Eating to Death: Living with Prader-Willi Syndrome | UK
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- čas přidán 14. 07. 2013
- Broadcast: 11 November 2012 on Sunday Night, Seven Network, Australia.
Tim Noonan enters a world inhabited by 400,000 people including around 1000 Australians. Each and every one of them has an uncontrollable, unstoppable urge to eat. They'll finish breakfast and immediately want lunch, then dinner, then more. There's virtually nothing they won't devour, no cure and no answers. But now there's hope, a radical weight loss technique that's saving lives and has seen some lose as much as 100 kilos.
Reporter / Producer / Camera: Tim Noonan
Additional Camera: Steve Lidgerwood
Editor: Jimmy Hamilton
imagine you eat lunch, and right after it you feel like you are starving again. that is hard to deal with.
Nah, even whilst eating lunch you feel like your starving because your brain doesn't register the hormones that would tell you how full you are. I'm sure even a moment of not being hungry would be bliss for them.
I guess you have to understand its ur brain not ur actually hungry but hard w the people who have learning difficulties.. I've heard other people dealing w this condition and having it under control. I can't imagine how they would feel knowing they can never be satisfied.
@@teaartist6455 pp😊
Yeah but you can always train yourself…somehow someway I would have found a way. I’ve starved myself before many times (or I’ll call it fasting..u know for health reasons) and after 4 5 days you lose that hunger feeling. Just last time I did it on day 5 it was 8 at night when I finally remembered to think about food. You will adapt. No matter what. Now I do Have an autistic brother and he is very similar and the way he has this girl so I can also see it being very difficultx
I used to be like that. Now im over semaglutide and getting gastric sleeve in two months. Because extreme apetite caused me metabolic syndrome. I will be over semaglutide even having the gastric sleeve done for my whole life.
This is actually really sad. I can't imagine having to deal with this
Candice Huffstetler Yes I agree, it's bad enough that I'm on seroquel and the appetite is ridiculous. I mostly eat healthy though , don't want diabetes etc. I can get a glimpse of what it must be like to be constantly hungry.
I'm glad I don't have it but I do kind of eat a lot 😂😂😂
@@myroom800I remember feeling hungry all the time on that medication and although I would never know what prada willis feels like, I felt as though I had a mild form of this disease. I couldn’t wait for my next meal and I gained so much weight being on that horrible medication…..never again….
I work with a young man with this it’s sad watching him trying to destroy himself. Especially when he attacks my staff
I took my son to an indoor playground for kids with autism. It was a Sunday afternoon, so there wasn't a lot of people there. A woman came in with 2 people that I couldn't tell if they were kids or adults. It turned out that they were 15 year old twins, one boy and one girl.
They both had long, matted hair, along with huge clots of earwax hanging from their ears, like dreadlocks.
I wound up speaking with their mother and she told me the saddest story. Her husband had wanted kids, but they were both well into their 40's, so they underwent IVF. She got pregnant with twins.
Unfortunately, they were born 3 months early. This caused them both to have multiple strokes, leaving them deaf & blind. The husband was horrified that these kids weren't "worthy" to take his last name, so he refused to sign the birth certificates and left.
The twins both are blind, deaf, have autism, and PWS. The mom said that they become violent if you try to groom them properly. This woman actually said that she prays for them to die because she hated them and will never forgive her husband for leaving her with these kids, but she was jealous that he was free of them.
It was the most shocking confession that I've ever heard a parent utter and her honesty scared me.
o my god so sad ❤
My heart breaks for this woman. The sad thing is society condems her feelings instead of offering assistance and help. Realistically a home for these kids would be a good thing for her and possibly them. I hope she finds happiness and relief.
How awful. I'm sorry you had to take that on.
💔 how awful
That’s really awful you should have reported her, people kill their kids all the time
She dance like no one waching ... she is so sweet :( poor woman
Yeah :c
I can't imagine that torture. Always feeling like you're starving....
@Adolf Hitler
I thought that you were dead!!??
