Dr Boster, I’ve tried to find a video by you on Subcutaneous IGG tx in MS but I couldn’t find one. Is it ever used? I’m newly eligible for tx with it for an immune deficiency disorder and I’m wondering if it could injure me by turning against my own cells in MS. Thanks.
I had the pump in 2021 after years of pain from spasms. Which led me to being in a wheel chair for 8 years. The pump and my dosage worked so well for me that I have not had one spasm since the pump and no longer use walking aids or a wheel chair. I don’t know what others experiences are with the pump but thought I’d share mine. ❤
Thank you for this video Dr B, it explains so much. I had an ITBP fitted a year ago last July, before that I was taking 120 mg Baclofen orally in divided doses in the course of a day (plus 300 mg Pregabalin /day) just to try and get on top of painful leg spasms and spasticity, I didn't realise when i was taking so much how little was actually being utilized. One of the most striking things after the pump was fitted has been the fact that I no longer fall asleep all over the place, this has improved so much I have been able to study, take exams and qualify as a bookkeeper - hopefully i will be able to get a job now, I've not worked for a few years since nursing became too impractical. It's still a bit of a balancing act to get the dose just right, but it is such a blessing, a life changer. 😀
Is there any other medicine similiar that penetrates in higher dosade than 4% ? Some other evolved oraly delivered metod that penetrates in higher dosade. Like baclofen 2.0?
I was given sample of Gralise. I took two tablets morning, noon & night. The spasticity in my arms, the painful stabbing sensation that hit my brain as I was relaxed and moved my hand to reach something or the freeze up in my face stopped. I didn’t realize that “Gralise” was a mega dose of Baclofen. It did help calm my body, but I noticed how poor my cognition became. Thankfully, I was prescribed my 2nd DMT and the spasticity stopped. Dr. B, thank you for keeping our community informed.😊
Good day. Just enquiring, what exactly is DMT? I suffer from spasticity at the age of 16. I'm currently on baclofen (20mg, 20 mg, 30mg), mydocalm (150mg), and prednisone (5mg).
I am already at the max of oral baclofen my doctor said, I take 20mg every 6 hours, I am nervous about when it stops being sufficient because the other muscle relaxers haven’t worked. I have read really scary stuff about not only being on baclofen but especially being on a baclofen pump! Thanks for your videos!!
Me too except that I don't have Ms I have generalized dystonia..I have spasms even in my throat vocal chords tongue esophagus.. I'm shattered 😢 I have been on so many body relaxants 😢
Thank you for this video, I recently started on Baclofen and your description of how your leg feels is spot on. I didn't realise how much I was using the stiffness as another walking aid, till that first tablet!!
Thanks for touching on this it emphasized where he mentioned it being possible so don't panic if it becomes apparent during test dose.. I need to remember that
My MS is pretty severe - wheelchair bound with mostly spinal lesions - and I have a lot of upper body spasticity. I'd love to learn about the benefits the pump might have on upper body issues, if any.
I have significant hand rigidity-not spasticity per se. How are spasticity and rigidity related? Would Baclofen-or other treatments-help with rigidity? Thank you for your videos and your focus on helping those with MS!
I would absolutely want to learn more about the pumps/process. I have found, living in s Southern climate, that Utoff's and Spasticity are my largest barriers to my quality of life. I hardly notice any positive effects of oral baclofen. Enduring more spinal taps is something I was hoping I'd never have to do though..
I love your posts!! They are so insightful!! I was dx'd with MS Feb of 2023 after an attack of vertigo that had me bed ridden for almost 2 months. I am in Minnesota, but for me the cold is my friend. Anyway, I wanted to share my MS hug story with you. Mine actually is more in my back and wraps around my sides towards my stomach. I have cyclobenzaprine and Gabapentin I can take. However, I also use a TENZ unit and it actually stops my MS hug in its tracks, or close to it. The setting I use is a variable setting of electric pulses. There's quick burst and then some longer burst along with some rapid fire quick burst of electricity sent into my muscles. It seems like it almost "tricks" my system to stop sending messages to tighten up my muscles. I realize it sounds strange, but I just wanted to share and get your thoughts. I use the cyclobenzaprine and gabapentin more to help control my internal tremor/"hum" (basically feels like I'm touching an electric fence for livestock or have my tongue on a 9 volt battery but it is head to toe feeling.) or when my toes feel like the want to bend backwards to the top of my foot at night to help me sleep. I also share your posts with my family to help them learn about what I go through. They told me you're making it fun and easy to learn.😂😂 Thank you so very much for having this channel!!!!
