Living with chronic pain - Jack's Story
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- čas přidán 9. 03. 2019
- Imagine going for a routine operation on day to waking up with your chest feeling like it’s on fire, permanently, and indefinitely. Living with chronic pain - Jack’s story is a hard but essential story to tell. And not for the reasons you may think.
Jack is one of the most inspirational and strongest people I know. To live with allodynia, be unable to work, deal with the dark thoughts that this entails and STILL manage to be a positive force both for himself and, incredibly, for others too.
I usually talk about exercise and life and how to take positive steps for a better life. Although this may seem like a tangeant it’s not really. Jack can be a lesson for us all. In positivity, coping mechanisms and how to look at life for the better. He is an inspiration and I’m proud to call him my friend. - Sport
What a great video. People do not realise how the chronic pain experience changes you in so many ways. The grief is unbearable, until you get to a place of acceptance. I was also suicidal and felt I had lost the life I once lived, a fit healthy, energetic, fun, social and outgoing life. Boom I lost it all due to an accident and then subsequent spinal surgeries then chronic pain syndrome. Lost my career as a Nurse, that was a job that I lived for. My friends disappeared, no one understood, the exhaustion and pain was crippling. I stopped going out, stopped socialising, stopped exercising... once I worked through the why me and found acceptance, I have found that I still have a life it is just different now. Thank you for sharing your story. :) it certainly is a slow journey. 6-8 out of 10 pain everyday as well. Just about off my pain meds now which I hope is the right decision.
Hanks Kim. Jack is doing very well now and has found multiple excellent coping mechanisms. He’s a born fighter and I’m proud to call him my friend 🤟🏼 I hope you’re well too
This Messy Happy that’s great. It’s important that we get the message out there about how pain can effect ones life in so many ways. The judgements that come from others hurts us that suffer from this invisible curse. Thank you for promotion this topic and being the voice for others. Awesome stuff thank you for your reply :)
Hi Kim, I have experienced exactly all you have, and I love what you wrote. My journey began 20 years ago, and I want to tell you that your life will get better. I don’t know exactly how long it will take, but life , even though it changes, is valuable. YOU are valuable, even though you may feel broken. God still has you here for a reason.❤️ Love to you, dear girl. Mrs.B.
@@---wu3qj thank you so very much. I appreciate you reaching out to message me. I’m so very very leased that things have improved for you. Keeping faith and not giving up is certainly the answer. Thank you for the positive message xxx
Hi. How is your pain/life once you went off your pain meds? 🙏❤️
I have been dealing with fibromyalgia chronic pain for over 35 years. When I was first diagnosed I went through a very difficult few years were I gained a lot of weight and just couldn’t function. Then I decided to volunteer at my local library. Just a few hours a week, one day a week. It was just greeting people at the boutique in the kitchen Rory. One day an elderly man came in and we talked for most of my two hours. When he was leaving, he thanked me for taking the time to give him a smile and talk to him. He said it made his day as he was very lonely. I realized that everyone is dealing with their own kind of pain. I find helping others gives me a great deal of gratification and makes me feel worthwhile. I am fortunate to have wonderful friends and family who support me. I still suffer severely every minute of every day, but try to keep as busy as possible. I swim and do yoga, and try to watch fun or uplifting movies. I also surround myself with positive people. I do have days where I just want to feel sorry for myself, but try not to dwell on it. This is a great video. You are a wonderful inspiration to everyone. Take care of yourself. Big hugs from Canada❤️🇨🇦😊
I have so much pain it hurts to wear clothes I've lost all my friends my job hobbies etc. I can't work I'm exhausted all the time and welcome death
I wish I had a friend like this guy who didn't abandon his friend when he needed him the most
I feel like most chronic pain patients live in isolation if they are single.
