Why Recovery Is Taking So Long & How To Speed it Up | CHRONIC FATIGUE SYNDROME
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- čas přidán 10. 10. 2022
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Chronic fatigue syndrome (CFS) is a complex and debilitating disorder that can make everyday activities seem impossible. People who suffer from CFS often feel like they're stuck in a never-ending cycle of fatigue and frustration. Fortunately, there are ways to speed up your recovery process.
In this video, we'll discuss the reasons why recovery may be taking longer than expected and share tips on how you can improve your health and wellbeing. Thanks for watching!
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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My biggest ones are:
- Fear of over exerting myself physically
- Mind going crazy during adjustment periods
- Comparing myself to healthy people
- Patience
Those are very common and very valid, Hugo!
Keep it strong. Soon you'll sing a "new song" of recovery!
Like the ipad change. I stay calm during a flare up now and i concentrate on all the things i am grateful for in life; the flare ups do not last long anymore.
Glad to hear it is working, keep on going!
That's all I am too brother good job
PRay pray to JESUS🙏❤️🙏 seek GOD🙏 accept HIM AS YOUR LORD AND SAVIOUR..
Let us win more souls for JESUS🙏❤️🙏
My back is like a warm oven❤️
I comment a lot cause I know it helps the algorythm so don't mind me.
Love this! We are not on a time limit on this. I know we all want to get back to our lives. But we are here for a reason, because of an imbalance we caused ourselves. I say be here fully. This is our chance to really set the record straight, to change our lives for the better. Be present and do the work. Otherwise you just have to repeat the lesson in Earth school.
Exactly, that's the right mindset!
@@cfsrecovery Is this really an "imbalance we caused ourselves" as write stated? SHould we really be blaming ourselves?
Thank you. I've had support from various clinics over the years but nobody has made this as clear as you. Lived experience helps.
That's really good to know! Thank you! 😊❤️
This makes so much sense and I was in the same loop for three years. I had a few ah ha moments in this video. Thank you for all the free information you put out here. Im positive this is helping me dramatically. Watching your videos have allowed me to take control of my life again.
Glad it was helpful!
This channel deserves more attention! Thank you for your insights.
Thanks Nick!
Perfect model for my experience. I've made lots of progress over the past 4 years. Identifying and resolving each source of kryptonite (excellent term) is essential. Gotta go deep. Thanks for your videos and inspiration.
You're very welcome!
brilliant, it makes perfect sense. the exhilaration periods are my biggest krytonite. getting so excited and going opshopping, decorating my house or just generally doing too much physical creative things when im peaking. i used to be an artist and have adhd so it makes sense 😅 but i believe at a certain point in recovery, a creative outlet, and when done correctly, it can be that thing that keeps us in balance. ive started sketching again, just a few hours a week, sometimes in my recliner. it gives me that spark of life, without needing to turn my loungeroom around and spending the next month in bed. if balance is yin and yang, and yin is non action and yang is action, drawing is my action. i need both, i need them to be active simultaneously (or atleast reactivating every couple of days) to stay balanced. if creativity dies in our minds, so too will it die in our cells. if you think of creativity as life, light, spark, spirit, hope. thats my thoughts, anyway.
Your insight is amazing! 🌟 Finding that balance between excitement and grounding is key. Your creative journey sounds wonderfully rejuvenating. Keep sketching and nurturing that spark within you! ✨🎨
Part II please, and big YES to the diagrams! 🥰🙏😊
Thank you so much! 😊❤️
Thank you! I really needed to hear this. I’m going into my 4th month of nervous system regulation, and sometimes I forget that the body takes a bit of time to catch up with the brain.
Yes it does and some time you need to slow down a bit.
Glad you found the information helpful!
Your videos are so helpful, thank you, I believe my cfss is coming from my mind, iv always been a stressed over thinker that always likes to plan for the what ifs, and you can't ever plan for everything, but my brain wants to, it's a hard road but im working on it !
You got this!
This def makes sense. Thank you🙏🏼
You're Welcome 😊
Spot on!
Glad to help!
Thanks man, this makes so much sense.
You're Welcome 😊
Yes, it's always useful to reformulate, draw a different drawing, explain from a different angle to me.
Really well explained! Thank you!
Glad it was helpful!
Great video 👌
Thanks 👍
Love the visual diagram! Thank you!
Glad it helps!
Thank you! I really appreciate your clear communication!
You are so welcome
Yes! More diagrams. Excellent content.
You got it!
Really useful video thank you.
Glad it was helpful!