Thank you for this video doc🤙I don't have MS, but after 2 brain aneurysms when I was 30. Due to AVM, I have severe spasticity 💔oddly, the spasticity didn't appear until the Gamma knife started to take effect on my brain. Around 2 years after GK surgery. Roughly. oral baclofen has never worked on my spasticity. Recently, my podiatrist has been discussing a tendon transfer surgery in my foot. My physiatrist has agreed, surgery will work. But believes I still require a baclofen pump. After your video, I now know to ask for a test dose
Like Baclofen- I love me some fat too 😂. Great video Doc - i have lots of spasticity over my course of 27 years with MS- between stretching 🙆♀️ frequently and meds you’ve helped me understand and ease it when it happens. Which is daily😂. Have a good day. #SharingisCaring
As always your explanations are so indepth. I go to the Mandel MS Center in Hartford Ct. My former Dr was Dr. Peter Wade, who had MS for over 45 Years. Tragiclaly Dr.Wade passed away last year. I have attended many dinners that the Drug Companies sponsored with a MS Specialist as a Speaker, so I have always considered myself up to date on all things MSy. But I must say you really are a wonderful resource. I almost attended a Dinner/Function that you were at here in Connecticut or Nearby. I will be on the look out for you speaking in this area.
Cold fronts are painful and I loose control of my legs do to massive tremors. My spasticity make walking a chore. Heat and cold intolerance limits the amount of time thru the year I can be outside.
Thank you so much for this video. I learned more than my doctors have been able to communicate in 10 years😮 I would love it if you made a video about the pump as well🙏
You are explaining me to an absolute T!! I take baclofen I get Botox injections I stretch regularly, and I am getting more paralyzed every single day!😢 I would love a trial of the Baclofen pump to make me feel a little bit more normal in my movement
Thank you for this information. I am in the beginning stages of gleaning info on the pump. I match the criteria for this procedure. My future questions would be about maintenance, how often does it get refilled and what does this process entail? I've had botox for the past year and the relief is spotty. It may work for 2 weeks out of the 12 weeks I am allotted per my insurance. P.S. All of the information provided by you is priceless!
My legs are so weak that baclofen made walking so much harder and i couldnt do my physical therapy. Ive found gabapentin provides me the relief i need but also allows me to engage in the therapy
Thank you Doctor you provide so much useful information about MS. My neurologist I really like her a lot but sometimes she doesn’t understand some of the things I ask her about MS. You are fantastic!
Thank you Dr Boster for this awesomely detailed informative video. It’s surprising how little oral Baclofen actually gets to where you need it! 🔥🔥❤️🔥🔥🔥
Thanks Dr B! I’m definitely interested in learning more about this. How does the pump impact activity? I enjoy swimming a few times a week. Is that still possible with the pump?
Great vid! I recently had a conversation with a guy on my channel about his experience with a baclofen pump and it was interesting to hear the pros and cons, especially if you live in America where it can be a bit of a financial burden 😬 Overall his experience was overwhelmingly positive tho.
Thankyou Dr. Aaron for posting the useful information on baclofen pump. I have had a year of severe chronic spasticity in my leg hamstring area so much that I walk extremely slow with support. The stiffness does not allow me to fold my legs, especially the right one. Tried all possible oral medications discussed in this thread. Not really keen on invasive baclofen pump. Do you suggest any other oral medicine that can help treat spasticity. (I take Dantrolene at the moement)
I am very interested in the baclofen pump, but I can only take 20 mg of oral baclofen a day or I end up with awful nerve pain in my toes. It feels like I have shards of glass in my feet. This happens when I try to increase the dosage. have you ever heard of this before and would disqualify me from getting a pump?
