Hello wonderful misophonia-enthusiasts! I wanted to provide an update before I make a new CZcams video on the topic - I am participating in a study for misophonia through Duke University. If you want to help their cause I'd encourage you to reach out to them. I just completed my first study and it was a doozy but I'm glad I did it! Findings will not be reported for some time but I'll be sure to update all over my social medias. If you are interested, please turn on CZcams notifications and follow me on IG, discord, and Twitch - spreading misophonia awareness is super important to me and I do try to talk about it often! Anywho... thanks for keeping the comments so uplifting and honest.
I just watched your video, misophonia is the worst! I’m 32 and I’ve been dealing with this for over 20 years. I’d love to learn more about the study! Hope you’re doing well 🙏🏼
Thanks for making this video! I can relate with you on almost everything, and its wonderful to know I am not the only one! Sounds-mostly mouth sounds triggers me intensely. I have also adopted your ear plugging method at the table... 😁
The worst thing about misophonia is that when I get triggered I wanna murder the people that caused me pain and then I feel bad for even thinking about it..
@@LaurennM360 I'm glad you're seeking therapy, I am also. It is a fight or flight response so you resonate more with the flight part whereas I am the fight one lol. This crap kinda sucks though.
One of the hardest parts of misophonia is the fact that no one around you seems to care since they don’t understand it’s real and not personal. In fact, my (ex) therapist laughed when I told her about it! It’s something very personal to me so I balled my eyes out of course. It’s interesting that you react with anger by the way. I react with intense sadness and sometimes anger. When my misophonia first started I was triggered by myself making the sound and I hated myself for it. There was also no exceptions for my trigger unfortunately. Whether it was on purpose or loud or soft or made by one person or the other I was always triggered.
Faith Not to hijack this thread (but you asked) because she did an excellent job, but I directed a documentary called Quiet Please, the trailer is on CZcams. Film will Be on Amazon in a few days.
I couldn't agree more. Over the years I'm noticing its getting much worse and brutal the more I try to fight to stay calm and relaxed when I hear my trigger sounds but it doesn't work im now at a point where if I go deaf I wouldn't be too upset about it. I really hope Misophonia will be taken more seriously and a future treatment can be found for me and everyone else. I'd try be first in line if that happens
When you talked about your dad being your first trigger, oh my god, I relate to that so much. I love my dad so much but his chewing makes me want to punch him in the jaw. Its absolutely terrible and the worst thing is no one believing you. Thank You for bringing awareness!!
My brother makes me so mad!!!!!!!! He hums and clicks and hums and clicks and it makes me want to pull his hair out and beat him up! (Of course I don’t)
Absolutely, yes! :) I think as time goes on, scientists will discover that in fact, people with Misophonia are equally affected by certain sounds positively.
When I was a teenager we had the sweetest cat who would purr and purr. My bedroom was right over the family room, and my parents watched TV every night while I was trying to sleep. I would lie on my side and bury one ear in a pillow, then coax my cat onto my other ear and get him to purr until I fell asleep. It helped so much.
PrincessA ikr! I told my friend that I hate the sound of chewing before I knew I had misophonia,,, afterwards we had pop-corn and her and her 8 year old sister started chewing in my ear. After finishing the pop-corn,, I excused myself and went to their up-stairs bathroom and balled my eyes out. Misophonia is not fun and shouldn’t be made fun of.
Ugh I had a friend who used to trigger me on purpose after I let her know and I just had to stop talking to her because she just didn’t get that it hurt so much
I cried watching this. I'm 30 years old and have struggled my whole life. I've even lost friends because of misophonia. I get angry. My heart races, my face gets red, I have to walk away.
I rlly thought i was the only one who felt this way. Ive been having it since i was 12/13 y/o and im 20 now. Im still in therapy hoping my trauma therapy will help😅its rlly impossible to live like this tbh- i cant do anything anymore and so much annoys me
Im so sorry to hear about that, everyone deserves understanding! My partner has this and im trying to do all i can to learn about it, would u be able to tell me if there is anything i can do to make sure i can always be kind and empathetic?
12:30!!! Snoring, loud chewing, gulping, heavy breathing, coughing repeatedly, throat clearing repeatedly, sniffing repeatedly are all my triggers. My family trigger me the most. I’ve been dealing with this since I was 12, I’m now 22, and it’s not getting any better. I agree with everything you said. I wouldn’t say it’s mild either.
Wow that’s exactly how I am. Am 22 been dealing with it since the same age. The guilt and frustration is unreal, and school can be unbearable. Yawning triggers me also.
@@AnissaFromJapan same! I miss my ex-boyfriend's cat Hazel! She could somehow tell when I was being triggered and having bad anxiety! Hazel would run over to me jump into my arms and start purring really loud and kneading me! Just holding her helped with my anxiety! ❤
Seek a good therapist immediately! I once had it as bad as you, but after already a few sessions it became a lot better! I used to always be out of class (I can’t stand the sound of paper) but right now (2 years later) I can sit in all classes comfortably. Of course you still get outbursts sometimes, but those aren’t as bad. I hope this helps❤️ Tip: noise canceling headphones are amazing!!! I can now comfortably go in a plane without always closing my ears😊
Im in tears. I have this and its very serious because I almost always drop in tears. When i bring this tô someone, they Will always be very angry at me. I wished i never be born because my sensibilite to sounds affects my family and friends. Everyone says that my problem affects their freedoom of making The noise. I tried so many terapies but anyone worked. My mom says i like having this problem. But I wished so much i was normal. Be strong. Thanks for your braveness of bringing this up. Kisses from Brasil 🇧🇷
I find it being taken in better, when I explain that this is all in my head and my problem, so that the person triggering me doesn't feel like they have done something wrong. If they want the best for you, they will try to find a solution to not trigger you.
Find a way Dara, it’s the only way to survive. I eat with music at all mealtimes (when possible) even headphones. My partner and son are super nice people but have no idea the agony this causes me. This problem has caused breakdowns in several relationships, avoidance of trigger situations and an everlasting struggle for peace and quiet in my head. Good luck to all those Misophobians out there x
@@gracemccloskey4500 I too use earplugs and they help for the most part. I'll still hear some sounds but i then turn on my oven fan which creates a white noise i can handle and drowns it out even more. I try to find noises i can take that will drowned out noises i can not handle. It's helps alot. Sucks pretty much living in earplugs but its better then having a mental breakdown.
I actually feel more calm knowing about this, certain sounds make me so ANGRY, to the point where I want to cry even. Other ones make me panicy and almost like my skin crawl and i'm uncomfortable and want to cry and run away
I can sooooo relate! Skin crawling and anger! I feel violated when I am subjected to these sounds. When I was younger I would want to throw my plate at the wall as hard as I could.
zd zd I’m 16 now too and I’m officially getting help for it thankfully they think I might be on the autistic spectrum but overall I’ve just formed routines around it now. Always wear earphones, don’t eat with other people, close doors, walk away, wear earplugs etc it’s hard but it’s manageable
@@doorknob559 I’m 16 too and have been dealing with it since I was 11 but it’s progressively gotten worse. My therapist has never even heard of misophonia and when I told her about it, she didn’t seem the slightest bit interested or convinced . I just think she thinks I’m seeking attention but all I want is help because it’s ruined my life enough already
I have never related to a video more, thank you so much for making this! When I was about 14 I started to get SUPER anxious and angry (to the point of tears and outbursts) when I heard people eat. It’s never gone away and a lot of my ‘tactics’ are similar to you! I eat with other people because I can deal with my own chewing... I put headphones in even without music on... etc. This is something I’m embarrassed to talk about but this video has definitely comforted me. I hope I can make a similar vid at some point soon!!
Also I’m so sorry your family/friends haven’t always been supportive :-( I haven’t really told my friends so I’m not sure about that.. but if it’s any comfort, my siblings and my partner can be SO kind about it. People who care and understand will be in your life, I’m sure of it xx
Same. I'm afraid people are going to use it against me. My family takes it as joke and gets annoyed and frustrated because they think im just over reacting. I got mines when I was 11. Happy to know I'm not alone!
Thank you for making this video! I’m a lifelong sufferer of the condition. My triggers are usually anything that has to do with the mouth - chewing, smacking, chomping, breathing, etc. Every night I wear earplugs so I can’t hear my partner breathe. I wear earplugs at he movie theater and wear headphones if I’m at a cafe. I just can’t deal with it. I will say that I found out I’m near a research program for misophonia and I just volunteered to aid with it. I figure if there’s no cure, maybe I can be a part of the research that leads to one.
I have this, I sometimes wish I was deaf, I get so upset and stressed. I want to be in the middle of no where with just the sound of birds and trees rustling in the wind.
