My Secret Illness
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- čas přidán 21. 06. 2017
- If you have any personal emails or questions that you would like to send me then please email stacey.pixiwoo@gmail.com and she can ensure they get read and answered.x
Links That may help
nixiepixi1...
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www.mssociety.org.uk/?gclid=C...
www.mstrust.org.uk
mssocietyuk?ref_s... - Jak na to + styl
Darling, have you heard or read anything from Dr. Terry Wahls? She herself has MS and its a wonderful book ... she has lots of information on youtube with TED. Wishing you so much health and happiness darling, i really really do xxxx
Wayne Goss You are amazing. taking time out of your busy day and reaching out to a friend. very few CZcamsr's do that. 💕
Wayne Goss I sent her a link about her too!!! You are reading the good stuff☺️😉😉
Wayne Goss ❤❤❤
Wayne Goss ♡
I second this recommendation as Dr. Wahls lives here in my hometown of Iowa City, IA, USA and is highly regarded for her MS work. Please check out her website and consider attending her seminar in August. terrywahls.com/wahls-protocol-seminar-2017/
Speaking as a neurologist, please make sure you have been tested for a disease called neuromyelitis optica. This is a rare disease that is often mistaken for MS and has a different treatment approach, so it's an important distinction. It frequently presents with optic neuritis. I'm the type of viewer who never comments, but I would feel completely remiss if I didn't mention this. Best of luck in your journey. You should be applauded for your positive attitude!
researchick3 - can you have both at the same time? I only ask because Nic's tests came back positive for MS.
MsElle It would be incredibly rare (essentially impossible) to have these concurrently. While I don't know the specifics of her workup, the laboratory test most frequently performed to diagnose MS is nonspecific, meaning it can be positive in the setting of several related conditions. I have seen even neurologists forget to consider this alternative diagnosis. I make this suggestion so that Nic can discuss this possibility with her physician.
researchick3 I'll like your comment so Nic can see it. Everyone should do that
not related to nic but glad u commented this. brings awareness to rare diseases. another often misdiagnosed or thought to be MS is myalgic encephalomyelitis (wrongly labeled chronic fatigue syndrome also). MS gets the most attention and resources from these and many rare conditions are left unnoticed.
this brave video brings awareness to MS wonderfullly too and strenght to those who have it like her. Xx
researchick3 I
"He never gave me anything in my life...apart from MS" this really broke my heart, stay strong! 💕
He gave her life, he gave her what he new or had, sometimes we ask from people things that we dont know that it actually their were also living with issues, basically they are victims of themselves I hope I made sense.
Sonia Silva you don’t know what he has done. She’s not going to tell you everything that happened with her and her dad. He might of given her life, but did he give her love? Maybe not. He might of given her abuse (mentally or physically) You have no clue what their situation is and was.
Nicola, thank you for using your social media platform to reach millions of people impacted by Multiple Sclerosis. Your bravery in sharing will help others feel less alone. From one MS Neurologist to one person living with the condition, thank you!
I got diagnosed at the age of 19... Today I'm a doctor! Not letting the disease define me. :) Thank you for sharing!!!
Sahar Ahmadi
This makes me so happy! I was diagnosed when I was about 17 or so... my entire life I've wanted to be a doctor but my mental health (i.e. anxiety due to MS) has got the best of me. However, I'm taking a year off to focus on my health since all throughout university I haven't focused on improving my health .
But I'd like to say that despite my diagnosis, I graduated university with honour roll in Health and Medical sciences!
Wishing you the best! ❤️
peek-a- berries That's an extraordinary achievement. All the best to you & keep up the good work. 💕
Sahar Ahmadi Good for you! Be proud of your amazing achievement. 💕
Sahar Ahmadi 👏🏻
Congratulations on your amazing achievement.Xx
Thank you so much to everyone for all your comment. I am reading them all. I'm not replying as there are so many and I'm. It sure I could do them all justice. Reading is good for the brain which is good as I have done a lot over the last few days with all the comments 😂Please continue to post and I will continue to read them all. It's amazing how many people have their own shit going on and I'm so pleased we are all sharing our stories. Xx
I know how it feels to have a diagnosis of something that is hereditary, chronic, progressive.... and untreatable. I watch my children and my grandson in every move they make watching for signs. The disease population I am in contains a LOT of MS and Rheumatoid Arthritis as well as Fibromyalgia. I get brain fog - I love your brain mush! - I get where I can't swallow properly, currently I've been awake for over 24 hrs with a headache from a related issue in my neck but a new part of it is my eyeBALL hurting... With a diagnosis like these you never know what's coming next, right?! At any point it feels like the body we've known for years suddenly has a new personality and it's very grumpy.
I just wanted to pop on and reach my zebra hoof across the pasture (it's a saying related to my disease, I can explain if you wish) and let you know that you are completely not alone, even when alone is all you feel. Never give up, never surrender!! :-)
Cherise Nunez Ehlers Danlos? Zebra sister!
jade clement - YES!!!! Zebra sister!!!
You are so strong to post this. MS affects a lot of families and people. You speaking up can help raise awareness. Do not let it hold you back ever. My great aunt had MS and loved life and never seemed defeated.
