If you would like to make a consult with Dr Omar Danoun please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar
When I have an aura, I get hot, my heart starts pounding with anxiety, I feel scared, like I need to get somewhere safe asap, and it's hard to talk or stand. I get dizzy, and my vision gets blurry. Thank you for these videos they are very helpful!
The racing heart with need to get somewhere safe . Like I'm gonna die, but if I get away I won't. But I never do. I always wake up somewhere, where I wasn't before. Very scary. I hate even thinking about the thought. It's like it can drag me into the sezure
I don't just get poundings in my heart, I would first have a strong shock in my heart then only would my heart be pounding extremely fast. I also have the other feelings aswell, and it is a scary feeling. I wouldn't ever want anyone to have these feelings, not even my worst enemy. I have to say that even when I wake up from a seizure, I feel like I have gone back in time, like I have been sleeping for years and my body would feel numb, almost like I am awake but I'm still sleeping. Like I'm in a dream world, even though I do recognize the world I'm awake in. The worst feeling for me is when I get shocks in my heart and it starts pounding extremely fast. It's like a feeling that you are about to die, but over the time what I have learned to do to help my shocks in my heart go away, I say in my mind "No". That's all I say, and it goes away, it's actually amazing how that works for me, because if I don't say no, then I get the shock in my heart and my heart starts to pound extremely fast.
I get deja vu, I tell my self,I’ve seen this before, then I get worried, and my hearts starts pumping quickly. Sometimes I feel like I’m having a panic attack. Also, my vision when you walk towards a mountain, it looks like it goes further away from you, I close my eyes, relaxing and I start to see my vision getting longer and it’s SCARY
I get tingling all over, anxiety fear sets in, then the bells or ringing and dejavu my body goes in a sort of video game mode...I have to male the right choices always end up praying
I've dealt with a seizure disorder since around 2017 and when I get what's known as an aura, sometimes also known as an out of body experience or feeling of dejavu it makes me feel as if I'm out of my body but feel paused to reality. A feeling of zoning out but also feeling unattached from my physical form. About 30 seconds later is when I usually go down
Thank you for this video. I have bipolar 1, PTSD, panic & anxiety disorder. I’ve been having horrible episodes lately of zoning out, flashes of lights, tingling, etc. my new dr is sending me for a MRI to rule out seizures. I feel so much better now getting a doctor that’s actually listening to me.
I'm actually pretty grateful for my auras because I see them as warnings to get down and tell someone to call the number on my bracelet, NOT 911. They're generally around 10-15 seconds and feel like a pulsating dizziness.
It makes me feel good hearing someone say they are grateful and understand the benefit of these. My seizures come on instantly with no warning at all. I’ve injured myself so many times, even crashed a car once. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken. I’ve actually had to have my teeth repaired twice now due to falling and busting my face. I wish so badly I had some sort of aura so I could get down or warn somebody. I hope everything is going alright with you and you’re seizure free, this is a hard condition to deal with, we’re in this together ✊
@@nathanlaney1542 Oh I'm so sorry to hear of your dreadful seizures-tonic clonic I assume? Bless your dear heart. I wish you well & hope that you can find a med that works well for you & boots those seizures in the butt. 😥❤️🩹
It made me so nervous when he talked about flashing lights and then said, “Let’s see the difference.” 😂 I’m glad he just explained it, and didn’t show us.
I get the feeling of my stomach turning over, a strange metallic taste in my mouth and a distorted view on reality causing me to not recognise where i am
So sorry you're suffering in this way-I've been there, but since May 2021 tge neurologist prescribed me lamotrigine and I reached a level ( 200 mg bd) where so far it's kept the lid on my seizures. Nice not to be terrified & screaming & then waking up with a chunk out of my tongue & feeling as if I've had a fight with a rhinoceros. I hope that you can find a med that helps keep your seizures under control 😰❤️🩹
For as long as I can remember, I've had what I would call deja vu attacks (intense feelings of deja vu with nausea), and I had to stop thinking and doing until it stopped. It wasn't until 2018 that it led to losing my awareness (which I wasn't aware of), and I was told I was drooling and appearing vacant. This led to my diagnosis. It's strange to look back on it now and realise they were seizures, and I always had epilepsy.
I had a focal seizure at work and woke up in the hospital. All tests came back clear. I researched my situation and realized it wasn't my first seizure. I have had these auras for longer than I want to admit.At least I know now I am not going insane. It's very scary.
Friday at dialysis this happened they said I was stomping my feet and fighting I woke up in the hospital test came back clear my family think I’m reading to much into it I knew I wasn’t crazy
My aura could be called deja vu, but it feels more like my mind is entering where dreams are made. I can make myself have a seizure if I focus on the dream I was having just after I wake. I just get it over with while I’m still safe in bed.
I also have deja vu's before my seizure as well and try to focus on something else but the seizure still happens. However, mine comes if I don't have a dream. So when I wake up and didn't have a dream, I get scared throughout the day.
Exactly and when I get a full deja vu it's fucking scary. Mine starts with hyper awareness, chills, then hot followed by deja vu feeling like in a dream like state, and when it gets to the point where i get disoriented and I'm deja vu mode+ the full ass the memory is affected and you can't remember who you are or what is happening and you go in and out of consciousness ❤❤
I have auras about once a week or so. Normally there's dizziness, a confused feeling, and my eyes go in and out of focus. But when it proceeds an actual tonic clonic seizure, the eyes going in and out of focus, as well as the confusion are much stronger. The last seizure I had (I don't refer to Auras as seizures), I was in the grocery store in the cheese section, trying to figure out which was the best deal, and first I realized I couldn't do the math to figure out which was the best deal. Normally I'm very good at math, so this was confusing. Almost immediately, my eye focus started going in and out very strongly. Once this happened, I knew it was coming, I knew that there were people around me, I thought to myself: Oh no, please not now. Next thing I remember, I was in the ambulance and these medics were asking me questions, that I couldn't answer. I must have had another seizure in the ambulance because I had more lost time, because the next thing I remember, I was in the emergency room. It's so disconcerting. I just wish there were reliable foods or herbs or whatever that could help control seizures. As it is, I'm on Aptiom and Briviact, but I would LOVE to get off those meds.
It’s a low carb diet Tim stick to a low carb diet this was used to control seizures in children as far back as the 1920s and it really works! Look into it thanks for sharing and good luck 👍🏻👍🏻👍🏻
Wow! Between the video and the comments I feel so validated. I’ve had some of these feelings not realizing they are an aura because I don’t usually have a seizure after them but I am Epileptic
Exactly dude I always thought my epilepsy was gone now, but everything in this video is still going on. I thought they were normal until I saw that the people in the comments were just like me
My auras are one of the most horrible feelings. I feel fear, hearing music or voices but can't repeat them, dizzyness and INSTANTLY I lose apetite! I would feel depressed the day after. They were diagnosed as depression and anxiety. Accidentally, I found out I have epilepsy auras showed on EEG, left temporal lobe.
I had a few blackout suspected TCS. I take anti seizure meds for chronic migraine. Im now off road and on watch in case I pass out again. I have the same experience. I feel depressed after the migraine and have bad nausea. I'm 5 stone 9 because of it.
After my 4th tonic clonic seizure my memory has been in shambles. Very old memories feel like they just happened, other things i forget within seconds/minutes, asking partner same question, telling the same story etc. The auras you refer to, I feel like i have been having those multiple times a day since my last seizure. My neurologist has upped the medications a week ago after they saw on EEG that I have every 20-30 seconds epileptic activity. I am guessing these are the auras i am also having frequently? I have been feeling lost in the overload of information . Feel l dont know what to ask or share with the specialist to help me feel more safe and secure in the treatment. These videos have been helping tremendously though. This one in particular is at the best timing moment, gave me a sense of validation and probably more knowledge then my own neurologist gave me. Thank you Dr Danoun.
I have them lol it’s like auditory hallucinations or something.pretty scary yet helpful for me because i can tell people around me that i’m about to have seizure and lay myself to the ground or go to a safer place all within 15/30 seconds.
I ignored my warning aura. It kept getting stronger and I was afraid but still ignoring it. It took my first ever hallucination, Yoda, dressed in Ewok garb, really mad, telling me to take my med & get into bed, NOW! I did but it cracks me up the lengths my subconscious went to in order to make me listen.
I have all sorts of auras, sometimes none at all. Actually, a car accident is what led to my diagnosis. Doctors were blaming it all on anxiety. Sometimes I'll start sweating profusely and feel jittery, can't think or focus. This usually leads up to a metallic taste/lightheaded spell. Other times I can actually feel the electrical current move from that taste to smelling that taste, following by nausea. The current is not painful, but I can feel the abnormal bursts of current travel. All brief. I had an unusual aura back in August 2022. I was walking down the stairs, about half way, and froze. I knew something was going to happen, and it's as if I was being instructed to make a decision. Do I want to try to run to the bottom and hope I make it or sit down? Neither was really safe. I was going to try running, but too many milliseconds had passed that I decided to sit down on the stairs. I can even remember sinking into the step. Some sleep seizures will wake me up, have me stumbling through the hallway to the bathroom. I'll feel disoriented. I often go downstairs for a bit, and if it continues, my head will drop. Medication reduced those episodes. My favorite ones are when it feels like the universe is honing in on me, almost hugging me. Everything looks crisp and warm. The greatest kind of aura. Only one of those.
I get covered in gooseflesh. Especially my face when it's happening. That how my family knows it's coming... Goosebumps on my cheeks. It's so terrifying. Feels like deja vu and then I feel it in my stomach and goes up to my head and it's like being injected with terror... It's scary.
Sometimes it can be hard to explain having auras to others who may not know much about epilpesy and auras themselves. These videos you are doing can teach those who may want to learn about it or if they have partners who have epilpesy themselves can teach them too know what he or she should do. To my own family at times it hard to explain the feeling they do see changes when I've had grand mal ( Tonic clonic ) fits/seizures to this day my family hate seeing me have seizures because they can't do anything while in one other than make sure nothing in your way by your mouth other things too. I first started to have epilepsy at six years old at first they didn't know what was going on with me after a number of tests I was diagnosed with were pulled out of mainstream school to go to a school who could deal with everything. One or two of the worst experiences I've had fighting for my own life my own fits nearly killed me.
I have auras regularly , each month with my cycle . Since starting ketogenic diet my auras have been much less intense and I feel much better mentally and physically . I have gone from a size 20 to a now size 14 and my mental clarity is much better too.
I live in Arizona, driving laws here allow you to drive as long as you have auras of sufficient timing which means that if you have an aura, you still have enough time to pull over and stop your vehicle before the big one hits. It's amazing how every state differs on driving laws
@@frankw3545 I live in a very small town in central AZ with just a 2 lane highway unless you drive atleast 1 hour north or south to get to a bigger city. Unfortunately in 2019 I was driving in wickenburg az and had a grand mal behind the wheel. Thank God my family wasn't in the car and no one else but a brick wall got hurt.
You better be lucky you’re not in California. They’ll steal your license if you even pass out!! Arizona has good driving laws for people with epilepsy.
I have auras where one side of my face gets cold and begins to go numb. It gives me just enough time to lie on the floor, couch, bed, etc. I always have a cushion closeby just in case to protect my head as I have tonic clonic seizures. Thank you so much for your enlightening videos and for bringing awareness. Blessings
Best explanation I have ever heard in my life, thank you so so much! Thank you for covering the vast array of symptoms, I have experienced every single one and it’s hard to explain to people that the symptoms are not the same with each aura, yes there are the common ones for me but there are also uncommon ones I’ve only had a handful of times. Your description of stomach pain is especially helpful, I wish doctors knew more about how bad stomach problems can be with epilepsy. Also very impressed with the way you described what feels like a movie flashing in front of you, that one was the most difficult for me to describe. It was like déjà vu but like all I could see was a flash of a memory I didn’t remember, but like my view was covered completely all of a sudden by this “movie”. This is so helpful and I wish every teacher and employer would watch this 💜
Thank you very much for talking about Epilepsy and explaining it so well. There are many doctors (including my own) who are not bothered about their patients. They just give you the diagnosis, some pills and send you home confused. I had no idea that an Aura is in fact a focal aware seizure.