I’m really sorry to read this. And hope you find a place where your pain is more manageable. Jack is there now, after years of suicidal thoughts and pain he changed his medication and routine (does a lot of weights now) and he’s much more in control of his pain rather than the pain controlling him. I hope you can get there x
@@ThisMessyHappy yes, maybe one day. Thank so much 😕
I'll try to asnwer your prayer, look up "how to make an orgone accumulator" and don't glue when you create it, I've been researching it and have seen it stop chronic pain
@@ThisMessyHappyI totally understand everything you said. I am soissolated and hate waiting for the ext dayxx
I don’t have to imagine. It happened to me back in 2018
A gynecological surgery left me with chronic pain- very painful chronic pain
I take Cymbalta- I still have pain but the medication keeps me from losing my mind.
MORE JACK PLEASE!!!! I just now found this video.
Want to hear more from Jack . Thanks for sharing .
the life pain part that you said is not personal was a great statement because like me nobody considers anything personal till it happens to them or someone they love
Please have Jack on more. I have been in constant excruciating pain for 38 years. Great video
❤
agree and I feel you
Im so sorry Jack. Im suffering too. It fels like glas or knives in my throat. Can be some nervrological issues. It’s not psychological, but still under investigation. I can’t live like this. I’m most of the time in bed. You are the first person that has shared in CZcams what extreme chronic pain is like. Just not common chronic pain. It’s important to tell and spreading awareness. Maybe the millionaires spend money for painscience instead of traveling to other planets.
Thank you!
Thank you Jack for being brave enough to post this. Funny enough my name is Jack and I’ve been going through pain for about 8 years now. I love what you said about the multiple years of losing yourself for a while during the pain. To me it’s because you lose who you used to be. It’s hard to let go of the past. But yeah thanks for letting this be filmed and spreading how you’ve dealt with it. Much love!
I'm pretty sure I just joined the long-term chronic pain ranks. I always thought there would be some sort of magic technique if this happened like breathing exercises or visualization, but now I'm finding out that basically, it just sucks. I'm trying to find some kind of acceptance just so I don't completely lose the will to live. It doesn't help that the painful injury that is now put of control, originally was intentionally inflicted on me by someone who was abusive toward me when I was a child. So I'm trying to find some sort of acceptance, but any and all lost productivity just feels like her "winning" still.
Love this video and I'm so glad you didn't cut anything out! I was in a near fatal car accident and have been in pain ever since. 10 years of daily pain of varying degrees. The bowl technique is a wonderful idea!! I'm going to implement it into my own life!
I have had chronic head pain after a bad accident, been disabled for 21 years now,still not used to it.
I was a vibrant working 42 year old, just built our family dream home and we were raising four children…. A drunk driver hit me, broke everything from my neck down to my feet… 20 years later getting ready for surgery number 11… it destroyed my marriage, changed my relationship with every child, and now I don’t know who the hell I am anymore…. The pain never leaves. It’s relentless. No sleep, no living, no enjoyment …. 💔 I thought one more surgery and I’m done…. Meds, injections, patches, acupuncture… I cannot fathom being positive for more than an hour or so, because I’m on a maximum dose of a high opioid and then the pain returns …
Jaded57. I’m so sorry for your story. Gentle hugs.
@@rubychurch3466 thank you for taking the time to respond … may God bless and keep you … I count the days until I see Jesus 🙏
Thanks for sharing. I was also hit by a truck a year ago and am dealing with constant unrelenting pain.