Baclofen was definitely too strong for me with just a low oral dose. I guess I’m really sensitive to certain medications. It is a bummer though because it is the only muscle relaxer I’ve tried that actually loosened my muscles. My problem with it was I kept nodding off almost like I was narcoleptic. Wonder now if a different delivery system would be better? Glad it has helped a lot of you❤
I’m very interested in learning more. Oral baclofen is not very helpful to me at all. I’d love to be able to do stretches but I’m not able to push past the pain to do them. It would be fantastic to be able to physically teach my muscles how to perform again, so that I could come off baclofen in the future. This is definitely a risky procedure that I see worth taking. However I don’t have all of the facts.
Thank you so much for answering so many of my questions! I understand now that I want to go forward with getting a Baclofen pump. I am so ready to have a solution to my painful spasms that does not knock me out. Your videos are such a blessing.
I was on Baclofen for a couple of weeks, and it didn't help spasms at all, but it did make me quite nauseous and leave me puking quite a few times. I stopped taking it after reading on the NIH site that it can flat out kill you if you've been on it long enough and suddenly stop taking it. I stopped taking it immediately, of course.
Thank you doctor. I wish I could attend you but paying a private neurologist here in West Ireland. After attending him for almost 3 years he told me today to goto ms expert in Dublin. I asked why was he seeing me and taking my money.
Hi 👋🏼 I don't have MS but i have general dystonia.. and I often overlap with those videos ( also have hydrocephalus, epilepsy, migraines, etc...) I'm too spastic that that won't even give me any therapy BCZ I'm their worst case 😢 Max on baclophin also taking clonozapam and cannabis with THC 😢😢 nothing..im bed ridden wheelchair bond i used to be somebody
Your video could not be timelier. Tomorrow I travel from Mid-Michigan to Cleveland VA Hospital to be evaluated by the pain team and then on Thursday I’ll have the Baclofen pump test. I’ve taken 120 mg Baclofen (40mg 3x/day) for many years, and 600 mg Lyrica. Both of these high doses are for the MS Hug or Python as I call it. She is with me 24/7/365, (yes, it’s a girl that I named Bertha). Minimum pain is a 4/10, though most of the day it’s higher. We are doing the pump test because my leg spasms are getting worse at night and during the winter. This of course affects my sleep. How long before the test, do you have to stop taking oral Baclofen? I’m concerned about pain from the Python before, during, and after the test.
Three hours after the injection I went for a walk. My calfs weren't as tight and my wife said I didn't seem so wobbly. Five hours afterward I took another walk and only made it about 1/4 the distance, quads seemed weak. The physitrist said PT would come and evaluate me every hour or so. They came once. I wish I could just come and see you Dr. Boster.
I have a story on that. I have MS, my younger sister has MS and takes baclofen pills, and my ex-girlfriend has MS and has a Baclofen pump. At the moment, I do not need Baclofen. My sister does as it does give her a little spasticity. My ex on the other hand needed the pump. When she got the operation, we noticed her legs and toes were moving as if she had no spasticity. Four weeks later her spasticity came back. We thought maybe her body got "used" to it. The nurse who changes her Baclofen noticed that it never changed. Long story short, her Baclofen pump was damaged. Very uncommon, but afterwards she had to get operated to remove the pump and replace it. That's when I noticed she was giving up on trying to get better. This was not a reason why we broke up, just part of it.
My doctor prescribed me baclofen and it did nothing for me...hearing how only 4% goes to the problem....this may explain why. I don't think my spasticity is bad enough to warrant a pump....but at least this video gave me some insight to bring up with my doctor....I have Primary Progressive MS...BTW...if that makes any difference.
Baclofen makes me feel like I can't breathe! That's the main reason I don't choose a pump, also for my own personal reasons but I don't think a Dr should dismiss a patient for not getting a Baclofen pump😮🥺
I had a hemorrhagic stroke and take oral baclofen. It makes me sleepy and really does not remove the spasticity/tone. Neither my neurologist nor my physiatrist has even mentioned the pump?
The person that recommends this is the doctor that recommends medicine for my spasticity I just need help in deciding if I should do it or not I have spasticity in my legs please help will it help me walk again I been going to therapy does stretching help please help me decide thank you so much
My ALS neurologist wants me to get a baclofen pump, but I'm worried about having something the size of a hockey puck right under my skin. What if I fall on it, and rip it open? Yes, I was diagnosed with ALS over twenty years ago, but I'm not dying. I lift weights hardcore, and my profile image was from five years ago. I want to keep lifting and working out, and I'm afraid that I'd have to completely shut down all of my activity. I'm trying to have a complete conversation with my neurologist, but all I get are one sentence responses. I have a lot of questions, and I can't get answers.
