♡ Travelling with Chronic Illness + Our Staycation! (4th-6th.10.19) | Amy's Life ♡
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- čas přidán 7. 10. 2019
- ♡ Travelling with Chronic Illness + Our Staycation! (4th-6th.10.19)♡
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Haha Tom dancing to Gentleman cracked me up 😂
you prolly dont give a shit but does anybody know of a way to log back into an Instagram account..?
I stupidly lost the account password. I would love any assistance you can offer me.
@Preston Langston instablaster =)
my family and i went on a staycation to see how i would go away from home and we are spending this week in melbourne to get away from doctors, hospital and appointments. its been such a good idea to go away
Tom cracks me up every video lol his humor is seriously a must when living with life long illnesses. Does he have a brother? Lol I just love you two! Tom is the most supportive boyfriend I have ever met! I was married and as soon as my health took a turn for the worse and I became disabled he decided that he wanted no part of me. We have two daughters so he is a great dad but obviously not husband. You have been Blessed with finding Tom.❤🙏🏼
I love you and Tom, he makes you laugh after all these years and takes care of you and you look at him with so much love. You will have many years of love ahead. That pizza did look so good.🙏❤️
Oh dear Lord Tom !!! Bless his heart that pool aerobics moment set him off !!! On the up side he keeps you laughin !! Have a wonderful day !! Love & hugs
When I went on my first cruise 12 mths ago (highly recommended for those of us with disabilities, chronic illness!!!), I was told by someone that because I wasn’t working “full time” I didn’t deserve a holiday/break/staycation! These sort of people don’t realise being chronically ill/disabled is a FULL TIME job keeping on top of it all! Sometimes u need a break away, change of scenery-even tho we all know, we can’t escape all the things of being disabled/chronically unwell-it can help to revitalise-give us the boost needed to keep on keeping on! I’m so glad u guys were able to make it work-with all the things u need to think of, & got the break away that u both completely deserve!! Thankyou for taking us along with u guys! I hope you had the BEST time!😜
That apaulling telling u dont deserve that apaulling poor thing of cause u deserve a hol a break xxx
We need more of Tom’s dancing, it’s hilarious. 😂
"Pudding with chai seeds"😂...im with you on the healthy food thing haha
The world needs more Tom’s! He is so sweet, patient and funny!!
Hi Amy, I started watching you because I as well have chronic illnesses like lupus, ciliac disease, sjorgrens, just a lot of things going on. I try to sew when I can as it keeps my mind busy. I make custom purses, wallets and bags. I would love to customize a bag for your needs. I would design Pockets, zipper pockets any size, back pack, crossbody or over the shoulder that you would design yourself I mainly just do this because I love to see and do things for others. I would love to design you one for free when and if your ever in need for something like this. Hope your having a great day. Soft 🤗 hugs
Hi mrs Connie I would love to see your bags I have ton as well and was wondering if you sell them do you have a website
Yes I do sell them and you can find my shop in Etsy.com then search Gigishomemadegifts
All one word. I also make custom bags as well. If you see a pattern you like I can make it to your specifications.
Watching your videos has like given me the guts to make appointments with doc an specialist to try an figure out what's going on with me ive just been trying to ignore it but finally got the guts to figure out what's going on so far I been to cardiologist an got a heart monitor put on my chest an stomach area that i have to wear for few days an its so annoying having all these wires an it just makes me think its nothing compared to all the stuff you have which is always connected to you idk how you do it but I am happy you share your life with people cuz it deff help me get up the guts to finally get help thanks
Loved Tom’s bed dancing! That should be a regular feature!
I absolutely love yours and Thomas’s relationship! Lol y’all laugh and play and it’s goals for sure! And Thomas thank you for showing young lady’s everywhere what a man can and should act like ! You show your love daily and it’s precious Amy! The way you think about him and want to spoil him is precious! Love you two! Pray for your good health daily !
Hello there! I'm a new subscriber and I have a suggestion ☺️ Don't know if you have heard about these already but I'm a nurse in the US and at hospitals that I've worked at we have these things call curos caps. They basically sit on the end of your port and acts as a sort of "port protector" so that the port to your Hickman isn't exposed to air at all times. They only have to be changed about once a day or after each use of the port and they come in bundles. I'm sure you take perfect care of it but I saw that you're OCD so it's just added protection 🤗 if you've already heard of this sorry for repeating. Love your vids btw ❤️
Tom is a one person synchronized swim team. He should win the gold for effort.
