How I Found Out I had LYMPHOMA: "I had Insanely Itchy Skin!" | The Patient Story
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- čas přidán 1. 06. 2024
- Madeleine started experiencing severe, unexplained itchiness on her skin a year before she was diagnosed with Hodgkin lymphoma. For 12 months she went from doctor to doctor trying to figure out the cause behind her agonizing symptoms that prevented sleep and broke her skin.
Finally, she discovered a lump on her neck and started getting a cough. After multiple scans, she was diagnosed with Hodgkin’s Lymphoma.
In this cancer vlog, she shares how she had to go through several types of cancer treatments, her decision to preserve fertility, how she dealt with recurrence, and her advice to always advocate for yourself.
Contents of video:
00:00 Introduction
02:15 My first symptoms
03:41 Processing my diagnosis
06:57 Side effects from chemo
10:53 Going through fertility treatments
26:47 Undergoing a stem cell transplant
34:05 Words of advice
Full story & transcript → thepatientstory.com/patient-s...
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Thank you for sharing. My 12 yo son was recently diagnosed with Non Hodgkins Lymphoma. We just finished his 2nd cycle and what it is doing to his young body is unbearable to watch. Nausea, vomiting, mouth sores, diarrhea, acidity, fatigue, fever...he is experiencing it all. Putting all my faith that he will breeze through this and be back to his young happy self again.
Prayers for your baby
Prayers, too young.♥️💚
🙏
Keep him comfortable
May God Almighty give him complete cure Ameen Ameen ❤
I have Hodgkin Lymphoma, took my 2nd round of chemo 5 days ago. I hope things will go well.
Get well soon
🙏❤️
Praying for you to have meaningful, joy filled time here and time you are able to be thankful for , however that bc looks to you ❤
@@kailanyoder4899🙏🏻🙏🏻 Getwell soon
❤❤❤❤❤❤
I had HL 30 years ago and my primary symptom was severe itching, so bad that I dug holes in my skin. My doctor initially told me I had scabies. I was also 22 years old at the time, and was also told that this was the “best” cancer to get. I had nine months of chemotherapy and six weeks of radiation. Fast forward 30 years, I’ve been cancer-free this whole time, but now I’m waiting on whether or not I have thyroid cancer.
Thank you so much for sharing! I had one specialist insist it was scabies, too, which was infuriating. It's a shame that even after all this time and so much research, doctors are still quick to dismiss certain early signs of cancer, like severe itching in young adults. I truly hope you continue to stay in remission, though!! All the best! -Maddie
I just got word that I tested negative for thyroid cancer! With that said, however, that is one of the things about surviving cancer…you’re at a much higher risk for developing other cancers. Because my HL was mainly in my neck and chest, I was treated with radiation from my jawline down to my diaphragm. Because of that, I’m at risk for developing thyroid, breast, and lung cancer later in life. It’s been 30 years, so it’s now later in life! 🤨
Scabies. What a clown.
Praying 🙏
To every doctor these days....its ALWAYS in your head and anxiety 😡 I'm so sorry
Facts!!! Most of them are heartless until it's their own . Some simply don't care at all. I don't know why they even choose that field besides the money if they are heartless and uncaring.😓😡
I was septic with a rectal abcess surgeon said it's anxiety pain
14 days 6 ambulance rides later I ended in er bleeding from rectum and septic. OR in 3 hrs. She had to write a letter if apology.
@shimmer8289 So sorry you went through that! I hope she was made to pay for some of whatever you had to pay!
@JeanaAlbert I live where medicine is free sadly free things aren't always quality. She had to write I letter if apology. I don't have money for a lawyer the hospital has lots. 7 months later I am still with a fistula that now needs a fistulotomy. I eill say thank you for the kind words. It was definitely the most painful, humiliating and dreadful incident I can recall. I still cannot figure out why the couldn't tell that the fact I couldn't sit down was obviously not anxiety. They must think I'm completely off my rocker.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
I’m so impressed with how articulate she is in talking about what happened to her.
