Neurologist's Diagnosis: MS Tremors Have Intensified
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- čas přidán 26. 08. 2024
- My appointment with the neurologist revealed the sad news that my tremors have gotten worse 😞 how do you cope with tremors? Do you have any advice?
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Hi Seb. I am sorry your tremors are worsening, I know how upsetting tremors can be. I went through a period of years avoiding people and places because I was so embarrassed by my tremors. Personally, I just dont really care what anyone thinks any longer, however I also found a way to lessen my tremors significantly. I take 80mg of CBD daily and it has made a huge improvement in tremors and in the spasticity that was so painful in my legs. My neurologist is very supportive of this. I tried other meds and they did not work, I also tried cannabis alone but that caused anxiety. The CBD gel caps have very very low levels of thc that do not trigger the anxiety. I do not know where you are located, but I am in the US and many states here allow cannabis use and the CBD products are legal in all states here. You might want to mention it to your neurologist and have a discussion. Whatever you decide to do, I hope that you find some relief.
Hi Seb,sorry to hear about those tremors getting worse. It’s hard to know what to do when either the meds stop working or don’t work at all. From your videos I can see your doing everything you can to stay healthy. I have tremor in my left hand . I find that if my stress level is too high this makes it worse. Unfortunately many of us with anxiety don’t realize how much stress we are under because we live with a chronic illness ,but our bodies know. We live on high alert ,aware of any changes in our condition. It’s hard when we start to lose ground to the illness. All I can suggest is listening to calm music or doing guided meditation. Stay strong Seb.❤
Daily meditation is definitely on my to do list… just gotta find the time for it 😝🧡
I too suffered from Tremors, facial palsy, imbalance, footdrop, severe vertigo , numbness aane spasm. Having winter cherrys and bacopa on a daily basis have helped me to subside the same
🙏🏻🧡
Hey Seb, as a newly diagnosed male Mser 3 years ago your videos are so great. My tremors have gotten worse. I have been coaching youth hockey for 22 years and my legs are terrible.
Thank you for all your information. Keep it up!
You’re most welcome Steve! I’m glad you find my channel informative 🤗🧡
Hi Seb, so sorry the tremors are weighing on you. I will echo what someone else posted, check your B12 levels. I am currently diving into the research and papers on B12 for my next video and it is fascinating how B12 deficiency can mimic MS symptoms and how B12 plays a big role in brain and nerve health.
Wow! That sounds fascinating! I can’t wait to hear you talk about it 🤗🧡
Yes I had bad tremors and I increased B12 and within 4 months I saw improvement
@@angelagarner1904 oh interesting! I learned s much about B12 while researching for this week’s video. So glad it helped you!
That gives me so much hope! 🤩🧡
@EvenSoItIsWell it would be awesome to do a video collab about this topic one day! I have started taking vitamin b and hope to be able to contribute with another positive experience 🙏🏻🧡
Sending all the love brother 🧡
Oh Seb dear you were so happy in your previous videos and that weight that you are feeling I feel it in my heart, right now, when I listen to you.
As you said it's a pill difficult to swallow but if you can don't let that overwhelm you, maybe that will improve. You are a strong person but of course it's ok not to be ok.
I wish I had some tips that work to pass on you.
Always in my prayers sweetie.❤
Thank you so much, dear Liliana 🤗 your kind words really feel soothing. I will trust that they will get better, eventually 🙏🏻🧡
I think you definitely need to look at lessening inflammation in your body. Inflammation we can’t even see, but is causing problems. I would say keep away from dairy, and up your intake of turmeric. I have a potion each morning in my nutribullet of: 1 whole lemon, 2cm cube raw ginger, 1 fresh turmeric root, extra Virgin olive oil, black pepper and Manuka honey. I blend it up, then sieve it into a jug so it’s smooth. It has helped a lot of my symptoms xxx
Sounds delicious too! 😋🧡
You are so valiant and bring hope to so many. ❤
🤗🧡
Hi - I do not have MS, but I have Essential Tremor. I've had it since I was in elementary school. As I reached my 40's they picked up speed and I do shake a lot more now than I ever have. Any med's they gave me to try and lessen the tremors only made me unable to stay awake. I do know that when I drink red wine, the tremors lessen substantially. I don't drink red wine continuously throughout the day, but if I am going somewhere or meeting up with people, etc., and want the tremors to be less noticeable, I take a quick 6 oz of red wine and tremors diminish and I feel better! lol
Interesting! I do find relief from red wine, but of course I don’t want to do overdo it 🙏🏻🧡
Hi, the tremors were driving me mad. Am now going to have deep brain stimulation surgery. Hopefully this will help.
