We’ve Refused To Answer This… Until Now
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- čas přidán 6. 09. 2024
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Shane Burcaw (he/him) is the author of several award-winning books about disability. He is the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah Burcaw (she/her) graduated from Carleton College, where she studied Sociology and Anthropology. She films and edits the “Squirmy and Grubs” vlog, which has over 1,000,000 subscribers on CZcams. Hannah has spoken at prestigious universities and Fortune 500 companies alike about the realities of ableism. On her popular Instagram account, she advocates for acceptance of all people and works to improve the way society thinks about disability.
Shane and Hannah have been together for over four years. They got married in September of 2020 in the midst of a global pandemic in their backyard, with their officiant conducting the ceremony via Zoom. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
(The following was written by Shane)
My existence is not a burden. While this statement might seem obvious at first glance, the idea that my caregiving might burden those who love me has been an ongoing struggle throughout my lifetime.
When Hannah entered my life and began taking on more of my caregiving activities, my biggest fear was that I’d become a burden to her, that my care needs would overwhelm her and scare her away.
Instead-and I cannot properly convey how quickly I get teary-eyed when writing about this-she welcomed this facet of my being with open, accepting arms. With gentle reassurances and intimate compassion, Hannah single-handedly helped me understand and overcome my burden complex. She showed me, without shadow of a doubt, that I am whole and worthy of love, that true love is not contingent upon my physical ability.
We are proud to be launching a new line of Squirmy and Grubs merch today, but we wanted to start this new adventure with a symbol that was deeply important to us, and one that might resonate with you as well.
The battery emblems embroidered on our new sweatshirts are both personal and universal. Hannah and I have this exact symbol tattooed on both of our bodies, a reminder of our first big trip together, when my wheelchair battery died in NYC and Hannah introduced me to the idea that my disability was not a burden. More broadly, it’s a symbol about finding the strength, energy, and laughter within ourselves to overcome adversity.
A merch launch definitely need not be this emotional, but we hope you’ll connect with this conception of embracing love. (Btw, there’s one other design that was made by graphic-designer extraordinaire… ME!).
Grab one for the upcoming holiday season, and please remember to be kind to yourself today and always!
Link to purchase: shop.squirmyandgrubs.com/
I want to buy sweatshirt hoodie! ❤
Lovely and great testimony to your love
Shane, you are a very lucky man, but you dont need me to tell you that because you already know.. Your wife is absolutely gorgeous on both the inside and the outside.
That being said, Hannah is equally lucky to have you as her husband. You are kind, caring, hilarious, witty, boyishly handsome, intelligent (except when it comes to geese😂), compassionate, etc..
The list truly goes on and on for the BOTH of you!
When I get paid I'm buying this sweat shirt because you see I also have Muscular Dystrophy and totally understand the battery because of my energy levels at times
Well said! I became disabled later in life and this topic consumed me for years but my sweet husband has never wavered in his love for me and never treated me like a burden. We are all worthy regardless of our differing abilities!
Hannah's response about biases towards caregivers really spoke to me! I felt that way as a SAHM for 17 years. People just assumed I was tired all the time but it was a joy to care for my kids. I think that could be a really good deep diver conversation. Thanks for sharing!
This is Love, what makes care to joy.
You never really know how the things that you say affect someone....well, maybe but rarely. Today, reading Shane's writings had a tremendous impact on me. Thank you. My husband has Parkinson's Disease and has had it for a number of years. There are times that I so long for the husband he used to be before all the changes in him have taken control. Patience for me seems to run out long before I need it to. I have prayed about it and continually work on having more patience. This today has given me a new perspective on being a better caregiver. Thank you.
May you know some respite as being a caretaker is both emotionally and physically challenging.
