💔Lost my jobs to DYSTONIA
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- čas přidán 31. 07. 2024
- Lost my job (mainly to Dystonia), to be more precise, lost my three jobs all together, ...
I also shared a failed crafts project that flared up my body pain to its highest level that I had to stop.
I'm trying to stay as productive as I can so I don't lose my mind...but, I miss being so active 😢
I'm absolutely stunned by the wonderful support my friends ♥️♥️♥️♥️ I WOULDN'T BE THIS POSITIVE WITHOUT YOU, thanks for helping me keep my head up at such difficult times!
Forever grateful 🌿
Link to Dystonia Europe CZcams ⤵️
/ @dystoniaeurope
Link to Dystonia Europe Website ⤵️
dystonia-europe.org/
the link to the website ⤵️
www.epilepsy-journal.com/
learn more about Hydrocephalus ⤵️
www.hydroassoc.org/
.,.........,........,.......................
00:00 Intro
00:30 How I became WITHOUT a job TEACHING
02:30 IT'S MY DECLINE 😞
03:30 LOST MY FREELANCING JOB..
04:45 I USE MY PHONE BETTER..
06:05 CAN'T DO GRAPHIC DESIGN ANYMORE..
07:30 Can you help? 🌿
08:02 thank you guys 💕
09:30 Trying merch.. @ClaireSara
11:11 NAKED WALKER 😦
12:30 Seizure activity ..
14:00 my opinion on sharing Epilepsy injuries (it upsets me can't handle pictures)
#Dystonia episodes
#Hydrocephalus
#Jobless
#Living with disabilities
#Lost my jobs
#Tonic clonic seizures
#cervical dystonia
#Dystoniac storm
#epilepsy
#generalized dystonia
#mental health
#spasmodic torticollis
#dystonia awareness
#dystonia attack
#work
A Link to Claire Sara's YT channel ⤵️
youtube.com/@ClaireSara
@ClaireSara Spread Shop review ⤵️
czcams.com/video/DPMa6e8s9Kk/video.html
What's your experience with the Amazon store please share 🌿
Hugs 😮😢
Big love to u Ruba💙💜
Thanks for the incredible support 😊 hope you are doing well 🙏🏼🌿
I hope new Meds will HELP 🙏🏼🙏🏼🙏🏼🙏🏼
I'm so sorry that you are going through this. I know it's hard, but try to stay positive cause I know stress just makes dystonia worse.
Thanks dear 💖💖💖 I'm trying to keep mind off usually spending my time on CZcams it's the easiest way to feel I'm doing something that may on the long run be a skill that I can master and earn money from..
Other than that my life is empty, I'm glad my kids keep me occupied 🌿
Thanks dear hope you are safe 🙏🏼
I will keep supporting your channel hoping it will pay off your deserve soo much more 💛❤💚💟
You're the best!💖🙏🏼
Your twisted lips always makes me heartbreak. As if looking myself in the mirror.
Listening now. Also similar case to me you know quitted from job.
You are brave and strong Ruba 🙏
Precious share dear
I'm okay, it's just how things are there's nothing I can do here about it,...
Getting disability benefits will improve my life significantly which I'm still pending on third appeal it's awful 😞
My lip hurt so bad from the Seizure even though it got better every time my lips and how diverts it cracks again and would start bleeding..
I hope you will find peace my friend, not sure how we can beat this, maybe I should befriend my Dystonia and stop calling my body a traitor, maybe it'll like me more and stop being dramatic ugh 😩
@@FullTimePatient37 🙏
❤❤❤❤❤❤❤
Much love and strength to you Ruba ❤️🙏
Thanks my dear friend 💐 join me, you're name is all over my tea (for real, more Ahmad tea for me cuz coffee makes my body manic). 🍒🍓
@@FullTimePatient37 Would love to! 🤩🥰
Opppsieee need to make new tea, yalla sharing is caring, berries or lemon? 🍒🍓🍋
اتمنى لك دوام التوفيق .. لقد عرفتك منذ مدة من خلال موقع كورا و انتِ شخص نادر للغاية ، يتمتع بكل هذه الميزات و القوة ، آمل أن تستمري في التعايش بسلام مع ما تعانين منه و أن تتمكني من نشر قصتك الملهمة حقاً ، سأحاول أن استمر بمتابعتك دائماً .