Listening to your story was overwhelming for me because it puts in front of me how much a person can endure or not endure. I feel that you are almost super human because of the pain and uncertainty you endured over a three-year period and was able to think clearly being given so many options by specialists. Wow.
My thoughts and prayers for Madaleine that her future will become much brighter.
Ugh, what a journey. Sorry you had to withstand so much anxiety in addition to everything else. ❤❤
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
04:21 you have every right to cry, you have all the rights sweetheart. Don’t listen to such ‘toughen-up’ nonsense, this is not a military camp. Sending positive energy, blessings and healing your way ❤
I had the same symptoms and thought the same thing !!!very itchy yes too much!!I was eventually diagnosed with stage 4 lymphoma. I’m doing good in rchop and 5 treatments in 🙏🧡thanks so much for sharing! It all helps as far as support goes !!!here for you
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
🙏 ❤️ 🙏
For You & All
Always & Forever
Great story. Thanks for sharing it. You are incredibly strong and courageous. You should be a cancer advocate!
Isn’t that what she is doing !
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
Thank you for sharing your story. You've been through so much. You're a great advocate and I wish you all the very best in life. It seems that females in particular are dismissed by doctors, assuming whatever symptoms we have is 'all in the head/mind' and it's just 'anxiety'. This type of attitude seems to be dominant in western cultures. Here in the UK, it's no different and it's a real battle for many women to be taken seriously. God bless you xx
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Thank you so much for your comment!! I completely agree that when it comes to women getting dismissed by doctors. For me, it was almost like they were eager to give up, label it anxiety, and move on to the next patient. I can only imagine how many times this must happen all over the world, especially in Western culture. It's one of the reasons I felt so compelled to get my story out to the world. So many more lives could be saved if more women were treated seriously and fairly by doctors. -Maddie
Thank you for sharing your story! My young friend is going through the 8th round of chemo at the moment and unfortunately got some bacteria so is hospitalized which is really tough on her. I learned from you that a cancer patient shouldn’t just leave the past trauma back in the closet , but get some therapy to deal with all that happened. My friend is very wise and told me that she can’t go back to her work when in remission, but needs to take time out and sort out her thoughts and feelings. I’m extremely proud of her! Good luck to you and may I say that your eyes and eyebrows are very similar to my friend , very beautiful 🤩 I’m gonna buy her a really nice mascara when she grows back her eyelashes, we’re going to have shopping day and girls night out after she’s done with all that !
A beautiful maturity beyond her years. You are an articulate, intelligent, beautiful young lady! All the best to you!
God bless you 🙏 May you be healed of this horrible disease ❤
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
My Cancer was from taking Humira for my Crohns Disease after 10 years. I had Non Hodgkins Lymphoma. Large B-Cell Lymphoma. Treatment was 10 radiation RX, 6 R-Chop txand 6 Intrathecal injections in my spine. 2 Back Surgeries as this was the primary site.
My Oncology nurses said the same about of all the Cancer that was the most treatable. 5 years in Remission
My Second Opinion was received at Rush in Chicago. I was staged at 111B
Hey, how did you find out you had this? I have been on humira since 2015 and recently been diagnosed with eczema so it’s odd that I ran across this video and your comment since I have one spot that has recently gotten worse and is worrying me.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
You're truly a warrior to have gone through all that. I'm so glad to hear that you made the 5 year mark in remission!!