The scariest thing is that there are people with PWS that actually ate themselves to death in one sitting. They engorged themselves, and still not feeling full, ate still more, and then their stomach popped like an overinflated toy balloon, spilling corrosive digestive acids into their bodies which dissolved their liver, kidneys, heart, and what not, and they died.
@@triton115 this happened to a marathon runner as I recall. He had actually gotten control over, and began policing his PWS, and took up running as a hobby and got surprisingly toned and skinny (all of this nearly impossible for these guys)
Then there was one day he couldn't say no and had abstained for so long, he ate himself to death in six hours.
Really tragic.
@@triton115 a 17 year old boy in the United States gorged himself to death at a party his parents threw. His stomach ruptured and had cardiac arrest
My young glut t is like this. It’s sad watching him trying to fight us trying to help him. He will attack us steal food from our staff fridge if given the chance. He attempted to stomp on me bc I wouldn’t fed him whrn he Demanded.
You can tell how much this hurts her mum emotionally. :( Seeing her own daughter suffer like that.
thank you for this
My brother was born with pws. He did eat himself to death. He died at 15 from a heart attack. He would use any means necessary to find food, even break into neighbor's homes to raid their kitchens. It is a horrible disease.
I'm so sorry for your loss, pws is such a terrible condition I really hope science can provide a cure or some king of help really soon as what people & their families go through with this condition is just awful.
What year your brother passed away
@@fox0mulder Hello, I know this question wasn't directed to me so my apologies for jumping in here... I've been researching PWS, and I've noticed a few people claim a Keto diet/lifestyle is working for their relatives with PWS. I'm not a medical professional though, so you'll likely want to check with your brother's doctor before trying anything different or new. God bless you and your family!
@@fox0mulderyeah lock and chain his ass up
It's genetics that give people this condition. Chromosome number 15. This seems to be the one where most things go wrong.
James’ story about wanting to go be with his dad breaks my heart. R.I.P.
His story was pretty sad especially when his father passed away
oh my god the part where she was dancing alone was fucking heart shattering, and especially how directly after its a scene being explained she ,,,cant have children but is holding a baby doll 😭😭
i am Shawn Angelle Cooper an 43 year old adult female with pws, and on the pws adult advisory board. i can controll it at thanksgiving and christmas, i use a salad plate and what the tip of the serving spoon touches then that is all i take of each dish and a little silver of each pie and a little taste of the other derserts and i am satisvide that way i can have everything that everyone is having.i fix and cook my foods with my surport staff when ever i am in the kitchen and around food.
shawn cooper Keep being the brave and amazing person you are! You offer hope for so many who are afflicted with PWS, like my beautiful daughter.
I am so proud of you Shawn. Wow. Merry Christmas to you. So glad that you are controlling the PWS and not having it control you! I am quite impressed!
ESTIZINIZM ur ignorant.
That's great!
shawn cooper You should do a Reddit "Ask Me Anything" (Reddit AMA). As you can see, a lot of people including myself are generally curious and would like to learn more about the condition from someone who has it (ignore the idiots; this is still the Internet unfortunately).
My brother has this disorder. After watching this documentary, I just want to spend time with him, hug him and remind him of how much I care for him
My sister has it. She is 32 and we love her so much. Thankful to have a PWS group home an hour from us. She has been there since age 18. She was 380 then and 140 now.
Her parents have aged so much since the Real Stories documentary. God I hope they're doing okay.
They're probably in their 60s or 70s now
That’s the first thing I thought of...it must be so incredibly hard and it’s been since she was born....she’s lucky to have such caring parents
I’m not the only one who watched that
I tried to find the update on Sacchin. I couldn't and wouldn't deal with that disrespect. But, I think he was learning disabled, too.
@@Wheezersmom02 he also drinks alcohol so that also adds to the aggression.
There's also another documentary on her from
When she was 23.. Produced by real stories. So this vid is kind of like an update.
Mama MiMi I thought so
umm,is this video an update or the real stories' video is the updated one ? I'm confused a little bit. Her hair is much more shorter in this vid though
Sude Özçelik this an update video. The one from #RealStories is called 'My child can't stop eating'
She looks so different here
Mama MiM I saw the other documentary too, she seemed to have gotten bigger even though she tries to eat healthily. Her previoud daily intake was 900 calories, she now says it's 1300, why would it go up? She's gone up from 116 to 132kg.
