My Colorectal Cancer Symptoms: Kelly's Story | The Patient Story

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  • čas přidán 8. 06. 2024
  • When Kelly was 8 months pregnant she started getting symptoms including constipation, appetite changes, fatigue and blood in her stool. But her symptoms were repeatedly dismissed by doctors as pregnancy and postpartum changes. After nearly a year of advocating for herself, she finally got a colonoscopy that revealed a large tumor and was diagnosed with stage 3 colorectal cancer.
    Rather than move forward with the planned chemo, radiation and surgery, Kelly was able to join an early clinical trial for an experimental new drug called dostarlimab. After 9 treatments over 6 months, scans showed Kelly's tumor had completely disappeared!
    Full story & transcript → www.thepatientstory.com/patie...
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    Contents of this video:
    00:00 Introduction
    01:10 My first symptoms
    02:45 Being dismissed by doctors
    09:18 Getting a colonoscopy
    11:34 Getting the colorectal cancer diagnosis
    13:47 Discussing fertility & cancer
    18:47 Joining the Dostarlimab clinical trial
    26:11 Words of advice
    #colorectalcancer #colorectalcancerawareness #listentoyourbody #FightColorectalCancer #clinicaltrials #coloncancer #cancerawareness #symptomsofcancer #cancerscreening #colorectalcancer #cancerprevention #cancersymptoms #cancertreatment #cancerresearch #colorectalcancersurvivor #thepatientstory #cancerstories #cancer

Komentáře • 450

  • @ThePatientStory
    @ThePatientStory  Před 10 měsíci +19

    We’d love to hear from you: what were some of your first symptoms? Leave us a comment below 👇
    Want to share your story 👉 www.thepatientstory.com/share-your-story/?CZcams&

  • @lgibson9360
    @lgibson9360 Před 8 měsíci +122

    The amount of doctors that dismissed her symptoms is appalling. This poor woman. Glad she is doing better now.

    • @alcoholya
      @alcoholya Před 4 měsíci +6

      yeah, and there are tons of videos of different people all with the same story...

    • @angelh3771
      @angelh3771 Před 2 měsíci +1

      Happened to me before. Around the same time that happened to me, my son was diagnosed with leukemia and very long story short, it turned out he did not!!! 😮 Also, my husband was told he most likely had lung cancer. N he did not!!! Yep! Thats exactly what the DR said "you most likely have lung cancer" but the specialist he sent us to and the second opinion Drs said no, he did not have lung cancer. My uncle repeatedly was told that he had the flu. My aunt brought him home from the Dr for the 3rd time n she found him on the bathroom floor passed away the next morning. He had a pulmonary embolism. My aunt received a settlement for that one!

  • @jacktaylor1030
    @jacktaylor1030 Před 9 měsíci +100

    MY MOM FOUND OUT SHE HAD COLON CANCER AND SHE DIED WITHIN A MONTH. MY SISTER WENT TO ER, WHERE THEY DIAGNOSED HER WITH COLON CANCER, AND SHE DIED WITHIN TWO WEEKS. COLON CANCER IS A KILLER!!!! YOU ARE VERY LUCKY!! I'M CURRENTLY SURVIVING LUNG CANCER THAT WAS CAUGHT REALLY EARLY SINCE IT SHOWED UP IN AN X-RAY FOR SOMETHING ELSE. I WAS LUCKY, SO FAR. GOOD LUCK SISTER, I LOVE YOU!!!!!!!!!

    • @angelh3771
      @angelh3771 Před 2 měsíci +3

      Im sorry about your mom and sister 😢 I've had 5 relative/inlaws who've survived colon cancer. I have 8 relatives who are cancer survivors (5 colon, 1 skin, 1 one throat, and 1 breast) survivors.

    • @cat7434
      @cat7434 Před 8 dny

      🙏🏾🙏🏾🙏🏾

  • @Chels-fz5uq
    @Chels-fz5uq Před 9 měsíci +117

    I am a physician and my autoimmune diagnoses plural were missed for almost 20 years. Close call with death, financial destitution, depression and complete career devastation I am now being treated right and somehow have my career back. I don’t know how I’m alive. Even as a doctor, I had to push and fight doctors to get answers. One surgeon almost killed me.

    • @boe1956
      @boe1956 Před 9 měsíci

      Doctors cannot agree to what I am sharing here with you today, because of what they are taught and what they must adhere to legally. People globally are curing their cancer sir. Using a protocol with de wormer and added supplements like mushroom, berberine, curcumin, Annatto, cimetidine, CBD oil, ...ya it has over 160 research papers on it. Many are now alive and cancer free...and all they want to do is shut down these groups and channels..sad very sad...Just check these out and SEE for yourself what people are saying and their different protocols. So many different cancers and end stage and terminal made a complete 100% turn around,. My gastro doctor was in shock last week, when I told him about this guy Kevin from Beating Cancer Today on FB group who cured 4 stage colon cancer, set home to die. His mouth dropped open and he got sad, he said, they don't want a cure, they will lose billions of dollars and he shook his head. So...have a look doc. The protocols work right along side with chemo and immunotherapy. Google joe tippins blog. On FB 3 groups, join them all, just to see and listen, ur mind will be blown. My Cancer Story Rocks (password is Mulligan)(over 40,000 members globally. ) Beating Cancer Today, (cured his colon cancer and since over 100 have had success with HIS protocol.) Next.....Febendazole Cancer Support Group....all these are FB groups with cancer testimonies. I am on that protocol for bladder cancer. People are coming out with shrunk tumors on scans and as they continue, many 100% cancer gone.

    • @gattitudine
      @gattitudine Před 8 měsíci +2

      Can I ask which desease if you want to tell? It's like my story

    • @sarahok6589
      @sarahok6589 Před 8 měsíci +5

      omg you need to write a book

    • @sarahosborne7477
      @sarahosborne7477 Před 2 měsíci +2

      The sewer smell was it from gas? Or just a smell coming from your pores etc..?