Ive had epilepsy for 25 years and im amazed how much the symptoms can change, i used to have deja-vu but it changed to ones of strong fear and now I've also started over the last 3 months to smell unbelievably strong smoke! Thanks for all the info you've provided its great to hear more details.
@apinhmi I can't believe we have people like you, and they're allowed to vote! Tell Jesus to teach you how to spell seizure as he's not doing a very good job!
@@christianwatson2032I take 300mg of lamotrigine a day, 350mg of topiramate a day, 8mg of perampanel in the evening and I have an emergency medicine called buccolam
I used to have it before every epilepsy seizure, and I caught on and used it to warn my parents and it worked sometimes. I was cured 14 years ago by brain surgery, but I still have the feeling sometimes, I did just now. But that's all that happens. It only lasts a few seconds. I've also noticed that it only happens if my sleep schedule is altered, like having to stay up too late, or even sleeping too much. So I have it under control for the most part.
This is how I feel every time a seizure starts: I first notice a small red dot up in right part of my eyes. This red colour then spread all over, and I get a weird kinda good rush, but still a bit scary feeling. The best way of describing this feeling is listening to the background sounds in The Beatles's song "Tomorrow never knows" with the volume turned up to 11. This lasts about 30-40 sec, before "the real" seizures appears. Can take hours before I'm back.
I'm from Indonesia, as long as I suffer from and was diagnosed with epilepsy, it turns out this is the answer I've been looking for, thank you, doctor 
this video was very interesting i had a focal aware seizure around 6 months back and i was in bed trying to sleep i had a weird feeling in my head and fought it off twice but the third time i had that weird aura type feeling in my head i couldn’t fight it off and then i had the seizure with convulsions moaning and even had to use the restroom right after my seizure which i found out later was another symptom of a focal aware seizure and remember everything about it as i didn’t lose consciousness during it and even tried to resist it when i realized what was happening as thats probably most people’s first reaction is to resist and fight against it but it freaked me out a little afterwards as it’s my first time ever having a seizure but anyways nice video keep up the good work my friend
Thank you for this video, I haven’t had one in a long time, but in the shower last night I all of a sudden had intense Deja vu and started remembering an old dream from years ago (I don’t remember the dream itself now, just know that it was OLD). I remember hearing some repetitive song too and then when I stopped spacing out I was light headed and nauseous. This video helps me get a starting point when I speak to my doctor 😬
I don't know how to tell if I've had a full on seizure, but so many of peoples symptoms are so relatable. I'm working with specialists to figure out what is going on.
I have been having "episodes" like this since about a month ago after a bad flu and have gone to the ER all tests normal, when i came across focal seizures it is the closest thing that explains what i have been experiencing. I'm learning what seems to "trigger" it, usually after a long day or if i haven't eaten or drank enough.. I'm not sure what else it could be but what some of you have described is very similar to what I have felt.. The first time was really bad i felt this feeling inside my "center" abdomen getting bigger and bigger (when i couldnt find my words as it was happening i kept saying "it's going up"), my muscles went weak for a second like i got really heavy, covered in sandbags feeling, my throat went tight, the back of my neck went really tight (and does each time i feel it) strange sensation in my nose like it was full of smoke then i felt like an electrical storm in my head then it progressed to these strange sensations coarsing through one side of my body (then later as i had another it switched sides) i felt like liquid fire rush through all my nerves and like electricity flashing through my nerves after the head and i got really hot, shaky and clammy.. i got a rush of intense fear/anxiety go through my stomach like rush through me out of nowhere.. it faded away.. then later got another and the other side started up.. i had several of these over a few hours, i tried eating which seemed to help after a while, they eventually stopped... ever since then I'll be fine for a couple of days then start feeling this strange sensation in my stomach/throat before it would happen.. so since my sodium was low the first time and my sugar was low another time, i figured not having eaten as much and being tired after most of the day has been triggering this somehow.. i have an appt with a neurologist soon.. i don't know what or why this is happening but likeni said started after this bad flu, they had me on a couple meds while i was sick, a couple of them lower seizure threshold.. but interestingly enough one of my meds IS an anti-convulsant! when i called for help the first time i knew it was coming from my brain i kept saying it's in my brain. was hard for me to find my words properly until it would pass.. I'm really worried, have looked up so much on what this could be or why but reading some of the experiences on here seems so familiar to this... sometimes before it happens I'll get tingling, too.. i can always tell just before it happens..
Incredibly understandable explanations of possible causes for symptoms. I wish I had seen a doctor with your knowledge. If you don’t mind me asking, how much would a medical diagnosis cost out of pocket?
My neurologist doesn’t believe me or act like seizure auras are even a real thing. It’s so frustrating because she just took me off my seizure meds and they’re terrible now
I am very interested in rapid relief medicine in nasal spray form. I assume this helps with onset of a focal seizure. The nasal spray I would think would take affect sooner. Your input appreciated!
I will remember some funny things from the past that I wouldn’t ordinarily think of. Also other things from my childhood. Light sensitivity is also a common thing for me.
Thank you, Dr. Danoun for your videos. I've recently started having issues, and am being treated currently. This is all new to me, and your videos have been a great resource for comfort and understanding. It has kept me from being overwhelmed with it, and has also helped communication between my doctor and I. Thank you!
I suspect having some type of seizures however, the doctor says otherwise, I just don't know if I actually believe it completely. Back in October 2020 I suddenly started to get dizzy and pass out several times a day, I could feel in my chest my blood pressure drops and my pulse raise, then I would start to taste it in my mouth at the roof of the month and smell it right before passing out, however, I don't always fall out on the floor, idk how I managed to do that 😳(we may be able to fall asleep standing but we can't sleep standing, without some type of assistance that would keep you from falling down,) I do know that when I would wake(idk how long I was out)back up I found my arms and legs shaking trembling and I had muscle jerks and it takes a few seconds or so to finally wake up enough get to the point of being aware of my surroundings, which is a little weird, and when I get up it's as if my legs want to give out from under me, makes it a bit hard to answer the door when that happens. I also will suddenly just stop talking completely and as I've been told I just stare😳 and they can see when I (come back) by my eyes), I'll also have times where I can be watching TV and realized that I somehow missed a part of the show and yet remain seated, now that's a weird feeling 😹, this is separate from the passing out thing which I've been diagnosed with orthostatic hypotension tacicardia syndrome where my blood pressure goes down to 76/51 and my pulse is usually at 120 at rest, however, I run low to begin with with an average BP between 90 to 100 as sistolic and 50 to 65 diastolic was once 49bpm🤷, I have to go into public if it were to happen in public, lucky for me and since I can feel them coming I just steaded myself and stood there until it passed holding on to the cart. Lol, One day at Walmart I saw this lady with a toy poodle who was wearing a 2020 mask😷🙀 and I went to see her and she couldn't get to me fast enough, not knowing why I just stood there and she climbed out of the cart and up on my chest, as I explained what stresses I was going through when suddenly I felt this huge release of stress it felt like a release in my chest and I could actually breathe. She told me that her dog is her seizure dog The whole thing kinda freaked me out some, I've NEVER felt anything like it before that or since, miss that😔. Did have a neurologist do one of those test with the wires on your head, lol, I can't think of the name of it, lol, yes, I have big memory issues, he said that I had narcolepsy and hypersomnia before I sleep too much, came home from working like 5 hours and went home a took a 19 hour nap, didn't even get up to pee, eat, or feed my furbies(kitties) which I felt bad for but they understand, of course I also have depression and anxiety and PTSD and SI. I wonder with all of the major stress(lost my home to fire in 2018, Lost the home I bought because the seller didn't pay the mortgage, and then I moved in this apartment building where the management harassed me constantly for things , and had actually bullied me into attempting suicide twice 3 weeks apart, and robbed me and I almost died, was intubated and on a ventilator and had liver failure both times, and they also stole like $15,000 worth of my belongings, including all of my toilet paper 💩 🧻 leaving me without any, and took my hygiene items out of my shower, it was a retaliatory eviction, they won because when I was to be in court on the 13th of January I had OD'd on pills for the 2nd time in 3 weeks, first time in December it was over 50 morphine 30mg tabs, narcan X's 2 with no response, and so since I was in ICU they decided to not tell the judge and I lost by default, should not be legal, just saying, took them 4 days to go through my stuff, they read everything they could including my dairy and poems that they never gave me back, then I stayed at my brother's house and that was a disaster because his wife Stole $500 from my debit card and then they decided since I pressed charges on her that they would just get rid of all of my all my belongings including my Ashley sleigh bed and now i have no bed just a mattress on the floor, 😳, Im 52 and have numerous medical issues that make it hard to get off of the floor, not as agile as I once was🤦, took so much of my life's items, he took about $75,000 of my items (5000 beanie babies, approx 20,000 sports cars, etc, too much to mention, and, I've not been able to get through what they have put me through, and they don't care either 🤷 so in that short of time and to make things even worse it's as if it's never going to end, or end well🤷, I now have grown to hate and not trust anyone from this experience 😮😮, I've never been this way or under this much stress, ever, my doctor and I are just waiting for me to have a heart attack or stroke from all of this stress that I've been going through for over this for almost 2 years now, could this also be an issue that can cause some type of seizures ? Can excessive stress cause seizures?. And what about the passing out issue? Thank you for your time and I do apologize for the long message, I tend to feel that I need to explain things more thoroughly to explain it so that I feel someone would get it, know what I mean? You can actually email me with your thoughts if you care to, if not, again thank you for your time and have a great day, stay safe.
I get auras somewhat infrequently. Sometimes multiple times a week, other times once every few weeks or months. Usually deja vu, sometimes anxiety, sometimes it's a really really weird spacey feeling, and sometimes it's sudden stomach sickness that goes away after a few seconds, sometimes I'll be talking and stop and stare into space (this one more often with alcohol use) , if very excited I tend to stutter and its sometimes accompanied with repeated movement. I also will get sudden intense ringing in my ear that is not related to sitting up too quickly, I used to have that more when I was younger, especially when trying to sleep. Interesting, no?
When I have an aura, it’s a warning that I’m about to have a fit seizure, it’s helpful in a way as I know I have around 5 minutes to get to a safe place, time it and put something soft under my head, let someone know it’s about to happen if they’re home and make sure there’s nothing around me that can hurt me. I’ve now got used to it and know for sure that I’ll bite through my tongue 🤦🏻♀️😭 my partner has got used to it too and thankfully he’s very supportive and makes sure I’m always safe 🥰
my seizure aura is a crawly feeling that starts on the inside of my right hand. It is sometimes accompanied by an ache in the base of my head. This spreads to twitching of my right hand, then spasm of the hand, moving up my arm into my neck. My migraine aura is left facial nerve pain, buzzing & pain in my left ear & pain sometimes yellow spots left eye. Occasionally I’ve had a strong metallic taste in my mouth.
My Aura’s are like dejavu. It’s like I am living outside my body and can tell what is going to happen next. It feels like my brain and body are not working together and my brain is like a second behind. Its so weird and so hard to explain to anyone.
Hey man, thanks for your videos I really appreciate the information you're giving out, I have started experiencing nocturnal seizures since November 2021 when I was 24 years old and I'm so happy to learn from your videos, what your saying about auras makes me curious - do you know if this de-ja-vu feeling can occur in dreams before a nocturnal seizure occurs? I often feel myself dreaming in a way only describable as how you've explained auras here!
My aura is an intensive feeling of fear- I am suddenly afraid 😱but I don’t know what I am afraid of. It’s also as though I am reliving these minutes from before. This sudden feeling of panic grabs without warning but after it’s over I can conclude I’ve had another “aura”😅 I wish they would stop but I have no control over them- the medicine does little to nothing.This started when I was 14-I am 70 now so go figure 🤷🏻♀️? This “feeling” starts in my stomach and progressively extends through my stomach until it reaches my entire system and this if frightening.
