Progeria: A Growing Hope

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  • čas přidán 18. 01. 2013
  • Part 2: A new drug treatment adds hope -- and maybe years -- to lives of kids with aging disease.

Komentáře • 666

  • @donkeylvr.1925
    @donkeylvr.1925 Před 7 lety +56

    If we all just had an ounce of her attitude and energy this world would be such a better place

  • @jorgealvidrez589
    @jorgealvidrez589 Před 4 lety +57

    Who’s here in 2020
    Tell me if you want her tik tok

  • @viccy8609
    @viccy8609 Před 8 lety +49

    Y'all need to stop being mean. This made me cry tears of joy because of what she wishes. You an amazing, young and beautiful girl😘.

  • @savannahmathis9381
    @savannahmathis9381 Před 8 lety +30

    I've watched this video a million times and cry each time. Haters are so heartless its unreal, they need to be put in their place. These girls are so amazing and their positive outlook on life inspires me.

    • @scarbarber2129
      @scarbarber2129 Před 7 lety

      Savannah Mathis I like how she looks like an alien. Aliens are cool!!!

  • @alilamberson8275
    @alilamberson8275 Před 8 lety +169

    She is 9 now?
    I follow her on musically she is so sweet

  • @troyswife71
    @troyswife71 Před 9 lety +104

    Thumbs up if u think she is cute,awesome,and most of all brave!!!!👍💪☀

  • @baharam98
    @baharam98 Před 9 měsíci +4

    "Don't let one thing, ruin your life." So much wisdom in that saying. Much love and respect to you and family.

  • @phillipmedeiros3962
    @phillipmedeiros3962 Před 9 lety +86

    Soooo Cute! Jesus please try and do something with this disease. I am soooo lucky to not have this disease but she got struck with such a horrible..... Horrible..... Horrible disease ;(

  • @lashawnablanton4649
    @lashawnablanton4649 Před 6 lety +28

    God bless all children with progeria! God bless all children! #CureProgeria

  • @allishaolsen1644
    @allishaolsen1644 Před 9 lety +75

    She is sooo cute she is a diva

  • @user-wy1zp4bg7o
    @user-wy1zp4bg7o Před 3 lety +6

    I remember when I use to see her on musically all the time💞😩 she’s about to be 17 !💕 on July 21st

  • @a1sauce374
    @a1sauce374 Před 9 lety +14

    So cute and brave....so proud of this little angel that came from heaven...god bless you all who love this child of hope and confidence ;)

  • @crybaby9800
    @crybaby9800 Před 7 lety +20

    Those kids are so happy,and we have everything and not happy even tho we are healthy!
    I AM SO SHAME OF MYSELF,I HAVE EVERYTHING I EEVER WANTED,AND NEVER HAPPY!

  • @elizabethmacy1643
    @elizabethmacy1643 Před 11 lety +11

    "Dont let one thing ruin your life." So true keep fighting for progeria.

  • @jackycook64
    @jackycook64 Před 9 lety +15

    I am so glad they are finally offering the drug trials to all of the kids with Progeria. These kids deserve every opportunity available!

    • @carolyoung9269
      @carolyoung9269 Před 8 lety +1

      YAY Jackie!How are you? It's been a while my friend!
      🌈🐨

    • @carolyoung9269
      @carolyoung9269 Před 8 lety +1

      To all of you wishing harm on these precious Souls. SHAME ON YOU! God gave them life with his ETERNAL Love just like everyone. They are more worthy of a place in his Kingdom of Heaven than the likes of you spewing hatred! You have obviously deluded yourself with your claims of not being a sinner but YOU CAN'T LIE TO HIM! By claiming you don't sin you are saying you are equal to him & we all know what happened to Satan & his lot.So keep going with your grandiose claims & lies but leave these little ones & everyone with a firm understanding of & grip on- reality, alone.You are CLOWNS!Don't take your anti-psychotics so you fast-track your final judgement.
      The sooner you are gone the better. Who did Jesus declare more worthy at the place where John was baptizing? The rich man who gave a bag of coins - a pitance for him;or the lady who gave a single coin-her wages for a full week & all she possessed?Now-GO AWAY! 🌈🐨
      

    • @jackycook64
      @jackycook64 Před 8 lety +1

      Carol YOUNG​ Hi Carol! It has been awhile. Haven't been on much. Not doing well. Have to have another surgery. Dr said at least a 8-12hr surgery and possibility of losing more of both my large and small intestine. I know it will be fine. Have an outstanding surgeon that has done over 30 of my other surgeries. How have you been?

