I really like your videos glad I found you brother , long story short , I’ve been suffering for over 15 years with back injury , ended up having a 3 level 360 fusion lumber surgery, a few months in being bedridden the level directly above my fusion started killing me , what’s CRAZIER is my neck / back of skull started KILLING ME …. The type of pain that made me shake uncontrollably, very dark place for YEARS !!! Im doing much better FINALLY but still suffer from debilitating pain in the places I described , doctor said I had “ instability in my neck as well wanted to fuse it too … I said ABSOLUTELY NOT !!! Im trying to deal with it with my mind , things like what you describe , sometimes I think these doctor’s diagnosis is just bullshit and I can overcome this with my mind , there is no doubt that I’ve caused issues in my nervous system , I really think I need to do things like you describe to pull out of this nightmare! My problem is I have doubt , I’m working on that , glad I found your videos brother , thank you for your service to humanity 🙏
But I've been in fight flight for so long...trying to do things that used to bring me joy now give me anxiety, like my brain doesn't see them as safe to "let go". And oof I'd be mad at the nurse too lol.
It's completely understandable to feel that way after being in "fight-flight" mode for an extended period. Your brain is adjusting, and it takes time. Be patient with yourself. 😊❤️ And yes, sometimes a little humor helps, like being mad at the nurse! 😄👍
Thank you so much! 🙌 I'm glad you find the information helpful. Sometimes, the simplest things can make a big difference. Keep taking positive steps on your journey! ❤️😊
Can you really heal from mecfs? I’m only 24 and my life has been turned upside down with Covid that turned into developing mecfs (8 month in) please tell me that there is hope
You say that it can’t kill you, and will only kill you if you give up but there are records of people dying from ME/CFS, are you saying it’s because they gave up? Have you heard of Merryn Crofts and her story? Her family says she never ever gave up hope but she still died…
@@cfsrecovery I honestly have no idea, but she’s not the only one who’s died. I feel like the majority of people with MECFS have underlying issues of some kind since this nervous system sensitization stuff is such a large spectrum and there can be so many contributing factors to one developing MECFS. I just feel like it’s a bit too broad of a statement to say it can’t kill you at all when many people have died from it and you’ll never be able to personally know whether or not they had other issues.
@@cfsrecovery I also feel like it’s disrespectful and could be quite upsetting to families of those who have died to say that you can’t die from MECFS. Like imagine hearing that after losing your child to it…
I have been diagnosed with a vestibular condition and pppd… 3 years on… my sensations have always been so focused around my ears mainly the right and depersonalisation… don’t like being in a car… dizziness, movement, never feeling safe, I know only way out is to do my best to ignore the sensations and symptoms rather then reacting to them - it’s all my neural pathways mis -firing… now I know what I need to do I feel like i am not getting any better if anything worst… it’s like the more I know the harder it is….
I was wondering about this, I personally never heard anyone died cuz I didn’t research but I could imagine. When I’m at worst place i don’t have energy to eat nor getup, without support it can possibly kill me. I take all good info from videos but at the end pacing is the main way for recovery.
I wish i could sit for 10-15 Minutes. Not the symptoms are my Problem, only one specific one enrrgy/exhausting. If i would give out all the energy to sit 10 Minutes, i can cancel washroom the next Days. We often talk here about heart rate and some sort of symptoms, that is all fine, but the hardest Part with having me!/cfs are not that symptoms it is that energy leak you have, the exhausting, the fatigue that is the really Main problem, and if you have only a certain Mount of energy you cannot all give up for sitting 10 Minutes. So how to deal with that, because that is Main Problem the energy. If it would only the symptoms i could be pretty active on the couch or bed or in the house. I do not have so many symptoms and buzzing only a little but without energy there is nothing you can do no matter if you have other symptoms or Not, if battery is empty than it is empty!
I’m in a few me/CFS support groups and one called severe me/CFS. They all say aggressive rest is the only way to get better. Is that true ? Because it sounds like you’re saying to push through but for some people that’s what caused them to be severe..Pushing through that one time and now months to years in a severe state. I personally kept pushing little by little when Ive rested for so long and have only gotten worse. Help :(
And as you was knocked out for a week how did you then go to the toilet? That is what i really wanted to know, i hope you can answer it, because it would mean a lot to me.
@@cfsrecovery Yeah understand, but even then your body had to do something right? Why did you Not crash Further? Because my body would do. If i am in an AP and push myself to the bathroom i would crash more and more
I agree Rachel. There is no cure for ME. Millions missing campaign proves this. If it was that easy to cure then millions wouldn't be sick. This program sounds like it is mind over matter when it has been proven that there are biological changes. When you want to sleep and can't or your heart is beating so fast. Even when I push myself to get up and try I feel like crap. I am just suppose to say hey body be better 😂😂😂 Right like haven't tried that.
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You used the exact words I've felt and described for many years.
Glad it was relatable!
I really like your videos glad I found you brother , long story short , I’ve been suffering for over 15 years with back injury , ended up having a 3 level 360 fusion lumber surgery, a few months in being bedridden the level directly above my fusion started killing me , what’s CRAZIER is my neck / back of skull started KILLING ME …. The type of pain that made me shake uncontrollably, very dark place for YEARS !!! Im doing much better FINALLY but still suffer from debilitating pain in the places I described , doctor said I had “ instability in my neck as well wanted to fuse it too … I said ABSOLUTELY NOT !!! Im trying to deal with it with my mind , things like what you describe , sometimes I think these doctor’s diagnosis is just bullshit and I can overcome this with my mind , there is no doubt that I’ve caused issues in my nervous system , I really think I need to do things like you describe to pull out of this nightmare! My problem is I have doubt , I’m working on that , glad I found your videos brother , thank you for your service to humanity 🙏
But I've been in fight flight for so long...trying to do things that used to bring me joy now give me anxiety, like my brain doesn't see them as safe to "let go".
