Endometriosis: One Of The Most Painful Conditions
Vložit
- čas přidán 25. 05. 2023
- In this episode of Talking with Docs, we have a special guest host, Dr. Sharma, who is an OB/GYN with expertise in women's health. Dr. Sharma joins us to discuss a common but often misunderstood condition - endometriosis. She shares valuable insights into the causes, symptoms, and treatment options for this painful condition. If you or someone you know is affected by endometriosis, this episode is a must-watch. Join us as we learn from Dr. Sharma's expertise and gain a deeper understanding of this important topic.
Linktree: linktr.ee/talkingwithdocs
Donate To Oakville Hospital: donate.oakvillehospitalfounda...
Tiktok: vm.tiktok.com/ZMFtY2JQ7/
Instagram: talkingwithdocs...
Facebook: profile.php?...
Twitter: talkingwithdocs?s...
Please see the complete user agreement at talkingwithdocs.com
Medical emergency
Do NOT use the Video for medical emergencies. If you have a medical emergency, call a physician or qualified healthcare provider, or CALL 911 immediately. Under no circumstances should you attempt self-treatment based on anything you have seen or read on the Video.
General information is not medical advice
The general information provided on the Video is for informational purposes only and is not professional medical advice, diagnosis, treatment, or care, nor is it intended to be a substitute therefore. Always seek the advice of your physician or other qualified health provider properly licensed to practice medicine or general healthcare in your jurisdiction concerning any questions you may have regarding any information obtained from this Video and any medical condition you believe may be relevant to you or to someone else. Never disregard professional medical advice or delay in seeking it because of something you have read on this Video. Always consult with your physician or other qualified healthcare provider before embarking on a new treatment, diet, or fitness program. Information obtained on the Video is not exhaustive and does not cover all diseases, ailments, physical conditions, or their treatment.
#endometriosis #pcos #chronicillness #endometriosisawareness #chronicpain #endowarrior #infertility #endo #womenshealth #invisibleillness #fertility #fibromyalgia #spoonie #ivf #in #fibroids #adenomyosis #health #ttc #pregnancy #anxiety #endosisters #mentalhealth #endometriosiswarrior #pain #pelvicpain #infertilityawareness #miscarriage #ttccommunity #spoonielife
It means so much that male doctors are acknowledging the pain that women with endometriosis go through. Much appreciated :)
I had severe endometriosis way back in the early '70s, which eventually led to my full hysterectomy at only age 27. It can be a devastating disease. I never had the chance to get pregnant. I don't think the science back then was nearly what it is now. I feel bad for anyone who is suffering with this.
I also had endometriosis and then I had a full hysterectomy when I was in my late 20s. I had my surgery when my daughter was only 10 months old. My heart goes out to all of the ladies that has this disease.
Thanks for sharing and so sorry to hear this Joanne
Joanne, I definitely understand what you went through. ❤️
Was it worth it to have the full hysterectomy? I read about the risk of what happens with your organs moving to fill in the gap of the womb. Is this true?
@@migm8998NOOOO! A hysterectomy is a cure for adenomyosis. The Gold Standard of treatment for endo is EXCISION with a vetted endometriosis EXCISION specialist.
These doctors are giving an absolutely incorrect diagnosis of endo.
3 men raising awareness about endometriosis wow well done❤, carry on
Had this plague back in the seventies. Pain, exhaustion, heavy bleeding, infertility, an on going nightmare that ended with a TAH BS&O. It attached to my spine. The mental anguish equals the physical malady. My prayers for all in the battle.😢😢😢🙏🙏
My BS couldn't be done and my O was denied. Here you must wait a decade before OHIP will cover unless you spring a leak. Still waiting..
For sure Denise. Sorry you had to endure that
I was just diagnosed with stage 4 endometriosis, during my laparoscopic surgery to remove a mass on my ovary. I’ve always thought it was normal to have as much pain as I do, but now that I know it’s not, I’m trying to give myself some grace in knowing that it’s a condition and not just in my head. Hugs to anyone else with this ongoing pain, it can be brutal.
I'm 32 years old mother, I got diagnosed with endometriosis after years of suffering, thanks to Doctor Eromon Herbals for his natural remedies. I so much appreciate, it eliminated the endometrial tissues completely and permanently.✅✅✅✅✅✅✅
Hey Docs - Ottawa here. I had problems since I was a young teenager.
Doctors said I wasn’t comfortable with my feminity.
As an older teenager, docs told me it was because I didn’t have a boyfriend.
As a teenager, I was put on a tranquilizer which my mother refused.
I was in agony. Finally diagnosed in my early 30s, my reproductive system was destroyed. I had an ovary removed, followed 3 years later with a radical hysterectomy at 32.
Today in 2023, women are still being ignored.
Pregnancy isn’t an answer, it’s often an off the cuff statement by doctors to shut women up. I never wanted kids. Ever. I appreciate your taking on this topic, but more than 30+ years after my hysterectomy, women are still being ignored.
When women say they have pain,believe them.
That's why we do videos like this. To help empower.
It took me four years of having my pain dismissed to finally get someone to take me seriously. And I consider myself lucky, that's pretty fast compared to so many people. It's unacceptable to make people wait around with a progressive disease for YEARS.
Get a second opinion
Diagnosed last year at age 35 with stage 4 deep infilitrating endo. 5 hour excision surgery. Days where I couldn’t walk. I’ve been suffering since I was 10. Pain and endo came back instantly after excision surgery. Starting ivf soon. So much pain daily, but I still manage to work full time at the moment.
When my husband and I decided we were ready to have kids we went and talked to my OB/GYN. We were trying for over a year and nothing. I was experiencing heavy bleeding and severe pain almost every day. To say that it interfered with my day to day was an understatement. In a months time i had maybe 4 days that i wasn't bleeding. My doctor performed a laparoscopy and discovered lots of endometrial growth in my pelvic region. He removed all. We tried again and nothing. Did all the tests and everything seemed fine. Started with low tech fertility treatments and progressed all the way to IVF. We hit the jackpot the very first cycle. We had triplets! And then I said no more. Endometriosis is awful. I wouldn't wish that on anyone.
Wow triplets congrats! We are sorry you had to deal with that. You are obviously not alone. It can steal so much
I had this in my early teens. My periods were extremely painful, usually lasted 8 days and heavy. Also, every time it was like having the stomach flu with fevers, nausea and vomiting. My periods were never regular, usually anytime from 45 to 90 days between each one. My family physician said nothing to worry about, everything would straighten itself out after I had my first baby! Note: I never became pregnant. At age 21, I saw an OB-GYN who knew exactly what it was and treated me with birth control pills. It was a god send. I had a complete hysterectomy at age 43. The same OB-GYN did the surgery. A simple complete hysterectomy was supposed to take one hour, mine ended up taking four hours. He said I had the worst case of endometriosis he had ever seen. He had to scrape my entire abdominal cavity in order to get all of the endometrium cells that had spread. Gynecologically, I’ve never felt better.