Also, I understand eating something that I know will make me sick later. I have this issue, that as far as I can tell is a form of cyclic vomiting syndrome where I get episodes of vomiting no matter what I eat or drink and it can happen up to about 8 hrs after I’ve consumed it. When I’m in one of those cycles things with more oil, fat, butter, water, or condiments in particular all make me feel nauseous and sick. It sucks because I never know when I’m gonna get it again or when it might go away.
Those two are too fun to watch! Glad you enjoyed yourself!!
Hahaha Tom that was exactly what i was thinking when she said "gentleman"
So glad y’all enjoyed your time away every couple needs time just to themselves from time to time love and light
I got to conventions a few times a year. It's a huge change of pace from home but I love it. It can take months to recover from them fully but I love it. I work at the two conventions. With my husband by my side. My bosses and the medical team are well aware of my issues. So I do get told on occasion "youre done go rest". I'm always worried of getting sick and last convention it hit hard. So extra planning has to go into the events, aka how the fudge do I get home safely. One of them I have family nearby. The other I'm skuppered (will need to figure it out).
His dance... the things that make you go hmmm Lol 😂 I’m so glad you were able to go on holiday, no 2 deserve it more ❤️
glad you had such a nice weekend. Tom had me laughing so hard at the end that my hubby thought I was choking...but I must say that I am missing his "things that make you go hmmmm" lol
Looks like you and Tom had a great time. It is nice to just get away for a couple days and relax. Love how Tom was changing the words and trying to dance in bed. He must keep you laughing a lot.
Tom is so funny 😂. Glad you had a nice time away for a bit. Love u both 😘😘
ahh love your videos so much!! im going for my first outpaient appointment tomorrow super worried but you inspire me
Oh Amy and Tom I’m so glad your having so much fun in your staycation. Love you guys so much 🌹💐🌷
Looks like you guys had fun. My wife and I are planning a staycation. Can't wait. Your video makes me want to head out now. Live life honestly and regret nothing. :-)
You’re very lucky to have each other. Never lose the spark. 😀💙💗👍
OMG Tom and his bed dancing 🤣🤣🤣🤣🤣🤣😐 Glad you had a great vacation close to home 🏡
I love watching your videos, Amy! I was just diagnosed with EDS over a month ago, though have had GP, arrhythmias, and multiple associated conditions for many years. You are so inspirational, and I love that you don’t let EDS stop you from living life. So many people become consumed by their illness; it’s hard not to let it consume you when it affects nearly every part of your body. But over the years I’ve learned that life is too short, and I refuse to let EDS steal my joy!
Great you dont stop doing your life the best going on vacation, going to basquet games, etc. keep having a great life Amy! :D
Love you guys.
And yes it’s hard to travel with all your meds.
In the next 2 months I will be going on dialysis and will have to wait a year before I can travel. So I have booked a cruise for November.
Tom in the pool was so funny, made my night. Editing is always fun for me.
So glad you guys had a great staycation 😆
Love your videos!! You inspired me to go visit an orthopedic doctor it’s helped my quality of life so much❤️
16:20 thank you Tom for giving me a much needed laugh! ❤️
Tom at the end FUCKING KILLED ME 😭😭😂😂😂😂
Haha you guys are great. Love that you make the best of every situation!
You two are so cute 💕💕you are such an inspiration 💕💕
I am so excited for you guys!!!
You guys are couple goals 💖💖💖
Crazy tom in the pool 😁 Love you guy's 💖💖💖
Dying ha ha... Tom at the end there....😁
🤣🤣🤣🤣🤣🤣 tom...... reminds me of me when I'm over tired hahaha
Tom is amazing!!! Your guys are the best!!😂😍
Enjoy your staycation ❤
I like it when you and Tom have a pleasant time. It's not fair that we only see your tough times. It makes me feel good see you feel good. P. S. Unless it hasn't been mentioned. You are a natural for the camera and the microphone. You're extremely photogenic, your voice is like smooth honey and you have a personable demeanor that is infectious. You are extremely likable and would make a good actress if you so chose. I wish you success in whatever endeavor you choose to pursue. Look forward to your next video. I hope they are more like this one.
I’m the same way with my gastroparesis sometimes. Sometimes I decide even though I know I’m going to regret it afterwards I’ll eat something because I get in moods of “screw it I want it.” Especially going out to eat. I always end up sick because I eat stuff I shouldn’t and bigger portions than I should
Hi amy I watch u bc I also have a chronic illness called cromo which makes my body fight my bones and make Tumors all over my body I’m going through treatment right now which is used for cancer but doesn’t have the chemo drug in you have inspired me even thou we have 2 different illness I’m 13 and have been misdiagnosed with cancer and still have a high chance of getting bone cancer which is a high chance I will die thank you for what you do to inspire people everyday love u to bits ❤️❤️❤️
Tom cracked me at the end and in the pool. 🤣
Glad you had a good time. Thom is such a card!!!