I hear a noise I can only explain as a ping pong ball bouncing around my brain and smell and pepper bunt toast smell I swear I thought I was going crazy
The day I had a seizure I had very little warning, I hadn’t had any seizures in 10 years (the last two had a squiggly line aura like a cartoon animation of static on TV screens in the left corner of my vision just before the tonic clonic) and then one morning I felt kind of half awake and took that as a normal morning feeling and then I went for a jog and my consciousness went for like a brief second whilst I was jogging and came back again and I thought it was just a bit of light headedness and then the next thing I know I woke up in a moving ambulance. I experienced a similar feeling going from a low carb diet I’ve been on since last year to a plant based high carb diet, it’s a very surreal and artificial dream like state, when it’s day time and you’re supposed to feel alert and focussed and that came with other sensations that I had with focal seizures last year so I said screw plant based and switched back to low carb.
Thank you for this! My aura's have been getting worse and happen when I wake up from sleeping, which is when my seizures would usually occur. It's nice to get a little clarity on the matter.
And thought I was having focal seizures because my dad said it wasn’t an anxiety attack, but I remember the very FaceTime I had an episode was when I was standing in line in middle school to register for my classes. No, I have a brain disease I was born with, and I remember standing in the line and all of a sudden, my ride I couldn’t see clearly I couldn’t talk. I couldn’t hardly open my mouth. I started feeling like I wanted to gag. I kept smacking my lips because a lot of saliva started accumulating in my mouth and I wasn’t able to speak clearly and the right side of my body started to shake a lot, I remember one time I was at my grandmother house and I had just came in from playing outside with my cousins. I was totally fine and then this episode came on and it was pretty bad. I was trying to get to the fridge raider to see if I could get me something to drink to start what was going on, but I ended up hitting my head and I had a cut on my headfor a couple years then all of a sudden they start back up recently. I had four in one day.
My guy Dr. Omar: do a in-depth video on how to differentiate scintillating scotoma from benign etiologies such as spreading cortical depression vs from occipital epileptic etiologies such as seizure or lesions of the posterior brain that could lead to this experience (bright, rainbow, C shaped, flashing bilaterally). I had this for the first time yesterday but no headache following, the visual symptoms matched migraine due to fortification effect and not circles or round spots that are more typical with aura due to epileptic source / a seizure so it’s kinda odd, considering asking doc for mri but I’m sure he gon say that’s overboard but i don’t care, imma have to throw him overboard if he don’t go overboarrd!
I get auras every month before my menstrual cycle starts or I might get it at end of my menstrual period, they vary in many ways , I feel a warmth feeling from the forehead to the back of the head, I get dry mouth, I get nausea, I feel a sensation usually down the side of the body, I might smell something that I’ve smelt before or I might see a scene. In front of me that I’ve experienced before . I get these every month like I mentioned, and when these happen, I usually sit down and let it do its thing, because they cannot be stopped . I don’t get these every month of the year , I think it is when the menstrual bleeding is very heavy or the oestrogen is very strong. I am almost in menopause and I’ve been doing ketogenic for one year. Since doing ketogenic the auras have been less intense and less active, I’ve only had one major seizure but I felt the seizure happen so slowly that I was in control of it , I took my frisium to stop it going further . My dog sat on my Lap the whole time, my dog knows my epilepsy well and he sticks by me when these happen
Mine are also monthly or every other month or so, closely associated with my menstrual cycle. It’s weird though because I’ve had these since I was a child before I started menstruating (also, I am not pre-menopausal). It’s pretty predictable though timing wise at this point in my life.
@@Kedolmansame , i have scarring in my brain which could have been when I was dropped as a child and hit my head , I had these auras as a younger child before menstrual cycle, I didn’t know what was happening , i tried talking but nobody listened to me, I was scared etc and I tried to commit suicide which left me with short term memory loss and then the auras disappeared maybe because I forgot them but they returned around when I was 27 when I lost my father and brother and a lot of trauma happen to bring on the stress . So I’m told it’s either from scarring that could have happened either from being dropped or overdose . But they would have seen this scarring when I did overdose and they would have been more attentive ?
@@kyliejacobs6817 WOW. What you’re saying is SO SIMILAR to my story. I was pushed off of a very tall slide when I was 3 years old- I broke my arm and was knocked unconscious. My auras started as a young child, and they seemed to stop during my teenage years. They started again in my early twenties and have been regularly happening around my cycle ever since. Maybe scarring has something to do with it.
@@Kedolman correction, the overdose did not play a part in my diagnosis because all doctors said I would have had seizures very soon after . I didn’t start having seizures again until 3-4 yrs later
When seizure was about to happen my body shivers like uncontrollable shivers then I used to tell my parents that something is about to happen. And I ended up blackout. 1st time I blackout for 3 to 4 hours and 2nd time about 1 to 2hrs and 3rd time I just get that I was about to have seizure so I took rapid relief medication it was a nostril pump.
I get a sound of what might be called "ear fluttering " which is like the sound and feeling when you are yawning, only I'm not yawning. It happens slowly at first then escalates. I also get a weird feeling, like an amorphous blob that sits just behind my eyes and nose, and it's like brainfog to the max. It makes me feel I need to lay down and soon I've passed out.
I'm aware the entire time and a sign is my left arm twitching & now I have really bad anxiety which I'm on now. I have sickle cell disease and moyamoya.
I had my first seizure as a result of being prescribed Ludiomil. I injured my back in 1986 and before surgery was sugested, I did all the other noninvasive treatments. Along with pain meds I was given Prozac, then I think 3 or 4 others because I kept developing adverse reactions. Looking back with my now "retired nurse" knowledge, all the problems were all CNS involved, shaking, jerking, sudden inability to swallow or speak until I coughed and that relieved it. 4 weeks after Lower Lumbar Laminectomy I was allowed to go Christmas shopping for my small kids. My mother took me. I woke up in the hospital, three years of memory gone, my tongue chewed to hamburger meat. I'd had several prolonged grand mal seizures. I was told that I would now probably have seizures for life. I took several different meds but again, the same problems, which makes no sense but I was given phenobarb and then weaned off. For the next twenty years I had a seizure about every 6 to 8 years. Then I had three in a row. After the hospital, I was given a new med and after three months my WBC dropped to 3,000. Med change, continued to drop. At 1500 I stopped the meds.
@@rn5992 You may be sorry you asked. I took nothing and continued my 6-8 year cycle until 2015 when I was very near status. I have vague bits of memory. In the EMS, twice during my ten minute ride, I heard a woman (assuming EMT) say 1st time "She's seizing again" 2nd "Oh, oh, here we go again". My husband told me later that the seizures were different. I had never before had a seizure with both tonic and clonic movements. I don't remember much until I got home. Dr said they were involving more of my brain. I get frustrated because it left me with a mild aphasia & I'm a talker! Gave me gabba but nope, not taking. My gp gave me alprazolam, valium makes me weep uncontrollably, I take 1mg at bedtime. Not going to jinx myself by saying more than doing well. Although I seem to have a different kind of seizure now. I never had an aura before. I live on a ranch in Texas. I was out one morning and had deja vu. No biggie, always had this. Ignored it. Over the next 30 min it kept getting stronger. When it was so strong I felt dizzy, I headed to the house. My husband was on the porch and as I got close to him, as real as he was, to my left was Yoda, wearing those Ewok fur clothes. I knew he wasn't real despite looking like I could touch him. He was angry/worried looking. He said "Go lay down, your going to have a seizure. I've been trying to tell you. Hurry" That has NEVER happened. I went in, took a whole alprazolam. Was fine. In 2021 during the storm that killed our power for a month, we bugged out after a week of 3° temp, no running water & only a fireplace. The next morning at the hotel, we were holding our breakfast from the buffet and I had deja vu, few minutes later I told my husband the Swiss Miss (from hot chocolate ad) was coming. She needed to tell me a seizure was coming. I didn't see her, I felt her coming. Sounds nuts I know. We left, went to room and I took med & went to sleep. It's happened twice since but I know now regular deja vu doesn't have sudden, intense anxiety with it. I take my med & sleep. I think my "visitors" were probably my subconscious telling me something's wrong. They aren't panic attacks because everytime they've happened I've been relaxed, not worried about anything. I'm not complaining. I'll take this type of seizure over the big ones where I chew my tongue into ground meat, any day and be grateful. I know this was more than you asked. The short version would've been I'm worse but better. More frequent but type, much better. Thank you for asking, that was very sweet. Aphasia, I once forgot the words to Mary had a little lamb. I knew them, felt them but couldn't sing them. Refused to google. Took 2 weeks to find them.
It is an unexplainable feeling, similar to deja vu but not really the same. And a few other things. I mostly get them on their own but very occasionally they turn into grand mals. I ask someone to get me a glass of cold water. And take small sips. It helps me stay calm while it’s happening.
I get this too. Deja vu on steroids. The Deja vu happens but then it’s like I’m having a vision or something. After that passes is when I get sweaty and flush and panicky. I’m now able to breathe slowly and control that panicky feeling. Takes a few minutes to get back to normal. Sometimes I’m tired for a couple hours after
I just had one 2 days ago. Very intense deja reve, followed by a hallucination of what felt like an old dream, that feeling of being in a dream lingered a long time, followed by complete confusion, blank pale face and a hard time speaking what I wanted to say. Spent 8 hours at the ER yesterday, all tests normal🤷♂️
Have had them for many years an have experienced status epilipticus. Have you every had a patient born polydactyl with two left thumbs? Or any knowledge on the pp21 genome 🧬?
I have auras, and not all are followed by convulsions. My auras cause the right-hand side of my body to tingle; everything from my foot to my tongue tingles. My stomach doesn't know what's going on, and it sometimes releases what it's holding. While I am feeling all of this, I hear voices talking about me, in third-person, discussing what might have triggered the seizures. I hear male and female voices.
People with auras before tonic-clonic seizures are definitely lucky. Mine come on instantly with no warning at all. I’ve fallen and dislocated my shoulder, chipped my teeth falling on my face (more than once), scraped my head on pavement, fallen off a bicycle, crashed a car, and many other injuries due to sudden loss of consciousness. I’ve several times been alone at home when they’ve happened with no one to help me. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken and cuts all over my lips. I wish so badly that I had some type of aura.
I feel a sense of well being , like an angel, or "object" watching over me. It is very odd. What helps for me is to lie down and shut my eyes asap to stop more negative activity. When i used to attempt to fight it by keeping my eyes open, and pacing about like a headless chicken, the panic seemed to add fuel to the severity in my case.
My name is Grace Hustwick, I was in a really bad car accident in September 2020 a few days after I gave birth to twin girls. I had a seizure in the back of the ambulance on my way to the hospital, I had to have a blood transfusion as I was seriously injured, I broke my left ankle and it was cut open as I had my legs jammed underneath the dashboard, I also hit the windscreen and cut the middle of my forehead, I broke the last 4 vertabrae in my back (near the bottom of my back) (just above my tailbone), I also sustained a really bad concussion and whiplash. I required surgery as I had a really big bleed on my brain. I also required surgery to put a metal rod in my lower back (from where I broke my back down to my tailbone). I tried walking on crutches when I was allowed out of bed, unfortunately I face-planted so I ended up in a wheelchair for 2-3 months, I have had allot of seizures since I was diagnosed, I asked them to keep it out of my medical records, they agreed to keep it out of my medical records but because they agreed my doctor doesn't believe that I have epilepsy so he won't prescribe me any epilepsy medication to help with the epilepsy, I have been having allot of seizures over the past month. But I don't know if it's because of stress, high blood pressure or if it's because of how hot it has been
I've been getting auras since I was around 4 years old. We didn't know what they were as I used to call them "funny feelings and deja-vu" My Mum and all never really understood it because of the way I was describing it. I normally start off with a headache and then the same smells add to it and then very echoing voices which people raise their eyebrow at me when I say I can hear Donald Duck but that's not my fault, I'm only saying what happens and it's always the same. I have to go to the bathroom and I'll be sitting on the toilet rocking back and forward in frustration trying to make it stop. I also get the same smell each time an aura starts. It wasn't until I was 16 years old that I had my first fit, of which we know. I went to the bathroom and had the aura, got so bad that I passed out and fell to the floor, knocking myself out on the sink. My Mum came into the room after hearing a loud bang and there was me face down on the floor. I was diagnosed with epilepsy when I was 16 years old, I am now almost 36. I get auras during the day sometimes after I've watched certain films. I can't eat roast chicken crisps because that is a smell I get in my auras :( My favorite flavor as well! I don't normally have a seizure unless it's during the night but auras can happen at any time. P.S, I have had a seizure today. Was bloody awful! To everyone here who also suffers from this horrible condition, stay safe and take care.
