What is Ankylosing Spondylitis? Causes, Symptoms, and Diagnosis EXPLAINED
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- čas přidán 7. 06. 2024
- In this video, Dr. Rowe helps answer 'What is ankylosing spondylitis?', including its common symptoms, progression and how it’s diagnosed.
Ankylosing spondylitis (or AS) is an auto-immune, rheumatic condition that primarily affects the sacroiliac (SI) joints and the spine.
To help explain it a bit better, this video is broken down into 3 parts: causes, symptoms, and how it’s commonly diagnosed.
Discussed in this video is the HLA-B27 genetic marker (plus other possible causes), and radiographic signs including: sacroiliitis, syndesmophytes, bamboo spine and lumbar squaring.
Also, Dr. Rowe goes over what to do for treatment options (at the end of the video) if you have been diagnosed with ankylosing spondylitis.
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Dr. Michael Rowe
St. Joseph MI chiropractor
If you are looking for effective neck, back, or sciatica pain relief, contact us at 269-408-8439 or visit us at www.BestSpineCare.com
Facebook: / bestspinecare
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Your local St. Joseph | Benton Harbor | Stevensville MI chiropractor
SpineCare Decompression and Chiropractic Center
3134 Niles Rd
Saint Joseph, MI 49085
*MEDICAL DISCLAIMER*
All information, content, and material of this video or website is for informational purposes only. It is not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider.
#ankylosingspondylitis #ankylosingspondylitisawareness #sacroiliitis
👉👉 Questions or comments? Please leave them below!
Does this also come with an increased rhuematoid count in a blood test like they use to test for arthritis?
there's a book on amazon stating is mental flared, some psychological factors. Are you aware of that?
Cutting out gluten is a huge help with my body
I just wanted to say Thank you for sharing this video, I was diagnosed with Anky Losing Spondylitis with HLAB27. I had re Back 2014. I had a Doctor who was really helping out on this Disease but unfortunately I also broke my neck back in March of 2014 which I'm very lucky to be here today anyway,
I went 7 major neck surgeries and finally had to with my neck being together with 2 titanium rods and 28 screws holding them in yeah tell me about it..😂 anyways I was in the hospital for 10 months, yeah also tell me about 😂
And the hospital shipped out to rehab so I could learn to walk again, talk again, dress myself well you get the picture 🙄
So anyway I get out about a year later with a permanent disability. That's right I made it🤤
So I made it to see my personal Dr 😎 and he wanted to do a fallow up blood test, and the results came back 😦
That's when I got the news Doc told I have this Disease Anky loses spondylitis with HLAB27 imedity my went head🤤
In 10 different directions with NO Cure in sight ..... WHAT? What's that Doc? No cure insight? So now my mind starts to wonder what's going happen to me myself and body? Well it's been a Roller Coaster Ride since March 14th 2014 to May 1st 2021 ...Part 2 too be continued.
I'm 24 now and it started 4 years ago or so. I didn't understand it at first since the pain at night wasn't frequent. But 2 years ago I started to feel pain when I breathe at night. This year especially the pain became more severe and It moved to my whole back and neck too and it became very frequent (every night). I can't sleep at all. At the beginning of AS I used to only wake up in the second half of the night bc of pain, however these days I can't sleep 2 hours straight without feeling pain. I only understood my illness now due to these vids, now I'll get it checked as soon as I can but I hope I'm not too late.
I have this and it causes a lot of painful muscle spasms in addition to the mechanical joint pain. This is why I watch your videos! They have helped me get out of pain more times than I can count ❤
I'm 43 and this has been exactly what I feel for a few years now. Been doing the Carnivore diet for 2 months and within the first week my symptoms have miraculously went away. I feel like I'm in my 20's again.
Can you help me as well ?
@@shreymishra8690 carnivore is usually recognized as the first option for auto-immune problems. It's a complete meat only diet. This means no plant sources fats or oil, no fruit, no rice, no carbs, no bread. The only thing you can eat is meat. For better effects it's best to go a lion's diet which I recommend eating ONLY organic grass-finished beef (if you grab from butcher it's quite cheap, like cheaper then the normal ones from the supermarkets). Non-organic meat can still cause inflammation issues, and traditional beef is feed GMO grains which are highly inflammatory. Good luck.