I would like to hear your recommendations, tips and sage advice on taking Ampyra AND or taking Nuvigil. In particular when also taking Baclofen, Tizanidine, Gabapentin. Thank You!!!
I'm sorry but what I'm going to ask u is about.a treatment procedure ' called Incontinence: Bladder Leaks and Urgency Treatment It's a 28 minute treatment procedure . Ur sitting on a chair. Feet flat on floor.the chair that u sit on is the treatment chair that's hooked up to a machine.its a machine that does keigels for you at a faster speed & u feel it vibrate. And my question is, I've been feeling more.dizzy And this is the only thing that has changed for me to feel this way Do u think that because i Was.doing this treatment , that it has done something for the my bladder incontinence, leaks & urgency, would affect my nervous system ?
Yes I have a Punp for 6 years. Just had it replaced for battery. I would like as much info as possible. I too much and I'm wet noodle weak. I get some in morning and think I need some more at night which I'm weakest. But is it spasticity at night or just tired. Working on that is tricky I find and my Dr.
#Adderall Thank you for discussing these things. Most everyone else just commends you for your strength and resilience but avoids talking about medical intervention like this because it feels extreme or yucky (that far-away look with the tiny eye squint where they imagine what it would be like and conclude it would not be ideal). My M.S kicked on about 7 years ago, and while I walk with AFO braces and a walker, moving anywhere is a monumental undertaking. This is primarily due to an ever-increasing spasticity in both my legs and left arm. Stretching helps but minimally and I am consuming up to 80MG of baclofen (and increasing) a day. Any attempts to rebuild strength in my muscles are thwarted by it and I feel like I am being perpetually punished, no matter what lifestyle changes I make. Awake. Or. Asleep. I am considering a Baclofen pump but I need to know if anyone has heard any user feedback regarding a noticeable decrease in the effectiveness of the ITBP when the user is ALSO taking Adderall?
Good Morning 🙂 I’m confused 🫤 How do insurance companies deny medication to patients which are prescribed by licensed providers? What the HEY HEY is up with that? 🔥🔥🌄🔥🔥
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Dr Boster, I’ve tried to find a video by you on Subcutaneous IGG tx in MS but I couldn’t find one. Is it ever used? I’m newly eligible for tx with it for an immune deficiency disorder and I’m wondering if it could injure me by turning against my own cells in MS. Thanks.
You should call it: Boster Booster 💜Do u find MS folks r generally very artistic & creatively brilliant?
I had the pump in 2021 after years of pain from spasms. Which led me to being in a wheel chair for 8 years. The pump and my dosage worked so well for me that I have not had one spasm since the pump and no longer use walking aids or a wheel chair. I don’t know what others experiences are with the pump but thought I’d share mine. ❤
I’m so glad you shared that! I have a test trial on Tuesday and I’m nervous about it.
That is awesome.
Thank you for this video Dr B, it explains so much. I had an ITBP fitted a year ago last July, before that I was taking 120 mg Baclofen orally in divided doses in the course of a day (plus 300 mg Pregabalin /day) just to try and get on top of painful leg spasms and spasticity, I didn't realise when i was taking so much how little was actually being utilized. One of the most striking things after the pump was fitted has been the fact that I no longer fall asleep all over the place, this has improved so much I have been able to study, take exams and qualify as a bookkeeper - hopefully i will be able to get a job now, I've not worked for a few years since nursing became too impractical. It's still a bit of a balancing act to get the dose just right, but it is such a blessing, a life changer. 😀
Thanks for the explanation. I didn’t realize that so little of the pill got into my central compartment. 😮
crazy, right!
Is there any other medicine similiar that penetrates in higher dosade than 4% ? Some other evolved oraly delivered metod that penetrates in higher dosade. Like baclofen 2.0?
Hope this effective way of solving spasticity reaches out to those in need.
Thank you Doc for everything you do for the MS community.