I am 41 and have been having grand Mal seizures since I was 12. I get auras and I get the seizures at bedtimes and now I get the partial seizures random times during the day. Not everyday but every month. I’ve had multiple brain surgeries and taken multiple different medications that have only made me get more seizures. No doctor has been able to help me. I have actually had less seizures now that I’m not on medication but still have them. I don’t drive or work. It’s not an easy life..
My cat has seizures, about 1 every 2 months and he can’t tell me how he feels but I know it’s not good because before the last seizure he started swearing and before other seizures he will suddenly run through the house at top speed I never understand why until I read the comments written by people who also suffer them thanks everyone that shared their experiences.
I am on lamotrigine and I still get some aura, a feeling that I have done this before, a deja vu. Maybe I need to increase my dosage. I am at 150mg. I never had epilepsy until I turned 50 years old. I broke by spine in two vertebrae.
Před 14 dny
I've gotten auras for years and it feels like a huge mix of a panic attack and Deja-vu, i feel like i'm watching a scene I've already seen before, and a feeling that there are other spirts and people surrounding me that are from a different universe, and they trying to show me that God is real....
I´ve tried to understand the deja-vu like experiences I get in periods of high stress. Ive fainted, thrown up and always get memory loss after having these two minute episodes. No doctor has been able to find an actual cause for these experiences, even though I sometimes have them multiple times a week. They found one epileptic signal during an EEG, but they couldn't find a way to continue. So, I now live with this as a part of my life, not knowing if it could be treated or avoided. it sucks :(
After being seizure free, on no meds, for 8 years, I started seizing. Very short intervals between. My husband said these were different because I was having both tonic and clonic movement's. I vaguely remember in the ambulance hearing "she's seizing again" and later "we're pulling up to the hospital, your going to. She's starting another" This is where my aura story starts. Before, nothing. Then over a 2 year span the following; A horrible smell, 3 different times. Then one day I was working away from the house, on our ranch, and I had deja vu. Then as time passed it kept getting stronger. Every 5 to 15 minutes it would wash over me, getting more intense. I had the butterfly sensation and deja vu only now it was something bad coming. I started walking home ASAP. About the time I was near my porch, again only when I looked up, there was Yoda wearing Ewok clothes. I've never hallucinated before, I knew it wasn't real but it seemed as real as anything else! He told me I was having a seizure and it was going to get worse, I was to go take my valium, which I HATE, and go to sleep. I did it immediately. In 2020, we had no power due to winter storm, after day 7, went to hotel. The next morning, in line for breakfast, deja vu once and I just knew that the next time the "Swiss Miss", an ad character, would be there because she was coming. I went to my room, took my heard. Now I know the difference between deja vu and deja ohshit I'm going to have a siezure. I don't understand, and apparently neither do any of the docs I've seen, understand the changes. No head injury, negative scans etc. Why and how does this happen?
You sound almost identical to me! This past summer at 33 years old, for the first time ever in my life with no injuries, etc, randomly started having these exact seizures a few times a month but mainly when I’m coming off my cycle so I’m wondering if I even may have catamenial epilepsy but there has been couple times it was during other random days of my cycle. A couple months ago, I had my first ever tonic clonic seizure in my sleep which my 8 year old luckily felt since she was laying with me that night by the grace of God… even a few hours later right after getting home from hospital, it happened again. I have a video of my second one on my Tik Tok to spread more awareness on these things. I have appointment with neurology soon too. I was negative for Lupus and Addisons disease which I had possible symptoms of both. Glad I don’t have those! Guess we will see what happens. They offered to start my on seizure meds but I said no, not unless I continue having tonic clonic seizures or even too many of the partials! It’s miserable every time no matter what type it is! Just awful!!!! I’m so sorry to you and everyone else having to live this way not having solid answers can be so scary. Prayers! ❤
@@jessicahampton1991 Please be very careful. Read up on the side effects because side effects can cause additional problems. I hope you don't mind me asking but after your seizures do you feel a desperate need to sleep? The period after the seizure is called the post ictal state. Most people just fall into a deep sleep. However, there's a small percentage of people who wander around. Before we knew about this possibility, my husband would put me to bed. Next thing I'm wandering around the house the yard. He thought I was just being contrary. I tried to explain that I just felt compelled to walk. Now he gets it. The only thing that terrifies me is when it happens, if I'm alone. Only because for about 15 minutes I don't know "when I am" I know my kids are grown and I have grandkids but my brains ability to understand time is caput. I jcan look at a calendar, my phone but it means nothing until I hear someone tell me the day, date and time. Something about hearing it and my time "feature" pops on. Before I'm just lost in time. The neurologist, write down every med you take even occasionally or supplements because the interaction can be bizarre. I hope everything works out for you. If you can, let me know by adding another comment here. Good luck.
You must live in Texas! Lol! My 22 year old son has strong auras with pre seizure migraines, metallic taste, impending doom, and random electric shock sensations several minutes prior to full blown status epilepticus episodes that a total of 3 have ended up with him being sedated and intubated in the neuro ICU and the EEG and all other tests were inconclusive for true epilepsy diagnosis. Next time we hope to get admission to a neuro research center like UT Southwestern Dallas tx.
The part that I hate isn't that I chew my tongue to bloody mush, it the feeling immediately after. I don't know WHEN I am. My husband knows to come if I call him and ask him "When am I ?" I can stare at a calendar til I'm blue in the face, it means nothing. I know I have kids, grandkids, I know how old they are but I don't know where in their life I am. I know that makes no sense, seeing real live, Yoda, I knew it wasn't real, maybe my subconscious just got tired of being ignored! The other thing is I'm not afraid of much, roaches make me embarrass myself, but that's about all. Before a seizure, I am filled with this sudden terror. It makes no sense because seizures don't frighten me but I guess it's part of the seizure. When I was 27, I injured my back. We were buildig a house. My husband would lay out the rebar, stell reinforcement and on my day off of 12 hr shifts in the OR, I would tie the steel and fill feed bags 2/3 full and use our backhoe to move the where he told me to put them. I was 2nd scrub on a TVH, total vaginal hysterctomy assisting Dr Methusela and his older brother. So there were 3 of us between this woman's legs. They were soooo slow. Over an hour without a break, holding two retractors, 1 up, 1 down and bent at my waist and hip to one side, a vessel started bleeding, the dr said "STITCH!" and when I straightened up there was a weird snapping so loud every one heard it and my uuugh. I powered on til the end when they helped me to the ER. This began my hell trip. Prozac had just come out and after all the seminars and pharma bullshit, aplan for back pain was begun. All pts had to go to a psychiatrist because other ydrs didn't prescribe antidepressants. And you HAD to take them. Prozac made me shake, they changed it over and over until I got one that would paralyze my throat then I had to cough to break it. They wouldn't stop. I shook so badly from amitriptyline I couldn't feed myself. Then came Ludiomil. After that things were better. I had surgery that was great. After 4 weeks it was Christmas and I hadn't shopped. The doc said I could go if I didn't drive. So my mother and I are at the mall. My mom sits to people watch while I went to return tennis shoes for my dad. Mama said it was taking a while but she was watching the EMS come into the mall. Then they got off the elevator, looking sise to side she saw nothing. It wasn't until they went right behind her that she turned and saw me on the floor. This seizure was over 15 minutes. Never had one before. A couple months later it was reved from other countries for this reason. They knew but gave it to me even though my brain didn't like them. Years later I had my 6-8 year seizure. Long story short, my white cell count dropped so klow they tested me for HIV. It was the black box warning. After it got lower with each med they tried, I refused. They did this to me because of big pharmas rule. I'm 64 now, my mega seizure was in 13. I was fine til 180ish when I bought 2 horses for my grandkids to ride, i always rode the fresh off them to be sure all was well. This horse wouldn't lope, would not and when I gave him a good kick, he went full on rodeo. Ive come off since childhood in every imaginal way but this. My grandkids said " Granny yoy flew up so high and then landed on your head. You then had a seizure. I refused hospital because they were gonna say what I already knew. I had a concussion, at least 2 broken, but not h displaced ribs, later confirmed at regular GP appointment. The story goes on but I won't waste time. Do your investigating about meds not on google and check other countries.
I have absent generalized seizures. My aura is when I feel like I'm looking at myself outside of my body. My heart will start beating fast. My legs will start jumping. My hands will shake. When I have a aura I go lay down and plug my ears and make sure it's dark in my room. I will go to sleep or lay there and few minutes. Then I feel fine I'll go about my business like I haven't even felt like I was going to have a seizure.
I used to have 3 of those sensations all at once. Intense fear, sensation rising up from the stomach, and hearing a woman’s voice talking about my death in the past tense. Utterly horrid.
I get a unique smell I can’t describe. Hot. Drenched with sweat. Deja vu, and viewing myself from outside, with shifting in balance and perception. And reoccurring memories. Sometimes I have to go on my hands and knees. It’s all over in about 2 minutes. It’s worse if I’m sleep deprived.
I've had two auras the last couple of years before grand mal seizures. 1. I woke up with the worst headache of my life. I decided to get coffee, and to stop by the bank drive-thru ATM.
If you would like to make a consult with Dr Omar Danoun please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
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In USA call the clinic
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In the Leg and the stomach huh?
So when I'm having an Aura I'm having a seizure,I've just always been curious about my medical condition.
Please share about PCDH 18
When I have an aura, I get hot, my heart starts pounding with anxiety, I feel scared, like I need to get somewhere safe asap, and it's hard to talk or stand. I get dizzy, and my vision gets blurry. Thank you for these videos they are very helpful!
I have the ptsd panic 😱 sometimes which is when I feel an aura coming on
I’ve been asking myself ok whose in charge? Me and sometimes it stops
Thats literally everything I feel before I become unconcious. Even though I rather get cold and hot at the same time its weird.
The racing heart with need to get somewhere safe . Like I'm gonna die, but if I get away I won't. But I never do. I always wake up somewhere, where I wasn't before. Very scary. I hate even thinking about the thought. It's like it can drag me into the sezure
I don't just get poundings in my heart, I would first have a strong shock in my heart then only would my heart be pounding extremely fast. I also have the other feelings aswell, and it is a scary feeling. I wouldn't ever want anyone to have these feelings, not even my worst enemy. I have to say that even when I wake up from a seizure, I feel like I have gone back in time, like I have been sleeping for years and my body would feel numb, almost like I am awake but I'm still sleeping. Like I'm in a dream world, even though I do recognize the world I'm awake in. The worst feeling for me is when I get shocks in my heart and it starts pounding extremely fast. It's like a feeling that you are about to die, but over the time what I have learned to do to help my shocks in my heart go away, I say in my mind "No". That's all I say, and it goes away, it's actually amazing how that works for me, because if I don't say no, then I get the shock in my heart and my heart starts to pound extremely fast.
@@angeliqueschamrel6253 I am going through this 😪
When I have an aura, my heart starts pounding fast, I start hearing voices and feel like I'm losing my mind. Thanks for the video.
I get deja vu, I tell my self,I’ve seen this before, then I get worried, and my hearts starts pumping quickly. Sometimes I feel like I’m having a panic attack. Also, my vision when you walk towards a mountain, it looks like it goes further away from you, I close my eyes, relaxing and I start to see my vision getting longer and it’s SCARY
Yesss exactly how mines be smh
Hi,mine is pain in the chest and abdominal ,eyes twitching,and dizzy,no balance in the body ,heavy eyes open ot by force,and like having à panic.
I have a similar experience. It's very scary!
I get tingling all over, anxiety fear sets in, then the bells or ringing and dejavu my body goes in a sort of video game mode...I have to male the right choices always end up praying
@@joneteldridge9125 same brother
I've dealt with a seizure disorder since around 2017 and when I get what's known as an aura, sometimes also known as an out of body experience or feeling of dejavu it makes me feel as if I'm out of my body but feel paused to reality. A feeling of zoning out but also feeling unattached from my physical form. About 30 seconds later is when I usually go down
Thank you for explaining this. NO neurologist in the 40+ years I've had has ever explained this to me!
