Today is our fourth-year anniversary of being on CZcams. This video is all about where we have come from and what we have accomplished. livingwithxxy....
You are a great ambassador for this syndrome and for humanity in general. Thank you for making and sharing these videos. You are making a great impact on the community, and are generating positive awareness for all.
So last night, after 25 years of life I realized for the first time that I may have Kleinfelter syndrome. I have almost all the associated symptoms and it has remained untreated my entire life. Thanks to your videos I'll be able to get properly diagnosed and treated, and hopefully I get to live a more "normal" life. It's amazing to me how little is known about this condition considering how many people it affects. Thank god for this CZcams channel, well done bro! 🙌
You are the inspiration for many and that includes my self. As a parent, I have found so many things through your sharing, than on the existing literature. I am hoping my son gets engaged in this group. It will make a difference in his life I am sure. Thx again, and keep it up!!!
I know what it is to be XXY for 42 years, not knowing. Im 46 now. This guy is the bomb. 100% in a couple of weeks he's picked me up. This vid is us Brothers. We are XXY. The video state's.. life is often a struggle. It is. Speak to people. CZcams it. There is help, you are NOT ALONE. A kick in the teeth to some of us.... children. Don't forget... we live in a world that's full of unwanted children. Sad but true. You have options. Thank you brother for picking me up. ❤❤❤
Having a script makes this go easier. I also lose my train of thought easily AND have serious performance anxiety because I put the same kind of pressure on myself. But having a script helps you not just deliver a clear message but it helps you develop a level of communication for the off-the-cuff messaging when you’re in a one-on-one conversation. I’ll keep this brief - but I have to present information at work on a regular basis. I have to take 0.5mg of Ativan before I do or my amygdala goes into overdrive and forces me to divert my attention toward how nervous I’m feeling, how my breathing gets shallow and how incompetent I feel. But that’s all bullshit. It’s our minds lying to us. You are doing great!
Welcome to my world. I do exactly what you did. I just flubbed a job interview because I knew what I wanted to say, but I couldn't talk. No I was not nervous, I was the top candidate. Yet I could not put my best foot forward. I am grateful I didn't get the job. I would have been miserable. KS is not an easy life (who wants a boring easy life? Not this KS man)... for the love of your unborn child do not abort, please. I have helped so many people in my life who literally would be dead today without me. (Retired Law Enforcement Officer). If your Son has KS, know that you are going to have a very special little boy, who will love you just like a Son without KS. This isn't the 1970's when doctor's didn't look for KS. We are in the year 2021! The Living with XXY is here to help you (Mom)! KS is not as bad as you might think. I wished that my Parents had known that I was KS prior to my birth...I would have had a much happier life as a child. Why? Simple, if you know about KS, you help the one with KS (see, I ramble too). Thank goodness for Testosterone Therapy, for me it makes all the difference in the World. Now I have to find an Endocrinologist, who can prescribe it for me again (I lost my insurance). In my area I have to wait nearly 6 months for an appointment. BTW, Mom's who have KS boy's tend to be pitbulls for their child. The connection that you have with your child is incredible because you have to be a strong woman to raise a KS child because you will be advocating for your child, that is a good thing. (I am done rambling as it is 0400 EST and I am exhausted, have a great day! I know I will because I am alive and my Mother love's me!
Hi Ryan, going through your channel as just been diagnosed with KS at 32 (never knew since birth till now). Great watching your videos to learn more about it. Thanks.
8/2023.....YOU GOT IT MAN,...You're doing just fine. I have Klinefelters, and I'm 70, now. I knew when I was 13,....And nothing was known about it back then,....well very little, was known. I did pretty well. I got testosterone injections, then later I tried the gel,....a skin applied testosterone. I was a slow learner, and a late bloomer. Thanks to my mother's efforts, I kept up with my schooling and exceeded all expectations. I have two college degrees, and I found employment in my areas of interest. I'm retired now. Thank you for bringing it out of the shadows. When I learned of my condition, ( my mother said I should keep it my little secret). It didn't hurt or help my situation. I had girlfriends and later sexual partners. I've been in a long term relationship for many years. Neither of us had any interest in having children of our own.
Ryan, if the prevalence of KS is roughly 1 in 500, we share the anomyly with 10's of millios of people worldwide. Become familiar with an editing program. You can easily break your speech into parts and make it a whole lot more "on point". You do a great job anyway!
As a mother of ks child. The unedited version truly helps me understand my child better and shows him that he isn't alone. Just be you. Honesty is transparent. Thank you!!!