@@jadam7808 I am so sorry for you and have great empathy for your daily pain… I wish there were a pain group we could go to and just talk…no one understands unless you are loving it … May God give you some good days ❤️🙏
I know a lot about allydonia. Woke up after surgery and had it going on 14 yrs now. It's hell, I know
I'm 33, I have ulcerative colitis, epilepsy. Lost all my parents one being my dad recently. Was recently told I was also anemic, being born with a high metabolism my body is unable to obsorb nutrients. Lack of energy, breathlessness. Been in and out of hospital which has effected my job and pretty much my life. Its hard but im a fighter and will continue to fight. I'm planning to move soon so having small positive thoughts, even if I just smile can make a huge difference. Yeah if you want to interview me I'd be down for it :)
Thanks for making this. I have suffered from chronic pain since 2011! An accident left my with persistent sciatic pain down my right leg. Every day is a battle . I still work PT I really do struggle but it's my dogs that give me so much joy and reasons to not give up. X
Oh ok sorry to hear this Lena. Big I’m glad you have found joy in your dogs. Jack has a dog now as well and has also found solace in weightlifting. I hope you’re ok 👍🏻
I'm right there with you. Mine happened in 2011 and required 2 surgeries in 2012 so I'm 8 yrs in. My dogs keep me going and make me get up even on the days I can't stand to walk. I'm sorry you're in pain and I hope you feel better or already better. You are not alone ❤
@@finley1210 so sorry to hear that happened to you. As dory would say we have to " just keep swimming, just keep swimming ". Xx 💙💜🐶
Thank you, Lena. I'm sorry for your pain and struggles also. Isn't it amazing how therapeutic our dogs are! Mine keep me moving and make me laugh even on the bad days. I like your quote from Dory...my mantra is similar but I say "just keep breathing and it will ease" because it will always ease at some point. X
Thank you for this video! I'm 8 yrs in to my journey of life altering horrific chronic pain and I don't think I've quite come out the otherside, but I'm getting there. Ironically, I too was a social worker before this happened so a lot of who I was and how I felt was based on helping others. I love the idea of the indoor and outdoor bowls. I'm going to start implementing that. I wish there was a way to connect to Jack personally. I hope he sees this and knows how helpful that was. His positivity is inspiring and I thank you both. Jack, you've helped me so thank you!
Thanks Jane. I took a screenshot of this and sent it to Jack (as he doesn’t really do CZcams as social media) and he was blown away. I really hope you find some peace on your journey. Jack is in a good place now. Still living with chronic pain but has found solace in weights and working out as well as reading ferociously to improve his mental strength. I hope you have a lovely Christmas x
@@ThisMessyHappy Thank you for sharing it with him and I'm so glad he's in a good place. I'm really enjoying your channel as well! I'm glad I came across it. I hope you all have a very merry Christmas and happy new year !
Thank you so much for this video! I've been suffering with chronic pain for years and it's so encouraging to hear Jack's story. I'm definitely going to try the activity bowls, such a brilliant idea!
Sorry to read that you’re suffering with chronic pain but thank you for the kind words and I’m glad Jack has been able to help you with maybe another strategy 😊
I have done few interviews before and sometimes you have to let the camera run. Otherwise you loose the heart of what is being shared. This is a great story to share. The length is simple what it needed to be.
Thanks for the kind words. It’s always hard to gauge isn’t it!! But like you say, I couldn’t dilute Jack’s story. Too important 👍🏻
I found watching this video incredibly inspirational. I have episodes of acute back pain that is life changing and at times overwhelming and disempowering. The courage and creativity that you have shown Jack has given me hope and motivation. You have connected with others and have a good friend who made this video with you. I find it a struggle to connect with others around my pain, as I’m naturally self sufficient. It’s good to hear how you connect with others and tell your story. You have created so much good karma by creating this video.
Jack is my inspiration ❤️
He’s an absolute legend 😍😊
Watched fully through. I can relate to the pain concept although mine has passed but lasted nearly 2 yrs after being shunted in my car twice within months from January/may 2017. Severe back pain down one side especially, which eventually subsided to tolerable after a year. but other related muscle pains in the lower back & leg after fitness training whenever I laid down to sleep. Very frustrating as much as painful. But recorded sports related & calming hypnosis helped me sleep/lighter alternative training/and a positive hopeful outlook kept me ticking over when thoughts of jacking in physical hobbies crossed my mind. Chronic pain is a wired phenomenon which can occur after an innocuous injury to a bruised bone/muscle and last persistently. Wish you the best jack with a solution
I would watch Jack’s channel too 🤩What a star. Thanks for making this vlog!