And oof I'd be mad at the nurse too lol.
It's completely understandable to feel that way after being in "fight-flight" mode for an extended period. Your brain is adjusting, and it takes time. Be patient with yourself. 😊❤️ And yes, sometimes a little humor helps, like being mad at the nurse! 😄👍
I love what your doing Miguel! This stuff sounds so simple but it isn’t! it’s so helpful to listen to you! ❤
Thank you so much! 🙌 I'm glad you find the information helpful. Sometimes, the simplest things can make a big difference. Keep taking positive steps on your journey! ❤️😊
What you said about patience here was gold!
Glad it resonated!
Amazing analogy Miguel!
Glad you think so! Thank you so much ❤️😊
Thank you. You are really helping people.
Thank you so much! 😊❤️
I have CFS & POTS. It’s been very difficult.
Please check this link. I hope it helps!
czcams.com/video/cXN-tXWUYvU/video.htmlsi=GuILvaWkOsxss7Qd
Thank you for giving me hope.
You are so welcome 😊
Can you really heal from mecfs? I’m only 24 and my life has been turned upside down with Covid that turned into developing mecfs (8 month in) please tell me that there is hope
Absolutely you can. Listen to the recovery stories in my channel brother
You say that it can’t kill you, and will only kill you if you give up but there are records of people dying from ME/CFS, are you saying it’s because they gave up? Have you heard of Merryn Crofts and her story? Her family says she never ever gave up hope but she still died…
RIP to Merryn 🙏🏼 but there must have been some other underlying issues
@@cfsrecovery I honestly have no idea, but she’s not the only one who’s died. I feel like the majority of people with MECFS have underlying issues of some kind since this nervous system sensitization stuff is such a large spectrum and there can be so many contributing factors to one developing MECFS. I just feel like it’s a bit too broad of a statement to say it can’t kill you at all when many people have died from it and you’ll never be able to personally know whether or not they had other issues.
@@cfsrecovery I also feel like it’s disrespectful and could be quite upsetting to families of those who have died to say that you can’t die from MECFS. Like imagine hearing that after losing your child to it…
I have been diagnosed with a vestibular condition and pppd… 3 years on… my sensations have always been so focused around my ears mainly the right and depersonalisation… don’t like being in a car… dizziness, movement, never feeling safe, I know only way out is to do my best to ignore the sensations and symptoms rather then reacting to them - it’s all my neural pathways mis -firing… now I know what I need to do I feel like i am not getting any better if anything worst… it’s like the more I know the harder it is….
I was wondering about this, I personally never heard anyone died cuz I didn’t research but I could imagine. When I’m at worst place i don’t have energy to eat nor getup, without support it can possibly kill me. I take all good info from videos but at the end pacing is the main way for recovery.
Thank you for these simple explanations. I think the pop-ups for video links are missing... ☝️😉
Thanks for the heads up. Will check and add
I wish i could sit for 10-15 Minutes. Not the symptoms are my Problem, only one specific one enrrgy/exhausting. If i would give out all the energy to sit 10 Minutes, i can cancel washroom the next Days. We often talk here about heart rate and some sort of symptoms, that is all fine, but the hardest Part with having me!/cfs are not that symptoms it is that energy leak you have, the exhausting, the fatigue that is the really Main problem, and if you have only a certain Mount of energy you cannot all give up for sitting 10 Minutes. So how to deal with that, because that is Main Problem the energy. If it would only the symptoms i could be pretty active on the couch or bed or in the house. I do not have so many symptoms and buzzing only a little but without energy there is nothing you can do no matter if you have other symptoms or Not, if battery is empty than it is empty!
Thank you for sharing! 😊
I’m in a few me/CFS support groups and one called severe me/CFS. They all say aggressive rest is the only way to get better. Is that true ? Because it sounds like you’re saying to push through but for some people that’s what caused them to be severe..Pushing through that one time and now months to years in a severe state. I personally kept pushing little by little when Ive rested for so long and have only gotten worse.
Help :(
Please check this link. I hope it helps! czcams.com/video/L6cQtNs9lbI/video.htmlsi=FwuvYjS_OgNSx7pg
And as you was knocked out for a week how did you then go to the toilet? That is what i really wanted to know, i hope you can answer it, because it would mean a lot to me.
Family members helped me 😊
@@cfsrecovery Yeah understand, but even then your body had to do something right? Why did you Not crash Further? Because my body would do. If i am in an AP and push myself to the bathroom i would crash more and more
Every thing you say is good! It’s true! But it’s not ME what you talk about.
I hope you find something that works for you Rachele!
I agree Rachel. There is no cure for ME. Millions missing campaign proves this. If it was that easy to cure then millions wouldn't be sick. This program sounds like it is mind over matter when it has been proven that there are biological changes. When you want to sleep and can't or your heart is beating so fast. Even when I push myself to get up and try I feel like crap. I am just suppose to say hey body be better 😂😂😂 Right like haven't tried that.