Give yourself Grace. It is healthy to grieve the changes in lifes circumstance. Having difficult feelings does not negate the Love you have. 💚
And you need to have also a special time just for yourself. For something which brings you joy! On some video I saw Hannah running and smiling, this obviously was fun for her. You may chose something else - to go to the cinema by your own or with friends, or whatever gives you joy - you have to show love for yourself too, not only for your partner. 🥰
I learned this from a PT friend of mine. Hiccups epicenter are between the 3rd and 5th vertebral area. Your vagus nerve and vocal cords run very close together, which is part of the cause of hiccups. If you slightly tilt your ear to your shoulder and massage the vagus nerve (the "side of the throat/neck area) it will get rid of the hiccups because it relaxes that area. Learning that little piece changed my life, works every time. It also works on dogs when they are hiccuping or stuck in the breathing cycle where it sounds like they're suffocating on air.
@@blueyzblue6391 that's what I was wondering.
I will try this, thank you! I have always relied on an old family cure, which is 100% successful but which requires a few steps. And I often get hiccups when I'm lying down, so it would be nice to try something more simple.
As someone who gets chronic hiccups this could be a game changer
I wish more couples used the "us against the problem" mindset, its so healthy and refreshing to see.
In this world full of animosity, hatred and negativism, your love to each other is a candle in the dark. Your love as a couple is hope to broken marriages.
I loved your face, Hannah, when Shane was explaining how to get rid of hiccups. Absolutely Priceless.
I'll never "taper off" as a viewer. I'm sure I've seen every one of your videos and now podcasts. That will never change, you're stuck with me. You're the cutest couple.
Same!
I’ve often wondered how Shane’s parents felt about him marrying Hannah and moving away. Did they ever think that he was going to need their care and help forever? Did they think he would have his own place and have a hired caregiver? I was wondering what they envisioned for his future. Shane and Hannah have such loving families. I love you both and feel you both have the perfect families in this life together.♥️
When Shane was 17, he and I spent a week at DuPont hospital for children to learn how to regularly install and remove an NG feeding tube ( a device that is inserted into his stomach through his nose). We were there for 4 or 5 days and we had a lot of downtime. I remember one morning we were sitting in a courtyard and Shane asked out of nowhere how much he would need to make to drop out of college. I said, “a million dollars. You’re not dropping out of college.” He didn’t. But the look on his face then told me that there wasn’t anything he couldn’t do if he set his mind to it.
We didn’t know what his life would look like back then, but we knew he’d kill it. And that has turned out to be the most sublime understatement of the century.
Shane and Hannah said their parents watch the videos. We also read the comments and when it is truly meaningful, sometimes we’ll comment as well. Keep asking the good questions. These crazy amazing kids will set you straight!
@@jonburcaw you and your wife must be so happy Hannah and Shane found each other.He's living such a full life in every sense.Wishing you Happy Holidays xx
Not married
@@florencegill5189 yes they are married.
@@florencegill5189 Hate to say it they are married they do have a certificate or marriage license yet I made a few calls where the live and county and city and state and talk to a marriage department of where they live close by yet their marriage isn't a real fall in love marriage like they claim to be and say they're a greedy fame agenda.
Hannah, it was very helpful to hear your thoughts about someone saying, "that must be so difficult for you", or similar remarks. I never thought about how that phrasing blames the person who needs help. I know I've said things like that before to friends who provide long-term care for aging parents. My intention was to offer sympathy and acknowledge the circumstances of caring for someone else. You've helped me understand that there are far better ways to support my friends, and much better choices for the language I use to show compassion.
I find so much joy watching you two interacting with each other. I’m not 💯 sure if it’s one exact thing but maybe a combination.... of love, honesty, humor and plain silliness that keeps me coming back. Have a great time with your boys and girls week.
This video touched me, in a big way. As a 37 year old physically disabled man, society has taught me that it's very much a "you"(a disabled or afflicted person, whether it be physical or mental) and " them"(a "normal" person walking on two feet with absolutely no disability or anything "wrong" with them) world, and the two are not mutually inclusive. I still have not really come to terms with the idea or belief that there is nothing inherently "wrong" with me, and that I'm just a regular human being like everybody else.