Stuff u share is SO good Miguel - Thank You so much !
You're most welcome
Thank you, love from Norway 😍
Thanks for watching! 😊
love it, thanks Miguel! yes, please more visuals, they´re ace - you´re starting to grow on me! 😉
More to come!
Took me 3 months to recover. I’ve been helping some people and they are taking sooo much longer than me. Not sure why. I think it was the mindset.
How long were you sick?
@@taylorp1330 1 year and 7 months sick. 3 months to recover
@@30bananaguy did you have mood swings and or mental symptoms
@@30bananaguy have u completely recovered
@@t2tmedia933 yes I have
Thank you 🙏🦄😃 this was great, and the drawings and diagrams u do help ALOT 🙌
You're welcome 😊
It was perfectly understandable , thank you for all your in detail videos which solve this complicated puzzle,thank you a million , I live in Iran and the only hope i have to get out of this hell is the videos likes those of yours specially yours and some other channel. These approaches are the only approach that makes complete sense. I can thank you enough. I am just able to pray for you man and wish you all the best in your life. 🌹🌹🌹🌹🌹
Thank you
This content is GOLD! Thanks for sharing with the masses. Very well explained- best I've come across. Keep up the great content! 👍🙏
Thanks, will do! Much appreciated 😊❤️
Yes, the iPad is great. Good video. Thank you.
You're Welcome 😊
Very well explained. You’re a natural teacher. 😎🍏
Thank you! 😃
This makes so much sense. Thank you so much, it finally puts me in the driver's seat of my life.
Awesome 🙌
Makes real sense
Good to know 😁
Good energy positive energy helps symptoms a lot. Gratitude
It sure does!
Miguel! 🙏🙏🙏🙏🙏 yes i loveeeee the drawings! They are mu best friends 🥰🙏
The best 🙌🏻
Ooh gratitude being in the middle. Makes sense
🥺🤗🙌❤️
Yes please follow up and more diagrams!
Noted! Thanks! 😊
Much needed video i was thinking the same thing why other people got better in few months and I'm taking such a long time even though I know I'm making progress every day small or big but still somedays i just wanna be normal sometimes even better than normal😅
Are you from India
You got this!
@@Arvindg991 yes
Please this was so good! Do you have any more videos on emotional regulation? Thank you! 🍀
Not for now but you'll be the first to know when put any up. Turn on the notifications! Glad it was helpful
@@cfsrecoveryfantastic, and thank you for all that you do! I downloaded recovery foundations, I cannot afford coaching right now, but even those 7 day principles are so so helpful! Thank you and may you be blessed! 💜🙏
Yes, for me everything makes sense. Since I understood the logic behind the recovery process like not beeing to emotional about the symptoms and not to think about the symptoms. The symptoms becoming less sevare. Its a progress like with muscle training. Its needs time like with everything. For me its now a life mission which I will win sooner or later. I believe, even its hard sometimes not to.
That's awesome! Glad to hear the symptoms are becoming less severe. Keep on going, it's only a matter of time before you make it out 😀👊🏼
@@cfsrecovery Thank you Miguel. time is everything. We have to be patiend, even its hard, right!
greatv video-i am a visual learner to so v helpful x could you expand on the side quests? i think i do this but not sure x thanks for all your great videos, appreciate how much you do for free x
Hi Sarah, what exactly would you like me to expand on about the side quests?
@@cfsrecovery dont worry, i just rewatched and not sure why i even asked that at the time 🤷♀️ thanks x
@@seffie4363 No worries!
@@cfsrecovery not sure you’ll see this reply but i really struggle with palpitations-todays racing heart and skipped beats every time i get up, this is one symptom i struggle to be ok about x do you have a video anywhere on this? i did try searching but no luck x thank you x
Miguel can you do a video on how to keep the good emotions of thankfulness, positivity,... I know its important to try to avoid the negative emotions of worry, stress, ect. but its less harder to and effective for our health to reach for the goal of something good than just trying to avoid the bad emotions.
I like the way Rick Hanson teaches how to build the good emotions. He has free classes, podcasts, YT videos and resources on his website. He also has weeks-long classes you can purchase, and books, too. He's not a Buddhist, but he uses Buddhist principles. It's not a religion and you don't have to study Buddhism; just learn to spend more of our time in calm, compassionate, grateful, loving emotions.
For sure! Here is a video that covers that topic I've created - czcams.com/video/HYJJwYdGioE/video.html
I'm trying to figure out how to get out of the spiral when its something physical like having to push myself to go to the dentist (so many appts), food not showing up, helper not showing up, power outage etc all reasons to push physically
Hi, great video. I tired clicking the link to join the program but it got stuck on the checking if the site is secure screen.