Keep going 🤍
شكرًا لكم جدًا، ربما يجب أن أطبع هذا الشعار في مكان ما ما دمت في كورا أنا بخير ، صدقًا لم أجد ألطف منكم وأجمل من دعمكم وتقبلكم أتمنى لك تمام الصحة وراحة البال..أنا قوية بكم والحمد لله الذي وفقني لمعرفتكم 🤲🏼🪷
Oh my, the song is misleading 😢 it's breaking my heart but you are so strong 💞 I will continue to support your channel 💙
😢✨🌹 love you so much 🌸
Awh your utterly sweet 🌷 hope you are okay 🙏🏼
@@FullTimePatient37 if you good; I am good, Ruba. and you are the sweetest person that ever lived. Stay safe, stay blessed my dear. All the love in the world ❤️🌸 🤲 أرجوا لك تمام الصحة والعافية يا صديقتي العزيزة رُبى 🌹
@@asadtaif الحمد لله على نعمة الرحمة في قلوب الاصدقاء ☘️ لن تصدق كم ترفعوا من معنوياتي وطاقتي لا استطيع ولن استطيع ابدا ان اوفيكم حقكم في دعمكم المذهل 🙏🏼 حالياً يجب أن اتجه إلى المستشفى حتى يضعوا لي أنبوب تغذية...اتمنى أن لا يكون هناك تعقيدات بيروقراطية أو أن لا ابقى في المستشفى بعد الإجراء الطبي أشعر لانهاك لا يوصف ولا اريد أن يحتجزوني أحاول البقاء بعيدة عن المستشفى قدر المستطاع 🙏🏼 دعواتكم 🙏🏼 قد أغيب لفترة حسب ما يحصل ، لا داعي للقلق 🌷
I know you're going through a hard time,,,am also going the same bt Alhamdullilah am taking my pills and continuing to work bt am not okay,just struggling
I'm grateful to you for putting up a fight and continuing to work, regardless of what condition you have, we can understand how hard life GETS with chronic illness.
I'm grateful Alhamdo Lilah, but I also won't deny my feelings or grieving over my wasted youth, especially that it's affecting my family too with no ability to stop it
As I clarified, I'm advised against work even very simple tasks, as it had very bad reverse effects on my body, and until I'm on a medication that would work to loosen up my body I can't do anything, and probably you know those meds that I have been in for years wear off after a while then would STOP working completely and I would be needing to try something new..
Stay safe my friend 🙏🏼 bless you
نحنا رح نضل ندعمك دائماً ربى، وعن نفسي رح حاول انشر قناتك اكتر على قد مابقدر ♥️... ماتقلقي كلو بينفرج بأذن الله 🌻
الله يخليلي اياكم ويقدرني ارد ولو جزء من دعمكم المذهل 🙏🏼🤍
@@FullTimePatient37
اظن انو صار دورنا لنردلك ولو حتى شوي من فضلك 💗
يا حبيبتي انت ☘️🤍
اني جيت من تطبيق QUORA ربى الله يشافيكي ويعافيكي
شكراً لك صديقي 🌹 الحمد لله رب العالمين على كل حال 🙌🏼
You are amazing 😍
Thank you so much 😀♥️♥️♥️♥️♥️♥️♥️♥️♥️🤍🤍🤍🤍🤍🤍🤍
Oh dear! Never worry about your jobs that are done. Last year I have lost a lot. Including my job. Now I am looking forward to rebuild my life. Looks like my previous 7 years experience in Motion Graphics Design will be useful to step out of trouble... Anyway I just wanted to let you know if you need help for absolutely free just let me know. And wish you all the best 🤩🙏 hope you will find your deserved opportunity anyway 😉
Yeeee you're awesome Lorant 🙏🏼 I'm glad that I did freelancing hoping I can rebuild those skills again but currently all I can do is rest rest rest, it's INSANELY harmful to do even little things but I'm blessed with an amazing audience that is absolutely absolutely wonderful 😊 I wish I have enough money to start doing GIVEAWAYS but currently can't ugh!