I wear headphones ALL THE TIME, even while I'm sleeping, I only take them off to shower and even then it makes me really anxious to take them off. Like you said, sometimes I don't even have any sound coming through but I just feel the need to always have my headphones on. Haven't eaten with my family in 3 years and watching TV is really stressful because of eating scenes like around the table. I am very lucky to have a great group of friends that always take it into consideration but it is only my immediate family and friends that really get it. School life is awful because everyone pushes it to the limit even after I'm begging them to stop they just laugh and add in an extra piece of gum or pull out a pack of crisps. It makes me really angry at how people don't understand and the frustration of having to explain makes me tear up while writing this. Sorry for the long rant but nothing can describe the feelings that come with misophonia and how much it impacts someone's life
I can’t thank you enough... I’m pretty much about to burst into tears right now. My poor sweet 12 year old daughter has developed this over the last year and it’s affecting our family in a big way. Thank you ❤️
oh dude i’m a hairstylist too and i had a client that was eating very hard cookies and i was putting dye on her hair and the sound and feeling the chewing happen was the worst experience ever
1 I turned this video on because my brother was setting me off with his chewing so it helped me in the moment forget about it and 2 when I hear these triggers like my dad chewing, I will tell him to stop but he will get mad at me for telling him to stop and he will tell me to get over it. He doesn’t understand that I just can’t get over it so it triggers a whole big fight then I just leave and eat after he is done. Thankfully he does eat fast.
I've lost connection to half of my family due to me having misophonia because they didn't believe me.And they hurt, mocked, and threatened to beat me because they thought I was faking. The sound that triggers me most is when people sniff through their nose.
Misophonia part of sound sensitivity ,. It can be healed as sound sensitivity can be healed by doctor checkup, recommendation, medicine meditation !! maybe people didn't behave same at when they starts to see difference of unusual behaviour..try to help others to understand. They will obviously hear your talk.. I know all aren't same !! will not mock , joke when they actually know the things that it's real hope !! It's totally different as someone behaving with this disorder and without this !! Take care stay safe 🙏 Hope for being stay safe❤️
I have been dealing with misophonia since I was a young child. I am 48 now, but it was only until youtube came along that I knew that others were suffering with this as well. People need to realize that we really do suffer from this and this is not a laughing matter or something to be ridiculed. We are not joking about these feelings and we don't want to be this way. Great video.
So I also have misophonia and i cried during the whole video. I felt very relieved that this is a thing because everyone is just saying that I’m overreacting. When I hear these specific sounds/noises I just want to hurt them so badly and it also makes me feel guilty. But since I can’t I’ll just start crying, screaming or I know this sounds funny but just stumping my feet on the floor. And I even get so mad if I even think about it. It kind of makes life feel unliveable because those noises happen on a everyday life bases. The worst part is that my family/friends don’t know what it is and then they think it’s just me overreacting and keep doing it to “tease“ me, but they don’t know that im getting so angry and mad. So I’m really happy this video was uploaded but I’m still sad that there isn’t a cure.
I'm so sorry to hear that and I felt every single word of it. Fucking same. The anger and rage ... as if I want the whole world to burn just to stop that noise!
Thank you!! I finally have an answer to what I might have. Sounds such as typing, whispering, ASMR videos, bags crinkling, loud chewing, all of these literally drive me crazy and set me into like a blood red rage. I just thought I was high maintenance or something but I totally understand how you feel with being triggered by a sound. I cannot describe how awful these sounds make me feel. The whispering especially drives me crazy and it literally hurts my ears to the point where I have a tingling sensation and feel lightheaded.
i always say the best way to torture me would b to keep me in a small room w VERY loud asmr sounds for the rest of my life, i'd find a way to kms even if i had to do it by biting my own tongue off, i'm sorry that was intense i'm angry j thinking abt it lmao
First - You are not alone. I've known a few people in my life with chewing triggers. In my early twenties, I had a best friend, and partner that I moved in with (first time living with a partner). When my partner would eat cereal I could not stand to be in the same room - from a normal happy day to rage in 1 minute or less. The frustration and anger was visceral and lead to me having misplaced resentment to the point that I could not tolerate being around this person. It was years before I realized this was my wiring and not something being done to me. It has also contributed to an unhealthy relationship with food that I still struggle with today. I am married now and my partner understands. We are at a point where I can say, please move out of my blind spot while you are eating or simply - "it's happening". Eating together definitely helps - both in improving my relationship with food and keeping the sound from triggering me. Music, a podcast, a book on tape or tv are also good distractions. I have a friend who has had luck with antidepressants, she says it doesn't completely stop the frustration and anger, but helps dull the sharp edges. Working on letting the feelings come, seeing them, recognizing them and letting them pass like a wave is where I am at today. We are not our emotions - they come and go and "I am still right here."
Yessss I plug my ears too!!! I’ve been doing that forever and people think I’m being rude when I have headphones in. I usually bring headphones on car rides because my mom or someone else will chew ice/food and I can’t handle it but they think I just don’t want to talk to them!
POV: You go to middle school and almost all of your classes are girls (80%) chew gum like a donkey and I would come out of school every day and my ears would be bloody
This disorder is the scurg of my life. Lived in my 'relatively quite' apartment at the back of my house for 2 years. My new neighbors woke me up at 12:30 a.m. the first two nights. They know of my condition, all my triggers and still continue to act completely ignorant. They actually seem to think it turns off in the daytime. This has been 8 months of hell for me. Family definitely doesn't understand. 2 more months before my neighbors leave too. My condition is severe and I am in hell. I was so mean to my loud eating dad growing up & it makes me feel shame. I feel like patient zero. 43 years old, self-diagnosed, didn't really know I had it until late 30's. Everyone just thought I was an a-hole and they all still do. It has effected almost every aspect of my life. Excellent video.
HELLO EVERYONE IN 2021! 2+ years later, this video gets more comments - and the most meaningful comments - of any of my 300 videos! I am trying to continue the spread of helpful information on this topic and would like to catch the attention of renowned CZcamsr Anthony Padilla. He has a series called “I spent a day with...” where he interviews people within a specific group. I want to see misophonia covered, whether he interviews me or not! If you are here, watching this video, relating to or empathizing with it, please consider reaching out to Anthony Padilla via CZcams comment, tweet, discord, IG, whatever! Shot out misophonia as a topic you want covered (and shout out me @hollihuckleberry if you want to see me part of that!) I love feeling less alone and your kind comments mean the world to me... let’s try and get this topic to a wider audience together!!!!! Either way, thank you guys. 💛💛💛💛💛
I was watching the 20 min Vice piece on ASMR, and discovered that not everyone is affected by ASMR, you know the tingles, and I wondered if there was a link between Miso and those whose brains respond to ASMR, like they were different ends of the same brain physiology continuum. There is some research that suggests this may be the case. I am that continuum, I get the tingles from certain sounds and I get the fight flight panic attack from others. It has been this way since early childhood and I am now in my 30s. I want to say, thank you for your language. In trying to find videos about Misophonia I keep seeing it described as the hatred of sound which is enraging also, it is so much more nuanced than that. It is, as you describe, a selective sound sensitivity syndrome and that is such a helpful way to explain. The hatred of sound sounds like some lazy generic explanation of the experience. It is being taken over by the sound physiologically and psychologically and not having the power to either stop the sound, your body's response to it, or have the social structure to do something that relieves it in an acceptable way. I hope as we move forward as a collective we pay more attention to the importance of sound and the way it affects all of us.
I have misophonia as well and go into a rage at times... yet some sounds do tingle me with a positive! I've always thought I was a weirdo and had mental issues
i feel just the same. i feel bad about subtle noises like things get hit on the floor but i feel good with sounds like bells, cellphones msg tunes, and even fire crackers that are also pretty subtle...
Brilliantly put! I totally agree. I feel it will be so helpful when we find out what tools will help us to deal with this in an acceptable way. Hopefully we can even find a way to cure it completely ❤️
I went years without knowing I have misophonia, but now, looking back, there are a great number of arguments I had with people while eating that were more than likely just me getting triggered. I think my case is relatively mild considering some of the stories I have heard, but I will share with you how I cope. When I can’t hum, to myself or make some other noise to distract myself, I employ techniques similar to mindfulness meditation. When I’m triggered, I try to see and feel the trigger for what it really is. I tell myself that even though I feel angry, I am not angry.It’s just misophonia, and if the feelings Inspired by misophonia try to lead me down a train of thought such as “this person is being insensitive or deliberately annoying me”, I refuse to follow those trains of thought. It will be difficult at first, but whenever you find yourself going down those trains of thought, simply stop the train. The goal for me is for it to become a sometimes unavoidable emotion that I don’t need to act on
I'm literally on the verge of crying. This video and all of you having the same or similar problem that I have - I can't believe it. The sheer and utter anger I feel when I'm triggered.. the anxiety... the reaction! I experience that so often and it feels SO GOOD to just know other people have that as well. And I am so incredibly thankful for this little safe space I found. Thank you all so, so much.