I'm a brand new subscriber but so far this looks like a channel I'm going to enjoy. You guys are just too cute.
Jimmy
I Love you guys to bits🎀🌸💕❤️🐾🥰🌞🙏
I found bringing some large garbage bags from home is always useful when you do a staycation. Those hotel garbages are tiny!
Ok lying in bed and your ending was brilliant. I actually laughed out loud. Take care
Oh gawd, Tom, what have you done? It's now 4am and I looked up that song and now it's stuck in my head 😂
A break is always good and nice. You guys put your self on your to do list. Omg I just died laughing thank you 😂
You two are great lol you crack me up. 😂😂
First off, I love your content and story!!! Second, it’s good to want to vlog everyday and get videos up, but remember it’s okay to actually take a break and live in the moment sometimes! a good podcast about this subject was actually just put up by Jenna marbles podcast channel
You two are so cute!! Keep up the good work.
Tom is hilarious
Omg, he is too funny, that was the best!
Lmaooooo tom at the end 😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂 soo funny
If the room had ghosts, you made them very happy by talking to them and being polite when you left hahaha.
Hello.. All the way from SA. BESIDES your Chanel being very informative it's always so fun and relaxing to watch. Stay well. Wianka 🌞
your looking great your figure is perfect never think you look big you dont and ive no need to lie but i know its hard to see as you are im the same so i understand i go through stages of really bad ocd too and find new ones to but im getting better at them you are such a strong young woman and brave xxxx
I just had my first appointment with my geneticist today and the appointment took 5 hours and they took 20 vials of blood!!
There are electric versions of the same cooler you have! They’re basically like a travel mini freezer, I bet there are different versions for different needs or temperatures etc.
That pizza looked so good omg
omg tom's hip thrusts lmao
That dancing 😂
Can’t stop laughing you and Tom are so amazing and funny thank you for sharing your amazing travel vlog
I ❤ your outfit and your bag is so clean and beautiful
OMG, Tom is a scream!
Oh my god Tom is so so funny! 😂 xxx
I have watched a few of your vids and think you are fantastic
Your boyfriend is the best! Yall are so cute!
Xoxoxo love u Amy!!!❤
That pizza looks so good!
So glad you got to enjoy your alone time together and could relax :) the both of you deserved it 💕 The Psy part tho cracked me up 😂 I'm a fan of Psy so I was like I hope he gets the dance right fast... 😂 Loved it 😂💕
I'm Tom in every relationship omg
The joey pump is miserable to take everywhere. I cannot wait to have to flush, so I can use the infinity pump
DaRkSouL/ BrandeeB I have the infinity pump
Think the Joey is bad? I have the big kangaroo! They don’t give us Joey pumps as adults. I hate it!
I recently switched from the Joey to the infinity. I totally LOVE the infinity!! It’s so much lighter and more compact, and I love being able to get the smaller bags. My only complaint is how loud the alarms are on the infinity, even with it being set on low. That said, I feel like it alarms a lot less than the Joey. The Joey would constantly alarm at night, and the infinity thankfully doesn’t alarm much.
Fave vlogger 💖
Amy.. Your speech or thought process seems off. Are you feeling ok?! I know with the last seizures, you didn't have a stroke or anything, but just wondering.. Love ya'll and so glad Tom is there and you guys have each other and the time away. I think that's the best thing! ❤️
Amy you have got to live forever.
Ah yes, I have GP and totally understand the regret that comes later on. Whenever I eat, I ask myself if it’s worth getting sick over later. If the answer is yes, then I proceed with eating 😄 It’s a regular occurrence
I had no idea you were in Perth!! 😍
Tom dancing in the bed 🤣
Omg, Tom dancing in bed was hilarious 🤣🤣🤣 Is that song by the same person who sings the gangnam style song??
Thanks for the laughs . Did you stay in the centre of Perth ? Xxx
I love him.
The hotel seemed lovely and so glad you enjoyed the game. I am curious- are eggs not a very drainable food or do you not enjoy them? What about toast? It seemed like there might have been other options for breakfast, but the pastries did look delicious!!!
💙💙💙
You and tom are the best !,,,,
You should have had Tom do the YMCA lol
🤣🤣🤣 Tom!!!!!
The hell was the whiff of a three pointer?! I don't watch sports and even I know that was horrid! Like wtf dude! And good lord Tom and me in tears laughing!!!
❤️❤️❤️❤️
We were doing a about eds in science today
Sometimes staycation is the best because you don’t have to pack up all your medical equipment
Hi Amy, Can you do a story time on how you and Tom met?
*Wait... did they win?* 🤔