Differentiating Asperger's Syndrome and PDD-NOS from Autism
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- čas přidán 14. 09. 2011
- Dr. Monkarsh is a Clinical Child Psychologist, who has specialized in the diagnosis and treatment of individuals on the autism spectrum since 1980. He received his Ph.D. from the University of Southern California and completed his pre- and post-doctoral clinical training at the University Affiliated Program at Children's Hospital Los Angeles.
Dr. Monkarsh trains family members in ways to facilitate socially adaptive behavior and self-regulation. He believes that in order to nurture the growth of an individual, others must understand the unique developmental process that characterizes a pervasive developmental disorder. This presentation explains the complexities of family interactions, the stresses they experience and how to best cope with them.
Two of my triplet sons were evaluated with being on the Autism Spectrum at 30 months (2½ years) old. Under the DSM-IV-TR, one was initially diagnosed with High Functioning Autism, which later was updated to Aspergers. The other son was diagnosed with PDD-NOS (Atypical Autism). Both received amazing services throughout adolescence, until they "fell off" the percentage to qualify for services. They are now 18½ and in college, both doing well. My son with Aspergers optained many honors and excelled throughout high school. He is at FSU pursuing dual degrees and set to graduate a year early because he is doing so well! I share all of this to not only share that I've been through the experience of raising two children on the spectrum, but to also give hope to those currently raising children on the spectrum.
Hows ur other kid with PDD?
@@kohare2431 My other son is doing well, having pursued JROTC in high school and currently attending a local college (he didn't get accepted to FSU) for 2 years til he can transfer to FSU. He wants to pursue a degree in finance/computer science and then join the military after he graduates. He is somewhat shy, having a small group (3-4) of close friends; He's never been outgoing like his siblings, but he does talk to others once he feels comfortable with them (aka typical shy personality 😉).
Again, I only share this to help and give hope to others with children on the spectrum 💕
you arenotagoodmother
My 32 year old son thinks he has PDD-NOS. I remember he started talking after 3 years of age but surprisingly with very articulated pronunciation. Later when he started elementary school I asked the first grade teacher why he was so slow to finish his homework and classwork but she just said that was the way he was. He was honor's student in third grade and college. I also remember I had to instruct him one thing at a time or he will get frustrated while his brother and sister were able to follow same instructions all at once (eg. put your pj's, brush teeth and go to bed) He never had too many friends, and I had always to encourage him to go out to play, his favorite activity was TV and he could see the same movies over and over but I thought it was something all kids like. He was also very savvy with science facts, still is that his older brother was always asking him questions. But now he struggles with social engagement and dealing with life demands, he becomes overwhelmed, very anxious and sometimes angered. He diagnosed himself with PDD-NOS but before he thought he had Asperger's, he wants to be tested by a neuropsychologist. What do you guys think? Thanks.
according to my grandmother, my father was also like that. also, he only began to walk around the time he began to talk (about 3-4 yo). unfortunately in my country, especially back when my father was still a child, autism was kind of a taboo talk because it was considered a "mental illness". now that I look at how my father is behaving now (he had trouble maintaining a job, and now he doesn't care about being employed anymore), he does seem to have many autistic traits.
even I and my brother both have some autistic traits, but we never had a chance to get diagnosed. personally I never really consider something was wrong with me until I was around 16-17. I was already in uni at that time, since I was academically advanced for a kid my age, and it was really hard to keep up socially with my peers. but looking from a third person perspective, I always thought that there is something different about my little brother compared to other people, and when I compare him to me, I found that many (but not all) of his idiosyncrasies are similar to mine.
now I'm considering to get diagnosed (28 yo). I do hope that even if I'm not actually in the spectrum, there is at least a label that I could fit in so I can be content with my deficiencies, instead of hating myself for my inability to be up to par to social standards.
did your son ever get tested anyway?
Angga no he hasn’t been tested.
I am almost the same as you describe. I would definitely consider assessment for well being if not anything else.
Aside from the difficulty following directions I fit this description quite well.