Wow! I’m glad they finally took a look and was able to excise the Endo out of your abdominal cavity
How do you feel outside of "gynocologically?"
I've had endometriosis since I was 17. I remember telling my mother I was in too much pain to go to school and she said get going, everyone has pain with their period. They removed one ovary and a tube when I was 19 and did a complete hysterectomy including the other ovary when I was 29. Doctors had no clue what they were doing, sent me home after that surgery no hormone replacement and within a week I was going thru the change. After 20 years of mis-prescribed hormone RXs I got breast cancer. Between my mother and my doctors my life was miserable. Thanks.😅😅
So sorry to hear this. There is a common theme in the comments
You poor thing. I am so sorry to hear about your health battles. I hope you are on the journey to good health now. 🎉
@@gillc9773 no boo hoos from me, my adversity made me strong. Just wish we had the internet back then would have saved me lots of pain. Having a different mother would have been good too. LOL on my grave I've requested this...
"I want a do over"
How do you feel now are you physically healthy or is your body ruined and weak? I want a hysterectomy but I heard it might destroy my body and makes me weak
@@Songsthesecond I'm 78 now and feel 78. Since I had it as a teen I guess I'm lucky. Back then doctors didn't know why we got it, nor how to treat it. My feeling is I'm glad I had the total hysterectomy including removal of my ovaries. No more periods, no more pain.
I probably would have gotten ovarian cancer which was undetectable until stage 4.
I have adenomyosis and can tell you it’s been a nightmare (since 13, am now 47). It’s a cruelty. I have always had dos much empathy for any woman suffering this type of pain and discomfort, bless you all sisters, we are stronger than most and it’s something to be proud of (not that we had a choice, but we are still breathing and managing and that’s an achievement!!
Just adding my thanks to Docs for including endometriosis in their videos. My endo started at 16. Fortunately at 20 I started on birth control and shortly after stopping was able to get pregnant. I did want to have more children with my remarriage and was lucky enough to have a gynecologist who did an excellent job with an hysteropexy (uterus so heavy with adhesions/scar tissue that it had dropped and was attached to bowels). Miraculously I had two successful pregnancies eventually had a full hysterectomy at 41 when I had to crawl on my hands and knees from my bed to the kitchen to feed my young children. Hopefully more healthcare providers and society as a whole will listen to women when they say there are in pain. As another viewer stated, "When women say they have pain, believe them." Thanks again, enjoy all your informative and entertaining videos, even when unrelated to anything personal.
Thanks for sharing your story. It's an important topic that many women have been marginalized for
Don’t get on BC pills ladies! That’s just coating the problem. And that’s also only for some time, bc pills are not natural and obviously have bad side effects. After a full hysterectomy, I have been researching so much! My dr of course wanted to put me on BC I said no. Holistic lady has lead me down the natural route. I’m now applying wild yam, not eating processed foods and esp sugar. Sugar is my kryptonite lol! All that bad food feeds endo ladies. Do research. Try and go natural. Do research on birth control pills on how bad they are. 🙏🏼💚
Mine was diagnosed in the mid 90’s during a fertility work up. Unable to conceive so we decided on adoption. My heart goes out to all women who experience this pain and anguish. Now post menopausal and pain free.
Excellent, thank you!
Love that you guys are covering women’s pelvic and gynecological health issues! We women need it as many of these topics don’t get discussed much, so PLEASE keep it up! ❤️
Agreed! They should talk more about adenomyosis also
Well you will be glad to know we have another OBGYN coming next week for even more
@@TalkingWithDocs Amazing to hear. I would love a video on adenomyosis
Hi. My Mum had it in the 60's and she had a historectomy. Much better after.
I had severe pain and thankfully a high pain threshold. I didn't drink much alcohol or eat foods that were inflammation triggers. So I had symptoms, but when I passed menopause...yay! Everything calmed down.
But my daughter.....
Oh boy, we think started at 13 and has she has stage 4 Endometriosis. Aged 38.
Your talk was soooo helpful. No wonder she can't conceive.
We are in UK and you are way ahead of us!
Her pain makes her pass out, vomit(ginger and ginger tea)
It's the sort of pain that makes it almost impossible to do deep breathing because the pain is sooo bad she can't breathe..
And she has pain out side her period.
Stress sets it off so she is trying all sorts to try and find something that helps.
Thank you guys for helping..... One doctor told her to take... Paracetamol!🐦
So virtual hugs.......
Dr Sharma mentioned Adenomyosis, which is what I had prior to a hysterectomy at 51. The latter transformed my life, following years of intense pain and continuous bleeding. More conservative treatments had all failed, and I’m sad now for the years of symptoms that so heavily impacted my life. Be pro-active, ladies, and certainly don’t ‘suffer in silence’.
Thanks for sharing Gillian and glad you found treatment that ultimately worked
I’m going in for surgery in 2 weeks for adenomyosis and to remove my tubes to reduce ovarian cancer risk since my older sister had ovarian cancer. I really hope that my pain levels will be eliminated, or at least manageable after!
@@bluebirdproductions8871 Sending you all best wishes for a very successful outcome.
Please don't underestimate a patient explaining that sex is painful. I was very sexually active from age 17 on, mulitple partners. When I got married at 21 sex became worse and worse as far as pain went. "Get drunk", "you know the vagina is amazing as it can dilate to birth a baby!"--a couple of statements made to me by my GYN at the time. Not helpful. Like I want to experience labor in order to have sex! I did finally get pregnant at 25 and thought I was losing the baby at 5 months because of intense pelvic pain (daughter born, phew!). Finally, years later, I had a laparoscopy and it confirmed endometriosis, particularly on the uterine ligaments. I had always had very painful periods, passing "chicken liver" clots, and super heavy flow. I was never so glad to reach menopause at 54! Thank you for this video. I've enjoyed many of them, particularly total knee replacement--surgery is in two weeks. I am 71 now.
Thanks for sharing and good luck in a couple of weeks
I shredded the tip of my finger with an angle grinder (60 grit sanding disc, for those curious) and my endometriosis, which I had excised a couple weeks ago thankfully, was more painful than that. I was genuinely worried that I would totally overlook an emergency medical situation, like a burst appendix, because I would assume it was the normal pain I experienced.
