Positive for Huntington's Disease
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- čas přidán 23. 05. 2021
- During #HuntingtonsDisease Awareness Month, Yousef Gamal El-Din speaks about the devastating illness in detail for the first time. It’s the untold story of the pain, the struggle and the green shoots of hope.
Yousef’s mother was diagnosed with the disease in 2007. Over the years, HD took its toll on the entire family. And now Yousef is at a 50% risk of inheriting Huntington’s disease and seeing the same fate as his mother.
Help give thousands of families around the world a brighter future by sharing this video!
For more info about Huntington's disease & the #HDSAFamily please visit hdsa.org/ & #LetsTalkAboutHD
Produced by www.hekayaproductions.com
Follow Yousef’s Journey
Instagram: / youseftv
www.yousefgamaleldin.com
I promise you this - I will press on for prioritized consideration that leads to a Huntingtons disease cure. This cure disease needs to be taken down. Thank you for sharing how beautiful and important your mother was. IN HER MEMORY AND HER SISTERS NAME TOO - we need to find a cure TODAY.
I'm 43 years old with HD CAG 43. My dad and his moms whole family has been lost to it. Thanks for sharing your story
@Peggy Phyna did it really work? Was your mom free from HD?
I’m sorry. I wish you well.
I'm sorry, Jamie. How are you doing?
I cared for a woman with Huntingtons for six years, she sadly passed yesterday but she was my blessing in life and my best friend.
I nursed an absolutely lovely lady who sadly passed away from Huntington's Chorea in1984.It's a horrendous disease and she left both her parents,her husband and her two children.
You are inspirational. Your mum raised a fine man. She must have been a wonderful person.
Thank you for being sympathetic to what us HD families are going through.
I will never forget the day I came across Dr igho channel on CZcams , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr Igho
I have it. Lost my mom to this shadow. It was crazy. I love my mom so much.
I'm sorry about your mother and you.
Your not alone.
Hang in there. We are a community, looking out for eachother. We are raising awareness and funds for research.
I will never forget the day I came across Dr igho channel on CZcams , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr Igho
Thank you for sharing
Your Mother was a beautiful Lady
May Her Soul Rest In Peace
My best friend Hannah just recently got diagnosed and she’s only 16, this disease is ruthless
Juvenile HD is so sad. I hope we’re close to a cure or phasing it out as we bring awareness to it in modern times
Oh my just sixteen. Jesus please send a cure.
W😂😮
How is your best friend? Does it progress faster when diagnosed younger?
@@Live-life-to-the-fullest she's still alive but shes not remembering very well
You sons and your dear father sacrificed for your mother. It is a bittersweet story yet, needs to be told. God bless you all.
We all need to tell our story, no one can see it from what we go through so we have to spread awareness
Thank you so much for your words and for your love.
I am from a family with huntingtons. I have researched everything I can find on it. After taking care of my brother I know that making a decision to end one life should be an option . This is one of the most cruel diseases that could ever happen to anyone. I'm 73 thankfully I'm ok so far but I still have that chance but I may be to old to recognize the sytoms
@Peggy Phyna youre a pos for writing a sob story and bringing hope to vulnerable people with your scammy ad.
Praying you are spared.
Brother May Allah the Almighty bless you with health and save us all from this disease.
You are extremely brave and gracious.as a nurse I have cared for patients with HD and I know what a treacherous disease it is .I pray that God will give your family the strength to deal with whatever difficulties you have to face.❤️
I know what you have gone through. Half on my mother’s siblings passed away from HD. We are from Venezuela where people say took origin when colonizers arrived to our shores.
You’re a wonderful son!
Via vaccines?
@@eifossnomis3176 nope
@@eifossnomis3176 Via Huntingtins gene mutation
I lost my grandpa my uncle and my mom has it and I do everything for her I put my life on hold for her and its sadding to know other family's go through this i have all the respect and love and best wishes for yall
My granny had this horrific disease. It eventually took her life. She was 62. My dad has it though he is not symptomatic yet, he just turned 54. It spared my aunt. I've known that myself and two siblings each have a 50% chance of inheriting this disease since I was 13 but it did not stop me from having children, in fact I became a young mom. My dad became a grampa. All I remember of my granny was the chorea and being uncomfortable around her. I have three young children and it is simply unfathomable to me to even consider what their risk is, though it is with me every moment of every day. This disease is ruthless. In an instant, everyone you love either had it, has it or might have it. I pray peace to everyone in the hd community that our time will come where there is a cure.
What a beautiful young man you are. Yes, let’s.
😓😓😓😓😓
Please God help all the people 🙏🏼🙏🏼🙏🏼
I have 5 family members with Huntingtons disease. It is devastating to see how it completely changes them mentally and physically. My Grandma is now in the final stages of Huntingtons. Her health has deteriorated so much. Thank you for this video.
Damn sorry for what you and she went through.
Your mother's story inspired me.
It is a truly awful disease.May God bless and help all those who suffer.🙏🙏
God bless them all.
Keep strong.....
Im of a HD Family and in risk too. Thank tou. Gracias. Your words healed me
Beautiful souls
Beautiful analysis and very well done. Thanks 🙏 good for awareness
My best friend has it she’s only 47 she’s now in an assisted living home. It breaks my heart she doesn’t deserve a life like this. I pray for a miracle.. I will be so lost without her. 😞
@kymberlyann589 I'm so sorry for your best friend and of course for you. How is she doing?
I’m adopted and found that my paternal grandfather had Huntington’s, his parents were from Switzerland. Two of my birth aunts had the gene, one has passed away from HD, one had developed symptoms such as chorea.
The nursing home is beautiful 👍
❤️❤️❤️🌹
I have it too I lost my dad
Has there been any treatments for this disease ?
I'm from uk. It is genetic in my mom's side of the family. If my government can give military aid worth billions of pounds to countries that couldn't or wouldn't do the same for us, they can provide some money to research in finding more effective ways of treating huntington's disease.
@andrewforrest Absolutely agree 100%
I am with you, my husband was diagnosed recently. My anger at my politicians is beyond measure. They also spend billions giving military aid to foreign countries while the people here in the USA are suffering. We need money for research & possibles cures or even help with Brian Deceases, food security, homelessness, and so much more. It's insane to me where they spend our tax dollars. God Bless you and your family ♥
@@bernster511 thanks for you reply. I am sorry to hear about your husbands diagnosis. I recently tested negative for it. I'm training to fight in a charity boxing match to raise money for the uk huntington's disease association
Did you make a test for yourself?
I am 33 am posetiv 😰
I found a treatment as I have a young man who I visit because he has been like a brother to my sons since his mother was diagnosed with HD 30 years ago and now he is quite bad himself and in care. The trouble is that although I got a copy of a mouse's brain free almost except one black spot of the tangles of protein, they have taken it off the net. Does anyone want to try cat's claw a rain forest bark as it seemed to help but they just suggested it might help with Alzheimer's and of course the drug companies want to make it into a drug to justify the high charges. God always provides a solution in the flowers of the field as it says in the bible. The patient has rejected it perhaps because his mind is already affected according to the medical people and I can't force him to try it.
I wonder if he did a genetic test?
I will never forget the day I came across Dr igho channel on CZcams , I will always keep it memorable, thank you doctor for helping me cure my Huntington's disease with your super herbs completely, and putting a smile on my face, you made me feel more alive like never before, Thank you Dr igho
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