baby Před 10 lety +2

    ***** I have emetophobia also. I know your struggle. inbox me for details on how to get into my facebook group for support if youd like.