My Thyroid and Graves' Disease Story
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- čas přidán 8. 06. 2024
- When I was 14-years-old I was diagnosed with Graves’ Disease (overactive thyroid / hyperthyroidism) and since then I’ve done it all - here's my journey including thyroid surgery and radioactive iodine treatment.
In December 2010 I had a subtotal thyroidectomy surgery and now in May 2022 I’ve had radioactive iodine treatment to try treat it once and for all!
I wanted to give a bit of an overview into my thyroid journey and also have a little message for anyone who has commented on my other videos about the lumps on my neck.
DISCLAIMER: I am not a medical professional and only speaking on my own experience. I cannot give advice and would urge anyone worries about any similar symptoms or considering thyroid treatment to speak to medical professional.
00:00 Intro
00:46 The Lumps On My Neck
02:28 Graves' Disease Diagnosis
06:45 My Thyroidectomy Surgery
10:50 Radioactive Iodine Treatment
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I’m actually crying because I am an influencer and I’ve been researching my options now that I’ve got swollen nodes as well. I found your video that way. I’ve been so discouraged from sharing current content being insecure about my goiter and I’ve also been prescribed anxiety meds after finding out. Your story I can relate to as it’s hereditary in my family as well. Thank you for sharing this! It’s beautiful how vulnerable you are. Really helps me with weighing my options since I’m recently diagnosed and frankly scared as can be lol. 🙏
Glad I could help and sorry you've been struggling - definitely worth speaking to health professionals to know your options!
I’m glad I was recommended this. My story started when I had to goto the emergency room for an unrelated issue. On the ekg they said I had tachycardia, after a ct scan, their writeup said I have a module on left thyroid, and referred me to a cardiologist. The cardiologist told me that tachycardia isn’t caused by the heart, it’s caused by something else physiologically. She ordered blood tests, which revealed very high t4, low tsh. My family doctor told me I have Graves’ disease without any tests done because I had all the symptoms, plus I’m really skinny, underweight for my height. He referred me onto an endocrinologist, who I had a video consult with today. After all the questions and answers she said that I most likely have Graves’ disease because my mother had it. I have to have a consultation at her practice to prepare for a biopsy of the nodule and put me on meds.
I really dread the next years because I’ve read of so many stories of how bad it gets, after any treatment. Everything they offer to fix the thyroid is 70 year old technology. It hasn’t changed at all. So to me, it sounds archaic, all of it. This is why people have so many symptoms, there’s no fix to stop it all.
You are such a beautiful & genuine person! I’m so sorry for all you have been through with this disease. I hope that you continue to heal, and thank you for sharing your story. I am recently diagnosed, and these videos are helping me wrap my head around what it means, and what I need to do.
Thank you so much for sharing. It's not easy to do anything with graves let alone show the generosity you have in sharing. I wish I had found your videos earlier. I was discovered to have graves disease while first pregnant and it was terrible. I was so scared. Thankfully my baby is okay but almost four years later and i'm still struggling. even after radioactive iodine. I really appreciate hearing your story. Wishing you and everyone with Graves good luck and good health!
I was diagnosed with overactive thyroid and graves disease but not before having heart failure, liver issues and given 30 days to live. After all that i found out i had graves disease. Im going for radioactive ablation. I was on methymizole and everything went back to normal.
How are you now?
I got diagnosed with Graves’ disease two years ago. It’s been hell. Constantly up and down. It’s totally changed my life.
I was diagnosed over a video with my new endocrinologist. I have to have a biopsy on a nodule on my thyroid. I dread when I have to go on thyroid meds,everyone says how bad it is. I’m only 110lbs down from 130. I’m being tested for celiac also.
I understand because I’m going through it now but early days
Hi Sarah. Thanks for sharing parts of your journey with us. I am on a low FODMAP diet which I initially found such a challenge!
your uplifting videos and recipes have been so inspiring and helpful. It’s just restored some level of normality! Thank you soo much! Can’t thank you enough 🤗
I’ve recently been diagnosed with Graves’ disease, TED. On steroids right now. My eyes got pretty bad and i went into depression. I cry a lot. Glad to hear your story, helped me a lot. Anyone going through extreme hair loss? Ive lost about half of my hair :(
Same here...