CUT DOWN ON BEEF? I'VE HEARD OR READ THAT TOMATOES CAN MAKE ARTHRITIS WORSE! I HAVE A.S. IT WAS THOUGHT @ 1ST THAT I WAS NEEDING THOSE SOME:WHAT EXPENSIVE ORTHOTICS THAT I HAD MADE FOR MY FEET!!! ONE OF THE SYMPTOMS I'VE HAD IS AN IRITIS, WHICH IS MY BODY TRYING TO OVER COMPENSATE, OR FIGHT A.S. THE ONE EYE GETS RED, WATERY, CLOSED, AND WHEN I 1ST NOTICED IT, I THOUGHT I GOT SOMETHING LIKE DIRT IN IT BCAUSE I WAS ON A LADDER CHANGING FLOURESCENT LIGHT BULBS IN A DEPARTMENT STORE'S LIGHT FIXTURE IN THE CEILING! THE OTHER TIME I EXPERIENCED IT WASCWHEN I WAS SHOWERING, THINKING SOME SHAMPOO IN IT! ANOTHER TIME I WAS SPREADING GRASS SEED IN ONE OF THOSE GRASS SEED WHELLED SPREADERS!!! WHEN YOU GET AN IRITIS YOU HAVE TO GO SEE AN OPTHOMOLOGIST TO GET SPECIAL STEROIDAL EYE DROPS FOR IT!!!
A clear concise to the point presentation. Well done, thank you.
Good discussion. I'm a nursing student and I was able to understand the lecture. Anyway, can you explain the Pathophysiology of this disease?I badly need it as a nursing student. Thank you
Video was very helpful and informative!!!!
Glad it was helpful! Thanks so much for watching!
Top notch information!
So much Blessings to you and your family ✝️🌷❤️
Thanks for the kind words!
Thank you! I've been watching AS videos all morning and this one is by far the most accurate, concise, and easily understandable from a patient perspective (most videos are for med students).
Thank you for the kind words!
Nice video! I am a personal trainer with AS. It’s no joke, I have to move daily to break it up.
I just got this news from my doctor and I’m heart broken. At 43 I’m super fit and active but I’ve always had extreme back pain and patellar tendon pain and I couldn’t understand why. Are you able to treat this with daily exercise and stretching? I do that everyday but still have back pain.
Try carnivore! My symptoms went away.
Very well explained and we'll presented 👍 👍 👍
Thanks for watching!
Very helpful. Thank you.
Thanks for watching!
My father passed away a month ago with cancer but he had this disease for over 30 years . Thanks for uploading, I've learnt a fair bit
My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD and a kidney tumor size of a tennis ball he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
@@eivindgjengstjohansen9625 I'm sorry for your loss
😢😢😢
MY DAD ALSO HAD IT, WHICH I ALSO HAVE!!! HE WAS MISDYAGNOSED IN THE V.A. AS ANTHROSPONDILITIS, OR SOMETHING LIKE THE WORD I JUST TYPED! HE WAS BENT WAAY OVER OR STOOPED OVER LIKE A GORILLA!!! FOR MANY YEARS!!!
SORRY 4. YOUR LOSS!!! MY DAD HAD IT TOO!!!
Just diagnosed with AS at 28 my pelvis area is fused but my spine isn’t bamboo yet but i also have severe hip arthritis so I can’t walk on my right leg all my weight goes to my left when I walk and gimp around. First sign was my arthritis in my eyes when I was 15 which is a sign of AS. I’m in the severe stage at 28 so I can’t work but I got started on humria which will help mobilize me more and less pain also preventing my spine from becoming fused together completely. Unfortunately it’s genetic so if I ever had kids they would also suffer from my condition. It’s advanced stage but thankfully they caught it before my spine was affected
You have described everything spot on, gives me a clearer understanding of what I have and how to tackle ‘AS’. Thank you, great video… I’ve been offered to take Adalimumab but not sure if this is a good idea?!
One of my twin daughters was diagnosed with Juvenile Anklosing Spondylitis at 14. She and her sister just turned 17 a few days ago. My twins are identical. I fear that my other daughter could develop it. Thank you for this video. It's very informative.
Got bamboo spine now, locked hip joints, and ever-present back pains. I was suggested to bear with it until I'm in my 40s so that there will be fewer surgeries in my lifetime. But I decided to get my left hip replaced at the age of 25 and now waiting for my right’s turn. Each hip lasts 10 to 15 years depending on activities.
Plz help me i do not have bamboo spine but i have sacrolitis in si joint and back pain from years my neck pains chest pain and so much pain in lega and foot heel i cant stand for more than 5 mins otherwise it pains a lot do you have same symptoms and does you have gi issues because i have from years does your symptoms match with me so i can go for checkup to ankylosing spondylitis i am 19 now and pain started from 13 14year age i have lower back pain in pelvis
I am 25years old.. My sacroiliitic pain stated 5years ago . I take some pain killers it resolve.. But in the starting of this year .. My back pain starting to blooming and my sacroilic joint don't say I can't even move... Nearly in starting 4 months drs give me pain killers... I stop pain killers I stop moving... Recently diagnosed by AS... I am on etoshine tab. Dr told me you can take it 2years😢..i am gud as long as I am taking the medicine... Sorry for my bad english😅
@@AreyemMeyeraMy father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
@rajivjain4383 My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
Sir if feasible please make video on simple exercises that A.S patient can do at home for spine strength and posture fix.