    • @sanapowers
      @sanapowers Před 17 dny

      Interesting, very informational. I'm looking at APR resection end colostomy , and removal of part of vagina, total hysterectomy. It's after chemotherapy & radiation treatments did not get the tumor, still active 😔 I'm not sure how many infections are ahead, radical surgery. Although though it shrank significantly it's active on PET scan. Quality of life, ostomy, urinary issues, and infections are troubling. I'm on zero medication & healthy despite treatments, so I am still processing not being this healthy, and a life long customer of medicine, and infections. It's a beast, and sexual dysfunction is an understatement as to women considering the surgery, and radiation, chemotherapy after effects of trying to treat this. I'm 57, just turned 58. I was hoping chemo radiation would have been remission. Your treatment was successful, and I pray 🙏 that good health, remission, and no tumor in your future. I've had 4 children, and am celibate for 7 years, and that has helped me, otherwise I'd be devastated for my husband, so that is a positive for me now.

  • @laurareynolds2239
    @laurareynolds2239 Před 10 měsíci +89

    Its concerning how dismissive and uneducated Doctors today can be.😳

    • @dorothybrown8859
      @dorothybrown8859 Před 9 měsíci +2

      Uncaring, Laura Reynolds. On the other hand, some look at you, think you look good, so think nothing could possibly be wrong!

    • @ogle1go
      @ogle1go Před 25 dny +1

      ICAM I know they know how cancer is starting younger than ever. smdh

  • @laurawalker9035
    @laurawalker9035 Před 8 měsíci +77

    As a former cancer clinical trial researcher who worked on trials exactly like yours, it's encouraging beyond all measures to hear your success story! Researchers fight so hard and feel utter discouragement when a patient is lost.
    Please, please, please stay on top of your follow ups for decades to come! I can't stress this enough to you. So many patients are lost years later because they became too relaxed with being "cancer free." You can do this! You are stronger than you know ❤

    • @ThePatientStory
      @ThePatientStory  Před 8 měsíci +10

      Laura, thanks for your work in clinical research! -Stephanie

  • @ahphong2904
    @ahphong2904 Před 9 měsíci +34

    These doctors should be reported to the Medical Review Board.

  • @katytaylor681
    @katytaylor681 Před 4 měsíci +41

    Very interesting. I am in awe of these people who are not bitter towards the doctors who fail to diagnose early. I have zero medical training yet if anyone mentioned blood in their stools I would instantly know they need to be checked!

  • @cathernandez3174
    @cathernandez3174 Před 2 měsíci +15

    I'm 36 and currently experiencing these same symptoms, had my second child 18 months ago. I've taken two FIT tests both came back abnormal, I've lost so much weight and just don't feel well. Cancer runs in my family so I'm hoping I won't have to jump through any hoops to get my colonoscopy. Thank you for sharing your story.

  • @TexasbyStorm
    @TexasbyStorm Před 9 měsíci +169

    I was gaslighted for a year. I was 37 when I started having symptoms. It took 18 months and being admitted to the hospital and saying I won't go home until they find out what is wrong with me. I knew my body and knew something was wrong. They did laproscopic surgery and the second the scope was put in they found my entire abdominal cavity filled with a bright green mucinous substance. My appendix had filled with cancer, ruptured and been dumping this stuff into my abdomen for close to two years. Since I began complaining of intense stomach pain. My doctor gaslighted me. Said it was IBS. 3 surgeries, one of which was an experimental heated chemotherapy belly wash, and 2 rounds of chemo later I was cancer free. Always advocate for yourself!

    • @juliec4985
      @juliec4985 Před 9 měsíci +13

      Holy crap! Good for you for advocating for yourself. Sorry you had to. Best wishes!

    • @nickawilliams5175
      @nickawilliams5175 Před 9 měsíci +7

      I'm so glad that you advocated for yourself and had got heeled.

    • @amyb42481
      @amyb42481 Před 9 měsíci

      Did you have an ultrasound at any point?

    • @TexasbyStorm
      @TexasbyStorm Před 9 měsíci +3

      ​@amybelcher6908 I did not have an ultrasound. They did a CT scan, couldn't see my appendix on CT, saw fluid, told me it was a ruptured cyst and I would get better on my own. Went in a couple months later, another CT scan, no appendix in scan and fluid. Again another ruptured cyst, told me I should go on birth control. I went back in a day later in terrible pain. They did another CT and there was even more fluid. They knew there was no cyst because I'd just had a scan the day before. The fluid was coming from an unknown area. That's when the doctors began arguing over what to do. I was in the hospital on and off NPO for 3 days while they argued. Finally I told the doctor that wanted to do the surgery that he was the one I wanted to care for me and just find out what is going on. That's when they found the cancer. My appendix had been ruptured and open leaking into my abdomen for at least months since my first CT, which is why it wasn't visible.

    • @mycharmedunicorn8715
      @mycharmedunicorn8715 Před 8 měsíci +3

      Wow that is awful

  • @gilly8876
    @gilly8876 Před 9 měsíci +31

    The bloodwork with many cancers always comes back fine until very late stages. So it makes me so mad when they say, "Your bloodwork is fine."

    • @desertweasel6965
      @desertweasel6965 Před 3 měsíci

      Cancer depletes red blood cells. Usually, it will show up in your blood work. It won't tell them what kind of cancer, or even if you for sure have it. They may not even mention cancer to the patient and just schedule them for a Scan or colonoscopy and endoscopy to find out what is depleting the red blood cells.

    • @dr.bhavyaharikumar5483
      @dr.bhavyaharikumar5483 Před měsícem

      Seriously?

    • @ThusSpokeanotherman
      @ThusSpokeanotherman Před 2 dny

      The body easily adapts to minor blood loss so it might be true. Not always but you know

  • @elizabethbeth9930
    @elizabethbeth9930 Před 9 měsíci +45

    Im going through cancer and im doing it by myself, i have people around but no parents or siblings etc. I'm trying to be strong and I have God

    • @walterwally983
      @walterwally983 Před 4 měsíci

      How are you now?