Be 🙏 well.
You are very welcome
I was given sample of Gralise. I took two tablets morning, noon & night. The spasticity in my arms, the painful stabbing sensation that hit my brain as I was relaxed and moved my hand to reach something or the freeze up in my face stopped. I didn’t realize that “Gralise” was a mega dose of Baclofen. It did help calm my body, but I noticed how poor my cognition became. Thankfully, I was prescribed my 2nd DMT and the spasticity stopped. Dr. B, thank you for keeping our community informed.😊
Please can u tell me what dmt u are on thank u
Good day. Just enquiring, what exactly is DMT? I suffer from spasticity at the age of 16. I'm currently on baclofen (20mg, 20 mg, 30mg), mydocalm (150mg), and prednisone (5mg).
I am already at the max of oral baclofen my doctor said, I take 20mg every 6 hours, I am nervous about when it stops being sufficient because the other muscle relaxers haven’t worked. I have read really scary stuff about not only being on baclofen but especially being on a baclofen pump! Thanks for your videos!!
Me too except that I don't have Ms I have generalized dystonia..I have spasms even in my throat vocal chords tongue esophagus..
I'm shattered 😢 I have been on so many body relaxants 😢
Thank you for this video, I recently started on Baclofen and your description of how your leg feels is spot on. I didn't realise how much I was using the stiffness as another walking aid, till that first tablet!!
Glad it was helpful!
Thanks for touching on this it emphasized where he mentioned it being possible so don't panic if it becomes apparent during test dose.. I need to remember that
Hi from Israel although the war in Israel I don't miss your video thank you dear doctor hoping to have better time....❤
Thank you for this super clear breakdown of who stretching, the baclofen pill, or the baclofen pump is for!
You bet! I'd love to interview you sometime soon Dr. H!
My MS is pretty severe - wheelchair bound with mostly spinal lesions - and I have a lot of upper body spasticity. I'd love to learn about the benefits the pump might have on upper body issues, if any.
I have significant hand rigidity-not spasticity per se. How are spasticity and rigidity related? Would Baclofen-or other treatments-help with rigidity? Thank you for your videos and your focus on helping those with MS!
I absolutely live you analogies
The one about the sprinkler brought the issue down to an understandable level. Love these videos.😂
I would absolutely want to learn more about the pumps/process. I have found, living in s Southern climate, that Utoff's and Spasticity are my largest barriers to my quality of life. I hardly notice any positive effects of oral baclofen. Enduring more spinal taps is something I was hoping I'd never have to do though..
I love your posts!! They are so insightful!! I was dx'd with MS Feb of 2023 after an attack of vertigo that had me bed ridden for almost 2 months. I am in Minnesota, but for me the cold is my friend. Anyway, I wanted to share my MS hug story with you. Mine actually is more in my back and wraps around my sides towards my stomach. I have cyclobenzaprine and Gabapentin I can take. However, I also use a TENZ unit and it actually stops my MS hug in its tracks, or close to it. The setting I use is a variable setting of electric pulses. There's quick burst and then some longer burst along with some rapid fire quick burst of electricity sent into my muscles. It seems like it almost "tricks" my system to stop sending messages to tighten up my muscles. I realize it sounds strange, but I just wanted to share and get your thoughts.
I use the cyclobenzaprine and gabapentin more to help control my internal tremor/"hum" (basically feels like I'm touching an electric fence for livestock or have my tongue on a 9 volt battery but it is head to toe feeling.) or when my toes feel like the want to bend backwards to the top of my foot at night to help me sleep.
I also share your posts with my family to help them learn about what I go through. They told me you're making it fun and easy to learn.😂😂 Thank you so very much for having this channel!!!!
Thank you for this video doc🤙I don't have MS, but after 2 brain aneurysms when I was 30. Due to AVM, I have severe spasticity 💔oddly, the spasticity didn't appear until the Gamma knife started to take effect on my brain. Around 2 years after GK surgery. Roughly. oral baclofen has never worked on my spasticity. Recently, my podiatrist has been discussing a tendon transfer surgery in my foot. My physiatrist has agreed, surgery will work. But believes I still require a baclofen pump. After your video, I now know to ask for a test dose
Like Baclofen- I love me some fat too 😂. Great video Doc - i have lots of spasticity over my course of 27 years with MS- between stretching 🙆♀️ frequently and meds you’ve helped me understand and ease it when it happens. Which is daily😂.