My husband and I are both school district retirees. We are far from wealthy. However, we have also both lost family members too young to leukemia. Because of this, we have made arrangements in our Trust to leave 50% of our estate after we pass to the Leukemia and Lymphoma Society. I survived double breast cancer at age 61, and now, at age 74, may be facing a recurrence; but, that’s okay. I got cancer later in my life and have had 13 years remission. What breaks my heart when I hear stories like yours is how young you are, just like our young family members who passed too soon. You are such a warrior, Madeleine. I hope you realize that. It is for you and other young cancer patients that we have included LLS in our trust. I would encourage others to consider doing likewise. Money is needed so Research can continue, not just for treatment, but for new ways to detect these cancers earlier and, hopefully, to someday eradicate them altogether. Thank you for sharing your difficult journey with us. 💞💙
Thank you so much for your comment! I'm so sorry for the losses you've endured, and I hope you continue to stay in remission for many more years!! Every year, I do a fundraiser for LLS as they provide up-to-date information on new research and clinical trials, and they helped me during my cancer ordeal. Thanks to donations, new clinical studies like the CAR-T cell project and immunotherapies are more easily accessible. ☺ - Maddie
@@mmschinosi221 💞💞💞💞💞💞 Happiest of Holidays to you, your family, and dear friends! 💞💞💞
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
Thank you for your interest in the Leukemia and Lymphoma Society. I lost my daughter to HL in 2006 and her fiance to AML in 2003. L&LS were helpful. God bless you and yours richly!! ♡
@@joannhayden6575 my deepest condolences. We don’t have much, but will give what we can. It is a very worthy cause.
Wow. You have been through so much. Thank you for sharing your story. Wishing only the best for you.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
What a beautiful young woman you are! Please stay strong, positive and courageous
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
You are an amazing young lady and I wish you nothing, but the best!!
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
I haven’t read comments yet. Doctors should check necks when people come in with allergy or head colds, coughing, mucus, itching…..
I agree, that should be standard protocol. Since I was in the appointment for a cough, my primary doctor was about to check my neck and lymph nodes, and that's when I mentioned in passing that I felt a lump on my neck. I'm pretty sure it would have been found regardless of whether I mentioned it or not, given how prominent it was. However, I wish the dermatologists I visited regarding the itchy skin didn't dismiss the problem after skin biopsies came back negative. My cancer could have been found a year before it was diagnosed if they had recommended blood work or a scan. -Maddie
So intelligent and a great communicator
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
I am waiting for the return of my latest labs to confirm the diagnosis of multiple myeloma. I had a recent bone marrow biopsy, Prayers for you 🙏🏻🙏🏻
💕💕💕❤️❤️🙏🙏🙏🙏🙏
@@traveler320ak7 diagnosis confirmed !
❤🙏🙏❤️
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Addendum: I received a call from the doctor yesterday, test results on Friday, not a good feeling about this !
Bless you beautiful girl! May God heal
you completely and encourage you in your amazing life ahead. 🙏🏼💕
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
May you live many more years WITH HEALTH AND HAPPINESS ❤
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
THANK U 4 SHARING YOUR COURAGEOUS JOURNEY. U ARE AWESOMELY GREAT & WILL CONQUER ❣️
Reaction s are common with the first infusion. I was diagnosed with Stage 4 in January and am doing fantastic. Infusions every 60 days all Petscans have come back negative
Surprisingly, I didn't have significant reactions with the first chemo treatment other than the mouth sores. However, I had bone pain and breathing problems with later treatments. I'm so glad to hear that things are going well, and I hope scans continue to show negative results!! -Maddie
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
I live near there. I had my non Hodgkins lymphoma treated near shady grove hospital at aquino center. Really great group. I was treated 5.5 yrs ago.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
God Bless you I hope you have a full recovery. You have a great attitude.
So young.
Sending you prayers❤️🙏
Maddie how long have you been in remission _ YOU LOOK AMAZING- what an articulate young woman. Wishing you an incredible life sweetheart ❤
I just reached the 5 year mark of remission this past March. And thank you so much!!
@@mmschinosi221 God bless you sweetie ✨✨🥂 God is good!
God bless you ❤
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
Thank you for sharing symptoms that lot of people wouldn't link itching to cancer. Wow. !!!
Praying for God's Wisdom for Dr... calm, comfort, peace. God's healing touch.