I used to work as a caretaker for a woman with PWS, she had caretakers with her 24/7. When she was in a good mood she was sweet and nice like a happy 6 year old but when she had her rage outbursts it was horrible. There was no way to stop her and every time i was out in puplic i was afraid that something was going to upsett her. I am a male and worked with her for 3 years between the age of 25 and 28, still i was scared to be with her when she got upset. I had to quit because it made me sick, the worrie. But i think that Katie in this video is really, really great. And i truly respect the parents to these children. They go throug allot that people who never come across PWS dont even can imagine.
You know something interesting? Their behavior is a lot like the behavior of hoarders when they have to dispose of any of their possessions, even contaminated trash. I’m an organizer and I’ve seen this level of obsession and the rage outbursts in my clients. Once I was doing a hoarded garage clean-out with a woman when I came across a metal trash bin with feather pillows in it. It had been contaminated with mice and was full of rodent feces and urine and desiccated mice.The pillows were reduced to dust. I threw it in the dumpster at which point my client had a full-blown rage outburst with crying and name calling, the whole works. I was afraid for my safety. These pws patients are exactly the same. Makes me wonder.
@@Mrs.TJTaylor
I think it shows how upset humans really can get when they are being denied a biological need (to eat) or being denied what they feel is a right of theirs/ the need to possess things. Hard conditions to deal with.
@@TheUchihaRin A perceived biological imperative is one thing. Hoarders are irrational and very unpleasant to deal with just as if they have the same sort of “need” in possessing things as people have to eat to survive.
@@TheUchihaRin @Diane Taylor Ikr, I think there's a biological basis for both. They both tend to run in families. The PWS one is simply the one that's been diagnosed. But at the level where people panic over food -- or uncontrollable clutter -- I think there's something in their brain that's rewired wrong which we can't yet cure. PWS people can be kept alive by carefully monitoring their food intake, but how sad to be always hungry. I hope someday both conditions can be cured, so the people who suffer from them can be happier. It's so easy for us to just see the behavior (I can choose NOT to eat something and still be enjoying life, for instance) but their lives aren't like ours. 😥
@@Mrs.TJTaylor (sorry I originally tagged you by mistake)
I have anorexia. Watching this makes me think about how I too am controlled by food and how it’s always about my next meal. And calories. Etc. And you know what? I CAN do something about it. These people would give anything not to be controlled by food. So honestly it’s just motivating to recover so I am no longer controlled by food.
Nothing but the best wishes to you doll ☺️💖 you can do it
It's great to watch things like this to realise the power you have over your own anorexia and how it must come from within. Be blessed you do not have a physiological biological genetic condition that couldn't be cured. Good luck on your journey and keep that positive attitude!
Im so proud of you love i hope you are doing well
I wish the best for you. No matter what you are smart, strong, beautiful person!
I am.rooting for your success @Emma
I feel so sorry for Katie's mum, she is so emotionally devastated and in so much pain for her daughter.
Katie died 2 years ago, her dad Tony died in 2019
It's not just normal hunger, it's the kind of hunger you'd feel when starving to death hence why they constantly urgently seek food. Heartbreaking.
True ,it's pure hell ,I can't imagine
I can't imagine being hungry all the time. I wish there were treatments that could help her and others who have this condition.
It's not that type of hunger at all.
@rochelle8124 What type of hunger is it? I can't even begin to imagine any type of hunger that never goes away. I act like a fool when I have to go 12 hours without food. My heart goes out to all the people suffering from this and their families. I'm just thinking how the parents must feel knowing they can't eliminate their suffering.
@@mackinacisland3825 it’s not really even a hunger. It’s overconsumption due to a “broken brain”. It’s not hunger due to an empty stomach. Very different experiences.