Try now
Loved the picture.One question - is the trigger really emotions? mine are very mild, I do not see them as the reason for symptoms...¨
As you said, emotions are probably not your main trigger for symptoms then. If you have no fear or anxiety about symptoms, you can expand more
Miguel, how do you sleep naturally if your mind races or seems alert? Any advice for this you may have seen in yourself or others?
czcams.com/video/deYPKBYfNpo/video.html
When you say the stressor gets less intense as we progress, is it because we emotionally get better equipped or is it because we physically get better and the stressor isn’t as intense on our nervous system
It's a mix of both!
Do you have any tips for empaths with ME/CFS? I get drained from almost every social interaction, because most people in my life have problems and they need to talk about them.
Hi tender, this is a great video idea. I'll film a CZcams video about this!
Are you saying that controlling these big spirals going up or down directly correlate to your physical fatigue, and that in fixing these triggers you're explaining or learning to manage them, your body calms down and you're able to have more energy? Thank you for posting videos on this.
Yes, exactly!
I understand it is a mental thing, but how do you go about activity to recover from cfs?
Fortunately, I didn’t get to a point of being bedridden but I can’t really workout. Super weak and sore from the tiniest move the following day.
How should I manage my activity?
Should I still workout? Should I push to failure?
After a year of healing I got myself to a 3 day job for 7 weeks. This week went into a crash with all explained symptoms. I have had a week to recover and need to decide if I’m going back. My body is saying no rest but i feel also the pressure of job will reduce the healing. I’m confused. I feel I would be pushing myself because I have only just got back to work. Any advice would be appreciated? I have long covid/cfs. 😢
How do you pull out of the spiraling? How do you get the stressor on the left to become like that on the right?
Repetition. Responding well to symptoms over and over and over again. When your symptoms for up and you respond well, that's when the magic happens in recovery and you are actually rewiring your nervous system to a more calm state
Good video Miquel. What is your idea about ice baths to strengthen the stress response of the body for cfs and or long covid? You go in ice cold water for maybe 30 seconds and you breath slowly in and out. If you do that your body will learn to deal with stres much better in the future because the cold water triggers a stres response of the body and you stay calm...
Yeah i have been reading about the same
Let me know if you find anything
it does work but I wouldn't recommend ice baths unless you are far in in your recovery. Cool showers are good but don't go full on freezing cold for too long. Start and finish with warm aswell 👍
just to add I tried the extreme cold ice bath and it fucked me up but the showers were fine.
@@AntonyJS were you thrown back in recovery after the icebath or did you just had a discomfort for a period?
@@creepybastard1988 i also takes a cold shower morning am having long covid it’s feels good for me. But when i finished, 30 min after, I feel bad again.
I’d never thought of emotional/mental state affecting physical recovery but it makes sense. I think you said even experiencing too much positive emotion can impair recovery; that’s very interesting.
People don't realize how much stress emotions place on the nervous system. Typically emotions place even more stress than just cognitive and physical functioning, so I'm not surprised that the emotions can cause your systems to flare up like crazy!
Does anyone have any tips on stopping bad dreams? They always seem to set me back
This video will help you: czcams.com/video/deYPKBYfNpo/video.html
I can’t seem to get out of a downward spiral-emotional dumps and fear of never getting better during this AP.
This is where brain retraining comes in and helps you get over the AP period and flare ups. It is part of the recovery process Pamela.
Don't despair!
I have Long Covid, the "mild" form of it... But it's quite bothersome and veeery annoying. As soon as I stand up, I feel "weighed down" as if there were a ton of bricks holding me down. There's this constant weight pushing down on the lower part of my body, especially the legs. Limbs feel pretty heavy, too. The "heaviness" is so bad and unsettling. If I am lying in bed, it feels like I am being pushed against the mattress and I am sinking into it. If I sit on a chair, I feel like I am sinking into the chair. I can't stand still for a long time because the heaviness gets worse. Also, every kind of activity, including the cognitive ones, make the heaviness worse. I have to "rest and pace" all the time in order to avoid relapses or feeling worse. I also experience a wide range of body paresthesia (tingling in the extremities and in the brain, stab pain in my muscles, pins and needles) and the hot flashes are unbearable. What can I do about that?
Watch as many videos as you can on my channel because if the doctors have ruled out all other health issues and they’re not doing anything about your situation, all my videos will help. Check out my playlist about dealing with symptoms, I would start there and go through those videos!
