Pros and Cons of Peritoneal Dialysis - My Experience
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- čas přidán 10. 12. 2018
- A viewer left a comment on one of my videos recently asking about the pros and cons of peritoneal dialysis.
I was on peritoneal dialysis for about a year and have some experience with what it's like to be on it and this video is MY take on my experience on peritoneal dialysis after having been on hemodialysis for a while.
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The amount of space needed to store the supplies is daunting. If you have a 1 room apt you are buried! Could you show how you deal with that?
Im about to start Peritoneal Dialysis next month. Thank you so much for the clear breakdown. Im still a lil nervous about this entire process but I am thankful for being able to still live a productive life with kidneys that really dislike me.
I have been on PD for about 9 months after 9 months on hemo. Much, much much prefer it. Days are my own and I no longer feel as if I have been run over by a truck.. Drain discomfort is equivalent to menstral cramps and temporary. Traveling is also possible and you either carry your own supplies or have them delivered to your destination. I feel as if I have been freed.
Diane, you can control the drain pain if you are on manual. Just clamp the drain tube to restrict the flow and elevate the drain bag to reduce the pressure. I was on manual PD for over four years before I received my transplant. The pain can be eliminated.
I like this comment more than the video lol!
Thanks for your reply! I start in a month and am so scared!!! You made me feel a bit more relaxed!!
Wow sounds great
My father uses a Liberty machine. The first night, first drain we had the alarms go off. Under "my settings" -> "options", Liberty has "drain exit %" the default is 70%, but our nurse had set it to 85% the only other choice. It is a safety measure to ensure that there is room for the next fill. The nurse didn't want to drop it to 70%, so I suggested using 1800 ml fills instead of 2000 ml to increase the safety margin. With 1.5% glucose solution dad rarely gets alarms, but never with 2.5% solution which pulls in enough extra fluid so that the drain cycle easily reaches 70% of 1800 ml.
I'm a 62-year-old white male in NYC who's been on hemodialysis for 6 months. I didn't hear anything in your video that persuaded me to switch to peritoneal dialysis. The notion of committing 10 hours a night while I'm trying to sleep, which has always been problematic for me, rather than 4 hours every other day is a no-brainer. I have not yet experienced the highs and lows you speak of when describing HD -- perhaps that is in my future -- but I simply don't trust myself to be the kind of perfectionist necessary to make peritoneal dialysis work, keeping everything properly sterilized and knowing what to do when problems arise. At least at the kidney center, there are many nurses far more familiar with all dialysis-related issues, and I find that I rely on them and their expertise to keep me sane and safe. I applaud your ability to handle all these issues on your own, but I know myself well enough that it makes sense for me to leave the medical issues -- proper blood work, sterilization, etc. -- in the hands of professionals. Good luck, though. I did indeed enjoy your video.
Hi John! Thanks for your comment. I was fortunate to have the ability to try both and I'm glad I did. They both have their advantages and disadvantages, but I've found that PD definitely isn't for me. It's a lot of work and is more of a disruption to my life than hemo was. Thanks for watching and sharing your thoughts!
Sadly im 15 and im doing this, worst part is drain pain
Im sorry you have to go through this
I feel you kid
Hi
Thanks for your post.
I am on a 15 hour PD via a cycle but I’m not attached to the machine. I begin at 4 or 5 pm to run it until 7 am. When I fill my cavity I disconnect for 2 hour dwell time and go do my chores. I also take my dog for a walk; however, it’s not that comfortable to carry 2 liters of fluid for a slim person. I’m 45 and weighing 117 lbs. like you I have difficulty sleeping. Despite some cons of PD, I’m able to work a full time job as a Speech Pathologist. I’ve been on PD for 2 years waiting for a kidney. Having a HD I would not be able to work a full time job and maintain myself. Thx
I need to get on Dialysis and hoping for PD, I am a social worker and need my job. Ty for your post.
Irina, You should start your own channel. There aren't that many testimonials out there, and it would help a lot of other people lose the fear. My sister finally got her life back and is working part-time. I was afraid the clinic HD would eventually kill her because of her extreme depression about being too exhausted to live.