I've had misophonia all of my life. It began when I was 13 years old and my parents' loud, open-mouth chewing during dinner upset me to the point that I started eating dinner in my room. It has impacted my life in many ways. Going to movies is uncomfortable because of all the people smacking on popcorn. I've been able to deal with that by eating popcorn myself, which drowns out the sounds of others. But without my own popcorn, I panic and have to leave the theater. Working is a nightmare because of all the people who loudly chomp, smack and pop their gum. I wish workplaces would stop allowing people to chew gum. I could deal with it if they only chewed their gum for ten minutes. I could leave the room or go to the bathroom or something, but these people chomp their gum 24/7! They always have to have something in their mouths! They probably chew their cud while sleeping, too! I feel anger towards the ones doing the chomping, but I also realize intellectually, that this is my problem and not really theirs. There needs to be a real cure for this, and not just bandaids like noise-canceling earphones.
Thank you for spreading awareness! I’m also tired of being the joke or being the “baby” and everyone looking down on me. I react in such rage that I just start crying. It’s not a pleasant feeling AT ALL and for those who don’t experience this, try to understand what your friends or family are feeling if they have this.
You did a great job Holli. I’m 59 and have had miso since I was 7. When I found out it was a real thing, I decided to make a documentary about it, it’s called Quiet Please... There’s a few trailers on CZcams and it will be on Amazon Prime in a few days (it was there for two years, but my distributor went bankrupt 2 weeks ago). As an aside, I think there’s a lot of psych that goes along with miso...the line gets blurred between neuro and psych, and it is progressive. I could go on. Good for you for discussing miso, it negatively affects every aspect of my life.
the hardest thing is when you have the courage to speak up and ask the source of the sound if they could attempt to be a bit quieter and they just make the sound louder as a reaction. That hurts.
Thanks for sharing, Holli! I just learned about misophonia earlier this year, and I knew as soon as I read about it that it was what I'd been struggling with ever since I was a kid. Our experiences sound really similar. The earliest I can remember being triggered by it is with my sister eating food when I was maybe 4 or 5 years old - she would mix her food around on her plate making a noise that really bothered me (esp moist rice or pasta with sauce on it), and then she'd eat her food chewing with her mouth open making this noise that I absolutely couldn't stand. I HATED it, and was very vocal about that, and so she would make the noises as much as possible to trigger me. My parents would basically say I was having a "melt down" for "no reason" and to leave her alone and let her eat. Since then it has expanded to many other areas of my life, and seems really specific. For instance, the sound one of my co-workers makes when she sneezes bugs the $#!T out of me, the sound of one of my roommate's laughs infuriates me, babies crying, and some car engines, and certain sounds in songs really piss me off. Also, the way my sister eats still bothers me a lot when we're together, and the sound of some other people eating, but not everyone. These are just a few examples but there are many many more triggers for me. I've found that a common thing among almost all these experiences is the repetitiveness of the sounds (my co-worker always sneezes 10-20 times in a row, repeated chewing, etc.). Thanks for the tips, I usually just boil with rage and try to wait it out until the sound is over or I can get away from it. Hahah. It's just really hard because yeah I do feel like no one takes it seriously, and also sometimes there's nothing that can be done to stop the noise (I asked my boyfriend to chew with his mouth closed, and he did start doing that, but I can't ask my co-worker to stop sneezing the way she does, or ask someone else's baby to stop crying lol). People tell me I'm over-reacting, and logically I know that I am, but it's an emotional reaction that happens so fast it just comes out of nowhere and suddenly I'm fuming. I don't think a lot of people understand how strong the emotion hits, OR how quickly it passes (for me) after the sound stops.
Do you think you might have hyperacusis instead? Hyperacusis is typically discomfort caused by loud sounds and Misophonia is usually the quieter sounds that most people completely zone out.
Amazing job articulating not just the struggle of having misophonia (which is noooooo joke ugh) but also regarding communicating about it, especially when already triggered. It’s been a real journey for me as well. Musicless headphones has also been a great tool for me recently glad you found that too. I am glad this condition is getting some recognition-so helpful to know it’s real and that we’re not alone. Mahalo.
Thank you for educating us. I had no idea misophonia was a thing. Love all your vids btw. Been a "silent" subscriber for a while now. Very interesting information.
Brain and not heart!! Amazing revelation! I love that thank you! And yesssssssssss just knowing this is a THING is so comforting. Thank you for sharing your experiences and opinions 🙏🏻❤️
Thank you so much for making this video we really need to bring more awareness, and thank you so much for talking about visual triggers, I’ve been struggling with figuring out if those are related to my misophonia so thank you ❤️
I didn't know my struggle has a name. I hate it so much when people play music/watch videos in public, and I hate hate hate it so much when my brother sings loudly at home. The anger paralyzes me, I couldn't seem to do anything. It seems like I'm hearing everything all at once and it's overwhelming. I've been called "crazy" and "overly sensitive" for being like this. My ears would often hurt and ring from listening to music in maximum volume just to block out the noise. My reaction is anxiety and anger. I'm afraid of confrontation, so I often just keep everything in. It's so tiring. I wish I can afford a therapist to help me with this problem. I feel so miserable. I am so tired. I want to live alone, away from my loud, inconsiderate family. Thank you for sharing your experience!
I’m 13 years old and I have felt with this since I was 7. It’s been so hard because my triggers are paper on carpet, chewing, singing, humming, and just mouth noises in general. I’ve been told multiple times from my family that I’m ruining their life’s and that I’m just awful. They don’t understand and just think that it just bothers me. It doesn’t bother me. It makes me feel so much rage and panic that it’s hard to go places because I don’t want to be triggered. The other day I was trying not to break out balling because someone was chewing gum. It’s really hard and I’m glad that people are starting to Kiev more about it. Thank you so much for trying to raise awareness!! Your amazing!
Thank God for the Internet. I suffer from this since I was a kid and always thought there was something not normal with me, everyone around me always treated me like an annoying weirdo. I always have to eat by myself otherwise I go nuts, the older I get the less sounds I can stand. It's fucking hell 😔😔 I'm so happy there's finally a word put on this condition. It really needs awareness.
Thank you so much honestly. I’m sick of my parents taking it as a joke I’m glad I can relate to someone and relate to how you respond and help it too. ❤️
My dad is already 83 yrs old, his only joy is drama and news on the radio, and im annoywd of the noise, i keep crying because i am studying and thinking a lot of things, planning, i cant focus. My relatives just told me, leave him hes too old and when hes gone no one will annoy you. They dont understand me...
This is an amazing video! I relate so much, oh my stars. It’s such a strange thing, because you feel so guilty for feeling that rage. Still struggling, but working on it every day. I have found that the medication Latuda is life changing! Finally able to spend time with my family again. Remember that you’re a wonderful person, and your instinctive rage is not you xx Thank you for this video xx
I only learned about Misophonia last week. I'm 54 and have been triggered by certain sounds for all my life. Triggers include A small child screaming, baby crying People whistling Chewing and slurping A tap dripping Dogs barking I want to escape when I hear these noises. I can only go to supermarkets early when very quiet. I cant go into bars because its feels like my ears are getting damaged..its very stressful When I go to the cinema I need to wear good ear plugs. If I am doing anything academic I need total silence. I know that I can hear frequencies that other people can't hear and I also have Tinnitus now. Thanks for the great description of your symtoms/triggers.
Oooff I felt so understood while watching your video, it really makes me happy that I'm not alone with it... People always think it's not that bad cause they are not experiencing it... But now I can explain it to others better too, thank you! 🥺
this video is so relatable. thank you for making this! people really don’t understand and they always act like i’m being dramatic or being too much. I work in an office where the person that works behind me chews with their mouth open and it send me into a very quick rage. I notice that even the sound of myself eating really bothers me, so I have to be playing music or a youtube video while i’m eating. being at a restaurant tends to drown out all of the sounds of chewing I have found that wearing headphones with either music or white noise (my favorite is just the sound of rain). that way I can still hear conversation but I am able to tune out A LOt OF SOUNDS airpods are a misophonia sufferers dream!
This video helped me so much! I thought I was the only one who was dealing with this, but I didn’t know what “this” was. I don’t feel as alone now, especially hearing your story and reading everyone else’s in the comments. Thank you so much for sharing this video, I really appreciate it!
I've had MIsophonia since age ten and I'm 63 now, so many years of suffering. Thank you for sharing your story. It's so hard to make people understand our condition, and it takes such a huge emotional toll. Like you, my triggers started with my father. Please know you have a friend up in Canada! Take care.
I have dealt with this for years, and was relieved a few years ago when I read about it being real and having a name. Basically, I feel rage. just rage. For me its mostly chewing sounds, but sometimes other stuff too. And sometimes the people around me will change the way they chew to try to be more quiet, but I can still hear that too, and it makes me even more enraged. Which makes me sad because I really do appreciate that they are making an effort not to trigger me but that effort is actually making it worse. I usually just leave the room, sometimes in the middle of a meal. It makes me feel so socially inept.