She was an inspiration to many by being an advocate and showing how you can live just as full of a life. Even when she was in a wheelchair it didn't hold her back. You have so much support and love coming towards you but you can help so many people with your platform! Just speaking will help people embrace it. Wear it with pride that you can speak about it and inspire people too. Show people it's not as scary as it seems everyday!! Keep going Norfolk air helps 💖💖💖
+jade clement I'm a zebra too! Sending spoons X
My mom has MS and is living a very happy, healthy life. She has bad days, but instead of calling them bad, we call them Plan B days. I know how difficult it can be to feel like you're a burden in some ways on your family or to feel like your not the mother you want to be. As someone who is the child of a beautiful woman who has MS, I just want you to know that you're incredible. And your strength is astounding. And so inspiring. And it's okay to be physically tired sometimes, that doesn't make you weak. Your grace is astounding to us. ❤️
savannah leigh Thorne love that "Plan B days"
that's amazing to call it a plan B day. what a positive way of dealing with ur situation. shaping you to be more resilient daily. God bless you
savannah leigh Thorne god bless your mom and you
"Plan B days" That's brilliant, I am going to use this from now on.
Love that Plan B ❤️
For people who don't know what MS is.
Basically, there is a fatty tissue called Myelin which protects and insulates the nerve cells and allows them to conduct impulses quickly to parts of the body. MS is when this myelin breaks down, therefore, nerve cells can't conduct impulses effectively meaning the nervous system can't communicate properly and function well.
Hope that helped.
Love you xx
+Jim Chapman you too Jim xx
hiya :)
pixiwoo no matter what illness you live with if it's serious or not never ever go through it alone we're her for you 💛❤️💛❤️💛❤️💛💯😔
Jim u are right
Jim Chapman hiyaaa
Never commented before. Just wanted to let you know I got MS to. Diagnosed at age 18 - my world crashed. But decided to grab myself all together. Graduated from university, got a job even though everyday I'm exhaused. A year ago my boyfried (who I was with for 8 years) broke up with me because he coudn't take it.
Anyway what I wanted to tell is is that I always wanted to become a makeup artist but gave up on it because my hands are sometimes clumsy...
Now I'm 26, today quited job. But you inspired me to try again.
Tears fall down from my eyes but these are good ones.
elaerchard stay strong and bless you, i truly wish you the best of luck and happiness!
I wish I could find words to express how much I admire you for being so strong! I wish you all the best from the bottom of my heart.
Good luck and stay strong! Live for you!
elaerchard you insire me. Thank you for sharing.
I was diagnosed with MS last year so I know how you feel. You're an inspiration. ❤️
You are very brave, and strong. I just want you to know that I believe in you. My Mom has MS. She got diagnosed in her early 20s, and I've seen her go through the trails that it has caused her. She never gave up though, and is still fighting. She is in her 60s now and doing well. I just want you to know that you can get through this. You are beautiful, inspiring, and a fighter. ❤️ this is actually the first video of yours that I've seen, but you are already an inspiration. :) I believe in you❤️
You weren't crying because you felt sorry for yourself. You were crying because of the stress of telling the whole world. Thanks for sharing.. I'm sure you have been encouraging to many people,
Mama Gina GG that is sweet. I've never thought of it like that.
Mama Gina GG that's made me feel better about myself and my illness. I've always been so angry with myself for crying, I'm always like, man up! Stop feeling so sorry for yourself, there's people worse off then you. So thank you so much for your comment, I feel much better now.
I have MS too...going to be 59 this year and I wake every morning thankful I can get out of bed on my own. Everyday is a good day...keep paying attention to your triggers...maybe one day when your my age they will have found a cure!
Simpler Time so beautiful said x
I am 22 and was diagnosed with relapsing remitting multiple schlerosis at 19. When I found out I really thought I was going to die from this. I thought I was going to be in a wheelchair and was never going to be able to walk or swim or do anything. I was so upset because I didnt know what it was. For a very common disease, a lot of people dont know what it is. Ive experienced MRI scans, lumber punctures, double vision, numbness and tingling from my chest down to the point where I could hardly walk. I was in and out of hospital for weeks and off work for months. I get clumsy with my hands and my brain get jumbly and I cant find the words for things but I manage. I take medication and I rest when my body tells me to and I try keep active and eat well. Sometimes I forget I have MS and then I do something and my body tells me that I need to slow down. I havent had a relapse in two years but I do experience a lot of fatique on a weekly basis. Despite all that you just have to live your life to the full
Hi I have ms and I have ringing in my ears and havn't heard anyone say they have this symptom so I'm curious if you have had ringing in your ears and a bit of hearing loss?
I was diagnosed when I was 20, now I'm in medical school, with hopes of being a doctor. This disease can be crazy, but it doesn't define me. Thank you for sharing your story! ❤❤❤
I just want you to know that my Mom had MS from when I was a baby...she was an awesome, brilliant and kind woman who rarely told anyone because she had decided that it would not rule her life and giving it words gave it power (not sure if I agreed with her but it was her choice). Symptoms came and went and came and went for more than 50 years. but she just kept on. She was active and vibrant until she died last year, one month before her 90th birthday. I can only say that I hope you live as long (or longer) and as well. All good things to you,
As a person who has been recently diagnosed this makes me feel better :) thank you for sharing.