Glad it was helpful!
Thank you for this video. I have bipolar 1, PTSD, panic & anxiety disorder. I’ve been having horrible episodes lately of zoning out, flashes of lights, tingling, etc. my new dr is sending me for a MRI to rule out seizures. I feel so much better now getting a doctor that’s actually listening to me.
I'm actually pretty grateful for my auras because I see them as warnings to get down and tell someone to call the number on my bracelet, NOT 911. They're generally around 10-15 seconds and feel like a pulsating dizziness.
It makes me feel good hearing someone say they are grateful and understand the benefit of these. My seizures come on instantly with no warning at all. I’ve injured myself so many times, even crashed a car once. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken. I’ve actually had to have my teeth repaired twice now due to falling and busting my face. I wish so badly I had some sort of aura so I could get down or warn somebody. I hope everything is going alright with you and you’re seizure free, this is a hard condition to deal with, we’re in this together ✊
I get auras just before I get a migraine... So it gives me a warning to take meds too minamalise my migraine symptoms 😅
@@nathanlaney1542 Oh I'm so sorry to hear of your dreadful seizures-tonic clonic I assume?
Bless your dear heart.
I wish you well & hope that you can find a med that works well for you & boots those seizures in the butt. 😥❤️🩹
It made me so nervous when he talked about flashing lights and then said, “Let’s see the difference.” 😂 I’m glad he just explained it, and didn’t show us.
I get the feeling of my stomach turning over, a strange metallic taste in my mouth and a distorted view on reality causing me to not recognise where i am
So sorry you're suffering in this way-I've been there, but since May 2021 tge neurologist prescribed me lamotrigine and I reached a level ( 200 mg bd) where so far it's kept the lid on my seizures.
Nice not to be terrified & screaming & then waking up with a chunk out of my tongue & feeling as if I've had a fight with a rhinoceros.
I hope that you can find a med that helps keep your seizures under control 😰❤️🩹
For as long as I can remember, I've had what I would call deja vu attacks (intense feelings of deja vu with nausea), and I had to stop thinking and doing until it stopped. It wasn't until 2018 that it led to losing my awareness (which I wasn't aware of), and I was told I was drooling and appearing vacant. This led to my diagnosis. It's strange to look back on it now and realise they were seizures, and I always had epilepsy.
I had a focal seizure at work and woke up in the hospital. All tests came back clear. I researched my situation and realized it wasn't my first seizure. I have had these auras for longer than I want to admit.At least I know now I am not going insane. It's very scary.
Have you had a CT scan or MRI? After I found out about my seizures, they found I had a brain tumor. I've had two brain surgeries
@@ocorley3124 I had all tests performed and thankfully I was clear. I hope you get through this, never give up.
@ralphdeshon9710 that's great,vthx and good luck to you brother!
Friday at dialysis this happened they said I was stomping my feet and fighting I woke up in the hospital test came back clear my family think I’m reading to much into it I knew I wasn’t crazy
Same bro
These have been helpful since getting diagnosed with epilepsy I thought I was just going crazy at times
Thank you for saying that, before I had a major seizure I was having auras and I thought I was going insane.
My aura could be called deja vu, but it feels more like my mind is entering where dreams are made. I can make myself have a seizure if I focus on the dream I was having just after I wake. I just get it over with while I’m still safe in bed.
EXACTLY! I`ve been trying to explain this to my doctors.
I also have deja vu's before my seizure as well and try to focus on something else but the seizure still happens. However, mine comes if I don't have a dream. So when I wake up and didn't have a dream, I get scared throughout the day.
You just described what I have been trying to say
Exactly and when I get a full deja vu it's fucking scary. Mine starts with hyper awareness, chills, then hot followed by deja vu feeling like in a dream like state, and when it gets to the point where i get disoriented and I'm deja vu mode+ the full ass the memory is affected and you can't remember who you are or what is happening and you go in and out of consciousness ❤❤
Closest explanation of my experience
I have auras about once a week or so. Normally there's dizziness, a confused feeling, and my eyes go in and out of focus. But when it proceeds an actual tonic clonic seizure, the eyes going in and out of focus, as well as the confusion are much stronger.
The last seizure I had (I don't refer to Auras as seizures), I was in the grocery store in the cheese section, trying to figure out which was the best deal, and first I realized I couldn't do the math to figure out which was the best deal. Normally I'm very good at math, so this was confusing. Almost immediately, my eye focus started going in and out very strongly. Once this happened, I knew it was coming, I knew that there were people around me, I thought to myself: Oh no, please not now.
Next thing I remember, I was in the ambulance and these medics were asking me questions, that I couldn't answer. I must have had another seizure in the ambulance because I had more lost time, because the next thing I remember, I was in the emergency room. It's so disconcerting. I just wish there were reliable foods or herbs or whatever that could help control seizures. As it is, I'm on Aptiom and Briviact, but I would LOVE to get off those meds.
It’s a low carb diet Tim stick to a low carb diet this was used to control seizures in children as far back as the 1920s and it really works! Look into it thanks for sharing and good luck 👍🏻👍🏻👍🏻
@opalescentmica Thank you for all this valuable advice! ❤
Jesus healed people with epilepsy. He casted out their demons that were inside them.
Wow! Between the video and the comments I feel so validated. I’ve had some of these feelings not realizing they are an aura because I don’t usually have a seizure after them but I am Epileptic
Exactly dude I always thought my epilepsy was gone now, but everything in this video is still going on. I thought they were normal until I saw that the people in the comments were just like me
My auras are one of the most horrible feelings. I feel fear, hearing music or voices but can't repeat them, dizzyness and INSTANTLY I lose apetite! I would feel depressed the day after. They were diagnosed as depression and anxiety. Accidentally, I found out I have epilepsy auras showed on EEG, left temporal lobe.
Mine are like this, music, deja vu and intense fear. Cannot speak, few seconds later I have a grand Mal.
I had a few blackout suspected TCS. I take anti seizure meds for chronic migraine. Im now off road and on watch in case I pass out again. I have the same experience. I feel depressed after the migraine and have bad nausea. I'm 5 stone 9 because of it.
Same brother
After my 4th tonic clonic seizure my memory has been in shambles. Very old memories feel like they just happened, other things i forget within seconds/minutes, asking partner same question, telling the same story etc.
The auras you refer to, I feel like i have been having those multiple times a day since my last seizure.
My neurologist has upped the medications a week ago after they saw on EEG that I have every 20-30 seconds epileptic activity. I am guessing these are the auras i am also having frequently?
I have been feeling lost in the overload of information . Feel l dont know what to ask or share with the specialist to help me feel more safe and secure in the treatment. These videos have been helping tremendously though. This one in particular is at the best timing moment, gave me a sense of validation and probably more knowledge then my own neurologist gave me. Thank you Dr Danoun.
I have them lol it’s like auditory hallucinations or something.pretty scary yet helpful for me because i can tell people around me that i’m about to have seizure and lay myself to the ground or go to a safer place all within 15/30 seconds.
Thank you for sharing your experience
Same bro
I ignored my warning aura. It kept getting stronger and I was afraid but still ignoring it. It took my first ever hallucination, Yoda, dressed in Ewok garb, really mad, telling me to take my med & get into bed, NOW!
I did but it cracks me up the lengths my subconscious went to in order to make me listen.
same here either I can tell them and get my self to the ground or yell
I will get a flash of heat and start profusely sweating. That’s when I need to find safety.
Thank you for sharing your experience
Get no aura for g-mal seizures just folcals & generalized
Same here I can sweat through layers of clothes in minutes it's crazy!
I have all sorts of auras, sometimes none at all. Actually, a car accident is what led to my diagnosis. Doctors were blaming it all on anxiety.
Sometimes I'll start sweating profusely and feel jittery, can't think or focus. This usually leads up to a metallic taste/lightheaded spell. Other times I can actually feel the electrical current move from that taste to smelling that taste, following by nausea. The current is not painful, but I can feel the abnormal bursts of current travel. All brief.
I had an unusual aura back in August 2022. I was walking down the stairs, about half way, and froze. I knew something was going to happen, and it's as if I was being instructed to make a decision. Do I want to try to run to the bottom and hope I make it or sit down? Neither was really safe. I was going to try running, but too many milliseconds had passed that I decided to sit down on the stairs. I can even remember sinking into the step.
Some sleep seizures will wake me up, have me stumbling through the hallway to the bathroom. I'll feel disoriented. I often go downstairs for a bit, and if it continues, my head will drop. Medication reduced those episodes.
My favorite ones are when it feels like the universe is honing in on me, almost hugging me. Everything looks crisp and warm. The greatest kind of aura. Only one of those.
@@sarahjames1806 Does that turn into a tonic clonic or is that your focal seizure ?
It seems alot of us have strange feelings and unexplainable things in between our seizures. Does this sound normal or am I going crazy😂
I get covered in gooseflesh. Especially my face when it's happening. That how my family knows it's coming... Goosebumps on my cheeks. It's so terrifying. Feels like deja vu and then I feel it in my stomach and goes up to my head and it's like being injected with terror... It's scary.
Sometimes it can be hard to explain having auras to others who may not know much about epilpesy and auras themselves. These videos you are doing can teach those who may want to learn about it or if they have partners who have epilpesy themselves can teach them too know what he or she should do. To my own family at times it hard to explain the feeling they do see changes when I've had grand mal ( Tonic clonic ) fits/seizures to this day my family hate seeing me have seizures because they can't do anything while in one other than make sure nothing in your way by your mouth other things too. I first started to have epilepsy at six years old at first they didn't know what was going on with me after a number of tests I was diagnosed with were pulled out of mainstream school to go to a school who could deal with everything. One or two of the worst experiences I've had fighting for my own life my own fits nearly killed me.
I have auras regularly , each month with my cycle . Since starting ketogenic diet my auras have been much less intense and I feel much better mentally and physically . I have gone from a size 20 to a now size 14 and my mental clarity is much better too.
I live in Arizona, driving laws here allow you to drive as long as you have auras of sufficient timing which means that if you have an aura, you still have enough time to pull over and stop your vehicle before the big one hits. It's amazing how every state differs on driving laws
It’s just another form of discrimination because people on cell phones do the most damage. And heart patients or type 1 diabetes can cause accidents.
I kinda get it. Arizona roads are 5 lanes with next to no pedestrians. NYC has pedestrians near you at all times
@@frankw3545 I live in a very small town in central AZ with just a 2 lane highway unless you drive atleast 1 hour north or south to get to a bigger city. Unfortunately in 2019 I was driving in wickenburg az and had a grand mal behind the wheel. Thank God my family wasn't in the car and no one else but a brick wall got hurt.
@@andypoppey5243I hope you’re doing well Frank.
You better be lucky you’re not in California. They’ll steal your license if you even pass out!! Arizona has good driving laws for people with epilepsy.
Thank you very much. Very enlightening.
Perfectly explained ❤
Thank you for your comprehensive explanations, Doc! We appreciate this a lot 😊❤! We look forward for your future videos 😊😊
I have auras where one side of my face gets cold and begins to go numb. It gives me just enough time to lie on the floor, couch, bed, etc. I always have a cushion closeby just in case to protect my head as I have tonic clonic seizures. Thank you so much for your enlightening videos and for bringing awareness. Blessings
I love your videos Dr Omar Danoun keep them coming xx
Best explanation I have ever heard in my life, thank you so so much! Thank you for covering the vast array of symptoms, I have experienced every single one and it’s hard to explain to people that the symptoms are not the same with each aura, yes there are the common ones for me but there are also uncommon ones I’ve only had a handful of times. Your description of stomach pain is especially helpful, I wish doctors knew more about how bad stomach problems can be with epilepsy. Also very impressed with the way you described what feels like a movie flashing in front of you, that one was the most difficult for me to describe. It was like déjà vu but like all I could see was a flash of a memory I didn’t remember, but like my view was covered completely all of a sudden by this “movie”. This is so helpful and I wish every teacher and employer would watch this 💜
Gonna be honest. Just ignore my other comment made on one of your other vids... you have actually given some of the most useful info ive gotten yet
يعطيك العافية دكتور
Thank you very much for talking about Epilepsy and explaining it so well. There are many doctors (including my own) who are not bothered about their patients. They just give you the diagnosis, some pills and send you home confused.