Noooooooo, the damn dancing part is ripping my heart out
ikr 😒
I know man I know
It made me feel so bad for her, I wish I could be her friend or be with her 🙁
Your name triggered me
NERD Incorporated That isn't funny...
I have a friend who has this. He has to watch what he eats constantly. And sometimes back when he was a new friend and I was getting to know him, I witnessed him get upset when he couldn't get more food. I even fed him once when he came over to my house and when he kept asking for more I was a little confused. But then his grandmother who was alive at that time saw him with a snack I had given him and she explained it to me right away. But today he can control his urges pretty well. He still talks about food, what he had for a previous meal, wanting to know when his next meal is going to be. But he knows to watch his rations and what to eat verses not. He's doing much better than he was when I first met him. His grandparents helped him a lot with that I think, as they raised him. His grandfather is the only grandparent he has left now and my friend now is living in a group home across the street from the house he grew up in. I see him often as I go to a lot of places with him and my other special needs friends and he's doing great.
Sounds like absolute torture. I give huge props to anyone that suffers from this disorder and the family and friends that are there to support them.
Prader-Willi Syndrome is scary. It's hard to imagine being extremely starving hungry all the time as if you hadn't eaten in 5 days. And even worse, you never feel full regardless of how much you eat, so people with PWS really need to watch their portions, otherwise not only would they eat themselves to death, but there have been cases of people with PWS that ate and ate at a single sitting, and they ate so much that their stomach literally popped like an overinflated toy balloon, and they died from all that corrosive stomach acid that spilled into their abdomen, dissolving their internal organs.
I mourn for that poor woman and her son
I'm really glad she is still alive. I remember watching her documentary when she was 23. She's in her 30s and still going, her parents have aged like fine wine too. I pray she finds peace. 💖
Aged like fine wine? If you say so
according to one person who commented underneath the pws video that katie was on in 2004/5, she’s now on oxygen and claims to be bigger 10 years later
What the name of the video?
I read that she died in 2022. Such a gentle soul 💜
@@hackett152332she looks great! Y'all are getting accustomed to seeing people with plastic surgery, Botox, and filters...
Just be careful. One to many procedures and folk start looking freakishly fake.
I’m a nurse and I looked after a patient with PWS once and I can tell you it was the most challenging patient I’ve ever looked after!!🥴
It had to have been! But it's so great that you got through it, watching videos like these makes me so grateful I wasn't born with pws or I don't struggle with an eating disorder, it's a shame for those who struggle and it's clearly hard for them and it's sad! It's hard to over come it too sometimes, katie is a very strong girl and she clearly knows right from wrong it's just hard for her brain to comprehend it.
@@beasworld5155 Please tell me you're kidding, because that's revolting
@@beasworld5155 Unfortunately, that probably happens quite a bit, and when they get really big they're likely the ones doing the beating and breaking into locked kitchens.
Not to me my son had pw he was sent by God he was my and his dad joy very loving and sweet he made it to 25 missing him every day love you daniel
why did people bully her thats so rude its not her fault i hate humans
so you hate yourself
dean almanza no i said i hate humans not myself but most humans are stupid idiots
+PuPSter PuP But your a human??? Lol
Julie Hastings I meant the human race in a whole! Not all humans are stupid but a lot of them are! It makes us one of the dumbest creatures to ever live.
+PuPSter PuP fuck outta here with that bullshit
I had to make a decision to let my son die or let him live a life of suffering. I let him go. It was the hardest thing I have ever done but I don't regret it because now he isn't in pain anymore. My heart goes out to the woman who let her son eat to death. Until you've had to make that decision u have no idea and no right to speak on it
@Smokes-lets-go No he didn’t. He was hit by a car and it was ruled an accident
So sorry for your loss
@@abigailsara thank you
I can't imagine the horrific pain and suffering of having to make that kind of a choice. Of course nobody else can know your situation, but I would imagine you did the best and kindest thing possible for your son.
I actually cried when she was dancing at her job 😥
She may have PWS, but like +Nikol xox said, at least she's eating healthy and trying her best to lead as healthy a lifestyle as she can though. So mad kudos to her!