Meemzz15 here's to you and your journey. As sometime once said "I have MS, but MS doesn't have me.... Good luck xx
This is my mum aswell, every last bit, but thankfully she's still here. I'm so sorry for your loss but by the sounds of it she lived a long good life x
donnalady1982 mdsl00.
Tracey Park my dad had MS and died from it but he had a great 57 years, and some of the best were in the 8 he had MS
Nic, I have been watching you and Sam since 2010. I was diagnosed with MS after a bout of optic neuritis in my left eye (I went totally blind) in 2013, I was 23-years-old. I'm crying because I was so scared at first and I spent probably a solid month just watching you guys while I was getting diagnosed, (especially after getting a horrible lumbar puncture headache that I had to get a blood patch for) sitting in front of my mirror, with my laptop next to me, following along with your makeup tutorials, trying to figure out how to do my makeup half blind, in case I never got my sight back - I did get it back. You guys had so much to do with my recovery. I have been on three different meds - the first one was amazing but I can't take it anymore - and I have had one relapse - in the other eye - since my diagnosis.
I don't know why this means so much to me, but I look up to you so much and I just wanted to say thank you for speaking out and showing people that MS is livable. Every word is EXACTLY how I feel and what I've thought and I can't stop crying! UGH, I love you so much for this (and for other things.)
Here's to being positive, being sexy, having a real dumb immune system, and living the shit outta life.
xoxoxo
Aislinn Gavin beautiful post❤️
Aislinn Gavin 💕💕💕
Such an amazing inspiration,, God bless you and wish you an amazing life and Enjoy the journey to the max 🙏🏼💙
This was so emotional. I cried through out the whole video..😭 everybody has hardships throughout life but it's how you make it and the fact you was able to talk about it on media is so inspiring you would be very surprised how healthy this really could be to know you can't walk one day but having inspiration you can will make a whole difference in your life..make you stronger..make you walk again..figuratively speaking on your end....real life situation for others..i love this❤ don't let M.S. take over your life ..you need to inspire yourself to keep "walking" ❤❤❤
Thank you sharing. Sending you much love. So many of us and our loved ones struggle with heavy things like this- it helps to know we are not alone. And it's a good reminder to have extra compassion and understanding for those around us because we don't know what they are walking with. ❤️
I was diagnosed with MS last month. I'm having to be selective about who I tell so it doesn't affect my work. Thank you for this video, I feel less alone.
Talya, I don't know where you live, but I can assure you that you are not alone. Talk to your doctor and they can recommend a support group or what steps you can take in order to get the support you need. You don't have to feel like you do, you just have to muster up a teensy bit more courage and ask for help (I know asking for help is hard!).
Sending you love Talya. I hope you find the support you need
Lots of love from Germany! I have a friend who has MS but it doesn't stop her from living life and following her career. I want that for you too. Stay strong!!! xxx
'He gave me nothing my whole life, apart from MS' this is so sad, you strong beautiful talented woman xx
Hannah.Cottrell I started crying the moment she said that. ☹
It certainly was touching when you said this Nic xx
Hannah.Cottrell .It did make me titter that bit.😢
Hannah.Cottrell I can totally relate to her when she said that, my dad never gave me anything except for genes for Type1 diabetes. Good for nothing men.
Heartbreaking.
Im crying watching this. I have watched you for years. You made me fall in love with makeup. God bless you. You inspire so many. Im a mom of 4 so I know that feeling (orly a mom knows) when you can even afford to get sick because your kid need you. Thank you for sharing your story.
Thank you for being so brave, and sharing your story with us. It's so important to be vulnerable (in the moment of sharing) and share our stories. But I know you are extremely strong in how you cope, survive and THRIVE every day while dealing with the illness. I personally have chronic eczema on my body that is a daily challenge to manage, it doesn't sound like much but imagine constant nagging itch that you can't scratch, in the most inconvenient places (back of thighs, your elbows, your back, areas you need to sit or put in contact with other things at some point). But anyway. We all find ways to cope. So thank you and I stand with you in sharing stories xx
So sad to hear the line "he never gave me anything in life except MS" 😔😔
Jackiechan1300 I know. That broke my heart for her. How sad 😔
Jackiechan1300 💔💔💔💔💔
Jackiechan1300 it is not inherited, so it's not actually true.
He gave her life.
Diane Wetford If giving life means shagging someone and knock them up whoohoo great accomplishment. Taking responsibility and be a kind and sweet dad has nothing to do with that. A real shitty dad actually takes something from your life
My grandmother has MS and back in May we were celebrating her 80th birthday! You're so strong and inspirational to share your story with us!😘💗
georgia 123 my aunt lived with ms til 99 yrs of age and smoked like a chimney 😂 so who says when our expiration date
Vulgar Beauty this is what make this disease so hard to cure, everyone has a different form. Some die quickly and others live a full life never deteriorating. What symptoms did your aunt have at the end?