My family just says "just control your mind you're so annoying" or just laugh sometimes i wanna punch people that are doing the sounds that annoys. I feel like they don't understand me and when I told my mom that I have misophonia she laugh and said that's not a real thing, it's all in my head. So frustrating
Finally it feel so great to find someone who can relate every thing you said in this video is what I'm going through and thank you for making this vjdeo
My mom clearing her throat, close family members eating at all, my grandmothers sneezing and omg chewing. And the unexplainable, people singing to songs... i just about loose my mind. The only one who really understands in my mom. A cure would be nice 😭
It’s so crazy hearing someone else talk about this. My story is almost identical to yours. Ive developed at least some coping mechanisms over the years that have helped but I still do not feel comfortable enough talking to people about it or asking them to stop what is triggering me. Only family and some friends even know that it’s a problem for me but they just don’t understand what it actually does to me. It’s so embarrassing to have and feels like no matter how hard I try to explain what I’m going through it will never truly be understood and most will just think I’m exaggerating. I’m hoping some form promising treatment comes in the future. Thank you so much for opening up and being vulnerable about this because it can be a scary thing to do 💙
I've suffered from misophonia for as long as I can remember, going as far back as 4 years old. However, I didn't know there was a name for it, or that it was even actually a thing, until just a couple of years ago. All this time, I had thought there was something wrong with me, and that I was just an overly neurotic crazy person who needed to learn how to control herself. Now I know I'm not alone, and that I can't just "get over it," as so many people have told me to do, throughout the years. Thank you for making this video and sharing your story. It felt like you were telling MY story, too! Word for word!
I have thiiisssss! Some sounds, especially repetitive, ones drive me nuts, I get hot flushes and anxiety. My family and friends think Im being over the top.
when sound drives you nuts it doesnt matter who is who. your whole world will just collapse. no matter the degree you suffer from it. you will just suffer..... the thing is.. one leads to the next trigger and if your having a bad day it will be compleete doom.
Thank you so much for this video!! I'm so happy to see the conversation surrounding misophonia become a little more mainstream. I've suffered with it for half a century. Beginning around age 10 with my dad being my first trigger. Due to the unique dynamics in my family, I wasn't allowed to tell him or even show by my facial expression that I was hurting. At main meals my mom started playing the radio in our dinin g room on a moderate volume. It didn't drown it out, but I learned to focus past the trigger ( a little) by focusing on the radio. A tall order for a 10 year old! One thing I experience is actual physical pain...also exhaustion. I suppose from the extreme amount of energy it takes to stay composed, not show what you're feeling,etc. I've tried to talk with colleagues about it when I wasn't "in the moment". It usually doesn't help and I get a "deer-in-the-headlights-look". I once gave a co-worker a $5.00 bribe to spit out her gum!!😆 Love the kitty in the video!! Bless you in your struggles!!
Thank you so much for this video. I’m looking through the internet for answers about these irritating triggers.... I also seem to be hurting people closest to me with my reactions & it doesn’t feel great. Understanding this, knowing other people are dealing with this and hearing your coping mechanisms helped me so much. Thank you again!
I can relate to this video . I get so angry and frustrated when my brother eats soup and make loud noises , also with spaguetti. I remember that a few years ago I was mean to him but now I just leave the room or concentrate in something else and I try to explain that is nothing personal. Also I get triggered with some whispering sounds.
(I know this is a year old comment) But yes, whispering is so bad... My parents would talk loudly during my study sessions, I would tell them to be quieter, and so they start whispering and it's so much worse and they don't get it...
Hi Holli! So nice to see you! Your awesome! Nice video! Love the hair:) thanks for the information! Cute kitty! Awwww she sooo cute! Keep it up! Till later!
So grateful for you sharing your experience and this video. I've struggled with debilitating anxiety the past 5 years, with each year becoming gradually worse and doctor's were unable to identify the root cause. No amount of exercise, clean eating, yoga/meditation would help ease the anxiety, and I always blamed myself for being weak. Until recently, after seeking countless neurologists and therapists, I was diagnosed with sensory processing disorder and misophonia. Now I know I'm not crazy or ashamed, and no wonder I was anxious 24/7 due to my daily environment being constant triggers. It's such a real thing and it sounds like a stressful life, but getting diagnosed and watching videos like this truly help accepting and loving ourselves, as well as working towards a better quality life. Thanks again for sharing! ❤️
I sometimes think..People who purposely make noise to trigger are same as abusers who hurt women physically.. People need to understand their noise is actually causing pain ..
I appreciate this video so much. due to this not being a well known issue, it is hard to find help or even other people ho struggle with the same thing. when this happens, it makes me feel alone. this video really helped with this.
i have serious misophonia, i get sent over the edge when someone is chewing food, or especially gum, i can not stand it.....i have 2 little girls, and even the sound of them sucking on their binky or pacifier is unbearable. It makes me feel like an awful mother that i have to ask them to take out something that comforts them because i can not stand to be in the room....but videos like this make me feel so much better, knowing i am not alone....because most of my life people have dismissed my anxiety with sounds or thought i was being dramatic...its nice to know that other people experience the same level of distress i have... i woudnt wish this on anyone...but thank you for sharing.
Thank you SO much for this video! I have been struggling with Misophonia for several years now and it is really hard to talk to people about! I can relate because my dad also makes a LOT of noises at the dinner table that really trigger my misaphonia to the point where I have actually had panic attacks while having dinner with my parents. One of the hardest parts is trying to stifle it when in social settings. For me my triggers are: any eating noises, drinking noises, and swallowing noises, but the frustrating part is I trigger myself sometimes which is never a fun time. For those of you who don't know how to cope with it their are also lot's of support groups online that you can join and just be with other people who are going through it and rant about what it's like which can be relieving! I hope if you are reading this that you have an amazing day!!!
Hello wonderful misophonia-enthusiasts! I wanted to provide an update before I make a new CZcams video on the topic - I am participating in a study for misophonia through Duke University. If you want to help their cause I'd encourage you to reach out to them. I just completed my first study and it was a doozy but I'm glad I did it! Findings will not be reported for some time but I'll be sure to update all over my social medias. If you are interested, please turn on CZcams notifications and follow me on IG, discord, and Twitch - spreading misophonia awareness is super important to me and I do try to talk about it often! Anywho... thanks for keeping the comments so uplifting and honest.
I just watched your video, misophonia is the worst! I’m 32 and I’ve been dealing with this for over 20 years. I’d love to learn more about the study! Hope you’re doing well 🙏🏼
Thanks for making this video! I can relate with you on almost everything, and its wonderful to know I am not the only one! Sounds-mostly mouth sounds triggers me intensely. I have also adopted your ear plugging method at the table... 😁
whether the cause of this disease is stress and trauma
The worst thing about misophonia is that when I get triggered I wanna murder the people that caused me pain and then I feel bad for even thinking about it..
SAMEEE but I can’t help it!! It’s so much worse because it’s usually people I love but all I can’t think about is making them stop 😭
same but not murder them...i just kinda want to hurt them in the same way they are hurting me in the moment
@@chrysalism7375 exactly
Yeah like I just want to jump on my brother and keep hitting him but obviously I still have like self restraint so I dont but I feel bad about it..
@@LaurennM360 I'm glad you're seeking therapy, I am also. It is a fight or flight response so you resonate more with the flight part whereas I am the fight one lol. This crap kinda sucks though.
One of the hardest parts of misophonia is the fact that no one around you seems to care since they don’t understand it’s real and not personal. In fact, my (ex) therapist laughed when I told her about it! It’s something very personal to me so I balled my eyes out of course. It’s interesting that you react with anger by the way. I react with intense sadness and sometimes anger. When my misophonia first started I was triggered by myself making the sound and I hated myself for it. There was also no exceptions for my trigger unfortunately. Whether it was on purpose or loud or soft or made by one person or the other I was always triggered.
PrincessA thank you so much for sharing!
That is soooo relatable you can talk to me anytime it sucks sooo much just know people love you and can relate!!!!
Yeesssss omfg
Same my therapist tried to diagnose me with ADHD.
I can relate so much
I HAVENT RELATED TO ANYTHING MORE!!! misophonia needs more awareness!!!
Faith Not to hijack this thread (but you asked) because she did an excellent job, but I directed a documentary called Quiet Please, the trailer is on CZcams. Film will Be on Amazon in a few days.
Yes speech
Yess it really does it’s soo soo awful and really affects your life so much
I couldn't agree more. Over the years I'm noticing its getting much worse and brutal the more I try to fight to stay calm and relaxed when I hear my trigger sounds but it doesn't work im now at a point where if I go deaf I wouldn't be too upset about it. I really hope Misophonia will be taken more seriously and a future treatment can be found for me and everyone else. I'd try be first in line if that happens
When you talked about your dad being your first trigger, oh my god, I relate to that so much. I love my dad so much but his chewing makes me want to punch him in the jaw. Its absolutely terrible and the worst thing is no one believing you. Thank You for bringing awareness!!
Paulina Barragan omg I’m like that with my mom, I love her so much I would never do anything to her but her chewing drives me mad angry 😤.
My brother makes me so mad!!!!!!!! He hums and clicks and hums and clicks and it makes me want to pull his hair out and beat him up! (Of course I don’t)
My father's jaw cracks when he eats. It was excruciating to listen to.