Unfortunately there are many things that your child might have had to overcome that maybe you don't realize? For me later in life I noticed quite a bit of pain as a child headaches as an adult neck pain.
These pains weren't in my head, they were a result of malformed cervical spine. I largely developed normally aside from a tightly narrowed spinal canal and some other things, some of which my parents and the doctors felt necessary to correct in early life before I can recall. Later in life as my headaches subsided and became more of a short series of mild and even later moderate states of confusion (with and without a fever) I had a CT scan of my head done... then another and another and eventually an MRI all of which were painfully expensive!
But I was looking in the wrong place. My neck started bothering me at some point during all that and it became really debilitating a few years ago. I had a CT done which showed "nothing" but I (being a total layman) noted an abnormal straightening of my cervical spine. The doctors ordered an MRI not to put my mind at ease but because I persisted and what do you know they found as I already stated several abnormalities of my spine one being my spinal canal being too narrow which likely greatly contributing to my chronic headaches and late start walking and talking. Everything is downstream of the neck.
I have other skeletal malformations and other oddities internal legions and whatnot one such legion was discovered in the earlier head CTs/MRI residing inside my brain. All of these things lead me to believe there's definitely something more wrong with me than the doctors realize, but they're not understanding my problems. Even so I present as you said your child did both in early life and as an adult.
Some behavioral experts seem to think that serious pain and generalized difficulties may cause children to recoil from social interactions which explains my childhood. As an adult I don't much care for being around others because while I'm not officially labeled disabled yet, I feel like I'm disabled... Physically disabled and I'm in tons of pain all the time.
All I'm saying is perhaps the reason your child acted the way they did/do socially is due to a different series of conditions not at all related to any possible "differences in brain development" which keep them from engaging at will? Pain is what keeps me from engaging with people in the meat space. I have a lot of "friends" who I rarely see and who rarely want me over but we do know each other I have been invited over before... It's just that I'm never really happy to be around anyone anymore most of the time. My ability to interact with others isn't a problem like it is with most forms of ASD (including Asperger’s) and maybe this is true of a lot of people. *IF THAT HAPPENS TO BE THE CASE* it would be really really bad for ASD as a whole. It would mean doctors have been misdiagnosing people putting them on the spectrum for quite some time based on little more than filling out some questionaiers, external observations and the reported history from one's parents or even self-reporting from the patient.
ASD diagnoses sound too subjective.
@@VariantAEC my son was the one diagnosing himself because he noticed his difficulties with social interactions. I just added all I could remember from his childhood.
Very clear and informative . Thank you for the breakdown to help me better understand.
thank you so much for uploading this video!
This guy is on point. I was diagnosed with autism spectrum disorder at the age of 2 and I went through early intervention until the age of 7. At the age of 13 I was re-evaluated as PDD-NOS.
Is ppd not autism spectrum disorder anyway?
@@kohare2431 Yeah is is now. Usually level 1. I think it falls under Atypical... They were still studying it back then and they had to get rid of the Aspergers word . Theres more to it but I don't wanna bore you.
@Prin Ren TG my 6yr old son is on the spectrum. He would fall under a PDD diagnoses
This is my son and daughter....Thank you.
Neural plasticity is more adaptable and greater than was thought possible, even in the last decade. Brains do in fact change and sometimes remarkably so. I believe that a person is capable of coming out of the autistic state although still carrying some long term residual effects. The imprinting on the brain and it's physical adaptations will remain but can be compensated for with new neural development. This is possible and has been shown clinically in regards to infrared brain stimulation and experiments with gut biota alterations and it's effect on brain activity. Many studies have shown stimulating Nerve growth factor and BDNF in particular can cause remarkable changes within the brain.
Neuroplasticity is a vague term. Brain is far too complex to conclude anything. Also it's wishful thinking that potentially all brain dysfunctions can just go away. There's 100s of potential diffective factors groups.
From what I've understood neuroplasticity means that we can teach ourselves new things for the major part of our lives. For example if I can't ride a bicycle I can learn to. The neural connections facilitating riding a bicycle will get myelinated. So now if you haven't learned to drive a car then you don't have a dysfunction. You merely haven't learned it.