Once again excellent presentation. at the age of 38 I was hospitalized with a 12 cm tumor it resulted in total surgical hysterectomy and an additional 7 hours to remove the endometriosis that had spread to most of my organs. Fortunately my pathology was no cancer found. I was a rare case because I had no symptoms until two months before needing surgery. Thanks again I am sure that this information will help many women 👍😊
Glad you were ok Kathleen. Thanks
I have had endometriosis for 31 years, and during my last surgery 12 years ago, my gynecologist also discovered I have adenomyosis and pelvic congestion syndrome. From 2020 to 2022 I was in such severe pain, & I nearly died from malnutrition, then ultimately lost my gallbladder. They found adhesions during surgery, but it was not followed up on. Here I am a year later, and I am suffering extreme pain daily once again. After three trips to the ER this past summer, it is finally apparent that my endometriosis is wreaking havoc once again. I am unable to get in for a consultation with my gynaecologist until next April! Until then, I am eating an endometriosis-friendly diet, and have been using THC to manage my extreme pain. I am no longer able to work, and I feel like I’m being gaslit by the medical community. I am so frustrated with not being believed or taken seriously. My quality of life is horrible. Thank you for this video.
Tammy if you aren’t familiar with him Dr. Tamer Seckin and his associates are THE BEST with endometriosis. They are out of network for insurance but the are hands down the ones to go to for treatment.
My appendix was normal. My ovary was normal My uterus was even small 😢 he still removed my uterus 😢. He only said you had adhesions from your c-section
Wow - much compassion from a guy here. I hope you can all find relief.
I think doctors aren't so quick to ignore people these days, but if you need to, find a doctor who cares.
Yes agree. We definitely need to listen better in medicine
So glad you guys are doing this! I'm 57 and could have used you years ago! But I did get on birth control pills by 18 and what a change! All your videos are helpful. Keep it up!!🎉
Thanks so much Ann. Trying to help as many as we can
I love these doctors and how they present the medical information with accuracy and sometimes humour. Thank you!
Thanks Heather.
Being a late bloomer, I didn't think my cycle would ever come, so I was so happy and thrilled when it finally happened. My worse cycles were prior to or with the onset of menopause, heavy cycle and took over the counter homeopathic Estroven tablets which seemed to help. Great video for those who need it.
Such an incredibly important topic! Still dismissed by so many! Light at the end of the tunnel but still not a definitive solution for all. I truly hope more physicians work with people like Dr. Sharma in getting their patient help they deserve! Thanks guys, like always, I enjoy your meaningful videos! Long time subscriber 🎉
Thanks so much Barbara. Doing our best to help patients become empowered to talk to their health care providers and advocate for themselves
Excellent post as usual guys! I wasn’t even aware of this.
Yeah it's a very real issue Marcus
I had endometriosis and it was hell! Had a total hysterectomy and pain free!
Yes it works but is extreme obviously
Wonderful topic-12 to 28 years old suffered intense pain with severe endometriosis Diagnosed by a specialist who a friend recommended after multiple doctors said I was wasting there time. Meds and surgery gave a new life. No pain for the last 25 years. You can be pain free. See a specialist is key.
Ah yes those were the days. Searing pain, vomiting, diarrhea, fainting, so glad I'm passed all that now. My mom and one of my sisters had it as well.
Oh man sorry to hear that
@@TalkingWithDocs It gave me an understanding into other peoples suffering
I had severe endometriosis in my 20's. We tried birth control pills first, which didn't help, plus I woke up every day with 'morning sickness.' We tried Danazol, with no luck. Then we removed one ovary, also with no relief. Ultimately, I had a complete hysterectomy in 1981, at age 28. Having kids was never a big priority, but this is so devastating for women who want children. I'm glad the advances in treatment are helping today's endometriosis sufferers.
Sorry to hear that Betty and thanks for sharing
Great information! Thank you Doctors!
Welcome
I was having very heavy periods with severe cramps. I was running into the bathroom every 15 minutes to change and hoped I didn't leak onto my clothes., which had happened a few times. I needed to wear 3 tampons and a heavy flow pad. This was hard to do with a full-time job. I was finished having babies and wanted a hysterectomy. Three male OB/GYN docs told me "no you don't need it. Just take a couple Tylenol to help ease the pain". I then switch to a female OB/GYN. I started explaining what I was going through and she stopped me and said "Hay, you're preaching to the choir". When I had the surgery, I had two 6" cysts, one on each ovary plus endometriosis. I felt so much better after the surgery. I could live a normal life.
It was horrible, had to fight for a diagnosis. Fortunately we had ours sons young. Partial hyst. at age 26. I pray that those that get seek answers relentlessly. Thanks to my fav guys in blue!!!!
Thank you so much Donna and so glad you had your sons too
I had endometriosis, very early on - I had the heaviest of heavy, and irregular, very frequent periods from age 11, was severely anemic, went on the pill at age 16, had several ruptured endometrial cysts on one ovary (excruciating doesn’t even describe it), had severe period like pain every single day, had my first laser laparoscopy at age 29, tried Depo-provera injections which did nothing, wasn’t a candidate for Morena IUD, had my second laser laparoscopy at age 30, finally had a complete hysterectomy with one ovary removal at age 31, and then at age 40 had a 4th surgery to remove scar tissue from the first 3 surgeries. Endometriosis is hell.
I have been told not to take HRT for menopause because it can make the endometriosis recur. So I’ve suffered through 6 years so far of some incredibly intense and frequent hot flashes and night sweats.
Wow so sorry you had to go through all of this
@@TalkingWithDocs Thankyou for covering this topic. It goes undiagnosed far too often.
It took me years to have the courage to seek help, and when I did, it took me 4 more years and 5 doctors to find answers after 20+ years of pain. Don't suffer in silence and don't give up until you fine answers.
Thanks. Great advice.
Thanks for sharing this doc's
Thank you so much for posting this today! I'm a cancer survivor who has been dealing with endometriosis probably my whole life (undiagnosed) made worse by my cancer treatment. I'm currently trying to get a proper diagnosis. I'm pretty sure I have the worst of the worst kind because of everything. I've as much as had a hysterectomy and am still suffering. I am happy to see more open discussions on this topic. Such an under diagnosed severely debilitating disease.
It sure is Jody. We hope you get the care you need
I have server endo stage 4. Had 5 surgeries already. Laparoscopy, 2 laparotomy, TAH&BSO at the age of 23 and also an Explatory Lap on the same day for internal bleeding. It's 5yrs since I removed everything, I'm better than how I was but the pain is still there. It has spread to my other organs. I'll be 28 next month, married for 12 yrs and NO kids.
Wow we are so sorry to hear this. The average person doesn't realize how hard it can be
Dr... quick question.
Recently, I've changed HRT, and when I started the new one, after about a week, I was spotting, and it just stopped. Is this normal for someone who is full into menopause???
I was just diagnosed and I’m still trying to wrap my head around it, it is such a complicated disease, and what makes it even harder is no one around you will understand understand.
My fiancé has endometriosis a very painful condition she had surgery twice I feel so bad that she has to go threw this
I am sorry that she's going through this. I hope she can find relief somehow. Peace!
