My Son Has Tourette's Syndrome
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- čas přidán 29. 05. 2023
- A little out of our wheel house for videos but, it is May 15th thru June 15th and it is Tourette's Syndrome Awareness month. My son is a grown man now and a father, he has a few things to say. We just want to tell you a few things you may not know, and if you would like to talk, please let us know. It can turn your world upside down, but don't fear it, you can do it.
- Jak na to + styl
He may have a disability but in my eyes he is a human being and a great father to his kids and glad you are standing behind on this
He is an amazing man, with a good job and family. He handles a lot.
Wonderful video. Your son is an incredibly handsome and well articulated young man. There needs to be more money put to studying, helping people with this. So much of our taxes are horrifically wasted and abused.
Your son is a strong young man. Love your grandsons. Love them they grow fast. Thank you for sharing. Take care💕🌸🇺🇸
Just came upon this video. And loved that you and your son took the time to sit down and discuss this.
I am from one of those families where we were taught everyone is different in some way but different isn't bad.
Anyway the comment I wanted to make is....
I am 60 but have a sister 16 years younger. When she was in college my home was the closest to her so I ran to visit often and invited her and friends for home cooked meals
Anyway there was a young man in her dorm that had turettes name Ryan (if I remember correctly) super nice guy. But the thing is no one in the dorm treated him any different than any other student. And I never thought much about it till the day I saw a parent ( A PARENT FOR CHRIST SAKE) snub him and then start laughing with her friend. I didn't understand then how someone could be so cruel...heck I still don't understand it.
But I looked at this young man and said "I am sorry for the stupidity of others". And his comment made me hurt more than that woman's words. He said "I am used to it I have had to listen to those kind of things all my life".
Please keep educating people about this and hopefully no person will ever have to get used to mean comments.
Thank you for letting me post this. It has been 23 years and can still bring me to tears
A close group of friends is very important to children with TS. You teach them, they teach others. Those grown women will reap what they sow!
Hi I just found y'all on Mama V's channel! I had an assistant manager at Walmart
who I'm pretty sure had Tourette's.He was a wonderful boss ! He took up for me when a customer was angry at me at the checkouts
I’m sure as an adult with TS he definitely stood up for everyone. Least my son does.
@@ORourkesLittlefield that's so awesome! I had Scoliosis as a young teen and wore a brace but ended up needing surgery. Back then they put patients in a full body cast after surgery. Kids can be mean and I was bullied at school so I taught my two sons that it's never okay to treat people that way
thx for bringing up this topic knowledge is everything I have a few disabilities and Tourettes is one of them ~ it's mild but yeah I was always bullied and laughed at it's really hard..... 50 some odd years later & I'm still getting laughed at 🙄😞😢 your son is a strong man and a great father your grandsons are so cute.... I have an 8 yr old grandson 💕🙂 that's on the low end of the spectrum so I'm watching everything everybody does around him.... how they act & treat him and I have been known to jump down people's throats in a heartbeat 😉
Speak up every time, if you can teach just one person about TS it is good thing. Knowledge is power.
Good for you
What a great Mom you are! And he seems like such a gentle spirit. So glad this topic is being discussed seriously instead of the usual "swear word" disease people usually associate it with
That is the steric type we hope to get stopped. Only 20% of people with TS have verbal aspect of disorder.
Thank you both so much for sharing!! 🥰. I was also blessed with a child with issues. Thank you so much for sharing your experiences. ❤️❤️❤️
Power to the mothers
Great to meet you Reese
Jayme you are such a great mom and champion for them and those who cannot defend themselves like animals. You would have been a fabulous educator in our school systems or college.
Thank you for watching lol. I promise I won’t play my dulcimer again lol.
Beautiful family Jayme
I was my son’s biggest advocate! They learn differently! Bless our kids regardless of their age!!
I found the hardest part of the whole thing is getting him to advocate for himself. He does better now! And is ready to deal with what comes his way.