Hey there, how interesting. Let us know if they help! 🙏🏻🧡
Honestly, I wish my tremors were as calm as yours. Mine are so bad, it looks like I'm shooing away flies.
Aww 😞🧡
you may luck out...tremors come and go..start with oc therapist asap or when convenient...you seem to have a slow moving case..trust you have a solid solid support system...essential
🙏🏻🧡
I'm so sorry you're experiencing this. I'm hearing more and more about the benefits of a carnivore diet for MS and other autoimmune conditions. Look up Dr. Anthony Chaffee, Dr. Paul Mason, and Dr. Shawn Baker. You might also be interested in a talk by Mikhaila Peterson (right here on CZcams) called "Don't Eat That" about how she overcame rheumatoid arthritis and other health issues with a carnivore diet.
Interesting! I’ll check that out, thanks! 🙏🏻🧡
I read some time ago that it is suspected that MS is related to leaky gut syndrome, and that when that is addressed, MS improves. Please research this if you haven't already. Additionally, it is stated that colostrum has an enormous affect on leaky gut, and this supplement is easily obtained. The B vitamin complex along with minerals affect the transfer of electrical impulses in the body, and are known to stabilize overactive neurological impulses. I don't know what you take now, so I am only sharing information that may be old news for you. Best to you.
Thanks for the input! I will look into it 🙏🏻🧡
Hi Seb. I think you have tried CBD but certainly worth a try if you haven't. Blessings and strength to you my friend!
CBD is indeed a godsend! 🙏🏻🧡
Hi Seb, so sorry to hear how your tremours are worsening. Have u heard of bio resonance, it's worth finding a practitioner where you live. It's amazing how it's helped me with many auto immune problems. Hope you can manage to see if this can help. X
I will look into it! Thanks for the tip 🤗🧡
I have tremors too. I’m always spilling coffee, food, water and wine and putting the soiled clothes in the washing machine. I tried CBD oil two weeks ago. No effect. Tried half CBD half THC oil last week. No effect other than feeling stoned. If anything it made my tremor worse. I’m seeing my neurologist early November and a palliative care doctor in two months. I’m hoping one of then can prescribe baclofen or a benzo to try. If they don’t work I guess it’s drinking through a straw and someone cutting my food up for me 😞
Let’s hope the meds do work! Unfortunately what works for some doesn’t work for others 🤷🏼🧡
I'm sorry about your tremors. I hope your doctors can help.
@NYNC88 🙏🏻🧡
My neurologist has referred me for Botox late February. Hopefully that helps. She did there are surgical options too. Deep brain stimulation?
I am so sorry this is happening to you. As you know, I too have tremors but it appears mine aren't as bad as yours. Thinking of you and sending positive thoughts your way.
Thanks Erny 🙏🏻🧡
Hello. In order for me to be able to do certain training exercises, I use velcro straps to calm my legs and hands. Or to lie still on a bench. Ties me up so I can do the move. Boring. But I have been able to continue training. And I think that is a big reason why I still feel as well as I do. Otherwise, it's warmth that calms me down. Supplement with magnesium. Alcohol should not be recommended, but the body will certainly be calmer. But I never drink alcohol just for that. Have a good time, Ulf
❤
Thanks for the great tips, dear Ulf 🤗🧡
Chest spams have become a huge problem for me. When something new starts and picks up very slowly over months I ask myself if it is really happening. I see my neurologist in less than a month and this will be a big talking point. A couple weeks ago during an near 24 episode I had an ekg and sure enough they happened but were not picked up as heart.