I love all your information, it's kinda hard to understand sometimes for phycologist do not even know what it is or is like. I had AD(H), ASD, and some other DSM-4 and 5 diagnoses in my life. But when they tested my bloodwork at the gender clinic it all made sense. Really hope DSM-5.1 is changing the perspective for help.
@@LivingwithXXY potentially the possible new version of DSM. When I studied psychology nursing my lectures talked about a new version. I think the perception of many diagnosis have changed since the release of DSM-5 in 2013. I mean, now with more info about ASD and gender perceptions included in society gives a new meaning for gender dysphoria.
not to mention, xxy is very common, which is 1 in every 500. i also have klinefelter syndrome but in my case, i have XXYY with 48 chromosomes. from researches i found, it appears to have 1 in every 18000 - 40000. i was diagnosed when i was 19 so didnt experience any of puberty related growth. i started taking testosterone when i was 26 but after 1 yr i had to stop cuz likewise i never went thru you know, 5 fingure self satisfaction exercise, i had no clue how to express the sexual desire caused by rising hormone levels. like you mentioned on your community, not many people finds out diagnosis even with xxy, then how would with xxyy.
Nice video! Here in Greece men embarrassed to tell that they diagnosed with KS Syndrome. I diagnosed at May 2020 at 42yr, with a blood test for karyotype. Myself... Always i felt different mind through years. I was kind to other people, my think is different, also i have empathy. After two years I'm trying to except but its difficult. I had dream to grow up my kids to learn them everything i know. This will never be. My wife wants divorce. I'd to adopt kids but my wife want to get pregnant. I think that men with KS are very rare humans. They feel the world differently, and also feels things in a higher level than the usual men without KS. Men with KS feel calm near to nature, likes to do extreme sports, protect other people, they are creative etc But they Stigmatized from others, because if you don't create life or a new born you are not useful for this society!!! I wish in Greece men with KS find the strength and speak how they feel and show what human being ARE. Thank you!
We are not rare, we are just rarley diagnosed. The only way we break down the stigma is to put ourselves out there and show people that what they read it outdated history books is not what all of the men are like with xxy.
Μια χαρά είσαι ,η διαφορά δεν είναι πάντα αρνητική ,πολύ τεστεστερονη έχουν και τα βόδια τι να το κανείς ..συνεχισε τη ζωή σου ,όλοι έχουμε λίγο πολύ κάποια γεννετικα θεματάκια ,δεν χρειάζεται να είμαστε σαν τον τερμινεΐτορ,οι περισσότεροι προβληματικοί πάντως είναι με κανονικά χρωμοσώματα ,καλή σου μέρα..
My personal opinion is that being feminine male is one of the most cruel things you can experience in life. Even masculine females are treated much better. As a non-masculine man, you're looked down on by almost everyone.
To be fair, I was almost aborted for having KS or at least I’ve been told that by my parents. My gf broke up with me because of my baggage. She said she’d text this month and maybe pictures of a puppy that I helped raise, but I’ve heard nothing. I can’t seem to find a job despite having an engineering degree. And on top of all that I might have covid now. Idk what to do. I feel so alone and I can’t see anyone because I’m in quarantine
i truly wish i can meet ryan in person i see a lot of myself in him. saw his anxiety & depression video exactly me but i prolly have it a bit different
I'm asian 45 years old and already having some health issues despite eating a healthy diet, avoiding liquors and haven't smoke in my lifetime because I recently discovered that I have Klinefelter syndrome, is it true that testosterone replacement therapy is the only way that I can improve my health?
I was told today my 11 year old son could have klinefelters syndrome. He is being referred to a pediatrician. His symptoms are 1 abnormally small testicle and one normal size, he has not yet started puberty. He was almost 2 years old when he started walking and had to have speech and language therapy. Apart from that he is on target at school and has plenty of friends.
You are a great ambassador for this syndrome and for humanity in general. Thank you for making and sharing these videos. You are making a great impact on the community, and are generating positive awareness for all.
Wow, thank you
Congratulations, Ryan! You're making a difference in the world and we are all thankful of you and your hard work!
I appreciate that!
Thank you so much, you are doing a great job and you are helping so many people out there!
You are so welcome!
So last night, after 25 years of life I realized for the first time that I may have Kleinfelter syndrome. I have almost all the associated symptoms and it has remained untreated my entire life. Thanks to your videos I'll be able to get properly diagnosed and treated, and hopefully I get to live a more "normal" life. It's amazing to me how little is known about this condition considering how many people it affects. Thank god for this CZcams channel, well done bro! 🙌
You are the inspiration for many and that includes my self.
As a parent, I have found so many things through your sharing, than on the existing literature. I am hoping my son gets engaged in this group. It will make a difference in his life I am sure. Thx again, and keep it up!!!