Have a good day.
#SharingisCaring
As always your explanations are so indepth. I go to the Mandel MS Center in Hartford Ct. My former Dr was Dr. Peter Wade, who had MS for over 45 Years. Tragiclaly Dr.Wade passed away last year.
I have attended many dinners that the Drug Companies sponsored with a MS Specialist as a Speaker, so I have always considered myself up to date on all things MSy. But I must say you really are a wonderful resource. I almost attended a Dinner/Function that you were at here in Connecticut or Nearby. I will be on the look out for you speaking in this area.
Cold fronts are painful and I loose control of my legs do to massive tremors. My spasticity make walking a chore. Heat and cold intolerance limits the amount of time thru the year I can be outside.
Thank you so much for this video. I learned more than my doctors have been able to communicate in 10 years😮 I would love it if you made a video about the pump as well🙏
You are so welcome!
You are explaining me to an absolute T!! I take baclofen I get Botox injections I stretch regularly, and I am getting more paralyzed every single day!😢 I would love a trial of the Baclofen pump to make me feel a little bit more normal in my movement
Thank you for this information. I am in the beginning stages of gleaning info on the pump. I match the criteria for this procedure. My future questions would be about maintenance, how often does it get refilled and what does this process entail? I've had botox for the past year and the relief is spotty. It may work for 2 weeks out of the 12 weeks I am allotted per my insurance. P.S. All of the information provided by you is priceless!
My legs are so weak that baclofen made walking so much harder and i couldnt do my physical therapy. Ive found gabapentin provides me the relief i need but also allows me to engage in the therapy
Thanks, I’m on baclofen now has definitely been a game changer. Thanks again 👍
Great to hear!
Me too!
Thank you Doctor you provide so much useful information about MS. My neurologist I really like her a lot but sometimes she doesn’t understand some of the things I ask her about MS. You are fantastic!
Thank you Dr Boster for this awesomely detailed informative video. It’s surprising how little oral Baclofen actually gets to where you need it! 🔥🔥❤️🔥🔥🔥
You sure have a knack for explaining things. Thank You for the education. 🙏👏
FANTASTIC video. Thank goodness you directed me to the pump years ago. Forever grateful, Deneen (pump girl in Ohio & Michigan)
I love this video! I might show it to a friend who is starting to struggle now along with my family, and physical therapist.
Thanks Dr B! I’m definitely interested in learning more about this.
How does the pump impact activity? I enjoy swimming a few times a week. Is that still possible with the pump?
100%
Thank you for the information my daughter will be getting a pump in a few weeks
Thank you so much and I would be very interested in more content on this subject... As my neuro has been suggesting this...I just have cold feet
I love this!!!
Right on!
Great vid! I recently had a conversation with a guy on my channel about his experience with a baclofen pump and it was interesting to hear the pros and cons, especially if you live in America where it can be a bit of a financial burden 😬
Overall his experience was overwhelmingly positive tho.
Thankyou Dr. Aaron for posting the useful information on baclofen pump. I have had a year of severe chronic spasticity in my leg hamstring area so much that I walk extremely slow with support. The stiffness does not allow me to fold my legs, especially the right one. Tried all possible oral medications discussed in this thread. Not really keen on invasive baclofen pump. Do you suggest any other oral medicine that can help treat spasticity. (I take Dantrolene at the moement)
Thank you, another great video.
I would definitely like to learn more about intrathecal baclofen pumps as I feel this will be in my future :)
I am very interested in the baclofen pump, but I can only take 20 mg of oral baclofen a day or I end up with awful nerve pain in my toes. It feels like I have shards of glass in my feet. This happens when I try to increase the dosage. have you ever heard of this before and would disqualify me from getting a pump?
Yes make more videos about the pump..
I 💯👍🏼
Baclofen was definitely too strong for me with just a low oral dose. I guess I’m really sensitive to certain medications. It is a bummer though because it is the only muscle relaxer I’ve tried that actually loosened my muscles. My problem with it was I kept nodding off almost like I was narcoleptic. Wonder now if a different delivery system would be better? Glad it has helped a lot of you❤
Thank you.