Wow! Jack is such an inspiration!
He’s an amazing man, dude 👍🏻
@@ThisMessyHappy Thanks for this video!
Thank you for this video you have really helped me I hope you do make more of these videos
It was like a vacuum took away my life and emotions
Sorry to hear this. I hope you’re doing better now. Jack is in a much better place 😊
@@ThisMessyHappy it makes a huge difference to have people in your life who understands and supports you . So I m not Surprised he is better. If I had that support I hadn’t even got sick . Thanks for your wish x
Good description of how I feel about my life. Like I’m a spectator to life, on the outside looking in. Constant pain ended my life as I knew it.
Try our channel, we might be able to help
Thank you both for sharing such an amazingly painful and beautiful journey. I kept having to pause because I feel connected with every word that was spoken. I have been living the same painful yet most grateful and loving part of my life. This video is one more truly divine gift I could have never imagined on my own. Much love and appreciation for YOU Both ❤️.
Ps ...I have a WINNI TOO 🤗🤗🤗
Thanks Michelle. It feels like such a long time ago we made this and Jack is in a much better place now. Still has the pain but is dealing with it so much better. Thank you for your kind words and I hope you’re ok too 👍🏻😊
Man wish I could find this change in perspective! And a boyfriend who also has chronic pain🤣🤣🤣👏👏👏
I’ve thought the same myself! I need a boyfriend who has chronic pain so we can relate to each other.
I'd like gf with chronic pain... 😄
Great video you guys! Thanks for bringing Jack on. I can relate in a heavy way, and I hope he's taken your suggestion to run a CZcams channel. You mentioned you've both written blogs? how can I find them? Would like to read them both, as soon as possible.
this was wonderfull , you would be a grate pod caster i noticed that you are a really good listener during this as well. Something to think about ps; we would absolutely love to see more of jack
I am in chronic pain all the time. I have broken my back 4 times, I have oesteoperosis n break really easily. I’m very depressed n have been housebound for a year. Please can you get in touch with me xx
Good evening, how are you doing now?
I normally don't comment but i think Jack (hopefully) will see this! I have chronic pain, i'm 15. it started last year along with a hole bunch of other medical stuff. I am crazy athletic and the pain gets hard at times. i've been trying a medicine called LDN (low dose naltrexone)... u can do your own research about it but basically it has help SO many people with chronic pain. it's slowly helped me and when i forget to take it for a day i can feel the difference. I hope you can look into it and maybe start it, it helped me... and i hope it helps you to. Good Luck, you got this!
if Jack sees this can u please tell me. i just hope it finds him 🥺
Hi Rebekah, I’ll forward it to him so he can see it 😊
@@ThisMessyHappy this means the world! tysm 🥰
Please “press gang” Jack into doing a vlog. This has been the best thing to give me hope and maybe even a little enthusiasm. Thanks so much to both of you😘
Thank yo for the video! It would be amazing to connect with Jack. My pain journey started over 30 years ago. It isn't often you come across people with Jack's outlook and positive approach to handling life with pain. Has he started a blog? It would be great if he could start a forum for people who live with chronic pain. How can I get in touch with him / find out if he's started his own blog?
Same
I feel like an 80 year old man im only 28
I feel this. The hard part is to create meaning from your pain. But the pain does give us compassion for others in pain. It’s definitely an experience.
I know that feeling... The lack of energy to manage everyday life...
So what is happening for Jack today?
He is still in chronic pain but on new medication that regulates his mood better, he works out a lot and has a lovely girlfriend. So he is finding multiple ways to deal with the cards he has been dealt. I’m so proud of him 😊
This video seemed to be more about your ego and your interpretation of Jack's story, than Jack's actual story!
Bit like your comment then
Move to a tropical beach where minimal clothing is viable