My dad's chewing and my mom's whistling get me 🤦
My dad's breathing/chewing and my mom singing lightly!!
I wonder if purring cats has a reverse misophonia effect. Purring cats is extremely relaxing to me.
"reverse misophonia" aka ASMR lol
Same. I have reallyyyy bad Misophonia, but cat purrs are sooo calming
same!! I can not stand the sound of people chewing but the sound of my dogs chewing is very relaxing to me.
Absolutely, yes! :) I think as time goes on, scientists will discover that in fact, people with Misophonia are equally affected by certain sounds positively.
When I was a teenager we had the sweetest cat who would purr and purr. My bedroom was right over the family room, and my parents watched TV every night while I was trying to sleep. I would lie on my side and bury one ear in a pillow, then coax my cat onto my other ear and get him to purr until I fell asleep. It helped so much.
If your friends are trying to trigger you they aren’t real friend. All my friends were understanding, whether they tried to avoid the sound or not.
PrincessA ikr! I told my friend that I hate the sound of chewing before I knew I had misophonia,,, afterwards we had pop-corn and her and her 8 year old sister started chewing in my ear. After finishing the pop-corn,, I excused myself and went to their up-stairs bathroom and balled my eyes out. Misophonia is not fun and shouldn’t be made fun of.
Hard fax
Yeah I told my friend who was younger and of course he took his sandwich and ate it in my ear :/
Ugh I had a friend who used to trigger me on purpose after I let her know and I just had to stop talking to her because she just didn’t get that it hurt so much
@@auroradeister9314 saaame
I cried watching this. I'm 30 years old and have struggled my whole life. I've even lost friends because of misophonia. I get angry. My heart races, my face gets red, I have to walk away.
I rlly thought i was the only one who felt this way. Ive been having it since i was 12/13 y/o and im 20 now. Im still in therapy hoping my trauma therapy will help😅its rlly impossible to live like this tbh- i cant do anything anymore and so much annoys me
Im so sorry to hear about that, everyone deserves understanding! My partner has this and im trying to do all i can to learn about it, would u be able to tell me if there is anything i can do to make sure i can always be kind and empathetic?
12:30!!! Snoring, loud chewing, gulping, heavy breathing, coughing repeatedly, throat clearing repeatedly, sniffing repeatedly are all my triggers. My family trigger me the most. I’ve been dealing with this since I was 12, I’m now 22, and it’s not getting any better. I agree with everything you said. I wouldn’t say it’s mild either.
EXACTLY the same except been dealing with it since I was 10 and am now 13
I had a trigger of my brother beatboxing and itching
Margaret Harder I hate when people make beatboxing noises, as well as people kissing, it triggers me a lot
Wow that’s exactly how I am. Am 22 been dealing with it since the same age. The guilt and frustration is unreal, and school can be unbearable. Yawning triggers me also.
about the same
Honestly my cat helps me so much with my misophonia. She just plops right nexts to me and starts purring.
It makes me happy and calms me down.
Deku’s Shoes yes! That’s an amazing solution I love it
Me too it’s so soothinggg
@@AnissaFromJapan same! I miss my ex-boyfriend's cat Hazel! She could somehow tell when I was being triggered and having bad anxiety! Hazel would run over to me jump into my arms and start purring really loud and kneading me! Just holding her helped with my anxiety! ❤
I'm so sick of this disorder that sometimes I wish I were deaf instead
Me too!!
omg same
OMG....ME TOO!
I honestly have it so bad that if i could go deaf I WOULD!
Seek a good therapist immediately! I once had it as bad as you, but after already a few sessions it became a lot better! I used to always be out of class (I can’t stand the sound of paper) but right now (2 years later) I can sit in all classes comfortably. Of course you still get outbursts sometimes, but those aren’t as bad. I hope this helps❤️
Tip: noise canceling headphones are amazing!!! I can now comfortably go in a plane without always closing my ears😊
Omg same I would rather become deaf than live with this stupid thing
I have had that sentiment.. omg.
Same. Wish I would go deaf sometimes for sure
SAME! my grandpa is deaf and sometimes i wish i was too
Im in tears. I have this and its very serious because I almost always drop in tears. When i bring this tô someone, they Will always be very angry at me. I wished i never be born because my sensibilite to sounds affects my family and friends. Everyone says that my problem affects their freedoom of making The noise. I tried so many terapies but anyone worked. My mom says i like having this problem. But I wished so much i was normal.
Be strong. Thanks for your braveness of bringing this up. Kisses from Brasil 🇧🇷
Don't worry dear... Everything will be fine... I would recommend consult a counselor.. 😊
I find it being taken in better, when I explain that this is all in my head and my problem, so that the person triggering me doesn't feel like they have done something wrong. If they want the best for you, they will try to find a solution to not trigger you.
Find a way Dara, it’s the only way to survive. I eat with music at all mealtimes (when possible) even headphones.
My partner and son are super nice people but have no idea the agony this causes me. This problem has caused breakdowns in several relationships, avoidance of trigger situations and an everlasting struggle for peace and quiet in my head. Good luck to all those Misophobians out there x
dara veiga my exact situation
I'm sorry you've suffered so much. Have you thought of moving somewhere silent?
Something that helps is white noise. You can still hear people talking but don’t hear soft sounds.
I put earbuds in and sometimes I can still hear the trigger sound, it’s the most frustrating thing
@@gracemccloskey4500 yeah😭😭😭
@@gracemccloskey4500 I too use earplugs and they help for the most part. I'll still hear some sounds but i then turn on my oven fan which creates a white noise i can handle and drowns it out even more. I try to find noises i can take that will drowned out noises i can not handle. It's helps alot. Sucks pretty much living in earplugs but its better then having a mental breakdown.
I actually feel more calm knowing about this, certain sounds make me so ANGRY, to the point where I want to cry even.
Other ones make me panicy and almost like my skin crawl and i'm uncomfortable and want to cry and run away
I can sooooo relate! Skin crawling and anger! I feel violated when I am subjected to these sounds. When I was younger I would want to throw my plate at the wall as hard as I could.
People making noises that trigger me on purpose impacts me, and I completely lash out.
I’m 15 but I’ve been dealing with misophonia since I was 8. It has literally ruined my life.
It makes me distracted from my homework. Makes me so behind, therefore making me feel guilty for not doing good enough. I'm 16
zd zd I’m 16 now too and I’m officially getting help for it thankfully they think I might be on the autistic spectrum but overall I’ve just formed routines around it now. Always wear earphones, don’t eat with other people, close doors, walk away, wear earplugs etc it’s hard but it’s manageable
@@doorknob559 my ears start hurting if I wear headphones for many hours 😭
zd zd it’s painful for me too😂 but I make do. How long have u been dealing with it? A long time too I imagine
@@doorknob559 I’m 16 too and have been dealing with it since I was 11 but it’s progressively gotten worse. My therapist has never even heard of misophonia and when I told her about it, she didn’t seem the slightest bit interested or convinced . I just think she thinks I’m seeking attention but all I want is help because it’s ruined my life enough already
I have never related to a video more, thank you so much for making this! When I was about 14 I started to get SUPER anxious and angry (to the point of tears and outbursts) when I heard people eat. It’s never gone away and a lot of my ‘tactics’ are similar to you! I eat with other people because I can deal with my own chewing... I put headphones in even without music on... etc. This is something I’m embarrassed to talk about but this video has definitely comforted me. I hope I can make a similar vid at some point soon!!
Also I’m so sorry your family/friends haven’t always been supportive :-( I haven’t really told my friends so I’m not sure about that.. but if it’s any comfort, my siblings and my partner can be SO kind about it. People who care and understand will be in your life, I’m sure of it xx
Same. I'm afraid people are going to use it against me. My family takes it as joke and gets annoyed and frustrated because they think im just over reacting. I got mines when I was 11. Happy to know I'm not alone!
My friend chews gum right next to me in class like a cow. My brother starters and talks so loud. Ughhhhhhhh. Why.why.why me😭😭😭😭
Thank you for making this video! I’m a lifelong sufferer of the condition. My triggers are usually anything that has to do with the mouth - chewing, smacking, chomping, breathing, etc. Every night I wear earplugs so I can’t hear my partner breathe. I wear earplugs at he movie theater and wear headphones if I’m at a cafe. I just can’t deal with it.
I will say that I found out I’m near a research program for misophonia and I just volunteered to aid with it. I figure if there’s no cure, maybe I can be a part of the research that leads to one.
also I would love to hear about what research you are getting involved in!
I feel you you gave me the answers my therapist looked at me like I was crazy
YESSSS
I have this, I sometimes wish I was deaf, I get so upset and stressed. I want to be in the middle of no where with just the sound of birds and trees rustling in the wind.
@@kate3264 oh that’s terrible 😞 I am so sorry. Please reach out for support if you feel suicidal.