Good explanation
Thanks for watching!
very good explained. thanks, doctor. I have recently diagnosed OS. How can I contact you?
My boyfriend was diagnosed 25 years ago. He was part of the Humira trials and has been on it since. It has slowed the progression of the disease but he suffers everyday with pain. He will only take Aleve when he cant stand the pain or he needs to complete a long physical task. He's now having GI problems. I worry about him.
It started when i was 16 now i am 25..now with regular stretches and exercise its bit relifed..
One suggestion for people suffering with AS is dont stay idel be active, stretch regularly and enjoy ur life. Take care.
Thanks for the good tips, for watching!
Hi my cousin is recently diagnosed with it. She is 27 and lost so much weight. Also she has a small bump that's developing on her backbone.
Are you taking any medicine rt now
Are you ok...
How's you condition...
I got diagnosed today with AS at 15 but I've had since I was 12 ish starting injections on Tuesday to help prevent it from getting worse it took almost 4 yrs to get a doctor
how you doing now..i got as too
This was very good. I had an mri done what type of findings are found on this test? I feel like my doctors are not getting to the down of my illness with a ex of ddd. But I go through a lot n I just feel it’s more than ddd.n what tripe is specialist should I see to help rule out this disease from ddd or others
You. Are. The. BEST
Even though I searched for help many times. many. it took me 30 years to get a diagnosis
Mine never started until 1+ years after getting a Microdisectomy....and I just learned my dad had this type of Arthritis before he passed as well, which was a surprise, but not really. I accidently put it in remission after quitting Grains. 🙌🏼
What grains did you quit?
All of them, my biggest was Wheat. It only took 3 days, and I was all "what the?" and if I eat grains two days in a row, my spine starts to stiffen back up in the morning. Crazy.@@verohb79
I’ve dealt with as for almost 20 years , it’s horrible , I can’t do anything without taking drugs, but I recently switched to a clean vegan diet and in a week I already noticed a big change, a lot less inflammation, no flare ups, except for potatoes for some reason. Whatever it is it has worked for me, some days I don’t even need to take any pills which is amazing for me.
I agree with you,I have had cheap sausages and felt ill,my grandfather who lives in the country gave me some sausages and they have gone through my body fine,I still think we need iron in our diets,at least a small amount
strange isn't it,I bet you crave for potatoes aswell,the Japanese in the high country live to a good age,possibly something to do with hyaluronic acid,
Yes. I have experimented with diet to decrease symptoms after medication was taken away. Can confirm - potatoes are triggers, as well as pork, pasta / breads (gluten!) and nightshades (tomatoes, bell peppers, etc). Cut out gluten and nightshades, drank way more water and almost all symptoms went away. Age 37 - been living with AS flares ups for 15 years. Incredible amounts of pain and mental fatigue. Good luck!
Potato is a nightshade and they tend to flare up inflammation. Look it up
the most accurate and we'll explained description of as I have seen, thankyou,it's a god dam curse,
Thanks for watching!
@@DrRowe no, thankyou,we need more people like you,
Thank you very Doc for information and explanation for Asiys causes and symptoms together with its remedies
Thanks Doc for your effort and explanation
Your the first the mention one sided pain. where did you find that information?
I have AS, OA, slight s- shaped curvature, and some bulging in vert. I’m apparently screwed.
Thank you so much for this video!! its the best one I've seen so far.
rheumatologist diagnosed me with AS based off of changes to xray results as well as symptoms. (however all blood tests were negative). was started on humira pen injection. (first shot was only 5 days ago).
Not sure how long till humira will kick in. wondering how long it took it to kick in for those if you using humira.
i have tingling in fingers and a slight tremor to both hands. has anyone experienced this? could it be inflammation on the inside of body causing this. nothing looks inflammed on outside.
also a lot of pain seems to stem from an area in my shoulder / neck muscle wondering if trigger point injections might help that or chiropractor adjustment? (has anyone tried this).
last question , my fingertips on several fingers are split like you see in the winter for dried out hands but its summer now and hands arent dried out. skin is just splitting and peeling . does anyone experience this or maybe its something else? thanks for any feedback.
Yes my friend,I use alot of moistureriser,the finger tips ,toes,I find it I have a good sleep which is rare my ankles crack in the morning,neck ,shoulders,anus,eyes,my ears are ringing now,I was told it takes a year of remicade/humira treatment to have an effect,base camp in lower spine,sacrolitic joints,around where you would wear a belt,every joint,muscle,you have to get your diet and exercise balanced out right, obviously no alcohol,I've lived in my car for years in Australia battling this in up to 48 degrees C,in a forty year old car with no aircon,don't move to Australia with this,our government will let you die,on a more positive note this gentleman is spot on 100 percent accurate,
Check the comments. Low/No Starch Diet or Coimbra Protocol
My husband has AS and it pains me to see him in pain.