Same
same here
Same
I lost my 95 percent hair, i m recoverd now my dr sugestwd me some iron suplments ,tht wil b helpful for me, i wil sugest u tht ,i m also woried about my hair lost ,pr take it easy it wil b recover ,aftr thyroid medication it happens
Thank you for sharing such a powerful and informative video! I did not notice your throat section UNTIL you brought it up. Even still, I think you should know that it doesn't matter what people think or say.. stay strong! Thank you and Merry Christmas 🎄❣
Thanks for sharing! I've just gotten diagnosed and was looking for someone to speak about their experience. I really appreciate you doing this. I'm about to check to see if you've updated on how things are going, but I hope the treatment has helped!
Hi Sarah. I've been following you for your great recipes and food advice. Maybe I'm just very unobservant, or maybe I'm captivated by your food or maybe I'm just noticing your lovely smile... I genuinely had not noticed the cysts on your neck. I can see them now you've pointed them out but your sweet personality outshines them.
Your video was very informative, very honest and very easy to digest. Thank you for sharing part of your story. I'm sure it will help a lot of people now and in the future.
I hope you are able to hug your partner soon. You've been through a lot.
Big love! 🤗❤️🤗
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
Wow. Thank
You so much. You just helped me totally realize that getting mentally unstable is part of it. And you start realizing when you get in the mood you want to burn the world down. Well. Thyroid levels are going back up. It’s so frustrating at times. Thank you.
Sarah Thankyou for talking about your journey with thyroid problems. Please ignore any insensitive rude hurtful ignorant comments, I hadn’t noticed your neck at all. You are a very talented young lady. I also had radio iodine and had TED after this, I had no idea about TED, no one had told me it could happen. I spent a couple of yrs under a TED specialist and it’s settled down now. I am also coeliac. This happened also after my toxic thyroid & subsequent radio iodine treatment. I do wonder if thyroid disorders cause coeliac? Anyway, finding your Chanel has been a godsend. You are so very interesting and inspirational, your recipes and teaching is first class. Sending you very best wishes 💖💖💖
I appreciate you telling your story its something I knew nothing about ..I thought it was something I had as my health journey has been a challenge for the last 1.5yrs .. I wish you well going forward 🙏 in your own health journey..xx
Hi Sarah, thanks for sharing your story, I found this by accident looking for a lazy platinum pud recipe! I also had overactive thyroid / Graves and radio iodine treatment around a decade ago, with a similar ups n downs, and menopause causing further confusion. 10 years on I just take thyroxin each morning and have my thyroid levels checked annually and don’t have to think about it too much, I just wanted to wish you all the best, you are at the uncertain bit at the moment but I am sure your body will find its equilibrium in time, take care.
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
I was diagnosed last month with Graves’ disease and I was just searching for hope pretty much. I’m happy I found your video. We are not at the surgery point but I am on medication. If this doesn’t work, iodine treatment may be next. Still have high HR with activity, losing weight that I barely have to lose and always hungry. This video made me feel like I am not alone in this. Thank you for sharing.
What is your condition right now regarding your health may I know
last week , i was diagnosed graves too 😅
Thank you for being so brave and putting this out. You are not alone in this. I think many of the Ceoliac community also suffer with thyroid issues and other auto immune diseases. I know I do. Good luck with the rest of your journey here. Hopefully you will stop glowing in the dark soon and you can get back to normal hug status xx 😊
Ps shame on the negative commenters, clearly no manners, should be banned 🚫
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
Sarah I wish you the best for your health, but I never noticed the cyst on your neck. I was so focus on your great recipes. I love all your recipes and you are so beautiful. Take care ❤🙏🏼
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
Thank you so much for sharing your experience. Also diagnosed earlier this year and currently under medication…very upsetting..but that’s life…
Best wishes hope you are feeling well soon and can have a big hug love the blog and all your recipes. I have never noticed the lumps but it is unacceptable for people to comment on your appearance thanks for the video it is really helpful for people who may also have the condition.