I wear headphones ALL THE TIME, even while I'm sleeping, I only take them off to shower and even then it makes me really anxious to take them off. Like you said, sometimes I don't even have any sound coming through but I just feel the need to always have my headphones on. Haven't eaten with my family in 3 years and watching TV is really stressful because of eating scenes like around the table.
I am very lucky to have a great group of friends that always take it into consideration but it is only my immediate family and friends that really get it. School life is awful because everyone pushes it to the limit even after I'm begging them to stop they just laugh and add in an extra piece of gum or pull out a pack of crisps. It makes me really angry at how people don't understand and the frustration of having to explain makes me tear up while writing this.
Sorry for the long rant but nothing can describe the feelings that come with misophonia and how much it impacts someone's life
I can’t thank you enough...
I’m pretty much about to burst into tears right now. My poor sweet 12 year old daughter has developed this over the last year and it’s affecting our family in a big way.
Thank you ❤️
Aw your such a good mom.
oh dude i’m a hairstylist too and i had a client that was eating very hard cookies and i was putting dye on her hair and the sound and feeling the chewing happen was the worst experience ever
C.B and with no escape 😭
oh my god that hurt me reading you describe it. agh I'm sorry for you
1 I turned this video on because my brother was setting me off with his chewing so it helped me in the moment forget about it and 2 when I hear these triggers like my dad chewing, I will tell him to stop but he will get mad at me for telling him to stop and he will tell me to get over it. He doesn’t understand that I just can’t get over it so it triggers a whole big fight then I just leave and eat after he is done. Thankfully he does eat fast.
SAME oh my god same
I've lost connection to half of my family due to me having misophonia because they didn't believe me.And they hurt, mocked, and threatened to beat me because they thought I was faking.
The sound that triggers me most is when people sniff through their nose.
Misophonia part of sound sensitivity ,.
It can be healed as sound sensitivity can be healed by doctor checkup, recommendation, medicine meditation !!
maybe people didn't behave same at when they starts to see difference of unusual behaviour..try to help others to understand. They will obviously hear your talk.. I know all aren't same !!
will not mock , joke when they actually know the things that it's real hope !! It's totally different as someone behaving with this disorder and without this !!
Take care stay safe 🙏
Hope for being stay safe❤️
I have been dealing with misophonia since I was a young child. I am 48 now, but it was only until youtube came along that I knew that others were suffering with this as well. People need to realize that we really do suffer from this and this is not a laughing matter or something to be ridiculed. We are not joking about these feelings and we don't want to be this way. Great video.
Im stuck in small house of 6 people who have the mentality of children, I'm just waiting till I can move out. The couch is my saviour
So I also have misophonia and i cried during the whole video. I felt very relieved that this is a thing because everyone is just saying that I’m overreacting. When I hear these specific sounds/noises I just want to hurt them so badly and it also makes me feel guilty. But since I can’t I’ll just start crying, screaming or I know this sounds funny but just stumping my feet on the floor. And I even get so mad if I even think about it. It kind of makes life feel unliveable because those noises happen on a everyday life bases. The worst part is that my family/friends don’t know what it is and then they think it’s just me overreacting and keep doing it to “tease“ me, but they don’t know that im getting so angry and mad. So I’m really happy this video was uploaded but I’m still sad that there isn’t a cure.
I'm so sorry to hear that and I felt every single word of it. Fucking same. The anger and rage ... as if I want the whole world to burn just to stop that noise!
@@noobedynoob9950yes exactly you get me!
Thank you!! I finally have an answer to what I might have. Sounds such as typing, whispering, ASMR videos, bags crinkling, loud chewing, all of these literally drive me crazy and set me into like a blood red rage. I just thought I was high maintenance or something but I totally understand how you feel with being triggered by a sound. I cannot describe how awful these sounds make me feel. The whispering especially drives me crazy and it literally hurts my ears to the point where I have a tingling sensation and feel lightheaded.
What is ASMR videos?
i always say the best way to torture me would b to keep me in a small room w VERY loud asmr sounds for the rest of my life, i'd find a way to kms even if i had to do it by biting my own tongue off, i'm sorry that was intense i'm angry j thinking abt it lmao
First - You are not alone. I've known a few people in my life with chewing triggers. In my early twenties, I had a best friend, and partner that I moved in with (first time living with a partner). When my partner would eat cereal I could not stand to be in the same room - from a normal happy day to rage in 1 minute or less. The frustration and anger was visceral and lead to me having misplaced resentment to the point that I could not tolerate being around this person. It was years before I realized this was my wiring and not something being done to me. It has also contributed to an unhealthy relationship with food that I still struggle with today. I am married now and my partner understands. We are at a point where I can say, please move out of my blind spot while you are eating or simply - "it's happening". Eating together definitely helps - both in improving my relationship with food and keeping the sound from triggering me. Music, a podcast, a book on tape or tv are also good distractions.
I have a friend who has had luck with antidepressants, she says it doesn't completely stop the frustration and anger, but helps dull the sharp edges. Working on letting the feelings come, seeing them, recognizing them and letting them pass like a wave is where I am at today. We are not our emotions - they come and go and "I am still right here."
Yessss I plug my ears too!!! I’ve been doing that forever and people think I’m being rude when I have headphones in. I usually bring headphones on car rides because my mom or someone else will
chew ice/food and I can’t handle it but they think I just don’t want to talk to them!
Example: people popping there gum 😖
OMG that makes me want to punch them in the face
My face turned red
Im black.
POV: You go to middle school and almost all of your classes are girls (80%) chew gum like a donkey and I would come out of school every day and my ears would be bloody
people chewing and popping their gum pisses me off
Omg people popping their gum, I can't even take it for a min. I will snap at them almost instantly
This disorder is the scurg of my life. Lived in my 'relatively quite' apartment at the back of my house for 2 years. My new neighbors woke me up at 12:30 a.m. the first two nights. They know of my condition, all my triggers and still continue to act completely ignorant. They actually seem to think it turns off in the daytime. This has been 8 months of hell for me. Family definitely doesn't understand. 2 more months before my neighbors leave too. My condition is severe and I am in hell. I was so mean to my loud eating dad growing up & it makes me feel shame. I feel like patient zero. 43 years old, self-diagnosed, didn't really know I had it until late 30's. Everyone just thought I was an a-hole and they all still do. It has effected almost every aspect of my life. Excellent video.
I had no idea. I guess I have misophonia. But before this video, I just came to the conclusion that I'm easily annoyed and sensitive.
HELLO EVERYONE IN 2021! 2+ years later, this video gets more comments - and the most meaningful comments - of any of my 300 videos! I am trying to continue the spread of helpful information on this topic and would like to catch the attention of renowned CZcamsr Anthony Padilla. He has a series called “I spent a day with...” where he interviews people within a specific group. I want to see misophonia covered, whether he interviews me or not! If you are here, watching this video, relating to or empathizing with it, please consider reaching out to Anthony Padilla via CZcams comment, tweet, discord, IG, whatever! Shot out misophonia as a topic you want covered (and shout out me @hollihuckleberry if you want to see me part of that!) I love feeling less alone and your kind comments mean the world to me... let’s try and get this topic to a wider audience together!!!!! Either way, thank you guys. 💛💛💛💛💛
I hope he does to those videos show bring much awareness and spread positivity and misophonia is barely known even by doctors
I was watching the 20 min Vice piece on ASMR, and discovered that not everyone is affected by ASMR, you know the tingles, and I wondered if there was a link between Miso and those whose brains respond to ASMR, like they were different ends of the same brain physiology continuum. There is some research that suggests this may be the case. I am that continuum, I get the tingles from certain sounds and I get the fight flight panic attack from others. It has been this way since early childhood and I am now in my 30s. I want to say, thank you for your language. In trying to find videos about Misophonia I keep seeing it described as the hatred of sound which is enraging also, it is so much more nuanced than that. It is, as you describe, a selective sound sensitivity syndrome and that is such a helpful way to explain. The hatred of sound sounds like some lazy generic explanation of the experience. It is being taken over by the sound physiologically and psychologically and not having the power to either stop the sound, your body's response to it, or have the social structure to do something that relieves it in an acceptable way. I hope as we move forward as a collective we pay more attention to the importance of sound and the way it affects all of us.
Yes. Just yes. 👏👏
💜🖤💜
I have misophonia as well and go into a rage at times... yet some sounds do tingle me with a positive! I've always thought I was a weirdo and had mental issues
i feel just the same. i feel bad about subtle noises like things get hit on the floor but i feel good with sounds like bells, cellphones msg tunes, and even fire crackers that are also pretty subtle...
Brilliantly put! I totally agree. I feel it will be so helpful when we find out what tools will help us to deal with this in an acceptable way. Hopefully we can even find a way to cure it completely ❤️
I went years without knowing I have misophonia, but now, looking back, there are a great number of arguments I had with people while eating that were more than likely just me getting triggered. I think my case is relatively mild considering some of the stories I have heard, but I will share with you how I cope. When I can’t hum, to myself or make some other noise to distract myself, I employ techniques similar to mindfulness meditation. When I’m triggered, I try to see and feel the trigger for what it really is. I tell myself that even though I feel angry, I am not angry.It’s just misophonia, and if the feelings Inspired by misophonia try to lead me down a train of thought such as “this person is being insensitive or deliberately annoying me”, I refuse to follow those trains of thought. It will be difficult at first, but whenever you find yourself going down those trains of thought, simply stop the train. The goal for me is for it to become a sometimes unavoidable emotion that I don’t need to act on
I also respond the same way... this rage. It’s so hard.