What a wonderful young man. And you are a loving mother. That is what I see. Tourette’s is not what defines him. You have been his advocate and biggest supporter. And it shows in the man he is. Blessings to y’all.❤
Thank you, he is pretty wonderful
Nice young man and he is doing fine because of you and his dad 🙂
THAT was a WICKED AWESOME Video SIS (and BRO).... I (brett) had an autistic brother... so many people don't understand what THAT means! We GET THIS!!! :> Thank YOU for sharing this in such a "short and sweet" way! :>
It’s a big un.understanding world brother
As a parent with a daughter on the autism spectrum I feel for you on the education system. My daughter had no problems in elementary but when she got to junior High it was a constant fight to get her the help she needed. I used to tell them I wasn't busy and would bring my lunch and spend the day to make sure they followed her IEP. It was a long road but she graduated with her classmates on time and we are so proud of her
Yes going to school to fight for their needs is a constant sadly.
Recently found your channel and I'm so glad I did! This was such a great video. I appreciate you and your son taking the time to help others undersrand what it was like for him. I love that you were so actively involved in making sure he got the education he deserved. He seems like such a remarkable man with a lot of strength and courage. Thanks so much for sharing! ❤
Reece, God bless you! Always good to get a second, third, and, if necessary, seventh opinion. God bless you, for sticking by your child! Your grand kids are beautiful!
I totally completely understand. Had since i was 5. Currently 59. Very hard and rough to live and deal with.
If we could only convince the kids they will grow up, and look back and see life is great, you can function and especially teach them how to advocate for themselves, that’s the power they all need.
Thank you for bring this to light.
An excellent video. Thank you for sharing your story
I hope your well
You are a wonderful parent!!
I got diagnosed at 38. Crazy life. Nice video here TY
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Very informative. My grandson is high functioning Autistic. Very smart but has his strange things too. He doesn't want to be touched. Etc... Your sons issues are need to be brought to peoples attention! Just like other disabilities! Thank you for bring this out to help others!
Sensory issues are real, my husband can’t stand a coat on his arms. Certain textures drive them nuts. Just miss firing chemicals in the brain. I see autistic kids that nature at 21 not 16, all in due time on issues to each his own drum beat!
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Wonderful video, didn't remember what this was called. Thank you for sharing this knowledge, I'm sure it will help someone out there.
I’m so happy you both did this video! ❤
I forgot my notes, I don’t think we explain how the disorder works lol
JAYME THANK YOU VERY INFORMATIVE MORE PEOPLE NEED TO HEAR THIS PRATERS FOR YOU AND YOURS I ENJOYED MEETING YOU AT THE MEETUP
Wow. Thanks for sharing that amazing personal story. I learned alot. I taught high school in the late mid 70s early 80s and never was informed of znd special needs
Hey guys just came over to sub from MT Homestead LIVE. I stayed and watched this video and wow - - so informative! Thank you so much for sharing and being so vulnerable... I feel like I have a new understanding and awareness. You're a really lovely mother/son. Have the best of Sundays!
Thank you My Wild Holm. We love Mike and Terri. Tourette’s is a tough one, we hope to help someone!
@@ORourkesLittlefield Great job!
Hey, great video! I have TS as well and grew up in AR. It's good to see that y'all were able to get a diagnosis fairly early and accommodations to follow. We went all the way to children's hospital in Little Rock and they just always told my parents I would grow out of it. Well here I am 32 and still ticing lol. I was finally able to get a proper eval and diagnosis in my twenties but growing up the Drs I saw just didn't know anything about TS so it's awesome that y'all are spreading awareness.
You can spread awareness also. Do you have children yet? The struggle is real and you will be the best parent for your child when and if. We had diagnosis at Children’s, I’m sorry you didn’t get a good dr. Do you associate any tics getting worse with foods you eat?.
I never knew how bad my husband's tourettes symptoms were as a child. The subject was verboten in his family. Through the years I learned in bits and pieces that when he started to school in 1950 he was quickly designated an undisciplined child. That was even before they called people who had trouble learning in the classroom "slow learners".
He was anything but a slow learner. After a decade of observation I understood he was memorizing the material by listening to others discuss it, a practice he continued his entire life
He was actually a genius. He developed conversation skills I couldn't fathom. He never met a stranger and always found someone they knew that he knew too. People walked away feeling good about themselves and it was often difficult to find a place to stop and go home, even with two tired littles whining in the background.
Before he was 10 his aunt, a nurse suggested his parents get him on meds to control his symptoms. Can you imagine what horrible drugs they would have prescribed to a child in the '50s? It never happened.