I had no idea that an Aura is in fact a focal aware seizure.
Your information is very good. Thank you for taking the time to educate online. It's good to validate some information I have.
Ive had epilepsy for 25 years and im amazed how much the symptoms can change, i used to have deja-vu but it changed to ones of strong fear and now I've also started over the last 3 months to smell unbelievably strong smoke!
Thanks for all the info you've provided its great to hear more details.
Give your life to Jesus and repent ✝️🙏
Read Mark 9 siezures are curable. Jesus Christ is the key. It starts by giving your life To Jesus Christ.
@apinhmi I can't believe we have people like you, and they're allowed to vote!
Tell Jesus to teach you how to spell seizure as he's not doing a very good job!
What meds do u take.. 25 years is a long time you would know alot about epilepsy by now
@@christianwatson2032I take 300mg of lamotrigine a day, 350mg of topiramate a day, 8mg of perampanel in the evening and I have an emergency medicine called buccolam
May Allah reward you my dear brother, jazakh Allah Khair for your efforts!
I used to have it before every epilepsy seizure, and I caught on and used it to warn my parents and it worked sometimes. I was cured 14 years ago by brain surgery, but I still have the feeling sometimes, I did just now. But that's all that happens. It only lasts a few seconds. I've also noticed that it only happens if my sleep schedule is altered, like having to stay up too late, or even sleeping too much. So I have it under control for the most part.
This is how I feel every time a seizure starts:
I first notice a small red dot up in right part of my eyes.
This red colour then spread all over, and I get a weird kinda good rush, but still a bit scary feeling.
The best way of describing this feeling is listening to the background sounds in The Beatles's song "Tomorrow never knows" with the volume turned up to 11.
This lasts about 30-40 sec, before "the real" seizures appears.
Can take hours before I'm back.
I'm from Indonesia, as long as I suffer from and was diagnosed with epilepsy, it turns out this is the answer I've been looking for, thank you, doctor

this video was very interesting i had a focal aware seizure around 6 months back and i was in bed trying to sleep i had a weird feeling in my head and fought it off twice but the third time i had that weird aura type feeling in my head i couldn’t fight it off and then i had the seizure with convulsions moaning and even had to use the restroom right after my seizure which i found out later was another symptom of a focal aware seizure and remember everything about it as i didn’t lose consciousness during it and even tried to resist it when i realized what was happening as thats probably most people’s first reaction is to resist and fight against it but it freaked me out a little afterwards as it’s my first time ever having a seizure but anyways nice video keep up the good work my friend
lol I have a neurologist, but they don’t describe things in detail like you do. Thank you so much! Happy New Year Doctor!
Thank you for this video, I haven’t had one in a long time, but in the shower last night I all of a sudden had intense Deja vu and started remembering an old dream from years ago (I don’t remember the dream itself now, just know that it was OLD). I remember hearing some repetitive song too and then when I stopped spacing out I was light headed and nauseous. This video helps me get a starting point when I speak to my doctor 😬
I don't know how to tell if I've had a full on seizure, but so many of peoples symptoms are so relatable. I'm working with specialists to figure out what is going on.
Thank you for awensering my question of why I have deja Vu during my focal seizures
Appreciative❤❤❤, very Informative Video Sir i have listen this video and cleared my complete confusion
Jazak Allah ❤
Glad to hear that.. Waiyakum
So glad I heard this
I have been having "episodes" like this since about a month ago after a bad flu and have gone to the ER all tests normal, when i came across focal seizures it is the closest thing that explains what i have been experiencing. I'm learning what seems to "trigger" it, usually after a long day or if i haven't eaten or drank enough.. I'm not sure what else it could be but what some of you have described is very similar to what I have felt..
The first time was really bad i felt this feeling inside my "center" abdomen getting bigger and bigger (when i couldnt find my words as it was happening i kept saying "it's going up"), my muscles went weak for a second like i got really heavy, covered in sandbags feeling, my throat went tight, the back of my neck went really tight (and does each time i feel it) strange sensation in my nose like it was full of smoke then i felt like an electrical storm in my head then it progressed to these strange sensations coarsing through one side of my body (then later as i had another it switched sides) i felt like liquid fire rush through all my nerves and like electricity flashing through my nerves after the head and i got really hot, shaky and clammy.. i got a rush of intense fear/anxiety go through my stomach like rush through me out of nowhere.. it faded away.. then later got another and the other side started up.. i had several of these over a few hours, i tried eating which seemed to help after a while, they eventually stopped... ever since then I'll be fine for a couple of days then start feeling this strange sensation in my stomach/throat before it would happen..
so since my sodium was low the first time and my sugar was low another time, i figured not having eaten as much and being tired after most of the day has been triggering this somehow.. i have an appt with a neurologist soon.. i don't know what or why this is happening but likeni said started after this bad flu, they had me on a couple meds while i was sick, a couple of them lower seizure threshold.. but interestingly enough one of my meds IS an anti-convulsant!
when i called for help the first time i knew it was coming from my brain i kept saying it's in my brain. was hard for me to find my words properly until it would pass.. I'm really worried, have looked up so much on what this could be or why but reading some of the experiences on here seems so familiar to this... sometimes before it happens I'll get tingling, too.. i can always tell just before it happens..
Incredibly understandable explanations of possible causes for symptoms. I wish I had seen a doctor with your knowledge. If you don’t mind me asking, how much would a medical diagnosis cost out of pocket?
Thank you so much for your videos, I really appreciate them. For me I have a feeling in my stomach
Thanks alot for this infto❤
My pleasure 😊
Oh my gosh whaaaaaat?!? How come other doctors don't know this?! Thanks for the info!
Not only doctors but 911 operators and Fire fighters. They treated me like I was crazy the other day!
@@lorifoster4166 oh no! I'm sorry to hear that.
My neurologist doesn’t believe me or act like seizure auras are even a real thing. It’s so frustrating because she just took me off my seizure meds and they’re terrible now
I want advice so badly but the docs here leave a lot to be desired. I wish i could go anywhere but here to get dealt with. Maddening tbh
Thank you for this information.
I am very interested in rapid relief medicine in nasal spray form. I assume this helps with onset of a focal seizure. The nasal spray I would think would take affect sooner.
Your input appreciated!
Yes. Explained them in details in the video on seizure first aid
I will remember some funny things from the past that I wouldn’t ordinarily think of. Also other things from my childhood. Light sensitivity is also a common thing for me.
Thanks!
Thank you!
Thank you, Dr. Danoun for your videos. I've recently started having issues, and am being treated currently. This is all new to me, and your videos have been a great resource for comfort and understanding. It has kept me from being overwhelmed with it, and has also helped communication between my doctor and I. Thank you!
Glad to hear that
I suspect having some type of seizures however, the doctor says otherwise, I just don't know if I actually believe it completely.
Back in October 2020 I suddenly started to get dizzy and pass out several times a day, I could feel in my chest my blood pressure drops and my pulse raise, then I would start to taste it in my mouth at the roof of the month and smell it right before passing out, however, I don't always fall out on the floor, idk how I managed to do that 😳(we may be able to fall asleep standing but we can't sleep standing, without some type of assistance that would keep you from falling down,) I do know that when I would wake(idk how long I was out)back up I found my arms and legs shaking trembling and I had muscle jerks and it takes a few seconds or so to finally wake up enough get to the point of being aware of my surroundings, which is a little weird, and when I get up it's as if my legs want to give out from under me, makes it a bit hard to answer the door when that happens. I also will suddenly just stop talking completely and as I've been told I just stare😳 and they can see when I (come back) by my eyes), I'll also have times where I can be watching TV and realized that I somehow missed a part of the show and yet remain seated, now that's a weird feeling 😹, this is separate from the passing out thing which I've been diagnosed with
orthostatic hypotension tacicardia syndrome where my blood pressure goes down to 76/51 and my pulse is usually at 120 at rest, however, I run low to begin with with an average BP between 90 to 100 as sistolic and 50 to 65 diastolic was once 49bpm🤷, I have to go into public if it were to happen in public, lucky for me and since I can feel them coming I just steaded myself and stood there until it passed holding on to the cart. Lol,
One day at Walmart I saw this lady with a toy poodle who was wearing a 2020 mask😷🙀 and I went to see her and she couldn't get to me fast enough, not knowing why I just stood there and she climbed out of the cart and up on my chest, as I explained what stresses I was going through when suddenly I felt this huge release of stress it felt like a release in my chest and I could actually breathe. She told me that her dog is her seizure dog
The whole thing kinda freaked me out some, I've NEVER felt anything like it before that or since, miss that😔.
Did have a neurologist do one of those test with the wires on your head, lol, I can't think of the name of it, lol, yes, I have big memory issues, he said that I had narcolepsy and hypersomnia before I sleep too much, came home from working like 5 hours and went home a took a 19 hour nap, didn't even get up to pee, eat, or feed my furbies(kitties) which I felt bad for but they understand, of course I also have depression and anxiety and PTSD and SI. I wonder with all of the major stress(lost my home to fire in 2018,
Lost the home I bought because the seller didn't pay the mortgage, and then I moved in this apartment building where the management harassed me constantly for things , and had actually bullied me into attempting suicide twice 3 weeks apart, and robbed me and I almost died, was intubated and on a ventilator and had liver failure both times, and they also stole like $15,000 worth of my belongings, including all of my toilet paper 💩 🧻 leaving me without any, and took my hygiene items out of my shower, it was a retaliatory eviction, they won because when I was to be in court on the 13th of January I had OD'd on pills for the 2nd time in 3 weeks, first time in December it was over 50 morphine 30mg tabs, narcan X's 2 with no response, and so since I was in ICU they decided to not tell the judge and I lost by default, should not be legal, just saying, took them 4 days to go through my stuff, they read everything they could including my dairy and poems that they never gave me back, then I stayed at my brother's house and that was a disaster because his wife Stole $500 from my debit card and then they decided since I pressed charges on her that they would just get rid of all of my all my belongings including my Ashley sleigh bed and now i have no bed just a mattress on the floor, 😳, Im 52 and have numerous medical issues that make it hard to get off of the floor, not as agile as I once was🤦, took so much of my life's items, he took about $75,000 of my items (5000 beanie babies, approx 20,000 sports cars, etc, too much to mention, and, I've not been able to get through what they have put me through, and they don't care either 🤷 so in that short of time and to make things even worse it's as if it's never going to end, or end well🤷, I now have grown to hate and not trust anyone from this experience 😮😮, I've never been this way or under this much stress, ever, my doctor and I are just waiting for me to have a heart attack or stroke from all of this stress that I've been going through for over this for almost 2 years now, could this also be an issue that can cause some type of seizures ?
Can excessive stress cause seizures?. And what about the passing out issue?
Thank you for your time and I do apologize for the long message, I tend to feel that I need to explain things more thoroughly to explain it so that I feel someone would get it, know what I mean?
You can actually email me with your thoughts if you care to, if not, again thank you for your time and have a great day, stay safe.
I get auras somewhat infrequently. Sometimes multiple times a week, other times once every few weeks or months. Usually deja vu, sometimes anxiety, sometimes it's a really really weird spacey feeling, and sometimes it's sudden stomach sickness that goes away after a few seconds, sometimes I'll be talking and stop and stare into space (this one more often with alcohol use) , if very excited I tend to stutter and its sometimes accompanied with repeated movement. I also will get sudden intense ringing in my ear that is not related to sitting up too quickly, I used to have that more when I was younger, especially when trying to sleep.
Interesting, no?
So beautiful information. Sir plz keep it up.
When I have an aura, it’s a warning that I’m about to have a fit seizure, it’s helpful in a way as I know I have around 5 minutes to get to a safe place, time it and put something soft under my head, let someone know it’s about to happen if they’re home and make sure there’s nothing around me that can hurt me. I’ve now got used to it and know for sure that I’ll bite through my tongue 🤦🏻♀️😭 my partner has got used to it too and thankfully he’s very supportive and makes sure I’m always safe 🥰
Ya so true,when I feel those aura I run take my médicaments and be in a safe place with my family not be alone.
my seizure aura is a crawly feeling that starts on the inside of my right hand. It is sometimes accompanied by an ache in the base of my head. This spreads to twitching of my right hand, then spasm of the hand, moving up my arm into my neck.