I know how you feel. My wife had an R/V fistula after my daughter was born and she was in really bad pain. Ironically enough, she had a lot of stomach pain early this year and she had a test right away to rule out endometriosis.. she was miserable for months. Turns out pantoprazole finally knocked it down.
Sorry to hear this. Hope it gets better
I'm so sorry to hear that bro. I don't want to come off as an ass hole, but if having sex with your wife is important to you, you might want to reconsider you decision. Good luck.😢
I never experienced endometriosis this is very informative about women’s health.
Had endometriosis first time pain at 16 diagnosed at 40 after a ruptured endometrioma. Here in Kenya some doctors still don't understand it so they keep believing it doesn't exist here. 2 surgeries later been pain free for 11months
This illness makes you have a high threshold of pain. I don't understand how I could handle post surgical pain better than endo-pain 😮
Thank you Docs for covering important women’s health topics. 💞
Very welcome
Thank you for talking about it!
Welcome!
Thank you for saying it's a clinical diagnosis!!
Welcome
Such a great video! This is an important topic for women and awareness of treatment options is key.
We thought so
I had it really badly, though not as badly as my sister who almost died as it went into her bloodstream. I had to get a hysterectomy because I wasn't dealing with it coming back with an ablation. I didn't want kids anyway so I was fine with it. I got the depo shot a year before I had the surgery and it made me bleed for 12 months straight. Before that I used to get my period every other week. I also have PCOS, though surprisingly never had any cysts. When I was a teen I went to the doctor because my periods were always extremely painful and made me physically ill. The OBGYN told me that it was "normal female problems" and to "get over it" and that I was being "a big baby" (he was male) before prescribing me a birth control pill that made me go through every single emotion in less than 30 seconds. I passed out several times, once down the stairs at school and sprained my ankle so badly that I then needed ankle surgery to fix extremely loose ligaments in my ankles. Birth control never worked for me, it only made things seemingly worse.
I'm 32 years old mother, I got diagnosed with endometriosis after years of suffering, thanks to Doctor Eromon Herbals for his natural remedies. I so much appreciate, it eliminated the endometrial tissues completely and permanently.✅✅✅✅✅✅✅
Great you did this one.
Referencing age 20 is based on studies 40 years ago. It actually can start in teens, so by your 20's its far worse and in my case too late.
Get that gyn relationship early and chart your cycle and pain.
Blood clots during cycle was not mentioned or break through bleeding between cycles not being on pill.
People used to assume cancer would not happen with lining so damage. False
Its actually harder to determine in some cases. By my daughter and myself lived that one.
To those women suffering, demand help and maintance to avoid problems later. Be your own advocate, especially her in Canada.
Its nice to see a Dr that cares and willing to pass onto a specialist.
GP rarely refer to GYN here before a pregnancy.
I had so much scar tissue, it could not be removed from my vital organs. Its still a life changing problem many years after radical.
I often wondered if anyone determined if it passes through generations like our family.
Thanks for sharing.
Very welcome. Thank you for sharing
I started my period when I was 10. By the time I reached 14, the pain was horrible. Nobody believed me.
@@lucilemcgregor
It's unfortunate but that's not changed. They compare you to how your mother managed missing the big clues.
This is a hot topic I'm glad they shared. Silence is painful.
Thank you for talking about this! As an Endo patient diagnosed age 33 and who's gotten surgery age 34 (within a few months, that is), I am always happy to see ppl advocating for us and spreading information. Because I literally learned about the condition here on CZcams and my intuition nagged on me. I had stopped going to the gynaecologist after too many frustrating experiences (+ADHD executive dysfunction really doesn't help).
But then I saw these videos on Endometriosis and when my relatives fled from a war and were in need of gynaecologist appointments, I decided I might as well go for it for real. I looked at their homepages to find there was a place nearby with the doctors there actually having endometriosis training certificates. So I got us all appointments (had to translate anyway) and purposefully went last. And I started right out by saying that "I think I have it an here's why....". And since that gynaecologist was trained, he checked all the checkboxes, said "Yeah, soundly likely, let's do the physical exams" and ultrasound and all. And then I had a referral to a surgeon.
Now, said surgeon failed me. 😅I asked for a hysterectomy "since we're operating anyway". For a long list of reasons including: "Better save than sorry, that blasted organ is inflamed each time and hurts like hell + I NEVER want kinds EVER!" (not in these words XD). Cause we also suspected Adenomyosis. And as a person with ADHD, everything "regular" like medication + appointments to get said medications, is a NIGHTMARE!! He refused. He'd only do laparoscopy. "too young + he's too worried to get sued" were the reasons.
Worst day of my life. It had taken me so much courage and energy to even get that far. We can very literally thank my ADHD executive dysfunction and my "night owl" circadian rhythm induced dysfunction, that I'm alive. I was a breath away to never return home and that several times on my journey back. That's the degree of devastation that came with seeking help but not receiving help.
[Part 1/2]
The critical part was not that surgeons personal preferences, fears and concerns. It was him saying "I won't do it and you'll not find anyone else who will. Not before we've run you through all medical options first". That was devastating. If you are a doctor: have your concerns or personal fears or medical reasoning .... but do not tell ppl that noone will help them they chose to get helped, when their reasons are backed and with proper consideration of risks and benefits. The appointment is too short and I am the expert in my life. It's from the list of treatment options that are approved treatments and if you fail to understand why I opt for it above all else: Ask me.
Know it's a neurodivergent person? Throw out your assumptions on what patients usually look for in a treatment. I live a different life. You have no data on how we suffer from things and what our value ranking is, neither as a group nor when it comes to individuals!
I was lucky. When I was utterly devastated, on a slightly less terrible day, I wrote to my local clinic. Told them my condition and age and asked if their surgeon would dismiss my preferred treatment option my default based off my age. Nope. Sweetest surgeon(and doctor) I've ever met.
He saved me from Endo and the excruciating pains + social repercussions for being in pain up to 2 weeks a month, from a polyp in my (now removed) uterus, from medication nightmares n side effects, from "fear of getting non-consensually impregnated during consensual or even non-consensual intercourse".
I had a difficult surgery complication. I couldn't care less. Hysterectomy and ureter re-implantation were a breeze compared to Endo induced pains etc. each month. I didn't notice I had water in my belly for a month (cause there's also surgery gas that can take a moth to go away), cause it was pain free. By the time my left kidney was "under water" (cause the injured ureter had basically grown close), the pain was like barely noticeable back pain on one side for me.
My surgeon was devastated. He came in to tell me when (insurance wise) he'd actually not be allowed to talk to me and absolutely not tell me he "messed up" by getting too close to my ureter on one side. They DID check me TWICE the day after surgery to assure my kidneys were fine and they HAD looked fine at that point. My gyno used the 15 minute appointment after to pull my sutures. By the time I had the next appointment for kidney ultrasound (when we spotted the problem) a month had simply passed. Everyone had tried their best!