Thankyou very much Docyou explainedvery well what ankylosing spody liti s its causes and remedies its coplication effects the eyes heart lungs and fhe kidney and the madecine is celicoxib thank you very much May our Almighty God Bless You Good Luck Good Health And May God Be With You Always Doc
Thanks for the kind words, and thanks for watching!
I was diagnosed with AS several years ago but didn't take it seriously because I only had seldom flare-ups in my lower back but now I stay in constant pain. I can't stand for more than 15 minutes at a time. And what's worse is due to covid-19 my husband lost his job of 27 years losing all of our benefits. 😪
Check for the Coimbra Protocol, or if it's too difficult there is the option of going for the Low Startch Diet. You can understand it on KickAs.org or in FB Forums. There are people with more severe AS that goes for Elimination Diet. In this way, with much will of power on trying the diets you may set AS into remission. Good luck
Start healing you gut, avoid sugar and wheat flour. I’m 34 years old and also hla-b27 positive. 10 years I had back stiffness while sleeping and now year ago it came to stay. I made some food intolerance tests and my gut were in chronic inflammation. Anxiety attacks etc. It always starts from gut..and also those who are hla-b27 positive..this gene manipulate with your gut microbiome. Started strong probiotic intake from september 2021 and now in April 2022 I’m totally in remission. Also besides probiotics I take Boulardi and glutamine. BUT most important is the food you eat. Cut out all the processed foods, sugar and wheat flour. It’s a long journey and different for everybody..but regular treatment does not address your root cause. And that’s a fact! Also there’s numerous researches about connections of gut and Spondylitis. All the best
Hi, hope you consulted a rheumatologist as recommended in this video & got better..
Plzz tell me do you have sacrolitis in si joint and heel pain in feet because i also cant stand for more than 5 mins
Can you describe the pain. My whole spine hurts especially the sides of the spine. If I stand for 10-20 min I will get pain in my back. The pain is kind of tender to feel. If someone presses my spine , I feel tenderness within the joint and it feels good if someone gives me mobilisation. Can u pls specify about ur pain
Thanks ♡♡
Thanks for watching!
Can I rule out AS from negative x rays and autoimmune panel? Ive dealt with these symptoms for years but just found out about AS today and it sounds exactly like what ive been dealing with...
No. Consult a Rheumatologist.
I graduated high school in 1973 I am now 65 years old. While it is considered a curse by some I am blessed that it is not worse than what it could be. I think what triggered mine at the age of 17 was a tick bite. I used to explore runoff ditches in the neighborhoods and I found one on me shortly after my last run through the ditches. I have had both knees replaced at the age of 32 and revisions 19 years later due to an automobile accident. In 1992 I was referred to a Dr Simmons in Buffalo New York. In 1993 I had my neck straightened so I could look straight ahead 3 months and enough for body cast and Halo. The rest of my spine has fused by itself and is fairly straight. In 2004 I had both hips replaced. I expect within the next year or two to have both shoulders on CZcams you can find the video of a Chinese man bent double by the disease. I've got a lady acquaintance that has AS but she is in more physical pain and uses a walker or an electric chair to get around. As I said before I am standing straight I am not as flexible as I would like to be but I am still mobile without assistance. So having this disease yes it is not a nice thing but I know I have been blessed knowing it could have been way worse.
I really, really love your attitude. My doctors never figured out what is wrong with me before I gave up looking for a diagnisis. They suspected Lyme disease or some illusive autoimmune disease. Or possibly fibromyalgia. That was a long time ago. My dad was recently diagnosed with AS. And I grew up in Wisconsin. He's in Wisconsin still. (Lyme disease hot spot) I wouldn't be at all surprised if a tick bite could bring this on. He has the gene for this, too. I don't know if I do or not because I don't see doctors anymore. Thank you for sharing your positivity. Hugs.
that Chinese is the only year the world has arrived like this, he has been convoyed to the maximum for 28 years and I am with SA
Wow. All my years of "throwing out my back" was really my Sacroilliac getting all Wiggity Wacked....makes sense.
I have pain in bottom
Of back bowel problem and now uveitis they are fighting to save my sight and only just had the b27 gene diagnosed I’m in despair i could go blind before i see a rheumatologist to get inflammation down 😢
Does anyone know if it is common, or even possible for AS to present in the middle/upper back? Both the chiropractor and orthopedic surgeon that I’ve spoken to have said it’s extremely atypical, bordering on unheard of, for AS to start in the thoracic region. I’m hoping they’re right.