Wow, thank you
Your enthusiasm and personality are an inspiration for me. You have given me strength and optimism.
Thank you!
Thank you for doing the work to get the message out!
Thank you for the support!
Excellent video, Ryan. You are such a ray of hope for all! Thank you! 👍🙏
We love our community! Thank you
I know what it is to be XXY for 42 years, not knowing. Im 46 now. This guy is the bomb. 100% in a couple of weeks he's picked me up. This vid is us Brothers. We are XXY. The video state's.. life is often a struggle. It is. Speak to people. CZcams it. There is help, you are NOT ALONE. A kick in the teeth to some of us.... children. Don't forget... we live in a world that's full of unwanted children. Sad but true. You have options. Thank you brother for picking me up. ❤❤❤
Thank you for reacing out! Love hearing this!
Having a script makes this go easier. I also lose my train of thought easily AND have serious performance anxiety because I put the same kind of pressure on myself. But having a script helps you not just deliver a clear message but it helps you develop a level of communication for the off-the-cuff messaging when you’re in a one-on-one conversation.
I’ll keep this brief - but I have to present information at work on a regular basis. I have to take 0.5mg of Ativan before I do or my amygdala goes into overdrive and forces me to divert my attention toward how nervous I’m feeling, how my breathing gets shallow and how incompetent I feel. But that’s all bullshit. It’s our minds lying to us. You are doing great!
Yea Im more go with the flow. Less script but ill look into it.
This video is also very good, not everybody wants to see perfection, no way, spontaneously stuff is so great, never change, great job😄💯
I appreciate that!
Welcome to my world. I do exactly what you did. I just flubbed a job interview because I knew what I wanted to say, but I couldn't talk. No I was not nervous, I was the top candidate. Yet I could not put my best foot forward. I am grateful I didn't get the job. I would have been miserable. KS is not an easy life (who wants a boring easy life? Not this KS man)... for the love of your unborn child do not abort, please. I have helped so many people in my life who literally would be dead today without me. (Retired Law Enforcement Officer). If your Son has KS, know that you are going to have a very special little boy, who will love you just like a Son without KS. This isn't the 1970's when doctor's didn't look for KS. We are in the year 2021! The Living with XXY is here to help you (Mom)! KS is not as bad as you might think. I wished that my Parents had known that I was KS prior to my birth...I would have had a much happier life as a child. Why? Simple, if you know about KS, you help the one with KS (see, I ramble too). Thank goodness for Testosterone Therapy, for me it makes all the difference in the World. Now I have to find an Endocrinologist, who can prescribe it for me again (I lost my insurance). In my area I have to wait nearly 6 months for an appointment. BTW, Mom's who have KS boy's tend to be pitbulls for their child. The connection that you have with your child is incredible because you have to be a strong woman to raise a KS child because you will be advocating for your child, that is a good thing. (I am done rambling as it is 0400 EST and I am exhausted, have a great day! I know I will because I am alive and my Mother love's me!
Thank you! Keep up the great work!
Thanks, will do!
Thank you Ryan. I struggle to stay on the subject my mind also drifts a bit.
I understand that!
Hi Ryan, going through your channel as just been diagnosed with KS at 32 (never knew since birth till now). Great watching your videos to learn more about it. Thanks.
Welcome aboard!
8/2023.....YOU GOT IT MAN,...You're doing just fine. I have Klinefelters, and I'm 70, now. I knew when I was 13,....And nothing was known about it back then,....well very little, was known. I did pretty well. I got testosterone injections, then later I tried the gel,....a skin applied testosterone. I was a slow learner, and a late bloomer. Thanks to my mother's efforts, I kept up with my schooling and exceeded all expectations. I have two college degrees, and I found employment in my areas of interest. I'm retired now. Thank you for bringing it out of the shadows. When I learned of my condition, ( my mother said I should keep it my little secret). It didn't hurt or help my situation. I had girlfriends and later sexual partners. I've been in a long term relationship for many years. Neither of us had any interest in having children of our own.
Thank you for sharing Dave! Let me know if your interested in doing a podcast!
Im matthew i was diagnosed with xxy when i was 15 im 37 now i would like to talk to some about my exsperiances
Ryan, if the prevalence of KS is roughly 1 in 500, we share the anomyly with 10's of millios of people worldwide.
Become familiar with an editing program. You can easily break your speech into parts and make it a whole lot more "on point". You do a great job anyway!
Thanks! I do have Adobe Premiere, I just try and do videos that require a less editing.
As a mother of ks child. The unedited version truly helps me understand my child better and shows him that he isn't alone. Just be you. Honesty is transparent. Thank you!!!