    • @carolyoung9269
      @carolyoung9269 Před 8 lety +2

      jackycook64​​ There you are~ FINALLY!Missed you! YAY!! You really should donate your body to science~ YOU ARE PHENOMENAL!! I"m getting there,thankyou for asking.My hip is great~Just a bit wobbly still.Getting a brand knew shoulder within a few months.
      Pain is a bloody nuisance but you know that better than me.
      Do you have a colostomy/ileostomy? I'm surprised you have much left to play with. Wish I could make you all better forever! Hang in there honey~I value my friends! Mwwaaaahhh

    • @jackycook64
      @jackycook64 Před 8 lety +2

      Carol YOUNG​ Thank you so much for your kind words! so glad your hip is doing so well. Praying that your shoulder does just as well. The pain is really a nuisance!!! I am surprised I have as much left to play with as I do. No colostomy yet. Just a j-tube. The tract for the tube, like the rest of my GI tract keeps breaking down. I will definitely donate my body. It is one crazy contraption!!! Wish I could make you better as well. But even with all these issues, I would have to say I have a very good life. Was so good to hear from you! Take care and keep in touch! I value my friends so much!

  • @chainsawkitten3766
    @chainsawkitten3766 Před 7 lety +17

    Why should they have to pay when they are in a drug research/trial?? One would think it would be free for them.

  • @rainstorm.
    @rainstorm. Před 8 lety +33

    I love her they were right she is now a musical.ly star

  • @mariareneecurry1073
    @mariareneecurry1073 Před 8 lety +20

    To be honest SHE'S GORGEOUS!!!😍😍❤️❤️💠🌀

  • @mrsub4subb
    @mrsub4subb Před 9 lety +11

    They are such cuties. I wish they could grow their own hair too, something we all take for granted. ♥

  • @anniemac7625
    @anniemac7625 Před 9 lety +15

    I love how sassy and cute she is

    • @scarbarber2129
      @scarbarber2129 Před 7 lety +1

      Ånnëka Cat queen I really like how she looks like an alien. Aliens are cool!!!

  • @jovanisis7050
    @jovanisis7050 Před 9 lety +25

    I love like they dont even care about their looks, they are really brave :) I mean really.

    • @EmPurple
      @EmPurple Před 2 lety

      Yup. The happiest people don't have vanity. I know I don't, I never bother with make up. I will brush my hair and wear casual clothes. I just want to live life and have adventures like these people with projeria.

  • @tosh7989
    @tosh7989 Před 7 lety +5

    5:04 is the mother of Sam Berns. Sam Berns Had Progeria as well but he died at the age of 17. To be honest he is very lucky to live the age of 17.

  • @ruchikakarmakar3545
    @ruchikakarmakar3545 Před 8 lety +6

    She has that awesome thing "Confidence"...Stay Blessed sweetie...

  • @edwardramsey527
    @edwardramsey527 Před 6 lety +1

    She's so bubbly happy. Just beautiful, funny the whole family is awesome. Kaylee your a shining star.

  • @theresarivera5369
    @theresarivera5369 Před 10 lety +13

    Awwww... I love her 😊

  • @Zumbagirl517
    @Zumbagirl517 Před 5 lety +4

    She’s so brave! She more mature than a lot of kids her age!

  • @xavierjoell5814
    @xavierjoell5814 Před 7 lety +6

    her voice makes me smile

  • @QueenPenelope19
    @QueenPenelope19 Před 4 lety +2

    Omg she was so young and now she’s a grown up🥺🥺🥺🥺❤️❤️❤️❤️

  • @chubbsthebunny9437
    @chubbsthebunny9437 Před 10 lety +11

    she's so cute!!!!!!!!! Thumbs up if u agree!

  • @carolyoung9269
    @carolyoung9269 Před 8 lety +1

    Dear God I love Barbara! Who better for this interview?!😀 I certainly pray for these little angels & their families. PLEASE LORD HELP MANKIND TO FIND WAYS TO HELP ALL WHO SUFFER. 🌈 🐨

  • @nofomama9205
    @nofomama9205 Před 7 lety +1

    How can people even Dislike such a Beautiful And Inspiring video?!?

  • @bdahmartlangte5551
    @bdahmartlangte5551 Před 4 lety +1

    Why they all are so special.. active.. funny .. kind ..etc.. everything nice.. omg.. they are really a Gift.. 🥰🥰🥰

  • @charitinii2244
    @charitinii2244 Před 7 lety +14

    i follow her on musical.ly and she's just the cutest 😍

  • @sanmiguel3827
    @sanmiguel3827 Před 10 lety +15

    thumbs up if u think shes the bravest 6yr old ever! so cute :)

  • @patriciajgreen2995
    @patriciajgreen2995 Před 7 lety +3

    It is more than a growing hope it is a so much more. I Love these children with all my heart

  • @bonnie4961
    @bonnie4961 Před 9 lety +4

    These little girls are precious

  • @sgtpepper915
    @sgtpepper915 Před 10 lety +1

    What a beautiful child! The world is better because she is in it.