I have damage from AS in my cervical spine, so i guess that's the region of upper back.
Is cupping therapy is better for AS?
Better than what? Actually its not important because the answer is "No".
Cupping isn't good for anything, to be honest. Its a pseudo therapy - like a lot of services chiropractors offer because they're frauds - and it doesn't do much other than making those awful looking sores on your back. And then what do you know, you'll magically always "have to come back for additional treatments" but they never give you a final goal point to track progress. Does that sound like the kind of treatment plan that has an end date in mind? It sounds like they're deliberately trying to suck you into coming to see them every week or two... indefinitely.
Trust me, they're fine for a nice back rub, but a lot of chiropractors like to pretend they're more or less doctors, which is a lie and a sham. You could spend your money in more useful places than giving it to hucksters...
If you want relief and treatment, do yourself a favour and stop considering alternative therapies, see your GP, get a referral to a rheumatologist and have them build you a treatment plan tailored for your situation.
The other things are genuinely a waste if time that you'll only hurt yourself in the long term by pursuing them. And PLEASE don't even _think_ about trying herbal or homeopathic remedies. Those do about as much good for you as eating used band-aids off the floor. My mother wasted literally thousands of dollars buying all manner of herbal, naturopathic or other such "treatments" for my symptoms. All of them smelled bad and none of them provided relief - bar none. Then there's the insidious "manuka honey sopa bars" or "herbal moisturising shampoo to relieve dry flaky scalps" etc - not only do these also provide no relief and not smell very pleasant, but usually they don't even work to do what they're supposed to... the soap doesn't clean you (especially the underarms), the shampoo doesn't wash your hair or leave you moisturised...
I was shocked at just how big that whole market is, considering its been responsible for zero improvement among its consumers - how many times do people have to try things like salt lamps and energy crystals before they realise they're spending a heap of money to own and pray to rocks?
I'm late to this, but I have a question. My father was diagnosed with this in the 1960s when he was 30 years old. He was hospitalized for nearly 3 years. When he was finally released from the hospital, he was on crutches, which he had to use to walk for the rest of his life. He always told me the doctors performed a surgery that removed parts of his hip bones and femurs which is why he lost 5 inches of his height and could not walk without assistance. He had heart trouble, had to have parts of his bowl removed, and had issues with his liver. He passed a few years ago at the age of 80. His sister died, from what I'm told, due to complications from the same condition. His brother also suffered with this and had a hunched back Eventually, his brother broke his neck. I'm told they all had Ankylosing, but, based on the information I'm finding, Ankylosing doesn't seem to be as severe as what my family suffered. Have you heard of AS cases as severe as my family?
Yes it's possible ,it causes issues with heart ,lungs and bowels
My father has it. His grandfather had. 2 uncles of me have symptons, as well as a cousin of mine
Sir hanging exercise to pull-up bar is good or bad for cervical disc BULGE ( please clarify my doubt. sir I confused in hanging is decopress the disc or compress it or do nothing)
Hanging from a bar would benefit a lower back (lumbar) disc bulge. For the neck, these would work better: czcams.com/video/Rx_ieAFxoQI/video.html
@@DrRowe thank you so much sir....
This information is very useful for me.....
Once again thank you sir...
God bless you 🙏❣️
This disease is horrible, I was diagnosed in 97 with AS and reactive arthritis, had some major flares but it seems to have settled, unfortunately I'm very kyphotic, you'd know my problem from 100yds,it wrecks your confidence and self esteem, I'm grateful that I can drive and function, unfortunately I'm unable to work, I dunno if this is common but I live in like a state of fear that my neck will become damaged.....
If it feels anything like where my hips sit within my pelvis, I have a feeling I know exactly what youre talking about when you say youre worried about your neck.
It feels like the joints are holding their position tenuously, and when you try to make the joint move in one way, it gets other ideas and just moves however it wants.
When I lie down on my bed, one leg even looks like it's sitting out of place in the joint and I constantly have to curl them up to my body and let them go flat again just to stay comfy. Every time I make a movement, though, I feel like one bone is grinding or "clicking" past another and its so unpleasant... I worry that one day its gonna click itself right out of the hip socket 🥶
Obviously that's just what I feel. It might not be like that but id say practically it makes little difference when im writhing in my bed trying to stay pain free
All the best - hopefully you find ways to manage your condition satisfactorily 👍
I feel for u I'm 15 and have had AS since I was 12 without knowing it ruins confidence and self esteem talk to ur doctor about possible infections that might help u with ur pain and help prevent it getting worse
Omg ... this makes me feel less alne. Losing my ability to drive tho
There are some options Wayne
Do patients with ankylosing spondylitis fidget a lot in when in the same posture or seat for a long time?