Smiled at him like a sunshine and told him that I couldn't care less. He's my hero! He's a human. He chose the best candidate to "fail" with. I was "dead" when he agreed to see me and evaluate my case without age based treatment discrimination. He listend to my reasoning and needs and how my treatment choice made sense to me. I told him I'd show him how I'd brilliantly recover!
We're still in touch (a 3/4 year has passed). My life is still a host of (other) struggles. But now, I'm no longer tortured by my own body every single month. And no longer scared of unwanted pregnancy (for most parts. I still have ovaries, though lol.). My akne is almost gone and overall inflammation now way rarer. No meds stress!!! PMS mostly gone! I could go on and on!
Because I'm neurodivergent and traumatised, the character of my surgeon was more important to me than high end surgical skill "without failure". I'll never choose a skilled arse over a kind person trying their best AND being able to fail with grace. I would have collapsed under surgery complication with the other surgeon. With this one? I climbed this medical "Mount Everest" not blinking an eye, just to make sure this kind soul would never regret having helped me, when I needed help and acknowledgement of my individual needs the most!
Sorry. The story is a book. Noone might read it. But I had to write it :'D
[Part 2/2]
Total hysterectomy age 39 and of course surgical menopause. I'm glad it's being treated with more sympathy now than during my situation 40 years ago. I had painful heavy periods from my first menses and had about 20 years of chronic pain and worsening symptoms before the surgery. It didn't fix everything but it helped. Warning, hormone therapy for the menopause isn't great when you still have endometrial cells left behind. They react to the hormones. I have a vertical scar because the doctor said they couldn't get at everything via the usual horizontal incision and as someone else posted, he said mine was the worst case he'd ever seen, and he was approaching retirement. I lost tummy control and developed partial rectal prolapse afterwards so even surgery isnt always a cure-all. Luckily I did have three children when I was still young so I'm grateful for them. It got worse afterwards. I hope women and girls are served better today.
We sincerely hope so too. Thank you for sharing.
Women and girls are not served better today, a family member of mine has this and it’s been awful. She’s been in excruciating pain for years and no one would do anything for her or take her seriously. She was berated multiple times for “wasting hospital resources” because they couldn’t figure out what was wrong and wouldn’t believe her. After finally getting a diagnosis, the shocking thing is that insurance rarely covers the surgery to treat it. I wish our healthcare system would take this more seriously.
Thank you for talking about this....this happened to me and it became infected...it resulted in a hysterectomy before I even hit 30. Very sad as it had been going on for a long time and it was a challenge to get good medical care. This conversation will be of great help to a young woman that is struggling in finding help. Wish it could have been different for me so many years ago....
That is our hope Sharon. Sorry you had to suffer the way you did
@@TalkingWithDocs In reading some of the comments from other women out there it is a big/necessary step/jump forward that you doctors are taking. Judging by the comments from all of us, your talks are of great benefit to us. I'm so glad I found your channel. Be well and thank you again.
OMG!!!! I’m so glad I found this. I was diagnosed with Endometriosis 2 years ago and my physician could not provide answers on what the next step of treatment is. I have taken all the notes I need and taking it straight to them. I’m currently taking ibuprofen daily and it’s just a bandaid. My next question is what would be the best birth control method for a person with high blood pressure?
Excellent info, docs. Yup, I had problems with endometriosis which stopped when I had a total hysterectomy. Luckily for me I had had my son before the worst symptoms happened. Thank you for all you guys do.
That's good to hear
I have been in pain for 6 years before I diagnosed with endometriosis
I had tow surgery to remove fibroids when I was 36 years.
I tried many painkillers, contraceptives,it didn’t help me to relief the pain.
Unfortunately I live in a county where they don’t have a good knowledge about endometriosis
I never heard about till I had it
Thank you for sharing this information.
Thank you so much for this video! It validated my experience to the tee. Unfortunately, my pain & symptoms were dismissed for too long by GYNs & I suffered. Painful periods are not normal & women deserve proactive treatments.
Very welcome
Correction. There is no progesterone in hormonal contraceptives. It is progestin, which is not the same.
Thanks for sharing
great information, thank you. This one sounds horribly painful.
It sure does Gregg
I had severe endometriosis, being diagnosed in the early ‘90s. I remember telling my doctor about the pain, I told her that my mom was found to to have endometriosis when they did her hysterectomy back in the ‘60s. I asked my physician if I could have it, this was in the mid-late ‘80s she basically blew me off, telling me that there wasn’t a way to tell and if I got pregnant that would help.
In the early 90s I went for an ultrasound that showed a 10cm mass on my ovary. They did surgery, removed my appendix, one ovary, and part of the other. I was in the OR for hours. The surgeon told me that it was a “mess in there”. I got monthly injections to put me into menopause, which was hell for me with the intense night sweats alternating with chills. I wasn’t sleeping, I was miserable. After I went off the meds, I went to a fertility clinic. Fortunately I became pregnant during the time that they were evaluating me, and had a healthy baby girl. I definitely felt better when on birth control pills and after weaning my daughter , and having a miscarriage, I went back on birth control pills which I stayed on until I had a hysterectomy at the age of 49.
Sometime during the mid to late 90s I entered a study done by Oxford University attempting to find a cause or genetic link for endometriosis. Since my mom and both sisters and several cousins had been diagnosed, we were a perfect family to study.
So sorry to hear of your struggles. Hope you are ok now
Hi what meds did u take pls pls reply
My 17-year old daughter has been struggling for a little over a year. Her pediatrician kept waving her off, saying it was just that she was a teenager and it was anxiety. In February, we took her to the ER with suspected appendicitis and was told she had a 7 cm ovarian cyst. Four months later, we did another ultrasound and were told it hadn't shrunk so we opted for laparoscopy. She had surgery last week and the surgeon said there was no cyst when he got in there - it was an enlarged ovary due to endo. He took part of her ovary and we will discuss hormone therapy with him at our post-op appt next week. My daughter is a 17-year old lesbian with absolutely ZERO desire to EVER have children and I don't see her changing her mind later. She wants to just get rid of all the offending organs now, to save herself pain and suffering in the future. Do docs push back on hysterectomy for women under 18? If her surgeon won't consider it, can she just come back in a few months after she's 18 and demand the surgery? How often do you see total hysterectomy in young people?
Sorry to hear this. It is very uncommon due to the potential to change one's mind but obviously once an adult she gets to make her own decisions. It is only out of an abundance of caution. Best of luck to hee
That’s not going to take it away please do research so u can understand more they tell u to get a hysterectomy but it still comes back regardless if u move it or not God bless hope we all heal
Hmm? Its funny how the medical professionals will take away the sex organs from a troubled child or teen who have it in their mind that they what to be the opposite sex? Not possible by the way, despite popular belief, yet women and young females who are in extreme pain on a continual basis are told no they are to young???