  • @morito2321
    @morito2321 Před 7 lety +8

    she's so cute and funny ☺❤

  • @BlessUPkinFOLK
    @BlessUPkinFOLK Před 4 lety +1

    I watch this video so many times and still can't stop crying 😭

  • @brooklinwebb9546
    @brooklinwebb9546 Před 6 lety +3

    love her personality

  • @_sashitheedreamangel24_

    She is so adorable, I will keep her in my prayers!!!

  • @DunkeePlzSubscribe
    @DunkeePlzSubscribe Před 8 lety +2

    0:50

  • @makennastoddard2536
    @makennastoddard2536 Před 7 lety +3

    Her brother are so kind to her

  • @iturgirltaetae3773
    @iturgirltaetae3773 Před 8 lety

    yeah I almost burst out in tears watching this video she is so cute and I love her voice

  • @larman58
    @larman58 Před 11 lety

    I love this little lady....stay bless Kaylee!!!!!

  • @homerminor8024
    @homerminor8024 Před 3 lety

    Really inspires me with the angels and their bravery, as they face this disease daily and have the best outlook!! Watch these videos and it changes my perspective on how to face adversity. These sweet babies are brave heroes...In Jesus name,heal them!!

  • @EnviousWingDings
    @EnviousWingDings Před 7 lety +2

    I think this lovely child is just so beautiful. She is just the sweetest girl I have ever seen. I really hope we can find a way to let these people live long and comfortable lives.

  • @kylir6399
    @kylir6399 Před 8 lety +3

    you guys stop being mean to her she's too beautiful just the way she is

  • @juanwani1851
    @juanwani1851 Před 6 lety

    May the good lord guide and protect all the children with progeria all over the world

  • @kellybowen2493
    @kellybowen2493 Před 11 lety

    who could not like this.... it made my heart melt god bless you guys also in my prayers...

  • @bhavitasingh3764
    @bhavitasingh3764 Před 8 lety

    Kaylee ,we all have deep regards to u ,it's so nice for a girl living with progeria act live as if she is a normal human being .enjoy your life kaylee.many people in ,India know you ,even I'm 13 years old

  • @witchplease9695
    @witchplease9695 Před 11 lety

    Such beautiful and bright little girls. God bless the both of them.

  • @beckybojoy
    @beckybojoy Před 11 lety

    Love these strong beautiful souls they inspire and are real gifts

  • @troyswife71
    @troyswife71 Před 9 lety +59

    God bless her thumbs up if u agree!👍

  • @jonsiejones9358
    @jonsiejones9358 Před 11 lety

    That whole family is just, amazing.

  • @San47di
    @San47di Před 9 lety +1

    This beautiful child simply touches your heart!! :-)

  • @drippypipes1932
    @drippypipes1932 Před 7 lety +2

    Aww she is the sweetest thing ever❤️❤️❤️

  • @myfz6
    @myfz6 Před 11 lety

    They r such precious little ones. These families need our love and support not just words buy they need us to act and donate what u can even if its just $1

  • @miyaandgrace246
    @miyaandgrace246 Před 11 lety

    Pray for these girls. they both are beautiful and hope that doctors find a cure!

  • @rockylosco5596
    @rockylosco5596 Před 5 lety

    Folks,”don’t let one thing ruin your life”,wisest statement I ever heard,from the mouths of babes God has perfected praise!

  • @christonrodriguez3374
    @christonrodriguez3374 Před 9 lety +1

    I give props .. GOD SHOULD BLESS her ..she is an amazing girl.

  • @sevenfuntasticdolls5154

    my fave is when she said she's a star but really when she said yeah, mhm😍😍😘😍😍😍😍😘😘😘😘😘😂😍💓😘😘💓😘😂😍😘💓😘💓😘💓💓😘💓😘💓😘😘💓😂😍😂😍😂😍😂😍😂😍😍😂😂😍😍😂😍💓😍💓😍😍😂😍😂😍😂😍💓😍💓😍💓😘😂😍😂😍😍😂😍😂😍😂😘😘😘😂😍😂😍😂😘😂😘😂😘😂😍😂😘😂😂😂😍💓😍💓😍💓😍💓😍💓😍💓💓💓💓💓💓💓😍😍😍😍😍😂😘😘😘😘 and more

  • @kay6521
    @kay6521 Před 7 lety +1

    awww they're voices are adorable

  • @sandraevans8354
    @sandraevans8354 Před 9 lety +1

    This made me cry ♥

  • @amyhammond1005
    @amyhammond1005 Před 10 lety

    She is soooooo cute and its sooooooo sad that some kids have this disease and I'm glad they are trying to find cures she is staying really strong and she is saying that one day she will have hair well I bet you she will and that is a positive attitude just stay strong kaylee

  • @clasherfn
    @clasherfn Před 8 lety +6

    Hi actually she is a star on musical.ly who follows kaylee halko on musical.ly

  • @beautydiva2000
    @beautydiva2000 Před 11 lety +1

    God bless them both! Stay strong

  • @kaitlynkaitlyn3076
    @kaitlynkaitlyn3076 Před 8 lety

    Their both ADORABLE!