Kids didn't make fun of my husband because he'd throw down and fight at the drop of a hat. In those days men ran the schools and taught half the classes. Beating the snot out of a kid that hadn't been taught good manners at home was considered a civic duty. Sports brought him the respect he didn't get in the classroom. By 13 yrs old during summer he did high-school rodeo which was somewhat heartbreaking for him because he grew too tall to be a good bull rider quickly. His best friend won Pro Rodeo Rookie of the Year in the late 60s.
In Jr High and HS his summer activities included hours and hours of running a belly mount, 4 row cultivator keeping his dad's cotton fields weed free. He was glad to graduate to riding the tractor, before that he was on the hoeing crew with his mom and two older sisters. Plowing cotton is a job that requires 150% concentration. Lapses cost his dad money, so it was dead serious.
After high-school rodeo he got into building hot rod cars. It was a hobby that he held onto his whole life. Even though he had dyslexia he could find parts he wanted to order in fine print of hot rod magazines well enough to order what he needed. He had more drag racing trophies than we had room to store by 25 yrs old.
Before we married he was invited to try out for a prospective football team some rich Texas tycoon was trying to franchise in the early '60s. He didn't have much to say about it. It was just another life experience. He'd grown so fast his knees hadn't developed right. There was no guarantee that extensive training would change the defect.
Soon after we married I realized he was dyslexic. Before that people with dyslexia were called "retarded". Learning the techniques to help overcome it was a big game. He practiced on billboards driving across TX, NM, CO, OK.
We struggled in the 1970s, he drove a truck hauling cotton bales several miles to storage. Not sure why, but his tourettes symptoms began lapsing for days, then weeks, and months. By the time he was 30-35 he'd learned to control or disguise what was left of them. I could speculate that it was a change in diet, but I have no data only vague memory. I do remember being horrified after seeing his mom "season" every dish that wasn't fried in Crisco with a huge glob of Crisco. My mom used real butter, or bacon grease to season veggies. I wasn't raised eating potatoes or having dessert every meal.
My husband's audio and sight to memory skills never ceased to amaze me. When our kids got into 4-H and FFA I realized he was able recognize 20 pound piglets that he'd seen at an auction after they had grown into 350 pound show hogs. He'd also remember the breeder and where they were from. Our kids did great in 4-H and FFA because he always knew where the show champions came from.
He had outgrown his explosive temper by the time we met, but when we had kids we agreed I'd take the lead in discipline. After they were out of diapers we mostly used humor to discipline our children since by the time they were 9 and 7 we were working together farming. Whichever one of us messed up was the brunt of jokes for a couple of days. It was equal opportunity ridicule for anyone that made an expensive mistake. Nothing else was worth mentioning.
Neither of our children, nor any of our grandchildren have tourettes.
Thank you so much for sharing the reality of life as it was and my how it has changed. My sons grades didn’t qualify him for many things. He played 7 years on an all state championship team and did 2 World Series before high school. The coach didn’t understand or try to, (new coach ) his son was a center fielder as my son was. I tried to tell them, it’s really important but no. I had to deal with horrible people and hope to help these horrible people learn that’s not ok. I want his whole family to do a channel. We are pretty sure the grand kids will have some firm in the spectrum. Seeing a few things. Think we have a genius in the making, not savant but really really smart. But we know intelligence isn’t the issue with TS, it’s the distractions that happen but it’s not that they are stupid, they learn their own way. I’ve put a few people in their place with the bullying and he has also, lots of fights in school. I despise the Tourette’s channels that are fake, and that make fun. The rage is still with him, he controls it, but still uncontrolled elevation at times. His age has helped with many thing but anxiety has gotten worse with age. His hand writing improved greatly and he used to control what he ate but doesn’t anymore, kind of out grown it.
Thank you for sharing and watching!
@@ORourkesLittlefield Try to figure out sports and activities outside of school for grandkids to get involved in. There are many these days that don't require good grades to be a participant. The family have to be on their toes and get kids started before school team sports begin. It's all about keeping them too busy with chores and play to know what they're missing. There are sacrifices to be made by those who love them. There's no reason a little man's ego needs to be crushed before he reaches puberty. Best wishes.
The boys are so cute !!
Thank you for sharing this video means a lot to me my grandson has tourette's it is definitely a struggle for him❤❤❤❤
It’s a struggle for the whole family, finding what works is key.
My half Sister’s family carries this gene. My Nephew has always been a successful, caring person. Rarely does anyone comment about his tics. Some of us are as noisy as him.
