Great explanation! I've recently been given a diagnosis of ET JAK2 Positive. My platelet count is currently 460. I'm prescribed asperin & having my bloods monitored every 3 months. I'm having little headaches now & again & itchy skin at times.
Wow... Glad I found this. It really explains it better. My platelets where at 1.3 million, they're down to just under 700,000 now with two hydroxyurea a day. But my family doctor is just now getting ready to have my spleen ultrasound because my left side has HURT for several years and she'd been dismissing it as 'gas'. Not real sure they can do anything to make it stop hurting but at least when people are looking at me funny I wont have to say, "it's just gas"....lol
My daughter has this and her platelets are at 1.2M. She’s only 23. If you don’t mind answering, please tell me if you took 2 each 500mg Hydrea pills. That is the recommendation for her but I’m worried of the long term effect.
@@susiervelez7463 I'm happy to say my ET is cured and gone. This post was older. Have your daughter look into keto, just click my name. I had 30 medically diagnosed diseases and all of them are gone.
KETO Diamond Channel. Hello, my current platelet count is 1,616,000. Doctor said i should take Anagrelide and then have a Jak2 Mutation Blood test. How did you manage your case? Please please share. Thank you. 🙏
Very interesting now i know more about my E.T. i like to know as much as possible about my condition and i thank you for all you do in keeping us informed. Maggie Marson
I have been dealing with Essential Thrombocythemia since 2010. I love this video it really explains and breaks down what going on in the body with having a high platelet count. Thank You!!!!
No One Can you talk a little bit about your experience? llifestyle and how you controll it? its been 5 years now! what doctors say and how often you visiti them
@@reinejin7643 thanks for your reply _ that’s awesome that you are negative & praise & thanks to God for that. Unfortunately I have tested JAK2 positive but my platelets are around 460 which is just above normal range; so the doctor is monitoring my bloods every 3 months!
I was diagnosed with this in 2005, back then there was very little information about it, this video is great. For ten years I have taken a cardio aspirin a day and get my blood tested every two months. My platelet count was pretty stable (always under 1,000) until this May when for some unexplained reason it shot up to 1,682 and white cells increased to 18. The tingling burning in my fingers and toes got quite painful. I moved on to two aspirins a day plus two Litalir capsules and after a few weeks it's down to 650 and white cells at 13. I had a marrow biopsy and all good there. Would love to know why the platelets suddenly shot up so much.
Indi Viksorry to ask you how old were you in back in 2005? one of my friend diagnosed with it three days ago. I have no hope it will get better. How was your experience? if you share with me, I would love to hear it.
I understood this much about my problem, but am treated with anagrelide, for 12+ years now. Going to keep looking for more technical data to be sure I"m managing correctly. Thanks!
@@Ss-on2ej I think your oncologist or hematologist would not have prescribed it if it wasn’t safe for you. I’m not a doctor. I’ve been taking it for 17 years; my dose has gone from 1 mg to 1.5 a day since then to stay under 400. There are no other like-action medicines available. It works to reduce the formation of platelets in the bone marrow.
Is anyone else with ET experiencing bone and joint pain? Asking for my better half who is in tremendous health if it wasn't for ET and bone pain she is experiencing.
Great video but the only way to diagnose E.T. is with a Bone marrow biopsy and aspartate. Definitely be aware this is 4 and a half years old. It has since been retermed as MPN's (neoplasm not disorder).
I am diagnosed with ET but have never had a conversation with anyone about it. Thank you for sharing this info.
Thank you for this! Clears up a lot of confusion I’ve had since seeing the hematologist this morning.
thank you. I now share this vid when folks ask me about my e.t.
Great explanation! I've recently been given a diagnosis of ET JAK2 Positive. My platelet count is currently 460. I'm prescribed asperin & having my bloods monitored every 3 months. I'm having little headaches now & again & itchy skin at times.
i freaking love u. u explained this so easily. i'll send it to all my family b4 i die of this bullshit blood cancer.
This is a great video. Instead of trying to explain this to my friends and family, I just show them this video.
Just a straight up great video
Wow... Glad I found this. It really explains it better. My platelets where at 1.3 million, they're down to just under 700,000 now with two hydroxyurea a day. But my family doctor is just now getting ready to have my spleen ultrasound because my left side has HURT for several years and she'd been dismissing it as 'gas'. Not real sure they can do anything to make it stop hurting but at least when people are looking at me funny I wont have to say, "it's just gas"....lol
My daughter has this and her platelets are at 1.2M. She’s only 23. If you don’t mind answering, please tell me if you took 2 each 500mg Hydrea pills. That is the recommendation for her but I’m worried of the long term effect.
@@susiervelez7463 I'm happy to say my ET is cured and gone. This post was older. Have your daughter look into keto, just click my name. I had 30 medically diagnosed diseases and all of them are gone.