22 years of suffering. Heating pad, muscle relaxers, a cane/walker and marijuana have helped me the most. It was a miracle I had my kid. I also have ibs and interstitial cystitis along with endometriosis. Night sweats are insane and not sure if that's endometriosis related or not. My last monthly I had to go to the E.R. i couldn't bear the pain. What really sucks is, you can get surgery and it can STILL come back. Its starting to affect me the on the days I'm not on my monthly. The depression is definitely a side effect. I have to get on disability because I can't work. But i guess it could always be worse. Praying one day I get some relief.
We hope so too. Best of luck. Thank you for sharing
I'm not sure when my endometriosis kicked in, but looking back, I think that I also had it from when I was young. It was first suspected in April 2018, confirmed diagnosis in July 2020. Despite through it all, my husband has stood by my side and has been my rock, so are my parents. My mom also had endometriosis, so she knows what I'm going through. To top it off, I also have celiac disease and need to go gluten free
Thank you Doctors! So many relate to this. I had a hysterectomy at 60 years and the Doctor said I had bad endometriosis that he had to cut away from the ureters. I had always had extremely painful heavy periods, but thought that was “normal”.
I wish I didn't have a hysterectomy at 36 years old. I was misdiagnosed with endometriosis
@@araceliserrato1189 I am so sorry to hear that. 🙏🏼💝
I wish this was exposed 10+ years ago when doctors thought i was crazy. I suffered bad. All the best to women suffering from this. Keep pushing and get help.!
Yes it can be hard to diagnose for sure
I’m going to add Dr. Torger’s prescription for men: Be nice to women. We men have no idea what women go through (I had never heard of this before) and so a big part of being a gentleman is to take them seriously and practice compassion.
We will take it onc step further. Be nice to everyone
Thanks, Doctors, for putting up a channel with solid information. So many charlatans are attracting a large audience with BAD information.
If properly educated professionals do not confront the garbage out there - who will ?
Thanks John. That was one of our goals. Nowadays you can pretty much say whatever you want and that's dangerous.
What's the best contraceptive for someone who has a duel endometriosis PCOS diagnosis? I find I'm simultaneously managing ends symptoms, which are painful, and unwanted weight gain and hair growth from the PCOS. I find I can manage the weight okay, but I HATE the excess hair growth.
Wow, I had no knowledge of this terrible painful ordeal that some women deal with. And so complicated. Dr. Sharma was well spoken and your questions were so on point for his excellent explanations. It’s a good day when learning something new. Thank you. James 🙋♂️👏👍
It sure is James and can help men understand a small part of what some women suffer through
I finally got my diagnosis last month after 14 years of symptoms (they started when I was 15) The specialists I saw kept telling me my symptoms were normal, so I kept trying to get a second opinion. The 4th dr I saw diagnosed me in 1 visit. I am almost completely pain free on this new medication. I was on birth control before that, but in constant pain even when not having a period. I am so grateful this new dr listened to me and I am finally getting help
What new medication
@@reginatillman2595 it’s called myfembree. It was a bit of a pain to get my insurance to cover it, and the transition period off the birth control and onto the myfembree was really rough for about a month with all the side effects. But things have leveled off quite a bit. It’s been about 5 months now and things are great
I've officially gotten diagnosed with fibroids, but have had a lot of issues with medication- migraines prevent me from using estrogen birth control, progesterone causes severe bleeding for some reason, and I seem to be gaining resistance to my GnRH antagonist (Orilissa). I've been getting mild pain on my right ovary and leg all the time, and severe bleeding, cramping and tender pain during my period. I did an ultrasound and there's a cyst on the right ovary that's possibly an endometrioma and I'm going to get another D&C and possibly a lap to check out the cyst. I'm unfortunately running out of options and am heading down the pipe towards hysterectomy.
Could you please do a video on another very painful condition for mainly females and that is Interstitial Cystitis. Thank you.
At 40, I had 7 golf ball sized cysts in my ovaries they found after one burst and did a full hysterectomy 4 days later. All was so painful, I do not miss it.
Hope you are ok now
Thank you. I had a friend with it. She was hurting a lot with it.
Yes it can be very difficult
I had my first period age 9, was stomach sick, lots of pain. I had no clue what was happening to me, I thought I was dying. I kept it from my Mom until she found my soiled clothes. She cried, I was way too young for that. Now age 47, I was infertile, had partial hysterectomy at age 39. I made so many emergency visits over the years for pain control, so many different kinds of medicine, which ended up causing irrepairable damage to my stomach. My endometriosis came back with a vengence about 4 years ago, slowly but steadily. Im now again waiting for surgery, and this time a colorectal surgeon has also gotten involved because I have endo on my rectum. It's also all over my abdomen, bowel and the back of my vagina. This stuff is deadly painful, it's literally ruined my whole life.
I've never had endometriosis but it all sounds like very good info. I wondered if you could do a video on colitis. Also, maybe a video on how to change your primary care doctor. I've been going through a lot of health issues recently and my GP of 10 plus years is really letting me down. I've had to go to the ER twice in the last week, reported back to him and he seemed completely uninterested and not responsive to my needs, not to mention no show of concern or compassion towards me whatsoever. What the hell? Thank you for the service you provide. It's really helpful to people whose own medical doctor/s is subpar.
Thanks Words. We can definitely add those to the list
Doctors often don’t believe women’s pain. It was like that 30 years ago and it continues to be. Doctors ignored my issues for years. I’m convinced that if a man had gone to ER twice in one week, doctors would be all over it.
@@lucilemcgregor I agree, yet there are also women who also dismiss our pain due to them not having it.
@@nikkibaxter5550 You are absolutely right. When I was struggling with endometriosis, a friend said she disapproved of women who took sick time when they had their period. I was thinking « I can’t leave the bathroom when I have mine »
Women can be very nasty to other women. But nothing beats the male doctor who told me I was uncomfortable with my femininity , which is why I « hated my period ». By the time I was diagnosed in my early 30s, my reproductive system was destroyed. It angers me that things haven’t changed much since the 80s.
Thanks for sharing…..for years I appeared to be a strange woman when trying to explain my pain
You are so welcome
I’ve had my fair share of painful cramps (though I’m a hormonal migraine, feel like my head is in a vice girl), so endometriosis sounds like hell. These women aren’t heroes, they’re superheroes plus!
Endo can affect you long after menopause. I had a hysterectomy at 24 and just had surgery at 50 to remove adhesion where my liver was attached to my diaphragm in 4 places, plus adhesion on my intestine. Having this idea that it can't effect you after you no longer have a period made it very difficult for me to get diagnosed and treated. Nearly killed me.