This is very helpful for all the people that have this ill. You are a great woman, Nic. Keep on doing what you do! Wish you all the best. xxx
Your optimism shines through! I've been diagnosed with a chronic disease and it's a gutting at first but yes, it can be so much worse. Hugs to you and I'm so glad you have such a great support network x
My Mam has MS, she's the strongest and most independent woman I know. When she first relapsed we had no idea what was happening to her, no doctors would hear her out and they kept dismissing her. It was heartbreaking to see her so debilitated, I then had to take care of a mother that always takes care of me. I was actually extremely relieved when we found out she had MS and I know it sounds bad because it's a horrible disease, but I was so terrified it would be brain cancer and that my Mam would be taken away from me. It's not a death sentence, but it is extremely hard. She worries that she will pass it on to me, but I'm not worried. I'll just be as strong as her and as strong as you, stay strong you sweet MS warrior💕
Molly Doolan this was lovely to read, wishing u and your mum all the best x
Humaira S thank you so much, all my love xxx
I met you Nic a few weeks before Edie was born, you did my makeup for style me beautiful and I had just finished my cancer treatment. You were so kind and so supportive to me, I remember looking in your eyes (not as creepy as it sounds honestly 😂) and thinking how gorgeous and kind you are. You are really brave for sharing your story and your positivity will get you through. Your husband is just incredible too, what a good man. Xxxxx
You are a Warrior!!! Blessings to you...you are a Gift!
Thats terrifying I'm so sorry to hear that ! ❤️❤️❤️ Be strong stay strong 🌼🙏
My mother has MS since 1998. She is still walking, talking, and living a perfectly normal life. I an honored that she has made it this far and that she met my son because i remember there were nights after she would take her medication and react horribly to it and i would think she isnt gonna make it. But here she is 19 years later babysitting my son. Stay positive and hopeful keep smyelin.
you closed your video saying that the next video will be much more positive, but, to me what you've just filmed is the most positive message ever. you show your strength no matter what, you show hope and an enormous positivity. you work your ass off, you grow your beautiful children and clearly deeply love your husband and your family. thank you for sharing this moment with us, it was very powerful and beautiful
Silvia Marengo my thoughts exactly! This message here was as positive and as brave as it gets!
Silvia Marengo yes exactly , i didn't find this negative at all
Silvia Marengo no truer words ever said.
Powerful video. Thanks for being brave and sharing. My mom has had MS for 25 years. She's a beautiful strong woman like you. Every day is different but she lives a wonderful life at age 67. God bless you!
Sharing your story is very healing, for you and others. I loved what you said about listening to your body and resting when you need to. I don't have MS but I do have PTSD and that is exactly what I do in order to live my life. I love watching you and your sister. These tutorials are very relaxing when I need to turn off my mind 💙
I'm 23 & have MS as well. This just made me love you so much more than I already did ... the respect I have for you is immense. My heart is with you, beautiful ❣️
Crying is not weakness. It takes a strong person to cry publicly and an even stronger person to share their lives with a bunch of strangers. Also, you only cried when talking about your family which to me means you're more concerned about how this will effect them rather than feeling sorry for yourself! Also, even if you were to be a single women without a partner or children it's okay to cry when talking about it... after all you are allowed to mourn the life you thought you were going to have.
SJ Harden Absolutely beautifully stated. Perfectly stated.
aww shucks... thx xo
You are absolutely right, much of us are dealing with things that we don’t share and just filter from social media. So brave! Thanks for sharing. 💕✨
Thanks for sharing. Nothing is more important than sharing your problems to know you are not alone & of course you are helping people that has the same problem or similar ones. Huge hugs dear.
You're just a beautiful beam of light. And this isn't some phoney CZcams comment, either. You may not remember, but you replied to a comment I had left when you spoke about your previous mc; you don't know it but you pulled me out of a dark, dark place. I had just lost my first child and your words of encouragement helped me so much.
Such a beautiful soul and praying for you and yours ❤️
Dear Nic, I am a silent viewer even though I have been watching your channel for a few years now. I want to tell you are a brave, strong and beautiful woman with a great sense of humour, a lovely personality and a big big heart. You inspire and cheer up thousands of people from all around the world every day and I want to thank you for all your brilliant work and I also want to thank you for sharing this very personal information with us. I think you must really feel it that after this video there is so much love going out to you and coming your way from all of us, your youtube family. I am very glad that you have found your way of living with this illness and I am especially glad that you have such a great family who always support you. You are amazing Nic and you will be fine, I am sure. Lots of love to you!!! xxx
Thank you for sharing - MS needs so much more awareness. I hope it can be stopped someday soon.
After watching this I realize how true of a person you are. Your story inspires and I'm so happy you have a strong family to rely on, regardless of your past. I had seen one of your videos before, and although it doesn't mean much I'm subscribing to you (and praying, which DOES mean much) because you are clearly a genuine soul.
MS is not the only thing your Dad gave you. Because all the horrible memories you have of him made you the person you are today, made you stronger. And you are an incredible, beautiful, strong and amazing woman.