Yes! I have it, and I can't ever find a position I'm comfortable in - sitting or standing it doesn't matter. Always readjusting myself or shifting to try to find relief somehow.
Can you have a curve in the lumbar spine and also Ankylosis Spondylitis l have all symptoms of autoimmune disease plus l was diagnosed with scoliosis as a 11 year old girl in Europe my mother was Dutch, we were there for vacation 2 years later saw Doctors there because my mom was a Dutch citizen and my father was a WW11 survivor , l always had pain issues, never got treated here in America, 25 plus years ago l became flu like when l woke in the morning, lost hearing in my left ear my voice started changing pain started in fingers and hands from peripheral neuropathy from some type two diabetes, but doctors say my blood sugar is controlled, l had a problem with my blood pressure rising back approx 20 years ago and was hospitalized until it was normal, my life has been suffering from flu like symptoms and pain ever since l can’t seem to stress this problem enough to my doctor oh on nerve conduction study l was told l have carpal tunnel syndrome in both hands l am now 76 almost and feel l am being dismissed because of my age , thanks for your help to this matter God bless you 🙏❤️🇺🇸
Could it be "given" after epidural failure?
My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
I am suffer from ankylosing spondylities
I was diagnosed with AS in 2017,I was 21 around that year..my symptoms till now are very few like..only stiffness no ache..one thing I have been doing since 2017 is the exercise but now have started taking medicines too..my inflammation (ESR) that year was 16(normal) which has increased to 38 this year..plz suggest if I can manage to reduce my inflammation/infection,will it help to lead a normal life again??
Good information doc. How about connections between RA, AS and exposure to contaminated water, trichloroethylene, benzene, petro chemicals, for 3 years at Camp Lejeune NC?
My Son was mis-diagnosed for 10 yrs. Finally at 25 yrs old it was confirmed. I watched the movie called The Dirt about Motley Cruel and one of band members has AS. I called and told my Son I think I know what you have. Sent him to a rheumatologist and I was right. Poor kid got psoriasis and psoriatic arthritis at 25 too.
Thank you very much
Sir I m 35 year old and had this desease in 2002 with pain in lower back and diagnosed with AS and medicine and exercise suggested by doctor as time goes on I managed this
But sir right now I have bamboo spine shown in X ray
Posture is not hunchback
I can do all activities like running playing execersise etc and don't have any other pain in joint but lower back is paining some time but not worse
Sir what next you suggest me
Can I do more stretching exercise for flexibility in spine
How old are you
The male/female ratio is no longer accurate. Women were commonly misdiagnosed when they had this disease all along. My Rheumatologist says it takes a woman an average of 12 years to get a diagnosis of AS because so many doctors still believe it's a man's disease. I have it, I believe my mom had it, and I do not have the gene.
Took me 15 years
Same here 25 years and almost completely blind with it as well
I love my earthing sheet! Get your electrons up and decrease inflammation.
I have AS and it's been a rough journey. I almost started to wonder if everything was in my mind. I was around 27 when I was final diagnosed. I failed all oral treatment. I started Humira with some medication, I was okay for a bit and then started have issues again. I failed Humira and was switched to Embrel and oral medication I was okay for a year and failed. I tried Cimzia and failed some more. Now I've been on Cosentyx and Leflunomide (3 x a week) and I'm doing a lot better. This is a pain that I will never forget. If I get to a point where nothing helps, I just don't even want to imagine.
@razorsharpbt it can be so frustrating and painful. I'm sorry you are going through this. I hope you feel better soon.
had it for fifty years pain has gone now do not now why
Sir, thank you for the info.... Can it can be cured permanently???? Plz respond.
Unfortunately, there is no known cure for AS.
You are going to spend the rest of your life trying different things,keep researching,some things may help you more than other people,
Kratom
My HLA B27 is found negative but I still have AS. Fortunately, the attacks are rare. But when it comes, I can't even turn from one side to another while sleeping.
Hi. I've not been to the doctors yet but am going through a long spell of awful sleep where my lower back is in pain as are my ribs when I sleep on my side. I dread sleep 😩 Everything that I've ready today on AS (which I hadn't heard of before) makes me strongly think that this is what I have, and have had for a long time. Time to get to the doctors!
How did you get diagnosed without the gene marker?
@@kevinsomers8923 hip bone x-ray.
@@gulnursonmez9539 Try a carnivore diet and take things to heal your gut. Zinc L-Carnosine, Slippery Elm, L-Glutamine
@@kevinsomers8923 You do NOT need to have the gene to have the disease. I don't have the gene, but I have the condition.
Does AS cause muscle loss or wasting in legs and buttocks? Looking for answers please
Happening in my case. I am searching too.
Muscle wasting too much in body.