Just an additional info to my previous comment. Besides being able to work a full-time job, a PD, I’ve been doing a CAPD for 14-15 hours, allows me freedom as well. When the cycle stops filling and begins dwelling, I disconnect and do what I have to do for 2.5 hours. During cold seasons a jacket, coat, or sweater cover my sticking out belly whether I go out shopping, dog walking, gardening, sitting in a sauna (home infrared sauna), cleaning, etc. you don’t have to be attached to the device all the time. That’s why PD is the best for those who work and generally want more freedom. God bless everyone!
I did manual fills for a while as my body adjusted to the idea of PD. Then I was on a machine that I had to hook up to for 10 hours per night and I wasn't able to disconnect from that machine. I know that manual fills and drains are an option, but it wasn't a good fit for my lifestyle. That's why I went on the machine.
I was on PD for 9 months. I hated it. Setting up, tearing down. Couldn't sleep at night, and it gave me horrible gastrointestinal problems. Im on hemodialysis now and much prefer it.
Agreed! PD was a nightmare for me!
Just wanted to say you are so well spoken and easy to understand. Thanks for the video!
Thank you for saying so!! A lot of times I get to talking too fast and people complain about that. Definitely something I've been working on :)
Courtney D yes I agree with her! Great video Btw😊 God bless !
Thank you!! 🙂
Agree Courtney .. Was on PD myself
Thanks for the information and your time
Thanks for watching :)
Thank you so much for posting the video. It is very informative.
Thank you for saying so! :)
Thank You so much My Friend! Im starting this soon! I had the surgery , and have to get trained now. Your Info was Great!! Thank you so much for sharing this. God Bless You, and,I wish you The Best, My Friend! 🙏
Thanks for watching! I hope the video was informative! Good luck on PD :)
I hope everything goes well. Blessings
Thank you for sharing. Trying to decide what it's best for me is not easy. This helps a lot.
I hope the video shed some light on any questions you might have about HD vs PD. Please let me know if you have any other questions I might be able to answer.
@@DBMedStuff Thank you
Thank you for sharing your wonderful explain Thake care !😇🥰😊🤗❤️❤️👍👍
Thanks for watching!
I’m 36 I’m
Going to have to do it soon
Update for me I was one of the person the every time it came to the drain it suck up my organs it was so painful I had to stop the machine I end up switching to hemodialysis
Thank you for your explaining.
I hope it was helpful :)
Thank you for sharing ‘twas a very informative view presented well
Thank you for saying so! :)
thank you!
Thank you for sharing
Thanks for your clarrifecation abaut pd cause next month i choose to do this
Thanks for watching!
Getting ready to start, can you drink during procrss, thanks
Did you get a transplant? How’s it going? My husband is on PD. It’s been about 9 months. No issues until recent. He’s having an issue with swelling which is causing his bp to go up. Never had that issue until recent. Any suggestions. They’ve increased him from yellow bags to green.
My dad might need this in a bit. I’m so scared for him and for our family to be honest. I’m trying to learn as much as possible.
I hope he does well! Thanks for watching :)
I'm doing hemo right now, but i was wanting to switch to PD but i may stay with hemo considering what you just said about PD, but i want to know how often to u feel the drain or does it that feeling ever go away ?
Everyone is a little different with the drain. Sometimes I was fine. Sometimes I didn't get to sleep that night because the drain pain was so bad. Several people have commented on here that they didn't have the same issues. It's really just a toss of the dice whether you'll have issues with it or not. Definitely worth talking to your nephrologist about it to see if you're a good candidate, though :)
I have not started dialysis yet but I know it's just around the corner researching the different options very stressful.
Thanks for the video filled in some blanks for me
It's good that you've got the opportunity to do some research first. I honestly think that if someone had made this video before I went on PD, I might have stayed on hemodialysis.
@@DBMedStuff I have heard from several sources that you have to do PD as many as three to five times a day your video made me think you were doing it only once overnight.
Frankly I'm overwhelmed and worried nearly to death do I know it's coming my GFR is down to 17.
I'm so concerned with which way to go I was hoping to do a home dialysis but I don't think that option will work for me.