    • @crocadoodle7101
      @crocadoodle7101 Před 3 měsíci +4

      ❤️

    • @ccalexander1924
      @ccalexander1924 Před měsícem +2

      I hope you are doing ok. I have an extremely small family. So I know how it feels to have to do everything on my own without much help. I hope you are doing ok

    • @elizabethbeth9930
      @elizabethbeth9930 Před měsícem +3

      @@ccalexander1924 thank you I’m doing good thank God I’m just happy to be alive

    • @Coratime
      @Coratime Před měsícem +2

      ❤. You are in my thoughts.

  • @ZeldaZelda-RichesToRags
    @ZeldaZelda-RichesToRags Před 10 měsíci +337

    My niece was 33 lost her life a few weeks ago of colorectal cancer… it was beyond heartbreaking. She had her own practice in psychiatric practice for treating young children with autism by combining natural and western medicine… she ignored the symptoms and was too late…. She was a very beautiful and very smart young woman,

    • @magicalhealerclairvoyant521
      @magicalhealerclairvoyant521 Před 10 měsíci +21

      I’m so sorry to hear of your family member passing. It’s a frightening disease and we all navigate through it the best we can.

    • @greeneyes6311
      @greeneyes6311 Před 10 měsíci +16

      I'm so sorry for the loss of your niece. She is a loss for our world, as well.

    • @Bankaimg
      @Bankaimg Před 10 měsíci +19

      What do you mean she ignored the symptoms? What did she have? Sorry to hear that. So freaking young 😢

    • @Tina-bp7wt
      @Tina-bp7wt Před 10 měsíci +12

      So sorry to hear that 💔

    • @DB26423
      @DB26423 Před 10 měsíci +8

      😢❤❤❤❤

  • @lifesaver5384
    @lifesaver5384 Před 8 měsíci +45

    Just found your channel.I was 63 when I was diagnosed . I had symptoms for about a year. I told 3 of my doctors but they said it was the medication I was on. And to be fair, it could have been. I had severe constipation and that was my only symptom. I asked my GP for a colonoscopy but she was reluctant and said it was my medication and hemorrhoids. I finally told her I will keep calling and keep coming in until I get tested. She agree to the mail in test. It was positive. So they still said probably nothing but did schedule me for a colonoscopy. As soon as the doctor came in after I woke up I could tell by her face. Yup, they found a very large growth. It was the most common kind of colon cancer. So I was scheduled for a colectomy. Stage 2A and they removed a big section of my small intestine. Checked 32 lymph nodes. All were clear. The tumor had almost completely blocked my colon. But they got everything. No bag, no chemo, no radiation. I just had my year later colonoscopy and everything is clear. If you feel something is wrong, KEEP PUSHING! Advocate for yourself.

    • @America46744
      @America46744 Před 7 měsíci +3

      How bad was your bleeding, was it just on your poop or would you bleed without pooping?

    • @sarahosborne7477
      @sarahosborne7477 Před 2 měsíci

      Whats a colectomy?

  • @RainyRoth
    @RainyRoth Před 9 měsíci +63

    I was gaslit for over six months by a doctor who said I was depressed, had hemorrhoids, and my five days of vomiting was “just the flu”. I made them refer me to a gastroenterologist. I called them directly and they got me in the next morning. I was admitted to the hospital and the next day had a colonoscopy to confirm stage 3 rectal cancer. Controversial, but I don’t think this happens to men as much as women.

    • @mycharmedunicorn8715
      @mycharmedunicorn8715 Před 8 měsíci +5

      You mean the cancer or the gaslighting happens more in women? For a serious illness, I would rather go see a woman Dr.. I feel men doctors don’t take me serious for some reason. Do they think all women are hypochondriacs? I sort of feel a woman is more in tune with her body. Since giving birth many years ago, I feel like I can connect my brain to internal parts of my body and “feel”.

  • @abigailbacon4318
    @abigailbacon4318 Před 9 měsíci +88

    Got dx with colorectal cancer at 29 years old while having a 8 month old boy. Crazy how similar our story is. Glad you are doing well and so upsetting to see new young moms getting this cancer!😢

    • @angelfirelite
      @angelfirelite Před 6 měsíci

      Too many people all ages getting too much cancer these days.....hmmmm!

  • @debbieschultz106
    @debbieschultz106 Před 10 měsíci +90

    I'm glad you shared your story, sweetie. I'm in my 60s, and I'm getting a colonoscopy. I have had them before, but I feel something is wrong this time. I'm a huge advocate of taking your health into your own hands and persisting these tests. Your doctors failed you. You could have caught it early. I'm glad you're doing well.

    • @d.h.1691
      @d.h.1691 Před 9 měsíci +20

      I pray and hope that your colonoscopy went well and that there is nothing wrong. 🙏🏻 Would love to hear an update on you.

  • @gail4972
    @gail4972 Před 10 měsíci +35

    I feel so bad for her because they didn't take her seriously. So sad that just because you're young, they assume nothing is wrong...I hope everything works out for her.

  • @mthomas183
    @mthomas183 Před 9 měsíci +23

    The way my jaw hit the floor after you went to the EMERGENCY ROOM and they brushed you off again!! How embarrassing for those doctors, clinics and hospital. They should be ashamed.

  • @peterbland7227
    @peterbland7227 Před 4 měsíci +10

    My mother died of colon cancer in 1993. She lived for five years after her diagnosis, largely because she was in the clinical trials for the chemo port. A few years after she died, I stared working for Genentech, who developed Avastin - the first biological approved colon cancer. Now there are the next generation of treatments, like the one you are on what a blessing!

    • @lindalester9151
      @lindalester9151 Před 4 měsíci

      Thank you for sharing your journey. I'm sure your Mom is very happy for the career path you have chosen. Her bravery to go through the trial for the chemo port was an extremely important trial. I'm so sorry for your loss. You should feel proud to be a part of this company and life saving research they do. Why are we as the public, not hearing more about this drug? Was the drug you mentioned what this girl in the video was given?

