Living with COPD
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- čas přidán 23. 09. 2021
- John Black talks about living with COPD and the effects on both his physical and mental health. His wife Viv describes what it's like helping to care for John. Both John and Viv would like a better standard of discharge information after stays in hospital - which is the subject of a programme of work led by the Innovation Agency, developing a discharge care bundle to improve the care of patients with COPD.
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I am now at Stage 4 COPD. I completely understand what John is saying about fear...however, GOD tells us not to live with the Spirit of fear, fear is from Satan! If you are a believer, as I am, I hope all that get this disabling disease turn to God and don't give in! Keep a positive attitude. That's what makes it all okay. When I was first diagnosed I did my will and paid for my burial. I also spend a good bit of time doing research. We all have choices...Ask God to help you make good ones. Blessings and peace to all listening to John.
Guess I'm lucky. I'm 83 and have copd for 15 years. Quit smoking 15 years ago. That helped a lot.
I'm in my 22 this year and I'm smoke free from three months, seeing this i wish these people recover and i hope these videos get out there and people realise how harmful smoking is, i wish you all the best John i hope and pray for your well being!
you can pray to all the real and imaginary gods that only the yellow earth 2 m below the ground heals you
Prayers for you. 🌹🌹🌹
There is no cure for this disease only medications to try and help relieve the symptoms and sone can have oxygen but not all
I’m 63 smoked for 50 yrs and had respiratory failure pneumonia and civid just as I was leaving the hospital
I now sit breathless without moving sometimes and when u can walk it’s just a few steps
This certainly is a very frightening disease and I like ke this gentleman live in fear and we struggle to breath
Give up those cig anyone that is readying this before it’s to late because once it gets you it’s gets you
I stopped smoking 8 months it should have been yrs ago but all Iv done maybe slowed it down ? Will u reach retirement? Who knows
Be warned everyone we all say oh it won’t happen to me I was one of them and now I can’t go anywhere
Humidity has a massive impact on me to so even a drive in the car is impossible because he humidity has to be perfect for me which I haven’t quite worked out yet
Summer the pollen gets me do last yrs I was sat like a prisoner in my own lounger with fans going and an air purifier
It’s hell believe me
Update I'm gonna be 24 this year and so far I'm smoke free for more than 1 year 6 months and it feels awesome the quality of life and the speed of recovery if i fall sick and the most underrated factor is smell, it's magnified i can tell if someone had an orange long after they've had it, my life feels pure and i feel in sync with my biology without an addiction controlling my behaviour. Those who are trying to quit please do it ASAP the benefits of not smoking are beyond worth it.
@@sniperboy380 I’m so very pleased you’ve quit smoking and remain free always. If any would be quitters were to go back to it, I promise you, you’ll truly hate yourself for being so weak. Go on out for a walk, sip water frequently. Chop fruit and have in a dish in the fridge to nibble on, also change your daily habits, you’ll find things like that will help you through, and…they’ll be oh so worth it.
Bless you for encouraging others, they’ll be grateful to you. 🌹
My biggest fear having severe COPD is not of dying but, from suffering. Air hunger is so painful. My Pulmonary Dr. Is very informative. He assured me that I wouldn't suffer. Has a DNR in my chart. I have a living will stating my wishes. My daughter is my health care advocate. Now back to your situation knowledge is power. Get pushy if you must to get the information you want. It's important to you and for your wife to get information. Talk to your Dr. about any and all questions you have. Let your Dr. know about your end of life care and wishes. Communication is so important. Here in the USA we get what's called an after visit summary from the Dr. and the hospital. It lets me know about the visit. Basically like you get. Then it gets updated. I go to my chart online and read it. But, please you aren't being pushy when you want information about everything. For your sake and your wife it's important to know why they did something or changed something. I am glad to hear you are getting home care. I am glad I watched your video. Linda from the USA 🇺🇸
This man is right it's very scary
Very nice video and helpful knowing not alone!
In Belgium you get a small oxygenconcentrator, so you can go for a walk outside.
I've got copd which was picked about 6 months ago I've had a lung capacity test done I'm one sprivia and ventolin 4 times a day. Yet to meet with respiratory specialists which could take up till a year so in the meantime I can't do anything
You can get a liquid oxygen tank for the garage and flasks to take with you when you go out.
You fill the flask up before you go out, I have three flasks I can fill up to take with me.
I take them to work and go home to fill them back up when the last one is nearly empty.
My wife has got COP D and at the moment she's got a flare up I just need some need to talk to right now I feel that I am on my own
I have just been diagnosed with COPD, I had COVID 9 months ago ever since then every 3 months I have been getting flare ups, doctor also gave me an asthma inhaler, steroids and antibiotics.