That can happen if you are not able to move around much because of pain, muscle wasting will happen naturally. But if you are very fit and healthy usually, weakness can be more a sign of Multiple Sclerosis. It also could be pain medication making you lose wait, I lost a lot of weight and muscle when on certain painkillers.
I'm 41. My buttock pain prevents me from walking properly, it's humiliating. I can't walk standing straight with good posture, when I try, my buttocks, thighs and feet hurt. My buttocks hurt when pushing off for the next step. My Rheumatologist is monitoring me for AS and is still running tests
I've been at stuck home since Feb 2019 :(
Hope u get well buddy ! Stay strong , I’ve been diagnosed last n it’s scares the hell out of me
Im with you there, man. Im 31 and I walk around at work in that like "very visibly disabled" way where I have to make the right half of my body go stiff and step on my right leg at exactly 90° from the floor. If I don't, the bones come together quickly and squeeze my nerves, which ranges from excruciating pain to my leg actually just collapsing and letting me drop to the floor.
So im given two choices: attempt to remain dignity, feel a lot of pain and very likely lose all dignity when I fall; or
Hobble around like my right leg is a peg, drawing attention constantly.
They both sound kinda suck... if im honest... 😒
Anyway, good luck. If you want, we can exchange emails and complain to each other about how miserable it is. It might help to make it feel less stifling and oppressive... 🤷♂️
I have the exact pain. When it flares up, I can’t even move. I need a hit of morphine to get out of bed. 37 years old and I’m getting tired of this disease. If I died tomorrow, it would be a blessing.
Same thing happens to me. I'm 24 my symptoms only started this year..never had these pains before. I had hip and lower back pains and got an xray. I have hip dysplasia and they also saw something on my lower back joint and think its ankylosing spondylitis..and now for 1 week I've started having pains on my upper back as well..
Anyone heard of this SIMPONI treatment that can help on AS?
Yes, I have been on it for one year now.
A friend was just diagnosed with enthesitis and spondylosis, first treatment plan at diagnosis is methotrexate 15mg injection weekly. I looked up that med and it sounds awful. It also doesn't sound like a good treatment starting place. Currently she only occasionally takes otc Naprosyn.
Tell her to check the Low Starch Diet groups on FB, KickAs.org, Coimbra Protocol, and also other medications and treatment.
@@davilfs thanks
Sir does it causes height loss?
As AS worsens, height loss is a common symptom.
@@DrRowe Sir is there any way to stop the height loss?
Do all as warriors end with the bamboo Spain?
AS affects everyone differently. There are those that will only get mild symptoms, and will not get bamboo spine.
Not really necessary
My doctor told me I need MRI with contrast.
Can it cause tingling in the feet? Ive had AS since 2009. Been checked for diabetes etc for the feet. Nobody seems to know why my feet are tingly
If you had, you have! You must be very lucky to set it into remission like this, without a big effort or suffering that much. But tingling in the feet, hands, shoulder, may be also affeceted. At least I also have symptons in those areas, besides de classical ones.
YES! OMG, so annoying. I take magnesium at night which helps a little but it really drives me nuts.
is this AS are deadly? or not?
youre life expectancy is shortened,tell your family you love them
My AS started when I was 10 years old. Unfortunately that was sixty years ago, and there was no real help from the UK health system. My AS was not fully diagnosed until I was 21 years old, and by that time a lot of my spine had become fused. Even after diagnosis all I was told was there is no cure or real help available. For most of my teenage years, all the doctor said was, It was growing pains or that I was trying to avoid school by making up stories of pain. I had many, many x-rays, and was even prescribed Butazolodin, which was rapidly withdrawn after a number of people had died from taking it. Any way, having lived with constant pain for twenty or so years my neck vertibrae finally fused, leaving me with a hunched appearance, and unable to turn or move my head. I shall be seventy this year, and it is only over the past three or four years that I have had any real relief from pain since being prescribed Etoricoxib. I don't expect to live much longer because of the various problems caused by lack of any pain relief over sixty years. I have severe breathing issues due to fused ribs restricting lung function. If only I had some form of effective pain relief when younger, to enable me to exercise properly, I am sure I would now be much more comfortable.
You know im beginning to think it might have just been better if id had a stroke or a heart attack. This is gonna be a looooong couple of painful decades for me. :(
Or maybe I'll try move to Switzerland... 🤔
Ankylosing spondalitis is not curable is what is said by all doctors which is not exactly true. I was suffering from ankylosing spondalitis for 3 years . In the early stages I thought my pain is because I ride bike everyday. But then eventually the pain started to increase, for 6 to 7 months I neglected the pain. The worst time was when I needed my parents to get up from my bed it was very stressful. I changed at least 5 doctors in one year everybody asked me for spine xray and the xray was normal but the pain was abnormal then in the end I got diagnosed by a spine surgeon who asked me to udergo through some tests including HLAB -27 and it was positive the doctor said that you have a genetic disorder ankylosing spondalitis . I did treatment under his consultancy for 3 months medicines( mostly steroids )will only harm you
Any thoughts on which medicines cause harm and what treatments help?