    • @peterbland7227
      @peterbland7227 Před 4 měsíci

      @@lindalester9151 Thank you. AvastinI was approved in 2004 for colorectal cancer. Although not a cure, it was one of the first Biotech drugs to extend lives and improve the quality of life. I believe what this person rd River is s new class of Immunotherapy drugs that are achieving these kinds of remarkable results. As the Paul Simon song says “age of miracle and wonder”. Ironically, I suffer from Macular Degeneration, and receive a small dose of Avastin in my right eye every 6 weeks to keep my vision stsble.

    • @helentaylor7132
      @helentaylor7132 Před 2 měsíci

      @@lindalester9151 No, not the same. Googled it. Avastin is bevacizumab. This young lady received dostarlimab.

  •  Před 9 měsíci +12

    I live in a third world country called Paraguay. I went to the proctologist and said: I just poop blood.
    After a quick check he said: colonoscopy. No cancer was found, only polyps.

  • @Sshruff1
    @Sshruff1 Před 9 měsíci +23

    Ugh. I’m so sorry. I hate that we have to fight doctors for our health. I was diagnosed with colorectal cancer with all those same symptoms during Covid. The worst was the constipation and I couldn’t sit down for more than about 30 minutes without being in pain. They kept saying it was probably hemorrhoids! I was too young and healthy to have cancer they said. When I finally said they had to do something about my pain, they agreed to give me an MRI and because of the inflammation in my buttocks, they couldn’t see anything. Sent me to the ER and I got admitted for an emergency colonoscopy. They couldn’t even get far into my colon because I had a large tumor blocking it. Thank god I pushed and pushed. I have been in remission for almost 3 years. Radiation was the worst for me. The burns were horrible. But it did shrink my tumor a lot. Still had to have a 17 hour surgery but I’m alive.

  • @monicamolloy5105
    @monicamolloy5105 Před 3 měsíci +4

    I am a great believer in clinical trials for drugs, vaccines, and devices. I appreciate your participation.
    My best, Monica

  • @AS-yz2iz
    @AS-yz2iz Před 9 měsíci +41

    I get the part about it all hitting you later, after treatment. It was the same with my son who had leukemia at 19. He was so strong and positive during treatment, but suffered PTSD anxiety after. Honestly, I went thru the same thing as his caregiver. It's hard. When youre in the midst of the battle, you're just focused on surviving. It's not till after that you have time to reflect.

    • @kermitandmisspiggyb
      @kermitandmisspiggyb Před 9 měsíci +6

      Cancer is hard on the patient and the caregiver. You’re a good mom. Hope you’re doing well now. For me the passing of time has helped. I’m glad your son survived. Wishing you both the best life, this life has to give.

  • @magicalhealerclairvoyant521
    @magicalhealerclairvoyant521 Před 10 měsíci +40

    What an inspiring message. It appears more common than not to be dismissed by healthcare providers. To get an honest answer is only by tons of research, people like you whom are transparent, willing to share your journey and learning the right questions to ask. Truly we navigate our own health. Thank you for sharing and congratulations on the birth of your new little girl. ✨💖✨

  • @Oogieone
    @Oogieone Před 9 měsíci +17

    Doctors really need to get past their pre-conceived notions. I was ignored because I am overweight. So their advice to me was lose weight. Even when I told them I am losing weight and I’m not trying to. Too many people suffer needlessly because they don’t listen. We know our bodies.

    • @mianimranahmad8040
      @mianimranahmad8040 Před 2 měsíci

      Can u please tell what’s ur symptoms were?

    • @mianimranahmad8040
      @mianimranahmad8040 Před 2 měsíci

      I loose weight if I reduce diet. If I do exercise of walk weight goes down very fast.
      I lost 8 kg in two months.
      If i don’t monitor my diet, my weight goes down 250 gm daily. If I take eonough food my weight donot loose.

  • @berna_emec
    @berna_emec Před 9 měsíci +3

    So sorry for the things that you went through and that you were dismissed before! :( I’m so happy that the new drug worked for you and that you don’t have cancer anymore! 🙏🏼❤️

  • @carolinefrederico1712
    @carolinefrederico1712 Před 9 měsíci +40

    These stories are absolutely heartbreaking for us in Canada to see. We pay not a cent for our universal coverage and get whatever tests we want, when we want. I had a benign polyp removed 30 years ago and I get a colonoscopy every five years just to check. No symptoms required. It staggers the mind that the richest country in the world has a for profit health care system that gaslights young patients because they don’t want to do costly tests. Tragic!

    • @slowrunner40
      @slowrunner40 Před 7 měsíci +10

      I don’t know where you live in Canada but they is not our experience. My sister passed away from this because her dr refused to give her a colonoscopy even though she had symptoms for 10 years! By the time she got one it had spread to her ovary. She fought for three years. Now even with a family history and having had a polyp my dr said a colonoscopy is recommended only every 10 years! Even when you show symptoms it takes 3 months to even get a specialist appt or longer. We live in Vancouver.

    • @carolinefrederico1712
      @carolinefrederico1712 Před 7 měsíci +1

      @@slowrunner40 I am so sorry for your loss, that’s terrible she was refused a colonoscopy on time. I lived in Toronto for the thirty years this applied. I even had one in the first few months of the pandemic. I guess not all provinces are the same. I’ve returned to my home province of Nova Scotia and we are painfully underserved by family physicians and the colonoscopy waitlist is around 9 months now. I hope you are able to get the tests you need and not wait 10 years!

    • @ykook7000
      @ykook7000 Před 6 měsíci +1

      USA is the richest 3rd world country

    • @aniello4633
      @aniello4633 Před 6 měsíci +5

      American taxpayers money goes everywhere in the world except its own citizens. Our healthcare system is overwhelmed by non citizens that don’t pay, it’s out of control what’s going on.