I started thinking of doing the Pee Dee the more Iris research that the more I thought it was way too complicated for me.
Did hemodialysis I've heard you do dialysis and the next day you recuperate that doesn't seem like much of a life maybe you could fill in some blanks for me there
So you should only have to do PD once per day, but you have to do it EVERY day. You'll have to go through a training class that will take a few hours over a few days. You have to make sure that you're very careful about keeping the area clean and sterile or you could end up with peritonitis and that is VERY bad. PD isn't complicated once you get in the routine, but it will keep you from being able to go swimming or hot tubbing or even taking a bath. The tube gets in the way even if you have it taped up. Like I mentioned in the video, it's hard to get a good night's sleep on PD for me. After doing hemodialysis and PD for a year each, I prefer taking a few hours per day every other day for hemodialysis, but that's just me.
@@DBMedStuff thank you much for your information I'm guessing you probably know what I'm going through who dialysis around the corner very frightening.
So much I don't know and and somewhat confused thanks again
Dialysis sucks. If you've got questions, please feel free to let me know and I'll answer any of them I can :)
What about having animals in the house, I was thinking about their hair?
That's a really good question. The docs insisted that I wasn't allowed to have cats in the room where I was doing my PD. That just wasn't going to happen for me as we have cats who run the house and I'm not going to keep them from being where they want to be (within reason) so I was very careful to make sure that they didn't get on me and that I didn't handle them while I was doing my hookups or disconnects. I was pretty fortunate to never get any kind of infection, so be careful if you do have pets in the house.
Thank you for your quick response. I have a bossy cat. She likes to tell me when to get up and when to go to bed.@@DBMedStuff
No animals in the area where you have your supplies needs to be super clean in that area
My poor sister had an idiot RN when she first started PD. He told her she couldn't keep her two pet dogs (her only companions after losing her husband) AND she couldn't use the AC at night because of the draft. After I complained, they gave her a RN with a brain, who said she had to banish the dogs from the bedroom during the hook-up, but they were otherwise welcome. She was allowed to use the AC, which is great because she lives in Arizona. Always ask lots of questions, and if someone sounds unreasonable (and full of BS), ask for someone else. There's no need in beloved pets being abandoned because of a moron.
What is better hd or capd?
I have a family member who is about to start pd. His catheter has healed & he'll be starting training next week.
I hope his experience was better than mine. Has he been fully informed about the pros and cons of PD?
@@DBMedStuff hi can you explain the pros and cons of PD?
Would "drain pain" ever go away? I've been on pd for 2 months now, it hurts at the end of draining... Thats how I know I'm done, when it hurts.
You might talk to your nephrologist about that. It could be a matter of poor placement of the device. OR, and you're going to *love* this: you might be constipated and not even know it. Again, talk to your nephrologist, but he/she might suggest either suppositories or laxatives. Often times, they will get some imaging of your stomach area to determine if there is something weird going on. That's what they did for me and then they told me to use laxatives and the like to help. It helped me, but that might not be the case in your situation. While that is my best guess, you should definitely talk to your doctor about it.
@@DBMedStuff , Thank you so much for taking time to reply. I sure will talk to my doc.
I hear the pros and cons of dialysis and kidney transplant. There are many with both. Is the kidney transplant despite the cons of anti rejection meds still better than having dialysis?
I think the kidney replacement anti-rejection meds are the way to go if that's what has to be done. Being on hemodialysis, where you go into a clinic 3 or more days per week and they hook you up to a machine is exhausting for a lot of people. I often wasn't able to drive home after a treatment and would be sick from the treatments (like actually vomiting). Peritoneal dialysis is better in the sense that it happens every day instead of every other day, so I didn't feel as drained from that, but I didn't sleep well for the entire time I was on PD. Some people eventually die even while on dialysis and not getting a transplant.
Hi.we live in nz and in one to two weeks my 14 year old son starts his pd.. we are hoping for a good positive start to it all because nothing seems to.have gone hos way in.the last 2 years. Its been rough for him. He loves mountain biking and would love to keep doing that..Do have any advise for us going into this whole thing with positive outlook please. Cheers Kelly
Keeping a positive attitude will be a huge help. I had issues with my catheter placement and I rarely got a full night of sleep because the machine had a hard time draining as much as it wanted. I had to change how I slept in order to be in the right position to make the machine happy. It got better but it still wasn't ideal for me.