Yeah I agree!
her parents do monitor her a lot. i think if they weren't around, she would eat herself to death. :(
@@lunalove9395 If you saw the documentary on Real Stories Katie was able to manipulate her dad into giving her £1 for a cup of tea which she used to buy snacks.
@@ljmcdonald2703 i did see that! but i think after he found out they put her in a special home for prader willi, didn't they? or at least stopped giving her the money.
I thought this too!
i feel so bad for her. what her mother said about it being like watching over an addict really hit home for me. dealing with alcoholism is hard because alcohol is everywhere and the temptation is so bad every single day. of course i wasn't born an alcoholic but i can kinda understand where she's coming from when she has uncontrollable urges to eat even though she knows she shouldnt
I felt the same way especially when she said it's like being a heroin addict. Because I am a former heroin addict. Clean a year and half. And my dad mother and brother were alcoholics and heroin addicts my mother was my drug partner. And when we both decided to get clean and go to a methadone clinic and then get help her counselor put her on 120 milligrams of methadone I too was at 120 milligrams of methadone and one Sunday afternoon my mom went into cardiac arrest she died four and a half minutes and the whole while I'm doing CPR I made her aspirate methadone she had just taken 20 minutes earlier now she's not the same anymore. She's now on oxygen for life but I did CPR on the couch instead of throwing her on the floor they said i shredded her lungs. So now she's not the same and I by myself I'm still going to the methadone clinic I meant 99 milligrams and I still have cravings to do heroin so I can imagine what you're going through girl I hope things get better for you and I'll say a prayer for you and I'll light a Jesus candle for you and hope that you can get help may God bless you best of luck girl hugs from West Sacramento California. Stay strong!
+Alex Abrams Why are you making this about you?
+ExplosiveShart im just saying i can understand where she's coming from with her addiction, calm down
Alex Abrams I'm perfectly calm, but to me it seems like you're turning someone else's problems into a medium to vent yours.
+ExplosiveShart relating to others isn't a bad thing. it's a key to empathy.
"I asked for his forgiveness for bringing him into this world." I found myself making this wounded sound out loud before I could stop myself. Oh, god, the absolute pain of this statement. No one deserves this. No one should have to suffer a thought like that. It isn't her fault or any parent who gives birth to a child with PWS but they have to suffer with that guilt.
I can’t imagine the pain James’ mom has gone through losing her husband and her child within the same few years. Absolutely heartbreaking
wasn't expecting for the interviewer to look like that haha. 😍
me neither haha
People, who cares, it's totally irrelevant what anyone looks like. It's about these poor people and their pws. People act as if they are on heat, anything in pants seems attractive.
My Room that’s really cool to hear.
.. bro ..
@@ann-sylvianalule305 ...Nya...
That PWS home seemed like a success story for people there. Truly saved their lives. These homes need to be available in every country.
“Freedom is almost more of a jailer.” That hits different. God bless them
I held it together for this whole documentary. But when the mother said she asked her son for forgiveness for bringing him into this world before he died...literally sent me over. I'm sobbing. I hope she's close with her two other kids.
Unless they are in carefully-controlled PW homes, they really don't survive as adults.
I've worked with PWS cases and it is indeed a big struggle for these people, extremely difficult if not impossible to manage in a domestic setting. Australia definitely needs to address these cases and have facilities dedicated to them. Almost all PWS sufferers never reach puberty, they don't even get hairy any where and having an intellectual disability as well makes life a bit tougher on top. They are beautiful people who just can't understand the seriousness of their diagnosis. I'm saddened that we don't have appropriate care for this very specialised illness and most times they are put in mental health facilities because it's the only place where everything is under lock and key. I hope our country can move forward.
Seeing Katie holding that baby doll shattered me. God, thank you so much for the blessings in my life and bless Katie and her beautiful mother and father. 💙💙💙
This is fantastic to have an update for the other documentary when she was 22.
Edit: Hearing her Mother cry about the infertility, and see her rock the doll, breaks my heart.
Wow she looks really different , I came from the other doco when she was 23
I know she is a whole lot larger! Her weight gain has been slower due to her parents viglence. I worry what will happen to her if they became incapable of guarding her behavior.