    • @carolinefrederico1712
      @carolinefrederico1712 Před 6 měsíci +1

      Oh please, you must be a Republican. Your contributions outside are a minuscule number of your GDP. Your healthcare is not overwhelmed by non-citizens, it’s overwhelmed by lobbyists of Big Pharma and Insurance companies that don’t want to see their grotesque profits affected by universal healthcare. @@aniello4633

  • @etlay5684
    @etlay5684 Před 2 měsíci +2

    As a RN, I am shocked to hear that you were dismissed by many doctors especially with your later symptoms of losing weight, blood in the stool and abdominal cramps, they are the typical symptoms of colorectal / colon cancer. In Australia, we get a 50th birthday gift from the government , a free stool kit send to us not long after our 50th birthday and we receive them every 2 year (if negative) to check for blood in the stool and a few people that I've known found out their early cancer from this life saving kits. Glad you are doing well and wishing you all the best.

  • @29sagittarius51
    @29sagittarius51 Před 10 měsíci +12

    What a fantastic story!! Thank you for sharing your journey. Sending love, light and prayers to you and your family 💕

  • @sunnygirl1714
    @sunnygirl1714 Před 10 měsíci +21

    Great interview. She is so relatable and kind. I’m very happy her story ends well.

  • @krebbyzkydzfantasyart7311
    @krebbyzkydzfantasyart7311 Před 9 měsíci +17

    Same thing happen to my 37 yr old daughter Northern NY. Baby was born and 10 days later the news was delivered. Colon cancer spread to liver. She passed 2019 leaving 2 beautiful children and husband

    • @KBauer700
      @KBauer700 Před 4 měsíci +2

      I am so sorry about your daughter. I lost my mom when she was 64. They all kept telling her she was bleeding due to menopause and she needed a hysterectomy. Her side hurt all the time and she would bleed heavily every two weeks. Her tumor was found off a cat scan by a regular doctor in the lining of her colon. It was the size of an orange. She was a very healthy person. She was loyal about getting those done and her previous colonoscopy was 4 months before. The doctor missed it. It was already too far gone in her liver and lymph nodes but she did the chemo. She passed away 3 months later. Now as I reflect on these stories my mom didn’t want to bother the doctors and stand firm now I blame myself for not letting me go with her because I loved her so very much and she never ever complained.

  • @maryl4620
    @maryl4620 Před 7 dny

    Sometimes it is very hard to get a correct diagnosis. You know your body and have to push ahead. Thank you for sharing your journey.

  • @nicford548
    @nicford548 Před 10 měsíci +26

    That statement you made about “not being able to see a doctor” because you don’t have health insurance is absolutely shocking!!! This is suppose to be an “advanced” country!! WTH?

    • @misswinnie4.8
      @misswinnie4.8 Před 9 měsíci +3

      She could have seen anyone. In America it is illegal to be turned away.

    • @katcihealer
      @katcihealer Před 9 měsíci +6

      This is not an advanced country in regards to health care. If you think this country cares about your health, you are sadly mistaken.

    • @kwester318
      @kwester318 Před 9 měsíci +3

      ​@misswinnie4.8 I have a relative that is 63 years old, in very poor health, and on Medicaid. The only way you can see a specialist is with a referral. Getting his PCP to refer him has been next to impossible. When you are poor, no one cares about your health care has been his experience. It's so very sad.

    • @lynnelee4390
      @lynnelee4390 Před 18 dny

      That's just not true. I have no money, and have been in the error and hospital twice recently. Youu do have to advocate for ur own Healthcare tho, whether u have insurance or not.
      If it's a long term illness u go on indigent care, which is medicaid, it's free

  • @bichonbeach3859
    @bichonbeach3859 Před 10 měsíci +11

    Two weeks-for results I can’t believe how long you waited for all of this. You picked a great hospital. I hope you are doing better!!!

  • @temmietaft2552
    @temmietaft2552 Před 10 měsíci +8

    Thank you so much for sharing your story. It has truly encouraged me to listen to my body!!

  • @elainetyler5800
    @elainetyler5800 Před 10 měsíci +10

    What a beautiful lady! Thank you for sharing such a traumatic experience!

  • @richardhutchison3123
    @richardhutchison3123 Před 9 měsíci +5

    What a roller coaster journey you have been through! Congrats on baby #2 through all of the things you have been through. I wish all four of you the very best that life can offer! Listening to your body is the BEST advice that you gave. Thank you!

  • @GS-om4xk
    @GS-om4xk Před 5 měsíci +2

    Wishing you the best and congratulations!

  • @SaraCarrera-yf8tr
    @SaraCarrera-yf8tr Před 3 měsíci +3

    These stories are so important for people to hear

  • @juliesmoochy3996
    @juliesmoochy3996 Před 10 měsíci +18

    I pray for a total cure 🙏 ❤️ from this horrific disease.
    My best wishes to you and your family.

  • @colemacedo-phillips5768
    @colemacedo-phillips5768 Před 4 měsíci

    You’re amazing Kelly! Thanks for sharing. 🥰🙏🏻

  • @nkratochvil122
    @nkratochvil122 Před 10 měsíci +6

    What is this treatment...thats amazing!! Praying for you❤

  • @hannahdarosanutrition
    @hannahdarosanutrition Před 2 měsíci

    Amazing lady. ❤ Thank you for sharing your journey

  • @psrwhite
    @psrwhite Před 10 měsíci +25

    Thank you for sharing your story, Kelly. I am a breast cancer survivor. You have encouraged me to keep pushing for new screenings in areas of my body where I'm not feeling right. Yes I always worry that my cancer may return! Im trying not to over worry of course. I think you would make a great therapist or counselor for others who are going through cancer, whether they are newly diagnosed or, like me, 18 years out! The worry never goes away. It is important to keep pushing for answers when things don't feel right. Thank you again! You are so reassuring!!

  • @michelle3830
    @michelle3830 Před 9 měsíci +12

    I had same symptoms ( know the smell) but not much blood. I was angry when my family physician insisted i see GI & get colonoscopy. I do not have cancer but feel like a fool for my resistance. So your story helps ppl like me as well. I wish you an end to tiredness & symptoms and a a healthy life. Thanks for sharing.