The strongest believe that you can have in your life, is believing that everything happens the way it is supposed to happen. Life has got its own rules. ❤️
My dad is a shit. My dad also has MS. We don't speak because he is an awful human being. But I am so frightened of being diagnosed after watching him deteriorate. You stopped me from feeling so afraid. Thank you, thank you. You are so empowering. Such an incredible person. The MS does not define you in any way. ❤️
I have just come across your video whilst trying to distract myself from my own worries about potential MS or Parkinson’s amongst other things. You are amazing and, as much as I love your straight-upmakeup videos, I love it most when you are genuine and speak out about real life and how life is not always how the instagram filter makes it look. Sam’s video about depression also hit home as I have been there. I love you both and are grateful for all that you put into the world. Thank you xx
You're amazing, this was so inspiring to watch. I personally do not suffer with MS but listening to you speak about how you got yourself out of a dark time and how you came to terms with it has really helped me when thinking about my own dark times and issues to cope with and accept. Thank you for sharing, very brave and powerful and you should be so proud of who you are and how far you have fought to be that person xxx
I think I understand your tears. I too was diagnosed with MS 10 years ago. My Father had a terrible progressive course with MS that took his life after a 10 year struggle. The day I was diagnosed I thought my life was over. I cried watching your video because while my disease is generally quiet in comparison to my Dads,I am reminded of the enormous loss I felt/feel with the disease. The mostly subtle physical effects are a daily reminder that I'm not in control of everything after all 😏 But-as you said,,life goes on,,,and it's a good life. We cry maybe for the loss of a free spirit that was taken with a diagnosis of something our firsthand experience with was pretty dreadful. And maybe we cry because we are thankful yet tentative that we won't repeat the course of our Fathers. I believe our lives are full of hope, love, and laughs. My tears sometimes surprise me, but overall,,,I'm not so afraid anymore about MS. Thank you for sharing your story.
From a Breast Cancer warrior to a M.S. warrior, fight on love 😘✌❤
Wow, what a strong, well spoken and wise woman you are. This gave me a lot of strength to battle my own health-demons. Thank you
Never say sorry for feeling how you feel! thank you for sharing, you are so brave and resilient and very greatly loved & admired!
I have that same feeling. I have a brain tumor called prolactinoma that i've had for a couple of years and I am perfectly fine and living my life, but for some reason I start crying when I open up about it. I always wonder why I get so emotional about it because I'm not scared and I know it will be gone one day. Thank you for sharing! It's always makes me feel good when I hear other people's stories and see how they are surviving. Makes me feel less alone and more normal.
Corie Ball ❤️💜💚 sending you hug
Corie Ball sending u love honey ❤
Corie Ball I've had a prolactinoma for several year too. Since 2011. When I got it I went on a drug for 3 years and since stopping it I've had no problems with it, it hasn't grown and my hormone levels are fine, in fact I forget I even have it. Doctors actually believe that lots of people have small pituitary growths that never get picked up. I just thought I'd tell you this so you know that the outlook is good and it shouldn't be something that interferes with your life 🙂
I have prolactinoma too, taking medicine every day.
But keep going!
wish you all the luck too, girl!
Corie Ball lots of hugs! I have a prolactinoma as well. :) I take so many meds for it and it's not easy but we push through!
My Husband has MS and I know the support system is a blessing. Be strong 💪 be positive and keep your beautiful smile
Best wishes to your husband, Johanna. Stay strong! :)
This took courage. I know with invisible illnesses it's tough to open up about your struggles. I know what you are going through, i have me and it's really tough. Pace yourself, do not give up.
Thank you for sharing this. A dear friend of mine was diagnosed years ago and she has managed to maintain a normal life, she is remarkable in her approach to this. You are doing it too, managing it, and as you say, we all have nasty stuff to deal with. So glad to know that you are maintaining a healthy life style, that is so important. Stay strong and enjoy life!
Can't tell you how touched I am to hear your story. You are woman of courage and beauty, never forget how loved you are. I've been following your channel for years. As I've gotten older, it's crazy to see how things change. People get older, people pass away, and health seems to always be taken for granted. No one ever expects illness to happen. I think you're doing an amazing thing by showing people what real life is like - accepting problems and still living life fully and bravely. God bless you.
This made me cry and this is the first time I'm ever commenting on a video. I was diagnosed with MS three weeks ago, two weeks before my 21st birthday and I understand how hard it is. I have been crying for a month straight and grieving and i am just starting to digest this new part of my life. I now know that I need to focus on myself and listen to my body when it tells me to slow down. Thank you for this honest video, I see your heart through the screen and your light shines brighter than ever. You are so strong and you will do amazing through all of this, the ups and the downs. ❤️❤️❤️
Dilem Sallabas ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
I cried with you- thank you it's incredibly brave of you to share I live with chronic pain for twenty years which hasn't been diagnosed but it's comforting to you that there's so many beautiful women out there like you living with illness and yet smiling through it and getting on with lives. Love you and your sister so much. ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Sending you lots of love
Dilem Sallabas i just wanna leave a heart for you... ❤️ would be so nice, if a tiny heart could heal those unnecessary sicknesses ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
My sister has MS, she has been diagnosed 4 years ago, shes under a treatment by Dr Coimbra, its the most effective treatment currently, please search about coimbras protocol!
God bless you, you're an amazing and inspiring woman. I'm only 40 and have had cancer and was just diagnosed with fibromyalgia, I've no support system or family or significant other, so I'm doing this on my own. Never stop being the strong beautiful woman you are, we are all stronger than we think xoxo 😘❤️💜❤️
This past April was the 10th anniversary of being diagnosed with Fibromyalgia.