  • @VanessasCrafts
    @VanessasCrafts Před 11 lety

    They are both Beautiful!!!

  • @simonepowell906
    @simonepowell906 Před 8 lety

    she is so beautiful and confident and doesn't let things stop her

  • @qyuryyusyt
    @qyuryyusyt Před 11 lety +2

    I love her voice XD

  • @ruvstof
    @ruvstof Před 8 lety

    This touches me, we forget about time.

  • @fuzzyocelotstudios4259
    @fuzzyocelotstudios4259 Před 8 lety +7

    Wow someone I can relate with having no hair... I have cancer so that's different but it's almost the same wants

  • @marciacarr2054
    @marciacarr2054 Před 7 lety +1

    she is so sweet and i wish her all the best💜

  • @calynndabarbie9118
    @calynndabarbie9118 Před 8 lety

    Bruh this made me cry because she's so beautiful .... like I'll donate my hair for her she's awesome

  • @aulisofia8693
    @aulisofia8693 Před 7 lety

    Thankyou for giving us lessons❤

  • @jooooooswuck
    @jooooooswuck Před 11 lety

    I. LOVE. HER!!!!! She's amazing!

  • @Roger9Wilco
    @Roger9Wilco Před 11 lety

    She talks and acts like a young adult. She is indeed amazing.

  • @twosongs7396
    @twosongs7396 Před rokem

    You are a Star, my Love. I carry you in my heart and always will. I’m so sorry I wasn’t able to pursue my studies. I’d hoped to participate in an effort for a cure… but I couldn’t afford continuing my studies.

  • @emmakateguy9200
    @emmakateguy9200 Před 3 lety

    I commented just so there wouldn’t be 666 comments... I love how great her personality is!

  • @nicolen7094
    @nicolen7094 Před 7 lety

    I love her she's so energetic and happy

  • @trevorharbolt6293
    @trevorharbolt6293 Před 6 lety +1

    I love her voice

  • @driptoffen3604
    @driptoffen3604 Před 7 lety +1

    What a Smile.....I wish you gonna celebrate your 100 birthday

  • @rockylosco5596
    @rockylosco5596 Před 5 lety

    What a sweet girl,what a personality,Lord Jesus let this precious precious girl live a long life,let her shock this world Lord,amen

  • @quanj9781
    @quanj9781 Před 10 lety

    I cry saty strong kaylee

  • @alexnky2257
    @alexnky2257 Před 8 lety

    I love her little squeaky voice it is adorable

  • @shenitabeck2893
    @shenitabeck2893 Před 10 lety

    I can move it she is awesome little girl I love her even though I don't know her she is brave and know how to survive good job boo keep it going

  • @renwong6327
    @renwong6327 Před 11 lety

    I hope kaylee continues to live a long and healthy life

  • @SHAWTY17ist
    @SHAWTY17ist Před 10 lety

    She is so precious.

  • @kyleejo7569
    @kyleejo7569 Před 9 lety +3

    The most adorable thing g I have ever seen

  • @crystalprados3601
    @crystalprados3601 Před 7 lety

    all love this girl in her story she is so beautiful

  • @jasminecontreras6998
    @jasminecontreras6998 Před 10 lety +4

    Kaly is so cute she looks like adalia:-) !

    • @scarbarber2129
      @scarbarber2129 Před 7 lety

      Jasmine Contreras She also look like an alien, aliens are cool!!!

    • @shortstack1101
      @shortstack1101 Před 7 lety

      Rwal Son
      ya but don't be rude like dat

  • @vishjk4860
    @vishjk4860 Před 5 lety +1

    God bless her...

  • @FalloutDefense
    @FalloutDefense Před 11 lety

    Im going to cry....

  • @kmcghee143
    @kmcghee143 Před 2 měsíci

    Absolutely Adorable!!!❤❤❤❤

  • @Ceecee123
    @Ceecee123 Před 11 lety

    she is definitely verrrrrrrrrrrrry fabulous!! so cute! god bless her!=)

  • @rileybeeshaw2664
    @rileybeeshaw2664 Před 6 lety

    aww shes sooo sweet and beautiful

  • @TheR005ter
    @TheR005ter Před 7 lety

    Does anybody know how we can follow them to know how there doing these little girls are real brave and strong too.

  • @akritikhanal3243
    @akritikhanal3243 Před 8 lety

    she is such a big inspiration for me......

  • @thegaminggirl9960
    @thegaminggirl9960 Před 8 lety

    Who other hated this has no heart 😫 Get Well Kaylee And Linsy💖🎗