@@joycedominguez8997 I agree with the both of you! I'm 44 and physically disabled and I got into the mindset that I'm a regular human being too. I make a point of saying that I finished 3 years of college and have leased my own car since 2012. I'm now a live in PCA and am looking for someone to spend the rest of my life with.
There is absolutely NOTHING wrong with you, or me, just because we are differently abled!!! We are what we think we are!!! Sending much love and beautiful blessings to you. 💕
Mutually exclusive??
@@joycedominguez8997 my mom was in a wheelchair my entire growing up years. She never felt sorry for herself nor did she express that I or anyone else SHOULD help her. She did everything for herself and I never thought of her as disabled. It was only when I went out in public and other kids would ask “why is your mother in a wheelchair?” The other thing is adults said things to me like, “your mom is going to miss you while you’re away at college… Who is going to help her?” I told my mother of us and we both just scratched our heads. I think people thought she could not do anything on her own. And she actually did everything on her own. I also think it is important for people not to assume that someone is not cognitively able just because they are in a wheelchair. It is pretty unbelievable the things people assume…
@@l.a.w.79 Indeed it is!!!
You two are a beautiful couple. I've seen some negativity and it pisses me off SO much! You guys bring much needed love, light, and comedic relief to the world and should be APPLAUDED for that! Shane, you were never a burden, you never will be a burden, you're a fantastic human being and your wife is just EPIC, and I wish you continuing happiness and health! Happy Holidays to you both!
"I said mashed potatoes." You guys make me crack up!
You guys are a blessing to my Mondays and Wednesdays! Your personalities are so interesting. I am an older person but assess-ability in many areas is on my mind for you and other people struggling with those issues. You handle it well.
Grandma from Kosse, Texas. Happy Holidays!
@Martins wells I graduated with you in 1969. My husband and I live in a very small country town about an hour from Waco. I used to see you on Facebook but I don’t go there much anymore.
You did make me smile! We spent 12 years together in Galena Park schools.
I love how you look at him when he’s talking , you’re so into him .
Hi u from?
You two people have the best sense of humour.❤
Monday Grubbag Question: We know a bit about Shane's prior dating relationships from his books. I'm curious if Hannah also dated seriously before Shane, or was/is Shane her first love? (Also, have an amazing time on your bachelor and bachelorette party adventures! Looking forward to hearing about them.)
No the relationship is a sham
I love seeing you guys so happy together. It's nice to see positive in our world. Peace be with you both
Shane's writing "My existence is not a burden...". Is so powerful and emotional. I hope you print this up as a poster. So many things you two say would be great printed on T-shirts, cards, etc. As for me, though I am not disabled, I ,too, felt like my very existance was a great burden to two young, wounded parents who were not able to be there for us, their children. My Dad was an alcoholic who was completely absorbed in his addiction. My mother was the angry, hurt, bitter co-dependent who worked herself to the bone and we 3 kids were left to take care of ourselves the best we could. So I could relate to Shane's feelings in my own way. It is so amazing that you two found each other and are showing the world what true love is.
12:55 Hanna face is priceless!!! 🤣💜And clearly not the first time she's made it. LOL You both go together like peanutbutter and jelly!! ~~~much love 💕💕💕
Shane your demonstration of getting rid of hiccups was hilarious. Thank you for making me laugh.
thank you very much for making me roll my eyes so dramatically at that last question XD
I think being a caregiver is very hard emotionally at times. I have several close family members that need me emotionally and physically. What makes it easier is the appreciation that they show. However there are times when I’m physically and mentally drained from everyday life and if their attitude is ungratefulness or “pity me” I find my patience and grace waining a bit. This is when I have to apply some tough love which is not always ideal. I guess what I’m saying is I feel honored to be able to care for my family but is it always easy? No. Do I want them to feel like they are a burden? Absolutely not. Just remember we are not born with patience, it’s something we have to learn and practice.😉❤️ ( caregiving for a loved one with dementia adds a whole different dynamic to the situation)
As a disabled person this comment is tough to read, having to constantly be grateful to others for helping with what I literally can not do for myself and never allowed to grieve that would be exhausting and painful. I can’t be tough loved out of being disabled. And as disabled people we aren’t inherently born with extra patience either.