😔🧡
Hi Bro, have you tried a special strict diet that can heal the nervous system. There is a doctor on youtube who's MS was final stage, she was in a wheel chair for many years with a short life expectancy and she healed herself and went beyond any doctors expectations. She can now walk and run, it seemed impossible but her medical background helped her. She talks about how to heal the nervous system. I had health issues which were Chronic and I healed it through diet and cutting out literally sugar and all sorts of junk food, including cereals, breads, pastas. Lived on water, meat, fats, fish and chicken with raw fod and lyons main mushroom. Bro try it, I am telling you, you can heal it but you must commit. The problem with many people today is they will not give up their junk food.
So sorry to hear it's progressing! Is there anything that makes your tremors worse? Like stressful or anxious situations or new environments or is it consistently same level 24/7? Does it settle when your relaxed watching tv? I'm only asking because I have tremors in my left hand that have gotten worse and I'm trying to work out what's going on with mine too.
I would really love to speak to you one of these days.
Feel free to ask here 🙏🏻🧡
@@LifeofSebMS CZcams wont allow it
Hi, sorry its getting worse. When i was being diagnosed they also found an orange size brain tumor. So after brain surgery my termers got worse, especially internal ones, ive been taken cbg cbd and its helped me.
Thanks for sharing 🙏🏻🧡
Hi again: Dr Boster from Ohio CZcams has info on tremors.. hope this can help🙋♀️
Thanks for the tip, I’ll check it out 😉🧡
Hope those remylinations pills work when they come out. Still looking into those myself.
Hi there! Maybe you could try the medication again? Medicine can effect us differently at different points of time depending on our body chemistry. Say it’s been a year or 2 ago when you last tried it and now if you try it again maybe it’ll be beneficial for you. Just a thought. I hope things improve for you. 😊
That’s definitely worth considering! Thanks for sharing this tip 🙏🏻🧡
Thanks for sharing ❤
Maybe you can try wearing a heavy arm band. This didn't help me but maybe it could work on you 😊
It does help but unfortunately only minimally… it’s not worth the bulkiness and questions! 😔🧡
Hi Seb- we always fret us MS' ers when these appointments come up. It's stressful to say the least. Even though tremors are ailing you I know by your great videos you will continue to persevere:) I love your yoga, mental health & Whal's food video's the best! We continue on the best way we know how!! love from Colo P.S. Have you tried this Wahl's smoothie: chopped up parsley, green grapes & a lemon! Yummo
Thanks for the support, Colo 🤗 and I love that you mentioned that smoothie: my garden is full of grapes and lemons and I didn’t know how to use them, but now I do! Have a wonderful day 🥰🧡
Hi seb did u ever think of hsct maybe u had it and I missed your report on it. Hopefully this symptom will go into remission for u. My neurologist in the public health system has prescribed kesimpta for me. Its a war this disease. Battles along the way!
I’m not quite there yet! 🙏🏻🧡
Do you have internal vibrations and internal tremors as well as tremors of the head? Because I have them myself
Would ampyra and potassium tablets help?
Have beta blockers absolutely no affect on you?
Are you used while chair 💺..
Maybe a wrist weight to help reduce the severity and stabilize
It does make it a bit better 🙏🏻🧡
Pues yo te voy a decir como me dicen aquí en México
Para atrás ni para tomar vuelo que le hables a tu Enfermedady le digas que no quieres que esté en tu cuerpo haz ejercicio toma el aceite CBD
Si eso me lo solucionara… 😕🧡
I have a hand musle twitching 24/7 it was als ....or bfs ...
Sit on my hands, ha. That's the only cure for me.
still following wahl's?
I am 💪🏻🧡
me too.. not seeing miracle, but my gait has improved (not perfect, but less 'drunk') and i seem to have much better mornings with more energy. biggest issue for me, is that food prep takes alot more planning. @@LifeofSebMS
I'm fairly new to your channel and have only watched a handful of your content. Just wondering if you've looked into Dr Brooke Goldner's protocols? She has her own YT channel and has previously mentioned about some of her MS patients showing improvements.
Hey, thanks for the tip! No, I was not aware of that, but I will look into it 🙏🏻🧡
🙏🙏🙏
❤❤❤❤❤❤❤
🤗🧡
I'm sticking do dr wahls , u can do it stick w it, hugs 🫂
Thanks for the encouragement ☺️🧡