KETO Diamond Channel. Hello, my current platelet count is 1,616,000. Doctor said i should take Anagrelide and then have a Jak2 Mutation Blood test. How did you manage your case? Please please share. Thank you. 🙏
@@KETODiamond were you tested for JAK2 positive?
@@KETODiamond can you please tell me how your et is cured iam 19y and my platlets are realy high and been diagnosed with et and only taking aspirin
Thank you so much for this explanation! ! I wish my hemotologist had just explained it to me this way initially!
Excellent Explanation! indeed, much better than my doctor's. Thank you very much!
Thank you. This explanation was very elucidative for me. Please keep doing the good things that you are doing now.
That was so well organized and I think you did a wonderful job drawing it out! Thanks!
T
Thanks Doc. This helped to calm me down a lot!!
Very interesting now i know more about my E.T. i like to know as much as possible about my condition and i thank you for all you do in keeping us informed. Maggie Marson
You are awesome! So easy to understand..Yay! Thanks!
This lecture series on MPD has been really helpful for my medical exams. Thank you!
Thanks for this amazing explanation!!!!
I have been dealing with Essential Thrombocythemia since 2010. I love this video it really explains and breaks down what going on in the body with having a high platelet count. Thank You!!!!
No One Can you talk a little bit about your experience? llifestyle and how you controll it? its been 5 years now! what doctors say and how often you visiti them
I was diagnosed in 2010 also but I wonder how long I had it before they found out. I take a baby aspirin a day and Hydroxyurea.
Hey No One, how are you going with things these days in terms of your ET? Looking forward to your feedback!
@@drmpilot365 Hi, how are you doing presently with your ET & treatment?
thanks for this, your explanation better than my doctor
Yes my wife has e t.
Is taking anagrelide which have helped her platelets they are down to 250
From 770
nice lectures thanks
Im just happy to find someone that has my condition
Thanks a lot Sir for this vid. I was diagnosed with ET by today only. I do my research and found this vid of yours very well-explained. Ty!
Hi, I have ET, how long have you had it? I’m well into my 5th year. I just turned 66. I got it from radiation treatments for breast cancer!
Hi how are you going with your ET currently. Are you also JAK2 Positive? Looking forward to your feedback!
@@jeanwarech4982 Hi, I am very sorry for my late in reply. I am good now, thank God.I detected negative after taking JAk 2 assay test.
@@charlieleonardo hello, thank God. I am already negative. How about you?
@@reinejin7643 thanks for your reply _ that’s awesome that you are negative & praise & thanks to God for that. Unfortunately I have tested JAK2 positive but my platelets are around 460 which is just above normal range; so the doctor is monitoring my bloods every 3 months!
I was diagnosed with this in 2005, back then there was very little information about it, this video is great. For ten years I have taken a cardio aspirin a day and get my blood tested every two months. My platelet count was pretty stable (always under 1,000) until this May when for some unexplained reason it shot up to 1,682 and white cells increased to 18. The tingling burning in my fingers and toes got quite painful. I moved on to two aspirins a day plus two Litalir capsules and after a few weeks it's down to 650 and white cells at 13. I had a marrow biopsy and all good there. Would love to know why the platelets suddenly shot up so much.
Indi Viksorry to ask you how old were you in back in 2005? one of my friend diagnosed with it three days ago. I have no hope it will get better. How was your experience? if you share with me, I would love to hear it.
Sir call me 9529249494
Sir call me plz 9529249494
can you please explain where the MLP-mutation takes place? my mum has ET but she doesn't have the JAK2 mutation, but the MLP mutation.
I understood this much about my problem, but am treated with anagrelide, for 12+ years now. Going to keep looking for more technical data to be sure I"m managing correctly. Thanks!
Hey iam just diagnosed with et and i want to ask if it was safe taking anagrelide and the side effects iam 19y with 900 platelets thankss
@@Ss-on2ej I think your oncologist or hematologist would not have prescribed it if it wasn’t safe for you. I’m not a doctor. I’ve been taking it for 17 years; my dose has gone from 1 mg to 1.5 a day since then to stay under 400. There are no other like-action medicines available. It works to reduce the formation of platelets in the bone marrow.
@@hollyrivney3638 do you experience any side effects? Iam afraid of the long term sides
Can u please tell the treatment on this....plz
Does this affect ppl with diabetes differently? How about anemia? My platelets have been at 439 up to 451 for 9 months now
well that explains the giant bruises I seem to always have
can it cause macular degeneration ? capillary problems ?
Is anyone else with ET experiencing bone and joint pain? Asking for my better half who is in tremendous health if it wasn't for ET and bone pain she is experiencing.
Great video but the only way to diagnose E.T. is with a Bone marrow biopsy and aspartate. Definitely be aware this is 4 and a half years old. It has since been retermed as MPN's (neoplasm not disorder).
Aspirate* damn auto correct!
My mom was prescribed Hydroxyurea by the doctor a couple days ago because her platelet count was increasing. She only had blood work and not a biopsy
Fuck this condition. All the way. Hate to see my mom struggling through this bullshit.
Z