I have myofascial pain syndrome too. I think it's worse than fibro.
Michelle Gruba hi dunno if I can help but my husband died in Feb of lung cancer and you don't really get help unless u ask for it, which I didn't I wanted to do it all myself, I was with him when he died at home in his bed and then I slept next to him one last night. I myself am a loner type and don't like reaching out maybe ur similar,I hate asking for help and I also didn't want anyone else to care for him. It was my job. now I'm a frigging widow at 32, if u need to talk I'm here
Michelle Gruba we love you and support you, you are not alone ♡ keep fighting! we need you here
Thank you everyone for all the love and support, you are all amazing souls, and it really means a lot to me for all your kind words xoxo 😘
Well done for sharing this very personal video, you are opening up awareness to MS. I know how difficult it is living with a silent illness. One day you’re okay and the next you can be very poorly, it’s difficult for people to understand, It’s so difficult to make plans but please make the most of the good days. My thoughts are with you and I wish you good health and happiness xx
Thank you, thank you for reminding us all to be kinder to each other- as we don’t know what others may be dealing with in their lives (which may appear to be perfect). I relate to your story on two levels, as someone also with what can be an invisible chronic illness but also as someone that may forget that others have things they are dealing with or just barely surviving with and to be kinder in general. Thank you.
I have MS as well... I found this video to be very inspirational. I cried with you, and know how it feels to be completely helpless and at the mercy of your body. I was diagnosed in 2014. It's nice to feel like you aren't alone, so thank you for having the courage to make this video. MS does not define me, and I'm glad you feel that way too. I wish you the best, and know that 2.3 million of us are fighting this battle with you. XOXO
maryem802 I as well have ms some days are worse then others but I just push on bless you stay strong
You're not crying because you feel sorry for yourself but because you have been strong for so long & you are entitled to that. Sometimes it is good to have a release. It is important to let it out. Your strength and positivity is truly inspiring. God bless! Xo
Such a strong and emotional video. My nan has MS and I may have it too, it is so comforting to see someone with such influence talking about it.
I somehow stumbled on your channel and I have been binge watching. I came across this video. Thank you for sharing your story. You are so right we all have struggles or a struggle. You are one very special lady. I totally enjoy watching your podcasts. Many blessings to you!
Brilliant video! I was diagnosed with ALS (MND, a progressive neuromuscular degenerative disease) at 28 and when I first found out everything I looked up was so scary. It's terrifying, the hands we were dealt, but you have got to live everyday! Try everything. If I spent time feeling sorry for myself I would miss many wonderful things and that I think could be worse than the actual diagnosis. Thank you for sharing
Thanks for sharing. My auntie was diagnosed with ALS in late 2016 so it touches my heart to hear your positive words. Sending positive energy
Ofcourse! :) I will keep her in my thoughts
You are incredible!! This illness will not define you, Nicola Haste defines you, your personality, your children, husband, makeup days, nomakeup days, bad days, good days, holidays, parties, quiet nights in, movie days, days out, days in pjs, photos, memories, everything else makes your life, NOT your illness! We're all here to give you as much love and support you need X
Keep carrying on, LIVING and listening to your body. I've been following you and would never have known. Thank you for your courage in sharing your story - you're an inspiration for showing both your strength and vulnerability (you truly are beautiful inside and out). On a personal note, I have a progressive, degenerative spinal cord disorder called syringomyelia and can relate to the fatigue, brain fog and diet changes to clean eating. Wishing you many blessings, continued remission, strength, health and family support. Lots of love.
Bless you and all those who have MS. May you be healed. Very best of luck.
You are one brave lady Nic. Thank you for sharing your story. Sending you my love.
alleycats no words can help nic just huge love and respect to you. keep fighting ❤❤❤❤
So brave to share your story. Keep well Nic !
Hunny - thank you.
I don't have MS but I have personally been bedridden the past couple of months after finding out about some medical issues of my own.
Your strength gives me strength and made/makes me more motivated to get on with the good parts of life, instead of letting my mind roam to all of the dark thoughts of pity and worthlessness.
Thank you.
Emily Neyman Praying for you.
Oh, I was crying with you! You are so brave and strong and beautiful! Sending lots of love to you!
My uncle had MS. He had the worst kind of it and everything happened so quickly. He was in the music business and such an amazing, funny, kind person. I totally feel for you and appreciate you telling us your story. Stay strong xx
I so hear you. I have lupus and fibromyalgia - diagnosed when I was 13. I didn't even get to finish high school because I almost died. It really is hard to tell people, I think some of it is that in confessing it to others we are forced to fully accept and admit it to ourselves. This was really brave of you...you are such an inspiration to me. All my love from Chicago!
Rikki's Reviews I have fibro to and arthritis plus skin disorders and allergies.we really do just learn to deal with it and it's so hard mine started in early twenties. Missed out on so much but lots to be grateful for to. Sending gentle hugs xxx
So brave for sharing.... your dad may passed down the Gene but your mums strength will see you through 💖
^^^ I love this!!!!!
aww you are so precious. I have come across so many people lately that have been so courageous in sharing emotional stories. You are very brave.