A dysfunction is when something is irreparably abnormal. There are diseases as well. There's inflammation, there's too many things.
changes or adaptations?
I was diagnosed with PDD-NOS, I'm just glad I found this video.
I have some of Asperger's symptoms but most sub threshold. No delay in language acquisition. I am gifted. I also have ADHD. Diagnosed with PDD-NOS and ICD11 AED(Z) at age 33.
My son had regression at 18 months. Looking back I would say he was moderete autistic (no finger pointing, weak eye contact, no joint atantion, not folowing commands, banging his head, crying all the time, stiming and so on, hiper, short atantion span etc) for at least 6 months. Then something changed and he started to come back. Because we don't get state help in my countrey I could only pay for 1 houer a week speach therapy and 2 times a week 45 minutes of floortime therapy. Everything else I did with him alone. I gave him vitamins he was lacking and zeolit with gaba. So now 2.5 years later at 4 years old he progreseed a lot. Ados shows mild symptoms of autism spectrum. So he is diagnosed PDD NOS. What's strange to me is that my son is very social, and just loves kids always has. He has huge receptive and expresive language delay but he finds a way to communicate with people. I always look at him when he is with kids he mimicks kids, like he is adapting to their energy and personality type. With funny and loud kids he is like them, with quiet and shy he is quiet and shy. But he realy gives his best to make them feel good around him. He is very gentale, and patiant with babys, animals. He has good eye contact and is a happy kid. Mostly i see problem with language, regulating emotions (he is very sensitive and you can make him cry easy)... no one sees that he has problems with relationships, he just doesn't have verbal skills and he is cute and diffirent in a nice way. So I hope he will be ok later in life because kids and people seem to like him a lot, he is very kind, happy and cute.
ive got aspergers, yet im physically fine. just my accuracy isnt perfect all the time.
treatment being "one size fits all" with ALL those on the spectrum is wrong. u dont put a a philip's screwdriver to something with a screw that requires a flathead screwdriver, with a philip's screwdriver anyway. just assuming that all screwdrivers match with all screws, doesnt fix the cituation. it just breaks the screws even more
u can teach a tiger to be a cat, but that "cat" is still a tiger at heart
I'm amazed that this video attracts so many people with PDDNOS.... Including me
A lot of folks got screwed over when the DSM 5 came out. I can't be diagnosed as autistic as I didn't have enough of the criteria early enough to be on the autistic spectrum, I don't have enough of the social pragmatic communication disorder things due to an excessively high IQ that allows me to process the information, albeit at a slower rate than non-autistic people. And, while schizoid personality disorder is the closest thing to how I interact with the world, it leaves out a huge chunk of my personal experience as it doesn't do anything to address the sensory issues that I've got.
The autistic people with sensory heavy symptomatology got pretty much left out of the whole system and since many of us weren't even evaluated, let alone diagnosed, we had no say even though for all practical purposes, we're just as autistic as the folks that get to have a diagnosis that roughly fits with the experience. It's been a struggle to explain to other autistic people how exactly it differs from recognized forms of autism.
That was really interesting. Thanks so much for sharing :-(
:-)
I have PDD-NOS undiagnosed, PDSD undiagnosed because of an previous Ex-General Manager of a McDonald's here in Mobile, Alabama, Asperger's Syndrome and high functioning Autism diagnosed, and have had a small concussion due to an unintentional but nonetheless small concussion from Krispy Kreme. I had to relearn the Dictionary twice because I forgot the entire Dictionary the 1st time. I, also, failed U.S.A. mainly because of slow reading skills and Reading Comprehension problems. I had to go through English 101 three times and a left spiral fractured ankle plate and five screws were inserted on February 17, 1997 at 7:00 P.M., Reading Comprehension class, and then English 101 the 4th time, and then English 102 passed the 1st time around. I did study Ebola and Marburg instead of Communications 110 when I was supposed to have been studying communication. I just could not do it. I did not yet have the Diagnosis of Asperger's Syndrome with I.B.S. [Irritable Bowel Syndrome] diagnosis. All of the doctors I had seen up to age 23 which were quite extensive of an list miss Asperger's Syndrome all together. The main problems I see are you go to School from 6th grade on and everybody else is given a break and I was not given a break at all to go play nor anything else because I was so far behind everybody else. Say for example: You are given a 30 minutes assignment from a teacher. Well, that would take me 3 hours to accomplish. I did have the right software on a past computer to upload and keep my Amazon Kindle book uploaded, but on this one I do not so when I got it unpublished Ebola and Beyond since it was not selling, but to only one person internationally then I unpublished it and have not been able to republish it. One of my past employers has been talking negatively about my stomach issues and has greatly over exaggerated my time off so I am right at 3 years still without employment. Etc. Etc.