My grandpa is about to go thru this and heat worried and so am I.do you ever have to replace the tube that’s inside you?and we have dogs and cats so I’m a bit worried about keeping things sanitary.none of them are allowed in my room but once I move out of there for my grandpa I’ll probably clean every day.l for him.im just not sure how fired I would have to clean
The tube rarely ever gets replaced. Basically it only gets replaced if there is a medical need to replace it. You want to be careful if you have pets as they may cause infection if they are in the area when hooking up and disconnecting from the dialysis machine. Also, I have cats and one of them once tried to chew on the tube that was sticking out of my stomach, so that's something to be aware of as well. Keeping the area where dialysis will be performed clean is VERY important. Also, it's important to keep the skin and surrounding area very clean. It's a bit of a process, but eventually it becomes routine and you don't have to think about it too much.
Maybe you answered this in another video but which type did you prefer?
I honestly prefer hemodialysis over PD. It's less time consuming and it lets me sleep. Also, I like hot tubs and swimming pools and that's out when you're on PD.
I’m in PD as of now. And I’m going to tell you right now! Surgery for this sucks balls! And your first ever ever drain will have you dying
My surgery experience wasn't too bad, but I had already been through LOTS of medical procedures prior to this so I guess it might be relative. I was definitely never a fan of the drain though. Glad I'm no longer doing PD.
Did you lose a lot of weight while on dialysis? (I’m asking for my dad.) Is it possible to gain weight when you on dialysis? Thank you for replying
I didn't lose weight on dialysis, and, in fact, I gained weight. But it's important to talk to your (or your dad's) doctor about the desire to gain weight. It's normal for dialysis nurses to try to take off additional fluid to get to a baseline weight and it can be REALLY uncomfortable. If you talk to your doctor, things will go more smoothly.
My fiancé is on peritoneal dialysis (since May 2017). It's always nice to hear about how others deal with it and what their lifes like. One of the main problems he's having though, is the practise of making sure you will never be constipated, as that can cause obstructions to the treatment. Being on laxatives 24/7 has become a majour discomfort for him, and there's just no right balance. No constipation, but there's just never a good gut feeling and it's more or less determining whether or not we go out and enjoy the day or stay in and do nothing (we get more bad days than good). Is that something you can relate to aswell? Sorry if TMI, but hey, dialysis is ugly.
Thank you for sharing your/your fiancé's experience. I did run into constipation issues and had to use suppositories and/or laxatives from time to time and it was no fun. I'm surprised the doctors have recommended some sort of fiber supplement to help keep that from happening. I drank as much water as I was allowed to and that helped me some as well. Also, maybe he's eating too much protein? There are SO many things that can cause that issue that it's hard to say without knowing more. Please feel free to ask any other questions :)
Eat sweets potato everyday... That is natural way to treat constipation.
Why can't you swim in a pool or hot tub if it's highly chlorinated
Because the chlorine will irritate and dry out the area around where the port is which can cause more issues than you really want to deal with.
What changes did you do that help you to recover?
That's an interesting question. I was very fortunate that I recovered as much as I did, but I'm still not fully recovered. I still have chronic problems with my heart, kidneys, lungs, and brain as a result of the Wegener's Granulomatosis with Polyangiitis and I probably always will. The doctors told me that I was one of the very few who have had as much recovery as I did and, as far as I can tell, it had to do with following the renal diet, taking care of my self the best I could and a LOT of luck. I can't express the luck part enough. I felt blind and helpless as I was going through a lot of the stuff I was going through so I just did what the doctors told me for the most part and I got lucky.
Great video . i was on PD for 2 years before my transplant. Hang in there my Kidney Warriors. If anyone has any questions dont hesitate to contact me. Keep fighting.
Jim McKnight was the Transplant better?
What happens if you need to be away from home overnight?