I love all your information, it's kinda hard to understand sometimes for phycologist do not even know what it is or is like. I had AD(H), ASD, and some other DSM-4 and 5 diagnoses in my life. But when they tested my bloodwork at the gender clinic it all made sense. Really hope DSM-5.1 is changing the perspective for help.
What is DSM 5.1
@@LivingwithXXY potentially the possible new version of DSM. When I studied psychology nursing my lectures talked about a new version. I think the perception of many diagnosis have changed since the release of DSM-5 in 2013. I mean, now with more info about ASD and gender perceptions included in society gives a new meaning for gender dysphoria.
Thanks Ryan for being great 👍🏻 also a xxy male. I did a few research studies for a medical team and encourage more studies that are definitely needed.
not to mention, xxy is very common, which is 1 in every 500. i also have klinefelter syndrome but in my case, i have XXYY with 48 chromosomes. from researches i found, it appears to have 1 in every 18000 - 40000. i was diagnosed when i was 19 so didnt experience any of puberty related growth. i started taking testosterone when i was 26 but after 1 yr i had to stop cuz likewise i never went thru you know, 5 fingure self satisfaction exercise, i had no clue how to express the sexual desire caused by rising hormone levels. like you mentioned on your community, not many people finds out diagnosis even with xxy, then how would with xxyy.
Nice video! Here in Greece men embarrassed to tell that they diagnosed with KS Syndrome. I diagnosed at May 2020 at 42yr, with a blood test for karyotype. Myself... Always i felt different mind through years. I was kind to other people, my think is different, also i have empathy. After two years I'm trying to except but its difficult. I had dream to grow up my kids to learn them everything i know. This will never be. My wife wants divorce. I'd to adopt kids but my wife want to get pregnant. I think that men with KS are very rare humans. They feel the world differently, and also feels things in a higher level than the usual men without KS. Men with KS feel calm near to nature, likes to do extreme sports, protect other people, they are creative etc But they Stigmatized from others, because if you don't create life or a new born you are not useful for this society!!! I wish in Greece men with KS find the strength and speak how they feel and show what human being ARE. Thank you!
We are not rare, we are just rarley diagnosed. The only way we break down the stigma is to put ourselves out there and show people that what they read it outdated history books is not what all of the men are like with xxy.
Μια χαρά είσαι ,η διαφορά δεν είναι πάντα αρνητική ,πολύ τεστεστερονη έχουν και τα βόδια τι να το κανείς ..συνεχισε τη ζωή σου ,όλοι έχουμε λίγο πολύ κάποια γεννετικα θεματάκια ,δεν χρειάζεται να είμαστε σαν τον τερμινεΐτορ,οι περισσότεροι προβληματικοί πάντως είναι με κανονικά χρωμοσώματα ,καλή σου μέρα..
My personal opinion is that being feminine male is one of the most cruel things you can experience in life. Even masculine females are treated much better. As a non-masculine man, you're looked down on by almost everyone.
Could you show a workout video of you working out or what you do to stay fit?
To be fair, I was almost aborted for having KS or at least I’ve been told that by my parents. My gf broke up with me because of my baggage. She said she’d text this month and maybe pictures of a puppy that I helped raise, but I’ve heard nothing. I can’t seem to find a job despite having an engineering degree. And on top of all that I might have covid now. Idk what to do. I feel so alone and I can’t see anyone because I’m in quarantine
Just remember quarntine doesnt last forever! You got this and we will see you on the other side! Keep Fighting.
God is with you my friend! Don’t ever give up!
i truly wish i can meet ryan in person i see a lot of myself in him. saw his anxiety & depression video exactly me but i prolly have it a bit different
Just shoot me an email from our website contact page.
I'm asian 45 years old and already having some health issues despite eating a healthy diet, avoiding liquors and haven't smoke in my lifetime because I recently discovered that I have Klinefelter syndrome, is it true that testosterone replacement therapy is the only way that I can improve my health?
Its not the only way, but it can be helpful. We are not doctors, so please consult with yours :)
@@LivingwithXXY thank you I'll consult with my doctor and I'll get back here
I was told today my 11 year old son could have klinefelters syndrome. He is being referred to a pediatrician. His symptoms are 1 abnormally small testicle and one normal size, he has not yet started puberty. He was almost 2 years old when he started walking and had to have speech and language therapy. Apart from that he is on target at school and has plenty of friends.
Advocate, Advocate, Advocate. Get a karyotype test done and dont leave until you do!
Maybe several thousand years from now when doctors might actually know something it can be treated by cutting out the extra chromosome
What is Ryan's hight?
6'4
I don't understand the stigma. But testosterone is only putting a bandaid on it. The genes in the extra chromosome need a treatment to silence them.