I'm glad someone else said this first. These two are awesome, and have given me food for thought, as have you @Chronic_Payne. I think in our family caregiving is more challenging because the caregiver is also the breadwinner, a parent, the housekeeper, etc. There's no rest or empty time. And money is an issue. I'm glad Hannah and Shane can make a living while being together at home, and currently she's not also up nights with children. I have no doubt they'll do great, because they have great attitudes and strength. I just felt like I wanted to defend those who feel drained and overwhelmed as well.
@@NonMormonUt Agreed.
@@NonMormonUt Due to the lack of my mobility there are things my other family members can do more safely than I can. Yes sometimes I’m bummed that I’m not able to the things I used to be able to do. However I never forget to say thank you to those who assist me in any way no matter how small. The brightness that shows in their face for the appreciation I have shown is very notable. This was instilled in me at a very young age. I imagine that everyone situation is different. I truly hope that you have a wonderful holiday. Merry Christmas ❤️
Can you list how many States y’all have been to?
Favorite area/place/location/ terrain?
Favorite town/city?
Favorite activities while on vacation?
I know accessibility heavily reflects your choices…but what places do you wish were more accessible? (Of course all should be more accessible but top choices?
Thank you
Lorrie
You two are totally amazing! No one has life figured out but you two are going strong! I Love watching your videos! You seem like a couple who just takes it a day at a time and not afraid to try things together. Your trips are my favorite because looks like you both like to travel even though its difficult, you two figure it out!!!! Keep it coming We all love it!
I love you two so much! You are 100% correct in your statement about disability being acceptable and society being ableist and ignorant. So so true!
Thank you for continuing to share intimate parts of your lives. Your videos bring smiles to mine and my family's faces! xx
Shane you just totally crack me up! You make me smile through my toughest days and that means more than i can say...
Thank you for a reminder that disability is not a burden. I currently live with my parents due to health problems, and it's good to be reminded every now and then that the little voice saying I'm a burden is wrong.
you absolutely aren't a burden ❤️ having health problems is out of your control and it isn't your fault.
@@Nyctolust Yeah you are right, and I know they prefer it this way. As my mum once put it, at least this way she can check and see I'm still breathing xD Society is just good at teaching us to feel like a burden, so that little voice can be persistent even if you rationally know the voice is wrong, so it's good to be reminded every now and again. Thank you for taking the time to read and reply, very sweet of you :) Hope you are having a good day.
I saw Shane’s shiny new chest harness and thought “can it be? Have they figured out his new chair?! I’m so happy for them!” Why can’t it be an easier process for you 😩
The new harness is beautiful though, I’m glad everyone’s suggestions helped!
My husband had a stroke in 2020 and to be honest, I struggle with caretaking. Once we get his power wheelchair and van, we will have more independence and hopefully, easier. I admire how you aren't stressed out with 24/7 caretaking.
Amy, there is no shame in bringing in outside help if you need to.
@@chucktaylor9494 well, how would the relationship be different for you to say that the relationship is real?
@@TheMtnMojo he tried this with 2 other girls, he had a camera crew following him long before Hannah was in the picture, the Pass doesn't lie, the relationship is a hoax
@@chucktaylor9494 ok, I have been following Shane since before Hannah. Not too sure what that has to do with the legitimacy of this couple's relationship. Who or what is the Pass?
Omg I've never seen anyone else that fixes hiccups the way I do, the way Shane described. I've been doing that for years, holding breath and flexing diaphragm as if you are trying to expel air out of either end. It's the best way I've ever found
For hiccups, pour a small glass of water you can drink quickly. Light a match and put it out in the water, drink the water. Hiccups will instantly go away.