You are a strong person. Learning to work with energy conservation techniques and your doing a great job. I am a nurse and I’ve had a good friend with MS.
Listening to your body and nurturing your body & soul is the right instinct.
Thank you for baring your soul ☮️💟☯️
optic neuritis is a clear precursor MS.
if nothing else, you have raised awareness of reporting ANY visual acuity changes.
and you have done so much more than that Nic.
post lumbar spinal headache is one of the single worse conditions in terms of measurable physiological effects of pain. heart rate, BP etc.
the key factor with MS is variability in prognosis. no one knows their timeline. it's a seize the day mentality to push forward not knowing how long remission periods last or time.
you are incredible.
Thank you for sharing this. I know how hard it is to do. l was diagnosed with cancer while pregnant 5 years ago. Went through some horrific body surgery. Had zero confidence. While recuperating, I discovered Pixiwoo. You have been a life-line to me when I was very ill. I have been in remission for a couple of years but Pixiwoo has helped give me my confidence back. I'll never wear a bikini again but I'll have stunning make-up thanks to ye! Look after yourself. xx
❤️That must have been VERY hard to go through. I have a 2 month old and I can't imagine taking care of him and also knowing I had cancer. You are a very strong woman. I'm glad you found this community and that you are in remission. Sending you loads of love and good vibes.
Wow, you are so brave, what an inspiration to all your followers. I’d say you faced an illness with determination and resolve to do the best you can to live your best life. I don’t see you feeling sorry for yourself, I see you dealing with your situation as a fighter.....fighting something very hard. You are absolutely AWESOME.
Thank you for making this video. I was diagnosed with relapsing remitting MS in November 2016 when I was 23. My son was 8 months old. It's so exhausting, but I just keep pushing through because that's all you can do. These videos help a lot. ❤️
It's always a strange situation to tell people something like that! I reacted the same when I was diagnosed with cancer 4 years ago. I cried for myself, I got it together, I started all the treatment - but when I had to tell people about that, I cried again even though I didn't feel sorry for myself, it was just so crazy to tell it to people I love. I saw how it made them feel.
So all the best to you, I think you are brave and just a great woman!
Thank you loads. Love to you too.x
I'm newly diagnosed as of two months ago; like you, optic neuritis in my left eye with permanent damage. MRI and lumbar puncture ordered, fortunately no illness but scared stiff! No warning, no family history, nothing and BANG, MS! I applaud you for sharing your story but please don't be scared because you can fight this. A girl like me needs a role model like you. I'm scared for my future too but if I dwell on it, I'll drown myself. We've got this! MS is a bitch of a disease but it doesn't deserve to steal your spirit, your smile and your beauty. Stay strong. And please keep sharing. You're amazing!
P.S. Totally understand not wanting to tell people. I don't want a pity party because I live a relatively good life. Yes, I have shit days but I don't want people treating me differently. I'm a RRMSer too and I don't need nor want sympathy. I'm still me. And by the way, you're a proud PabMS; a person affected by MS. Embrace it gorgeous.
Purple Enigma Hugs to you from a fellow MSer! Ive had it since 2002 . Im here if youd like to contact me for any questions, concerns or just to vent 🤗🤗
Purple Enigma praying for you both, stay strong you got this!
Thank you so much for sharing this honest story. I went from watching fillers to this. I was feeling down and you made me get a grip of myself. Clearly you are lovely person. How refreshing. Xx
Stay strong ! Lots of love! Your video makes me to think .. there is people who are poor and ill and we must stay strong and live life while we can .. I cried watching this .. beautiful video xx
my husband died of lung cancer in Feb I'm now a widow at 32 it's shit, your so strong you will get through it
storm le cat ❤️❤️
storm le cat ❤️
storm le cat
Much love darling. I have a very close friend who went through the same loss in their early 30's, it was a brain tumour. I haven't got any words to make it feel less painful, to ease your loss. But my friend has remarried 6 years later, to wonderful man who she is bringing up her children with.
Life for you is right now a day by day, don't think about the future, just keep making your daily life as normal as you can. Keep feeling how you feel, no matter what it is because grief is a funny bugger of a thing. I know you know your husband would want that for you, he loved and adored you.
Plus you know he'll always be with you, in your heart, no matter what you do and where you go in your life. He's in every star you see, every tree and every flower, every time you feel your heartbeat he's with you. It's an absolute rule of the universe that matter is never gone, we live in a constantly renewing closed system where matter is endlessly reused.
Every atom that made your husband is still around you and nothing will ever change that. I'm not religions personally, but every time I grieve I find that thought really comforting. You don't have to wait till you pass on to be with tjose you love, they're still here with you, just in a different form.
Thinking of you.
My childhood best friend was diagnosed with a very progressive and very aggressive form of MS by the time he was diagnosed he was told he had a couple of years left to live. he found this doctor in Chicago named Dr. Burt who has literslly cured many people of MS with stem cell replacement. My friend is jist at his 1 year mark since going to see Dr. Burt and has NO active MS. he is back at work full time he is back at the gym and he is leading a full life. he feels like he was granted a miracle and I agree. So when I see stories of MS I tell everyone find this doctor (He has videos all over CZcams w/ his former patients) he may just be able to help all of those with MS
Christina Belle yes this is the HSCT in Chicago I mentioned in my comment as well. I am a part of the Facebook group and love reading the amazing success stories that come out of it. My mom is probably too old to qualify there, but anyone with RRMS that meets the criteria should definitely look into it.
