Finally Getting A Pathological Demand Avoidance Diagnosis in the United States
Vložit
- čas přidán 10. 01. 2024
- Finally Getting A Pathological Demand Avoidance Diagnosis in the United States
Welcome to our channel! We are a remarkable family navigating the extraordinary path of life with autism and pathological demand avoidance (PDA). Join us as we share our heartfelt stories, invaluable insights, and practical strategies for living a fulfilling life while embracing neurodiversity. Through our honest and relatable content, we aim to educate, inspire, and foster a greater understanding of autism and PDA. Together, let's build a supportive community where love, acceptance, and growth thrive. Join us on this incredible journey as we celebrate the unique beauty of every individual.
Gaming Channel: / danieggaming
Twitter: @DanieGOnline
TikTok: @Danie.Lauren
My Equipment:
Phone Camera: amzn.to/2ECnNSg
Canon T5i: amzn.to/2Xor13b
Editing Software: amzn.to/2VtZg7E
Photo Editing: amzn.to/2T3C0jO
TubeBuddy: www.Tubebuddy.com/DanieAndDanny
For collaboration or business interests please contact us at:
DanieAndDanny@gmail.com
As an Amazon Associate, I earn from qualifying purchases.
Thank you for sharing. My daughter was diagnosed ASD with PDA at age 4 with provisional ADHD. Her PDA also shows as a fighter. It can be a real struggle. Her younger sister has a hard time because she doesn’t understand.
I feel ya! My youngest has a hard time and it picking up the “behaviors” from her meltdown but doesn’t have PDA. They are constantly in battle mode with each other.
Thank you for sharing this…interested to learn more about PDA.
You’re welcome! Hoping to make some more videos soon
Good video. Interested to learn more about this. Best of luck.
Thank you. I’m glad to see so many people are interested in learning about it ❤️
What a crazy process, but I am glad you have some answers now
It’s been a long journey
Sweet friend, I’m so thankful you are getting the help you need for your family. 💚
YOU ARE AN AMAZING MOM, I hope you never forget that!!
Thank you so much. It’s been an uphill battle.
🥰
What's your treatment plan? I hate to think of all these kids losing their futures due to a lack of support, for things that I believe are very treatable.
Pretty sure I've had PDA since 2015, though I just called it a "freeze state" until I heard of PDA. I know there are ways to heal this, but unfortunately I feel that the brain retraining program I was doing, to calm my amygdala (fight/ flight) is what put me into the freeze state. It was too aggressive, and I wasn't in a safe place with support, which I feel is necessary to heal the ANS.
Do you know about PANS/PANDAS? Definitely worth a look. But also difficult to diagnose. But any PANS doctor will understand PDA, I think. I know brain inflammation is a big part of my puzzle... getting out of mold literally saved my life, and now I'm being treated for Lyme & Bartonella. Viruses are hit or miss... sometimes they increase my brain inflammation. Other times, they switch it off, which is amazing for a short time.
Being stuck in fight, flight, or freeze is so emotionally painful... she's lucky to have parents who see that, rather than being reactive themselves. Because our society has a way of further traumatizing people with neurological sensitivities. I feel for these kids who are so severe at a young age. But I also have hope that they can heal and have a good life.
I’m sorry you’re going through that too. We’re actually looking at PANDAS for my youngest after having strep in Jan 2022. We’re still waiting for recommendations on treatment to come through. But most likely home / unschool and low demand parenting for a while until we get it all figured out.