Heat sensitivity
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- čas přidán 21. 08. 2024
- Heat sensitivity, or worsening symptoms brought out when over-heated, is very common amongst PwMS. Here Dr. B explains the biological underpinnings of MS related heat sensitivity. He then discusses how knowing this helps us combat heat induced fatigue, either by cooling down the body actively or using a medication that helps correct the underlying problem (Ampyra, or 4-AP). Please take a look at this video and leave your questions and comments below.
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Link To This Video: • Heat sensitivity
![Spoon Theory: Making Sense of Fatigue in Multiple Sclerosis [2018]](/img/n.gif)
Hello Dr. B....I just bought my MS cooling vest and OMG what a HUGE difference! It comes with 4 cooling packs and I got it on sale. Today it was close to 100 degrees so I put the vest on and was blown away by how cool my body was! It’s a life saver as well as lightweight and comfortable.
wow! That is awesome! TY for sharing that with us Giftboutiq!!! I'm so glad this is helping you!
Great teaching exercise
Many thanks
I live in Arizona and my heat sensitivity seems to last longer each year. Thank you for sharing info on the potassium channel patch! I’ll be talking to my doctor about it. Thanks again.
Aaaah...this is the video which I have been waiting to see!!! 👏👏👏 The most simple explanation and cure!
This explains why I felt that electrolytes did help me with the heat intolerance...
So both sodium and potassium leave the nerves when heat increases! Electrolytes replace those which I am losing from my body and keep the sodium and potassium levels optimal. It all makes so much sense now!!!
THIS IS MY FAVORITE VIDEO!
Lo the nurse in Pensacola
Unfortunately, can't see that 4 AP has helped. MS 60 years, so there's that!
Howdy Lo! Thank you for watching (and liking) this one! If 4-AP isn't helping (bummer!) a cooling vest still might! I have found this to be true with many folks I look after in clinic. Maybe worth trying if you haven't already?
Aaron Boster
Have it from MSAA. Great benefit from great organization.
Best thing for me is to just get up pre dawn, get crackin, get inside b4 9am. Take Tramadol when I have stuff to do. Gives me a buzz to get things done. No more than once a wk or less as it raises my bp. Like it better than Provigil.
Thanks again! Hard that we're all different. Some days, you must feel like an astrologer! Lo
People are NOT text books, that's for darn sure! And I totally agree that the MSAA is amazing. #MSAA
@@AaronBosterMD for the comment in this thread . I'm not sure if I placed this properly..
~ plz b so careful when taking tramadol, before my disability I worked in a very specialty pharmacy and it is now known that there's a very serious seizure risk with this drug. I'm only mentioning this because I feel I'm qualified to but still I'd really talk to your doctor about it. Or re mention this med?It can even be a problem at low doses with certain drugs. Especially some that a m.s. patient may be perscribed ..But it's true the biggest worry is high doses. But I wouldn't be able to go on with my day with peace without this warning. N please I'm never one to judge. I'm just a helping hand. Well I guess I was when I made a difference ...hoping this helped on some level. :*( -divine
It’s always the humidity and not so much the heat for me . I can handle Arizona heat but sure can’t handle Canadian heat with 95% humidex
Heat sensitive.... YES, I agree sir. Be very aware of heat!!!xxxx
stay cool!
AWESOME VIDEO, VERY INFORMATIVE TO THE "LAYMAN"
Thank you Dr Boster this is fascinating- love your explanation. 🔥🔥🔥🔥🔥
Glad it was helpful!
Can a space heater at work make symptoms worse? I get cold easily so trying to find a happy medium
Didn't you mention in one of your videos that there is a drug that reduces heat sensitivity?
,Another big issue covered thanks doc 👍😇💙
What about for dysautonomia pots not Ms?
Does this medicine work when you’re temperature change intolerant as well? I have issues with both the cold and the heat. Honestly the heat intolerance is easier for me to deal with. Once I cool back down which happens quickly, I recover. With my cold intolerance I get severe muscle spasms and it can take hours to get warm again.
Many people with MS have both issues with overheating (heat induced weakness, worsening of other baseline symptoms when overheated) AND with cold (worsening of baseline spasticity. Makes me wish we all lived in San Diego!
When I am too warm I can feel very cold, even have chills. Do you think Ampyra would help this? I’m constantly asking others if they are warm or cold because I don’t know what I am 🤔
Do you prescibe 4AP for your patients? My understanding is Ampyra is $1255/ month but 4AP is cheaper. I think my neurologist doesn't believe in compounding.
we use both compounded 4-AP and labelled drug (Ampyra)
Thank you so much, Dr., for these videos! I have a question, are the areas of myelin injury inside the brain, or spine, or more peripherally, or all of the above? Thank you!
Linda LePelley in the brain and spinal cord, in the setting of multiple sclerosis
Thank you!
New subscriber. I found your channel this morning. I have not been diagnosed with MS. I have been having problems with nerves for over 5 years. I had an EMS nerve test done and I ended up getting 4 surgeries on both hands and elbows. It made things worse, and then I was diagnosed with CRPS ( complex regional pain syndrome ). I have been to many Pain drs. I have tried many meds, calmar treatment, ketamine infusions, my pain dr put liquid coc*#ne in my noise with a q-tip to numb me and that did not help, I have had 2 ACDF infusions. Multiple dr's have wanted to put stimulators in my back but I keep refusing. I am exhausted all the time. I am on disability and I only leave my house to go to dr appointments. I self isolate. My balance is horrible, migraines, nausea, brain fog, dizziness, vertigo, blurred vision. I moved to FL 8 years ago because I loved the heat and sunshine. I can't stand to be in the heat now. I get so sick and weak. I keep ice packs in my freezer and rotate them throughout the day. Everything I loved, I avoid now. I have never seen a neurologist or had an MRI on my brain. I have been told my B12 is low and I was on self injections but it did not help my energy. I was on adderal years ago for OCD. It made me even more tired when I took it 2 x daily. My dr told me to switch to 2 pills 1 x in the morning and I felt like I was somewhat normal. Pharmacies in my area are always on backorder so I no longer take it.
Sorry for the long comment. Is there a particular brand of cooling vest that you recommend? I will try anything at this point. Thank you for this channel. I will be talking to my PCP about getting an MRI.
I would request to be seen by a neurologist and request him/her to do an MRI. I live in the UK and this usually goes through the GP (for a referral). Surely you can do something like this where you stay? Do not take a no for an answer and keep pestering them. There are also videos on how to speak to a specialist (especially the ones who have a too high opinion of themselves) on CZcams, so you can learn the basics to make your stand. I am also searching for a cool vest myself. And one can order with prescription most medications online. Perhaps this would be an idea for you?
@@wendywebster5920 Great advice!
From Germany
Dear Mr Boster - or do I have to write Mr. Boster MD, as wie have to in Germany. Please let me know, if you can read this, before I write more, as it is still a challenge.Besteht regards
We live in ohio, my daughter has ME , we cannot find a good doctor, where are you at in ohio? She is suffering right now with heat sensitivity.
where are you in Ohio? you can go to the Cleveland Clinic. They are truly world class.
@@elcat9091 Cleveland is too far for her to travel, we are close to Columbus Ohio where Dr Boaster is. Thanks
Ampyra is the same as dalfampiridine?
same stuff.