“It’s not something we choose to do”: Sue Robins on family advocacy

Sue Robins is a health-communications professional, a patient-engagement consultant, a writer and a mother of three, the youngest of whom has Down’s syndrome. After summarizing the talk she delivered at KBHN’s 2023 annual conference about her experiences as a family advocate, she explains how much it matters to families that research gets translated into action.
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[@jerrysoucy2611]

"... advocacy involves a lot of conflict with people who work in the system, and that’s really the only way change is going to happen"
wow - thank you