I hope this kid stays strong. I’ve had this disease since I was born. I’m 31 years old now and have had more surgeries than I could remember. Surgeries year after year, month after month. I’m suffering from depression and anxiety due to constant bullying and other things. Please stay strong.
@@kiyaswenson1492 to my knowledge it might not ever go away and that’s okay. I was bullied when I was around your age. It does get better I promise you that. Now that i’m older I get a lot of compliments on my unique voice! People always say they wish they had a voice like mine. The bullying won’t last forever. Just know that you have a unique voice and don’t worry about what other people say about you.
So sorry to hear you had to go thru such hardship for most of your life!! Life can be cruel and others don't realise how damaging it is to the person who is being bullied!! My son was bullied from starting school to ending school. Not because of what you have but because he had a rather larger head than most people (he was born with Chronic Hydrocephalus). Now he is an adult he has "grown" into his head!! But the damage left to his persona from the constant bullying thru school has left life long scars!! He will never be "whole". I wish you happiness in your future life and hope with a lot of loving and acceptance you will thrive!! Much Love and Respect 🌹♥️‼️
Short of building an alter to Dr. Osborne I still am tempted to worship him and his team. He IS a Saint! His wife and family are SO lucky and his mom has to be so proud. I LOVE DR. OSBOURNE!!!!
Hi I'm hope :) I'm 14 years old and I have RRP too, I've 28 operations and today I finally fount out after 12 years of having them , they have gone and I will not need to have surgery. I have hope for him and I wish you and your family that you can be as lucky as I was 💓
: omg i am so happy for u. My little baby boy has the hov on his vocal cords and i am praying it will go away. He is only 11 months and we found out that he has it when he was 6 months old. He had 4 operations since. I am praying it will go away some time. He cant talk ..he doesnt make many sounds and its killing me i cant help him . Best of luck for u x
Daniele Luongo there is no medicine for this. There are some injections which are slowing down the growth but they cannot be take in sich a young age as my baby boy is :(
Marli I’m learning about this disease in hope to spread awareness. All the information from this study will benefit people had it or not yet have it. Can I contact you via email ?
This is deep, Babies can get HPV from their mothers during delivery and from hand-genital contact during diaper changes. I’ve seen babies less than a year old with genitals covered in HPV warts. Other babies have HPV in their airway or vocal cords. The devastated mothers are too embarrassed to tell anyone about their baby’s illness. It breaks my heart.
Hi I'm Alex I'm 12 years old and I have had 5 to 6 surgery's and all I can do right now is wisper....I'm going to have to go see doctor Best and I hope that I can get better some day...if you have it keep fighting!!you cant stop it but you can keep being unique!!👍😁
I was born with the rare disease RRP. I had my first surgery at 5 years old. Its stressful as you get older dealing with insurance and medical cost, having to explain to people why my voice is raspy. I'm 33 years old now. I've decided to have the surgery done once a year because of the fear of loosing my voice from having too may surgeries. One major surgery I've had caused me to loose my voice for three months. Jagger, Always Remain Strong, Always.
DamnImWounded Thank you so much for posting... I would like to know if you have any recommendations as in doet wise or any helping tips ....my sister was told her son might not make it past 20 which is devastating to hear for me and that anguish ia with me always and i worry so much about him with this being such a rare diases as they call it I would love to get all the i formation I can to help them.. Thank you kindly..💟✨
i broke my neck 12 years ago and required two surgeries that went through the front of my neck to access the break. i lost my voice for a few weeks afterwards, but that is nothing compared to what that poor kid had. i hope he is doing well and infection free - no child should have to go through that l.
Hey I’m Eric I’m currently 19 and have had a number of surgeries since I was born, you can get through it man, please don’t pay attention to what people say about your voice, I did and I’m insecure about it now
What a cutie Jagger is!! He was prepared for this because his parents have been able to communicate properly and explain every little thing to him. What I found is that he is not a precocious, spoiled brat!! He was so level headed and wise beyond his words!! Respect to the parents 🌹♥️‼️ Respect to the Doctor's 🌹♥️‼️
What an adorable little boy! Those great big eyes! I can't imagine how difficult this is for his mom and dad. I am so happy that he is able to get help. OHNI is an amazing clinic.