Isenda Thinks mentions itchy feet as one of her symptoms too.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
I wish her well. ❤️
You are so brave. Thank you for sharing your story.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Thank you! Your story is an eye opener. ❤❤❤
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
I had the exact same experience, itchy skin couldn’t figure it out noticed a lump in my neck and it’s started getting bigger. After all the Tess diagnosis was follicular lymphoma had chemo so far everything’s OK. Good luck to you my prayers are with you.
Same rash for 6 years before diagnose NHodj lymphoma advanced to large B cell. Had R-Chop chemo.
2017, had 2nd breast cancer 2019 radiation. My rash went away but is now back worse than ever, mostly torso. Going for scans next month.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Thank you for sharing your story. A friend of mine starts Car T therapy next month. Things have really changed in the past few years with more therapies coming on line soon. BTW, you my dear are beautiful! Your eyes are gorgeous.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
My sister beat lymphoma but just today we got news that chemo damaged her heart, do now she starts a cardiac journey to conquer.
Some of the chemo treatments (and radiation) can seriously damage the body in the hopes of saving our life. It's truly awful and I'm so sorry to hear that she has developed heart complications. I send my best wishes and healing thoughts to her! -Maddie
Thank you for sharing! I wish your docs had been more compassionate and better trained.
Prayers 💚
Be well❤
Yes...so many are misdiagnosed for a couple years as the HL goes onto later stages. My daughter was misdiagnosed for 2 yrs. Sorry HL is not a good " cancer" dx. I hate when they say that. Especially if it turns out to be recurrent HL. I am sorry you are dealing with this. My daughter was dx in 1999. ABVD treatment for 6 months. Then remission for one and a half yrs, two weeks of strong chemo, then ICE and autologous SCT, then alliogenic SCT (her sister donor perfect match but differentblood type...and on and on and on, a bout with RSV and even going out of the country for alternative treatment and then waiting for a clinical trial and the chemo to hold back the cancer to get to the trial was gemzar which pretty much put her in the hospital ended hope for healing, she then had a rare pneumonia. She also had the bad allergic reaction like you to a med during the ICE. She hoped to get to NY to see a Recurrent HL specialist to take over her case, but had to wait for insurance approval. She was also Deans list in College etc. Your story sounds so very much like my daughters on every level. Cancer robs you of so much, little by little. I pray you are healed and live a long long healthy life with children to come. ❤
My diagnosis sounds very similar 25 yrs ago now at age 42…STAGE 3, had ABVD, autogolous and allogeneic. Was told I’d have issues in years to come…after 10 years my teeth suffered, then one of the chemos ( the red devil) caused misdiagnosed heart issues two years ago…massive heart attack and heart failure. Which has been rougher than the almost 10 years of chemo treatments honestly. For various reasons of which were partially emotional. I’m pulling myself out of the abyss, it’s a journey for sure.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Your daughter sounds like a really brave and incredibly strong person to have undergone all of that. It's true; cancer robs you of so much, and you cling to whatever you can for hope. It's even harder as a young adult because you miss out on milestones, and then at the same time, you have others who will completely gloss over accurate diagnosis or treatment because "they're too young for cancer" or "they're healthy, so it can't be cancer." I've heard it all, and it's damaging. I don't go throwing this kind of terminology around, but your daughter sounds like a total badass and I admire her courage. You must be proud of the fight she put up against cancer, as it takes a very strong person to endure what she went through. -Maddie 💜
@@debsinpalmsprings4938 I can only imagine the toll all of that must have taken on not just you physically but also emotionally. The remnants of the cancer years seem to always linger far longer than the treatment itself. I'm only 5 (almost 6) years out from transplant, and yet my motto has stayed the same since diagnosis: Be kind to yourself and take it one day at a time. It's all we can really do, despite the gloom, in addition to cherishing the little things each and every day. -Maddie 💜
You’re so beautiful❤️ so much love!
It’s really upsetting to hear fertility treatments were all out of pocket for you. In cases like cancer, insurance should cover it imo.
