Acute Myeloid Leukemia: Survivor Story | The Patient Story
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- čas přidán 23. 07. 2024
- Mary Clare, who survived a diagnosis and relapse of AML, shares her incredible story addressing every part of her experience: bone marrow biopsies, induction chemotherapy, consolidation chemotherapy, bone marrow/stem cell transplants, bone marrow donor matching, to side effects. On the personal side, she shares how she got through the mental, emotional, and sexual impacts of cancer on her and her family's lives.
FULL STORY HERE -- www.thepatientstory.com/cance...
Do you relate? Have other questions? Want to share your story? Leave us a message in the comments below 👇🏻.
(Topics by estimated time code below)
1. Symptoms and 1st Hospitalization (0:00)
2. Bone Marrow Biopsy & Diagnosis (11:30)
3. Induction Chemotherapy (20:00)
4. Bone Marrow Match & Transplant (39:50)
5. Transplant Recovery (55:00)
6. Clinical Trial (1:00:30)
7. Resuming Life (1:02:40)
8. Relapse (1:10:50)
9. 2nd Bone Marrow Transplant (1:17:00)
10. 2nd Recovery (1:24:30)
11. Mental, Emotional & Sexual Impacts of Cancer (31:30, 1:06:40, End of Video)
I'm soo grateful you were willing to share so much of your journey. I am newly diagnosed with an unfavorable type of AML. I hope I will find a transplant match.
So glad Mary Clare's story was so helpful. We are thinking of you.
R u ok
Tauhirah, How are you coping? Thinking of you. 🌼💐🙏💗
🙏🏻💗🦋
Thank you so much for sharing your story, Mary Clare!! How are you doing now?
My dad was diagnosed with this in 1994 and passed away in 1999 he was 64 years old. He lived well till his last 6 months. Only was given tablets, from the diagnosis as no other treatment was available for his age. It’s an awful disease.
Thank you for sharing your story and I’m glad you survived. My mom was diagnosed with AML during a routine blood check, she had a blood disorder. She was sent to the hospital that day, disease progressed rapidly, she was in ICU that night. She survived exactly 3 months and suffered the entire time. I wish they could have done more but that was not Gods plan for her. God Bless you always.
❤
Family is important. People don’t realize .
Literally everyone realizes that family is important
Thankyou for sharing, Mary. My friend has Multiple Myeloma. She's in remission.
What an amazingly strong lady.
Thank you Stephanie for bringing us all these stories. I wish you did updates to these folks. 3 yrs have passed I wonder how she is doing.
God bless ❤
You have been through so much. Thank you for sharing.
All these cancer patients discuss varying symptoms- and all could be attributed to other things- which is what makes cancer even more scary. You just don’t know until things come to a head and doctors are made to take notice.
I’m 62, and I feel like something isn’t right with me either but no one seems to know what is wrong with me. It all started in July with incapacitating itching on my lower legs and then sores morphed into open wounds that had bleeding under the skin, and then it happened to my right breast. Dermatology took a biopsy of my lower leg but it didn’t show anything, and the ER did a skin culture that showed I had STAPH AUREUS. Today is September 18, 2023, and I have (4) new open wounds that bleed so easily. I also have very dark purple spots on both lower legs that are not fading away. The ER doctors tell me not to worry that the dark purple spots will go away. My CBC was normal except for my GR% was high. I’ve asked repeatedly for a referral to hematology but instead I’m being sent to a wound specialist (mmm, no one has called me yet). My fatigue has me bed ridden. I’m too tired to eat.
Have you gotten any help yet? Please keep trying to get a doctor to help you. 🙏
Have them check your pancreas, itching can be a sign of pancreatic cancer
Have you tried to get a Doppler test done? The test is done on your legs to look for clotting,flow,
and valve function in those areas.Look into a vein center.
This also sounds vaguely like blood cell cancer symptoms.
Unexplained wounds and infections, the fatigue and GR test high. I don't mean to worry you, but it's just an idea. See a hematologist!!! Advocate for yourself fiercely!!!
I share several of your symptoms. I got diagnosed with Leukemia unfortunately.
@@mamad5686oncology recently took bloodwork and waiting on results, in the meantime my condition is worsening as I now have twice as many sores on my arms, legs and left hand and my fatigue is insane, and on June 12, 2024, a new symptom showed up and that is joint pain in my entire left leg. I’m so sorry for your diagnosis and you are in my prayers
Thanks for sharing your experience, very helpful and I’m praying for you!
Thank you for being so open and honest! All of it was so very helpful. ❤
Thank you Mary for sharing and encouraging many! All the best!
Fascinating. I love this!
My wife last year was diagnosed with leusemia, the same as hers. She was 10 weeks pregnant. They sent her to do prenatal tests and her white blood cells were 0.8 and her platelets were 66. They sent her to a hospital the same day they gave her the news on September 13, 2022, Duero 1 was admitted to the hospital and given chemotherapy at 10 weeks of gestation, it was devastating news.
I am sorry to hear that. Wishing your family well.
Good luck to you!
God bless this womem❤️❤️ just a strong ass women
Brave brave lady
I’m so try to hear about your diagnosis. Just to understand, I thought you said it spread to your Omentum, the apron like fatty tissue in our abdomen. But you have said “chemo to my Peritoneum “ you also said you had a port put in your abdomen. If you know where these part of the body are? You understand why I’ve got?????
AML…..since 2021……blood so thick it gave me a heart attack
Big boned alright!!!…..Got the bingo wings too!!! 😂
This poor love is also suffering from those awful ugly dark blue bruises around her arms, which has seemingly caused the start of that modern-day sandpaper voice syndrome. ❤
Can I ask why you don’t live near family . I find it disheartening that so many young people abandon there families for sex