  • @Catherine3296
    @Catherine3296 Před 10 měsíci +20

    I am happy to hear Kelly the drug worked and your tumour went down. And congratulations on your new baby .

  • @lisabourque1321
    @lisabourque1321 Před 9 měsíci +3

    Thank you for sharing your story ❤️

  • @juliekelderman4041
    @juliekelderman4041 Před měsícem

    Congratulations on your new baby!!!

  • @amccar27
    @amccar27 Před 3 měsíci +1

    Wow you are such a brave amazing woman! You’re an inspiration. Thank you for sharing

  • @alyssasawyer9429
    @alyssasawyer9429 Před 9 měsíci +30

    I’ve been dismissed for 7 years. I finally met a GI who told me I’m probably constipated. I’m so glad I stood up for myself and I told him “I don’t care what you think, schedule the scopes”. I have them on Sep 26 and I really
    Hope they find what I’ve been feeling.

    • @claireashley427
      @claireashley427 Před 8 měsíci +4

      Praying your colonoscopy/endoscopy went well and you got the answers you're looking for and that it isn't cancer! How are you doing? Did they find anything? Good for you for advocating for yourself!❤

    • @sonyaskogstad3849
      @sonyaskogstad3849 Před 8 měsíci +2

      Good luck and its great you are advocating for yourself.

    • @katiebarquet8783
      @katiebarquet8783 Před 8 měsíci +4

      How did your scopes come out ?

    • @mysteriousromania6121
      @mysteriousromania6121 Před 7 měsíci +1

      What did you find out after your colonoscopy? Hope you’re fine!!!

    • @mysteriousromania6121
      @mysteriousromania6121 Před 7 měsíci +1

      @alyssasawyer9429 What did you find out?

  • @jjaniga7043
    @jjaniga7043 Před 9 měsíci +16

    Hi Kelly, I was a new mom too at 32 and they assume my systems were due to being a new mom. I had colon cancer. I knew something was wrong like you did. I believe my daughter saved my life. God blessed me with her and the pregnancy is what saved me.

    • @alexandratewell5337
      @alexandratewell5337 Před 9 měsíci +1

      Did you have bleeding? Or did you find out before the rectal bleeding start

    • @stephgendron937
      @stephgendron937 Před 7 měsíci +1

      did you have bleeding on a regular basis? Constipation?

    • @jjaniga7043
      @jjaniga7043 Před 7 měsíci

      Yes I did have bleeding but they kept telling a lot of pregnant women have bleeding due to hemorrhoids. So when my daughter was 4 months, I went to my family doctor and he did a rectal exam. He sent me in for testing and that was when they diagnosed me with colon cancer.

  • @deesparklebazinga9374
    @deesparklebazinga9374 Před 10 měsíci +1

    Thank you for sharing xx

  • @capimermaid2787
    @capimermaid2787 Před 2 měsíci

    Congratulations on your precious pregnancy and good health❤

  • @valerienelson3296
    @valerienelson3296 Před 8 měsíci

    Thank You for sharing your amazing story & congrads on your new baby ❤

  • @lindamargolies7759
    @lindamargolies7759 Před 9 měsíci +17

    A person needs to advocate for themselves...push it....❤

  • @cindyrose4155
    @cindyrose4155 Před 9 měsíci +16

    GOD Bless you! 🙏💖🙏
    I had all the symptoms, exactly how you described them! Went to a specialist, turned out I had something completely unrelated…..we never know what has invaded our body, I’m glad you were aggressively pushing for answers.

  • @debcokinis
    @debcokinis Před měsícem

    BLESSINGS TO YOU AND YOUR BEAUTIFUL FAMILY! 🙏❤️

  • @Gengingen
    @Gengingen Před 2 měsíci

    Thank you very much for your inspiring story which is sure to help many people fight their own battles.

  • @f.d.6648
    @f.d.6648 Před 3 měsíci

    Great to hear your story and how well your doing well now stay on top of your future checkups just in case many blessings

  • @christyemmons7279
    @christyemmons7279 Před 10 měsíci +1

    Thank You for sharing your story 🤗💗

  • @deadinthewater218
    @deadinthewater218 Před 9 měsíci +1

    Thanks for sharing. You're beautiful. Prayers your way.

  • @godseeseverything_1
    @godseeseverything_1 Před 10 měsíci +5

    Smart that you took pictures!

  • @shoppinmadnesz22
    @shoppinmadnesz22 Před měsícem +4

    *The amount of times I've heard doctors dismiss a patient's serious symptoms and then a nurse swoops by to give the most sage, life-altering advice is appalling*

  • @wowzatrishiebunz
    @wowzatrishiebunz Před 10 měsíci +9

    You’re sharing this will help save lives! You are so brave!!!!

  • @powers1217
    @powers1217 Před 9 měsíci +22

    Rule #1 if you have any rectal bleeding: INSIST on a colonoscopy done by a gastroenterologist.
    I was diagnosed at age 16 with hemorrhoids. 16. I had severe rectal bleeding and was ridiculously anemic (oh, it’s her period 😑).
    Fast forward to age 30: I’m in the hospital because I’m rectally bleeding all the time and haven’t been able to eat or hardly drink water for 6 weeks and nearly collapsed.
    Over half of my large intestine had to be surgically removed because of severe ulcerations. I got diagnosed with ulcerative colitis.
    A month after surgery, I started bleeding began. I was referred to a different gastro who put me on a type of chemo/immunosuppressive drug and the bleeding eventually stopped. He did a gene test and found out I actually have Crohn’s disease, which affects the entire digestive tract, and gastroparesis (delayed emptying of the stomach). That doctor literally saved my life.
    I’m 53 now and haven’t relapsed. The gastroenterologist eventually retired and his son took over. He’s an amazing doctor, just like his father. I’m thankful every day for both of them.