My migraine aura is left facial nerve pain, buzzing & pain in my left ear & pain sometimes yellow spots left eye. Occasionally I’ve had a strong metallic taste in my mouth.
My Aura’s are like dejavu. It’s like I am living outside my body and can tell what is going to happen next. It feels like my brain and body are not working together and my brain is like a second behind. Its so weird and so hard to explain to anyone.
Hey man, thanks for your videos I really appreciate the information you're giving out, I have started experiencing nocturnal seizures since November 2021 when I was 24 years old and I'm so happy to learn from your videos, what your saying about auras makes me curious - do you know if this de-ja-vu feeling can occur in dreams before a nocturnal seizure occurs? I often feel myself dreaming in a way only describable as how you've explained auras here!
My aura is an intensive feeling of fear- I am suddenly afraid 😱but I don’t know what I am afraid of. It’s also as though I am reliving these minutes from before. This sudden feeling of panic grabs without warning but after it’s over I can conclude I’ve had another “aura”😅 I wish they would stop but I have no control over them- the medicine does little to nothing.This started when I was 14-I am 70 now so go figure 🤷🏻♀️? This “feeling” starts in my stomach and progressively extends through my stomach until it reaches my entire system and this if frightening.
Sometimes I get a strange smell - burnt toast - no one else can smell it & then I'll feel 'odd' for a while, but no further seizure activity.
I hear a noise I can only explain as a ping pong ball bouncing around my brain and smell and pepper bunt toast smell I swear I thought I was going crazy
@@melodymegginson7772 I smell burnt toast....it's so horrid isn't it, bcs of the fear of the possibility that a seizure might be on the way 😥
I have heard that it’s not unusual to smell bananas prior to having a seizure.
Yes-exactly that 😥 Even if there actually is burnt toast, it reminds me of the pre seizure smell 😱
Sorry that you're also suffering 😥❤️🩹
@@melodymegginson7772 Awful. Do you ever get a jolt if there actually is burnt toast bcs it reminds you of the pre-seizure smell?
The day I had a seizure I had very little warning, I hadn’t had any seizures in 10 years (the last two had a squiggly line aura like a cartoon animation of static on TV screens in the left corner of my vision just before the tonic clonic) and then one morning I felt kind of half awake and took that as a normal morning feeling and then I went for a jog and my consciousness went for like a brief second whilst I was jogging and came back again and I thought it was just a bit of light headedness and then the next thing I know I woke up in a moving ambulance. I experienced a similar feeling going from a low carb diet I’ve been on since last year to a plant based high carb diet, it’s a very surreal and artificial dream like state, when it’s day time and you’re supposed to feel alert and focussed and that came with other sensations that I had with focal seizures last year so I said screw plant based and switched back to low carb.
Thank you for this! My aura's have been getting worse and happen when I wake up from sleeping, which is when my seizures would usually occur. It's nice to get a little clarity on the matter.
Could tachysensia be a kind of aura??
Thank you for the great video ❤️
And thought I was having focal seizures because my dad said it wasn’t an anxiety attack, but I remember the very FaceTime I had an episode was when I was standing in line in middle school to register for my classes. No, I have a brain disease I was born with, and I remember standing in the line and all of a sudden, my ride I couldn’t see clearly I couldn’t talk. I couldn’t hardly open my mouth. I started feeling like I wanted to gag. I kept smacking my lips because a lot of saliva started accumulating in my mouth and I wasn’t able to speak clearly and the right side of my body started to shake a lot, I remember one time I was at my grandmother house and I had just came in from playing outside with my cousins. I was totally fine and then this episode came on and it was pretty bad. I was trying to get to the fridge raider to see if I could get me something to drink to start what was going on, but I ended up hitting my head and I had a cut on my headfor a couple years then all of a sudden they start back up recently. I had four in one day.
My guy Dr. Omar: do a in-depth video on how to differentiate scintillating scotoma from benign etiologies such as spreading cortical depression vs from occipital epileptic etiologies such as seizure or lesions of the posterior brain that could lead to this experience (bright, rainbow, C shaped, flashing bilaterally).
I had this for the first time yesterday but no headache following, the visual symptoms matched migraine due to fortification effect and not circles or round spots that are more typical with aura due to epileptic source / a seizure so it’s kinda odd, considering asking doc for mri but I’m sure he gon say that’s overboard but i don’t care, imma have to throw him overboard if he don’t go overboarrd!
I get auras every month before my menstrual cycle starts or I might get it at end of my menstrual period, they vary in many ways , I feel a warmth feeling from the forehead to the back of the head, I get dry mouth, I get nausea, I feel a sensation usually down the side of the body, I might smell something that I’ve smelt before or I might see a scene. In front of me that I’ve experienced before . I get these every month like I mentioned, and when these happen, I usually sit down and let it do its thing, because they cannot be stopped . I don’t get these every month of the year , I think it is when the menstrual bleeding is very heavy or the oestrogen is very strong. I am almost in menopause and I’ve been doing ketogenic for one year. Since doing ketogenic the auras have been less intense and less active, I’ve only had one major seizure but I felt the seizure happen so slowly that I was in control of it , I took my frisium to stop it going further . My dog sat on my
Lap the whole time, my dog knows my epilepsy well and he sticks by me when these happen
Mine are also monthly or every other month or so, closely associated with my menstrual cycle. It’s weird though because I’ve had these since I was a child before I started menstruating (also, I am not pre-menopausal). It’s pretty predictable though timing wise at this point in my life.
@@Kedolmansame , i have scarring in my brain which could have been when I was dropped as a child and hit my head , I had these auras as a younger child before menstrual cycle, I didn’t know what was happening , i tried talking but nobody listened to me, I was scared etc and I tried to commit suicide which left me with short term memory loss and then the auras disappeared maybe because I forgot them but they returned around when I was 27 when I lost my father and brother and a lot of trauma happen to bring on the stress . So I’m told it’s either from scarring that could have happened either from being dropped or overdose . But they would have seen this scarring when I did overdose and they would have been more attentive ?
@@kyliejacobs6817 WOW. What you’re saying is SO SIMILAR to my story. I was pushed off of a very tall slide when I was 3 years old- I broke my arm and was knocked unconscious. My auras started as a young child, and they seemed to stop during my teenage years. They started again in my early twenties and have been regularly happening around my cycle ever since. Maybe scarring has something to do with it.
@@Kedolman correction, the overdose did not play a part in my diagnosis because all doctors said I would have had seizures very soon after . I didn’t start having seizures again until 3-4 yrs later
When seizure was about to happen my body shivers like uncontrollable shivers then I used to tell my parents that something is about to happen. And I ended up blackout. 1st time I blackout for 3 to 4 hours and 2nd time about 1 to 2hrs and 3rd time I just get that I was about to have seizure so I took rapid relief medication it was a nostril pump.
I get a sound of what might be called "ear fluttering " which is like the sound and feeling when you are yawning, only I'm not yawning. It happens slowly at first then escalates. I also get a weird feeling, like an amorphous blob that sits just behind my eyes and nose, and it's like brainfog to the max. It makes me feel I need to lay down and soon I've passed out.
I'm aware the entire time and a sign is my left arm twitching & now I have really bad anxiety which I'm on now. I have sickle cell disease and moyamoya.
I had my first seizure as a result of being prescribed Ludiomil. I injured my back in 1986 and before surgery was sugested, I did all the other noninvasive treatments. Along with pain meds I was given Prozac, then I think 3 or 4 others because I kept developing adverse reactions. Looking back with my now "retired nurse" knowledge, all the problems were all CNS involved, shaking, jerking, sudden inability to swallow or speak until I coughed and that relieved it. 4 weeks after Lower Lumbar Laminectomy I was allowed to go Christmas shopping for my small kids. My mother took me. I woke up in the hospital, three years of memory gone, my tongue chewed to hamburger meat. I'd had several prolonged grand mal seizures. I was told that I would now probably have seizures for life. I took several different meds but again, the same problems, which makes no sense but I was given phenobarb and then weaned off. For the next twenty years I had a seizure about every 6 to 8 years. Then I had three in a row. After the hospital, I was given a new med and after three months my WBC dropped to 3,000. Med change, continued to drop. At 1500 I stopped the meds.
How r u now
@@rn5992 You may be sorry you asked. I took nothing and continued my 6-8 year cycle until 2015 when I was very near status. I have vague bits of memory. In the EMS, twice during my ten minute ride, I heard a woman (assuming EMT) say 1st time "She's seizing again" 2nd "Oh, oh, here we go again". My husband told me later that the seizures were different. I had never before had a seizure with both tonic and clonic movements. I don't remember much until I got home. Dr said they were involving more of my brain. I get frustrated because it left me with a mild aphasia & I'm a talker! Gave me gabba but nope, not taking. My gp gave me alprazolam, valium makes me weep uncontrollably, I take 1mg at bedtime. Not going to jinx myself by saying more than doing well. Although I seem to have a different kind of seizure now. I never had an aura before. I live on a ranch in Texas. I was out one morning and had deja vu. No biggie, always had this. Ignored it. Over the next 30 min it kept getting stronger. When it was so strong I felt dizzy, I headed to the house. My husband was on the porch and as I got close to him, as real as he was, to my left was Yoda, wearing those Ewok fur clothes. I knew he wasn't real despite looking like I could touch him. He was angry/worried looking. He said "Go lay down, your going to have a seizure. I've been trying to tell you. Hurry" That has NEVER happened. I went in, took a whole alprazolam. Was fine. In 2021 during the storm that killed our power for a month, we bugged out after a week of 3° temp, no running water & only a fireplace. The next morning at the hotel, we were holding our breakfast from the buffet and I had deja vu, few minutes later I told my husband the Swiss Miss (from hot chocolate ad) was coming. She needed to tell me a seizure was coming. I didn't see her, I felt her coming. Sounds nuts I know. We left, went to room and I took med & went to sleep. It's happened twice since but I know now regular deja vu doesn't have sudden, intense anxiety with it. I take my med & sleep. I think my "visitors" were probably my subconscious telling me something's wrong. They aren't panic attacks because everytime they've happened I've been relaxed, not worried about anything.
I'm not complaining. I'll take this type of seizure over the big ones where I chew my tongue into ground meat, any day and be grateful. I know this was more than you asked. The short version would've been I'm worse but better. More frequent but type, much better.
Thank you for asking, that was very sweet.
Aphasia, I once forgot the words to Mary had a little lamb. I knew them, felt them but couldn't sing them. Refused to google. Took 2 weeks to find them.
It is an unexplainable feeling, similar to deja vu but not really the same. And a few other things. I mostly get them on their own but very occasionally they turn into grand mals. I ask someone to get me a glass of cold water. And take small sips. It helps me stay calm while it’s happening.
I get this too. Deja vu on steroids. The Deja vu happens but then it’s like I’m having a vision or something. After that passes is when I get sweaty and flush and panicky. I’m now able to breathe slowly and control that panicky feeling. Takes a few minutes to get back to normal. Sometimes I’m tired for a couple hours after
I just had one 2 days ago. Very intense deja reve, followed by a hallucination of what felt like an old dream, that feeling of being in a dream lingered a long time, followed by complete confusion, blank pale face and a hard time speaking what I wanted to say. Spent 8 hours at the ER yesterday, all tests normal🤷♂️
Absolutely mr doctor i always have aure
Do you have a video about ictal headaches? I know you mentioned migraines but I'm curious the difference between migraines and ictals.
Have had them for many years an have experienced status epilipticus. Have you every had a patient born polydactyl with two left thumbs? Or any knowledge on the pp21 genome 🧬?
deja vu and burning smell. I had my first seizure frontal lobe this week. on meds.
I have auras, and not all are followed by convulsions. My auras cause the right-hand side of my body to tingle; everything from my foot to my tongue tingles. My stomach doesn't know what's going on, and it sometimes releases what it's holding. While I am feeling all of this, I hear voices talking about me, in third-person, discussing what might have triggered the seizures. I hear male and female voices.