I’ve never suffered this! So sorry for my sisters who are experiencing this. Menopause is hell too! 🥺🥵
I work in the dept of Ob-Gyn at a university medical center. One of our Ob/Gyn's father (also an Ob/Gyn) had a patient with an endometriosis lesion under a fingernail! Every menses, it would bleed - not enough to damage the nail but it bled.
Wow that's nuts
I had endometriosis from age 12 til my hysterectomy at age 36. I had 5 laparoscopy surgeries for it. I am a DES daughter. I never had children. I usually never lost time a in school or work because periods were not a legal excuse. I wouldn't wish it on my worst enemy. I was given Danazol.
Can anyone please comment? Does having endometrial cyst of 5cm in the ovary cause pain everyday in the pelvic area ? I hope this will be addressed. Thanks.
I disagree about using birth control. It made me a million times worse. I felt like a crazy person and couldn’t stop crying and feeling like I was dying or going insane. It’s a mask for the endo. Deli made me gain like 40lbs. The IUD was sooo painful. Only thing that works for me is bio identical hormones. And I had the surgery to remove the endo which was super successful for me.
Can u explain the bio identical hormones name?
I have endimitrosis for 20 years and i tougth it hurt a lot but conpared to pudenal pain is like a walk in the park.
I had endometriosis badly since I was like 17 or 18. I had many many female surgeries. I also developed many cysts and a benign tumor. The doctor suggested a hysterectomy. Luckily I had already had one child. I had a cyst that ruptured and it was extremely painful. A doctor recently said he believed I still had some. I don’t know how that can be when I had a hysterectomy. They did leave in a ovary so I won’t have to go into early menopause. Now they’re going back-and-forth about a cyst or something on my ovary. That’s left. I hate that I have so many health issues. I was actually told years before my last gyno by a different one that I probably wouldn’t ever get pregnant. I’m lucky I did though before needing a hysterectomy around 31 years old.
Thank you so much for sharing your story
I believe that it’s fed by estrogen which comes from the ovaries. After my total hysterectomy I didn’t have HRT, for almost a year. Surgeon felt it necessary. It was hell 🔥🔥
@@lucilemcgregor Oh I have a story for you. Short story. The local hospital sent a man into my room to give me a sponge bath. I had requested a woman, but they sent him. Don’t get me wrong, some are okay and not bad. Well he made me extremely uncomfortable. He not only said uncomfortable things, but the way he cleaned me was in an erotic way. I finally said, Nevermind. I’ll be fine. He gave me the creeps! (I have other horror stories but not to do with the hysterectomy).
@@Melissa-JC
Hope you reported to patient administration. You were not the only one if that brazen.
@@pjk1714 Well, I did to the patient advocates I wasn’t sure who else to report to.
the 'interruptions' before the summary were very important
Thanks.
Fatigue with endometriosis can also be intense. I have trouble functioning day to day. I'm currently seeking a specialist because the previous one told me that they didn't do laparoscopic excision at all and if the birth control she gave me didn't work I'd need a hysterectomy and oophorectomy. Prior to seeing her I had a follow up ultra sound that my GP discussed with me. The specialist didn't even tell me the results of that exam accurately. I have endometriosis, uterine polyps, cysts, and fibroids....in for a penny in for a pound I suppose. I need yo find a new doctor, I thought pain between periods was just part of it, I didn't think that is was a bit of a red flag. I wish more health care professions took this more seriously.
Question need help with possible diagnosis? During my period. I usually have this sharp unbearable pain on my right side! Though when not on my period it's dull. Sometimes I have trouble breathing like temporary asthma too! My periods or irregular either once a month or a month and a half. I have extremely heavy bloody periods. Where I get light headed, throw up and have blurry vision. But I also have Gallbladder symptoms. Like acid reflux! Extremely hungry, but can't eat anything. Hot flashes. I have the light brown, foul smelling, skinny floating stools. I have a history of iron deficiency anemia. No matter how much I eat or vitamins I take it doesn't help! I've never had a gynecological exam. They don't want to do one. Since I've never had sex. I have hormonal issues. But my thyroid test allways come up normal? But my mom and sister have a history of Ovarian cysts. And my grandma had Breast cancer twice. And my Aunt Lisa passed away from Brain cancer recently. Should I ask and push for an exam anyway? That and possibly a gallbladder exam. I know gallbladder endometreosis is rare! But is it possible I might have it? I have been getting worse over the pass 4 years with hair loss, skin rashes and bad allergy attacks. I've tried everything. They say eat better or exercise. I do that and I feel worse than I did before. I get attacks out of nowhere. And the only thing that helps is to ride out the pain. What is worse is my family thinks I am overreacting. And just to deal with it, it's not that bad. Or I'm just out of shape. But I get awful headaches. Facial twitching, sore right shoulder or jaw TMJ. Symptoms like the stomach flu. Where it feels like someone stabbed me on my side. Or hit me with a metal baseball bat. And it hurts to walk around even, and I get out of breath! Or getting sneezing or coughing fits. Please I'm just searching for an answer! Cause I get these same symptom once a month for almost 2 weeks. It effects my life so much more than people think. I'd really appreciate your guys help or advice! On where to go or who to see, or potential diagnosis. I don't have a primary doc yet. Since I just moved recently.
I have endometriosis, pcos, pid, and uterine fibroids. It hurts. I'm 32, and my insurance doesn't cover the hormone treatment after a full historectomy
Why did my gynecologist get my diagnosis wrong ? He retired and I cannot go back and ask him😢 i need my uterus back he caused me so much suffering
I had pain for many years and always my doctor say a don’t have nothing. Now a gynecologist say I had endometriosis. He recommend me to use DUI.
What do these blessed doctors think? 😊
Thank you.
It definitely could be the cause of your pain and an IUD is one way to address this. Best of luck
I had a work colleague who had to take two days off every month because she could not physically function. She finally had surgery to fix the misery. Horrible condition!
Yes it's brutal
Just to add, endometriosis and adenomyosis are risk factors for endometrial cancer.
Thanks for sharing Rebecca
I was diagnosed PCOs at 16. I had to use Vicodin for my periods and missed 1-2 days of school every month from age 12 through college. It was awful. I had surgery to remove a large cyst from my left ovary is 2009 when I was 32. My endometriosis was diagnosed 4 years ago and I was put on a long term birth control pill. About 1 year ago, the cyst regrew on my left ovary. I had an MRI and it says it is a large endometrioma attached to my lower sigmoid colon. I also have it on the outer edges of my uterus. That's only what they know for sure. My surgeon says there is more in there and possibly attached to other organs. He won't know until he gets in there. My total hysterectomy is on Monday coming up. Pre-op tomorrow. I find it hard to understand that they do this surgery outpatient. Because of my medical issues my surgery will be in the main hospital and I will be staying afterward. My anxiety is SO high right now. I have a tremendous fear of pain as I have Complex Regional Pain Syndrome. That's one reason I am staying for pain control. He said a Dilaudid pump. I also have SVT so my heart rate goes sky high when I am experiencing pain. I really just want this over and done and safely. Prayers are welcome. Thank you for this video. Alot of people do not understand how debilitating this disease is and they think you are just "complaining or over reacting" or my favorite "drug seeking". Trust me, it IS that bad!
