Myeloma & Me - Deb's Story
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- čas přidán 8. 09. 2024
- Bringing up two young children while processing what a myeloma diagnosis meant saw Deb realise it was okay to ask for help. Deb explains discovering the Myeloma UK discussion forum was a turning point in her living well with myeloma.
You can find more stories and share your own on our website: bit.ly/myelomaa...
I have multiple myeloma. Got it age 39 (2 weeks before my second child was born) now 44. Frankly it’s been fine. Had 8 months of chemo, was pretty stubborn, then had a stem cell treatment. Took about 18 months to get my health up to speed. I’m now fine still in remission. If you’re newly diagnosed try not to worry or make it bigger than it is (everyone loves being a victim these days), you’ll be fine.
Can you please tell me. Are you okay today? So Happy that the Pregnancy went well. I have a friend in the same boat. However she is only 4 months into her pregnancy. Praying..
I saw your blog and I see you are still strong still fighting, that gives me hope.
Thank you, I hope that you are still ok and strong. I' m 70, has a stem cell transplant a year ago, now take Revlamid and am in remission 🙏 and feel very good and can get on with my life and it not interfere with my family life. I don't worry about it, the time for concern is if/when it becomes a problem again. Until then, I live like I did before I was diagnosed. All the best.
Thank you for sharing your stories ❤. It’s important for those who are just diagnosed.
Keep up your fight , well soon have a cure or at least better treatment/options in the future, I get up everyday and smile no matter how I feel and go about my day thanking god I can do so ,it was nice to listen to you , gives me more hope too , take care , keep strong 💪 and smile for what we have 🙏
I have stage 2 MM, it’s really sucks, especially if you have a family. Cancer Sucks
Tw][sTeD I hope you are doing well. Keep Strong!
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@@florencedonald6419 where is this doctor and how does he cure this uncurable desease ?
@@florencedonald6419 who’s the doctor ?
I hope you're doing okay 🙏🏾❤
Thank you 🙏💓☀️
Than you for sharing
My father in law is 62 and he was just diagnosed. Doctors said he is in very advanced stages. He got really skinny and the cancer is even breakin down his bones. The dr said he wont be getting chemo only pills and injections. Does anyone know why he wont be getting chemo? Is it too late for chemo?
My mom 57 is diagnosed with MM , she’s also on oral steroids dexamethasone and bortezomib injection. Doctor said this is kind of oral chemo after 3 months of this treatment they can go for stem cell transplant. Hoping for the best. She’s into her 2nd week. Praying everyday. 👏😇
I have MM an went thru what your going thru now, back in 2019. It's 2022 I'm ploding along taking one day at a time. I get numbness, pins needles in feet maiinly I take pregablen 4 that an oxycodon 4 bone pain. I mist say I feel fine . You will be fine. There's no cure for MM.
@@hillsidevalley5468 how is she? ,My father has been diagnosed with same and he is getting same treatment
@@purpleheaven8636my brother getting same treatment I’m from pakistan
hows she doing now? i have mgus. everyone who had had mm starts with mgus.
I think she's getting ready for a transplant. Here's a link to the blog she mentions in the video: debsjourneywithmyeloma.wordpress.com/
I was diagnosed with multiple myeloma on April 2019. It was on as very advanced stage. Had four cycle of chemotherapy which includes Revlimid. Velcade, and Dexamethasone. On September 2019, my oncologist told me that I was on fully remission. On October 2019, I had a stem cell transplant which was really successful. I am now taking Revlimid 10mg as maintenance and still on remission. Thanks to God and to all those angels that were sent by God to take care of me specifically to my wife and my oncologist Dr. Asim Aijaz.
Carlos Bernardini great Carlos! I hope you all the best!
@@carlosbernardini9132 how are you doing?
@@mindyflann so far I am still doing great. Thanks to God.
I have multiple myeloma stage 1
Stay strong Teresa!
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
My dad has it- stage 1
CoChief Emeralds I hope he’s doing well! Stay close to him!
Francesco Nicolai trying to but can’t visit him cuz he is immunocompromised
@@cochiefemeralds3616 Just appreciate all the small talks, chats, phone calls... I wish you good luck!
There are no stages with MM.
@@everadaespinoza3531 Actually there are three stages. The beginning would be called MGUS and then the next one would be smoldering myeloma which means it would just show up in a test while the person is asymptomatic and stages 1-3 they are symptomatic