Glad you got to do it but I am saddened for all the young women who can’t afford it, having kids is my biggest joy in life, I can’t imagine losing that choice. 😔
It was really upsetting since that was a dream of mine growing up. Thankfully, more insurance companies are covering the option for egg retrieval for female cancer survivors, but the annual preservation is still out of pocket. It's definitely a topic that I'm a strong advocate for. People who are diagnosed with cancer have a lot of things stripped away from them, and life goals/dreams shouldn't be one of those. -Maddie
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
It sounds like severe itching is a common symptom . I wonder why the doctors didn’t check for that cancer much sooner? And why don’t they just go straight to the PET scan, instead of beating around the bush? It always happens. Maybe… it’s so the medical field gets more money. Meanwhile, the cancer grows.
Insurance companies don't want to pay for a PET scan right out of the gate. They make you do the cheaper options first.
There are other medical conditions that can cause itching too (eczema, psoriasis, herpes), so doctors tend to go with the less expensive explanation because it saves insurance companies money.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Honestly, after talking with professionals from NIH who specialize in refractory blood cancers, they told me that when the second skin biopsy came back negative, the dermatologist I saw should have immediately sent in a lab order for blood work. My white blood cell counts would have given an indication that something serious was wrong, considering my white blood cell counts were off the chart a year later when I discovered the lump in my neck. So my cancer technically could have been tackled a whole year sooner with probably fewer complications had simple measures been taken. Especially considering the fact that itching is a fairly common symptom. -Maddie
They need to fucking get sued!!!!!!! After 5 years of relentless itch My blood test cam back showing high lymph levels if I find out I have cancer, im suing the fuck out of them for medical negligence because ive been going from doctor to doctor blood test after blood test trip after trip being told "it's in my head" they failed to take me seriously!!!!!!!
🙏 ❤️ 🙏
For You
Always & Forever
Interesting that the first oncologist recommended the right treatment after all. Good luck to you.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
She did recommend the treatment that had the best result, yes. However, it was the most toxic option, and my team wanted to give newer options a chance. Plus, we were trying to keep that as a last resort since you can only have 3 rounds of ICE chemo. If my cancer came back today, that chemo treatment would no longer be a viable option.
-Maddie
My father just died because of limphorma , it started in the intenstine system and later spread .About 5months back , he had an operation in the intenstine system. But still lost life . He was 87yrs old .
I'm so sorry for your loss...My heart goes out to you and yours! -Maddie
@@mmschinosi221 Thank you mom ., My father was unwilling to do chemotherapy & radiation treatment .It was the first time in his life of being admitted in a hospital for treatment .About 5yrs. back his hearing sensation highly decreased , & a skin tag at face its size increased to a bigger level with past few years . All these signs were part of limphorma , I think so .
@@mmschinosi221 Thank you mom, my father was unwilling to do chemotherapy and radiation treatment. For the first time in his life of being admitted in a hospital for treatment. About 5yrs. back his hearing sensation highly decreased and a skin tag at his face present previously got enlarged .I feel all these signs were part of limphorma. ?
I've had extremely itchy skin all over for 3 years and difficulty swallowing. I've had a cough for 3 months now. I dont have night sweats or a big lump though so doctors dont want tk test for this.
I have Borderline enlarged lymph node in the right anterior triangle measuring 20mms in length and 8.22mms in A/P dimension and lymph node in the upper normal range on the on the left side in the anterior triangle also slightly prominent lymp node in the submandibular region. I am advised to take ENT opinion.I also started getting dizziness. I get extreme fatigue. I also have lymph nodes in my armpits. Is there a cause for concern?
Hi. How are you doing? Did you check that out?
Did you have any symptoms other than itching in the beginning? I just started having an all over 24 7 itch out of know where. I have no drs who take me seriously they just tell me to take antihistamines. I am losing my mind at the moment. I keep telling the drs that someone dosnt just wake up one morning with severe itch after years.