I'm literally on the verge of crying. This video and all of you having the same or similar problem that I have - I can't believe it. The sheer and utter anger I feel when I'm triggered.. the anxiety... the reaction! I experience that so often and it feels SO GOOD to just know other people have that as well. And I am so incredibly thankful for this little safe space I found. Thank you all so, so much.
I've had misophonia all of my life. It began when I was 13 years old and my parents' loud, open-mouth chewing during dinner upset me to the point that I started eating dinner in my room. It has impacted my life in many ways. Going to movies is uncomfortable because of all the people smacking on popcorn. I've been able to deal with that by eating popcorn myself, which drowns out the sounds of others. But without my own popcorn, I panic and have to leave the theater. Working is a nightmare because of all the people who loudly chomp, smack and pop their gum. I wish workplaces would stop allowing people to chew gum. I could deal with it if they only chewed their gum for ten minutes. I could leave the room or go to the bathroom or something, but these people chomp their gum 24/7! They always have to have something in their mouths! They probably chew their cud while sleeping, too! I feel anger towards the ones doing the chomping, but I also realize intellectually, that this is my problem and not really theirs. There needs to be a real cure for this, and not just bandaids like noise-canceling earphones.
Thank you for spreading awareness! I’m also tired of being the joke or being the “baby” and everyone looking down on me. I react in such rage that I just start crying. It’s not a pleasant feeling AT ALL and for those who don’t experience this, try to understand what your friends or family are feeling if they have this.
You did a great job Holli. I’m 59 and have had miso since I was 7. When I found out it was a real thing, I decided to make a documentary about it, it’s called Quiet Please... There’s a few trailers on CZcams and it will be on Amazon Prime in a few days (it was there for two years, but my distributor went bankrupt 2 weeks ago). As an aside, I think there’s a lot of psych that goes along with miso...the line gets blurred between neuro and psych, and it is progressive. I could go on. Good for you for discussing miso, it negatively affects every aspect of my life.
I have a friend who has it and I feel horrible because I cannot help him. Any advice?
Freddie Piras Show him the actual completed film, there’s no treatments in it, but he’ll see others like himself who live with as well.
i can’t even go to school anymore because of it
Faith I can't go univercity too
Ahmad Koja Idk if it’s this bc u spelled university wrong ;)
Fatal Error English might not be this person first language .
the hardest thing is when you have the courage to speak up and ask the source of the sound if they could attempt to be a bit quieter and they just make the sound louder as a reaction. That hurts.
I just found this as I was recovering from a panic attack, thank you for making this video, I really needed it
My mother did it !!! Woke up to hearing dishes in the sink :)) pissed me off
I don't go anywhere without headphones. I'm that guy with the headphones.
Omg. Thank you for sharing. All my life I thought I was the only one that has this! Its a relief.
Thanks for sharing, Holli! I just learned about misophonia earlier this year, and I knew as soon as I read about it that it was what I'd been struggling with ever since I was a kid. Our experiences sound really similar. The earliest I can remember being triggered by it is with my sister eating food when I was maybe 4 or 5 years old - she would mix her food around on her plate making a noise that really bothered me (esp moist rice or pasta with sauce on it), and then she'd eat her food chewing with her mouth open making this noise that I absolutely couldn't stand. I HATED it, and was very vocal about that, and so she would make the noises as much as possible to trigger me. My parents would basically say I was having a "melt down" for "no reason" and to leave her alone and let her eat.
Since then it has expanded to many other areas of my life, and seems really specific. For instance, the sound one of my co-workers makes when she sneezes bugs the $#!T out of me, the sound of one of my roommate's laughs infuriates me, babies crying, and some car engines, and certain sounds in songs really piss me off. Also, the way my sister eats still bothers me a lot when we're together, and the sound of some other people eating, but not everyone. These are just a few examples but there are many many more triggers for me. I've found that a common thing among almost all these experiences is the repetitiveness of the sounds (my co-worker always sneezes 10-20 times in a row, repeated chewing, etc.).
Thanks for the tips, I usually just boil with rage and try to wait it out until the sound is over or I can get away from it. Hahah. It's just really hard because yeah I do feel like no one takes it seriously, and also sometimes there's nothing that can be done to stop the noise (I asked my boyfriend to chew with his mouth closed, and he did start doing that, but I can't ask my co-worker to stop sneezing the way she does, or ask someone else's baby to stop crying lol). People tell me I'm over-reacting, and logically I know that I am, but it's an emotional reaction that happens so fast it just comes out of nowhere and suddenly I'm fuming. I don't think a lot of people understand how strong the emotion hits, OR how quickly it passes (for me) after the sound stops.
Precisely. I wish all the time that I could control myself from being offset from noises. In an instant I'm set off.
the worst part is my siblings. they purposely mess with me and they don’t care. they think it’s a joke.
Same 😭😭
Mine are Sirens, clicking, humming, banging, tapping, and fire alarms. Fireworks. Poppers.
Do you think you might have hyperacusis instead? Hyperacusis is typically discomfort caused by loud sounds and Misophonia is usually the quieter sounds that most people completely zone out.
Or maybe you have both who knows
@@el-ds4nx IDK for sure. maybe.
Mine is breathing
Two words.
Thank you.
this needs awareness this is ruining my relationships with people and i’m only 14 :/
Amazing job articulating not just the struggle of having misophonia (which is noooooo joke ugh) but also regarding communicating about it, especially when already triggered. It’s been a real journey for me as well. Musicless headphones has also been a great tool for me recently glad you found that too. I am glad this condition is getting some recognition-so helpful to know it’s real and that we’re not alone. Mahalo.
Thank you for educating us. I had no idea misophonia was a thing. Love all your vids btw. Been a "silent" subscriber for a while now. Very interesting information.
Brain and not heart!! Amazing revelation! I love that thank you! And yesssssssssss just knowing this is a THING is so comforting. Thank you for sharing your experiences and opinions 🙏🏻❤️
Thank you so much for making this video we really need to bring more awareness, and thank you so much for talking about visual triggers, I’ve been struggling with figuring out if those are related to my misophonia so thank you ❤️
I didn't know my struggle has a name. I hate it so much when people play music/watch videos in public, and I hate hate hate it so much when my brother sings loudly at home. The anger paralyzes me, I couldn't seem to do anything. It seems like I'm hearing everything all at once and it's overwhelming. I've been called "crazy" and "overly sensitive" for being like this. My ears would often hurt and ring from listening to music in maximum volume just to block out the noise.
My reaction is anxiety and anger. I'm afraid of confrontation, so I often just keep everything in. It's so tiring. I wish I can afford a therapist to help me with this problem. I feel so miserable. I am so tired. I want to live alone, away from my loud, inconsiderate family.
Thank you for sharing your experience!
I’m 13 years old and I have felt with this since I was 7. It’s been so hard because my triggers are paper on carpet, chewing, singing, humming, and just mouth noises in general. I’ve been told multiple times from my family that I’m ruining their life’s and that I’m just awful. They don’t understand and just think that it just bothers me. It doesn’t bother me. It makes me feel so much rage and panic that it’s hard to go places because I don’t want to be triggered. The other day I was trying not to break out balling because someone was chewing gum. It’s really hard and I’m glad that people are starting to Kiev more about it. Thank you so much for trying to raise awareness!! Your amazing!
Thank God for the Internet. I suffer from this since I was a kid and always thought there was something not normal with me, everyone around me always treated me like an annoying weirdo. I always have to eat by myself otherwise I go nuts, the older I get the less sounds I can stand. It's fucking hell 😔😔 I'm so happy there's finally a word put on this condition. It really needs awareness.
Thank you so much honestly. I’m sick of my parents taking it as a joke I’m glad I can relate to someone and relate to how you respond and help it too. ❤️
Thank you s o much for making this! Misophonia doesn’t get enough recognition. I sent this video to my friends so they could better understand.
Thank you for doing this video!! It is SO helpful! Listening to your experience is helping to articulate something I’ve struggled with for decades. ❤️
My dad is already 83 yrs old, his only joy is drama and news on the radio, and im annoywd of the noise, i keep crying because i am studying and thinking a lot of things, planning, i cant focus. My relatives just told me, leave him hes too old and when hes gone no one will annoy you. They dont understand me...
This is an amazing video! I relate so much, oh my stars. It’s such a strange thing, because you feel so guilty for feeling that rage. Still struggling, but working on it every day. I have found that the medication Latuda is life changing! Finally able to spend time with my family again. Remember that you’re a wonderful person, and your instinctive rage is not you xx
Thank you for this video xx
I only learned about Misophonia last week. I'm 54 and have been triggered by certain sounds for all my life.