In that case, you talk to your nephrologist and/or your dialysis home office and have them coordinate a home station for you wherever you're going as a precautionary measure. The peritoneal dialysis machine can be taken with you when you travel as can the dialysis solution, so you'll want to make sure you take all that with you when you travel. Thanks for your question!
I was on manual P.D. for four years before transplant. I did four exchanges a day. I controlled the drain pain by clamping the drain line to restrict the flow. I was not hooked up at night so I avoided the bells and whistles plus the tethering to the machine. I suggest you give CAPD a try. You might like it better.
I am praying you get a transplant soon.
I did the 4 exchanges per day for a while and then switched to the machine at night. I didn't like either one.
Is the transplant better? You have risks and more meds to take with the transplant and have the risk of infections too.
@@jesskan9828 Thanks for the question. Yes, the transplant option is a much better course to take than dialysis. I have had immediate improvement from the moment they rolled me out of surgery.
I am pink and bright. I have energy again. People comment that I look 20 years younger. I am warm to the touch again. Sometimes, I have to move the covers away because I am too warm. Everyday since surgery I have improved.
I can mow the lawn. I can garden (I built a seven foot high deer fence, 16 feet by 16 feet while I recovered). I can eat everything and I enjoy it immensely. I have gained weight. And, while I have gained weight, I don’t have the profile of a PD person. My abdomen bump is greatly reduced. My old clothes fit. I am slowly getting my slimmer look back.
My day is free of dialysis and all the concerns with dialysis. I have a free schedule. I can come and go whenever I please. I can travel the world if I want and nothing is preventing me. My life is almost normal again and I have nothing to complain about regarding my renal failure.
And still, the transplant option is not a cure. There are a few tradeoffs.
I take about 50 pills a day to ward off infection and rejection. This dosage reduces over time until July 1st when it will be a minimum. During that period, I have experienced the side effects of all those medications including: high blood pressure, diabetes, diarrhea, tremors, severe heartburn, and sleeplessness. It is a period of adjustment and everybody goes through it.
One by one, the symptoms are dealt with more drugs and diminish over time until they are eliminated. Of the list I just mentioned, I am only dealing with sleeplessness, tremors, and high blood pressure. I have two months to go until I am taking only one tablet of prednisone which is the culprit behind most (if not all) of these side effects. So, be forewarned, there is an adjustment period of at least six months until full stabilization is achieved. It is the norm for all transplant recipients.
Even if this were the final result, I would do it again. That is how significant the life change is. It is totally worth the extra effort for a few months to get a life back that will probably last for years.
A couple more things to consider. After the transplant, the first month is a constant stream of visits to the hospital. I was there two to three times a week for appointments and lab draws. The second month is not much better. But, by the third month, things are more normal. I now do labs at a local hospital once a week. I see the transplant team once a month.
Every patient will be biopsied at three months and one year. This is not too painful. When they inject the landocaine, it stings like Bactine. After that, piece of cake.
During transplant surgery they put in a stint. This was removed after a month. When they removed mine, I was under general anesthetic since my catheter was also being removed. Just be informed there could be a little pain while it comes out if they use a local anesthetic.
Do I recommend getting a transplant? Absolutely! I have passed from death to life. Who wouldn’t want to live again? The change is so dramatic and so quick it erases all the suffering of the past five years plus. My experience on dialysis is a distant memory. I don’t even think about it because life is so full and exciting I don’t have the time or desire to reflect on the past. I want to live right now and enjoy everything.
I do encourage you to get a transplant. While there is an extended adjustment period to gain full use of the kidney and requires discipline and commitment, it is well worth the minimal cost. It is an investment that is reaping exponentially. Everyday that goes by is better than the day before.
If you have further questions, don’t hesitate to contact me. Blessings to you as you make your decision.
Dennis
@@jesskan9828 My donation was from an anonymous cadaver. Both of my sons had offered their kidneys as soon as I was diagnosed but I refused them; they have their own families to take care of. So, God provided me a perfect match after waiting four years on the transplant list. Everything is in His timing and I trust Him completely. I trust He will bring the right outcome for you and your husband. I will remember you both in my prayers. Please contact me through this link anytime with questions.
@@dennis9423 ❤❤❤❤👏👏👏👏
Were u able to switch from PD to hemo?? Please let me know ..
