The Truth. The Whole Truth. Nothing But The Truth...Antisynthetase Syndrome

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  • čas přidán 8. 05. 2015
  • Continuing my story about the journey to a diagnosis of antisynthetase syndrome with interstitial lung disease and myositis. To get the full story from beginning to end, please visit my blog. www.fixmybodyplease.weebly.com
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Komentáře • 18

  • @smileyfan16
    @smileyfan16 Před 2 lety +1

    Thank you so much for sharing your story. I was diagnosed in November of 2021

    • @pacipano5014
      @pacipano5014 Před 2 lety

      There's an eBook by J King which for me did a great bit of light. It's called Bits and Pieces you've might've missed about your Antisynthetase Syndrome. Hope that helps. I found myself completely in it. Talks about a psychological element activating the autoimmune system. In my case, is just that.

    • @jermhanderson7373
      @jermhanderson7373 Před 7 měsíci

      I was diagnosed the same year around the same time.....I feel as of im getting weaker and weak any recommendations

    • @smileyfan16
      @smileyfan16 Před 7 měsíci

      @@jermhanderson7373 Rituxan

  • @ckromer1
    @ckromer1 Před 5 lety

    Thank you so much for sharing. 😊

    • @pacipano5014
      @pacipano5014 Před 2 lety

      There's an eBook by J King which for me did a great bit of light. It's called Bits and Pieces you've might've missed about your Antisynthetase Syndrome. Hope that helps. I found myself completely in it. Talks about a psychological element activating the autoimmune system. In my case, is just that. I'm sharing to the most I can I'm so happy. My ultimate level with the pills from doctors it's pills for nerves. So that put me thinking, and this book came as a blessing.

  • @palmercopeland2334
    @palmercopeland2334 Před 3 lety

    Thanks for sharing I was just diagnosed a few days ago. I can’t believe you were awake during that. I had one and they sedated me and I pretty much slept though it.

    • @pacipano5014
      @pacipano5014 Před 2 lety

      There's an eBook by J King which for me did a great bit of light. It's called Bits and Pieces you've might've missed about your Antisynthetase Syndrome. Hope that helps. I found myself completely in it. Talks about a psychological element activating the autoimmune system. In my case, is just that. I'm sharing to the most I can I'm so happy.

  • @xorayabennett6704
    @xorayabennett6704 Před 2 lety

    I was just diagnosed with this and I'm trying to figure this out. Thank you for sharing

    • @gokul3812
      @gokul3812 Před 2 měsíci

      How did you get it diagnosed
      My anti jo1 is positive, I have symptoms of myositis
      My ANA was positive then became negative cause I was on steroids after I lost my hearing in one ear suddenly.
      My ENT says it's potentially an autoimmune condition and my rheumatologist said it's nothing.
      But I do have symptoms and pain which is disrupting my daily activities. I had to quit my job too.

  • @pacipano5014
    @pacipano5014 Před 2 lety +1

    My impression we get from sharing more than our doctors, in this area at least. Took me years to get something out of me doctors and in the end I arrived to pills for nerves. It's a bit of an unknown territory, everything related to the nervous system is. Because it's about behaviours. There's an eBook by J King which for me did a great bit of light. It's called Bits and Pieces you've might've missed about your Antisynthetase Syndrome. Hope that helps. Says there's a groups of strains activating the autoimmune element, and that affects the area of the body most exposed, weak, the lungs, as well from some behaviours, strains, with great deal of implication from lifestyle, foods, detox or no detox, and maybe even mechanical strains. I found myself in it and I'm sharing. All bodies are different and am not an expert. but I'm excited I found something that makes sense.

  • @harleenmalhotra2655
    @harleenmalhotra2655 Před 3 lety

    Hi
    I couldn’t find any other video on this topic.

  • @breannabrazelton6598
    @breannabrazelton6598 Před rokem

    My mom was diagnosed 6 months ago it’s a lot, I hope you are well

  • @jermhanderson7373
    @jermhanderson7373 Před 7 měsíci

    Hello how is everyone doing ...? My condition is starting to bother me mentally i was once strong as an ox and very fast at running...i cant do push up no dips and i can barely work smh oh and i lost my job so i have no insurance at the moment need help any recommendations oh and i have plenty of mycophenolate pills wich i feel isnt helping me

  • @harleenmalhotra2655
    @harleenmalhotra2655 Před 3 lety

    How are you going now at present. I would like to know more about this syndrome.
    Thank you

    • @pacipano5014
      @pacipano5014 Před 2 lety

      There's an eBook by J King which for me did a great bit of light. It's called Bits and Pieces you've might've missed about your Antisynthetase Syndrome. Hope that helps. for me did a great deal of light. I found myself completely in it. Talks about a psychological element activating the autoimmune system. In my case, is just that.

  • @fousies
    @fousies Před 2 lety

    How are you doing

    • @pacipano5014
      @pacipano5014 Před 2 lety

      There's an eBook by J King which for me did a great bit of light. It's called Bits and Pieces you've might've missed about your Antisynthetase Syndrome. Hope that helps. I found myself completely in it. Talks about a psychological element activating the autoimmune system. In my case, is just that. I'm sharing to the most I can I'm so happy.