SYMPTOMS 101 - HOW TO DEAL WITH THEM DURING RECOVERY
czcams.com/play/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa.html
Is it possible to make a full recovery? I got here from over exercising for years and under eating which led me to burnout
Same here. And I plan to recover
Kinda similar I was undereating a lot and had a ton of anxiety but I'm doing way better now and do think I will make a full recovery
Mine was for like a decade though
@@tiffany8154 yeah you can definitely recover you have to start eating well and stop over exercising and you will recover
Absolutely! Here I am I fully recovered
How to keep emotions neutral when you lose someone to death (or even ppl walking away), during recovery? My dad just passed
I am sorry to hear about this. 😞 Dealing with loss during recovery can be extremely challenging. It's important to allow yourself to feel your emotions and grieve in your own way. Seeking support from friends, family, or a therapist can be helpful. Over time, as you heal, your emotions may become more manageable, and you can focus on your recovery journey with a supportive network by your side. 🤗
Can u get back on THC if recovered? E.g. microdose. As if i have it now it makes the spiral worse
I wouldn't recommend you that, Consult with a Doctor for accurate information.
-Leg stiffness: worsens randomly when sitting or lying, Never notice whens tanding or moving.
-Fatigue whole day: sometimes worsens during the day.
-Wake up really tired, fatigue in my body, leg stiffness. Arms tired too.
-Urinate alot, have to urinate 10-15 minutes after drinking.
-Thirsty all the time, can drink-> urinate and then go back to drinking water.
-Heal slowly, injuries last forever, got hit while playing football in my leg, im still sensitive in that area. Overworked my forarms, comes back every time i barely lift something the wrong way.
-Dry skin, acne.
-However i can jog, play football, walk my dog. i can even work to some extend as long as i can choose when to work and quit, but i would fail at a 9-5 kinda job. The thought and reality of waking up tired for years and years is very unrealistic. and would be impossible, i would give up eventually.
-struggling wiht sleep cycle, can fall out of it very easy, not very tired at night, more excited, seems like my energy is higher during night time.
-I have some strong reactions, emotions to people and social situations sometimes.
-I eat clean, not bad habits. but whether i eat clean or bad it makes no difference to energy levels or stiffness.
-pain in my chest when sleeping on my left side.
-I stretch every day, eat twice a day, fast the rest of the time except water. ( only last 2 weeks)
-Eating banana and bread in the morning makes me beat, 1 hour alter im already back to wanting to sleep.
-First symptom was waking up during the night to urinate, and morning fatigue+ legg stiffness.
Thoughts on what it could be, or something that i can do to get better:O?
I hope you are much better now. For retaining water try something like isotonic drinks (sports drinks with electrolytes) and see if it stays better… should also help with the thirst. Speedy recovery!
I mean its chronci fatigue ish, so wont be feeling better wiht electrolytes, but thanks for the tip:)@@Svitification
@@tommigunn16 my tipp was not concerning fatigue, but whatever man, your thirst, your life. Mindset is everything
been trying, not sure if electrolytes are making a difference, kinda unsure:O
@@Svitification
@@tommigunn16 You can measure it by heart rate - if orthostatic intolerance difference is getting smaller (=intravascular volume is increasing), if water stays in the body (measure water intake in, water intake out), it won‘t happen in a day, but by tracking it you can see the trend. I hope this helps.
Ugh. The videos you reference are not popping up.
They actually do pop!
Here are the links to the 2 mentioned videos for your quick reference:
1. Solving The Biggest Block In Your Recovery czcams.com/video/RlVgD9hgwPY/video.html
2. The #1 BEST Way to INCREASE Activity with CFS czcams.com/video/I6HE8WtI2Z4/video.html
I hope that helps 🤗
@@cfsrecoveryVideos do not pop in any of the video I’ve seen either. You are referencing a lot and you‘ve got lots of them and titles are kinda not the same you mention. So please, link them in the description as well.
"if you know what causes NSD the tecniques are simple" do you mean the "kryptonites" with this sentence? i guess so but i am sorry i do not quite get this one a 100% i just want to be sure.
I like when you place labels on this or that and just be in a state of gratitude and not analyzing and judging because that is a beta brainwave state and when we judge things so much then when something is not GREAT the brain says on this normal average feeling must be bad.
Absolutely! Gratitude creates a positive space, allowing room for acceptance and peace. Here's to embracing the beauty in simplicity! 🙏💙