opening up...
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- čas přidán 4. 10. 2023
- Hey Guys! Hope you enjoyed this video.
My life with Elhers-Danlos Syndrome/ Fibromyalgia/Syncope/Anxiety/Scoliosis/ TMJ.
I was thinking on making a series of videos called "My Mind & Me" After the Selena Documentary. So let me know if that would be something you guys would be interested in seeing.
instagram/Tiktok : Jay_gforde
Go check out : open.spotify.com/artist/5JIU2...
First Song: Patience - @RenMakesMusic
Second Song : She Lays Down - @the1975
@thewolfjohnson
JUST WAITING NBD 🥲🤷♂️🖤
A true legend 💅
Girl this is so pretty. Wanna get lost in your videos. Your CZcams is like a safe place for me.
Aww this is exactly what I want! THANK YOU 😭
@@Jay_Forde I’m lost already love. ❤️❤️.
"I'm never not in pain"
It takes a lot of courage to open up about things that you suffer from every second of the day. It's good to see that you haven't let these things stop you from living your life the way you want to live. I made it through college and masters' fighting depression and a whole bunch of other stuff. I know you can do it, too. Sending you lots of love and support. ❤️
Everyday is a stuggle but we stay stronge and keep fighting 💖❤️
Healthy people often can’t imagine how it feels to stuck in uncountable boundaries every day. Your whole life is a challenge. You have to accept your boundaries, not to fight against conditions you can’t change. In best case you find a way to express and share your pain to build up your prospects. Good luck to you❣️
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“I don’t want to create stress for anyone.” I related to this. And this alone - is exhausting from my experience. I’m happy you have support, empathy and thank you for sharing your life experience!
It's such a difficult situation to deal with ever day but creating a circle / community to be urself and share how you feel is vital! Thank you hope you enjoy ❤️⭐️💓
You are obviously a beautiful soul. Bless your heart for opening yourself up and I’m sure this will inspire and help others. ❤️
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aw I'm proud of you I can't even begin to imagine how hard it was making this video
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Hi Jay! This is too beautiful not to share, so I did so in our Ren subreddit r/ren!
Thank you so much x
Huge respect for opening up about something like this. Huge support coming your way😊
Thank you ❤️❤️❤️
I know that sharing this must have been hard and I absolutely respect that you shared your story here. You are brave and beautiful just for doing that alone. I also have a form of chronic illness but I am not in constant pain for it. So I can SOMEWHAT relate. Sharing this WILL help some people and I thank you so much for doing this.
The outro was cute, funny and incredibly lovely. ❤
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@@Jay_Forde 🥰
Girl… all I have is love for you. And a thank you.
This is so sweet thank you😭😭🥹❤️
I was literally listening to that song when I got the notification for this video.
I'm so happy for you that you've not let these things beat you down and destroy you. Keep living life and finding great people to surround yourself with. Thank you for sharing with us all and bringing awareness to these struggles, and thank you for being you, as corny as that sounds we live in a time where there's so much fakeness (not a word, I know) that I really appreciate it even more when someone can open up and share their true self. ❤
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Thank you for sharing your story with us. I can't imagine what you go through every day, but I'm open to learn. 💛
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hell yeah, lean in!!!! 💪💪💪
You're amazing. Own it!
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It's so important to be honest with yourself about what you can and can't do. I was diagnosed with CFS and fibromyalsia at 17. I'm 44 now and throughout the years I've had bad days and great days and just days but every single one of those days was another day to be thankful for! I also believe that there are countless people out there in the world that hurt more than we know whether it's physically or mentally. Much love from Texas 🧡🧡🧡
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Since so many chronic pain diseases are so misunderstood, many suffer in silence. Worse still is the lack of understanding from your closest friends and family . So the more information the better . I hope Uni turns out to be a brilliant experience . Also I think Jade's vlog will kick but ! I didn't cringe once , not even during th e outtro .
Big respect for you for opening up about this. These hidden chronic illnesses need to become more well-recognized so the more of us that speak up about our illnesses, the better for all. I also have either MS or fibromyalgia and mast cell activation disorder and am currently fighting with the health system to get a diagnosis. My doctors keep trying to tell me that it is all in my head and is just depression/anxiety. The medical industry needs to do better at helping us and society in general needs to get better at accepting chronic illnesses. Hoping you are doing okay ❤❤❤
It's so infuriating! Especially when you're being told it's anxiety or in your head, I remember being told that for years, it was so bloody annoying!!
I'll be on the replay crew. It's getting late here. Can't wait to see tomorrow 🌻🤍✌️
See you tomo!!!
This was beautiful. Thank you so much for sharing your life with us. I first learned of EDS on RuPaul's Drag Race USA, believe it or not. The queen who won Season 11, Yvie Oddly, has it. She found a supportive and loving community, too. I'm so glad to be part of yours. ❤
Oh wow! I never knew this wow!! This is amazing 💓❤️
Found you through Ren rabbit hole group. I think you opening up about what going on with your health. That going to make some huge impact on those that have EDS, and other chronic conditions. I’m also glad they diagnosed you, because it going to allow you to get real help.
Thank you, I have friends that have this. Honestly never heard anyone talk about the sleeping and not sleeping that comes from it. Which I personally think is something that should be looked at. If a person comes in and says they don’t sleep for days, than they do for days. Or maybe they do for a hour. That medical staff should be like well do they have any other signs. I think it could get folks diagnosed way earlier. In turn help them out. They know if you get exhausted going for a walk. This is why. Maybe try seeing if swimming helps you. It naturally takes away all the pressure. Or if doing water aerobics is better. Thanks for being a voice, for those that don’t have one. That why I sub to you. I want to support you, supporting others. That beautiful in more ways than one can imagine.
Here for it! If I’m still awake. I do enjoy your vlogs 💖
"If I'm still awake" me too 🤣🤣
Thank you for sharing this, such a wonderful video❤ I am 32 and have been chronically Ill for 21 years. It's always amazing to hear others and relate. Be good to yourself.
I really can empathize with you.. I wish for you days with as little pain possible.. I understand what you say.. it’s so hard to explain.. sending love and care..❤️x
So brave for putting this up! 🙂
Thank you!!
The labyrinth has many directions one can take...but...one will in time still find the ending...still find a way out to experience brighter tomorrows.
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This is very interesting... I don't have any illnesses, but I have weak tendons. My shoulder pop out sometimes, and it kinda feels like it dislocates before it pops back in. I also have weak wrists and i cant hold things that are too heavy. Also in my lower back, if I strain my self some how, it sends a searing pain through my spine, it feels like gas in my organs. I'm suppose to do PT but i'm slacking🙈 my Family jokingly calls me a grandma lol.
I relate to the flexibility and writing part 😂
hope you’re well! You're in my thoughts and prayers 💗
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