Christina Belle amazing story!!
Christina Belle bump bump bump
A very good friend of mine just had a transplant with Dr Burt for her Scleroderma!
Christina Belle I was diagnosed in 2014 too :(
I am so sorry for your loss , ur such an inspiration to me and million others , so keep smiling , u will get thru trying time with grace
I’m so sorry that you have to go through this. Your positive attitude towards this so amazing and I’m sure people going through something similar will really appreciate this video as I do ❤️❤️❤️
Your story has brought me to tears. My mother has MS (she was diagnosed 20 years ago) and is able to live a full and happy and healthy life. I know that everyone's disease is different, but I want you to know that it is possible, and I hope nothing but the same for you. Neither my sister or I has MS and hopefully we never will, but from the child of someone who has MS I do urge you to educate your children about your disease. I know your children are young but be open with them about it (in an age appropriate way) and share with them how you are feeling and it will help to take away a lot of their fear. I promise that they will be understanding and supportive and will do what they can to help (in an age appropriate way lol). Seeing my mother going through some of the rougher times scared me as a child, I was afraid that I would lose my mother and afraid that one day I would have it too. The more I was educated and talked to my mother about the better I felt. You are loved and supported not just by your family and friends but by the whole MS community. Love from Texas! xoxo
In all of my four or so years of watching youtube videos I have never felt the need to leave a comment until now. I think you're incredibly brave for sharing your story and I did cry along with you! Not out of pity, but for the admirable way you have picked yourself up and continued to live your life rather than let an illness define you. Your positivity is inspirational and i'm sure you will be helping a lot of people by posting this video! Sending lots of love x
You're a wonderful human being! So proud of you!
💗💗💗💗 thank you for this. I was diagnosed last year & this video was a reminder that we’re not alone.
Thank you so much for being brave and telling your story. It does help so many who are going through what you are. My brother also has MS but it took 10 years to get a diagnosis even though he knew something was wrong. He's doing well on Interferon therapy now and like you would hate the pity. When more people know about this disease it can only be a benefit to those who live with it so thank you for revealing something so difficult. Love your videos!
My dad has MS and so does my Nan I have cared for them both for as long as I can remember. I've watched their good and bad times. My dad recently completed a half marathon despite his pain. It can be so hard to watch them suffer sometimes, but it makes me so proud to see them in their good times
Congratulations to your Dad! What an amazing accomplishment 💕
I get teary when I talk about my health condition even though I am completely fine with it. I think you've been so amazingly brave to talk to so many people about it. Sending you lots of love.
You my dear are a phenomenal woman. You are taking life by the horns and not letting MS knock you down! It's a beautiful thing when you have the support of your spouse and family. You can get through a lot when you have love. You are strong and such an inspiration! P.S. Cancer and MS suck..hopefully one day we will take them out completely 👍🏾
You´re such an inspiration and so brave to tell us about your illness. I´ll send you lots of love, light and prayers
I have MS. What you must remember is that we may have MS, but it doesn't have us x
Kookoocachu Brilliant comment! Kudos to you 💕
Kookoocachu I agree! ❤️👍🏻
Kookoocachu praying for you God bless
It sucks to have this illness but I've learned to just not let it win over me which I did for years I would just cry the days I had to use my walker and staying home embarrassed and the days that were a bit better and going out with my cane my daughter got me a cheetah print one to make me feel better then I just said it is what it is and I can't let MS win I need to deal with it. But I wish this on illness on nobody it's a battle that you fight through
@Kookoocachu
Yeah!!! Thats right!👍🏻😘
Thank you for this video, Nic. You've given me some realisation. I'm only 23, I often lose vision in my left eye, one time I went blind for about ten minutes, I quite often lose strength in my legs and sometimes I stumble or my legs give way. When I'm tired, my speech slurs. My biological Auntie has MS and now I've listened to your story, I'm going to book an appointment at the Drs. Thank you for sharing your experience, and for potentially helping many people in your audience. I hope you're well and that you continue to stay healthy. All the best, Jess.
Hi please let me know how it goes, as I have Ms and had a similar story to you. I'd love to talk if you are comfortable to do so. God bless
Emma of course, thank you for your comment. I'll be sure to message you soon
Hi thanks for getting back to me, if you want to talk my email address is toeders@aol.com and I've had Ms for 10 years. X
Emma thank you!
Please see a sleep specialist! I have narcolepsy and your symptoms sound very similar. I wish you well!
You are amazing! So brave to open up in such an honest way. Beautiful person inside and out, your strength will help so many people. Family and friends must be so proud by you. You and your sister have always been such an inspiration and this video has enhanced that. Your outlook and honesty is so engaging, uplifting and stunning. Wishing you lots of love and support. xxxxx
How brave of you to do this video, sharing such a personal issue with the world. I was in tears watching this, my heart goes out to you. You are such a strong person. Well done for getting on with your life and managing with that condition x
Thanks loads Emma.xx