So glad to see Katie is still alive after 9 years. Her weight gain isn’t as bad as I would have expected, but she can’t afford to be too much bigger or she won’t be able to work or move much. Surprisingly, she seems a bit more focused than she was at 22. Her cognitive function seems improved, and she appears less lethargic. That is good news. Keep fighting Katie. And, blessings to her parents who have sacrificed a lot to keep Katie from dying and permit her to live with some dignity and freedom. ❤️
This is so sad, I can't imagine how horrible it must be to constantly feel hungry no matter what you eat. Kudos to her for trying to eat healthy, she's a strong woman and I really do hope she's still doing well
She died at aged 41 in 2022, and was on an oxygen tank due to difficulty with breathing
They all have small tilted eyes I've noticed
The disorder makes people have almond shaped eyes that's why
That is the physical characteristics of the condition along with short stature, upturned mouth and small hands and feet.
it just goes to show, no one should be judged by how they look because there is always a deeper cause to it.
+Music_Lights l0l no
true
what about the ppl who just simply like eating ?
This is a very rare case, most people are just too lazy.
NoBeatsNoProblem Yea thats true for the most part
My cousin has this. He’s still quite young so the hunger hasn’t kicked in quite yet. I’m very thankful that we knew from the day he was born what he was suffering with, because my cousins have been able to help him have a strict eating routine. I pray his PWS won’t be so debilitating. I hope we find a cure soon.
If the constant hunger hasn't started yet there are injections that can be given to stop it happening at all, but it's vital that it starts before the over eating kicks in. It's available here and new Zealand and other European countries, please tell your nephew's parents to ask to see his consultant asap and hopefully he'll be able to help. I know in children where they receive the injections it stops the insatiable hunger ever starting so definitely worth seeing. Best Wishes 👍💛
@@enigma......7132 I believe the injections you are talking about are growth hormones . These cause them to have a better height and to have a better muscle mass causing a faster metabolism . All these lead to better weight management . Unfortunately it does not alter their hungar at all . But scientists are still working on this unfortunate condition .
There will be no cure as it is a chromosomal disorder. There is only a remedy, group home specific for PWS Kids. My sister has it.
DAMN THAT CAMERA MAN IS MIGHTY FINE
Kelly Hanna Right???
Oh, he gay! 😄
@@AnnaAaah so many gay men are fine!!! Very handsome.
@@Bonnie-lo3zh Ikr! 😭
..for real bro!!!
My heart goes out to that beautiful lady who lost her son.
This is such a cruel disease - I can’t imagine the daily struggle of feeling constantly hungry and never being satisfied yet due to your metabolism your needs are significantly less. Along with the behavioural challenges it must be torture for the parents to have to see your child go through this and incredibly exhausting dealing with this daily and they deserve all the support they can get. It’s criminal there are no programs for these people especially considering how successful the UK programs have been. I remember seeing Kate when she was 23 on a documentary (I think she was around 120kg) so despite the fact she has put on weight she has done an amazing job making it to this point and a credit to her parents since they have been forced to make a choice to allow her to live her life the way she desires while attempting to give her the best quality of life they can.
Well said it would be sad to see Katie going into the home when she really doesn't want to, also she'd have to give up her job which she loves. It's a hard choice between length & quality but I'm glad her parents are allowing her to choose & make that decision. Katie seems so lovely I often wonder how she is now, it would be great to have an update as this was filmed quite a few years ago. I hope wherever all that featured in the documentary are that they are alive & well & having a life that fulfils them. 👍
Katie’s folks are soooo wonderful and caring, she has such a great support system, Katie is very smart and is trying really hard to eat healthy.
she's got loving parents but unfortunately i dont think Katies efforts are working. Since her appearance in her first mini-docu series, Katie has gained so much weight.
@@BabuskaDollShe ended up being on oxygen due to her weight and died at 41 years old 2 years ago, her father Tony died in his sleep in late 2019
u can watch katie when she was 23 yrs old.. REAL STORIES: MY CHILD CANT STOP EATING..
