Clinical Trials in Cancer: Patient Shares Decision-Making Process | Rich’s Story (4 of 5)

Rich B. shares how he learned of clinical trials for his advanced melanoma and walks us through what got him to his final decision of whether to join a clinical trial as his firstline treatment.
Thank you, Rich, for sharing your story.
In this Series: Our 5-part series with Rich covers his entire Melanoma cancer experience:
1) My Melanoma First Symptoms & Tests → • Cancer Patient Story: ...
2) The Surgery & Melanoma Staging → • Melanoma Stages: Befor...
3) Treatment Decisions & Importance of Self-Advocacy → • Cancer Patient Story: ...
4) Deciding Whether to Join a Clinical Trial → This Video
5) Melanoma Treatment: Immunotherapy → • Melanoma Patient Story...
Full story & transcript → www.thepatientstory.com/cance...
The interview has only been edited for clarity.
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Website : www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
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Contents of the Video:
00:00 intro
01:26 - What were your first thoughts about clinical trials?
02:57 - Top considerations in making a decision about a clinical trial
04:46 - Describe the onboarding process onto a clinical trial
06:39 - Did you read everything in the pre clinical trial paperwork?
07:50 - Weighing the pros and cons of being part of a clinical trial
09:08 - Determining logistics and whats covered in a clinical trial
11:33 - Randomized into the control arm : no clinical study trial drug
13:01 - weighing the impact of side effects on quality of life
14:28 - Opting out of the clinical trial
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#thepatientstory #melanoma #skincancer #patientstories #cancerstories #cancerpatient #cancersurvivor #patientadvocacy #treatmentdecisions

[@130crowd]

This is an excellent program. This patient is informed and eloquent, and essentially defuses this process for the rest of us. Cancer is a terrorist, destroying some of us and traumatizing the rest. Rich shows us the roadmap.
Watch all of this 4-part series.
Very well done.

[@anoodono1841]

Agree he is so powerful n informed

[@lreppy10]

This is a great series! So many helpful ideas. I was wondering, in the clinical trials, do they discuss risks for any possible harms other than additional side effects?

[@ThePatientStory]

Thank you for your kind note! I would speak with professional clinical trial staff on this but in general, there’s a lot of attention paid to impacts to patients in trials… and a lot of paperwork! High level, most important is to ask questions and ensure you are getting the answers you deserve.