All your videos are so interesting and fun. I can only imagine how many people you inspire who are disabled or married to someone who is disabled. I have watched your videos for a couple of years and every single one I am inspired and giggle a lot. I just read the comment from Shane's dad and as a parent myself, I know the pride your parents must feel and the peace they have in knowing that you are married to the love of your life and are happy. I spy Chloe! So good to see her❤
Hannah, I loved your insight on how a counselor should not assume one's experiences with caregiving are negative before asking first. This is a major key to successful counseling-- never assume and never believe you know someone's story, experiences, or feelings before they tell you them! Love you two! Have a safe trip!
Thank you both for another enjoyable glimpse into your lives.
On the question of curing hiccups, something that always works for me is taking a mouthful of water then holding my breath and swallowing the water in as many little sips as possible before finally releasing my breath, breathing in and finding that the hiccups have gone!
Lots of love to you both,
Derek
I've been binge watching your channel since I found it about a month ago. I love it. You two have a similar relationship like my husband and I have. We get along great just like the two of you do. My question for Monday Grub Bag is if you were approached to do a reality tv show would you consider doing it? Either way I love watching you both and look forward to seeing more in the future.
You guys are a bright light! Such amazing souls
Every time I remember you sliding off the ramp at your in-laws I visualize it and giggle. Of course I know that you were ok after it. And I’m a retired nurse practitioner soooo we all know nurses and practitioners have warped sense of humor. Love you guys.
You are amazing, in all your videos you can tell how much you love and care for each other. Please keep making your videos. Thank you for allowing people to see your life. Don't let negative people get the best of you real love is hard to find.
Couple of follow-up questions to today’s ones:
#1 = I remember when you first got your Jayco arm, that you used it to help feed yourself Shane. Do you still use the arm for that?
#2 = where are things at with the book you are both writing on ‘interabled relationship’?
Thanks as always,
Kari🌞
I was a nurse for 30 years. It was both an honor and a pleasure to help others, and I'm proud to say that some became my "family." Love means never seeing caring for a loved one as a burden- ever.
(Non-practicing) Massage therapist here... Regarding hiccups... Here is how I look at them. Hiccups are your diaphragm spasming (kind of like a muscle spasm) so holding your breath and putting downward pressure on your diaphragm is kind of like massaging a muscle. So that is why it usually works.
I love the little clip of Shane pulling Hannah in a wagon in the intro video. It's too cute.
In case the therapist that asked the question is reading the comments-therapists need to be willing to work with people who use AAC both low tech and high tech and people who have intellectual disabilities. Disabled people have something like an 80% likelihood of being abused and finding therapists for people with ID, who use AAC or therapists that know ASL or are even ready and willing to hire ASL interpreters is extremely difficult. If multiple of those things are true it’s impossible. Which mean that so many Disabled people are living without the ability to access mental health care, learn skills for emotional regulation (which is even harder when there are limited people who are willing to value you and/or your communication method and often don’t have bodily autonomy) or understand how to deal with their trauma.
As a caregiver I want a therapist who will actually work with my kid and for me I want someone who won’t justify shitty actions and promote ableism and won’t treat me like a hero bc I learn and grow and am a parent (not even the best parent just one that does the stuff my kid needs). I also need someone who can work unconventionally bc you don’t just get a babysitter.
Ableism is the reason I, as a Disabled caregiver of a Disabled child, struggle to find a decent therapist and ableism is the reason my Disabled child who needs a therapist can’t get one.
you are such a breath of fresh air, full of light and love, thank you for sharing your adventures. In this video, the idea that people not assume that being a caretaker is hard and difficult 'work' - insightful and wise advice for us all, and thanks to the person who asked the question which led to this. Best to you both.
Thank you for sharing your lives with us and educating us as well. I believe the way you live your life together is proof that love, respect for each other, non-shaming, can bring healing. This is true for everyone, IMHO. Jesus bless you both!