Absolutely grateful for having you my friend 🙏🏼 hope you will reach your goals and beyond!
اسف بتمنى اقدر اقدر ادعمك اكتر واكتر 😢🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
ربي يسعدك ويوفقك دنيا ودين 🌿
I'm sorry you had to go thru that.☹
LEAST of my problems now..I don't know how long I can stay like this..I'll post an update post after the meeting 🥺 I'm not well ❤️🩹
It sucks not to work,I have a leg problem and and hearing loss and people do not hired people with disabilities wish they would. Hang stuff buddy.❤️
@@marylonergan8511 I can't do anything I can't answer phone calls or actually handle phones well without dropping them I can't even stack boxes I'm good for nothing 😔
I am praying for you. I trust that Jesus will heal us in heaven one day.
It's hard to complain you know? I feel privileged still, looking at the news the entire world is going crazy so I know I am blessed despite everything, and hopefully one day in our lives we will witness a cure or a miracle for this 🙏🏼🌿
I hope you get MONETIZED QUICKLY 🙏🏼💵
I hope 🤞🥺
Hi. Can I ask how did this sickness start on you? Did you have all spasms starting one day? Or they increased with years? I had a period of around 3 months with jaw spasms. The jaw would protrude forcefully. These symptoms stopped but now my jaw moves/twitches whenever I close my eyes with force.
YES, it took years for it to develop, it was mostly moderate for several years then it got completely out of hand losing my ability to walk, communicate, speak, eat, drive, work , read, etc...
I have a video that I talked about how it started however I will make a new video about how it started to make people more aware of the symptoms as they start.
I hope for the current time this video will provide answers until I can make a video about how Dystonia really started..
You can have remission, or it can stop from spreading or it can spread to full body like my case (praying this is not the case for you,) I really hope you get medical help for this if you are not currently, available for any extra questions 💛
czcams.com/video/hFZVOFARf38/video.html
Thanks for your answers. Have you noticed if the symptoms get worse when you get stressed/anxious?
YES, that is completely linked with my Seizures, but with Dystonia, it provokes tremors not spasticity...I saw alot of people on Facebook groups saying it does increase the spasticity for them, but to me I noticed this only with tremors.
What symptoms does stress worsen for you?
@@FullTimePatient37 it triggers some muscle tension around my jaw so that my jaw starts moving to the left. Sometimes, the muscle tension makes my mouth open somwhat wide.
Also, so much time in front of the computer makes my eyes tired. Somehow, when I close my eyes, the jaw twitches to the left and sometimes forward. Makes my teeth hit
YES I understand you completely, I have my jaw diverted but in my case it's more tight and closed you can see from the video How I'm struggling to get my voice out because Of the spasticity in my face ALSO tongue and vocal chords..
But I have really good NEWS for you, the Migie Syndrome responds very very well with Botox injections but you need to go to a Dr who knows what he's doing, guided by EMG and ultrasound sometimes and the right dosage too!
I have also vocal dystonia, it's very hard to treat with Botox as it may weaken the not weak Swallowing muscles..
ALSO, THERE'S SENSORY TRICKS!
I will look for the webinar and link it for you and I really really hope it'd help 🙏🏼🙏🏼💤
i got full disability (decent amount since i've worked so long) with free insurance in USA, is this an option for you?
Not in USA, believe it or not with Hydrocephalus Epilepsy general Dystonia Chronic Migraines not able to work still not approved and
On my third appeal job is terminating contracts I need money really bad 😞
@@FullTimePatient37 my first application was denied. second one was approved, keep trying. having the financial burden lifted reduced a lot of stress. most people in the US hire a lawyer to get approved...of course how do you hire a lawyer when you have no money?! keep trying!!!!!