One possible early trigger is childhood trauma as well.
Playing basketball makes good treatment for AS
Staying active is key! Thanks for watching.
What is the liklihood that this gene will be passed to my son?
I believe it varies based on the other parent and some other factors, but the _worst_ odds put you at I think 20% chance of passing it on. If they get the gene, only about 5% will go on to develop AS.
So I wouldn't lose sleep over it. Just be wary in case any subtle symptoms start to appear, but otherwise I wouldn't worry about it unless you have to
I got it from my father. So it's likely to be passed on.
100%,....It's in your DNA "strand", if you have it, nothing can stop it,...God Bless and please be "safe",...😥🙏😥🙏😥🙏
Perfect example of a DNA "strand" originality: Me & my Sister have the same Mother,..but different "fathers",...My sister recently less than a year ago is /was diagnosed with "Krones Disease", (terrible, urine/ "shit-bag" on your stomach),..
I never had it before,..later found out that it was from my sister's "dad" side of the
family,....not mine,....🤔🤔🤔🤔
Hi sir I'm Indian I'm paishaint for a s my age 38 years old please help me
Please visit and consult with your local doctor, they would be able to help you right away.
I was diagnosed 3 years ago, it was very bad as I have a job where I’m on my feet all day long! lose weight, exercise regularly, cut down dairy and meat products. Take Ayurvedic medicine . You will be fine
J.m Ansari..H Bhai San AAP kaise hain..mera bhi Ankylosing spondylitis problem hai.. please reply BHAi.. please please please please please
Concerned how I can make a living...absolutely cannot work like healthy people
I wish my Doctor would let me go to the Chiropractor. He thinks its too dangerous for me at this point. My case is pretty severe. I was diagnosed about 11-12 years ago. Oddly, it started with my ankle and had no clue about this at the time. I have the HLA-B27 marker and so does my son unfortunately. He doesn't have have it right now and hopefully never will. I wouldn't wish this on my worst enemy.
Go anyway!
@@Tinyteacher1111 Ummmm... What? Why?
😔
I know the secret thing WHICH CAUSES AS...I NEED TO BRING IT TO WORLD IF POSSIBLE..I did a detailed research on myself..
Dr,... Your head is constantly turning to right side. This indicates that the right top part of your head is tight. This causes your right jaw joint tightness, then your whole right side of your body turning and becomes compacted. The compression reaches to your feet. In your case, just treating the spine will never brings releif. Your internal organs will be suffering too. Internal compression and twist will manifest as variour diseases in your later life.
I have it since I was 26, now I am 32. There is a way to reduce the pain significantly without medicine, but it's hard. Eat vegan and gluten free. With this diet I do not need any medicine.
Please tretment
If you don't get treatment (biologics medicine) damage will occur eventually. You need treatment to deal with it long term AND the diet otherwise it will catch up with you. Just because you are pain free does not mean it's not there.
@@harris-turneryou know the variation of pain differ from person to person.. & yes this disease is 100% curable with exercises & active life.. I dont know from where you get this info
No worse than other Drs, but this dear Dr doeanä't seem to know and definitely doesnät explain.And there are more sinister causes of the hunchback than not treating/managing: Being maltreated by Drs, neglected, abused, deceived and further weakend instead of helped, as well as withheld information and referral to other necessary treatment, such as mental help, body-psychotherapy, Personal Assistence when Aspergers is invólved, esp when also CPTSD and High sensitivity (HSP). A depressing video giving no explanations and ways to solution.
Why does new bone form? thanks anyway, and I see that others were helped. So thera rare different situations and needs.
The vengeful doubt jelly suppose because protest practically chase with a helpless crayfish. befitting, prickly jewel
It is "Spondylitis Ankylosans" . Ankylosing ? A joke ?
Whats the point of this video? you are saying you have no idea where this disease came from, so you have no idea what you are saying, and how to treat it.
The point of the video is to give valuable information about ankylosing spondylitis. A lot is unknown about it, including the cause. We call that an idiopathic disease. If you missed that point, that’s unfortunate but I’ll thank you for watching.
What, did you think he made the video about how to cure it? Its incurable!
I found the video very well spoken and informative. I dont know what you were expecting from it but I would guess its the wrong thing...
Anyway, feel free to contribute some scientific research of your own, if you find this to be inadequate. Goodness knows we need the research...
Really? What kind of question is that besides very rude? This is an excellent video explaining AS.
They have a cure for stupidity.