I get the hiccups all the time and have tried countless things to get rid of them. My daughter told me to hold my breath and take 3 drinks of whatever and it totally worked. It has not failed me yet!!!
To get rid of Hiccups, try the following: Plug your nose. Swallow a few times without sucking in any air..they will be gone.
You two are TRULY the Model couple! So many laughs, so much happiness. So on point with each other. Love, love, love. ROCK ON GUYS!! ❤️❤️
I just have this to say, Hannah must be a God sent angel sent to earth to take care of Shane, who else would've done what she have done for him. She clearly must've know the huge task ahead when she decided to marry him. This is so amazing, I can't get over this wow.😊😊😊
I think the same, because she is from top to head just too perfect. From her body, her teeth, her smile, her never be tired, her warmness, her intelligence, her always knowing what to do etc. This is over-humanly perfection. 💫
I've always imagined that, rather than it being hard/tiring/difficult etc., care-giving must be hugely rewarding; to be able to bring joy to a disabled person's life, and show them that disabilities are _not_ a barrier to true love, that regardless of disability _everyone_ is worthy of love, must light up a care-giver's soul…
Of course, for those of us with severe depression as well as physical disability… Well, I dare say that I'm not alone in still feeling like I'm a burden, no matter how often I'm told otherwise 🤷🏻♀️
I've been a care giver all of my working life and I love it. I find care giving to be very rewarding . Some ppl couldn't/ wouldn't be able to handle it bit thats why God made us different. I'm a very compassionate person and caring for others is the perfect job for me
Elegant, gentle, profound answers at 8:06 from you both. Changed my understanding completely.
I love this caregiving discussion. As a neurodivergent parent of an autistic kid, I see a LOT of "your kid must be such a burden" sort of talk. Listen, if I wasn't up for the "burden" of raising a child, I wouldn't have had a child. She could have been born physically disabled, mentally disabled, gay, T1 diabetic, strong-willed, or any other number of things parents find burdensome or like to b!tch about. If you're not up for ANYTHING, don't have kids. If you're not up for caring for a disabled person, don't have relationships. ALL of us are just a heartbeat away from becoming disabled ourselves.
Also, my kid is freaking awesome, thx.
You should get a second harness and alternate them back and forth. That way if something happens to one you still have the back up.
Been loving your content since the beginning. Perhaps get another chest harness just like the new one and alternate them so he breaks them both in. Then he’ll already have a “back up”.
thank you so much for answering my question about therapy! really wonderful input that i will keep in mind throughout my studying and career :)
Caregiving is a part of any healthy, committed relationship. At least it should be. I don't know why people are so shocked about it just because it is more than average on one partner's part.
You guys are fantastic. Your humor is great. Love you kids.
You two are good together, and I love your sense of humor!
I also learned the spoonful of sugar thing! I think the reason it works is that hiccups are a spasm of the diaphragm, and so altering your breathing gives your diaphragm a chance to reset. A spoonful of sugar takes some time to swallow and forces your body to breathe through the nose and switch to “don’t inhale this and choke” mode. Same reason drinking a glass of water slowly can help.
I absolutely adore you two. So loving and genuine. You're so well matched and are so lucky to have found each other ❤️
I've reliably found that if you take a DEEP breath, and breath out slooooowly and controlled like, and then continue breathing intentionally for a bit...it takes hiccups away. It's your diaphragm spasming. Also, kind of related, if you have palpitations from gas (make sure that's what it is from!) bearing down like you're taking a poo is supposed to help with that.
So glad to see you back. I have missed you guys. Have wonderful holidays coming up.
"Kiwi, kiwi, kiwi". I laughed out loud. Love your senses of humor!
How dare you Hannah! Confusing mashed potato’s an Brussel sprouts! Lol 😂 great video guys 👍🏻 🤠
Thank you for your videos. They are fun and informative and your upbeat attitudes work great for me when I need a lift. Please keep producing them.