Hi.. myself Amol Bhawari. Even I'm suffering from this rare disease called recurrent laryngeal pappiloma. I have undergone over 50+ surgeries. I know the pain which you are facing. Nightmare to face everyone just because having low voice?. I feel lonely in big world. Here I'm creating one WhatsApp group where I am adding people who is having rrp. So that if any medicine if invented for this we all will get to know. Here is the WhatsApp link of my group. Please join the group. chat.whatsapp.com/EeTnyhjFKA5JpGQ31Pyu2r Thanks you
It hurts my heart so bad that children have to go through any surgeries. Thank god for surgeon's like these. As a mom and women to women , any childs cry feels like my own childs cry.😪🙏😇
Hi im erica. I was born with laryngeal papilloma. I remember having breathing complications and non stop hospital visits, surgeries and laser procedures in my nose.. but before i turned 7 it just disappeared.. now as an adult i just found out i am in a high risk of human papilloma virus and turn into cervical cancer with the warts growing inside my cervix
i have this! i’ve never heard anyone else with it so it’s nice to see what i sound like to other people. my voice is still bad after countless surgeries since i was 3. it’s been getting progressively worse and now i can only whisper. looking at getting another operation soon. i’m 18 and the growth has slowed down dramatically but they’re still growing unfortunately
Oh and how could I not watch what happened to the little 5 year old who'd had 10 surgeries already for the recurrent papillomatosis affecting his breathing and voice?? Bring on one more OHNI case file I MUST watch today! Can't wait to see how this works out!!
I got so much respect and love for U and Dr Hamilton. I think you guys need to be promoted more in the Black community. More than Rappers Entertainers and Athletes. It s far easy for black kids to become Doctors than Entertainers and professional athletes. Keep up the good work. I m going to do my part to show these inner city kids what they can become. And it's far easier to be a dr than Lebron James. God Bless you guys.
This young is a rock star. This video was when he was 5. He is 10 now. I hope he is doing well. I’ve seen 1 of Dr.Osborn do a surgery on a woman years ago. This Dr. and his group of Dr.’s are amazing God Bless them all.❤️😇🙏
Hi.. myself Amol Bhawari. Even I'm suffering from this rare disease called recurrent laryngeal pappiloma. I have undergone over 50+ surgeries. I know the pain which you are facing. Nightmare to face everyone just because having low voice?. I feel lonely in big world. Here I'm creating one WhatsApp group where I am adding people who is having rrp. So that if any medicine if invented for this we all will get to know. Here is the WhatsApp link of my group. Please join the group. chat.whatsapp.com/EeTnyhjFKA5JpGQ31Pyu2r Thanks you
That’s exactly how I sounded when I was about his age or younger. I’m now 15 I’ve had 1 surgery and my voice is kinda hoarse but I’m lucky that it’s not bad at all.
Jagger I LOVE U KIDDO! I think ur The STRONGEST SUPER HERO EVER!!!!! WOW ur so Awesome and 😎 Ur stronger Than all adults! I pray for u and ur family I pray Ur throat gets healed PERMANENTLY! UR A SUPER STAR BUDDY! GOOD LUCK!
I was born with this I am 20 years old now and still have this it never goes away and its something you just learn to live with lifes not hard it's just annoying trying to explain to people about why you sound like this
Hi Zack, what other symptoms did you experience other than a hoarse voice and will you share how does this happen and how is it diagnosed? Thank you. My son occasionally gets soar throats that are extremely painful with the most recent occurrence causing him loss of appetite and to miss school quiet a bit. The pediatrician and ENT said his tonsils were fine and he always test negative for strep. Needless to say, I left another appointment feeling perplexed because the only answer I get is “it’s viral” and “it’s hard to distinguish what virus”. I’m thankful for this video and your comment so that I can at least mention and suggest further test other than streptococcus!!
Hi, I am April a mother of a five- year old boy who has a papilloma same as this kid. He has been suffering this for two years already. I'm asking for your help about his matter. I from Mandaue, Cebu , Philippines.
Wonderful video...however, I did not hear any details of your path forward...how it would differ from past surgery strategy...I saw a door marked radiology but nothing further was said...I hope to see some followup strategy discussion
Are treatments for the underlying virus that is causing the growths being worked on? I.e. antiviral medicines, a (mRNA) vaccine or artificial antibodies to help the body to get rid of the infection?