Triggers include
A small child screaming, baby crying
People whistling
Chewing and slurping
A tap dripping
Dogs barking
I want to escape when I hear these noises.
I can only go to supermarkets early when very quiet.
I cant go into bars because its feels like my ears are getting damaged..its very stressful
When I go to the cinema I need to wear good ear plugs.
If I am doing anything academic I need total silence.
I know that I can hear frequencies that other people can't hear and I also have Tinnitus now.
Thanks for the great description of your symtoms/triggers.
Oooff I felt so understood while watching your video, it really makes me happy that I'm not alone with it... People always think it's not that bad cause they are not experiencing it... But now I can explain it to others better too, thank you! 🥺
Thank you so much for making this oml, I've been using it to help educate friends and family on miso :))
I hate it because when I'm eating with other people I get this really bad anger, after I go away I feel bad from having those thoughts
this video is so relatable. thank you for making this! people really don’t understand and they always act like i’m being dramatic or being too much.
I work in an office where the person that works behind me chews with their mouth open and it send me into a very quick rage.
I notice that even the sound of myself eating really bothers me, so I have to be playing music or a youtube video while i’m eating. being at a restaurant tends to drown out all of the sounds of chewing
I have found that wearing headphones with either music or white noise (my favorite is just the sound of rain). that way I can still hear conversation but I am able to tune out A LOt OF SOUNDS
airpods are a misophonia sufferers dream!
This video helped me so much! I thought I was the only one who was dealing with this, but I didn’t know what “this” was. I don’t feel as alone now, especially hearing your story and reading everyone else’s in the comments. Thank you so much for sharing this video, I really appreciate it!
I've had MIsophonia since age ten and I'm 63 now, so many years of suffering. Thank you for sharing your story. It's so hard to make people understand our condition, and it takes such a huge emotional toll. Like you, my triggers started with my father. Please know you have a friend up in Canada! Take care.
I have dealt with this for years, and was relieved a few years ago when I read about it being real and having a name. Basically, I feel rage. just rage. For me its mostly chewing sounds, but sometimes other stuff too. And sometimes the people around me will change the way they chew to try to be more quiet, but I can still hear that too, and it makes me even more enraged. Which makes me sad because I really do appreciate that they are making an effort not to trigger me but that effort is actually making it worse. I usually just leave the room, sometimes in the middle of a meal. It makes me feel so socially inept.
*When you’re in quarantine, you’re a child and stuck with the sound throughout the day.*
My family just says "just control your mind you're so annoying" or just laugh sometimes i wanna punch people that are doing the sounds that annoys. I feel like they don't understand me and when I told my mom that I have misophonia she laugh and said that's not a real thing, it's all in my head. So frustrating
man,,, this has to be one of my favourite videos. i loved the way you explained this, i relate to it a lot.
Finally it feel so great to find someone who can relate every thing you said in this video is what I'm going through and thank you for making this vjdeo
My mom clearing her throat, close family members eating at all, my grandmothers sneezing and omg chewing. And the unexplainable, people singing to songs... i just about loose my mind. The only one who really understands in my mom. A cure would be nice 😭
It’s so crazy hearing someone else talk about this. My story is almost identical to yours. Ive developed at least some coping mechanisms over the years that have helped but I still do not feel comfortable enough talking to people about it or asking them to stop what is triggering me. Only family and some friends even know that it’s a problem for me but they just don’t understand what it actually does to me. It’s so embarrassing to have and feels like no matter how hard I try to explain what I’m going through it will never truly be understood and most will just think I’m exaggerating. I’m hoping some form promising treatment comes in the future. Thank you so much for opening up and being vulnerable about this because it can be a scary thing to do 💙
I've suffered from misophonia for as long as I can remember, going as far back as 4 years old. However, I didn't know there was a name for it, or that it was even actually a thing, until just a couple of years ago. All this time, I had thought there was something wrong with me, and that I was just an overly neurotic crazy person who needed to learn how to control herself. Now I know I'm not alone, and that I can't just "get over it," as so many people have told me to do, throughout the years. Thank you for making this video and sharing your story. It felt like you were telling MY story, too! Word for word!
I have thiiisssss! Some sounds, especially repetitive, ones drive me nuts, I get hot flushes and anxiety. My family and friends think Im being over the top.
I found your video super helpful, thank you, I cried for most of it, it resonated so much.
when sound drives you nuts it doesnt matter who is who. your whole world will just collapse. no matter the degree you suffer from it. you will just suffer..... the thing is.. one leads to the next trigger and if your having a bad day it will be compleete doom.
Thank you so much for this video!! I'm so happy to see the conversation surrounding misophonia become a little more mainstream. I've suffered with it for half a century. Beginning around age 10 with my dad being my first trigger. Due to the unique dynamics in my family, I wasn't allowed to tell him or even show by my facial expression that I was hurting. At main meals my mom started playing the radio in our dinin g room on a moderate volume. It didn't drown it out, but I learned to focus past the trigger ( a little) by focusing on the radio. A tall order for a 10 year old! One thing I experience is actual physical pain...also exhaustion. I suppose from the extreme amount of energy it takes to stay composed, not show what you're feeling,etc. I've tried to talk with colleagues about it when I wasn't "in the moment". It usually doesn't help and I get a "deer-in-the-headlights-look". I once gave a co-worker a $5.00 bribe to spit out her gum!!😆 Love the kitty in the video!! Bless you in your struggles!!
Thank you so much for this video. I’m looking through the internet for answers about these irritating triggers.... I also seem to be hurting people closest to me with my reactions & it doesn’t feel great. Understanding this, knowing other people are dealing with this and hearing your coping mechanisms helped me so much. Thank you again!
I can relate to this video . I get so angry and frustrated when my brother eats soup and make loud noises , also with spaguetti. I remember that a few years ago I was mean to him but now I just leave the room or concentrate in something else and I try to explain that is nothing personal. Also I get triggered with some whispering sounds.
(I know this is a year old comment) But yes, whispering is so bad... My parents would talk loudly during my study sessions, I would tell them to be quieter, and so they start whispering and it's so much worse and they don't get it...
Thank you I relate so much!!!! I’m so glad you made this video
Thank you so much for making this video
Hi Holli! So nice to see you! Your awesome! Nice video! Love the hair:) thanks for the information! Cute kitty! Awwww she sooo cute! Keep it up! Till later!
Thank you for making this Video! I have struggled with misophonia since I was a child and still do everyday, it’s just nice to know I am not alone!
So grateful for you sharing your experience and this video. I've struggled with debilitating anxiety the past 5 years, with each year becoming gradually worse and doctor's were unable to identify the root cause. No amount of exercise, clean eating, yoga/meditation would help ease the anxiety, and I always blamed myself for being weak. Until recently, after seeking countless neurologists and therapists, I was diagnosed with sensory processing disorder and misophonia. Now I know I'm not crazy or ashamed, and no wonder I was anxious 24/7 due to my daily environment being constant triggers. It's such a real thing and it sounds like a stressful life, but getting diagnosed and watching videos like this truly help accepting and loving ourselves, as well as working towards a better quality life. Thanks again for sharing! ❤️
I’ve noticed that the best way to avoid a trigger is to somehow distract yourself from the sound by working on other things.
Thank you very much for your wonderful energy and information :) also, i really like your glasses :)
GOSHHH THANK YOU FOR THIS VIDEO!!! It makes me feel better knowing that I'm not alone.
I sometimes think..People who purposely make noise to trigger are same as abusers who hurt women physically.. People need to understand their noise is actually causing pain ..
I appreciate this video so much. due to this not being a well known issue, it is hard to find help or even other people ho struggle with the same thing. when this happens, it makes me feel alone. this video really helped with this.
i have serious misophonia, i get sent over the edge when someone is chewing food, or especially gum, i can not stand it.....i have 2 little girls, and even the sound of them sucking on their binky or pacifier is unbearable. It makes me feel like an awful mother that i have to ask them to take out something that comforts them because i can not stand to be in the room....but videos like this make me feel so much better, knowing i am not alone....because most of my life people have dismissed my anxiety with sounds or thought i was being dramatic...its nice to know that other people experience the same level of distress i have... i woudnt wish this on anyone...but thank you for sharing.
I RELATED TO THIS WORD FOR WORD... Thankyou so much for making this video 🥺
Thank you SO much for this video! I have been struggling with Misophonia for several years now and it is really hard to talk to people about! I can relate because my dad also makes a LOT of noises at the dinner table that really trigger my misaphonia to the point where I have actually had panic attacks while having dinner with my parents. One of the hardest parts is trying to stifle it when in social settings. For me my triggers are: any eating noises, drinking noises, and swallowing noises, but the frustrating part is I trigger myself sometimes which is never a fun time. For those of you who don't know how to cope with it their are also lot's of support groups online that you can join and just be with other people who are going through it and rant about what it's like which can be relieving! I hope if you are reading this that you have an amazing day!!!