I was PDD-NOS when I was 1st diagnosed @ age 2 1/2. I'm not sure if that was because it was too early on to tell where I was on the spectrum. I had never had a speech delay (I was actually an early talker), nor had I ever lost speech, and I was fairly high-functioning overall. I was rediagnosed with Asperger Syndrome @ 15 or 16, because I had never had any notable delay in speech or cognitive abilities. Nor had I ever lost either of those functions.
I didn't get diagnosed with autism until i was 62! It ruined my life!
Thank you so much for explaining. I have family that think my son is cured when he learns something new! 0_o There is no limit and I want him to learn all he can!
In 8th grade I was diagnosed with PDD NOS, but never got treatment for it. Looking back my symptoms weren’t so bad growing up as a kid, I had a hard time fitting in and stimmed a lot. Now as an 18 year old, both my family and I notice that it has gotten much worse. I have meltdowns almost every other day, and even had one at work the other day in front of all of my co workers and may lose my job because of it. I also can’t do things like drive, make acquaintances, or go into public alone. Is it possible that my PDD NOS diagnosis has changed? I’m just now getting into learning about this part of me and don’t know everything about it just yet
I hope you got the help & support you needed. It's very hard when your high functioning as so many people get looked over. Then when things become difficult people just think your bad when your not. It's the autism PDD that causes this. It then disrupts your life. I hope you never lost your job and instead got supprt. I am just watching a documentary on a guy who had PDD, he would stalk he's exes. He ended up in jail as he got very violent, he wasn't able to let go. I cannot help but think these women where let down by the state, as he should have been getting continued support. I wish you well and hope all is good.
Simple question, how do I get diagnosed with this, as this is definatly the label I fit into as an adult
you would have to see your GP to refer you to a specialist
I have both PDD, which at the age of 22, is still active. I also have Asperger's Syndrome.
u cant have both
I have aspergers syndrome but I had speech issues cause of other reason that caused it a birth damage to my vocal cords and a small damage to my brain
A substantial damage to your brain.
@@notkerrystolcenberg
None of these people know what they're talking about.
The symptoms of Asperger’s outlined in the video define me quite well... but I'm not on the spectrum and it's not because I haven't asked about it especially with some symptoms existing throughout my life. To the best of my knowledge (and CT MRI imaging confirms this) my neck was messed up congenitally (since birth). That likely caused poorer motor coordination and that greatly reduced my ability to crawl and walk as early as my peers. According to my parents I started talking at 3 years old (which to my knowledge is very late) and that's also when my parents say I taught myself how to walk.
Since both these things occurred so late for me It's probably why I remember both of those personal accomplishments but not being circumcised. That is TMI, but I don't recall that surgery and I think it's somewhat relevant as it also occurred very late due to another condition which I suffered with for my first 3 years of life as I am discovering that once thought totally unrelated condition is potentially CLOSELY related to all the other (largely) completely invisible malformations that I have.
After my latest MRI if it shows what I expect I might have the "diagnostic ammunition" needed to look for a rare genetic disorder.
Regardless all that was written to say that, I don't even think the doctors here knows what the heck he's talking about!
It took almost 8 years to find out why I've been in chronic pain for 7 years... Yeah, I didn't start thinking about my neck until years after my headaches settled down; if I go over my whole medical history YT won't let me post - there are text limits on YT & I've hit it before so for now I will digress and just say there's so many things other than social observations that doctors claim define ASD and they rarely use them to diagnose a patient... so how do they know? The fact is they really don't.