I am forced to wonder why his Children's Hospital doctors did not put him on a vigorous and aggressive course of anti-viral therapy. Was it because of his age? I'm not certain if there are age restrictions. I had HPV when I was much younger and I was put on a course of these meds and after a few years of these drugs, not only am I no longer shedding the virus, but there is no longer any traces of it in my system. Please, does anyone who watched this video know the reason why he was not put on these meds? In an aside, how could such a young child GET the papilloma virus in his throat? I'm dying to know...
Awe! Give the kid a popsicle for his sore throat! 😭💔 (I have never had this surgery, I don’t know if that is actually allowed or not. But when I had my tonsils removed at 21, I had more popsicles for my throat than my entire childhood combined) 🤣😝👌🏼
Doctor Hamilton,,,doctor Osbourne,,,dio , Gesù Cristo vi benedica sempre,,,a voi ,al vostro staff medico ,,,tutti ,siete degli angeli ,Engel 😇😇😇😇😇😇😇🌠🌠🌠🌠🌠🌠🌠🌠🌠😇😇😇😇😇😇😇😇😇😇🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🌠🌠🌠🌠🌠🌠🌠🌠🌠😇😇😇😇😇😇😇😇😇😇😇
I have to say I REALLY do not like this anxiety producing background music you have which is so loud it makes it impossible to hear your voice! Please pick something else!
I hope this kid stays strong. I’ve had this disease since I was born. I’m 31 years old now and have had more surgeries than I could remember. Surgeries year after year, month after month. I’m suffering from depression and anxiety due to constant bullying and other things. Please stay strong.
Hey I’m a 13 year old girl and I have this condition. I was wondering if it last for a long time. I hate getting bullied for it
@@kiyaswenson1492 to my knowledge it might not ever go away and that’s okay. I was bullied when I was around your age. It does get better I promise you that. Now that i’m older I get a lot of compliments on my unique voice! People always say they wish they had a voice like mine. The bullying won’t last forever. Just know that you have a unique voice and don’t worry about what other people say about you.
You as well my friend. So very sorry that some people choose to be horrible to others.
@@mantia39 It’s okay because there are people out there with good hearts and that outweighs the people with bad hearts.
So sorry to hear you had to go thru such hardship for most of your life!! Life can be cruel and others don't realise how damaging it is to the person who is being bullied!! My son was bullied from starting school to ending school. Not because of what you have but because he had a rather larger head than most people (he was born with Chronic Hydrocephalus). Now he is an adult he has "grown" into his head!! But the damage left to his persona from the constant bullying thru school has left life long scars!! He will never be "whole".
I wish you happiness in your future life and hope with a lot of loving and acceptance you will thrive!!
Much Love and Respect 🌹♥️‼️
Short of building an alter to Dr. Osborne I still am tempted to worship him and his team. He IS a Saint!
His wife and family are SO lucky and his mom has to be so proud. I LOVE DR. OSBOURNE!!!!
That part when he said "one more hug".. that got me. I was so happy to hear his voice.
I would LOVE to see you folks @ OHNI have a weekly television series on TLC. It is MORE than warranted!
❤️🧡💛💚💙💜
I agree 100%!!
Hi I'm hope :) I'm 14 years old and I have RRP too, I've 28 operations and today I finally fount out after 12 years of having them , they have gone and I will not need to have surgery. I have hope for him and I wish you and your family that you can be as lucky as I was 💓
: omg i am so happy for u. My little baby boy has the hov on his vocal cords and i am praying it will go away. He is only 11 months and we found out that he has it when he was 6 months old. He had 4 operations since. I am praying it will go away some time. He cant talk ..he doesnt make many sounds and its killing me i cant help him . Best of luck for u x
Daniele Luongo there is no medicine for this. There are some injections which are slowing down the growth but they cannot be take in sich a young age as my baby boy is :(
Daniele Luongo thats would b ideal.but there is not much we can do :(
Marli I’m learning about this disease in hope to spread awareness. All the information from this study will benefit people had it or not yet have it. Can I contact you via email ?
I still have it and im 12 ive had it since i was two i just had my 86th surgery May 17th. And it sucks.