It started out as really itchy skin, and that went on for about a year. I then had a slight cough and when I made an appointment to get that checked out, that was when I discovered a lump on my neck. Other than that, there really weren't any obvious symptoms outside of fatigue (which I could have easily attributed to working two jobs at the time) and weight loss (which I was already working on). If you have very itchy skin, I would recommend asking a dermatologist for both a skin biopsy and bloodwork. If my dermatologist had recommended bloodwork after two negative skin biopsies came back, they would have seen that my white blood cell count was wayyyyyy off and the cancer would have been spotted sooner. Long story short, never stop advocating for yourself if you know something is wrong. Keep fighting for answers! -Maddie
Thank you so much for taking the time to re ply. I will have them give me the work up. It is amazing how quick Drs. down play symptoms you present. I pray your health remains good.
Which oncologist did you use? I had dr. Haggerty. Shady Grove adventist onc and Hematology.
The oncologist I stuck with was Dr. Yun Oh. He used to work for Kaiser Permanente, where I got most of my treatment. I'm glad to hear that you received excellent care at Shady Grove, though!! One of my relatives got treatment there for breast cancer years ago. -Maddie
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
I have a question that many people will be needing an answer to, so I hope you will see this and respond. At any point during your treatment, did any physician talk to you about lowering your sugar/carbohydrate consumption?
Hey there! That's a great question!! I actually didn't have doctors telling me to lower my sugar consumption because at the time when I was in treatment, I honestly had very little appetite for anything. I was given a list of things I needed to avoid eating, like grapefruit, and to be cautious with fresh produce. After the Nivolumab, when I got thyroid problems, I ballooned within a month, and steroids that were given before each infusion didn't help with that either. At that point, I had to make eating adjustments, and it wasn't until I reached remission that I could finally focus on getting my strength back and returning to the gym to shed that weight. Hope that helps some and I'm happy to answer any further questions you may have! -Maddie
@@mmschinosi221 I really appreciate your response! I hope you are doing well now. A lot of people never get back to normal after going through these brutal treatments. I encourage you to look into a low carb or ketogenic dietary lifestyle as your body continues to heal. It has a good track record of helping people with cancer prevention and/or treatment. It really sucks that some people have to go through this at such a young age. I wish you the best of luck going forward and hope you had a great Thanksgiving!
@@mj625 Thanks for asking the question!! Definitely, diet and health play a huge role when it comes to cancer and something that I prioritize. I know a lot of people who have had a lot of success when it comes to the keto lifestyle, and it seems to help a lot of people. For me, I stick to a Mediterranean diet as my doctor told me that it was more beneficial for me in comparison to keto and other options. It's definitely a discussion to have with a doctor post-treatment, especially considering any inflammation risks and so on. I'm really glad you brought this question up since it's incredibly important!!
I would advise every single person who gets cancer of any kind to immediately start researching, thoroughly researching, the affect that sugar has on cancer. Research the rare doctors who have done the work and have put in the required time researching the dynamics (facts) of sugar being one of the major life forces for cancer. The odds are overwhelmingly stacked you are NOT going to be given any degree of help or facts about this from your "cancer team". Perhaps they will not even so much as have the name of any physician to even refer you to who, in fact, can truly assist you with this, and by this I do not mean someone who simply spits out their simple opinion about it. Cancer and sugar are best friends. Do your own research. And, I would highly encourage anyone to go ahead and start your own self-education about this duo-dynamic before you or someone you love even gets cancer. Why?
1. More and more people, and younger and younger, are getting cancer, with no sign in sight of this relenting.
2. By the day, more and more good information for us is being removed from the internet, and is becoming harder to find.
3. Decisions are always easier to make when we are 'at ease' in making them, rather than when we are 'at need' to do so.
4. Having nothing what-so-ever to do with weight, in this scenario, but is a fact, as I mentioned above:
Sugar and Cancer are best friends.