People with auras before tonic-clonic seizures are definitely lucky. Mine come on instantly with no warning at all. I’ve fallen and dislocated my shoulder, chipped my teeth falling on my face (more than once), scraped my head on pavement, fallen off a bicycle, crashed a car, and many other injuries due to sudden loss of consciousness. I’ve several times been alone at home when they’ve happened with no one to help me. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken and cuts all over my lips. I wish so badly that I had some type of aura.
Has anyone else had an aura that causes their vision to get very bright and then very dark repeatedly?
I feel a sense of well being , like an angel, or "object" watching over me. It is very odd. What helps for me is to lie down and shut my eyes asap to stop more negative activity. When i used to attempt to fight it by keeping my eyes open, and pacing about like a headless chicken, the panic seemed to add fuel to the severity in my case.
My name is Grace Hustwick, I was in a really bad car accident in September 2020 a few days after I gave birth to twin girls. I had a seizure in the back of the ambulance on my way to the hospital, I had to have a blood transfusion as I was seriously injured, I broke my left ankle and it was cut open as I had my legs jammed underneath the dashboard, I also hit the windscreen and cut the middle of my forehead, I broke the last 4 vertabrae in my back (near the bottom of my back) (just above my tailbone), I also sustained a really bad concussion and whiplash. I required surgery as I had a really big bleed on my brain. I also required surgery to put a metal rod in my lower back (from where I broke my back down to my tailbone). I tried walking on crutches when I was allowed out of bed, unfortunately I face-planted so I ended up in a wheelchair for 2-3 months, I have had allot of seizures since I was diagnosed, I asked them to keep it out of my medical records, they agreed to keep it out of my medical records but because they agreed my doctor doesn't believe that I have epilepsy so he won't prescribe me any epilepsy medication to help with the epilepsy, I have been having allot of seizures over the past month. But I don't know if it's because of stress, high blood pressure or if it's because of how hot it has been
I've been getting auras since I was around 4 years old. We didn't know what they were as I used to call them "funny feelings and deja-vu" My Mum and all never really understood it because of the way I was describing it. I normally start off with a headache and then the same smells add to it and then very echoing voices which people raise their eyebrow at me when I say I can hear Donald Duck but that's not my fault, I'm only saying what happens and it's always the same. I have to go to the bathroom and I'll be sitting on the toilet rocking back and forward in frustration trying to make it stop. I also get the same smell each time an aura starts. It wasn't until I was 16 years old that I had my first fit, of which we know. I went to the bathroom and had the aura, got so bad that I passed out and fell to the floor, knocking myself out on the sink. My Mum came into the room after hearing a loud bang and there was me face down on the floor. I was diagnosed with epilepsy when I was 16 years old, I am now almost 36. I get auras during the day sometimes after I've watched certain films. I can't eat roast chicken crisps because that is a smell I get in my auras :( My favorite flavor as well! I don't normally have a seizure unless it's during the night but auras can happen at any time. P.S, I have had a seizure today. Was bloody awful!
To everyone here who also suffers from this horrible condition, stay safe and take care.
I am 41 and have been having grand Mal seizures since I was 12. I get auras and I get the seizures at bedtimes and now I get the partial seizures random times during the day. Not everyday but every month. I’ve had multiple brain surgeries and taken multiple different medications that have only made me get more seizures. No doctor has been able to help me. I have actually had less seizures now that I’m not on medication but still have them. I don’t drive or work. It’s not an easy life..
My cat has seizures, about 1 every 2 months and he can’t tell me how he feels but I know it’s not good because before the last seizure he started swearing and before other seizures he will suddenly run through the house at top speed I never understand why until I read the comments written by people who also suffer them thanks everyone that shared their experiences.
316 views less then 100 likes that’s the problem lack of awareness
I am on lamotrigine and I still get some aura, a feeling that I have done this before, a deja vu. Maybe I need to increase my dosage. I am at 150mg. I never had epilepsy until I turned 50 years old. I broke by spine in two vertebrae.
I've gotten auras for years and it feels like a huge mix of a panic attack and Deja-vu, i feel like i'm watching a scene I've already seen before, and a feeling that there are other spirts and people surrounding me that are from a different universe, and they trying to show me that God is real....
I´ve tried to understand the deja-vu like experiences I get in periods of high stress. Ive fainted, thrown up and always get memory loss after having these two minute episodes. No doctor has been able to find an actual cause for these experiences, even though I sometimes have them multiple times a week. They found one epileptic signal during an EEG, but they couldn't find a way to continue. So, I now live with this as a part of my life, not knowing if it could be treated or avoided. it sucks :(
I've experienced most of these seizure symptoms in the last 7 years since they first started I be having da weirdest feelings I can't even explain
I used to have Deja vu before my episode now I don’t but I can’t tell I’m about to have one
After being seizure free, on no meds, for 8 years, I started seizing. Very short intervals between. My husband said these were different because I was having both tonic and clonic movement's. I vaguely remember in the ambulance hearing "she's seizing again" and later "we're pulling up to the hospital, your going to. She's starting another" This is where my aura story starts. Before, nothing. Then over a 2 year span the following; A horrible smell, 3 different times. Then one day I was working away from the house, on our ranch, and I had deja vu. Then as time passed it kept getting stronger. Every 5 to 15 minutes it would wash over me, getting more intense. I had the butterfly sensation and deja vu only now it was something bad coming. I started walking home ASAP. About the time I was near my porch, again only when I looked up, there was Yoda wearing Ewok clothes. I've never hallucinated before, I knew it wasn't real but it seemed as real as anything else! He told me I was having a seizure and it was going to get worse, I was to go take my valium, which I HATE, and go to sleep. I did it immediately. In 2020, we had no power due to winter storm, after day 7, went to hotel. The next morning, in line for breakfast, deja vu once and I just knew that the next time the "Swiss Miss", an ad character, would be there because she was coming. I went to my room, took my heard. Now I know the difference between deja vu and deja ohshit I'm going to have a siezure. I don't understand, and apparently neither do any of the docs I've seen, understand the changes. No head injury, negative scans etc. Why and how does this happen?
You sound almost identical to me! This past summer at 33 years old, for the first time ever in my life with no injuries, etc, randomly started having these exact seizures a few times a month but mainly when I’m coming off my cycle so I’m wondering if I even may have catamenial epilepsy but there has been couple times it was during other random days of my cycle. A couple months ago, I had my first ever tonic clonic seizure in my sleep which my 8 year old luckily felt since she was laying with me that night by the grace of God… even a few hours later right after getting home from hospital, it happened again. I have a video of my second one on my Tik Tok to spread more awareness on these things. I have appointment with neurology soon too. I was negative for Lupus and Addisons disease which I had possible symptoms of both. Glad I don’t have those! Guess we will see what happens. They offered to start my on seizure meds but I said no, not unless I continue having tonic clonic seizures or even too many of the partials! It’s miserable every time no matter what type it is! Just awful!!!! I’m so sorry to you and everyone else having to live this way not having solid answers can be so scary. Prayers! ❤
@@jessicahampton1991 Please be very careful. Read up on the side effects because side effects can cause additional problems. I hope you don't mind me asking but after your seizures do you feel a desperate need to sleep? The period after the seizure is called the post ictal state. Most people just fall into a deep sleep. However, there's a small percentage of people who wander around. Before we knew about this possibility, my husband would put me to bed. Next thing I'm wandering around the house the yard. He thought I was just being contrary. I tried to explain that I just felt compelled to walk. Now he gets it. The only thing that terrifies me is when it happens, if I'm alone. Only because for about 15 minutes I don't know "when I am" I know my kids are grown and I have grandkids but my brains ability to understand time is caput. I jcan look at a calendar, my phone but it means nothing until I hear someone tell me the day, date and time. Something about hearing it and my time "feature" pops on. Before I'm just lost in time.
The neurologist, write down every med you take even occasionally or supplements because the interaction can be bizarre. I hope everything works out for you. If you can, let me know by adding another comment here. Good luck.
You must live in Texas! Lol! My 22 year old son has strong auras with pre seizure migraines, metallic taste, impending doom, and random electric shock sensations several minutes prior to full blown status epilepticus episodes that a total of 3 have ended up with him being sedated and intubated in the neuro ICU and the EEG and all other tests were inconclusive for true epilepsy diagnosis. Next time we hope to get admission to a neuro research center like UT Southwestern Dallas tx.
The part that I hate isn't that I chew my tongue to bloody mush, it the feeling immediately after. I don't know WHEN I am. My husband knows to come if I call him and ask him "When am I ?" I can stare at a calendar til I'm blue in the face, it means nothing. I know I have kids, grandkids, I know how old they are but I don't know where in their life I am. I know that makes no sense, seeing real live, Yoda, I knew it wasn't real, maybe my subconscious just got tired of being ignored! The other thing is I'm not afraid of much, roaches make me embarrass myself, but that's about all. Before a seizure, I am filled with this sudden terror. It makes no sense because seizures don't frighten me but I guess it's part of the seizure.
When I was 27, I injured my back. We were buildig a house. My husband would lay out the rebar, stell reinforcement and on my day off of 12 hr shifts in the OR, I would tie the steel and fill feed bags 2/3 full and use our backhoe to move the where he told me to put them. I was 2nd scrub on a TVH, total vaginal hysterctomy assisting Dr Methusela and his older brother. So there were 3 of us between this woman's legs. They were soooo slow. Over an hour without a break, holding two retractors, 1 up, 1 down and bent at my waist and hip to one side, a vessel started bleeding, the dr said "STITCH!" and when I straightened up there was a weird snapping so loud every one heard it and my uuugh. I powered on til the end when they helped me to the ER. This began my hell trip. Prozac had just come out and after all the seminars and pharma bullshit, aplan for back pain was begun. All pts had to go to a psychiatrist because other ydrs didn't prescribe antidepressants. And you HAD to take them. Prozac made me shake, they changed it over and over until I got one that would paralyze my throat then I had to cough to break it. They wouldn't stop. I shook so badly from amitriptyline I couldn't feed myself. Then came Ludiomil. After that things were better. I had surgery that was great. After 4 weeks it was Christmas and I hadn't shopped. The doc said I could go if I didn't drive. So my mother and I are at the mall. My mom sits to people watch while I went to return tennis shoes for my dad. Mama said it was taking a while but she was watching the EMS come into the mall. Then they got off the elevator, looking sise to side she saw nothing. It wasn't until they went right behind her that she turned and saw me on the floor. This seizure was over 15 minutes. Never had one before. A couple months later it was reved from other countries for this reason. They knew but gave it to me even though my brain didn't like them. Years later I had my 6-8 year seizure. Long story short, my white cell count dropped so klow they tested me for HIV. It was the black box warning. After it got lower with each med they tried, I refused. They did this to me because of big pharmas rule. I'm 64 now, my mega seizure was in 13. I was fine til 180ish when I bought 2 horses for my grandkids to ride, i always rode the fresh off them to be sure all was well. This horse wouldn't lope, would not and when I gave him a good kick, he went full on rodeo. Ive come off since childhood in every imaginal way but this. My grandkids said " Granny yoy flew up so high and then landed on your head. You then had a seizure. I refused hospital because they were gonna say what I already knew. I had a concussion, at least 2 broken, but not h displaced ribs, later confirmed at regular GP appointment. The story goes on but I won't waste time. Do your investigating about meds not on google and check other countries.
I have absent generalized seizures. My aura is when I feel like I'm looking at myself outside of my body. My heart will start beating fast. My legs will start jumping. My hands will shake. When I have a aura I go lay down and plug my ears and make sure it's dark in my room. I will go to sleep or lay there and few minutes. Then I feel fine I'll go about my business like I haven't even felt like I was going to have a seizure.
I used to have 3 of those sensations all at once. Intense fear, sensation rising up from the stomach, and hearing a woman’s voice talking about my death in the past tense. Utterly horrid.
I get a unique smell I can’t describe. Hot. Drenched with sweat. Deja vu, and viewing myself from outside, with shifting in balance and perception. And reoccurring memories.
Sometimes I have to go on my hands and knees.
It’s all over in about 2 minutes.
It’s worse if I’m sleep deprived.
I've had two auras the last couple of years before grand mal seizures.
1. I woke up with the worst headache of my life. I decided to get coffee, and to stop by the bank drive-thru ATM.