Hope you are finding ways to manage this illness. All the best ❤️
TO ALL THOSE OF YOU SUFFERING From COPD or EMPHYSEMA:
Do as much exercise as is possible for you. It might sound strange, but the more exercise you’re able to do, the better you’ll be.
Walking from one room to another as often as you’re able to will help your lungs to remain as healthy as possible!
Ask your Dr to refer you to Pulmonary Rehab classes, they really are amazing. YOUR EXERCISE CAN BE YOUR FRIEND, LET IT BE!! 😊
Lovely couple. I wish fear was not such a main part of their lives. In the states we have occupational therapist. They come into the home and access environmental challenges. A stair elevator seat device might alleviate 1 of his fears. Its heart breaking the love they have all these years. It is spent on fear. U.S. teaching hospitals have teams of Dr's do rounds. Visit patients daily. One can ask questions. Most NYC discharges are done after a patient care plan meeting. ( Dr., nurse. OT , PT social worker , family, etc).
Our private Dr. is allowed to see us in person or on telemed as long as they are affiliated with the hospital. Our private Dr's can request OT services throughout our health changes. If one has health insurance. Best wishes to both.
Is he on alpha-1 augmentation therapy?
Nothings changed as a COPD patient I can confirm the care in hospital is superb - the after care and information is pretty much non existent I was diagnosed with emphysema in 2009 after some tests for of all things bad heart burn although it was listed in my medical records I wasn`t informed of the diagnosis until 2021 !!!!! which was when I had a lung collapse today after 5 lung collapses and two major operations I am still fighting to get on a pulmonary rehab course its freaking ridiculous
How can you say the hospital care is superb!? He only said a few of the terrible things about hospital care in the US. Add to his constant problems with sleep (noise, being awakened for vitals), there is the constant glare of lights in the hall. How superb is the failure of the nursing staff to communicate? I once had a stroke due to surgical clumsiness in the placement of a stent and lay for 36 hours with no food or water. Aides brought water regularly, which stacked up on the bedside table. No nurse actually spoke with me in all those hours. And the food! You will go in with normal blood sugar, but you'll come out pre-diabetic--no protein, no fat, just sugar, sugar, sugar. No exercise, right when your cells need to repair themselves the most (exercise if vital to healing). Oh, they might walk you around the corridor in slippers and your backside hanging out of the gown, but no real, systematic exercise of your whole body, and this is also true of nursing homes, along with the (cheap food) sugar. Our government has chosen to ignore the science on COPD and heart disease and on diet and exercise as it relates to all illness. We insure profits to the giant food suppliers who happen to be sugar pushers, not protein providers. Sugar is cheap, protein is dear. Our hospitals absolutely suck.
There is a severe shortage of care for people with COPD in the UK. I've had several personal training clients in London with COPD over the years, and they all complain about the long waiting lists for pulmonary rehab.
Research found out they’re low on zinc tablets. I think you can’t go over 40 mg.
Is there any solution for COPD . The medical science is getting advance day by day why there won't be any cure
There working on it
you work at the ordinary mat you are
@@dc.pentrumesteri4893 didn't get !
bana, please tell me if you know how much these valves would cost, a high price a year I'm from Romania, my doctors haven't heard of such a thing and what hospital can they go to? I'm with bpoc emf
@@dc.pentrumesteri4893 I am also looking for this thing for my father . The video publisher should respond on this. @innovation agency
Is he a candidate for the Zephyr Valve?
What price would that zepfiri valve have and at what spokes can it be mounted
@@dc.pentrumesteri4893 no cost on the nhs
Please tell me what it is, because I don't understand the term? In Romania, we are dying for days because they have not heard of such a thing and I am terribly sick with mixed COPD, pulmonary emphysema and pleural fibrosis plus spondylosis
Why not try serrepeptase or Mac, mullein and fruits and vegetables just to test
Nac
Anybody listen to this let me tell you do not smoke give it up now Chuck it away Do you wanna come to my address I will give it to you do you wanna see my wife our lungs has filled up it's not Lucas She cannot hardly breathe It's like my Ann put over your mouth So go on smoke if you want but you may pay for it Love from Steve
Wishing you and your wife well. It's truly terrifying that there are still 6.4 million smokers in the UK. No wonder the NHS is in crisis, combined with the chronic underfunding by successive Tory governments since 2010. What the NHS lacks is a comprehensive and nationwide health-promotion system, actively helping people quit smoking, rehab from alcoholism and drug addiction, lifestyle changes to a healthier diet.
Hint, natural healing is superior, use your lungs!