THANK U for showing Chloe. She is adorable and looks like my daughters pup. Now we must rally for LIZ!!!!🫶🏻
Great video. Challenging stigma and discrimination in society is a noble endeavor. I hope you both have a great time this week; safe travels Hannah. Enjoy your Bro time Shane!
I can understand why you two refused to answer this question. Because of Shane's situation, if i was him, i'd be pretty sensative to this too. It's a pretty private thing you go thru with that so i can understand why you were hesitant on answering it for so long. I would too
I hope you read this. I've noticed that even new commercial spaces, by law, have a "wheelchair parking". Great, until you are in a manual/ hand propelled chair vs an electrical one and the parking spot is on a slant.
I wasn't able to get out on my van, much less get in the chair, and move forward.
Hey guys is it true I won that iPhone from you guys but I have some person calling me from what's up WhatsApp and saying that it's going to cost me $150 is that true
Yes it's true. Click on it before the offer expires
Hey guys... Happy Monday!
I know a sure fire way to get rid of hiccups!
Get a glass of something you like to drink, take between 5-10 sips of whatever making sure to swallow after each sip.
Works everytime for me.
Cheers!! Good luck 🤞
the raw videos are back yay you guys got all professional on us, I thought it was over. 💞
I was impressed to hear that you hadn’t spent a night alone in so many years! I am wondering if you ever feel that your closeness as a couple takes away from your individual friendships / how you balance that?
That's real love. You guys relationship is so incredible. You both are so lucky to have true love.. keep up the videos. You two make so many people feel better about themselves. Wish yall were my neighbors. Thanks for providing REAL content.
So happy we’re back to these videos !
You should order a 2nd harness as a backup!
Hannah, filming, editing and posting all on the same day, that's what i would call hard work.
Spoonful of peanut butter works everytime to stop hiccups.
Anyhow, i just came across your channel today and have been watching your vids for the past couple hours and look forward to watching more. Its definate that theres chemistry between you both and its a refreshing change to see that and not "put on" or scripted. You guys rock! 👍👍
In June of this year I had a very serious accident resulting in large 3rd degree burns. I had two major surgeries in three months. I have been bed ridden since the accident except for a few trips to the market using a wheelchair and using it in my home. I have been astounded at the inaccessibility. I live in a small that has almost no handicap parking. It seems like 90% of the items in a grocery store are too high for me to reach. Trying to hold open a door to frozen food section while trying to maneuver the chair so I can reach is near impossible. Out of 6 checkouts I can only fit the chair in one. Most of the digital checkout pads won’t turn down far enough for me to see. There are so many other problems I’m exhausted by the time I get home. Home is another disaster. I can’t fit through doors, can’t reach anything and have a horrible time maneuvering the chair by myself. My hat is off to you, this is hard!
Hope things get better and maybe you can get help blessings 🙏🌌🏴 nanapolly Scotland x
I’m obsessed with van life, so most of the videos I watch are posted a few weeks after they’ve been filmed. People do that mostly for their own safety, so they argent telling just anyone who watches where they are traveling all alone. I’ve never thought about it, but I guess I just watch all videos as if they are pre-filmed.
I'm glad I'm not the only one who takes a spoon full of sugar to get rid of hiccups. 🙃 Everybody always thinks I'm nuts. 🤣
Over the years of watching you two and the awesome trips you take together for pleasure and work, I'm curious. - Have you found that you can mention any airlines, or companies, etc. that have implemented changes because they are now more aware of the needs for better wheelchair access, needs, and amenities for disabled people in general? Hannah, (I remember that one video where you where maneuvering Shane around construction & areas w/ no sidewalks)
Ahh I just love the sweet energy you two have with each other. Seeing you two laugh together makes me happy and I just love LOVE! 🌸
I do the same neck stretch and my neck cracks loudly at times; people freak out. One PCA calls it "little execution"! Lol!
“Stiff arm to the head” made me laugh 😂. Yes, that must look odd to anyone watching. Also I’ve seen the hiccup question and thought it was weird, like, “What the hell”?