This is deep, Babies can get HPV from their mothers during delivery and from hand-genital contact during diaper changes. I’ve seen babies less than a year old with genitals covered in HPV warts. Other babies have HPV in their airway or vocal cords. The devastated mothers are too embarrassed to tell anyone about their baby’s illness. It breaks my heart.
Thank you for explaining this. I was wondering.
often, a C-section is performed to prevent the baby from being infected during delivery.
It does start with the male
Hi I'm Alex I'm 12 years old and I have had 5 to 6 surgery's and all I can do right now is wisper....I'm going to have to go see doctor Best and I hope that I can get better some day...if you have it keep fighting!!you cant stop it but you can keep being unique!!👍😁
I was born with the rare disease RRP. I had my first surgery at 5 years old. Its stressful as you get older dealing with insurance and medical cost, having to explain to people why my voice is raspy. I'm 33 years old now. I've decided to have the surgery done once a year because of the fear of loosing my voice from having too may surgeries. One major surgery I've had caused me to loose my voice for three months. Jagger, Always Remain Strong, Always.
DamnImWounded
Thank you so much for posting...
I would like to know if you have any recommendations as in doet wise or any helping tips ....my sister was told her son might not make it past 20 which is devastating to hear for me and that anguish ia with me always and i worry so much about him with this being such a rare diases as they call it I would love to get all the i formation I can to help them..
Thank you kindly..💟✨
i broke my neck 12 years ago and required two surgeries that went through the front of my neck to access the break. i lost my voice for a few weeks afterwards, but that is nothing compared to what that poor kid had. i hope he is doing well and infection free - no child should have to go through that l.
Hey I’m Eric I’m currently 19 and have had a number of surgeries since I was born, you can get through it man, please don’t pay attention to what people say about your voice, I did and I’m insecure about it now
What a cutie Jagger is!! He was prepared for this because his parents have been able to communicate properly and explain every little thing to him. What I found is that he is not a precocious, spoiled brat!! He was so level headed and wise beyond his words!!
Respect to the parents 🌹♥️‼️
Respect to the Doctor's 🌹♥️‼️
What an adorable little boy! Those great big eyes! I can't imagine how difficult this is for his mom and dad. I am so happy that he is able to get help. OHNI is an amazing clinic.
hh
PRAYING FOR HEALING, COMFORT AND STRENGTH IN THE NAME OF JESUS, AMEN
Hi.. myself Amol Bhawari.
Even I'm suffering from this rare disease called recurrent laryngeal pappiloma. I have undergone over 50+ surgeries. I know the pain which you are facing. Nightmare to face everyone just because having low voice?. I feel lonely in big world. Here I'm creating one WhatsApp group where I am adding people who is having rrp. So that if any medicine if invented for this we all will get to know.
Here is the WhatsApp link of my group. Please join the group.
chat.whatsapp.com/EeTnyhjFKA5JpGQ31Pyu2r
Thanks you
He has such a deep voice. Great kid.
It hurts my heart so bad that children have to go through any surgeries. Thank god for surgeon's like these. As a mom and women to women , any childs cry feels like my own childs cry.😪🙏😇
Hi im erica. I was born with laryngeal papilloma. I remember having breathing complications and non stop hospital visits, surgeries and laser procedures in my nose.. but before i turned 7 it just disappeared.. now as an adult i just found out i am in a high risk of human papilloma virus and turn into cervical cancer with the warts growing inside my cervix
Erica cueto there is a vaccine for HPV A series of 3 shots are given. Talk to a nurse in your local public health unit or family Dr. Good luck.
Thank You God for this wonderful team and a successful surgery. Continued prayers and blessings for Jagger and family
God bless that little boy. That is not an easy operation.lots of pain. God bless those doctors and nurses and surgeons.
Thank GOD you and your team are caring for that's what a patient needs.
I cried because I felt bad for him then I cried because I was soooo happy they could help him
Every morning I watch one of these , it gives me strength to go through my day😊
Poor boy !!! I pray for you you moved me a lot.
This kid is so brave.
i have this! i’ve never heard anyone else with it so it’s nice to see what i sound like to other people. my voice is still bad after countless surgeries since i was 3. it’s been getting progressively worse and now i can only whisper. looking at getting another operation soon. i’m 18 and the growth has slowed down dramatically but they’re still growing unfortunately
Make an appointment with Dr. Osborne, Abby Lovett.