Just reflect on that.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
I am having issues with severe itching out of no where it's like hives. Itches so bad. Extreme fatigue. I have a autoimmune disorder that puts me at higher risk. No doctor will listen
Did Madeline have non hodgin or hodgin? I noticed initially it said non hodgin then it said hodgins. Also non hodgins I'm told is very slow to grow. I have non hodgins in my lung dx 2018. Still watch and wait stage 1E so im told. But i thought a lung would be stage 4. Who knows.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Hey there! Thanks for your comment! I was diagnosed initially with Stage 2 Hodgkin's Lymphoma. There are several types of non-Hodgkins, and I believe they have a different staging as well (although I could be wrong). For Hodgkins, from what I remember, stage 1 means one cluster of cancer cells in the upper torso, stage 2 is more than one in the upper torso, and stages 3 and 4 are clusters in the upper and lower half of the body and organs. When I was initially diagnosed, there was a lump in my neck and a large cluster in my chest, which is why I was stage 2. I never had any growth in my lungs, but I did have a growth that appeared very close to my heart at one point. I hope that might clear up some confusion, but I don't know how well that relates to non-Hodgkins. Regardless, I hope you are doing well, and I hope you have a smooth recovery ahead! Keep kicking cancer's ass!! You got this!! - Maddie
@@mmschinosi221 aw hi Maddie actually I never knew that explanation if staging tol now. I have it in my lung stage 1. Had it seven years no treatment. I'm having some neuropathy in my upper arms and pain under one armpit. Once I see a doctor I will know more. Yup chin up and we hate cancer. Goid to hear from you.
Bone marrow biopsy/transplant = OUCH !
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
I hear this all the time. Why do these spscialist act like it is just normal.
I think it's a mix between a lack of cancer awareness and the fact that many people are quick to dismiss young adults who show signs of cancer. Most people who are in their 20's or 30's are supposed to be in their prime, and yet Hodgkins Lymphoma is most common in ages between 20-25. That's partly why I wanted to tell my story to spread awareness. - Maddie
I was dx after they thought I had lung cancer. So living with the thought I had advanced lung cancer to hear the oncologist say why are u upset you have non hodgins lymphoma the best cancer to get made me unbelievably angry to this day.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
I've been trying to get diagnosed for over 4 years. No help yet.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
Don't give up!! I believe we know our own bodies well enough to know when something isn't right. If you have a concern, keep trying to get answers. I recommend asking for blood work and second opinions. I hope you get the answers you seek soon!! -Maddie
Can Ivermectin be used as a preventative? I am in remission from Lymphoma.
I have not heard of it being used for preventative reasons for lymphoma. I think it would also depend on the type of lymphoma. Definitely something to bring up with your oncologist though. -Maddie
Large B non hodgkins. Will wait for it to reacurr before I start using it. I am 79.8 kg and will take 12mg/day for 7 days then 12mg every two weeks. Does this dosage sound okay to you?
i have a lump on my neck red and white patches in the back of my throat and I'm itching like crazy.but My doctor said I'm fine .I have lost weight but my doctor said I'm ok so I don't think I should worry
Get a 2nd opinion.
We are not a medical advice site, however our community of both patients and doctors say to get a second opinion if you don’t feel things are right. You know your body best.
Please get a second opinion ❤
I agree! with the others. Get more opinions! I spent most of my life being gaslit as was my mother. After she passed I found out what it was on my own and then had a geneticist confirm. I had some very bad things going on and not one Dr figured me out! My poor mom more than likely had the same things and it all now makes sense. We all know now what is wrong and some of them are eating their words. Making us suffer for many decades should be criminal!
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
You might look up Carnivore diet and cancer. There are several videos explaining the link between carbs/sugar and cancer.
I'm actually on a Mediterranean-based diet, and I avoid eating most meat and carbs. It has been recommended to me by my doctor and nutritionist. However, everybody responds differently to different diets/regimens. :) -Maddie
@@mmschinosi221 Hi Maddi. Everybody is definitely different. One thing Dr. Ken Berry said is that trained Registered Dietitians were trained to follow the old guidelines, which he believes are backwards. The food pyramid is up side down. It is confusing, but after the Covid shots, I lost my trust in conventionally trained doctors. There are lots of videos explaining how cancer feeds on glucose. Take the glucose away and the cancer cells die. In a two hour video, Dr Rangan Chatterjee interviews a specialist on this topic. Good luck with your individual situation.