I switched from hemo to PD and then came off dialysis entirely. Unless you've got a specific medical reason like bad veins/no fistula, I'm not sure why you wouldn't be able to switch to hemo. I've decided that when I have to go back on dialysis, that I don't want to do PD again. After experiencing both, I prefer hemo.
@@DBMedStuff how did you get off dialysis?
@T Lyons Sorry for the late response. I didn't see your response. I got lucky and my kidneys recovered enough from the Wegener's attack that I was able to come off dialysis for a while. I know that, at some point probably relatively soon, I'll have to go back on dialysis, but I'm glad to be off it for now.
How am I suppose to have sex with this type of dialysis?
Surprisingly, you're the first person to ask that. It's not as complicated as it may seem. You have to coil up the tube and tape it to you. I had a custom belt that I wore that held the tube out of the way and that helped. Definitely don't let it just hang, though. It'll get tugged on it and it will be uncomfortable and could be moderately dangerous if it gets pulled on too hard.
Hello question did you ever feel bloated?
Iam having issues with the drains
I did feel bloated at first, but that mostly wore off after a while and I didn't notice any longer. I would suggest talking to your nephrologist about the issues you're having with drains. I had some issues, too, and it turned out that I was constipated a bit and didn't even know it. Had to take some laxatives and that sort of thing and it helped.
Yes thank you for you help have a blessed day
My son is 19 years old and just got the port put in yesterday we’re very scared and trying to learn as much as we can so thank you for this video
I'm sorry to hear that he's going through that. While my experience isn't unique, it's not always the norm either. He may have a much better experience than I did. Take care! :)
Hi Candi,
Sorry to hear about your son. However, P.D. is a great option for treatment. I was on manual P.D. for over four years before receiving a transplant (three and one half months ago). I encourage everyone who is doing P.D. to consider manual over the machine. Sleep is better and the drain pain can be eliminated. Contact me if you have further questions. This is survivable and I want to give you and your son hope and encouragement.
Dennis
This video was very informative and real. The doctors tell me all these positive things about PD and how it’s so much better but it’s nice to hear from someone who’s actually been through it so I can know what to actually expect. I am just so scared 😥 this means I will have to be home by a certain time everyday. I’m only 27. This is my second time on dialysis (I was on when I was 16) but it’s always been hemo. I’m just scared of the transition and the super long hours I will have to be connected. I also have a daughter so idk how I’m gonna cope. 🥺 thank you for sharing your experience.
There are definite pros and cons to PD. Do you know how many hours you'll have to be on each night?
Just had my catheter for peritoneal dialysis am in so much pain any suggestions or ideas that could help me please
There will be some discomfort while healing, but if it continues on for more than a couple of weeks, you might want to talk to your doc and see if they will do some imaging to make sure your catheter is in the right place. If it moved, it could be causing other problems that could cause discomfort.
I do manuals, my fillings are 1200 ml, it tooks me just 15 minutes for each exchange /3 a day). Not disconfort, not being attached to a machine, not alarms, not pain... don't know why people prefer the machine. I don't get it. Manuals give me fredoom. And you can swimm and having baths in a tube just by ysing the correct waterproof item, i use a colostomy bag and can go swimm etc. I haven't had peritonitis ever.
I did my exchanges like that for a while and it's just not convenient for a lot of us. Also, I had drain issues with the manual method as well. The way the tube was inside me, I kept getting some pretty bad pain from it as well.
Thank you!! I was diagnosed with kidney failure a few months ago and put on PD straight away. I've been looking for some good content on this just to get my head roud it all but I've not found much, so this is really helpful. :)
Personally I have found PD pretty fine after some adjustment. It's still pretty painful when draining out, but for me it's comparable to a bad stomach/ period cramp. I also found it tricky to sleep at first until I got some foam earplugs which have really helped. I find I'm not waking up as much and some nights I can sleep right through. It may be somewhat easier for me, though, as my treatment schedule is only 8 hours so it pretty much lines up with my normal sleeping schedule.