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
Thank you so very much for sharing your journey.
You are super. more power to you !
I love your recipes, and my attempts are really good.My surprise was your bread recipe which turned out brilliant ,so I only use this bread now, also it’s better than bought bread with the additives.Thank you.May I say you are coping really well.
Thank you, that's so kind and I'm so glad you love the bread!! xx
Excellent video. Thank you!
Hi Sarah - I’m a newbie coeliac and find your blogs so very very informative and friendly, so thank you… also severely overactive thyroid triggered by my son’s traumatic birth, eventually after a horrible 2 yrs had radioactive iodine which worked until 2nd son was born then went under active - so been on thyroxine for 20 yrs and now at the same time - thyroid totally crashed along with coeliac - must be a link there! Anyway thank you for all you do for us x
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
Thank you for sharing. I have Graves as well. God bless you.
Thank you for this. I feel crazy. My tsh is zero and now my doctors are trying to pinpoint the exact cause and treatment.
Hi Sarah, i pray your RAI was successful. Your story is inspiring and gained our respect. May i ask, how often were the relapses were happening when u were with carbimazole? If a person measures his t4 often, can he make the relapse softer?!
Hi...thank you for your story...it would be great to know any follow up information following you recent procedure with RAI
This was so interesting, thank you for sharing! I was diagnosed with Graves at 17 with minor TED and a goitre too. After 5 years of on and off carbimazole with my thyroid always going back to overactive, my endocrinologist said we should look into something more long term. I went for the RAI in the end too and it was definitely a bit scary the thought of being radioactive and the isolating itself haha. It's been up and down since then, going on levothyroxine 5 months later after going underactive and feeling quite frankly AWFUL, but seems like my thyroid is balancing out naturally over time which (fingers crossed my next bloods confirm this) is here to stay! I was told a couple of years after being officially diagnosed with Graves that it's very likely I have celiac due to some blood tests I had, but haven't had a full investigation to confirm it. Do you mind me asking if this was confirmed by your doctor or at a hospital with biopsy etc.? They do say once you have one autoimmune disease that you're very likely to get another, so some of us are a little unlucky - thanks immune system... Anyway, stay strong, you've got this, Graves buddy! 💕
Yes they do seem to be a collection these autoimmune diseases! I had a blood test at the GP and then a biopsy at hospital to confirm coeliac - it’s important to make sure you’re eating gluten to get an accurate result but definitely worth it IMO. Glad the thyroid is settling down for you!! X
Sounds like a really wise decision after a wild journey. Really hope this treatment is effective and you head into much better health. x
Thank you! Fingers crossed this might be the thing that actually works! xx
Thank you so much for sharing your story. God bless you and you’re very brave and you’re going to be just fine. Believe and stop stressing. I’m going through the same thing as you and I listen to verses healing music and I try to stay calm.
I’m sorry you’ve had to go through this bless you thanks for your information
You’re amazing 🥰 love you lots xxx
Thanks lovely xxx
Thank you less than 30 days and graves confirmed I went the chaos route
May I ask the medicine you took for the thyroid eye?
I’ve just been diagnosed with it and it’s debilitating on top of perimenopause. I’ve just started medication early days but my lump has reduced but I’ve an ultrasound on Sunday. I get hot, emotional, shaking everyday and tired, unmotivated, palpitations, sore throat and other symptoms
Ah, autoimmune diseases are like pokemon - gotta catch 'em all!
I'm type 1 diabetic, coeliac and have hemolytic anaemia.
Best of luck with your journey 🙌
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
I have been on medication for a year and a half, but I am not cured, the next thing is surgery, I am trying changing my diet to free of sugar and starches to try and see if there is any change in TSH
I am curious why RFA could not be used in this phase to "cook" thyroid tissue
Also the cyst(unless it is misnamed) is containing fluid, so iodine will not work in this case.
It works only on the well differentiated tissues that could uptake it.
perhaps TC99 scan prior to the decision can be helpful.
The treatment is not for the cysts, that will be something I have sorted afterwards
Excuse me how old are you now I diagnosed in age 25 in 2013 and after that I hade radioactive iodine and use levothyroxine 125mcg my weight is 100kg i am very sick .
