Parkinson's, DBS and Me - Episode 7: A Mother's Story

In episode 7, Jo’s mum talks about what it’s like when your daughter has Parkinson’s. At first, deep brain stimulation sounded scary. But now, she desperately hopes that Jo can have the surgery.
This is Jo’s story. We know Parkinson's affects everyone differently. If you have questions or need support, get in touch with us on 0808 800 0303 or [e-mail].
To find out more about DBS and Me, visit www.parkinsons.org.uk/informa....

[@MaggieG70]

I could feel your pain as a Mother watching her child suffer. It is extremely difficult! Especially when there is nothing you can do to stop the progression. Thank you for sharing your experience so honestly with us. It was extremely touching. 😢

[@sharmainesykes5972]

My mum has Parkinson she has had it for a few years .I can understand how the mother is feeling as I feel the same I can see my mum with good days and bad days and it breaks my heart ❤️ xxxx

[@sueberrill4255]

Oh I completely understand how you feel, being a mother of someone with Parkinson’s is heartbreaking. Mostly the feeling that you want to make it better and you can’t, you just have to be there and it’s hard.

[@genesebelius4466]

Thanks so much for sharing your story ❤️

[@Cruella-Deville]

I can understand telling people . I need control over my diagnosis’s

[@junecricri3782]

I have parkinsons from doctos to family can say things that can be insulting i get alot of " theres people who are in worse health than you " , " at least you can walk " , " just eat this or just do exercise " . Those just some of the comments i get instead of doing their research people just say things without thinking . Like if i see a blind person and ask why cant you see or ask a person without legs and ask why dont you have legs but since i am a conciouse person i dont make such comments . Yes i see many people say sorry but not everyone helps . I feel social isolated , depressed, social anxiety , panic but i have to put on a smile

[@parkinsonsuk]

We're very sorry to hear about this, June. There are many who do not understand Parkinson's, or how it impacts the lives of those who have it. Sometimes that misunderstanding comes out as insensitivity or intolerance - and that is exactly why we are so focused on raising awareness, because with greater understanding comes greater compassion. Should you ever need support or someone to talk to, please do contact our helpline on 0808 800 0303. 💙 - Best wishes, Joy

[@jothornborrow307]

Well done Jo’s mum! I think it’s fair to say despite Parkinson’s being different for everyone, Jo’s journey is incredibly similar to mine and this series has proved hugely helpful for me. Thank you so much to you both and everyone involved. Very importantly, a massive thank you to Parkinson’s UK who really do do a huge amount to support all of us.

[@parkinsonsuk]

@@shahinadavid5939 Thank you for your comment Shahina, best wishes to you and your mother from Parkinson's UK

[@parkinsonsuk]

@@jothornborrow307 Thanks for your kind comment Jo and we're so happy to hear that the series has been helpful for you. All the best, James

[@shahinadavid5939]

Hi dear, If i send you some of the problems we are facing with my mom n the name of med. She is on. I'llbe grateful If you advice some better way to deal with. May God almighty bless you and your team. In Jesus name. Amen.