I agree with all that, but I also like not having a long tube hanging out of my stomach getting in the way and preventing me from doing things I enjoy doing like hot tubs, swimming, sleeping, etc. I never got a good night's sleep while I was on PD.
Can you toss and turn at night? What about sleeping on stomach? I can only sleep on my stomach
thank you!!!!
No worries!
Pd dialysis is really painful specially when the fluid draines
Yeah it really can be. No fun at all!
Shrada, you can control the drain pain if you are on manual. Just clamp the drain tube to restrict the flow and elevate the drain bag to reduce the pressure. I was on manual PD for over four years before I received my transplant. The pain can be eliminated.
Have you had a transplant? Or did you go back on hemodialysis?
Neither, actually. My kidneys recovered enough to come off of dialysis, but I'll have to go back on it in the next few years most likely
I know that Pd is for kidney disease but my mom is starting it soon if she's well enough to do the surgery, but not for kidney disease but for heart failure. My question to you is, have you gained heart problems because of the treatment because I read 50% of dialysis patients with kidney disease die due to heart failure or cardiac arrest?
David Burgess' Vlogs how long before ur kidneys recovered?
Here's the thing: My kindeys recovered enough that I don't need dialysis at the moment. Also, MOST peoples' kidneys DON'T recover. After talking to my nephrologist and nurses, they said that less than 1/3 of people recover the way I did. Definitely talk to your doctor about your situation and if you feel like you aren't getting the answers you need, get a second opinion. That's what I did.
@@janinapatience3001 They have heart failure because they were never compliant treating their diabetes, which is why they eventually get kidney and heart problems. Once organs start deteriorating from diabetes, it all goes downhill fast. Dialysis buys people some time until they can get a transplant. Most people I've seen die in clinics were too far gone to qualify for a transplant. My sister had to get her heart repaired before a hospital would even put her on a list.
Nice job
Thanks!
Thank you for making a great video. I thought that is was easy to listen to with the video. How much water are you able to drink? How was your process going to the clinic? Ms. McCoy.
I was periodically restricted to only a couple of liters per day and I didn't like it at all. The process of going to the clinic was... well... It wasn't good. In fact, my experience was bad enough that I made this video and ended up going on peritoneal dialysis: czcams.com/video/5FlnH7pa8ig/video.html
After a bit over a year, my kidneys had recovered enough that I'm not on dialysis at this point, but my kidneys are still pretty weak and I'll have to go back on at some point. Thanks for watching and commenting!
Thank you for the informative video. I’m a 45 year old amputee (left leg, below-knee) I current do hemodialysis in clinic for two and a half hours, twice a week. I had the PD catheter surgery earlier this month and will start training next week. I’m super nervous about the whole process. I have a small shitzu that sleeps with me!! I have an empty bedroom where I plan to keep all the dialysis supplies and do my connecting and disconnecting. Of course, the dog would not be allowed in there at all, but what about when I go into my real bedroom to sleep, can my puppy still be with me?? I don’t want PD to interfere with my quality of life. Two days of hemo is really not that bad.
I hear you. I've got cats who wouldn't have been happy out of the room. I was very careful to make sure that they weren't around when I was hooking up and disconnecting. While you're hooked up, just be careful that your pets stay away from the port opening in your stomach. Also make sure they don't chew on the tubing. Overall, it's just a matter of being careful and staying as hygienic as possible.
I'm not that old, I was 17 when I started with hemo, I'm 22 now and I've been on pd for the past 5 years
I was able to get off dialysis entirely for a while and I have no desire to go back on PD when the time comes.
Bro, on PD as well over here and having the exact same issues. Up 4 times a night.
Sorry to hear you're dealing with that. Definitely not a good time :(
Please tell me how many bot do you have to store each month? How much room does it take?
We often had 50 boxes of solution in our garage. It took up quite a bit of space both in the garage and in the house as we had to store some of it there too
Bro any fluid restrictions?
As far as drinking fluids and such? Yeah, I had that for a while and it was awful but that was while I was still in the hospital. After that, the nephrologist encouraged me to only drink as much as I needed to not be thirsty, but never gave me any solid restrictions.
Thank you for sharing
Thanks for watching!
Thank you for sharing
Thanks for watching :)