Thanks for sharing this sister I too had radio active iodine 19 years ago for Hyperthyroidism Graves Disease and it was due to internal bleeding in my neck area. Such that if I didn't get it I would've died from heart failure because it was beating too fast for too long. You are beautiful God and Jesus Christ bless.
Hi
❤️ from Malaysia 🇲🇾 your brief review is useful! I'm a new grave disease patient who only started all the symptoms last year. Still on my carbimazole and I'm researching more about the treatment. I've gained insights from your video 😊
Hi fellow Malaysian with a grave disease too 🙋♀
Can I ask whether you developed an itchy rash on carbizazole ? I am on day 10 at 40mg and my rash is terrible.
Thank you
@@chrismckinnon5430 nope, but my doc did told me some ppl will developed rashes after taking carbimazole. So if condition persists I think u can talk to doctor n ask for alternative medication
I’ve been diagnosed with Graves’ disease and I cannot eat gluten since then without severe reactions.
I cut out gluten and have included Brazil nuts, sunflower seeds, sardines and Greek yogurt in my daily diet. 3 years no carbimozole, beta blockers and no recurring graves . I did this because I was beginning to get symptoms of graves again… check out Dr Berg’s video on Graves and how to treat through diet!
I’m coeliac so haven’t had gluten since 2002…. Sadly that didn’t stop my Grave’s though. Some of us still need the meds
I’ve been gluten free for decades, and I now have Graves’ disease.
That was very informative I'm also on carbimazole and hopefully coming off of it this year. Feel better soon.
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
@@realitydoinz9656 bullshit
Hi i like to connect with others who face Graves Disease like me ?
Beta carotene supplements and tumric,hibiscus tea,rose hip tea has Beta carotene lotts of carrot juice bone broth help immunity and ground flaxseed.
Hi Sarah,
Can i ask whether you developed an itchy skin rash when on carbimazole. I have it and its awful. Im newly diagnosed.
Thank you
Is that due to carbimazole? Me too having skin rashes
@user-qt8xj5is7d Yes. I ended up in hospital for 4 days with a severe allergic reaction. They have given me radioactive iodine now so waiting for that to work. It's really awful this isn't it. Hope you're okay 😊
How fast did you become hypo after RAI? I had mine 1 month ago.still hyper. @@chrismckinnon5430
Did you ever wake up sweating in the morning?
alternative herbal suplements from #doctoreromon on youtube channel is the best choice of method in treating and eliminating graves disease, speaking from personal experience.. .. ..
Ha! The appearance is the last thing on my mind, Im trying to survive with the extreme fatigue, concentration and memory problem and not being able to even travel bc of this. The hyperactivity I dont understand eiter, I was born so tired they thought I was dead. How many of you in here are on vitamin D? Bc it helped me but the brain fatigue is still there. And recipes? I'm lucky to find my way into the kitchen.
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..
Can Graves disease cause muscle pain and weakness?
Yess
Yes, I have it. For me it happens suddenly in my legs. I was in a grocery store doing my food shopping. After 20 minutes my legs felt wobbly, like rubber and I couldn’t walk properly. People were staring at me, I could barely walk. Some people asked me what’s going on, and I told them that my legs feel like rubber, and I needed to sit down. They said to leave the cart and each person held me under my arms and walked me to a bench outside. I wasn’t diagnosed at this time. They said I should go to the hospital. I refused and sat until I thought I could walk. I wobbled back to my car, and I couldn’t press the brake or accelerator. So I staid parked, put my chair back and laid down for hours until I felt I could drive.
My arms get the same way after a shower. I’m exhausted after a shower, but my arms were so heavy and I couldn’t pick up my coffee cup. Rest seems to help, hours later.
I was diagnosed with graves today.
@@SparkyOne549Did you do RAI? I did my 1 month ago. First I took Metamazole and had side affects. So I did RAI
😢
So I won’t glow in the dark after RAI? 🫤
Great things Dr iyaremoses on CZcams has being doing for mankind, I undergo his treatment for 6 days and my hypothyroidism was gone..