❤
Where did she have lumps?
I found my first lump on the left side of my neck, but throughout the many treatments, I felt lumps on my collarbone area and the other side of my neck as well. - Maddie
Glad you’re doing well now. May I ask about the itching? Was it constant or did it come and go? Was it red? Like a bad rash/hives?
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
❤❤❤
I also had retuxinab and another med
I am in the same boat- Same meds- STEM cell transplant July 2022 at Dana Farber in Boston- Negative PET scan since then- time will tell I guess
I was recommended retuximab 6 years ago said I'd prefer watch and wait. Still hasn't move past stage 1 E.
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure.
4:28 😢😮🎉😂😅😮😢
lost a whole year by not getting a simple blood panel...
I really appreciate you making this video. My ex of 7 years cheated and gave me HERPES during our relationship and I was devastated. You've made me feel so much better Dr OBALAR and seeing all these people share their testimonies about your cure
It makes me wonder just how many other people have had symptoms dismissed in the past and how many lives could have been saved. -Maddie
Always get 2nd and even 3rd opinions.
Have you tried B17?
It’s money, they want to take longer… before they attempt to start to find a cure.
I am so sorry that you got cancer! 😂Sorry that you got no real compassion or empathy! You are a unique person that consists of emotions, intellect, spiritual & a soul!
What really makes mean me mad is the fact that US chemical companies are allowed to make 1000 new chemicals a day!!! The rate of cancer is increasing tremendously.
Monsanto that makes roundup is a cause of cancer.
Don’t forget about the multiple law suites.
Thank you so much for your comment! You're so sweet! It is definitely alarming to see the increase in young adult cancers nowadays. I've definitely been trying to keep tabs on chemical lawsuits, but sadly, I think the roundup lawsuit covers only Non-Hodgkins lymphomas. It's definitely something to keep tabs on though...there are so many toxic chemicals out there that I'm sure attribute to the increase in cancer cases. -Maddie
@@mmschinosi221 Wow u answered me. I will continue to pray for you Maddie! You seem like a fighter. It just makes me so mad that you are in that position. So many people are getting cancer & obviously the younger you are the worse it is😡
Susan B Anthony for the cure is not helping, like the ref cross plp at the top take the bulk of the $$.
Sammm itch and no rash doctor after doctor after doctor doctor
Medical gaslighting is out of control!
If you're not already a born again Christian, you need to repent of your sins (be sorry for them and ask God for forgiveness), then you need to forgive everyone else for their sins against you. Believe that Jesus is the Son of God who died for our sins and rose again from the grave. Ask Jesus to forgive you and cleanse you of your sins and come into your heart and give you His Holy Spirit. Then spend time reading the Bible to get to know Jesus, praying continually. I'd also suggest fasting, which can help people get close to God and even possibly healed (but obviously no guarantee). Those who make it to haven have an AWESOME life with the Lord and the best of this life is nothing in comparison. Sometimes, what seems like the worst thing that could have happened to us is actually the best thing that could have happened (from an eternal perspective). God bless! and I'll be praying for you!
Please she may be Muslim Hindu or Jewish. I know you have good intent but please keep it for a person who is a willing audience. All the best.
This is not a forum for you to preach your religion. The arrogance.
@@dianathompson8794 I think she is free to speak of God ! Why wouldn't she be, if you don't like it just pass it by!!
@@cathyandresiak this is not a religious forum...it is offensive to force your faith on others. It shows a lack of respect .
And she is not speaking of God, she is preaching a certain religious ideology. Total lack of boundaries. And you are just as bad. If you don't like my opinion, you are the one who can move on
Oncologists should absolutely tell people that hodgkins is more treatable. Get over it. There are a lot of people would would have loved that news.