Exactly, he was bullied when in school, so many are still bullied. He is very successful and in adulthood he has learned to live a beautiful life. Still hates the looks but lives with it well.
I loved your video!
This is a great informative video I loved it
Thank you for sharing this story cuzz I know similar. They told my nieces that she was having Parkinson's symptoms and autistic but she never had Parkinson's it is slightly autistic, but also has a major depressant personality disorder and learning disorder but she has extreme mood swings.
I am so sorry that that is what you go through. I don't know anything about what you go through but I do know what it is to be bullied I had learning disorder
Tammy amazing the money it cost a person to become a doctor, even more amazing is if you can pay tuition and get by in grades you can be a shitty doctor too! Lol we have to question everything and research everything.
Our youngest child who just turned 36 in April also has tourettes. X's &
This was a good video. Thank you.
Good, informative video! BTW, I live in Benton, AR.
I used to obsessively move my fingers like a keyboard spelling out the words people were saying or what I was saying. I’m 35 now and still have my tics but I have noticed more twitching recently. Currently running tests myself to see if it’s in my head or what. Thanks for this info!
Sometimes it’s the food. So many man made chemicals are not what we need.
Reece seems like a very handsome & sweet young man❗💖
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Oh and I had no help offered when I was in school. I'm going to be 60 this year and still ticking my days away. 😊
Sadly I know it’s true. Let’s hope someday it changes. I guess it depends on how much money your school district gets.
My granddaughter has tourettes. We use to think it was just a habit. And we teased her a little. After she was diagnosed we all apologized profusely. She has very, very tiny symptoms, and it's still at the same level 20 years later.
My dad had it, me and my twin sister has it, and my little great nephew has it too. Dad and my twin and I are mild. My little nephew, he's 13 now is on meds for it.
Thanks for sharing. I hope to get my son to donate his brain when he passes if they haven’t found anything to help by then. My husband has never been officially diagnosed but, yes he is mild tics. The meds are terrible. Marijuana seems to help tics, it’s approved for medical marijuana card. I’d rather my son try a plant than man made chemicals but that is just my opinion, to each his own and good luck, we had no luck with pills.
Diagnosed in 4th grade but fam suspected it since 2 and grade. Dude and I got similar tics
Do you have transient tics? He does.
I spell things backwards, and count too
I didn’t want to pull out my keyboard in school either, they would make fun of me relentlessly. Now eveyone has a Laptop😂.
Very handsome 😊
Thank you!
Good video
Blood pressure meda are very dangerous. Please don't use it if you do not have heart issues. And do not take more than 2 kinds. See a brain specialist if you are having issues & they are trying to put you on 3 blood pressure meds, say NO! IT killed my baby (16 years younger than me) brother before he turned 50.
Thank you for sharing, I know it wasn’t easy.
My Tourette's started out with the eye blinking. My tics went away for 25 years but when I have a tramatic event happen it came back
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Take high dose's of B1.
Yes, a great regimen of vitamins and minerals helped my husband conquer 90% of his mild symptoms.
A lot of people with this speak out strange or curse. My grandson can't read and he 16 yrs! Your son is very handsome! The schools don't want informed parents because they then have to do their jobs!!
It is only actually around 20% of people with TS have the verbal aspect of the disorder
Cute tics 😍
Thanks the girls thought so! Wouldn’t leave him alone! Lol
People are not that nice, it's very sad.
Great video, thanks for all
The useful information and insights. I wonder how you guys feel about the Tourette’s faker trend? Specifically on TikTok - so many kids faking Tourette’s these days, how do you feel about that?
I can’t say how I feel about idiots that mock a debilitating disorder. I am pushing my son to do a channel based on real life with TS
TikTok should be banned off the internet, it's just garbage!
I hate Tourette's.
I do too! Thanks for watching!
Well young man God loves you dearly. He did not put that on you. Ask God to forgive you your sins. Ask Jesus Christ to be Lord of your life. He will. If He does not heal you now He will heal you in heaven Heaven is where all Believers in Jesus Christ are going. Home. Be well and keep believing in Jesus Christ. He loves you and your family. 🙏🙏☝️☝️👍❤️❤️❤️
Jesus died for him, he doesn’t need healing, just like apostle James, he has faith.
@@ORourkesLittlefield Praise the Lord.❤️