I have pddnos which was diagnosed in 2018
So your saying if i demand respect we will bump heads? So tell me, how do i earn respect in your opinion ?
From PDDNOS can they go towards not meeting criteria and therefore no longer having autism? Or is that the same as once diagnosed with autism, The brain will always be autistic? Sorry if my question is not clear.
Autism doesn't fully go away is what I've read. I'm no expert though.
The disorder is real. The diagnosis is a matter of formal classification.
5:04 👌
DREAMSQU33ZE preach
Are you the type that hurts people, disrespect people but rebel when some says "Stop" do you continue ?
Does anyone ever get diagnosed as PDD-NOS for the first time, as an adult, when they haven't previously been diagnosed with anything before?
Yeah, I was diagnosed first time, 2 years ago, with PDD-NOS and ADD on top of it.
I was diagnosed with add/adhd inattentive at 7, and pdd-nos at 21-22 and social anxiety sometime in middle school
I was diagnosed at 30 with PDD-NOS.
Melissa0774, yes.
@@adamx9793 What would be the point of getting that diagnosis as an adult, though? I understand why they use it as a placeholder for kids, when they want to wait and see if anything changes in a few years. But in an adult, nothing is going to change. All the PDD-NOS diagnosis tells you is that there is something wrong with you, but we don't know what it is. And an adult seeking an autism diagnosis already knew that before they even sought help. What is the point of giving that label to an adult?
fcking brilliant
and there's nothing wrong with that!
They changed it now tho.
They changed the arbitrary definition of the conditions they don't understand. All of the conditions are still the same as they ever were. Doctors are stabbing in the dark because they don't know why people develop as they do.
What if a person has already been diagnosed with Asperger Syndrome but then loses skills such as speech, cognitive abilities, or other skills required for Asperger's? Could that person still be diagnosed with PDD-NOS?
That is what’s called childhood disintegrative disorder.
As a writer, poet and developmental therapist working with families diagnosed with ASD and related affect sensory processing and pragmatic language based challenges, I find that the vast majority of our privileged neurotypical status possesses severe deficits in ability to naturally use and engage in intuitive and critical reflective thinking (i.e., lack pragmatic based discourse and ability to engage to empatically read-and-engage at deeper than surface levels day to day). ASD way overdiagnosed
Or we can say people should get whatever help they need across the board. In today's age of hypercompetitive livelihood people any disadvantage is potentially life changing. If people use desperate attempts to succeed in life, especially the neurotypicals, why shouldn't people who are visibly and obviously affected get the help the deserve?
If you call it over diagnosis I'm all for it. Atleast we will achieve a deeper understanding at the end it and treat our fellow humans better. It's the only civilised way ahead.
I've been thinking the same thing as I can't believe how much more it's being diagnosed diagnosed in everyone including girls well maybe it's occurring more because of something in our environment too I've been thinking that also. My ex boyfriend though he is definitely Asperger's and undiagnosed because of his age also he has cerebral palsy so I think they mostly concentrated on the cerebral palsy and overlooked his mental problems I think that they were just glad he wasn't mentally retarded and can take such good care of himself pretty much but it's a sad thing he can handle friendships and work a little bit but loses a lot of jobs and loses a lot of friends keeps mostly to himself and his kitty cats can't have a relationship with a woman because that's where the severe deficits really come out that's all.
Why did I laugh at this comment, considering I have PDD-NOS which is just as bad(sometimes).
Can't even cope. Every interaction is scripted
They no longer consider the two the same
I have autism
I'm 29 years old, male and just been diagnosed with pdd-nos. Ice worked since the age of 17 and at 29 years old im told all my job losses are now becaise of my disability, I've had over 100 jobs until I found I habe this type of autism.
Ice? Ice worked for you? What am I reading? Are you saying you “treat” yourself to some Crystal M and it works for you?
That’s not a good idea, at all. I’m in shock nobody else has questioned this.
Your job loss is probably linked to the ice use. I’m not an expert- did your doctor recommend this? Geez… this is crazy!!
