An MS Patient's story on Mavenclad, as her MS Treatment of choice
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- čas přidán 12. 09. 2024
- Published Date:
05.03.20
When Jen DeTracey decided that she might want to start taking Mavenclad to prevent the progression of my RRMS, there was very little information available from the patient side.
Jen Finally found a Facebook group called Mavenclad for MS. This was her portal to others in the same boat. This group helped Jen to find the information she needed from people who had already gone through or were starting the treatment.
Jen believed as a person living with MS for the past 10 years, that she was very in tune with her body and she wanted to hear how others experienced the drug before committing to the treatment. What type of side effects where they experiencing? What type of emotional roller coaster resulted from their journey? How much did their energy drop?
Since there was so little information from the patience experience side, Jen decided to create videos on CZcams to document the first year of taking Mavenclad. People with MS have really appreciated hearing Jen's experience.
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition.
Thank you for this video, I start with Mavenclad right now, and you give me more answers than doktor, thank you
Thank you for sharing your journey with us ❤ I'm starting Mavenclad next week... I'm scared.. but this last relapse has been horrible, I know I must try another medication to combat this terrible disease 🧠⚡
Thank you for sharing my story and experience. There are so many options these days for different treatments to help prevent the progression of MS. This video is a recaps of my first year after taking Mavenclad. If you want to learn more about my experience with Mavenclad from day one, you can go to the Women Thriving with MS Channel on CZcams and watch the playlist Mavenclad for MS.
Please share the link with your friends and others with MS, who you would like to see this video -- Share on Facebook and other social media of your choice
Just watching this in the time of covid and it kind of makes me laugh the health safety tips. Now everyone is doing all those things!! Thanks for this, I start mavenclad next week and I’m a bit anxious.
Glad you like the viceo Jessica. Glad you can laugh about the safety tips:) How's it going with the treatment so far?
I’m around again a couple months past my second year course. Wanted to see again how you were after your second year cause my lymphocytes have dropped SO low this round, (0.4) I’m just so tired all the time. It’s been tough. I’m hopeful it’ll be up-swinging soon. Thanks for the information
@@jessicagould2861 How re you doing now, Jessica? Do you still taken Mavenclad?
Thank you for the information. I begin Mavenclad on a few weeks!
Jen, your movie is very clear and helpful for my research. I completed Lemtrada treatment last October that did not really help me. I don’t have any active lesions, but my walking got worse. Now my neurologist recommends one of three medicine Ocrevus, Mavenclad, Kasimtra. I have to make my choice. So far I haven’t come to my final decision yet, but looks like I think that the best one in my situation is Mavenclad. Thank you for sharing your experience so detailed.
I just started mavenclad last week...I have a few different choices but found out I have the JC Virus so have to be more careful for PML😒
@@gueritasanchez1987 I
I am currently 20 I got diagnosed at 18. My old neurologist started me on the tecfidera pill for ms and it had a bad reaction to it. Come to find out my JC virus was positive. So I started on ocrevus because most people on it have had success. Unfortunately while on ocrevus I got a new lesion. I’m in the process of switching over to mavenclad but at a stop because of COVID my neurologist doesn’t want to start me on this med if there may be a COVID vaccine in the coming months. I just really hope this medication works.
Now that you have made a decision. How's the treatment that you choose going for you? Jen
@@gueritasanchez1987 How's it going for you on Mavenclad so far? Jen
@@arianacruz7457 now that people on getting vaccinated, have you started Mavenclad? Jen
oh wow, I have been LOOKING for a video = to help me understand about taking Mavenclad. Thank you so so much. I will be starting Mavenclad in about one months time. I so appreciate you sharing = and will continue to touch base. Yes, I too have alot of Anxiety.
Hi Jen, thankyou for sharing your experience with Mavenclad. I am coming out of a relapse at the moment and have been on Tecfidera since Jan 2014. I tested positive to the JC Virus, so... options are limited. To be honest, I'm not only anxious, I'm scared... I think I thought I was invisible... (stable for 23.5 years!) and now, I feel weak and vulnerable. I'm sad and I want to cry...
I appreciate you sharing your journey - thankyou. I have an mri next week and the neurologist wants to retest the JCVirus bloods.
Ah dear. Once upon a time I was just another person with MS, now I "have" MS. Need to deal with that I guess.
Wishing you well on your journey. Take care ❤
Thank you for this info! My son just started mavenclad this year 🙏he has the same areas of lesions as you mentioned and so far he is doing well .
Hi Jen. I am thinking about taking Mavenclad. I noticed your video was posted in May 2020. How is the Mavenclad working for you today?
Thank you so much for info. Start solumedrol on the 1st then Mavenclad there after. You put my mind at ease. Staying offline until I start. Don't need the negative advice or bad experiences. Love your positivity. MS 💪
Steve
I was diagnosed in 2017. I'm now 32. I have been taking the rebif shot for 3years, I'm so overwhelmed these shots are just draining I've been great I'm just Soo tired of shots. My doctor told me about this medication and watching your video just relived my mind I really think I'm going to try it.
Thanks for watching the video. What did you decide to do?
@@WomenThrivingwithMS sorry im late lol. I decided to do Mavenclad after watching your videos. You have helped me take on a new mission in my life. I feel great way better than i did with the rebif shots.
@@daniellewashington7965 Glad to hear you are doing fine. My daughter has completed the 2 year dose for a year now and she feels great. Last MRI showing no new lesions.
We are in Australia and she is Lucky to have a very caring Neurologist.
Starting Monday. Nervous, but usually nervous about all new drugs but lost feeling in upper back and legs. Hope it works. Scary. Thank you again for helping.
Steve
I've been on Ocrevus for 3 years and I'm interested in possibly switching to Mavenclad or Kesimpta.
I been on mavenclad 10 mg since april have moods swings nausea lots of hair loss fatigue anxiety nervousness confusion depression
Lots of hair loss? 😢 After all those months? Do you have bald spots?
I have active SPMS though so Mavenclad might not be an option for me
I have sm maveclad at all was not effective, great disappointment
How are you today Jen?
Good how about you Barbara.
Omg please help me. I’m so torn about this medication
How do you feel today?
@@erikagarza7405 Did you take the medication?
Or call MS lifelines!! They are amazing
Can people with SPMS take this?
Yes I'm on it 😊