I’m very interested in learning more. Oral baclofen is not very helpful to me at all. I’d love to be able to do stretches but I’m not able to push past the pain to do them. It would be fantastic to be able to physically teach my muscles how to perform again, so that I could come off baclofen in the future. This is definitely a risky procedure that I see worth taking. However I don’t have all of the facts.
Thank you, doctor! I’m considering it and this is very helpful. Asking Neuro at my next visit!
Thank you for that explanation! ❤
Glad it was helpful!
Thank you so much for answering so many of my questions! I understand now that I want to go forward with getting a Baclofen pump. I am so ready to have a solution to my painful spasms that does not knock me out. Your videos are such a blessing.
interested in learning more
Please check out my playlist on Spasticity, lots more info there!
I was on Baclofen for a couple of weeks, and it didn't help spasms at all, but it did make me quite nauseous and leave me puking quite a few times. I stopped taking it after reading on the NIH site that it can flat out kill you if you've been on it long enough and suddenly stop taking it. I stopped taking it immediately, of course.
You’re a great Doctor. Ty for everything. Trying to stay positive.
Thank you doctor. I wish I could attend you but paying a private neurologist here in West Ireland. After attending him for almost 3 years he told me today to goto ms expert in Dublin. I asked why was he seeing me and taking my money.
Is a baclofen pump helpful with tonic spasms? They are so bad I don't know what to do. Thank you for all your work. 🎉
I like your old printing press!
I have a pump it’s changed my life.
Thank you it is very interesting 👍
Hi 👋🏼 I don't have MS but i have general dystonia.. and I often overlap with those videos ( also have hydrocephalus, epilepsy, migraines, etc...)
I'm too spastic that that won't even give me any therapy BCZ I'm their worst case 😢
Max on baclophin also taking clonozapam and cannabis with THC 😢😢 nothing..im bed ridden wheelchair bond i used to be somebody
Your video could not be timelier. Tomorrow I travel from Mid-Michigan to Cleveland VA Hospital to be evaluated by the pain team and then on Thursday I’ll have the Baclofen pump test. I’ve taken 120 mg Baclofen (40mg 3x/day) for many years, and 600 mg Lyrica. Both of these high doses are for the MS Hug or Python as I call it. She is with me 24/7/365, (yes, it’s a girl that I named Bertha). Minimum pain is a 4/10, though most of the day it’s higher. We are doing the pump test because my leg spasms are getting worse at night and during the winter. This of course affects my sleep.
How long before the test, do you have to stop taking oral Baclofen? I’m concerned about pain from the Python before, during, and after the test.
Three hours after the injection I went for a walk. My calfs weren't as tight and my wife said I didn't seem so wobbly. Five hours afterward I took another walk and only made it about 1/4 the distance, quads seemed weak.
The physitrist said PT would come and evaluate me every hour or so. They came once. I wish I could just come and see you Dr. Boster.
I have a story on that. I have MS, my younger sister has MS and takes baclofen pills, and my ex-girlfriend has MS and has a Baclofen pump.
At the moment, I do not need Baclofen. My sister does as it does give her a little spasticity. My ex on the other hand needed the pump. When she got the operation, we noticed her legs and toes were moving as if she had no spasticity.
Four weeks later her spasticity came back. We thought maybe her body got "used" to it. The nurse who changes her Baclofen noticed that it never changed. Long story short, her Baclofen pump was damaged. Very uncommon, but afterwards she had to get operated to remove the pump and replace it.
That's when I noticed she was giving up on trying to get better.
This was not a reason why we broke up, just part of it.
My doctor prescribed me baclofen and it did nothing for me...hearing how only 4% goes to the problem....this may explain why. I don't think my spasticity is bad enough to warrant a pump....but at least this video gave me some insight to bring up with my doctor....I have Primary Progressive MS...BTW...if that makes any difference.
No no to baclofen fully allergic!!! I have been taking tizanidine and also daily dosage of purple see moss has been helping me huge!
Baclofen makes me feel like I can't breathe! That's the main reason I don't choose a pump, also for my own personal reasons but I don't think a Dr should dismiss a patient for not getting a Baclofen pump😮🥺
Thank you Sir. Excellent information. Thumbs up ~John
Glad it was helpful!