  • @elizabethbeth9930
    @elizabethbeth9930 Před 9 měsíci

    Thanks for sharing your story! ❤ God bless you

  • @davidmaschari2282
    @davidmaschari2282 Před 6 měsíci +1

    As bad as the situation is, you are beyond blessed to get to take the trial drug. I’ve heard other stories of people getting fortunate enough to selected fir these trials and fir the most part they usually seem to work out with these trial drugs.

  • @melbrown6019
    @melbrown6019 Před 3 měsíci +1

    It seems like this is common for new mothers. I had a brain tumor that was found 2 months after I had one of my sons in 2007. My primary doctor thought I had postpartum depression and referred me to a psychologist even though my symptoms were passing out, not eating, confusion, forgetfulness etc. My family finally took me to the ER where I was given an MRI. I’m thankful that you finally found a doctor who was willing to listen and not just brush you off again. It seems like once a doctor hears you’re a new mom, any other symptoms can’t be from anything else. I had blood in my stool and my doctor at the time had me do a stool sample and colonoscopy right away. It turned out to be nothing. Thank you for sharing your story.

  • @marthalopez307
    @marthalopez307 Před 10 měsíci +1

    Thank you for sharing

  • @CaribbeanLife2023
    @CaribbeanLife2023 Před 9 měsíci +8

    So sad how some PCP’s or Doctors in general just brush off their patients. It just goes to show that individuals must ADVOCATE for themselves and be PERSISTENT. It might save your life. 🤦🏾

  • @bibiijaz6238
    @bibiijaz6238 Před 7 měsíci +8

    My mom was told she had a cyst for three years! New doc immediately sent her to get colonoscopy. Stage 4 metastatic cancer. Last month she had surgery and a 90 minute chemo wash. She has no evidence of disease! As close as it comes to cured. She’s 80 years old and has many more years ahead of her!
    I can’t say enough good things about Oregon health sciences university and Dr Sood! And it was all covered by Medicare

    • @ThePatientStory
      @ThePatientStory  Před 7 měsíci

      This is amazing! If you and your mom are up for sharing your story, please email us at alexis@thepatientstory.com and stephanie@thepatientstory.com.

  • @Arthur-tx8fd
    @Arthur-tx8fd Před 6 měsíci +1

    Thank you for.sharing..by doing this you are.saving lives

  • @DB26423
    @DB26423 Před 10 měsíci +2

    Congratulations 🥳

  • @karendavidson6272
    @karendavidson6272 Před 9 měsíci +1

    So sorry you went through this .

  • @CBB672
    @CBB672 Před 2 měsíci

    I admire your strength 🙏

  • @nickawilliams5175
    @nickawilliams5175 Před 9 měsíci +4

    I've been suffering after my miscarriage in Feb 2023 w/ severe abdominal pain and going in and out of hospitals and doctor appointments. These doctors now a day really do just brush their patients off until it's something extremely severe. 😢

  • @mpower5171
    @mpower5171 Před 9 měsíci +4

    Such a positive story.. so wonderful to hear that she was ok .. hope they can find more treatments like this for everyone with cancer of any types 🙏🙏🙏

  • @dianewristen
    @dianewristen Před 8 měsíci +1

    THANK YOU FOR SHARING YOUR JOURNEY WITH CANCER. YOU ARE A BEAUTIFUL LADY AND HAVE AN OPPORTUNITY TO HELP OTHERS BY DOING THIS VIDEO. I WILL HAVE TO LOOK AT YOUR SITE AND SEE YOUR NEWEST BABY....YOUR SON IS A DREAM CHILD...BEAUTIFUL LIKE HIS PARENTS. I SEND PRAYERS AND BLESSINGS FOR A WONDERFUL FULL LIFE.

  • @llsa2009
    @llsa2009 Před 8 měsíci +1

    Thanks for sharing your story ❤can you tell us what drug you used? It’s amazing 🎉

  • @gma904
    @gma904 Před 9 měsíci +7

    You were so encouraging! So glad it all worked out ! No colonoscopy bags…. You just never know what God will do. And that pic of the baby looking at you is priceless.❤

  • @gail9906
    @gail9906 Před 9 měsíci

    Fantastic results 💞🎉❤️🇦🇺🦘

  • @girlfromsouth214
    @girlfromsouth214 Před 9 měsíci +15

    Kelly shared her story in such an authentic way. It's sad that her doctors originally didn't hear her pleas and perform further testing. But, it's amazing that experimental treatment worked for her!! Imagine all the lives that will be saved and the years of better quality time patients who are able to benefit from the medicine will see! And, all because Kelly and the other early patients were brave enough to take the leap of faith and try it.
    It's touching that Kelly now sees the big picture and realized her newest baby will come (or maybe came! ) at the exact right time the baby was supposed to be here. Does Kelly have a social media page where we can learn more about her journey and the medication that worked for her?

    • @girlfromsouth214
      @girlfromsouth214 Před 9 měsíci +1

      @@JanJan-jx9ty Thank you!

    • @ThePatientStory
      @ThePatientStory  Před 9 měsíci +1

      Thank you so much for watching! The trial Kelly was on is Dostarlimab. Here is Kelly's full story: www.thepatientstory.com/patient-stories/colorectal-cancer/kelly-s/

    • @HopeWins777
      @HopeWins777 Před 8 měsíci +1

      I've had some weirdness I would say the last 6 months. Been working with my fiber and all that. What I'm concerned about now is if it is early stages, does anyone ever catch it? I don't have insurance. I have a couple of the symptoms including the funny smell suddenly coming on. But I've got polyps or hemorrhoids or something showing up also. My aunt died of colon cancer because she never told anyone until she was too late to save. I'm tempted to contact the cancer center first and work my way backwards but without insurance is there any hope? $7,000 to $9,000 deductible plus a monthly premium was more than I could do. I'm 62 years old so I just figured I would deal with it if something happened. I have a chance it's nothing and I have a chance of living if I catch it early enough but without insurance who's going to listen to me? I have launched my 4 kids and all are living their lives with their families. I thought this was my time to Blossom. I will get out on the website but I would welcome any First Steps advice from anyone. Raising four kids over 40 years you have a lot of contact with medical issues Plus friends and church family. This is different and it's that knowing that something's not right that is so scary. I would love to get your favorite resource for my situation. Thanks for reading

    • @girlfromsouth214
      @girlfromsouth214 Před 8 měsíci

      @@HopeWins777 Please consider googling to see where there are free cancer screenings near you. In my state, there is a health center that treats patients without insurance, that provides preventative tests and then, if someone does need further care; they help them apply for free insurance. Have you ever applied for insurance under your state's Medicaid program? I know able bodied, working adults who qualify based on income. One of my friends thought that she wouldn't qualify, but she did. Maybe there is a program in your area that you would qualify for. You are also near the age that your local council on aging might be able to assist you. Sending you gentle hugs.