@Absalom WHAT? Ice? wtf is going on here? Ice for autism? Why? Why would that even be an avenue/route to explore? Was it prescribed? WHAT???!!!
Brains don’t change???
sounds like your just a rebel ?
My son was diagnosed with PDDNOS when he was 14. Prior to this he had numerous ADOS tests all of which said he didnt have autism . He is now 19 and whilst he still has some issues he has improved significantly compared to how he was. To be honest there is virtually no help out there for people with PDDNOS we are just left to get on with it. We have developed our own coping strategies for him.
+bob thebuilder I was also diagnosed with PDD NOS when I was 14 and I´m turning 20 this summer.
- Sólveig
+Sólveig Guðjónsdóttir I hope things are good for you. I think its all about learning to cope with it. I always tell my son to step back and think about situations before he acts. This seems to work for him.
I think having pdd nos or autism teaches me a lot and I think it makes me who I am and today I'm proud of who I am and having pdd nos is the least of my worries.
Hope your son is doing good, greetings from Iceland
Yes he is doing great thanks and hope you are too. I am hoping to go to Iceland one day to see the Northern lights and hot springs :-)
My son was just diagnosed last year at age 13 as having autism spectrum. Now you are not given a category of autism you are just told your child is on the spectrum. It's been 7 years of heart ache for my son and myself. He is categorized as high functioning,,, PPD-NOS,,,, and I've even been told mild autism. Every specialist I've taken my son to in the last 7 years would ask the same questions,,, does he line up his toys,,,, does he not look at you,,,, is he able to talk. No one never,,,, I mean never brought up PPD-NOS. For 6 years he was tortured by schools that labeled him at the kid with behavioral issues. It breaks my heart to know that there are kids that are similar to my son that are getting looked over. We have started DBT therapy for him and things are getting better. I am grateful!!
I disagree with that you can’t be cured
Rambling Rob I feel like you can seemingly hide your symptoms and be neurotypically passing, but the wiring of the brain will remain the same
MIent1313 what do you mean by the brain wiring I think Ik what you mean
Rambling Rob neurological impulses of the brain
MIent1313 so I have autism so do you mean I’m impulsive?
Rambling Rob no
That was good clear and concise. I'm losing and leaving my Asperger's boyfriend behind a little sad but nothing I can do about it I've tried he just turned 59 never got a diagnosis and told me he didn't think he had it but is totally classic thing is he also has cerebral palsy I have a theory that the same thing that called his caused his cerebral palsy caused his Asperger's which I think was toxoplasmosis infection when he was in utero but he probably doesn't consider me any expert as I'm turned off by computers and technology although I love the socializing on my tablet and phone it is sad. I hate women autistic people who have Asperger's think that they are a new Superior being like I'm just different it's a new way I'm the new age person oh hell no you're not it's brain damage plain and simple. It's a developmental delay as they say a very nice way of saying part of your brain is damaged and not normal and that is why you lack reciprocity and social emotional skills I keep trying to explain to these guys that we are more like animals and we need both sides of our brain we need our social emotional side as much as are intellectual side but they can't feel what isn't there they can't possibly know so I give up my guy really doesn't even want to be friends.
They are all on the spectrum.
+Tyler Travis Perhaps everyone is on the spectrum to a certain degree
bob thebuilder .
Everyone is NOT on the spectrum.
Well just an opinion, or are we not entitled to those anymore?
bob thebuilder There are no opinions in science ppd on the spectrum is not a hypothesis it is fact.
Ass- burgers??
Assburgers is something you could probably sell and make millions from, like George Foreman grills and PS3s
“Brains don’t change” Research neuroplasticity…
They change, but it's not always in the way that you want. Somebody that's autistic will always be autistic. Neuroplasticity doesn't mean that you can change the entire architecture of the brain.
I believe I am a billionaire. Boom. And that philosophy would cause schizophrenia in my opinion.
sinds i was 4 i was in to mechenical engineering.
now im an engineer and i get payed but when they tried to test me i told them im not speaking to someone who studies psychology for free cause that info is private