I had a hemorrhagic stroke and take oral baclofen. It makes me sleepy and really does not remove the spasticity/tone. Neither my neurologist nor my physiatrist has even mentioned the pump?
The person that recommends this is the doctor that recommends medicine for my spasticity I just need help in deciding if I should do it or not I have spasticity in my legs please help will it help me walk again I been going to therapy does stretching help please help me decide thank you so much
My ALS neurologist wants me to get a baclofen pump, but I'm worried about having something the size of a hockey puck right under my skin. What if I fall on it, and rip it open? Yes, I was diagnosed with ALS over twenty years ago, but I'm not dying. I lift weights hardcore, and my profile image was from five years ago. I want to keep lifting and working out, and I'm afraid that I'd have to completely shut down all of my activity.
I'm trying to have a complete conversation with my neurologist, but all I get are one sentence responses. I have a lot of questions, and I can't get answers.
I would like to hear your recommendations, tips and sage advice on taking Ampyra AND or taking Nuvigil. In particular when also taking Baclofen, Tizanidine, Gabapentin. Thank You!!!
Noted
I am interested because I can’t keep popping baclofen pills like it’s skittles.
I've tried baclofen, however after a while it makes me to loose. I have to stop taking it because I can't move at all.
I tried it years ago and it didn’t work for me.
Nothing works right for me!
Hi im on 70mg of backlofen a day iv just ternd 50 an i have to have blood test every 3 months is backlofen bad for your liver
Still awaiting your reply about Hyperbaric Oxygen Therapy?
I'm sorry but what I'm going to ask u is about.a treatment procedure
' called Incontinence: Bladder
Leaks and Urgency
Treatment
It's a 28 minute treatment procedure .
Ur sitting on a chair. Feet flat on floor.the chair that u sit on is the treatment chair that's hooked up to a machine.its a machine that does keigels for you at a faster speed
& u feel it vibrate.
And my question is, I've been feeling more.dizzy
And this is the only thing that has changed for me to feel this way
Do u think that because i
Was.doing this treatment , that it has done something for the my bladder incontinence, leaks & urgency, would affect my nervous system ?
Yes I have a Punp for 6 years. Just had it replaced for battery. I would like as much info as possible. I too much and I'm wet noodle weak. I get some in morning and think I need some more at night which I'm weakest. But is it spasticity at night or just tired. Working on that is tricky I find and my Dr.
Just recently I’ve noticed that when startled, I jump much harder than I use to. Does this have to do with spasticity or my ms in some way?
I have cerebral palsy. Will this make me 100% better? I can walk, but it's very painful and I'm very Tight with my muscles.
Do you have spasticity or rigidity?
Is it unusual for someone who walks, with out aids, to get a Baclofen pump?
#Adderall
Thank you for discussing these things. Most everyone else just commends you for your strength and resilience but avoids talking about medical intervention like this because it feels extreme or yucky (that far-away look with the tiny eye squint where they imagine what it would be like and conclude it would not be ideal).
My M.S kicked on about 7 years ago, and while I walk with AFO braces and a walker, moving anywhere is a monumental undertaking. This is primarily due to an ever-increasing spasticity in both my legs and left arm. Stretching helps but minimally and I am consuming up to 80MG of baclofen (and increasing) a day. Any attempts to rebuild strength in my muscles are thwarted by it and I feel like I am being perpetually punished, no matter what lifestyle changes I make. Awake. Or. Asleep.
I am considering a Baclofen pump but I need to know if anyone has heard any user feedback regarding a noticeable decrease in the effectiveness of the ITBP when the user is ALSO taking Adderall?
👍🧠👍
What about weed? I use cannabis to relieve spasticity
I'm on max baclophin and I take clonozapam too
I'm on cannabis CBD 30 THC 24..
Nothing..I am a nobody.. rotten in my bed
Baclofen made me pee the bed at night 😔
True it makes urination frequent
True it makes urination frequent
Good Morning 🙂
I’m confused 🫤
How do insurance companies deny medication to patients which are prescribed by licensed providers?
What the HEY HEY is up with that?
🔥🔥🌄🔥🔥