    • @ThePatientStory
      @ThePatientStory  Před 8 měsíci +1

      @@HopeWins777 First, so sorry to hear that you seem to be going through this alone. We have worked with great colorectal cancer groups like Imerman Angels who will match you to a mentor, someone whose been through a similar situation. Here is their info: imermanangels.org/ .. Hope that helps with a first step. -Stephanie

  • @karenmccabe2371
    @karenmccabe2371 Před 10 měsíci +7

    So you never had surgery? My son at 46 years old went through this 2 years ago…chemo, radiation, and colostomy bag. In 2022. Please let me know….he is a constant worry to me.

  • @sheriserrano9599
    @sheriserrano9599 Před 10 měsíci +6

    Oh, bless you girl🥰 no side effects is such a blessing….

  • @int_pro
    @int_pro Před 9 měsíci +4

    I know a very similar story as far as someone being dismissed by the ER doctor when they went in with a whole array of symptoms. The ER doctor was dismissive and condescending, seemed to think he was all knowing. I try to give the ER Dr leeway, even despite how my relative was treated. ER Drs aren't necessarily trained up enough to recognize cancer in a CT scan. Sadly. But it doesn't help when they bring too much hubris to the situation and can't say something simple like "we aren't equipped to diagnose this kind of issue in an ER"... My relative had a long road to travel before they finally got access to a specialist who could properly diagnose the situation.

  • @lumailisa
    @lumailisa Před 9 měsíci +8

    That baby at 26:12 is seriously cute 🥰 🚼 this was an amazing story to watch, thank you for sharing it ❤ I wish you well on your journey.

  • @donnawilliams7683
    @donnawilliams7683 Před 10 měsíci +8

    There is so many of my family members before me that died of colon cancer or lived with a colostomy bag. My generation is having regular colonoscopys and having polyps removed before it can become cancer. My kids are now having a problem because if the colon cancer isn't in your immediate family they can't be tested until 45. The system isn't working for my kids or my nieces or nephews.

    • @misswinnie4.8
      @misswinnie4.8 Před 9 měsíci +1

      Please get tested for HNPCC aka Lynch Syndrome

  • @solveignielsen8646
    @solveignielsen8646 Před 9 měsíci +3

    Wish you and your family the very best⚘️🇩🇰⚘️

  • @meelauramee
    @meelauramee Před 9 měsíci

    I loved the story 🫶🙏

  • @avachristie8010
    @avachristie8010 Před 9 měsíci +1

    You are amazing 🌻🥰

  • @fiftiesandfabulous
    @fiftiesandfabulous Před 10 měsíci +35

    A classic case of medical gaslighting. Absolutely disgusting

  • @lyndsaythompson4614
    @lyndsaythompson4614 Před měsícem

    Thanks for sharing your story.
    How are you doing now ?? Would love a follow up .....

  • @juliej5917
    @juliej5917 Před 10 měsíci +24

    I have a young friend about your age, Kelly, that had similar symptoms. Dismissing concerns seems to be the common denominator with young ppl getting these cancers. My young friend had her bowel, anus, vagina and all reproductive organs removed, and has a permanent ostomy. They were able to save her bladder. She had eggs frozen. I’m so thankful that this new treatment came at the perfect time. 🌻🌻🌻

    • @raychelhill9208
      @raychelhill9208 Před 10 měsíci

      Vagina removed??

    • @eggbenedict-gt7mw
      @eggbenedict-gt7mw Před 10 měsíci

      What are the symptoms

    • @sha-sha7665
      @sha-sha7665 Před 10 měsíci

      Her vagina??? What do you mean? The birth canal?

    • @bethteer1509
      @bethteer1509 Před 9 měsíci +2

      How sad for your friend, altho it's great she still survived.

    • @sandralrho9455
      @sandralrho9455 Před 9 měsíci +1

      It’s not just young people mist docs could give a rats behind

  • @hkm3933
    @hkm3933 Před 10 dny

    Its sad to see how much the patient has to convince the doctors to get things checked. If there is one thing I am super proud about my country, is the access to medical facilities and very less waiting time.
    And I am glad you are fine and happy now !!

  • @winniecash1654
    @winniecash1654 Před 10 měsíci +8

    I'm so sorry you went through this, at a time in your life when you should be enjoying motherhood and your sweet baby 🩷

  • @NMW80
    @NMW80 Před 9 měsíci +5

    Some doctors are disgusting how they brush off so many people’s symptoms and don’t look into things. It’s not fair at all. I need a new doc cos mine is not thorough at all. He is lazy. I’m sorry to hear about your diagnosis 😢

  • @Lovelinessoverload
    @Lovelinessoverload Před 9 měsíci

    wow thank u for ur story ❤ Thank G-d for everything...

  • @polarbearsrus6980
    @polarbearsrus6980 Před 6 měsíci +5

    Blood in your stool is always alarming and has nothing to do with being 9 months pregnant... that does not compute. Thanks for sharing.😳

    • @crocadoodle7101
      @crocadoodle7101 Před 3 měsíci

      I sort of agree, yet internal hemorrhoids, which heavily pregnant women can be prone to, will likely cause bleeding.

  • @lindawintle7594
    @lindawintle7594 Před 9 měsíci

    What treatment was it
    So happy you doing well x