But whatever you do, I hope you get better, and eventually cured.
I believe in miracles!!!
Hiii I have the same condition I was just wondering if it gets better
I was happy to hear his voice!!!!
Oh and how could I not watch what happened to the little 5 year old who'd had 10 surgeries already for the recurrent papillomatosis affecting his breathing and voice?? Bring on one more OHNI case file I MUST watch today! Can't wait to see how this works out!!
God bless you !!!!!! I’ll be praying for you
Aww bless his heart, he's adorable!
Thank you Doctors🙏
His momma would never be able to deny this little man....he certainly favors her! Bless his heart. I sense....tension...between mom and dad.
I got so much respect and love for U and Dr Hamilton. I think you guys need to be promoted more in the Black community. More than Rappers Entertainers and Athletes. It s far easy for black kids to become Doctors than Entertainers and professional athletes. Keep up the good work. I m going to do my part to show these inner city kids what they can become. And it's far easier to be a dr than Lebron James. God Bless you guys.
Blessings to you all
wow this is amazing
This young is a rock star. This video was when he was 5. He is 10 now. I hope he is doing well. I’ve seen 1 of Dr.Osborn do a surgery on a woman years ago. This Dr. and his group of Dr.’s are amazing God Bless them all.❤️😇🙏
May God bless you all!
GREAT JOB ALL!!!
Inspiring story.
Hi.. myself Amol Bhawari.
Even I'm suffering from this rare disease called recurrent laryngeal pappiloma. I have undergone over 50+ surgeries. I know the pain which you are facing. Nightmare to face everyone just because having low voice?. I feel lonely in big world. Here I'm creating one WhatsApp group where I am adding people who is having rrp. So that if any medicine if invented for this we all will get to know.
Here is the WhatsApp link of my group. Please join the group.
chat.whatsapp.com/EeTnyhjFKA5JpGQ31Pyu2r
Thanks you
Very good doctor and very good looking
Amazing. Ty for sharing 💜
You are all amazing at Osborn
That a BEAUTIFUL Boy best of luck . Fantastic Surgeons Life savers .
You are a super hero little buddy!🦁❤️
I knew someone who lived and later died with this problem. It was a sad loss of a young man.
Time when the little child say to his mom
One more hug
That’s exactly how I sounded when I was about his age or younger. I’m now 15 I’ve had 1 surgery and my voice is kinda hoarse but I’m lucky that it’s not bad at all.
OHNI ♥️keep up the good fight 🙏
That was fantastic 👏
Jagger I LOVE U KIDDO! I think ur The STRONGEST SUPER HERO EVER!!!!! WOW ur so Awesome and 😎 Ur stronger Than all adults! I pray for u and ur family I pray Ur throat gets healed PERMANENTLY! UR A SUPER STAR BUDDY! GOOD LUCK!
Is there an update on Jagger? Would love to hear how he is doing. My prayers are with Jagger and his family.
susan gort Yes I would love to hear back and know how baby Jagger is doing...
I had that disease too!:( I had 22 surgeries:(
Lieske Lindquist did yours eventually go? or are you still having them?
Praise God
Good luck little boy 👍
what did they do different to the other surgeons? how did he get the virus in the first place?
What a God Sent
Love u little boy
How did this surgery differ from the boy's previous surgeries? What was the treatment plan after his surgery?
Let us know..or doesn't work..
Just turning
you0ne of gods miracheals thanks for your increadivill talents
I was born with this I am 20 years old now and still have this it never goes away and its something you just learn to live with lifes not hard it's just annoying trying to explain to people about why you sound like this
Omg finally I met somebody who knows the struggle; I hate when I had to explain this condition to people.
Hi Zack, what other symptoms did you experience other than a hoarse voice and will you share how does this happen and how is it diagnosed? Thank you.
My son occasionally gets soar throats that are extremely painful with the most recent occurrence causing him loss of appetite and to miss school quiet a bit. The pediatrician and ENT said his tonsils were fine and he always test negative for strep. Needless to say, I left another appointment feeling perplexed because the only answer I get is “it’s viral” and “it’s hard to distinguish what virus”. I’m thankful for this video and your comment so that I can at least mention and suggest further test other than streptococcus!!