Rebecca and Sachin were in it too
it was age ago since i saw her first episode.didnt realize she had a new episode now. i thought she would be able to manage PWS as she mention on her old documentary, saying she will fight PWS and live independently with it. Poor girl. Wish whe will still live along life.
I remember watching it
@@elle0113she died 2 years ago
@@ljmcdonald2703 omy. Wat happen
Katie seems so sweet and suffers with this horrible disease. I really hope she’s doing okay in 2021.
She is nice when she gets her way. I saw the documentary she was in when food was kept from her and she was rude and yelled alot. So yes, nice when she gets her way
@@JS-ps6cb don't forget the syndrome makes her angry about food.
As well as the hunger, people with PWS are emotionally immature and have learning difficulties. She can't help it.
@@JS-ps6cb She that was the problem with her the one with that Sachin in when she went too Gretton house she kept saying it's like a prison aswell the others managed too cope in there but one day and night she couldn't.
She died in 2022
Bless her heart. I cannot even imagine how difficult this would be both for Katie and her parents.
So happy for Letisha! She looks fantastic and is clearly very happy
Thank you for posting this video ... I'm praying for these wonderful mom's, dad's and care givers. But mostly, for the victims themselves ... what a struggle. So proud of you all. May you find peace ...
Woah....That interviewer though!! ;)
"It's nice going out clothes shopping now because I can get into clothes she can't"
Bless Laetita, she needs to be protected at all costs🥺🥺
Such a fighter💜
It's amazing how they all look so similar, their eyes and nasal bridge, you can tell from birth they have it xx
When I saw Katie my heart was just so full. I’m so happy to see she’s still pushing forward!!! I’m cheering for you, sweet Katie!!!!
She died 2 years ago due to her weight
I know this is an older one but been researching and came up in a list of videos.... I was not prepared at all for James story- his mom couldnt see him suffer anymore to want and want and want for years and years and in the end she just left him fulfill that need so he could actually be happy for the first time in his entire life .. I just cannot even begin to imagine. Heartbreaking 💔
Girl is doing alot better than other that we have seen.. she knows.. that is the best thing.. and she is trying to control it..
She can't though. No willpower can overcome this..and without help she will be dead. It's utterly heartbreaking
Why does mom take daughter to an all-you-can-eat buffet? This mom is so obviously at her wit's end. I feel much compassion for them.
why is it your concern on what she does?
Before you judge ....dont!
Before you bully....dont!
For Katie every day is a struggle, it really puts things into perspective to us that complain about trivial matters.
Good luck with the future Katie, you're an inspiration and a true fighter..
Thanks so much for sharing and Sydronforming myself and others around the world about Prada Willie
James story breaks my heart the most, I can't imagine the grief he had to have felt to want to push himself to eat himself to death in order to see his father. I wish there was an update on everyone especially Katie. And all in all I wish the best for Zoe, it must've been hard to let her baby go seeing him be in such a state
Zoe your such a sweetheart, I hope you know that no one holds you accountable, you clearly loved your boy and wanted the best for him, I have worked with PWS for years and there’s nothing like it, keep going girl xxxx
Very interesting subjects and perfect filming.
She's so sweet, bless her soul.
It's so sad that if she went to somewhere like Haydock house she'd have no independence at all, she'd have to stop working and just be taken out for group outings and games.... Ie treated like a child, I wish there was a solution where she could be monitored with a worker all day and still work, so she doesn't lose the adult independence she's worked so hard to gain!... She's even helping with research studies with professors, it would be awfully sad if she lost all that, but I guess it's a case of having a longer life with no independence or independence and a shorter, should quality proceed quantity?! 🤷💜
perfect film. Thanks for production
I worked with individuals with this syndrome. I heard of a girl who sold herself for food. She lived next to a restaurant dumpster so she can always eat. I new another boy who CONSTANTLY ate out of the school trash cans. They eventually had to lock them up. Its extremely difficult for anyone to control it's horrible.
Congrats laticia if you get to see this you are doing fabulous and look wonderful!!!