I GET THAT ALL THE TIME.. it is tiring for sure...but my husband and my sister are worth it. They have said that they feel they are burdans and i say, you are loved first and formost. Who better to be their caregiver than the person(s) that love them most
Hiccups: I also hold my breath and then swallow (or attempt to swallow) 3 times. While also trying to relax like in meditation. It has worked for me for 30 years. I’ve heard that it relaxes the diaphragm.
I live in the Twin Cities and I’m wondering what your experiences have been with winter activities regarding accessibility (either for outdoor activities or just parking and getting into venues when it’s snowy). Are there any locations or organizations you’ve found do a better or worse job?
For example, Orchestra Hall has a designated drop-off zone and keeps the sidewalks to the building well-cleared, so going there with wheelchair users has been a super easy experience. But I’ve been to other places that don’t fully clear the handicap parking spaces of snow or where there’s only public lot parking and the sidewalks in between there and the venue may be hard to navigate.
Where is your favorite place to vacation? Where is the most wheelchair accessible place you’ve been?
I love your videos and look forward to them every week! So happy about the podcast as well! Safe travels today! ❤
Oh my goodness I laughed so loud when Shane answered the hiccup question 🤣 cheers guys for that 😅
Firstly, I want to say that I love you guys podcast, social media presence, and CZcams channel. I've read Shane's books as well and both of you are the source I go to when social media/media in general seems to be such a daunting experience. Both of your humor, honesty, transparency, and authenticity are so uplifting and you both encourage me to show up better in these spaces.
I recently came across a really shitty video on accident while watching your CZcams Chanel. Someone had dedicated their time and energy to attempting to disprove your relationship. It sent me into a tailspin of anger yet as I typed a lengthy comment to express that anger, I realized this may not be the type of advocacy you guys would prefer.
I supposed my question is simply, how do we advocate in your defense in a way that is meaningful and help to you? When those who love and respect you come across situations such as these, how would you like us to respond? I believe in person this would look a lot different (such as how the Delta employee responded) but specifically online, what reaction would be helpful in your opinions, if any at all? I think all of your fans would benefit from knowing how to show up for you guys in a way that is respectful and helpful to both of you. Ultimately, it is your thoughts that matter the most regarding this and I'd love to hear you feedback.
Thank you for all the goodness you both bring to the world. And personally, for encouraging me to be a better communicator, partner, and a reminder to have fun during all the chaos of ordinary life. I appreciate both of you.
P.S. This is my first every CZcams comment.
Happy new year, how r u
My wife got fitted for the new seat type. You should check into it. There is a beanbag fitter for the seat manufacturing now. So much more supportive.
Monday grab-bag question: Is it safe for Shane to have deep tissue massage and/or chiropractic care?
Question: what was your experience owning rats like? Can you give any more details about why you guys had them? I have two ratties myself and I haven’t been able to find anything about your experience!
I had MANY of them as pets as a child through early adulthood, including fancy blues and dumbos. I had a hairless one when I was about 20 and he was the coolest!
Great question, I’d love to hear them answer this one! I’m a huge fan of rodents too. I think they’re the cutest lil critters on the planet and even though I’ve only ever had hamsters I’d love to adopt some ratties one day! 😊
@@bionicbladderboo I hope you can one day, rats are great! They’re really interactive compared to a lot of other rodents, but are less expensive/complicated to care for than say a ferret or rabbit, which to me both can have similar personalities to rats. A win win pet! They do prefer a lot of attention and daily enrichment so they’re not for everybody but I’m curious what Shane and Hannah’s experience owning them was like
The bearing down is called a vasovagal maneuver. It sometimes works to get people out of certain fast heart rhythms.
Shane the way you're describing stopping hiccups by pushing down, that's the same way I put my sliding hiatus hernia back in place. It slides up into your diaphragm and one of the main signs/symptoms is a lot of hiccups and burps