Hi, I am April a mother of a five- year old boy who has a papilloma same as this kid. He has been suffering this for two years already. I'm asking for your help about his matter. I from Mandaue, Cebu , Philippines.
Oh what a brave young boy 🥰🥰🥰
Wonderful video...however, I did not hear any details of your path forward...how it would differ from past surgery strategy...I saw a door marked radiology but nothing further was said...I hope to see some followup strategy discussion
Update please
Wowww smh...someone had to pass that on to him! Praying for healing speedy recoveries in the future!
No cure for hpv, so what are you doing differently? What is this "Hit this hard" procedure that still will mean more procedures ahead?
What did they do any different than the others did? Seems like they did the same procedure as he’d had 10 times before.
Get better.
Are treatments for the underlying virus that is causing the growths being worked on? I.e. antiviral medicines, a (mRNA) vaccine or artificial antibodies to help the body to get rid of the infection?
wouldn't radio therapy and chemo be part of the modality at this point?
There is no drug therapy against the HPV or to boost his immune system concurrent to sx?
How is the child doing now?
My son had 6 surgeries, but his voice is not back up to know he's 8years he still whisper, what can I do to make him speak again I feel sorry for him
Did Jagger contract it during birth?
Time to start on throat nutrients, minerals, vitamins, oysters, seafood, NO MORE SURGERIES.
I am forced to wonder why his Children's Hospital doctors did not put him on a vigorous and aggressive course of anti-viral therapy. Was it because of his age? I'm not certain if there are age restrictions.
I had HPV when I was much younger and I was put on a course of these meds and after a few years of these drugs, not only am I no longer shedding the virus, but there is no longer any traces of it in my system. Please, does anyone who watched this video know the reason why he was not put on these meds?
In an aside, how could such a young child GET the papilloma virus in his throat? I'm dying to know...
Several people in this comment section said they were born with it. So-it's transferred from mother to child.
Immunotherapy destroys kidneys and heart he’s too young to attempt that.
It's usually acquired during newborn delivery, from mom's vaginal epithelium on the way out.
Would the HPV vaccine not work in the larynx or active fase of the diseas?
He is a cute little fellow
I got mine when i was 2
J ai une enfant de 6 ans ayant un papilomatose laryngie .faite 11 siences épluchage dont 5 par laser avec trachniotomie
Does/did this virus come from breastfeeding your infant? How did Jagger get the virus? Please update us on Jagger.
There are 2 ways kid can catch HPV. If the mother have it during pregnancy it can infect the fetus . Or sexual abuse .
@@user-ed3kt4co7t false
How does a little boy get HPV?
Hi I am 11 I had my first surgery at 3 and have had eight since.thid SUCKS
Can t laser be enough to burn the warts???
A laser could be used, but only a special tecnic because there is the danger for webbing.
Awe! Give the kid a popsicle for his sore throat! 😭💔 (I have never had this surgery, I don’t know if that is actually allowed or not. But when I had my tonsils removed at 21, I had more popsicles for my throat than my entire childhood combined) 🤣😝👌🏼
Update?
sweet darling boy
Can he get the HPV vaccine? Can he be put on antiviral medication?
The same question occured to me as well.
Use super sprout powder, Blessed Be.
Iva had 86! 86!
Try to strenghten his immune system too. Homeopathy helps a lot.
Doctor Hamilton,,,doctor Osbourne,,,dio , Gesù Cristo vi benedica sempre,,,a voi ,al vostro staff medico ,,,tutti ,siete degli angeli ,Engel 😇😇😇😇😇😇😇🌠🌠🌠🌠🌠🌠🌠🌠🌠😇😇😇😇😇😇😇😇😇😇🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🌠🌠🌠🌠🌠🌠🌠🌠🌠😇😇😇😇😇😇😇😇😇😇😇
you guys got his occupation wrong! should say "occupation: brave cutie pie"
Hello
I have to say I REALLY do not like this anxiety producing background music you have which is so loud it makes it impossible to hear your voice! Please pick something else!
The doctors should have stopped and considered different options.
⛅️⛅️
I hope jager is still tumor free
How about antiviral drugs, sure they must have tried!
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