An interesting thing about Prader-Willi syndrome is that as infants they are diagnosed as failure to thrive. They are floppy and need supplemental feeds. Then the switch to the constant hunger turns on.
Omg Katie! I just watch the other documentary with her! I was wondering what happened to her. She has such a beautiful soul, I hope she's doing well
She’s still alive but struggles to breathe so she relies on oxygen for most of the day.
She died in 2022
i feel for ppl with this disease it must be hard and even harder for families
I had no idea that graveyards in Australia have coffins above ground??
They do :)
Wish Latisha could visit with her sister more often...great home for those with pws
I fear for what will happen when both her parents pass away will she be ok to live on her own? I wish the best for Katie
When she was crying in the home 😢. I nearly started crying. Just wanted to give her a hug xx she really is like an innocent little Child xx
Aww bless Katie. This brought a tear to my eye
Katie seems like such a sweet, motivated person. I saw the other documentary, from 8 years prior to this one. Im seeing that this was posted 9 years ago. I’m hoping she’s still alive and doing well.
She gained even more weight and had to go on oxygen as her breathing got bad, she died in 2022 aged 41
Heartbreaking for the kids and the parents. Hard to watch, but an eye opener. Makes me question that if there is a higher power, how could they let this happen to an innocent child and their family!
Not only are they constantly hungry, they literally have to live on the diet of an anorexic, otherwise they put on weight rapidly! They can’t even eat half of what a regular person eats! Those poor souls!
My heart just cries out for the family especially the mother
That part where Katie danced like no one was watching made me smile. It's just so wholesome.
Way to go, Leticia! God bless her carers. They’re doing an amazing job!
oh what the mom said at the end was heart breaking.
My heart is so with these folks. They have a burden I can't comprehend having for a day, much less for an entire lifetime. I hope so hard science finds a way to help them somehow, makes life easier.
I fell so sorry for her I almost cried
I recognise Collette Brown Latishas big sis!!!
She was A model and in All the magazines when I was A teenager! She’s aged very well!!! Ahhhh bless! Beautiful sisters! With A lovely relationship Xx
From all the documentaries on this it really seems that the best place for them to be is in homes like these. And I've never felt that way about a disability before.
"another symptom of this cruel disorder is infertility" in fairness, that's a blessing...would she really be capable of taking care of a child? obviously not.
derpestarzt yes she probably wouldn't be, the point is she would love a child
derpestarzt she'd eat it one day
Nicola Elder love is not enough unfortunately
I agree
There have actually been 3 cases of women with pws who gave birth to children.
I'm not sure exactly what happened to them but 2 of them were healthy and went on to lead normal lives.
There have been no known cases of men with pws fathering a child.
This is such an unfair disease. I pray for a cure.
Her mom is so tired. Both parents. I'm sure they're scared for her, and who will care for her when they're gone... The scene with the baby doll is just heartbreaking. She knows she will never have the life she wants.
I love Katie's story!, I've just been watching her other story! ♡♡♡
I was hoping she'd get more help from her last story.
Me too. Glad shes still alive.
She died in 2022
katies Parents are lovely !As Katie hold her doll in her arms ,I cry ,cause I understand Katie want a baby! Katie you are a sweety !Sorry my broken english!
Considering her prognosis she has done so amazing. Her parents too. Constant hunger and reduced calorie needs? That must be so frustrating. Incredible people.
“Just that I love her” hits different when you see genuine love 😢 man that last family she loves her sister with her WHOLE HEART ❤
I heard she died last year
@@pretty-eyesLaetitia died???
I've been struggling with my weight for a few years now but I can't imagine having this illness. I don't feel sorry for those who have this kind of experience, but I do feel for them.
Please understand, I'm not meaning any kind of negativity. Best wishes for everyone who has a struggle with this.
Both parents are amazingly strong and loving but oh my gosh her mother is struggling badly :( such a sad situation
2:46 that looks like that best damn sandwich ever
Hahaha I agree.
Ew
You guys are not forgotten just remember that,love ❤
You never realize how blessed you are until you see what others go through
must be like pure hell