Hello i have surgery on the 13th of Oct. I was wondering how did ur surgery go? How are u feeling now ❤
@@LoveOne102 Hello. I am so sorry I didn't see this until now. You have 2 days before your surgery and hopefully you see this. Getting that hysterectomy was rough, not gonna lie. The hospital anesthesiologist messed up that was supposed to order the pain pump and only ordered morphine every 4 hours. I hope you have discussed pain care with your surgeon already and have that in place.
My surgery was a bit more than expected. My ovary was firmly adhered with the cyst to a section of lower colon/rectum area. He had to "shave" it very carefully off. The fibroids were also connected to my cervix and my uterus so they of course took all of that. The worst was that it was very adhered to my vagina. He ended up having to cut my vagina apart on all the sides and carefully stitching it back together. I hated those stitches. He told me that was a heck of a job. Then they clean out any of the rest of the fibroids and lesions and sew you up and get out. I have 4 laproscopic holes and of course the stitches. I was placed on heavy antibiotics twice. They didn't want me to get an abcess in my vagina and then again because my incisions were infected. I have Connective Tissue Disease so my wounds never heal. It has been slow going but the difference is TREMENDOUS. I kinda wish I had done this sooner. The pain is gone, the heaviness and swelling is gone. It's like my lower abdomen is a new person and I like her now, lol. If you see this please give an update and prayers all goes well and you have a good result.
@@tobadoba18 Before i had a hysterectomy i had many operations to remove the endo off my bladder and pelvic wall area, and was in so much pain in my bowels, and bladder, to the point where i felt that the bowels were pushing through to my vagina, i was at my wits end and was ready to give up.
They said to have a hysterectomy, yet i knew it was no th endo as the pain was different, 10 years before i had a scan and they discovered a small pocket of fluid behind my rectom, from then on the pain got worse and worse and worse, over those ten years i had loads of blood tests, anal investigations, that caused me to have anal tags and fishers, I kept asking them to check that area where they found that small pocket of fluid years before, they kept saying its nothing that would be causing you the pain your experiencing, i disagreed, they continued to ignore me, the reason i am mentioning this is because you mentioned abscesses that can be caused by internal infections due to the incisions.
So ten years after they saw that small pocket of fluid that they said at the time was NOTHING.
I was about to end it all as no one was listening, and i could no longer cope, i went to back to see the gyno, and he suggested a hysterectomy, put me on some hormones to stop my periods, that did not get rid of my pain and after i went to the colon surgeon again and asked him to check in that area they saw that pocket of fluid all those years ago, that i was sure was causing the pain i was in, as well as the endo pain.
He the surgeon ignored my request yet again, and just investigated my rectum and told me everything was completely normal.
So I went a head with the hysterectomy, 7 months later the pain was so bad i could not sit, i could not walk, i could not sleep, and my friends and family were listening to the doctors the surgeons, "your body is still recovering from the surgery" my family were like "Get over it we all have had one, you should be getting on with your life now"
Then i went to the A&E i had took all i could, one doctor bless him, one doctor put his finger up my butt and straight away said i had an abcess, that was the first of 11, i thought it was 10 but looking through my medical notes i did not know that whilst i had a skintag removed years before they also found an abcess that they never informed me of?
All those abscesses, all stemming from a huge abscess that was attached to my colon, that they thought was part of my colon, each time an abscess was drained, they let me back out, and i kept telling them that the pain was still there, back and forth to the doc then the hospital, again and again more scans to be told nothing is there, only to be back in hospital a month later to drain another one. That happened over and over, and over, for two whole years i was in and out of hospital, on a drip for three weeks at a time due to sepsis. Till eventually they realised that that huge lump was not part of my colon but a flipping abscess, that i till this day think was that small pocket of fluid they found ten years before, that had grown, and my body trying to get rid of the poison created tracks from that first abscess, that created more abscesses. Once they drained the lower ones and they refilled with puss the very next day.
So I was wondering why this happened why i had this abcess in the first place, no one mentioned the possibility of abscesses forming from the surgery, so no i am wondering if they were caused by an internal infection after one of the surgeries?
Why over all those years having bloods done, scan after scan, nothing was seen or picked up?
I never had a fever, even when i had the sepsis, yet i did feel like i was dying, the abscesses were bursting inside me and poisoning my blood stream but by the time i got an appointment at the doctors and they send me for a blood test, it was always normal as the pain would have subsided by the time the blood tests were taken.
I wonder how many women have had this happen to them?
Or maybe it wasn't due to the endo op's, maybe the drugs they gave me?
Or something completely unrelated?
Any how my heart goes out to you, if i could advise you with anything i would suggest that you are aware of what they are giving you and whats in what they are giving you, and ask questions on the tests done on the medication they prescribe to you.
I mean do they tell us there is horse urine in the HRT?
Please mention women in menopause also!!!!. I m one of them. I had a severe relaps of adenomiosis and spread deep Endometrios as an effect of MHT! The doctors toldme it can do no harm. It did!!! I m completely debilitated nothing in my pelvis funktions. Please talk about us because it was a hell getting diagnosed because healthcare lacks awerness about us. 🙏🙏🙏🙏🙏 I got diagnosed at a private Endometriosis clinic and it was bad. I got a total hysterektomi and excision on intestines and rectum.
I have this and passed a 50p sized blobs of clots. Nightmare
I have stage 4 endometriosis. Mine has spread around my organs, fused my badder, bowel and womb together and got huge fibroids both inside and outside of the womb. I get pain any time of month, but period is the worst time for sure. I also get pain ovulation pain. It gets so bad that it causes vesavegal, or hypertensive. I have had many surgeries. 45 and nolonger able to work. Which has also made me gain weight, have depression and addicted my mobility. It sucks. I hope I don't lose my sense of humour.
I have a lap nov 8 2023. Neevous but happy. Whether they see something or not I know i can rule out endo.
Please explain to males (especially those who are belittling females) what endometriosis is, and how painful it can be, (that it is a real medical condition.)
That's what this video should accomplish. It's debilitating
I think I have Endo. I’ve had 4 ectopic pregnancies. 2 laparoscopy surgeries. My cramps have gotten so much worse. I’ve had cysts before my ectopics. I have an embryo I need to transfer. I just don’t want this pain. I have used tense units to try to distract the pain. It makes me feel faint. I get constipated often and sometimes pain on my left side with intercourse.