We Are Visible Trailer 1

We Are Visible is the debut feature film by filmmaker Karina Sturm, who lives with Ehlers-Danlos syndrome besides other conditions herself. We Are Visible was produced as a student project and features people with EDS and comorbid conditions around the globe. Chronic Pain Partners Production supported We Are Visible during the screening and distribution process, and the film is available on Chronic Pain Partners Productions’ Vimeo channel for a small amount donated to Chronic Pain Partners.
You can watch the film here:
vimeo.com/ondemand/wearevisible

[@pick10tennisjacquelinebogg23]

Awesome that you are spreading the word!!! My daughter has EDS and this all rings very true! Thank you for this media outreach!!❤

[@krw5723]

The concept of not being able to function without movement aids one day, and being relatively ok and able to ambulate the next, does not sit well with people. They think we selectively choose to be ok.
Then, in my case, my people have to accept that on my good days, I usually over do it doing everything I’ve been putting off for a good day, so I usually end up useless for several days after. Idk how else to manage my life, though.

[@RyeOnHam]

I am concerned that all of the stories here are women's stories. Half of the people I know with EDS are men.

[@noaheg]

That's an understandable concern. But I think it's also important to recognize that EDS is disproportionately more severe among women than it is men. And regardless of which gender the focus is on, I think it's still inherently a good thing to be spreading awareness about EDS as a condition and providing resources for all people who suffer from it. I think it would be awesome to hear more stories from men with EDS. I have a family history of it but personally do not know any of the intricacies or specific differences in regards to EDS and men.