Our (not so) positive birth story...
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- čas přidán 5. 09. 2024
- Today we are sharing our (very rare) birth story of our son Sullivan. Sully was diagnosed with a birth defect at our twenty week anatomy scan, called Posterior Urethral Valves. He was given a 50/50 chance at surviving pregnancy. Throughout the remainder of our high-risk pregnancy, we were closely monitored for drops in amniotic fluid levels (oligohydramnios), bladder/kidney damage and lung development.
At 34 weeks and 2 days our precious boy made his way into the world via an emergency c-section, due to all of his amniotic fluid being gone. He was immediately admitted to the NICU, where a catheter was placed and he received CPAP air support for 24 hours. Our first hospital stay was marked by difficulties, and lack of specialist support. We needed the eyes of a Urologist and Nephrologist on him, daily. Because of the lack of specialization, we ultimately made the decision to have Sullivan transferred to our local children's hospital, Seattle Children's Hospital.
They were AMAZING. We arrived and met with about 10 doctors in our first day--including the head of their kidney (nephrology) department. We were given assurance that there was hope for Sully. It became clear fairly quickly that he did have extensive kidney damage, and would need a surgery urgently to help him be able to urinate. The surgery was scheduled and we waited in the hospital for that day to come. There is truly nothing like watching your two-week old be wheeled into an operating room. His surgery was successful and after almost a month in the hospital we were sent home! 9 months later we began dialysis and are now eagerly awaiting his kidney transplant once he is big enough for it!
We hope sharing our wild story from diagnosis, to NICU, to surgery and beyond inspires other families in similar boats, and sheds light on a part of life that often goes unseen!
Thank you guys for following our story!
Wow as a mom of a heart kiddo who has been wheeled into an OR 2xs so far, I can totally relate to the NICU, the long hospital stays, the waiting and watching as doctors do what they so very skilled at, I will be praying for your little guy. ❤ Trust in the Lord, ask him to give you his strength to endure the hard days.
Thank you so much ❤️ it’s never easier, but we do get through it! We will be praying for your precious one too 🙏🏻 thank you so so much!
I just found your sweet little family and im absolutely captivated by your story. From jump i want to say what WONDERFUL parents you both are and the way your facing this journey as a team is truly inspiring. I also want to add what a extremely precious lil guy Sully is he has already stolen my heart. ❤ I have subscribed because i would love to join in The Ransome Family journey. I will pray for the 3 of you and end love and light yourvway always. I hope i can provide help and an uplifting word in the dark times and share in the joy when a win is made. Maybe i can tell you about myself at another time. For now i would like to say im a grandmother of 4.. 3 girls 1 boy. They call me Mimi i would love to be Sullies Mimi from afar too. 😊
May the Angels keep you all safe tonight. In Jesus name. Amen
Praise God the Almighty physician! Your family is beautiful, and your son is a miracle. Praying for your family.
Thank you so much Sarah ❤️ that means a lot to us!
The more videos i watch on yall the more awesome yall become! Yall are such a great couple and he couldnt have better parents!!!❤
Thank you so much!
Im so very glad that you guys have that precious little boy Sully because he is truly a amazing miracle little boy
Thank You for this video... you'll never know how much you have educated, encouraged and provided emotional relief for others dealing with similar issues. Thanks to you, they will know what questions to ask and how to advocate for themselves or loved one... assuring the best possible outcome in their situation.
Seeing a happy baby who is still facing challenges is very encouraging. Wishing your whole family total wellness and continued blessings. ❤
Praying for you all and God will bless you all and love you so much ❤
Thank you so much ❤️
Praise God! He is our provider 💗💗💗
Truly!! It would be impossible without Him!
Thank God you listened to the voice of God and transferred Sully.
What a sweet blessing you have there. ❤
You both are beautiful people. Sully is the cutest
Thank you for being so kind ❤️
Wow sounds like if you stayed in the first hospital they would have let Sully die. They should have admitted that they didn't know what to do and transferred you to some where where they did know what to do. Certainly they shouldn't have argued and tried to stop you going some where else. The nurse that catherterised him after poop got on the catheter should have been sacked. There is a reason for having a sterile field and she should have known better. Causing more issues for Sully, when he had so many already is unforgivable. Sounds like a crash course in learning to strongly advocate for your child, even if you know nothing at the time. I have heard stories like this so many times. Especially with children that are diagnosed with "not compatible with life" even if the parents have not signed a DNR if the child lives the medical team seem to want the child to die. They go slowly, make awful mistakes and generally do not seem to care about that child at all. Thankfully everything went well and Sully was OK, no thanks to the first medical team. I wish you all the very best going forward.
Thank you! A crash course in advocating is a great way to put it. We were shocked at the lack of care at the first hospital for him, pushing to be transferred was the best thing we ever did! So thankful Sully is live, here and thriving!!
❤.. thoughts and prayers for your sweet family. 🙏✝️
I had similar issues I was a vesicorital reflux but they didn’t catch my VUR until I was 7 my left kidney is shot from all of the scarring my right kidney is scarred but actually grew bigger to compensate as an adult now my main issues are that I’m on 2 blood pressure meds and I’m more vulnerable to uti . I would be dead if it wasn’t for my dad advocating for me and getting a second opinion.
Woah! That is insane that it went so long undiagnosed. I’m so glad your dad pushed for answers!
Amen
Tay. I shared this with my daughter who is a midwife in Davenport, Iowa.
So cool! Thank you Tim!
The doctors should do a better job of notifying the labor and delivery nurses. Cuz my son had mcadd but also the placenta got knocked loose from the baby so he wasn't getting enough nutrients. The doctor did not dumb that dow we didn't know it until after birth. He stayed 3 more weeks and so lucky nothing happened to him. My doctor just said call if stops moving....it's crazy it happens everywhere!
Thank you! And wow that is nuts. The communication could definitely be improved, I guess we live and learn in some ways! We hope your son is doing so well ❤️
I hope you sued that other hospital.
We all to go with our guts😂
Unbelievable yoiur precious baby is alive because you fought for him. I hope you pursue legal actions for the arrogance and lack of care !!!!!
Mommy sorry to ask.